I had one too many wines while watching this vlog. So when Tom came on with his merch shirt I just screamed: I HAVE THAT SHIRT. AND I’M WEARING IT! Just in a different type of shirt! *zips open hoodie with zipper* and my boyfriend was like: yeah babe... I see. Put your clothes back on 😂 so anyway... I love my shirt! So comfy too! Lots of love from tipsy me 😘❤️
I love my weighted blanket. It’s just so soothing and comforting. I find it helps a lot with anxiety. If you’ve ever felt safe wrapped up in a ton of blankets you know the feeling. A weighted blanket gives you that level of coziness but without all of the heat/ hassle.
I have a weighted blanket for my fibro pain and it's a godsend. Doesn't take the pain away of course, but it helps so much when the pain is really bad.
This is awesome to know. I struggle so hard with sleep. When i'm not struggling to get to sleep i'm struggling to stay sleep and the pain... well, you know. Thank you!!
Just saw this video! I finally decided to buy a weighted blanket myself several months ago. I have fibromyalgia/CFS and chronic pain, and the weighted blanket has gotten me through so many bad flare ups. They are so incredibly helpful for painful nights and for days when it’s hard to walk/get off the couch.
Hi Amy, I have slept with a weighted blanket for about 8 years now, and started with a 20 pound over a double bed and now sleep with a 38 pound over a Queen....... I would love more weight but it’s now safe, as it could cause me to not be able to take a big enough breath in my sleep. The one I had made for me did not come with a cover and the pellets( weights) were put in quilted pockets, like yours. I would worry about the entire blanket shifting inside the cover. I chose not to put mine in a cover for that reason. This is how I keep mine clean ( twice a year take it to a laundry mat with a huge industrial washer) so I put a fitted sheet on my bed then a top flat sheet that is one size larger than your bed. Then put the weighted blanket on, then the top flat sheet that is the right size for your bed. Then tuck the top sheet under the weighted blanket and the fold the larger top sheet over the top of weighted blanket and other sheet. Then put what ever blankets you need to keep you warm.... I don’t use any others...... hope this makes sense, if you have questions I can help you out!
I watched your video and at the end where you spoke about you body issues and wearing a bikini, I kinda went like: “what”.? Only then realised you had tubes. Just goes to show, I’m getting to be like Tom where we look beyond the tubes and only see the gorgeous YOU.
A 25 minute vlog! Yes please! I have been watching you since the beginning way before you moved to Australia! Been wanting to try a weighted blanket so I may give it a try! I’m so excited for the new & last season of Game of Thrones! Amy you are so strong 💪🏼 you look great and just because you have a tube doesn’t mean you can’t wear a bikini. Everyone has flaws and you just have to embrace them! You’ve been through so much and are lucky to be alive. Be confident in the body you are in! We all love and support you!
I know it was not funny, your toe popping out. But the noises and the way the situation played out was hilarious. I was like in tears laughing. I love watching you both and you are a truely an inspiration Amy. Love ya bunches. God bless.
Pre-warning, if you have your macbook on top of the magnets, don't be surprised if it goes to sleep haha. Took me months to realise my laptop wasn't broken but that the magnets were messing with it 😂
Maddie O'Dwyer I know I’ve been warned but thank you so much! I’ll definitely put somthinh between my blanket and the laptop. Any ideas maybe a pillow or a book?
Wow, love your bullet notebook. If you made those with all your pictures and quotes and blank for me to fill in. I would totally buy one for me and my sisters.
I have a weighted blanket and it looks just like yours. It's quilted, so the beads stay in each square. You didn't need to ask them to "tie it off". I love mine!
I'm at the point with my body where I don't care what people think. I only have this body I have to feel comfortable in it and you should too Amy. It will take time I know from experience but first try to avoid thinking about what other people might think. If they'll go up to you and ask ok that's fine but when they just look then don't be stressed about it. Your life is yours do as you please with how you dress. I see trough your tubes too and they only make you look like a fighter. Embrace them because we can be grateful for them to have you here.♥
Imo, the "Doodles that matter" handles water colour and markers better than most. Best of luck with the new blanket. I'm glad your smile is back. When I hear you say rough, i know you arent feeling your best. I wish your family all the best. Enjoy the cooler weather.
I love my weighted blanket as I have autism spectrum disorder and sensory difficulties. I know it’s not the same as your condition but it might help with anxiety. I’m not sure how I found your vlog but I love how you approach life and I share your love with Harry Potter. And I also want to move to Australia. Keep up the good work x
Power to you Amy, I 100% agree you should be able to wear what you want regardless of what people think, it’s your life, your body, your choice. I reckon you should be proud of it all because it’s giving you life, show it off with pride. With all your medical issues I think you’re amazzzzzzzzing 👍😀
I've just started a Christian bullet journal. I'm not as good as you on the print work..but it's great fun and very satisfying! Your artwork is lovely!
