Sjogren's Syndrome: Top 5 Vitamins to Help Your Symptoms
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- เผยแพร่เมื่อ 26 มิ.ย. 2024
- If you're looking for natural ways to manage Sjogren's Syndrome symptoms, then check out this video! I will reveal the top 5 vitamins that can help improve your quality of life. From Vitamin D, C, E, B complex to Omega-3, I've got you covered.
#Sjogren'sSyndrome #Vitamins #VitaminD #omega3 #fishoilbenefits #NaturalRemedies #autoimmunedisease #Health#expertoption
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👩🏻⚕️ About me:
Dr. Diana Girnita is a double board-certified physician in rheumatology and internal medicine. With a Ph.D. in immunology and training at Harvard and top universities, she founded Rheumatologist OnCall, offering integrative medicine to broaden rheumatology access. With a focus on personalized treatment, Dr. Girnita incorporates proper nutrition, exercise, and stress management. Experience her passion for helping patients with autoimmune disease and arthritis. This video provides general information and is not a substitute for medical advice. Views expressed in comments do not reflect the opinion of Rheumatologist OnCall.
Important Notice: Medical advice, opinions, or diagnosis cannot be provided through email, phone, or social media. Our clinic serves patients in various US states. Check our website to confirm if we are accepting patients in your state."
* The information in this video is not intended nor implied to be a substitute for professional medical advice, diagnosis, or treatment. All content, including text, graphics, images, and information, contained in this video, is for general information purposes only and does not replace a medical consultation. Any comments and/or recommendations made in the comment section by anyone other than Rheumatologist OnCall do not reflect our opinion or recommendation.*
What a wonderfully aware intelligent ,(PROPER) doctor , if only the world had more of you 😊
Thank you so much for the kind words!!!
I agree! Doctor what can I take for indigestion I have this feeling of like I am choking and burping constantly and trying to get the air out. It's a weird uncomfortable feeling and it makes my BP read so high. I was reading that it can be my Thyroids. I have no gallbladder and had a hysterectomy with no advise on after care for both surgeries. I take a digestive enzyme but it does not help much. Any advise on this is much appreciated. Thankyou in advance!
@@NansGlobalKitchen. I have the same symptoms, can’t burp and wake up choking. Look up Retrograde Cricopharyngeus Dysfunction. I think that’s what we have.
It’s refreshing to see a doctor - a specialist too - talk about vitamins. It’s been a long time coming. My dad was teaching me vitamin, minerals, and supplements 30+ years ago but it’s just recently seemingly becoming more relevant outside of the health food store enthusiasts. Thank you.
I can not praise cod liver oil enough. My hands were unable to open completely for 2 years until I added this to my diet. I only take a teaspoon daily. Cod liver oil has vitamins A& D in a natural form. I always drink orange juice or some acidic drink to rid it from my mouth after taking it.
I also take a raspberry ketone capsule to help with the fishy burps
@user-gi5xo8rp4nWhere do you buy this flavor vitamin from? I don't like the fish taste. Thankyou in advance!
What if your allergic to fish
I also began to take cod liver oil liquid which comes from the fish from the arctic sea and is processed in Norway. It’s made a huge difference.
Thank you for your support
Thank you for your advice
Thank you so much Doctor for details information 🙏 God bless you 🙏
Thanks Dr.
Thank you I found this video surprising to say the least 🙏
Thankyou Doctor for great information 😊
Thankyou for these videos on Sjogrens. 🤗 xxx
Share with others the video to spread the knowledge!Thank you for watching my videos!
Thank you! Would love to see more of your videos!!
More to come!Thank you so much for watching my channel!
❤️🙏❤️THANK YOU DR.FOR THE INFO ON SJOGRENS .
My pleasure,Thank you for watching my videos!share it with others to help them!
Thank u so much for sharing such good and informative videos on this sjogren syndrome.
Thank you for taking the time to watch my TH-cam channel! I appreciate your support and interest in my content. It is always motivating to know that my videos are reaching and resonating with people like you.
Thanks again for being a part of my community and supporting my work.
Thanks Doc....helped me a lot.
Glad it helped!
Thank you, I need it this video because I just started to take vit E , thank you ❤🙏
Great! Thank you 🙏🏻 share it with others!
