♡ Life with EDS Always Eventful! (6th-7th.04.19) | Amy's Life ♡

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  • เผยแพร่เมื่อ 20 ธ.ค. 2024

ความคิดเห็น • 139

  • @anonymousanonymous7208
    @anonymousanonymous7208 3 ปีที่แล้ว +5

    Miss you Amy. RIP

  • @kavitadeva
    @kavitadeva 5 ปีที่แล้ว +13

    Hi. I'm kind of a new subscriber and I really want you to know that your videos mean a lot to me. I have chronic illnesses and I'm disabled and I just have to say I don't know how you do it. You are an amazing human being. You've got so much going on with your health and yet your spirit stays strong and you still go about living your life in a way that I cannot imagine having the issues that you have. Thanks for being who you are and sharing your journey.

  • @pjgr1231
    @pjgr1231 5 ปีที่แล้ว +8

    oh my god I watch Violin MD too!!!! she's so awesome, I love seeing the "behind the scenes" of the hospital :)

  • @denbywilliams4348
    @denbywilliams4348 5 ปีที่แล้ว +30

    I’m so proud of what you’ve accomplished on your channel you are so inspirational and you show people that anything can happen ❣️

  • @Mrssarandy
    @Mrssarandy 3 ปีที่แล้ว +1

    Rewatching these videos is both lovely and sad. To think only 2 short years after this, Amy was gone. ❤️😭

  • @mekaarikufu2711
    @mekaarikufu2711 5 ปีที่แล้ว +7

    Violin MD is very educational and friendly. Love her. Love your videos to ❤️

  • @meganlouise1125
    @meganlouise1125 5 ปีที่แล้ว +15

    I absolutely love u and Tom so glad u r feeling better and posting again!!!

  • @itsanorristhing3825
    @itsanorristhing3825 4 ปีที่แล้ว +1

    I love that Tom is so involve and you guys are such a solid couple, I am fairly new to your channel but I watch you first thing in the morning all day long and before bed. Love you guys

  • @lorileewalters2018
    @lorileewalters2018 5 ปีที่แล้ว +4

    I love you both so much, you’re the sweetest couple and very blessed to have each other. And you are helping me get thru a hard time. Love and hugs to you both🥰♥️‼️

  • @lisawinters4681
    @lisawinters4681 5 ปีที่แล้ว

    So happy to see your feeling better!!! I can't believe it's been 2and half years since center you started your channel, I have been watching you for about 2 years now. It is amazing to see all the changes and ups and downs everyone has been through. Thank you for sharing yours and Tom's world with all of us. Sending you lots of hugs and love from Oregon!!!!

  • @maddiebaker6995
    @maddiebaker6995 5 ปีที่แล้ว +1

    This ending made me so happy !

  • @skyalliyah9127
    @skyalliyah9127 5 ปีที่แล้ว +2

    Omg you look so pretty Amy😩, it’s so good to see you like this I’m so happy tpn and everything is helping because you look great girl! Stay strong💕

  • @danielleperry1450
    @danielleperry1450 5 ปีที่แล้ว +10

    I love watching violin md. She’s cool.
    How’s the weighted blanket going?

    • @tiff2106
      @tiff2106 5 ปีที่แล้ว

      Violin MD is such a good watch!

    • @Georgielovesrats
      @Georgielovesrats 4 ปีที่แล้ว

      I watch her too

  • @rebeccaarneil4005
    @rebeccaarneil4005 5 ปีที่แล้ว +1

    The tablet crusher is called a silent night if you are interested to know. ❤️❤️

  • @jorgiagallagher6272
    @jorgiagallagher6272 5 ปีที่แล้ว +3

    OMG I love violinMD 🙌🏻🙌🏻

  • @mothermonsterlove
    @mothermonsterlove 5 ปีที่แล้ว +4

    I love watching violinMD!! Soibian is great, so cheerful 😊

  • @alysonjade2461
    @alysonjade2461 5 ปีที่แล้ว

    Omg the end was the best!!! You guys are an amazing duo and can’t wait to see what the future holds for you both!!!