I had an ileostomy and after that a transverse colostomy (holy 💩) started to wear a lot of clothes that weren't my style. Then I finally realized screw anyone who looks at me bc I have been through hell... I tattooed from my picc line to hide the huge vein that clotted and looked like a green snake. I still like tankinis bc of my surgical scars. I laugh and call myself Franklin belly... Learned it's my life, I'll wear what I want and I wonder how many of those "onlookers" would feel brave enough to just realize that they are human and not freaks. It's horrible thinking of myself that way as a freak, I'm not and neither are you, love yourself, I think your amazing! Let them stare, maybe they're checking out how great your body is! Be YOU!!! YOU'RE BEAUTIFUL!!!
I completely agree ! I have a gj tube and HATE it! I have chronic illness as well. I have a chest port. My Hickman didn't work well. I'm very self-conscious about my tubes and all my scars. Your beautiful no matter what tubes you have girl!!
I have hypermobile joints (probs EDS but it's hard to get reffered to rheumy near me) amongst other problems. My main tip with weighted blankets is to support your joints underneath it - so I need a large, firm pillow (generally memory foam to be firm enough) between my thighs/knees (or a v-shaped pillow between my whole legs) and one to hug, otherwise the weight can sublux or strain my joints. I get so so much benefit from my blanket but I just need to be cautious when I'm using it that it's not putting pressure on my joints where it shouldn't
I hope your blanket helps you get some good rest Amy!!! Also, I wanted to let you know I've FINALLY saved up enough money to purchase one of your merch hoodies!!! I absolutely cannot wait for it to arrive!!! My husband thought I was crazy for buying something like that when summer is right around the corner, but I didn't want to wait any longer!!!
Loved that tree bujo spread! You'll get there with the tube confidence. I am moving into summer where I live and add in hot flashes and crop tops are basically all I wear at home, but going out in them, nope. I throw a baggy shirt on over the crop top. I felt self conscious in a crop top pre-tube, with this long dangler hanging out, it's definitely not happening for me yet. That said, I'm sitting here not hungry and not thirsty and not weak from malnutrition and for that I love love love my clunky, awkward but oh so useful tube.
I've been curious about weighted blankets myself, maybe I'll try one. One word of caution: I'm a wee bit worried about long-term effects of the magnets and a laptop with a spinning hard drive... if yours has SSD/solid state drive no worries. Just a thought.
eFoobar Laptops typically have SSDs so they don't move at all and won't be damaged by magnets as they don't have a magnetic platter like hdd do. Mac has been using strictly SSDs I think since the first MacBook Air
Hi Amy, I love the cuddly idea of the weighted blanket, but in Jamaica, I would have to turn on the fan really high to be able to get cool enough to need the blanket! I hope it continues to work for you. Tom made be laugh outloud today, enjoyed his comments and contributions. My surgeries have made me( sort of) disfigured, but I still wear swim suits to the beach. People do stare and comment, but I ignore them.You look good, enjoy yourself!
He is so funny 😂 I about peed my pants watching him do that dance thing🤣😂. You both are so sweet. You don’t put on a show. Your true to us and it leaves us with a great feeling. Love you♥️
Hey Amy, hope your good today. bought myself a heat pack like yours and I'm loving it and it's so far its helped with both my bad back and my Knee. Keep up the great content. 😁
Not the same, but I get the 'doing it for attention thing'. I have silversplints now (I have HSD) and before that, people couldn't see that something 'was wrong/different'. Now I get asked all the time where they are for.
I hope the weighted blanket helps you. As for the confidence to be in a bikini, you can do anything you put your mind to. I understand how not wanting to be pittied can be. You want someone to look at you for you not for your illness. I think you look great.
You are beautiful the way that you are,don’t let people’s opinions of you bother you. I see the tubs as something that is going to help you be healthy. If you want to ware a short top so be it is your life not there. I like to watch your videos it has given me a lot better understanding of Eds.