Thank you so much Dr. Im really so Happy that i found you this in your vlogg . It helps a lot cause i newly diagnose wt this Sjogrens syndrom . Very interesting to those who have this kind of desease . ♥️🥰🤗🇳🇴🌹🌺🌷
Glad it was helpful!
Thank you Dr.😊
Always welcome
WONDERFUL INFORMATION DOCTOR THmk you
Thank you for your kind words!
Great video!😊
thank you!!! i appreciate your kind words
Just found your page. I live in a small town in Az with only on rheumatologist that will pick and choose who he will see. My PCP send my blood work to this office and the Dr said my numbers for autoimmune disease are PROBABLY false positive even though I have been on thyroid meds for close to 60 years. I have many symptoms of sjogrens so I will continue to follow you for information and help
WE do see patients in AZ! check my website Rheumatologistoncall.com
Thank you!
You're welcome!
❤ thanks 🙏🏽 for sharing this information ❤❤❤
rheumatologistoncall.com/free-resources/
Thank u so much dr.
Most welcome 😊
I already take most of these vitamins and fish oil. I had not thought of vitamin e but will add it. My husband has diabetes and I am getting him on a similar plan that I am on.
Thank you for watching my videos!
Hello, can you make a video about the causes of essential tremor and gain treatment
Thank You.😍
You're welcome 😊
Thank you so much. I currently taking vitamin C,D, B12.
Wonderful!
Thank you very much, Doctor. It is a great pity that there is such an overwhelming shortage of doctors with your expertise, globally. Not alone are patients often undiagnosed or misdiagnosed, but they're also frequently beaten down and undermined by incompetent doctors. It leads to tremendous, and unnecessary suffering. Your channel is invaluable.
Your kind words mean a lot to me. I appreciate your support and am glad to know my content is valuable to you.
Thank you
rheumatologistoncall.com/free-resources/
TQ so much Dr
I missed the dosage of Vitamin E per day. I enjoyed the informational video. Thanks,
Glad it was helpful!
I also have scleroderma, fibromyalgia, arthritis I have been taking, D 1000, C 1000, B12 1000 and Selenium 200mcg. I also take Citrical and a baby aspirin.
Share with others the video to spread the knowledge!Thank you for watching my videos!
Deci dupa ce am urmărit clipul , înțeleg ca am un doctor specialist ,minunat ❤, mi a prescris toate vitaminele pe care le enumerați dumneavoastră, pe lângă ele mi a dat si Magneziu Citrate, si Magneziu threonate ❤. Va mulțumesc pt informatia atat de completa pe care o difuzați.
Explicați atât de bine, face să pară totul mult mai simplu pt pacienți.
Va multumesc mult, da ti un SHARE la altii!
Vederi si traducerea in Lb romana?
I really wish you were my doctor. Everyday is like pushing a boulder uphill
Thank you so much for sharing your knowledge in a way we can understand. Thank you also for caring enough to do so!
I wish you were local to the East Bay of N. CA ~ I have long needed a Dr. like you! What a difference a really good doctor can make in someone's life! Unfortunately, I had Kaiser Permanente for 13yrs & when I had a good doctor, Kaiser HMO would not let them do what they felt was needed. It has cost me dearly ~ Ins. Co. should not decide medical care -- That's what doctors are for!
Thank you for watching my videos!
When I was an RN in labor and delivery I remember one obstetrician complained an insurance representative called to ask him about preauthorizion for a planned cesarean delivery. The rep wanted to know how the doctor knew he would have to deliver vía cesarían. The patient had a placenta previa! He asked her if she knew what it was! Obviously she did not and he immediately enlightened her. Insurance companies did not go to medical school and have no right to dictate provision of patient care to doctors!
I take most of the vitamins mentioned. I also take Coenzyme Q-10 and Turmeric. I don’t take vitamin E. But I will. I also take vitamin A, elderberry, and bilberry.
great!
What is the daily dose taken?
I started taking dental probiotics which helped tremendously with dry mouth…thanks for all the information…appreciate it!!
which one probiotics
I’ve never heard of “dental probiotics.” May I ask what product this is?
Wonderful!
