I’m living in Ireland and newly diagnosed. The comparatives with the panel experience in the USA are remarkable. Excellent, highly informative and useful contribution from the panel and chairs. Very well done. Deserves more positive commentary
Thank you to all of you that shared your experiences. Both my heart and my brain were wo appreciative of hearing your insights. Thank you all so very much!
I agree with all that has been said....As a 2 time cancer survivor I can relate to the impact of a life changing illness. My daughter was diagnosed at 34 with 2 kids and husband. My mom at age 75 also had Parkinsons and I was her caregiver when my daughter was diagnosed. I felt totally lost to help her while I was caring for my mom. My daughter is now 37 and my mom has sinced passed at 84. I am hopeful after seeibg this that my daughter and so many others will have a YOUNG ONSET CONMUNITY to help them.
My path has been eerily similar to Paul's. Same line of work. Same symptoms, same wrong diagnosis (same fingers, even) only I haven't had disc buldge surgery yet...my consult with neurosurgery is coming up, though, and I do have cervical disc buldges being questioned as the source of my issues. Now, I'm not so sure.
I’m living in Ireland and newly diagnosed. The comparatives with the panel experience in the USA are remarkable. Excellent, highly informative and useful contribution from the panel and chairs. Very well done. Deserves more positive commentary
27:06
Thank you to all of you that shared your experiences. Both my heart and my brain were wo appreciative of hearing your insights. Thank you all so very much!
Eureka! I am grateful for the wisdom of this group.
I agree with all that has been said....As a 2 time cancer survivor I can relate to the impact of a life changing illness.
My daughter was diagnosed at 34 with 2 kids and husband. My mom at age 75 also had Parkinsons and I was her caregiver when my daughter was diagnosed. I felt totally lost to help her while I was caring for my mom. My daughter is now 37 and my mom has sinced passed at 84. I am hopeful after seeibg this that my daughter and so many others will have a YOUNG ONSET CONMUNITY to help them.
Thanks so much for sharing this. I am struggling to find ANYONE like me. After decades of gaslighting I feel so alone.
thank you - inspired me to motivate my husband xx
Pauls a grandfather, dang.
My path has been eerily similar to Paul's. Same line of work. Same symptoms, same wrong diagnosis (same fingers, even) only I haven't had disc buldge surgery yet...my consult with neurosurgery is coming up, though, and I do have cervical disc buldges being questioned as the source of my issues. Now, I'm not so sure.
Seriously they look normal despite having been sick for years.
This is mindset is why we in young onset community suffer so long until diagnosis.
Normal is a setting on a washing machine.