I love to your videos. They help to me pass the day away. Thank you forI'm making your videos fun and lighthearted and enjoyable. I greatly appreciate it. As a chronically ill person I appreciate being able to see other people like myself. An know that we may not have the same problems, but we understand each other. An understand the situation and the up and down. So thank you for putting your self out there. I hope you have a a wonderful day! I see everybody's like tubes and feeding tubes as in like g tubes and J tubes. An everybody's placement is so much lower than where I had mine.and I don't know if the reason mine was placed so high was, because I was just had a g-tube. I didn't have a Mickey button or a mini button or any of those. Unfortunately I had the stationary tube that's stuck out and look like I had an alien coming out from underneath my shirt which was really creepy at times. I have a lot of people ask me when I do wear bathing suit what's the scar underneath my boobs why do I have a big circular scar basically dead center underneath my boobs. I call mine a second belly button, because technically what does a feeding tube do? It's just like a belly button/umbilical cord. When you can't eat by mouth that how you get your food. An I have mainly little kids ask what it is I've had a couple people ask adults but mainly it's little kids that I asked. An I explained what it is, but I'm comfortable with mine. It took a long time to be comfortable with it. I happy I had that tool while I needed it. An that it help get me better and get me to a point where I no longer needed it. So I am thankful for it but glad to know longer have it. ( Please forgive any spelling or grammar mistakes. I have dyslexia. And I am not the greatest at spelling I'm not the greatest at grammar. ) Thank you so much for understanding and being polite and not correcting any grammar or spelling mistakes and understand it is what it is. An I do the best I can. Thanks again and I hope you have a wonderful day and a wonderful week.
There’s someone I follow on Instagram and she has a tellonym account. Someone actually posted on her tellonym account that they bought an NG online and wanted to know how to put it in! The girl on IG has an NJ and NG and answered this person saying “I hope this is a joke”. Whoever wants a tube as a fashion statement or attention seeker needs help. I can’t understand people who want tubes or central lines, they don’t understand the complication that can come with them. I’ve had my central line for almost 6 yrs. I got sepsis once early on, but not in the last 5 yrs. I’ve had a feeding tube for a little over 3yrs, first an NJ then 6 months later a GJ. I’d love to get rid of both! But I can’t. I’d like to try a weighted blanket but think it would be too hot in the summer (it’s spring now in Canada though still cold!).
I have my mic-key Fran age 2-18. Going through puberty and the stage in your life when you find your style and what clothes makes you confident I really struggled. I would wear bikinis rarely but would hold my arm across my body to cover it. My stoma where it was is closed at my stomach but it still looks the same as it did when I first took the tube out for good. So still self conscious about it, bit there’s no bump if I wear tight clothes which I love!
I just sat through a two minute advertisement about pregnancy - only I cannot ever get pregnant because it would put too much strain on my body and I wouldn’t be able to get far enough along for a baby to survive - even though I find it so triggering - I sat through it to help you!
On the topic of weighted blankets, I asked my doctor about what weight to get. On the topic of body image: girl, go watch Maggie at Let's Talk Ibd. She talks about rockin her bag, in a bikini, at the beach😉. Now, obviously you've had to overcome some issues in the beginning of your TPN journey, and I'm sure you may still struggle a bit here and there with those issues.. but, you look fantastic, and you know that. YOU know how far your body has come, and YOU know how much you went through to get to where you are. Don't ever be ashamed to show off the tools that helped you succeed. Are you ashamed to be seen in public in your wheelchair? It's just a tool to help you succeed in getting from one place to another, just as your tubes help you get from one place in life to another. 💜🥄🥄🦓💪
My best friend tori and I sleep spooning each other because it makes her feel safe and comfortable. And both of us always sleep better because it’s nice to hold her close, and for her to be spooned. But we look like lesbians when her parents walk in 😂. But spooning is fun 😂😂
Weighted blankets go by your size? I have hated them because I tried a couple of my friends, and I have asthma (usually upon exercise periodically) and been a heart patient my whole life as I have cardiac defects. Anyway I tried it 2 times and had to pack it up straight away as I kept gasping for air! But maybe it is just because I am 4' 10" and do not weigh much ... so I never thought it needed to be customized. I feel silly I did not know lol.