Thank you for the advice and information you give in this video
I take every day all those vitamins ( only one a day omega 3) , vit C 1500 slow release, vit D3( European graduation) is 75ug,
B I take complex B forte. Additionally I take curcuma capsules (2 capsules) ( should be spread 1 three times a day… but I will forget so I take 2 in one go together with the other vit’s
I have been able to reduce the pain and symptoms of sjogren
I couldn’t use my hands properly due to pain and stiffness and now they are normal ( after a year of vitamins and no medicine)
I am truthful user of vitamins . Not 6 months… undetermined.
Is an expensive option but it works for me.
Hope it helps someone
That's incredible to hear! It's amazing how the right combination of vitamins can make such a difference in managing symptoms. Keep up the great work!
👍 thanks
Welcome 👍
Omega 3’s have changed my dry eye symptoms from severe to mild. I am using Rx Lovaza (sp) huge benefit
That's amazing to hear! It's great that Omega 3's have made such a positive impact on your dry eye symptoms. Keep up the good work!
Loved all the information. Just one question. What's the recommended dosage for vitamin E? I didn't see a recommendation. Thanks.
The recommended daily amount of vitamin E for adults is 15 milligrams a day.
Vitamin C has been extremely helpful to me in healing and preventing bruising. Since I use the chewable 500 mg it can burn my mouth sometimes but it’s worth it.
Thank you for watching my videos!
do you find food makes fatigue or joint pain other symptoms worse? vitamin c is one that does it for me ascorbic acid
I have DM (Dermatomyositis ) but I have dry eyes also . Have you tried along with vitamin C , citrus Bioflavonoids ? they have helped tremendously with my bruising and vasculitis .
asorbic acid vitamin c and citrus makes me worse makes my ear ringing louder too so does sugar and salt and other things vitamin d in high doses is a life saver @@lilaccilla
In addition to the vitamins I take turmeric supplements, and Mega 3 flaxseed eye drops help as much or more than expensive PRP eye drops.
Thank you for watching my channel! Share the information with others in need!
Can you put the comments in french ? Thanks for your videos ! 👍
Yes I can
Blessings to you Doctor for your passion and sharing this knowledge with us. This has been long battle, but with God and information like this, I will continue my fight! #autoimmunediseasewarrior
Wow, thank you
www.thorne.com/u/RheumatologistOnCall
Anything that will help with difficulty swallowing?
I take all the supplements you recommend plus vitamin K2 with Vitamin d plus evening primrose oil and blackcurrant seed oil. I have suffered from sjogrens syndrome for over 20 years before I was diagnosed and longer before that. I also manage it with diet and relaxation techniques such as meditation and qi gong
It's amazing to hear how you're managing your health so effectively with supplements, diet, and relaxation techniques!
How do you use the black seed oil?
HI Doctor. a dietician said consuming oranges, tomatoes are bad for us? Is that true? I have been putting an orange in my salad and a tomato. I do take Vit C but I can change diet more if it will make a positive difference. Only Vit D has been an issue lately but I had not being taking as much as usual. I just got out of the habit of taking it daily.
Along with the supplements mentioned, I have found that taking CoQ10 and PQQ increases my energy level.
Thank you so much for watching my channel! Great advice
I grew up learning that if you eat well - everything we know that’s healthy - taking vitamins is not necessary and we’re just keeping vitamin companies in business. Too much of a GOOD thing can be BAD and unhealthy…… so…… I will continue to eat healthily and get my vitamins this natural of ways…. I’m from Europe and over there they don’t take vitamins like they do over here. They are also healthier….
For many reasons, including autoimmune diseases. Our bodies don’t always absorb good nutrients from a healthy diet , that’s why it’s good to have a blood test now and again and have a look at what’s really going on. I rely on vitamins and a healthy diet to keep me going. P.s I’m not American but from the UK.
Europe has far stricter food ingredient and safety regulations, so their processed foods aren’t lethal as they are in USA.
I was diagnosed with Sjogren’s and it’s been so difficult to deal with. I been diagnosed with migraines since I was a child and that’s a lot. I also was diagnosed with rheumatoid arthritis, fibromyalgia and I’m in pain every day. Sometimes I have to get up out my sleep to treat my eyes and mouth. I use Restasis, eye drops & night cream and I started buying Biotene products from toothpaste, mouthwash and mouth spray and it gives freshness & moisture to the mouth.
This video was extremely helpful because I need to know what vitamins I need to take. I am wondering about B-complex because they say it triggers migraines. I made sure to subscribe 😊
I'm sorry to hear about all the health challenges you're facing. I'm glad the video was helpful for you.
check this for best vitamins www.thorne.com/u/RheumatologistOnCall
What are your feeling of Tumeric?