  • @FrancesV
    @FrancesV 5 ปีที่แล้ว +7

    I just love your Videos and I'm glad you're better again❤. You and Tom are the cutest couple ever😊. Your Videos help me getting around with my chronic illnesses. They give me some hope and joy❤. Stay as you are, you're absolutely perfect😊

  • @daedae1123
    @daedae1123 5 ปีที่แล้ว

    Super dry is one of my favorite stores I just got a pink sweater dress from the outlet mall out here. I wish I could afford one of they're winter coats they are absolutely to die for

  • @angelaturk7409
    @angelaturk7409 5 ปีที่แล้ว

    Hi Amy! I have probably told you already that I have just started watching your videos and I love them! I live with severe chronic pain (osteoarthritis and fibromyalgia), which is nothing compared to what you deal with. But what I want to tell you is that you are I inspiring to me. I have been dealing with depression a lot of late due to the pain. I just want to say how proud I am of you for how hard you work to keep us all up to date on your life. I don't know that I would have the strength to do that every day. Any way! You're going to think I'm some kind of weirdo, I swear I am not! Sorry, middle of the night here. Can't sleep due to pain. So, I want to say...I love your videos. You and Tom are awesome! Keep fighting the good fight girl! You Rock! 😎🤪😳😁😀

  • @janicebentonmaze5906
    @janicebentonmaze5906 4 ปีที่แล้ว

    Great choice on that jacket and the Guess bag!! ❤️

  • @jessthemess0790
    @jessthemess0790 5 ปีที่แล้ว +1

    Hi amy, i have been watching your main channel for over a year now and its amazing to see your life :)
    I don't know if you watch Rupauls Drag Race but there is a queen on their this season with EDS, and because of your channel as soon as the queen said it I knew exactly what it was!! You are an inspiration in my life!! I hope your having a fabulous day and I just thought it would be cool to share that with you!!

  • @lisaioannou6758
    @lisaioannou6758 5 ปีที่แล้ว +2

    You go through so much but are always so happy and smiling.
    You always make my day. ❤️

  • @AlintaMcMurdo
    @AlintaMcMurdo 5 ปีที่แล้ว +1

    How do you have such a small bag? Lol. I have a bag twice the size and it’s too small to fit all the medications I have to take with me everywhere.

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Alinta McMurdo I take my zebra bag with all my meds and syringes ect and I usually leave it in the car so I don’t have to carry it around everywhere 😅

  • @Lyn4817
    @Lyn4817 5 ปีที่แล้ว

    I do miss DFO shopping. Now I do the majority of my shopping online.

  • @bintss.b850
    @bintss.b850 5 ปีที่แล้ว +22

    Could you do a video about why you moved to Australia?

    • @cupcakeandlatte7256
      @cupcakeandlatte7256 5 ปีที่แล้ว +2

      Bintss .B Yes!!

    • @Aw_tig
      @Aw_tig 5 ปีที่แล้ว

      There is a couple of old videos somewhere where she talks about it you will have to look back, tho they might actually be on her other channel

  • @DavidDesrosiersgurl1
    @DavidDesrosiersgurl1 5 ปีที่แล้ว

    I've been watching off and on after stumbling across your channel(s) I've finally subscribed and followed you on Instagram *embarrassed*

  • @amandab1978
    @amandab1978 5 ปีที่แล้ว +2

    My brother had his wedding reception where you went to the markets :) can't believe it was only 4 years ago and now he is no longer with us :(

  • @tiff2106
    @tiff2106 5 ปีที่แล้ว

    That dark lipstick looks amazing on you!

  • @Katie_Jo_21
    @Katie_Jo_21 5 ปีที่แล้ว

    I am prone to infection. Hla b 27 genetic factor. I used to get reactions from any face wash, get infections, then scar badly :(. I wish I had found simple sooner. It is magic for over sensitive skin. My face has been calm and happy for years now. Simple is a life saver for me.