Amy's Life Yes! Good point!! I like how you mentioned that you did not size it up by kilo. So I'd keep that in mind as well when I order. Thank you Amy! 🤗
I don’t think I could stand feeling hemmed in with the weight, I have 7 chronic illnesses, one being Crohn’s so I need to get out of bed quickly lol 😂 In the UK 🇬🇧 midodrine is called Bramox and I’m on it also, dose it make your head and neck tingle?? I love the way you mix your vlogs between medical and your real life unlike a certain other who sounds like she’s swallowed a medical dictionary! Who also becomes “too ill” when not doing the things she wants and wearing leg splints and constantly in a wheelchair but then sits crossed legged on the floor etc!!! I could go on but I think we all know who I’m talking about? You’re a beautiful and amazing woman and your strength is astounding, don’t care about what others think sweetie, you carry on living your life your own unique way xx
Lotti at Beanie Co Designs really where I lived in the UK (Manchester) I was on midodrine for years and it was always called midodrine atleast from the chemist/ brand I got it from! How weird 😅 and OMG that other person your talking about! I completely agree and I’m glad you think I have a good balance between Medical & otter stuff because I try really hard to mix both into my vlogs! Because although my health is a big part of my life and it sucks 99% of the time there’s also so much more to my life and so much non medical stuff I want to share with you guys! Sending all my love!❤️❤️❤️
Amy's Life thanks for the reply, I’m the same as you Amy I go through life laughing at the “whoopsies” I make with all my illnesses 😂. I do have bad days but I still have to get in with things as I have 2 children to look after. Love keeping up with your positive life style xx
I've got 2 custom made weighted blankets amy there amazing i love mine really helps with my Aspergers and fibromyalgia you will love yours also watch out for the laptop don't want your toe popping out again 😂😂😂
Who cares about dervices u are beautiful in everywhere let me tell you this “ you are worth it” do what suits you who cares about what people think ur a chronic warrior 💪🏻 I hate showing others i have a pharmacy of medication (a lot) due to Lupus SLE and fibromyalgia it’s what makes my condition better and have too who cares about others I might be known as a druggie I don’t care 😇 😘😘 from Melbourne 🇦🇺
Hey Amy nice video content today and great news on the weighted blanket and keep up the great content on your channel 💙💜❤️💚🧡💛🍂👍👋👌😀🤩🤩🤩🤩...................................................
I think a lot of people feel that about needing tubes or devices to be recognised as sick because and I say this as a person with hidden disease that people don't treat them as unwell or believe how bad it is. I kno tubes must suck I have had my share short term tubes and they were enough for me having them always would be horrid but it comes with a understanding from people of oh right u are sick u have xyz and if u have a feeding tube ur less likely to get oh it's just a bit of anxiety snap out of it as an example
Bought a weighted blanket at Xmas, on sale, it was only 11? Pounds supposedly a child size, well, it went back the next day. I could not EVEN lift it on me, it was crazy! I’m about 100 pounds, 5”6, prob the same as you, but I would only try it again if I found a 6? Pound one. This one was on sake for only $20 so the price was fine. But this zebra just couldn’t handle it 😂
I had one too many wines while watching this vlog. So when Tom came on with his merch shirt I just screamed: I HAVE THAT SHIRT. AND I’M WEARING IT! Just in a different type of shirt! *zips open hoodie with zipper* and my boyfriend was like: yeah babe... I see. Put your clothes back on 😂 so anyway... I love my shirt! So comfy too! Lots of love from tipsy me 😘❤️
Manon Motzheim this made my day! Oml love you! 💖
I love my weighted blanket. It’s just so soothing and comforting. I find it helps a lot with anxiety. If you’ve ever felt safe wrapped up in a ton of blankets you know the feeling. A weighted blanket gives you that level of coziness but without all of the heat/ hassle.
I have a weighted blanket for my fibro pain and it's a godsend. Doesn't take the pain away of course, but it helps so much when the pain is really bad.
Me to! Helps the RLS a little and I sleep more still since i got it as well.
This is awesome to know. I struggle so hard with sleep. When i'm not struggling to get to sleep i'm struggling to stay sleep and the pain... well, you know. Thank you!!
Just saw this video! I finally decided to buy a weighted blanket myself several months ago. I have fibromyalgia/CFS and chronic pain, and the weighted blanket has gotten me through so many bad flare ups. They are so incredibly helpful for painful nights and for days when it’s hard to walk/get off the couch.
Hi Amy, I have slept with a weighted blanket for about 8 years now, and started with a 20 pound over a double bed and now sleep with a 38 pound over a Queen....... I would love more weight but it’s now safe, as it could cause me to not be able to take a big enough breath in my sleep. The one I had made for me did not come with a cover and the pellets( weights) were put in quilted pockets, like yours. I would worry about the entire blanket shifting inside the cover. I chose not to put mine in a cover for that reason. This is how I keep mine clean ( twice a year take it to a laundry mat with a huge industrial washer) so I put a fitted sheet on my bed then a top flat sheet that is one size larger than your bed. Then put the weighted blanket on, then the top flat sheet that is the right size for your bed. Then tuck the top sheet under the weighted blanket and the fold the larger top sheet over the top of weighted blanket and other sheet. Then put what ever blankets you need to keep you warm.... I don’t use any others...... hope this makes sense, if you have questions I can help you out!
I watched your video and at the end where you spoke about you body issues and wearing a bikini, I kinda went like: “what”.? Only then realised you had tubes. Just goes to show, I’m getting to be like Tom where we look beyond the tubes and only see the gorgeous YOU.