I’m taking all of these except vitamin E, which I may add to my regiment now. I also take turmeric & magnesium glycinate at my rheumatologist’s direction. (I have not noticed any effect from the magnesium glycinate since starting it 3 months ago, so I will discontinue it when Ive finished the bottle.) I started taking collagen peptides last year, & found it VERY helpful at reducing cramps & muscle/joint pain. Plus my skin is improved (no rash!) Lastly, I take cranberry to help with UTIs, which I seem to get a lot of since my Sjögren’s diagnosis. I’ve never gotten a UTI when taking cranberry. One more thing-I also have osteoarthritis. When I’m having a flare up & stiffness/soreness becomes a bigger problem, I have used CBD/THC 1:30 with great results. Because my kidneys are at risk, I have to avoid NSAIDs, so this has been a very good replacement for meloxicam!
It's great to hear that you've found a combination that works for you!
The magnesium glycinate is so important for your heart and bones, it would be a good idea to listen to a couple videos here on YT about their health benefits before abandoning it. Two channels that I know have informative shirt videos on magnesium glycinate are Motivational Doc and Dr. Berg - lots of others too.
Bonjour, pas de L-glutamine ???
There was no dosage amount of Vitamin E, though I may have missed it. Thank you for your efforts to help.
She said 1000 to 2000 IU daily
@@kimberlyrineer6822 Thank you for responding Kimberly! I wrote down 1,000 to 2,000 IU daily for Vitamin D, not Vitamin E. Mayo Clinic, along with others, recommends 15 mg as safe for Vitamin E. I reckon I will follow those guidelines, I just wish she would have been specific on the level for Vitamin E, in case there is a different dosage.
Maybe the doctor will see this discussion, and specify the correct amount for Vitamin E.
15 mg for Vitamin E
Kimberly, that's way too much vitamin E. That could cause heart problems taking 1,000 to 2000 units a day. I've been taking 400 units a day, a safe dose, for about 40 years now because it prevents muscle spasms in my lower legs. I started doing this after being in the hospital and not being able to walk. A nurse and another person told me to take vitamin E 400 units and it has worked all these years to prevent muscle spasms. Just wanted to share this info with you.
My rheumatologist has me take 5000 units of D3 and 800 units of vitamin E. Maybe being 74 makes a difference
Would it be a good idea for a Sjogrens patient to have a vitamin profile test done? Thinking about asking my doctor to run this. I hate taking pills so would prefer to take only those I need
Yes! Thank you for watching my videos!
I had a vit B12 test done due to the fatigue of Sjogrens. It was low The supplement helps somewhat.
@@vivavita3769 m ml o lo
With regards to the sugar free items, I totally can not have many types of “no sugar added” beverages or foods that contain sucralose aka Splenda or aspartame bc of how it turns stool into water…even Or especially in me (ileostomate) and can consequently cause dehydration but I haven’t had that reaction from monk fruit or erythritol so I try to stick to those as my alternatives to sugar.
Oh goodness - I think I meant to post this comment under another Sjogren’s video of yours! 🤦🏻♀️ Sorry Doctor! 😊
Adding beets too to smoothies adds a sweetness to them.
@@pennyc11 I LOVE beets!!! I eat them almost daily LOL!!
Monk fruit is wonderful. I recently heard erythritol was associated with heart problems, so I would research before taking anymore.
@@judyrobertson5564 Right - same here - I have seen a lot of videos on that lately, but some in the more holistic or functional med community are saying that there wasn’t an actual causation, but more correlation so they really do need to do more studies.
I’m sorry I am in a serious brain fog right now watching this I’m having a Sjogren’s flare I do not have the energy honest to God to rewatch it although I’m grateful for it, could someone please restate the milligrams or correct dosage for each of the vitamins that she mentioned recently I was prescribed 50,000 units of vitamin D because I had pneumonia and I was very sick and my vitamin D levels had plummeted I wasn’t taking anything for the longest time and I was living in northern California did not get much natural sunlight, but I cannot take that much now because it would be entirely too much. If anybody could please just list the correct dosages of all vitamins that she mentioned, I would greatly appreciate it if I had the energy to scroll back through I promise you I would I’m getting ready to take a much-needed nap, I’m in the midst of a major flare right now, but I’m so glad I found this doctor in this channel. I hope everyone takes very good care of themselves. Be well rested well and be good to yourself always
thank you for watching!