  • @lottiatbeaniecodesigns4681
    @lottiatbeaniecodesigns4681 5 ปีที่แล้ว

    It’s so lovely seeing you looking so healthy Amy 🥰. Love the bag, Tom you’re a sweetie x

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Lotti at Beanie Co Designs thank you ❤️

  • @moniquehardbottle3010
    @moniquehardbottle3010 4 ปีที่แล้ว +1

    why cant you take your meds through your central line? it doesnt make sense if your intestine doesnt work? do they get absorbed?

  • @marydeforge1942
    @marydeforge1942 5 ปีที่แล้ว

    Hey Amy I'm so Happy to see you looking so healthy and beautiful!!! I can't thank you enough for sharing your journey with us all.I'm struggling with so many medical issues and severe depression we actually share many similarities like drawing you are very talented. I havnt drawn in so long but I will give it a try.Sending much love all the way from the U.S.A.your #1can MB

  • @hannahlouise5302
    @hannahlouise5302 5 ปีที่แล้ว

    Talking about meeting people with feeding tubes, eds etc I just remembered about something. A pop - punk band in Sydney called Yours Truly recently just released a song about the lead singers experience with eds! It’s called ‘I Can’t Feel’ and it’s really good!! I connected to it a lot as i have hyper mobility (not eds i know but i found a connection to it) so i thought i would share it with you!

  • @oceanvink
    @oceanvink 5 ปีที่แล้ว

    Do you know if they sell the orange bottle of anti frizz hair stuff in Canada? Would love to test it out!!

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Ocean Vink no idea, maybe you could google it and possibly buy it online ☺️

  • @tiff2106
    @tiff2106 5 ปีที่แล้ว

    How low do the temperatures get in Australia in the winter?

    • @eafj90
      @eafj90 5 ปีที่แล้ว +1

      tiff2106 it varies a lot depending where in Australia you are. In the tropics it obviously doesn’t get so cold, but we get snow in some parts, and Tasmania can get pretty cold in winter. Where I am it usually won’t drop below 5 degrees but is usually in the teens/low 20s.

    • @tiff2106
      @tiff2106 5 ปีที่แล้ว

      Emily Jones I always underestimate the size of this country continent. Thank you for the info, was just wondering about the jackets. 😊

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Where I live it gets just below 0 degrees in winter but only on some days other wise it sits in the low 5-10’s ect

  • @kaylinmarie5571
    @kaylinmarie5571 5 ปีที่แล้ว

    You are such an inspiration to so many people! Lots of love to you guys and keep doing what your doing! ❤️🥰

  • @chloenorth5549
    @chloenorth5549 5 ปีที่แล้ว +1

    I use simple it's so good for sensitive skin!!

  • @maddiefern1267
    @maddiefern1267 5 ปีที่แล้ว +1

    I feel you on the reactions! Did a face mask that has always been fine for me the other day and suddenly I'm a tomato face haha

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว +1

      Maddie O'Dwyer oh no! Haha can relate tho 😂😂😂

  • @MrsSweety0506
    @MrsSweety0506 5 ปีที่แล้ว +1

    Where did u bought your orange hair treatment? I need it and I live in qld

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      MrsSweety0506 I got mine from my local hair salon but I’m sure if you google it you’ll be able to get it online ☺️

  • @angelgirl6966
    @angelgirl6966 5 ปีที่แล้ว

    Love the things that make you go hum specially with Mr. broccoli

  • @eduardopadilla5505
    @eduardopadilla5505 5 ปีที่แล้ว

    Your face right before you say good bye hahaha i love it! :D

  • @XSemperIdem5
    @XSemperIdem5 5 ปีที่แล้ว +1

    So you're the reason her channel came up in my suggestions, haha. I ended up subscribing and watched that video you showed recently.