You two make me laugh. Hope your toe isn’t too sore. Naughty Tom leaving the laptop in the way 😂 xxx
A 25 minute vlog! Yes please! I have been watching you since the beginning way before you moved to Australia! Been wanting to try a weighted blanket so I may give it a try! I’m so excited for the new & last season of Game of Thrones! Amy you are so strong 💪🏼 you look great and just because you have a tube doesn’t mean you can’t wear a bikini. Everyone has flaws and you just have to embrace them! You’ve been through so much and are lucky to be alive. Be confident in the body you are in! We all love and support you!
Kristen Fisher thank you so much!! And thank you for putting up with me all this time 😅💖💖
This blanket has helped me so much!! I sleep so much better and when I have anxiety it helps me calm down. It's so good!!
I know it was not funny, your toe popping out. But the noises and the way the situation played out was hilarious. I was like in tears laughing. I love watching you both and you are a truely an inspiration Amy. Love ya bunches. God bless.
Donna Lee haha I laughed at myself too whilst editing 😂😂
Pre-warning, if you have your macbook on top of the magnets, don't be surprised if it goes to sleep haha. Took me months to realise my laptop wasn't broken but that the magnets were messing with it 😂
Maddie O'Dwyer I know I’ve been warned but thank you so much! I’ll definitely put somthinh between my blanket and the laptop. Any ideas maybe a pillow or a book?
@@amyslife4457 Yeah that would definitely work! Even just your laptop sleeve. I thought I was going crazy for months haha
Wow, love your bullet notebook. If you made those with all your pictures and quotes and blank for me to fill in. I would totally buy one for me and my sisters.
Your bullet journal looks so good!
I been thinking that a weighted blanket may help me. With your vlog I'm definitely going to give it a go. Thank you Amy
20:00
Amy- 'I am blind, I have one eye!'
Me- 'wait what?'
That weighted blanket looks great, I might have to give it a go myself!! x
I love your bullet journal! Beautiful!
I have a weighted blanket and it looks just like yours. It's quilted, so the beads stay in each square. You didn't need to ask them to "tie it off". I love mine!
I'm at the point with my body where I don't care what people think. I only have this body I have to feel comfortable in it and you should too Amy. It will take time I know from experience but first try to avoid thinking about what other people might think. If they'll go up to you and ask ok that's fine but when they just look then don't be stressed about it. Your life is yours do as you please with how you dress. I see trough your tubes too and they only make you look like a fighter. Embrace them because we can be grateful for them to have you here.♥
Imo, the "Doodles that matter" handles water colour and markers better than most. Best of luck with the new blanket. I'm glad your smile is back. When I hear you say rough, i know you arent feeling your best. I wish your family all the best. Enjoy the cooler weather.
I love my weighted blanket as I have autism spectrum disorder and sensory difficulties. I know it’s not the same as your condition but it might help with anxiety. I’m not sure how I found your vlog but I love how you approach life and I share your love with Harry Potter. And I also want to move to Australia. Keep up the good work x
Power to you Amy, I 100% agree you should be able to wear what you want regardless of what people think, it’s your life, your body, your choice. I reckon you should be proud of it all because it’s giving you life, show it off with pride. With all your medical issues I think you’re amazzzzzzzzing 👍😀
I love watching you and Tom you guys make me laugh. Ty for that. Amy your natural beauty comez out and your beautiful with ur tubez 💙💙💙
I think that's a great idea Amy. Being OK with the way you look is important and I know that I need to work on it too. You're not alone.☺️
I love Life With Strips. I just started to watch Hanna and Shane and I like them as well.
Tom, my son also has the growth stretch marks too....he went from he grew a foot in probably 2yrs ...he is now 6'5". Love you Amy.
I've just started a Christian bullet journal. I'm not as good as you on the print work..but it's great fun and very satisfying! Your artwork is lovely!
I had an ileostomy and after that a transverse colostomy (holy 💩) started to wear a lot of clothes that weren't my style. Then I finally realized screw anyone who looks at me bc I have been through hell... I tattooed from my picc line to hide the huge vein that clotted and looked like a green snake. I still like tankinis bc of my surgical scars. I laugh and call myself Franklin belly... Learned it's my life, I'll wear what I want and I wonder how many of those "onlookers" would feel brave enough to just realize that they are human and not freaks. It's horrible thinking of myself that way as a freak, I'm not and neither are you, love yourself, I think your amazing! Let them stare, maybe they're checking out how great your body is! Be YOU!!! YOU'RE BEAUTIFUL!!!
I completely agree
! I have a gj tube and HATE it! I have chronic illness as well. I have a chest port. My Hickman didn't work well. I'm very self-conscious about my tubes and all my scars. Your beautiful no matter what tubes you have girl!!