Have you tried wet cupping (hijama). Look for a registered hijama therapist in your area. It will give your lymphatic system a much needed cleansing and boost.
Dear Dr. My eye sight is getting affected by sjogren syndrome. Pls help
What is suggestions for the patients about Botox?
I researched this and learned Botox is contraindicated with any muscle condition or weakness,
Very helpful 🥰👍🏼. I don’t have symptoms of anything dry but my test says that I have jsogren syndrome. The only symptoms I have is permanent vibration in my whole body inside you can’t tell and weak toes and elbows. Also breathing issues when something gets stuck in my throat. What I should do Dr?
It's great to hear that you found the video helpful!
@Mikegigiz Did you ever get any info concerning the internal vibrations? I developed this in 2018 after cold turkey clonazepam and it is still happening. I was just diagnosed with Sjogren's a few days ago. I think the cold turkey off clonazepam started it because that is when the vibrations started along with many other symptoms. It is horrible when waking up in the morning.
I always have problems trying to keep my Vit D level up. I have been taking Vit C + D but I must take more D to reach a good level. Vitamin b12 however gives me hives! Since we get it naturally from meat products, consuming some meat has helped. I become iron deficient when I go total vegan so I went back to some meat. Iron tablets make me constipated.
I know it doesn't make sense but I do have dry eyes and must use drops but I don't have a dry mouth? Every since pregnancies not a problem for me but I must drink water/liquids a lot.
Good news though, not sure why? Phlegm is less of a problem lately? Hum..not sure why? Maybe using an inhaler more is helping? I am going to ask about Vit b12 levels.
Probiotics will help constipation also
Healthy vegan diet helps me a lot. I make beet, spinach and Barry smoothies daily. I alternate with spinach. Apple and lemon smoothies. Starts my day off with lots of natural vitamins and fiber. Working out when you're constipated will help that almost immediately. Going for a walk and getting sunlight daily will help your vitamin D naturally.
Hello ! I have RA since age 11 and so much damage in my spine, legs hips and everwhere. I am 51. Menopause has caused me to be bedridden. I hate it. Neuropathy in arms and legs, with heaviness. I have Sjogrens too. Sjogrens is awful and seems to be so much more active since menopause. Would you please give me advice on how to get better? Thank you for this channel! 💗💖💗🤗
I can't give the best advice through a single comment but if you'd like please schedule an appointment with me on my website!
Folic acid isn't a good choice for many people. B vitamins with methylfolate are more expensive, but worth it if you have the MTHFR mutation.
That’s me…homozygous for the MTHFR C677T variant (two copies).
Been trying to get more info. My B12 always shows in the 4 digits (last was 1344) but am always tired, cold legs/feet, low temp at night (96.1-97.3), have no colon (so lacking ileum absorption) & take a PPI. My current cbc is fine, no anemia. Some physicians think I don’t have low but my primary thankfully thinks it could be paradoxical B12 deficiency. Trying to find specialists that can go deeper on the blood work and check “active” B12 is very difficult for me tho.
We are also checking my thyroid this week.
Thanks for mentioning that.
Thank you for watching and supporting my channel
Can you take all these vitamins if you have atrial fibrillation and are taking beta blockers?
Please discuss them with your physician that understands your situation better!
I read you need to take magnesium to help with Vit D absorption. I'm hoping that includes Magnesium Glycinate which I've started taking fir heart palpitations. It's helped.
Thanks for the tip!
It also helps with digestion. That has been my experience with using Magnesium.
@@pennyc11 yes magnesium citrate!
The only magnesium I can take is malate.
@@chrisfox3584 ok
I have heard about the herb slippery elm bark helping . Anyone try it?
Thank you for watching my channel! I highly appreciate your support!
Thank you very much for your informative videos. Would 5,000 IU daily of vitamin D3 be ok or should it be 1,000 to 2,000 IU per day of vitamin D, not D3? What is the difference between vitamin D and D3?
Depends on your vitamin D level! Thank you for watching my videos!!!!
