I blink...sorry...think that because she has beautiful eyes and luscious long lashes...people are assuming that when the film crew cut while she's blinking, that she's dramatically blinking. I couldn't see it myself apart from when the crew cut to another scene? Leave the woman be, isn't she dealing with enough? Smh
@@acreativename4391 but a good doctor should still try their best to find what the problem is, not dismiss the patient with "You're just stressed" or in Julia Smith's case, "You're just worrying too much". Obviously normal doctors can't identify rare diseases but they should still listen and try to point the patient to another direction, suggest a specialist etc.
I suffer from fainting episodes and I saw a doctor couple of weeks ago and she acted as though she didn't care at all or believed me that it had been going on for 3 years and all she has done is blood tests because I pushed for it and I've got to go back for two other medical issues that I might have and I am now dreading it because of it
Cheesemonkey, sometimes you have to be your own advocate. I've noticed in these series that a lot of the families have researched for themselves since there were no answers forthcoming. The only worry one then has, is that they might think they have all sorts of conditions and unfortunately present as hypochondriac which once labeled on the file could make every other doctor dismissive. If you have something though keep going back, keep complaining about it and hopefully someone will listen.
@@nonacee5065 I am I've changed doctor's due to moving away to university and I've been talking to people who have the same thing I might have and they have also said keep pushing and I will be as I'm fed up now
Actually Communication is teached in med school from the first Semester on at least in Germany. Lots of universities also have special tests for communicating and listening you have to pass to even get in
i hate when the doctors just assume it’s stress or all in someone’s head. Do some tests, look it up! DO YOUR JOB. Someone doesn’t just start having seizures and can’t freaking walk due to stress.
Geez. Doctors are not always allowed to do tests without permission from the hospital board. Also; a rare disease is not the first thing you think about.
Exactly when mt grandma noticed a lump on her body she went to the docters to see if they knew what was they just said itbwas tlnothing and she shoulnt worry, couple months later the lump was diagnosed as cancer but it was too late 😠
Sure, let's assume it's a VERY rare genetic disorder BEFORE looking at the hundreds of options that explain the same set of symptoms and are way more likely. That won't kill millions of people who had the more common diseases. This is why you're not a doctor. Or if you are, please stop practicing. To a doctor, who does this stuff every day, those AREN'T "obviously unusual symptoms". They're actually pretty non-specific. Hundreds of things can cause them.
@@LordofFullmetal "lets assume this a very rare genetic disorder" In the video it literally said only a couple thousand people have been documented to have the disorder. I'm no doctor by any means but it's clear to see that you arnt either. Also "please stop practicing" haha fuck you that's incredibly rude and no doctor would have the audacity to say that as you need to be in medical school for 8 years +. There is no telling if they are just starting or not, grow up.
@@LordofFullmetal LordofFullmetal No one said anything about assuming anything. Doctors should just try harder even if they don't know the answer themselves. A lot of doctors just give up immediately when they don't know the answer and say, "Well, you don't have any of the diseases we tested you with so I guess it'll just go away". How about suggesting the patient to look for specialists? Maybe to say, consider the fact that it could be a rare disease and do some research on them based on the patients symptoms and then advice the patient to a potential right direction based on that? It's sad to say but even the patient themselves googling and doing their own research online can be a better help than doctors with a degree who are supposed to help and find answers. Like in these cases, both Julia's mother and David had to take matters into their own hands and look for answers themselves.
@@LordofFullmetal you used straw man fallacy. Op didn't say BEFORE. Of course FIRST test for every common disease that can explain the symptoms, but if every test comes up normal, don't assume parents or people themselves are overreacting. Then start looking for something rare before dismissing people (unless you're really positive that they are overreacting. But that many bruises over nearly nothing and the profuse bleeding over a tiny scratch is not overreacting).
As a medical student, I want to know which idiot paediatrician told the mom that "your daughter will bruise easily coz you do", without actually testing the patient to exclude bleeding disorders?!