I have hypermobile joints (probs EDS but it's hard to get reffered to rheumy near me) amongst other problems. My main tip with weighted blankets is to support your joints underneath it - so I need a large, firm pillow (generally memory foam to be firm enough) between my thighs/knees (or a v-shaped pillow between my whole legs) and one to hug, otherwise the weight can sublux or strain my joints. I get so so much benefit from my blanket but I just need to be cautious when I'm using it that it's not putting pressure on my joints where it shouldn't
I hope your blanket helps you get some good rest Amy!!! Also, I wanted to let you know I've FINALLY saved up enough money to purchase one of your merch hoodies!!! I absolutely cannot wait for it to arrive!!! My husband thought I was crazy for buying something like that when summer is right around the corner, but I didn't want to wait any longer!!!
cool but very expensive another great video love the hats especially the grey
I love my weighted blanket! It really helps me x
Loved that tree bujo spread! You'll get there with the tube confidence. I am moving into summer where I live and add in hot flashes and crop tops are basically all I wear at home, but going out in them, nope. I throw a baggy shirt on over the crop top. I felt self conscious in a crop top pre-tube, with this long dangler hanging out, it's definitely not happening for me yet. That said, I'm sitting here not hungry and not thirsty and not weak from malnutrition and for that I love love love my clunky, awkward but oh so useful tube.
I have the heaviest wool blanket Pendleton makes. I love it. It's about the same price as your blanket lasts forever.
I love my weighted blanket. It's awesome, but be careful on really hot days. I use it in my office.
You. Are a great girl you take everything in your stride and carry on with your life I admire you a lot ❤️
You’re so talented!!
I've been curious about weighted blankets myself, maybe I'll try one. One word of caution: I'm a wee bit worried about long-term effects of the magnets and a laptop with a spinning hard drive... if yours has SSD/solid state drive no worries. Just a thought.
eFoobar ahh!!! Good point! Thank you so much for mentioning it! 🙏🏼👍🏼
eFoobar Laptops typically have SSDs so they don't move at all and won't be damaged by magnets as they don't have a magnetic platter like hdd do. Mac has been using strictly SSDs I think since the first MacBook Air
Those cookies are amazing 💗
I love my weighted blanket! I got mine from Target.
Amy you have a very cool dad and I love Toms sweat-shirt love you guys Amy you rock🤘
Midodrine has been kinda hard for me to get too in Seattle. My pots has been out of control for like 6 mos.
Hi Amy, I love the cuddly idea of the weighted blanket, but in Jamaica, I would have to turn on the fan really high to be able to get cool enough to need the blanket! I hope it continues to work for you. Tom made be laugh outloud today, enjoyed his comments and contributions. My surgeries have made me( sort of) disfigured, but I still wear swim suits to the beach. People do stare and comment, but I ignore them.You look good, enjoy yourself!
U go for it and don’t worry about other people u do it for u
He is so funny 😂 I about peed my pants watching him do that dance thing🤣😂. You both are so sweet. You don’t put on a show. Your true to us and it leaves us with a great feeling. Love you♥️
Angel_eyes65 aww this means so much to me! Thank you! Love you too ❤️
You are such a wonderful artist!😘
Hey Amy, hope your good today. bought myself a heat pack like yours and I'm loving it and it's so far its helped with both my bad back and my Knee.
Keep up the great content. 😁
Chronic Gaming yay I’m glad it’s helping! ❤️❤️❤️
You are such a wonderful couple. I love watching you interact. Xx
Have a great night. Goodnight😁👍
Good morning, i think afternoon for you Amy! :D
Have an awesome day and have lots of fun!! :D
I have a weighted blanket and it helps me sleep better through the night
Also I feel your pain with the midodrine debacle. I'm currently trying to get approved but my specialist keeps pushing my appointments back 😢
Not the same, but I get the 'doing it for attention thing'. I have silversplints now (I have HSD) and before that, people couldn't see that something 'was wrong/different'. Now I get asked all the time where they are for.
Omg!! I love the shirt.
I think you are beautiful and your spirit shines.
I hope the weighted blanket helps you. As for the confidence to be in a bikini, you can do anything you put your mind to. I understand how not wanting to be pittied can be. You want someone to look at you for you not for your illness. I think you look great.
You are beautiful the way that you are,don’t let people’s opinions of you bother you. I see the tubs as something that is going to help you be healthy. If you want to ware a short top so be it is your life not there. I like to watch your videos it has given me a lot better understanding of Eds.
My sister has the same stretch marks on her back from growing to fast
9:25 wow! ❤️❤️❤️
Oooo cookies... Love you Amy ❤❤
I use a Cpap machine and wear a head gear to keep me breathing at night. I wear a nasal mask. Anyway my husband says I’m his little Heffalump lol.