  • @roblisa100
    @roblisa100 5 ปีที่แล้ว

    Love you guys, you are so real, and I never miss your videos! Loving you from Canada xo

  • @katievanessa3991
    @katievanessa3991 5 ปีที่แล้ว

    I'm also watching Siobhan’s channel since a few weeks 😍

  • @natalietucci2216
    @natalietucci2216 5 ปีที่แล้ว +1

    I watch violin md too!!

  • @mymultiplelife
    @mymultiplelife 5 ปีที่แล้ว

    How do you keep your shoulder joints from popping in and out while doing your hair or showering?

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      my multiple life it’s hard tbh, somtimes it’s fine other times I can’t brush my hair at all and Tom has to do it for me😅 but using shoulder braces can help too x

  • @devonlacava4346
    @devonlacava4346 5 ปีที่แล้ว

    Wow! You guys are wicked awesome!! It's fantastic that your channel is doing so well. Keep up the great work. You're such an inspiration to me. 💖💖

  • @haileyhofbauer9208
    @haileyhofbauer9208 5 ปีที่แล้ว

    I love you two! What a beautiful couple! ❤️

  • @kaarinapsaltis8000
    @kaarinapsaltis8000 5 ปีที่แล้ว

    Loving the Dark Lippy!!!!!! looks so good on you 💕💕💕💕💕💕💕💕💕💕

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Kaarina Psaltis Thank youuu😊😊

  • @sarahnelson4740
    @sarahnelson4740 5 ปีที่แล้ว

    I love this one. You and Tom are lovely together. 💕

  • @janadams2978
    @janadams2978 5 ปีที่แล้ว

    That was a lovely vlog, I smiled nearly all the way through, til the knuckle part!! Love the Superdry jackets. Hope it’s feeling better today 👍😀

  • @smiley78410
    @smiley78410 5 ปีที่แล้ว

    Where do you buy them? In Australia

  • @aristahenriot7450
    @aristahenriot7450 5 ปีที่แล้ว

    Good to see you are looking better xx

  • @FluffyMumm
    @FluffyMumm 5 ปีที่แล้ว

    I’ve been watching you since Manchester 💖💖. You are such a strong woman! Love your videos!!!!

  • @emmabaines5582
    @emmabaines5582 5 ปีที่แล้ว

    There is a tea called bye bye bloat that ashy bines came out with and I think it’s about $15 and it helps with bloating and it’s on the morlife website

  • @nikkirenee5696
    @nikkirenee5696 5 ปีที่แล้ว +1

    I L O V E Violin MD she’s great

  • @gothfaeries
    @gothfaeries 5 ปีที่แล้ว

    Love that the pint made him tipsy 😂😂

  • @travellingatthespeedoflife
    @travellingatthespeedoflife 5 ปีที่แล้ว

    What does Tom do for work?

  • @norajung4513
    @norajung4513 5 ปีที่แล้ว

    You two are so funny. Love the view from the market. My husband had a crazy question that could be a things that make you go humm. Do vampires go to the bathroom? It caught me off guard and I started laughing. Take care.

  • @laureno3994
    @laureno3994 5 ปีที่แล้ว

    I’ve been watching since Manchester.. I remember when I found your channel and it had hardly any subscribers compared to now, I can’t believe it was that long ago..😂 I also LOVE violin MD, one of my favourite channels. 💜💜

  • @Stitchmad1243
    @Stitchmad1243 5 ปีที่แล้ว

    Where did you get your hip brace from

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Kirsty Calder Amazon I think 😅

  • @skyalliyah9127
    @skyalliyah9127 5 ปีที่แล้ว

    One more thing I love your hair like this😍

  • @canderson2627
    @canderson2627 5 ปีที่แล้ว +1

    That is crazy! Two years I have been watching you. I remember when you moved from England 🤭

  • @livvygreg4181
    @livvygreg4181 5 ปีที่แล้ว +7

    Great vlog Amy! I wouldn't use the st Ives scrub, I used to love it but then I found out about how damaging it is for your skin x