'We don't know what it is, but it's gone. You can go home.' - Wow, only in the US. In Europe, if a doctor sends you home with a message like that, his/her diploma is taken.
uhm...got me 2 years just for someone to identify that i was having eczema on large parts of my body (including on the face) because I was allergic to nickel...everyone was sending me home, without any tests, telling me that it was genetic and they couldn't do much about it and they'd prescribe me loads of cremes that wouldn't even work...have you ever heard how Romania works? :))
It took me 14 years ti get diagnosed in Denmark, so no. I’ve been send home with fatal symptoms several times. Doctors would slap their knees laughing their ass off if I tried to sue them.
Me: *hand hanging by veins* “There’s something wrong with my hand!!?!” Doctor: *takes blood test* “well, your blood looks normal, so you’re obviously overreacting”
I find it odd how many doctors there are who don't really listen to their patients and only listen to test results. I also find it odd that the doctors don't research other theories than the ones they come up with right here and now. There doesn't seem to be much of "keep me updated", "call in 14 days" or "I'll help you get to the bottom of this". I also remember where I had one good doctor who had a theory that some back / scapula pain I had after a fall was caused by muscle contractions, and that pain killers would help my muscles to relax and work correctly again. She offered to call after a few days. Her theory worked, but I'm glad that she took interest and had a trial and error mindset (within reason). I also have respect for doctors who admits that they don't know everything and recommends another doctor.
I find it sad that a lot of doctors don't learn patient care along with their medical training. So a lot of consultants are rude and think of themselves like they're gods or something lol. Listening to and getting to know their patients is crucial in a lot of diagnoses and helping people with their problems. A lot of doctors and consultants just always think they're right, and no-one should doubt them etc. I think things are slowly changing over time, but it's still a problem
I'm a med student and we are studying these diseases in university but I've never imagined how hard it could be to have them! Before opening this video, I was like "glanzmann? That's not even rare and hard to treat. Why did they make a documentary about it?" It's really different from the patient's view.
Riley Cruden I haven’t wanted kids since I was really little, I just want to live alone Most people say I’m completely mute because I don’t like talking and I’m an introvert
honestly even liking the video is horrible because it seems like people are happy about the bruising, disliking it is for people who feel horrible for that poor girll
@@eviem_art525 the baby wasn't actually bleeding they used that baby to show the effect of what the 11 year old child was going through as a baby an still now. If this was happening to ur baby u won't just pull out a camera and film every little moment when this was taking place, they recreated what happened and explained their situation.
To all those wondering how the doctors did not diagnose it earlier: patient: 'so I have these symptoms.' doctor: 'okay that shortens the list to only 10.000 diseases you can have'. Seriously, many diseases look the exact same. Some are so rare we were never taught about them, and never read about them. Many patients read online what a certain disease looks like and they come and lead us to that diagnosis, and we are doing our best to make the differential diagnosis.
i am more wondering why standart blood tests that come with every health check where i live, are not done. i am also wondering how "i don't know what it is" equals: there is nothing wrong, go home. i am wondering why it almost always takes somebody to use google to find the correct answer. it is common practice here that doctors refer to a specialist to confirm of find a diagnosis. i dont wonder why doctors cannot find a super rare diagnosis in an instant, i am wondering how they dont even try to find one, even if the search takes time. that is their job. the symptoms the patient tells you are not the only clues you get. this is ridiculous.
I heard as well that medical professionals start with the most common answer to symptoms, and work their way up, to more rare diseases and conditions... but they first have to eliminate everything else. But, it sucks that some doctors don't do their job properly, and send them home. If they don't know what it is, refer them on to someone higher up who may have more of an idea or be able to do further testing. That is what usually happens here in the UK
"This patient has an extremely rare disease which pretty much no doctors have ever seen. Now they wonder why the doctors who never even heard of this rare disease didn't diagnose it." What a mystery, I wonder why that is...
If your car doesn't start - you ask a mechanic to deal with it. So if the 1st mechanic can't fix it or doesn't know why it wont start...HE WILL ASK A MORE PROFICIENT MECHANIC who CAN deal with it...get it?
This seems ridiculous to me, I'm a vet and there are literally bedside tests we can run to assess platelet function if everything else is normal and our patient is still coagulopathic. They seriously needed a specialist lab to run a comparable test??