I always forget that Australia is opposite Canada for seasons I was so confused and was thinking winter is over it’s rain season (aka spring)
Where did u get your journal from as i would like to buy one.x
I love to your videos. They help to me pass the day away. Thank you forI'm making your videos fun and lighthearted and enjoyable. I greatly appreciate it.
As a chronically ill person I appreciate being able to see other people like myself. An know that we may not have the same problems, but we understand each other. An understand the situation and the up and down. So thank you for putting your self out there. I hope you have a a wonderful day!
I see everybody's like tubes and feeding tubes as in like g tubes and J tubes. An everybody's placement is so much lower than where I had mine.and I don't know if the reason mine was placed so high was, because I was just had a g-tube. I didn't have a Mickey button or a mini button or any of those. Unfortunately I had the stationary tube that's stuck out and look like I had an alien coming out from underneath my shirt which was really creepy at times. I have a lot of people ask me when I do wear bathing suit what's the scar underneath my boobs why do I have a big circular scar basically dead center underneath my boobs. I call mine a second belly button, because technically what does a feeding tube do? It's just like a belly button/umbilical cord. When you can't eat by mouth that how you get your food. An I have mainly little kids ask what it is I've had a couple people ask adults but mainly it's little kids that I asked. An I explained what it is, but I'm comfortable with mine. It took a long time to be comfortable with it. I happy I had that tool while I needed it. An that it help get me better and get me to a point where I no longer needed it. So I am thankful for it but glad to know longer have it. ( Please forgive any spelling or grammar mistakes. I have dyslexia. And I am not the greatest at spelling I'm not the greatest at grammar. ) Thank you so much for understanding and being polite and not correcting any grammar or spelling mistakes and understand it is what it is. An I do the best I can. Thanks again and I hope you have a wonderful day and a wonderful week.
Nice bujo, Do have any heath/ medical trackers?
There’s someone I follow on Instagram and she has a tellonym account. Someone actually posted on her tellonym account that they bought an NG online and wanted to know how to put it in! The girl on IG has an NJ and NG and answered this person saying “I hope this is a joke”. Whoever wants a tube as a fashion statement or attention seeker needs help. I can’t understand people who want tubes or central lines, they don’t understand the complication that can come with them. I’ve had my central line for almost 6 yrs. I got sepsis once early on, but not in the last 5 yrs. I’ve had a feeding tube for a little over 3yrs, first an NJ then 6 months later a GJ. I’d love to get rid of both! But I can’t. I’d like to try a weighted blanket but think it would be too hot in the summer (it’s spring now in Canada though still cold!).
16:41 gotta love Tom 😂
I have my mic-key Fran age 2-18. Going through puberty and the stage in your life when you find your style and what clothes makes you confident I really struggled. I would wear bikinis rarely but would hold my arm across my body to cover it. My stoma where it was is closed at my stomach but it still looks the same as it did when I first took the tube out for good. So still self conscious about it, bit there’s no bump if I wear tight clothes which I love!
If you don’t mind me asking, what do need a weighted blanket for?
I hope you get to feeling better and that you stay well. 🙂
Do you delete your vlogs off your camera once you’ve uploaded them on here? Sorry random question 😂 x
Do all weighted blankets have magnets in because I have a vagus nerve stimulator implant and magnets set it off.
I dont believe they all do, no
Love it. You are good
I just sat through a two minute advertisement about pregnancy - only I cannot ever get pregnant because it would put too much strain on my body and I wouldn’t be able to get far enough along for a baby to survive - even though I find it so triggering - I sat through it to help you!
Does Amy get paid more of we don't skip the vids? I've never understood how it works.
Those who mind don't matter and those who matter don't mind.
On the topic of weighted blankets, I asked my doctor about what weight to get.
On the topic of body image: girl, go watch Maggie at Let's Talk Ibd. She talks about rockin her bag, in a bikini, at the beach😉. Now, obviously you've had to overcome some issues in the beginning of your TPN journey, and I'm sure you may still struggle a bit here and there with those issues.. but, you look fantastic, and you know that. YOU know how far your body has come, and YOU know how much you went through to get to where you are. Don't ever be ashamed to show off the tools that helped you succeed. Are you ashamed to be seen in public in your wheelchair? It's just a tool to help you succeed in getting from one place to another, just as your tubes help you get from one place in life to another. 💜🥄🥄🦓💪
Good attitude Amy👍❤️
Neel 19:15 o clock ⏰ in shiver documentary 19:15
I totally get your point with the bikini and stuff. I try to think like it as just an extreme belly piercing. No big deal right? 😉
I really want a weighted blanket!