Get lab for Vit D every year. If leve 100 or more will need to cut back so don't become toxic. Good idea to get tested every year. Can work with chiropractor that does AK (applied kinesiology) to help with amount to take & review lab results.
That's way too much. I've been taking too much also, and I've been studying up. The University of Minnesota says: "Excess vitamin D can cause calcium to build up in the blood, leading to fatigue, nausea, constipation, headaches, and other symptoms. The proportion of Americans who are taking vitamin D supplements at amounts that exceed the recommended limit has risen dramatically in recent years - jumping 590 percent between 1999 and 2014, according to a University of Minnesota study published this week in the Journal of the American Medical Association (JAMA)."
Is sea buckthorn good for tear production or anything else for sjogrens or could it cause any issue with the immune system?
I do not know
I have Sjogren’s Syndrome I’m from Colombia and I’m trying to understand your videos to know what to do with the symptoms I have. There are no more tears in my eyes, they suffer a lot and more in the climatic changes that occur in California, USA. The breeze and the dryness of the environment cause me dryness and discomfort. I don’t have saliva and my tongue cracks or breaks when something has pepper or spicy, ketchup, salt or acids. My body hurts at times and I get very tired, I have fatigue and sometimes anxiety, stress and constant mood swings, I did not have children because according to that it would not be good for me and for the embryo. My wrists and knees hurt, the Kaiser doctor prescribed Pilocarpine and nothing else in Colombia they took that medicine from me because it was not at all good. I have problems with my liver, next Monday I will have an echo to see his condition. I don’t know what to do anymore, I’m 39 years old and I already want to die for all this and more. They keep me in my parents, they depend on me and my nephew to whom I pay for his studies. I wish you could give me a recommendation, please Dr.
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Have you tried to sign up to a phase three clinical trial for Sjogrens? Maybe you can find something there.
Algo que me ha ayudado mucho en la angustia ha sido creer en Dios. Creo firmemente en la Biblia y lo que dice cuando afirma que este cuerpo enfermo (y el de todos los humanos, pues todos somos débiles en muchos sentidos) es temporal, y hay una vida eterna sin más pecado, dolor, muerte, violencia ni enfermedad; la vida eterna para todos los que creen en Jesús y son justificados por Él. Por mientras creo que es muy útil reducir el estrés, apoyarse en gotas lubricantes, hacer ejercicio aeróbico (puede ser andar en bici, estiramientos en casa) que también ayuda a reducir el estrés y a relajar el cuerpo, y tener apoyo, desahogarse con seres queridos...es muy importante relacionarnos. Es difícil vivir así, pero somos afortunadas por muchas ayudas naturales como agua, té verde, frutas y verduras que hidratan, y otras de la medicina como gotas lubricantes, pasta de dientes y sprays para boca seca, etc. Un saludo
Hi darling, try hydroxychoroquine, hormones, oestrogel it’s very good, it’s helping a lot and believe in God you will be cured and if there is something that is making you feel upset try not to think to much in problems
Hi Dr..Where can i find all this vitamins in one?instead of taking every single one daily
Thank you for watching my videos!
My mouth doesn’t hurt nearly as much since I started taking folic acid
Thank you for watching my videos and supporting my channel!
What type of folic acid you use. And what is it for.
Your video is very helpful Dr. I m suffering from sjorgen but all my medical reports(blood test are negative).
Doctor has advice Lip biopsy to firther start immunolateral therapy.
My age is 40. I have severe eye n mouth dryness. I keep drinking water n visiting washroom often. I will start with vitamins as you said.
Also plz advice lip biopsy or medicine is necessary?
if the diagnosis is still in doubt, yes!
I'm dr. Sunita it is advisable that please consult immunology or rheumatology clinic and get biopsy done to get diagnosis made.
I hv Primary Sjogrens syndrome with cns and multiple system involvement. But doctors were adherant on confirming the diagnosis by serology or biopsy to start correct treatment.
So first arrive on diagnosis
@@RoseSharma-nk4ui very true!!!
beware of taking fish oil with antidepressants, effected my brain balance, and blood pressure meds as well.
Thanks for sharing your experience and warning others about potential interactions between fish oil, antidepressants, and blood pressure medications.