@@numairaimran9877 one of the tests we run is called a buccal mucosal bleeding time and it requires something sharp and a stopwatch. This isn't technology that was only developed in the last 11 years....
lmao, funny how in the reenactment they used a baby with EARRINGS. poor baby julia definitely couldn't possibly have had those, her ears would've never stopped bleeding.
Woah! She’s so beautiful.. 😍😍😍 I’m so upset that she has something this terrible.. Its so sweet she wants to adopt! I really hope she’ll get through life successfully..
For people who are dissing doctors in general, this is what goes on in a consultation Doctor: Do you have other conditions or symptoms Patient: Nope Doctor: What meds do you take PaTieNT: *proceeds to list 20 medications*
AG 98 This is how hard a doctors job is: D: okay any light headedness? P:Yes D:that shortens the list to only 7337248378766412467890008765432431137899 diseases you can have!
I got a huge shock when I heard about itp in this show, I knew it was rare so I never expected to see it in one of these videos. I developed itp at a young age and was told that at most, 3 people come into the hospital per year (that was including me) with itp.
I cried so much during this, I have a baby sister who is 16 months, and watching this just broke my heart, the baby was laid on her back playing with all her bruises and then you see her all grown up living life. 😪💗🙏
Doctors, by and large, don't listen to a patient, ESPECIALLY if the patient is female, disabled, or mentally ill. I would recommend seeking out a female doctor if possible, as they're more likely to have gone through the same dismissal of their own symptoms and have motivation to do a better job. I am, as a whole, mistrusting of medical professions because my experience with them ha s largely been "they want their paycheck not an answer to my problems". The same goes for my significant other.
Mel ik how you feel in my own way, but my experience is quite different and has nothing to do with doctors and stuff. It was more of a school thing. My friends treat me like a nobody sometimes.
Was taken in disabled nation children home as 4/half years old being classed mentally retardant till l was 8 years old when authorities found out l was deaf in both ears ❤❤❤😂
Medical medicine etc is improving think most of the people’s don’t realise or understand that or do not appreciate what healthcare you can get compared to 50-100 years over now ❤❤😂😂
**in the middle of surgery on a terminally sick baby** Director: one sec, doctor! Just look at the camera and blink really slowly and dramatically. Doctor: were in the middle of a surgery sir. Director: I don’t give a sh*t bro, just do it now and it’ll look sick!
I have this disorder, I’m 15, yes periods are hard , yes they are controllable , no u can’t die from it unless obviously u get a bad cut etc., yes you get weird looks and police asking if everything’s okay at home .
She's amazing ...the strongest ...God's Simone blessings along with my best wishes are with her ..I really hope in future there's a cure that can help her. I love her mentality she doesn't let the fact that she can't get kids make her sad she puts positivity first 'adopt give someone a home'
It physically hurt me to watch Julia. I could only take 5 minutes of it. My body is uncomfortably tingling, I feel nauseated and my heart it pumping out of my chest. This is the first time I have ever felt this way towards any medical condition.
I had same condition like David.3 years I was lost.Dr gaved all kind of anxiety and depression medication.I had to go to my country for treatment.Thanks David to share your situation.I think now I can talk aboute my conditions.
I have this blood disorder. Found out during pregnancy. Although all the signs were there from birth too. I lost a lot of blood during birth. All went well went on to have another baby by c-cection: I’m good babies are now young adults. Good luck Julia. You are not alone xx
Poor poor child. It's hard enough for women to be told they can't have kids but for parents to be told while their child is still a baby herself would be so devastating.
He’s lucky he didn’t bang his head when he was paralysed! I collapsed on May 31st 2018 after my shower, I felt so dizzy and I collapsed, I also banged my head on wood :( So I went to hospital in an ambulance, And got two days off school! That’s pretty much it ._.
Ayy 5:35 where my ITP spoonies at 💜 Also this must be pretty old, it's now Immune Thrombocytopenia Purpura because in most people their body does produce enough platelets but the immune system mistakes them for foreign cells so the spleen is constantly destroying them. I'm 19 and still occasionally get asked 'is everything ok at home' when people see my bruises. Really wishing the best for Julia when she gets her period because thats a struggle I can relate to
I can not imagen how is it like my body is hurting for no reason now 🤔 but i hope you never wake up to your daughter Screaming soacked in blood i will never wake up because i cant some need some one to wake
I have pain everywhere most of the time but that doesn't bothers me, so when I hear someone suddenly saying " Omg, my leg hurts... I'm scared what's happening, I'm gonna pass out ".... 😂 And then later she tells you that wasn't painful.