My best friend tori and I sleep spooning each other because it makes her feel safe and comfortable. And both of us always sleep better because it’s nice to hold her close, and for her to be spooned. But we look like lesbians when her parents walk in 😂. But spooning is fun 😂😂
Morgan Clarke haha love this! 🥰
Weighted blankets go by your size? I have hated them because I tried a couple of my friends, and I have asthma (usually upon exercise periodically) and been a heart patient my whole life as I have cardiac defects. Anyway I tried it 2 times and had to pack it up straight away as I kept gasping for air! But maybe it is just because I am 4' 10" and do not weigh much ... so I never thought it needed to be customized. I feel silly I did not know lol.
Katie Johnson yeah it’s based on how much you weigh! So maybe trying a blanket that’s more suited to your weight would work better? ❤️
Amy's Life Yes! Good point!! I like how you mentioned that you did not size it up by kilo. So I'd keep that in mind as well when I order. Thank you Amy! 🤗
was wondering what is the place called you got your ring splints i forgot
Last season winter arrived in Game of Thrones
I don’t think I could stand feeling hemmed in with the weight, I have 7 chronic illnesses, one being Crohn’s so I need to get out of bed quickly lol 😂 In the UK 🇬🇧 midodrine is called Bramox and I’m on it also, dose it make your head and neck tingle?? I love the way you mix your vlogs between medical and your real life unlike a certain other who sounds like she’s swallowed a medical dictionary! Who also becomes “too ill” when not doing the things she wants and wearing leg splints and constantly in a wheelchair but then sits crossed legged on the floor etc!!! I could go on but I think we all know who I’m talking about? You’re a beautiful and amazing woman and your strength is astounding, don’t care about what others think sweetie, you carry on living your life your own unique way xx
Lotti at Beanie Co Designs really where I lived in the UK (Manchester) I was on midodrine for years and it was always called midodrine atleast from the chemist/ brand I got it from! How weird 😅 and OMG that other person your talking about! I completely agree and I’m glad you think I have a good balance between Medical & otter stuff because I try really hard to mix both into my vlogs! Because although my health is a big part of my life and it sucks 99% of the time there’s also so much more to my life and so much non medical stuff I want to share with you guys! Sending all my love!❤️❤️❤️
Amy's Life thanks for the reply, I’m the same as you Amy I go through life laughing at the “whoopsies” I make with all my illnesses 😂. I do have bad days but I still have to get in with things as I have 2 children to look after. Love keeping up with your positive life style xx
Have asked before but you must have been busy. I’m from Stratford in Manchester and support Man U. What part of Manchester are you from.xx
what is that blanket?
I've got 2 custom made weighted blankets amy there amazing i love mine really helps with my Aspergers and fibromyalgia you will love yours also watch out for the laptop don't want your toe popping out again 😂😂😂
Tight Lines ahaha noted 😂😂😂
A little off topic, but your skin is looking so great!
Thank you! I’ve been really on top of my skin regime 😅🙏🏼
How long have you & Tom been together? He cracks me up!
Rebeccah Wark 5 and a half years 😅
Who cares about dervices u are beautiful in everywhere let me tell you this “ you are worth it” do what suits you who cares about what people think ur a chronic warrior 💪🏻 I hate showing others i have a pharmacy of medication (a lot) due to Lupus SLE and fibromyalgia it’s what makes my condition better and have too who cares about others I might be known as a druggie I don’t care 😇 😘😘 from Melbourne 🇦🇺
Great gym
Is the blanket help you to a better sleep?
Sorry for my english
I understand everything but uncertain if l have to type.
Kind reagards chantal
Yes. To help her stay asleep and to feel comforted and can help ease pain. :)
Hey Amy nice video content today and great news on the weighted blanket and keep up the great content on your channel 💙💜❤️💚🧡💛🍂👍👋👌😀🤩🤩🤩🤩...................................................
I think a lot of people feel that about needing tubes or devices to be recognised as sick because and I say this as a person with hidden disease that people don't treat them as unwell or believe how bad it is. I kno tubes must suck I have had my share short term tubes and they were enough for me having them always would be horrid but it comes with a understanding from people of oh right u are sick u have xyz and if u have a feeding tube ur less likely to get oh it's just a bit of anxiety snap out of it as an example
I love your videos. I was wondering why don't you have a service dog? You are amazing at how you handle all your health problems.
What heart issues do have???
Bought a weighted blanket at Xmas, on sale, it was only 11? Pounds supposedly a child size, well, it went back the next day. I could not EVEN lift it on me, it was crazy! I’m about 100 pounds, 5”6, prob the same as you, but I would only try it again if I found a 6? Pound one. This one was on sake for only $20 so the price was fine. But this zebra just couldn’t handle it 😂
Hi I love ur blogs . U r always happy . U have the best boyfriend ever