I have both the MSH2 and MSH6 mutations resulting in Lynch and was diagnosed with Stage 3C Ovarian Cancer at 30 in 2019. I am thankfully NED (without evidence of disease) since Dec 2019, but videos like this NEED more exposure! I cannot tell you how many times I've had to educate my own healthcare team about what Lynch is and why it's important. Genetic testing is so important, thank you for shining a light on this very common issue!
I’m an RN and had never heard of Lynch Syndrome until now. I was aware of the BRCA genes. I have a friend with breast cancer and have had several patients diagnosed with breast cancer. I learn something new every day.
I have Lynch Syndrom. I got a Lynch tumor in my bile ducts. The surgeon tried to take the tumor out but unfortunately the cancer grew back. I then got immunotherapy, Nivolumab and within three months the cancer was gone. Immunotherapy, check point inhibitors often work exceptionally well on Lynch tumor if given before the patient had radiotherapy or chemotherapy. It is important to give immunotherapy to Lynch patients as a first line treatment. It then can be curative and not just palliative.
Really informative video. If anyone can direct me to a reputable online company that I can access from Australia I would be extremely grateful. I have been told my maternal family have a genetic predisposition for bowel cancer but I cannot get testing without knowing which gene is involved. I don’t have access to those details and so my hands are tied. Medical care is shot here in Australia.
I have both the MSH2 and MSH6 mutations resulting in Lynch and was diagnosed with Stage 3C Ovarian Cancer at 30 in 2019. I am thankfully NED (without evidence of disease) since Dec 2019, but videos like this NEED more exposure! I cannot tell you how many times I've had to educate my own healthcare team about what Lynch is and why it's important. Genetic testing is so important, thank you for shining a light on this very common issue!
So many providers are unaware of Lynch Syndrome. It is scary as a person who is positive for Lynch Syndrome.
I’m an RN and had never heard of Lynch Syndrome until now. I was aware of the BRCA genes. I have a friend with breast cancer and have had several patients diagnosed with breast cancer. I learn something new every day.
I have Lynch Syndrom. I got a Lynch tumor in my bile ducts. The surgeon tried to take the tumor out but unfortunately the cancer grew back. I then got immunotherapy, Nivolumab and within three months the cancer was gone. Immunotherapy, check point inhibitors often work exceptionally well on Lynch tumor if given before the patient had radiotherapy or chemotherapy. It is important to give immunotherapy to Lynch patients as a first line treatment. It then can be curative and not just palliative.
Thank you. A good, balanced & informative description of Lynch Syndrome.
Never heard of Lynch Syndrome and the only cancer with Syndrome in it I've heard of is Sezary Syndrome a rather formidable T Cell Lymphoma.
Really informative video.
If anyone can direct me to a reputable online company that I can access from Australia I would be extremely grateful. I have been told my maternal family have a genetic predisposition for bowel cancer but I cannot get testing without knowing which gene is involved. I don’t have access to those details and so my hands are tied. Medical care is shot here in Australia.
Never heard of this why is it not more widly known
I have homozygous mutations on all 4 of these possible locations, how risky is it? Should I bother telling my doctor?
What makes you suspect you have Lynch Syndrome --a bowel cancer or family history?
Fantastic explanation. I have Lynch. MSH2