Doctor, I started taking plaquenil (200 mg x2 a day) in Sept. 2017 and unfortunately my ophthalmologist took me off of it in Oct. 2023 because my vision was becoming toxic- I went to a Retina Specialist who also advised I get off the plaquenil. Have you ever heard of eye toxicity from being on plaquenil? The fatigue is starting again and my eyes are dry even though I use eye drops x3 a day. I can handle the dry eyes but I can’t handle the fatigue. All I want to do is sleep all day which was the only symptom I had before being diagnosed with Sjogrens. Any advice is appreciated.
check my plaquenil video th-cam.com/video/VXXBrXmHwQs/w-d-xo.html
Has anyone tried spirulina as a natural form of vitamin A also ?
Thank you for watching my channel! I highly appreciate your support!
I thought my sjrogens syndrome was causing all my issues. I found out I now have clear cell endometrial uterine cancer. And a tumor in between my thyroid in my pelvic. Do I ever get a break in life
I dont get a break ever
Is there a single multi vital I can take daily for sjoghrens and lupus ? I'm 65 diagnose 3 years ago after I got covid vaccines.
Thank you so much for taking the time to watch and comment. Your support means the world to me.
Thank you
Hi
I'm having Primary
Sjogren's syndrome with intracranial hypertension, peripheral nervous system and multisystem involvement lungs,joints, muscles eyes , oral ,parotitis with vasculitis. Further not responding to treatment
If you can extend help in treating this disease
I'm sorry to hear about your condition. It sounds really tough.
Check out LDN research trust TH-cam . Low dose naltrexone is effective for Sjogrens. Been on it for 6 years and symptoms went from severe to mild .
thanks for your video's. As regards pernicious anemia it's important to note that a by mouth B12 supplement will not help. It has to be in shots so to avoid the digestive tract.
Thanks for the info!
Is that true? Never heard that before. I didn't want to take the cyan B12 by shot.
Hello Dr .. I've just been told I have some sort of undifferentiated connective tissue disease, but no name for it. Prescribed hydrochloroquin, not taking it yet as I'm on metformin for pre-diabetes that may interact with it. Scared to take it. Also told I have MTHFR. And maybe early signs if sjorgens....can you see this and tell me what you think. Also I was given Vitamin D2-50,000 once weekly for 12 weeks and Vitamin D3 - 5,000 once daily at the sane time. Scared now if thats too dangerous. Please tell me your thoughts. In methylated vitamins & multiphyto iron.... On 1 billion probiotic once daliy also... Nervous. Please help.
Thank you for watching my videos!
@@rheumatologistoncall no response to my questions?
That's a lot of vit D. I would research. Start with the University of Minnesota.
I’m probably deficient in some of these because one doctor didn’t want me to build up my system with supplements because the Medicine for Rheumatoid Arthritis lower your immune system so I try to get from foods
I take 1 tablet by mouth daily Hydroxychloroquine 200 mg . Is ok if I get vitamine d, c, e, b12, omega 3? In the same day?
Yes
My mouth feels like snot or sheets of thick saliva. I chew and some of this releases but of course it is clear but seems like pustuals. So gross. At night I often choke on this stuff. I wear a guard at night because I can’t sleep. Always trying to chew this stuff. This has been going on for 6 years. Very depressing. Please help. I’ve seen 12 dentists and docs
Try wet cupping to clean your lymphatic system. It’s also called hijama. Look for someone qualified.
Thank you for sharing, Dr. Girnita! I have some questions about the vitamin d3. I have RA, Sjogrens, and severe endometriosis and am VERY low in vitamin D. Any time I have taken vitamin d, I have issues with my bowels. I have taken it anywhere from 5,000 units a day to very low doses 600 units a day and about a week to two weeks later, or so I have bowel issues. I call them bowel attacks, but that is probably not the proper term for it. What ends up happening during these bowel issues is I will defecate 4 times within an hour and a half. The pain is incapacitating on my lower left side and then when I defecate my stool will be go from hard, then 2nd stool is a little less hard and by the time I get to my 4th stool within the hour and a half it is very loose (sorry if this is to much information). This does not happen every day. I have asked many doctors about this and they never know what us causing it. Do you know what the issue might be? Do you think I might have issues absorbing Vitamin D?
I am asking because I know I desperately need to take vitamin D since my levels are at a 9 and should at least be in the 30+ range.
Thanks 4 sharing about syogren syndrome
Thank you for watching and supporting my channel
There are Vitamin D patches you can buy, and Vitamin D lotions, that you can use in place of oral supplements. Some people find taking it with magnesium helps, or taking it on a full stomach. Taking it Intramuscularly is an option as well.