    • @gwendixon74
      @gwendixon74 5 ปีที่แล้ว +2

      also the beads don't break down and damaging to environment a lot of country's are banning products with them in

    • @maijacriner-harrison5161
      @maijacriner-harrison5161 5 ปีที่แล้ว +2

      I was going to comment on this too.. How bad St. Ives is for the face. I just seen and read about it on one of my beauty pages I follow. Not, that I've use it before.. Just was interested about

    • @TrulyMiaa
      @TrulyMiaa 5 ปีที่แล้ว

      Gwen Dixon st ives doesn’t use microplastic

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว +2

      Whatttt I had no idea! Thank you for letting me know ❤️

    • @Aw_tig
      @Aw_tig 5 ปีที่แล้ว

      I started using Green People face products over a year ago when my face reactions got worse and they are great I love them 💚 I am in UK, not sure if you would be able to get them in Australia, but they do small sample packets of some products which is what I tried first

  • @lesleywatson7807
    @lesleywatson7807 5 ปีที่แล้ว

    Love your bag amy! X

  • @shoshanajacobs6727
    @shoshanajacobs6727 5 ปีที่แล้ว

    “I was gonna say, before I got super oily on you guys....” lmao

  • @jadekimmm2767
    @jadekimmm2767 5 ปีที่แล้ว +1

    Bless you your hobbling in the shopping centre ❤️❤️ I am a day oner ☝🏻Xxx

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Jadekimmm i know my hips are so painful to walk on 😂😂

  • @inesmsarmento
    @inesmsarmento 5 ปีที่แล้ว +1

    Lots of love to both of you :)

  • @Chelle8847
    @Chelle8847 5 ปีที่แล้ว

    You guys are just the best I love watching your vlogs so much. You're so pretty Amy. We need more Tom in the vids! Hehe

  • @teresa2334
    @teresa2334 5 ปีที่แล้ว +1

    I love your channel. I hope you are not offended by this. Have you listened to the the song Broken and Beautiful, Kelly Clarkston. The lyrics remind me of you. "I don't need you to lower the bar for me , I know I'm Superwoman, I know I'm strong, I know I've got this cause I've had this all along. Thank you for sharing your life with all of us.

  • @silc.1002
    @silc.1002 5 ปีที่แล้ว

    Amy and Tom love ❤️ you from infinity and back. Anyone if you skip the commercials does Amy get paid???

  • @KaylaMaryy
    @KaylaMaryy 5 ปีที่แล้ว

    Tom quoting brainiac 😂

  • @Darkangel9897
    @Darkangel9897 5 ปีที่แล้ว

    I'm jealous you have a volcolm store:(

  • @bintss.b850
    @bintss.b850 5 ปีที่แล้ว

    Btw love your channel ❤️

  • @Brandi.65
    @Brandi.65 5 ปีที่แล้ว

    Jojoba hot oil hair treatment is good too.

  • @priscillaparkman8331
    @priscillaparkman8331 5 ปีที่แล้ว

    Well you guys could always wear each others coats so it will all work out in the end. LOL love you guys

  • @heidicatherine2668
    @heidicatherine2668 5 ปีที่แล้ว

    ahhhh you watch violin md too!

  • @anikabaddeleyrollingbackwa7341
    @anikabaddeleyrollingbackwa7341 5 ปีที่แล้ว

    You are one of my favourite channels.

  • @SuperCreeperHater
    @SuperCreeperHater 5 ปีที่แล้ว

    Aw Tom I'm a light weight too 😂 think of it this way! You don't have to spend a lot of money on alcohol to have a good time!!

  • @meganlouise1125
    @meganlouise1125 5 ปีที่แล้ว

    I also love violin md

  • @maijacriner-harrison5161
    @maijacriner-harrison5161 5 ปีที่แล้ว

    I had asked about this on a previous video of yours.. It wasn't answered. But, you were talking about a question asked from someone about your alcohol. Anyway, with gastroparesis and digestion problems... Do you get a buzz when drinking alcohol? Are you able to absorb it.. I guess that's the question?