The heart is indeed a muscle, but it's an involuntary one. I'm not sure if they're only talking about voluntary muscles or all of them in the video since they showed hands closing and opening and those are absolutely voluntary muscles.
“Can you just close your eyes, thank you”
she is crazy but she is mine damn I loose my mind
Wait when did I comment this
Jess Rude oh yeah yeah
are you being mean???
@@autumn_leavesx4422 she's dancin' every night singin Sha la la la la la
Still_Chill Yo_Tengo 😂
the fact that when she said people were looking at her as if she was abusing her baby and they just walked away
I blink...sorry...think that because she has beautiful eyes and luscious long lashes...people are assuming that when the film crew cut while she's blinking, that she's dramatically blinking. I couldn't see it myself apart from when the crew cut to another scene? Leave the woman be, isn't she dealing with enough? Smh
Good medical care begins with a doctor who LISTENS. Obviously it's a skill not learned in medical school.
@@acreativename4391 but a good doctor should still try their best to find what the problem is, not dismiss the patient with "You're just stressed" or in Julia Smith's case, "You're just worrying too much". Obviously normal doctors can't identify rare diseases but they should still listen and try to point the patient to another direction, suggest a specialist etc.
I suffer from fainting episodes and I saw a doctor couple of weeks ago and she acted as though she didn't care at all or believed me that it had been going on for 3 years and all she has done is blood tests because I pushed for it and I've got to go back for two other medical issues that I might have and I am now dreading it because of it
Cheesemonkey, sometimes you have to be your own advocate. I've noticed in these series that a lot of the families have researched for themselves since there were no answers forthcoming. The only worry one then has, is that they might think they have all sorts of conditions and unfortunately present as hypochondriac which once labeled on the file could make every other doctor dismissive. If you have something though keep going back, keep complaining about it and hopefully someone will listen.
@@nonacee5065 I am I've changed doctor's due to moving away to university and I've been talking to people who have the same thing I might have and they have also said keep pushing and I will be as I'm fed up now
Actually Communication is teached in med school from the first Semester on at least in Germany. Lots of universities also have special tests for communicating and listening you have to pass to even get in
If my kid started bleeding like that I would scream my head off
Roddy Pitt I don’t think that will help
I would blink dramacitly
Roddy Pitt I would faint on the spot
That would be the worst idea ever!
JudisomegiRL of course it wouldn’t, but who would be able to help it? It’s just a reaction. It’s not like we want to scream..
i hate when the doctors just assume it’s stress or all in someone’s head. Do some tests, look it up! DO YOUR JOB. Someone doesn’t just start having seizures and can’t freaking walk due to stress.
Geez. Doctors are not always allowed to do tests without permission from the hospital board. Also; a rare disease is not the first thing you think about.
@@emmamarjut not to mention the fact that many doctors wouldn't have come across the rare ones so it won't be as easy to diagnose
Exactly when mt grandma noticed a lump on her body she went to the docters to see if they knew what was they just said itbwas tlnothing and she shoulnt worry, couple months later the lump was diagnosed as cancer but it was too late 😠
Lucy Newman happened to me but they did heaps of tests before figuring it out
They're not bothered or close minded towards new possibilities.
I didn’t even notice the dramatic blinking until I saw all of these comments.
I stil dont know what they are on about. Im not sure I really want to sit through another 43 minutes just to find out though.
Same 😂
Same thing with me... Even after finding out it does not bother me
Same
Hahaha😂
I wish that doctors took obvious unusual medical symptoms more seriously before it gets late. She could have been diagnosed way earlier. Poor girl.
Sure, let's assume it's a VERY rare genetic disorder BEFORE looking at the hundreds of options that explain the same set of symptoms and are way more likely. That won't kill millions of people who had the more common diseases.