Adding Magnesium to my diet has helped with irritable bowel syndrome. It might be worth a try?
Have you been to a GI..Left sided pain makes me think about diverticulitis.. Have you had a CT of your abdomen… I have had a lot of GI issues.. A functional physician has been a huge help to me.. She did a GI mapping-I had C did, H Pylori, Candida and my probiotics were off-too much bad and not enough good.. Also not enough digestive enzymes..
high doses of vitamin d -so called coimbra protocol - is under medical supervision and is restricting calcium intake.there are people with very good results.the doses are individual.blood tests are done often. what is the risk?
Thank you for watching and supporting my channel. I cant support protocols that do not have enough scientific data!
I have Sjogren's and Dr's Eric Berg and Barry both give compelling info in their videos supporting taking higher doses of vitamin D. I've been taking around 15-20,000 IU a day for nearly a year with positive results.
@@patcartbar please provide us with scientific evidence! I am glad you are feeling better but be careful from whom advice you use.
@@rheumatologistoncall here is a publication on pubmed
Is there a way to dm you?
send us a message to contact@rheumatologistoncall.com
What amount of vitamin E?
rcm.mums.ac.ir/article_10480.html
I have tried taking omega 3 ( fish oil) but it aggravates my acid reflux
try to eat more fish. Thank you for watching my channel! I highly appreciate your support!
Hello ma'am.. My daughter she is 8 year old.. She is also suffering with Snogren's syndrome.. I m to much worried my daughter ma'am pls help what should i do
Thank you for watching my channel, share the videos to spread my educational content!
What if you think you have this disease but blood work come up negative?
There are other ways to diagnose, follow my videos and contact a rheumatologist!
Thanks !
@@rheumatologistoncall I was asking you to share your general knowledge about that because it might also help your audience. Puzzled by your response.
@@vidaweinstein7595 Why? Click under her name and you will find a video explaining how Sjogren's can be diagnosed. Not everyone with Sjogren's tests positive. Yet there are symptoms that are common enough to create this category. A doctor can diagnosis it through observation of your ongoing symptoms. One visit will probably not be enough if you do not test serum positive. The Dr. does mention other testing forms.
@@pennyc11 which video do you feel address the particular question? Thx 🙏
@@vidaweinstein7595 I just watched a video about that from her. You will find the info if you scan her videos. There's a tear test, lip biopsy and another one.
i find food effects me and vitamin c ascorbic acid is bad for me
Thank you for watching my videos!
high dose vitamin d :)
Welcome! Thank you for watching my videos!
They detected me t Early Sjogren's síndrome , The saliva dries out and that causes Bad breath is a nightmare.
thank you for watching!
Xylitol mints may help
Are there any medications that would help Sjogrens?
Watch my other videos and discover the treatments!
My Rheumatologist prescribed Hydroxychloroquine 200 mg twice a day and it has definitely helped. It took about a month before I noticed a difference.
@@patcartbar Thankyou. I was on it for about 12 weeks and it was great, but I started feeling faint and it was attributed to the medicine and stopped.
@@rheumatologistoncall Thank you so much! Love your videos!
@@patcartbar but it affects our vision?
Hello. Can you recommend a brand of fish oil to take please?
I cant, unfortunately. Thank you for watching and supporting my channel
@@living2day617 thank you very much! 😊
Have you tried cod liver oil from Nordics brand. It’s a good brand and helps me. I’ve been taking it for years now.
@@living2day617 can you tell us what brand pls
@@eveerazm7989 I have not. Ty for your recommendation
Czy można prosić o napisy w języku polskim?
thank you!
yes, i will add
@@rheumatologistoncall Dziękuję. Pozdrawiam
@@M.J-R I added POLISH
Emergency: Dry ears leading to sound sensitivity, Dry eys leading to shrinkage eyes & reading difficulty, dry foreskin, dry sinus cavity & many more symptoms So these problem leading to pressure inside head, sensing problem, sleep difficulty since 2009. pilocarpine hydrochloride 5mg is not helping. Please help.
Thank you for sharing your experience.
Symptoms?
check my channel, I have so many videos!
1000 iu means u need 10 years to raise your Vitamin D level to 30