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว +1

      Maija Criner-Harrison no I don’t feel anything from drinking alcohol, I usually just drink it for the taste xx

  • @lee207ful
    @lee207ful 5 ปีที่แล้ว

    I felt Tom's breath on my face, it was pervading.

  • @melanie_kay_6014
    @melanie_kay_6014 5 ปีที่แล้ว +1

    First we're getting TTMYGH in bed and now it's also getting steamy, what!

  • @aricakathryn1519
    @aricakathryn1519 5 ปีที่แล้ว

    I like your videos I'm glad your doing better I liked the stuff u bought nice jacket were going in spring season here now I'm from USA I would love go to Australia beautiful country

  • @施鹏-r6c
    @施鹏-r6c 2 ปีที่แล้ว +1

    I LOVE YOU

  • @Madijo70
    @Madijo70 5 ปีที่แล้ว +1

    💜

  • @mollypayton4923
    @mollypayton4923 5 ปีที่แล้ว

    The knuckles are so painful to pop out and I can never pop them back in. You can get therapy putty online with different strengths to help strengthen them gradually 😁

  • @yogibbear
    @yogibbear 5 ปีที่แล้ว +1

    Tom I need my jaw popped back in. Any tips? Sledge hammer? Seeing oral surgeon next week if you've got nothing XD

    • @tiff2106
      @tiff2106 5 ปีที่แล้ว

      yogibbear that sounds painful! Get well soon!

  • @aprillunga1635
    @aprillunga1635 5 ปีที่แล้ว

    Lol feet monsters 😂💅
    I have a question do u ever think of trying to do ur meds in ur port?

    • @eafj90
      @eafj90 5 ปีที่แล้ว

      April Lunga I’m not sure if this is what you meant, but you can’t just put oral/enteral medications into a central line because you need special formulations for IV access. Same way you wouldn’t just inject food or drink into your veins.

    • @aprillunga1635
      @aprillunga1635 5 ปีที่แล้ว

      @@eafj90 yea I know my best friend also has a port and her Dr helped her get alot of her meds in iv like you would get in the hospital they taught her how to do everything bc she can't digest anything either

    • @eafj90
      @eafj90 5 ปีที่แล้ว

      April Lunga oh ok, just the way you worded it made it sound like you were asking whether she could just administer her meds into her Hickman instead of via her tube!

  • @imogenoliver
    @imogenoliver 5 ปีที่แล้ว

    What ever happened to that massive bear that you had?

    • @amyslife4457
      @amyslife4457  5 ปีที่แล้ว

      Imogen Oliver it’s next to my bed I still use it at night time 😅😅

  • @debbieandrews5500
    @debbieandrews5500 4 ปีที่แล้ว

    Good geek challenge on the bunnies

  • @beckymerylheap3795
    @beckymerylheap3795 5 ปีที่แล้ว

    Thanks you welcome lots of love you Tube all time

  • @130crowd
    @130crowd 4 ปีที่แล้ว +1

    Very sweet and useful catalog of living a complicated life while trying to be socially active young adult. But please! Less content of Tom ... asleep, in bed, in his underwear, etc

  • @mariereneagonzalez
    @mariereneagonzalez 5 ปีที่แล้ว

    I’m subscribed to shevon from Canada

  • @Alyshanen
    @Alyshanen ปีที่แล้ว

  • @rosemarrypolack5708
    @rosemarrypolack5708 5 ปีที่แล้ว

    Jumper sounds much better than sweatshirt.🙄

  • @emilycool9935
    @emilycool9935 5 ปีที่แล้ว

    U r the coolest person in the world ❤️💗💓💚

  • @heatherray2425
    @heatherray2425 4 ปีที่แล้ว

    Hi Tom.😎☺️✋

  • @alyssawssinging4039
    @alyssawssinging4039 5 ปีที่แล้ว

    Hey Amy