This is why you're not a doctor. Or if you are, please stop practicing. To a doctor, who does this stuff every day, those AREN'T "obviously unusual symptoms". They're actually pretty non-specific. Hundreds of things can cause them.
@@LordofFullmetal "lets assume this a very rare genetic disorder"
In the video it literally said only a couple thousand people have been documented to have the disorder. I'm no doctor by any means but it's clear to see that you arnt either. Also "please stop practicing" haha fuck you that's incredibly rude and no doctor would have the audacity to say that as you need to be in medical school for 8 years +. There is no telling if they are just starting or not, grow up.
@@LordofFullmetal LordofFullmetal No one said anything about assuming anything. Doctors should just try harder even if they don't know the answer themselves. A lot of doctors just give up immediately when they don't know the answer and say, "Well, you don't have any of the diseases we tested you with so I guess it'll just go away". How about suggesting the patient to look for specialists? Maybe to say, consider the fact that it could be a rare disease and do some research on them based on the patients symptoms and then advice the patient to a potential right direction based on that? It's sad to say but even the patient themselves googling and doing their own research online can be a better help than doctors with a degree who are supposed to help and find answers. Like in these cases, both Julia's mother and David had to take matters into their own hands and look for answers themselves.
True
@@LordofFullmetal you used straw man fallacy. Op didn't say BEFORE. Of course FIRST test for every common disease that can explain the symptoms, but if every test comes up normal, don't assume parents or people themselves are overreacting. Then start looking for something rare before dismissing people (unless you're really positive that they are overreacting. But that many bruises over nearly nothing and the profuse bleeding over a tiny scratch is not overreacting).
Imagine julia being an angsty teen and reading these comments and being like: "ugh mom you shouldnt have blinked so dramatically"
Lol😂
As a medical student, I want to know which idiot paediatrician told the mom that "your daughter will bruise easily coz you do", without actually testing the patient to exclude bleeding disorders?!
Aryesh-Bharat Ramlall exactly
Yup...how he took it normally...I was stunned....if he would have taken it seriously baby would have diagnosed right after birth....
He should be in alot of TROOBLE (lol)
I know
Glad I am not the only one
I googled Julia to found out more info and I found out that sadly Helen died at age 52.
I find that shocking and devastating.
RIP Helen
That's so sad RIP Helen 🙏
Sarah's eyes are sooo gorgeously bright green
How bout the wrinckly doctor
My name is Sarah as well
*_Little girl gets touched:_* BRUISES
*_Me falling from 8 feet landing on my arm and almost braking it:_* No Bruises ?
Your platelets are doing over time !!!
@@charlenedeguzman3493 Don't you know what a joke is?
@@charlenedeguzman3493 Time for the likes of you to get out of TH-cam, fellow Filipino.
Wow you’re tough
@angellove834 lmafo
'We don't know what it is, but it's gone. You can go home.' - Wow, only in the US. In Europe, if a doctor sends you home with a message like that, his/her diploma is taken.
blondecat666 From personal experience I can tell you that that isn't true
It took 16 years for me to get a diagnosis for something that I suffered since I was a toddler. And I am from Germany.
Well not in sister Lithuania
Oh yeah yeah
uhm...got me 2 years just for someone to identify that i was having eczema on large parts of my body (including on the face) because I was allergic to nickel...everyone was sending me home, without any tests, telling me that it was genetic and they couldn't do much about it and they'd prescribe me loads of cremes that wouldn't even work...have you ever heard how Romania works? :))
It took me 14 years ti get diagnosed in Denmark, so no. I’ve been send home with fatal symptoms several times. Doctors would slap their knees laughing their ass off if I tried to sue them.
Me: *hand hanging by veins* “There’s something wrong with my hand!!?!”
Doctor: *takes blood test* “well, your blood looks normal, so you’re obviously overreacting”
This comment is so underrated
@@lucasheitor9288 hi how are you
I’m thirty seconds in “let the blinking commence!”
I want to know how Julia now
Keo Emerald she would be 21
@@Mitsuri007 they posted the video a year or two ago, but the actual program is way older.
Probably fine. They neglected to tell everyone that while it can't be cured, it can be treated with regular platelet infusions!
Ugh, that eye close thing... It doesnt work. It seems so random and weird
Omg yes
Heck no it's because their worried duh...and if the same thing happens to you... You'll regret....
@@gamevscharger4078 what?
My heart feels the pain of the baby and her parents. I pray for her healing. I hope many miracles happen and she lives a healthy, normal life.
I find it odd how many doctors there are who don't really listen to their patients and only listen to test results.
I also find it odd that the doctors don't research other theories than the ones they come up with right here and now. There doesn't seem to be much of "keep me updated", "call in 14 days" or "I'll help you get to the bottom of this".
I also remember where I had one good doctor who had a theory that some back / scapula pain I had after a fall was caused by muscle contractions, and that pain killers would help my muscles to relax and work correctly again. She offered to call after a few days. Her theory worked, but I'm glad that she took interest and had a trial and error mindset (within reason).
I also have respect for doctors who admits that they don't know everything and recommends another doctor.
I find it sad that a lot of doctors don't learn patient care along with their medical training. So a lot of consultants are rude and think of themselves like they're gods or something lol. Listening to and getting to know their patients is crucial in a lot of diagnoses and helping people with their problems. A lot of doctors and consultants just always think they're right, and no-one should doubt them etc. I think things are slowly changing over time, but it's still a problem
I'm a med student and we are studying these diseases in university but I've never imagined how hard it could be to have them! Before opening this video, I was like "glanzmann? That's not even rare and hard to treat. Why did they make a documentary about it?" It's really different from the patient's view.
Wow at age 11 she's already thinking about being a mum? Such a forward thinking child.
Mee A girl i wanted to be a mum since I was like 6. Most young girls want kids
I'm 13 and I want a kid when I'm older. I refuse to die unless I get married and have/get kids. But I ain't marrying some random person just for it.
She was probably asked/told abt the fact that she can’t have a baby and that’s why she mentioned it.
Riley Cruden
I haven’t wanted kids since I was really little, I just want to live alone
Most people say I’m completely mute because I don’t like talking and I’m an introvert
I'm 16 and I would rather die than have a kid ✌
This is kinda off topic. But I believe the editor really liked the moms eyelashes there’s so many clips off just her eyes
Nah, reel truth always focuses on the eyes, eyelashes and eyebrows blinking. Trust me. I've been watching their episodes for quite a while.
Yup he likes all eyes, and eyelashes blinking
Where are these 4 horrible people disliking such a heartbreaking story honestly do u have a heart
Noah Reynolds it's the crappy editing and film making techniques
honestly even liking the video is horrible because it seems like people are happy about the bruising, disliking it is for people who feel horrible for that poor girll
Noah Reynolds maybe that’s the reason that they disliked it! Bc it’s heartbreaking
Noah Reynolds they probably disliked it becuz of the dramatic blinking
@@pillbobaggins2766 This is what I stated too...smh
94% - Omg stop that eye dramatic thing
6% - I hope shes okay
0% How bad are these doctors?
Well doctors are humans they can't know everything
@@mahmoudahmed2954 ok true but Jesus can :3
Why so all of these things have the over dramatic blinking!?
Its to show the EMOTION in their eyes😂
Poor babies who had too wear fake blood and makeup for this video
KilljoySkeletøn Sinner *wear
Chloe Foster haha whoops , i should edit that
The baby was actually bleeding, it wasn't fake.
@@eviem_art525 the baby wasn't actually bleeding they used that baby to show the effect of what the 11 year old child was going through as a baby an still now. If this was happening to ur baby u won't just pull out a camera and film every little moment when this was taking place, they recreated what happened and explained their situation.
Jedwardxoxo I get you. It's hard to type sarcasm xx
To all those wondering how the doctors did not diagnose it earlier: patient: 'so I have these symptoms.' doctor: 'okay that shortens the list to only 10.000 diseases you can have'. Seriously, many diseases look the exact same. Some are so rare we were never taught about them, and never read about them. Many patients read online what a certain disease looks like and they come and lead us to that diagnosis, and we are doing our best to make the differential diagnosis.
i am more wondering why standart blood tests that come with every health check where i live, are not done. i am also wondering how "i don't know what it is" equals: there is nothing wrong, go home. i am wondering why it almost always takes somebody to use google to find the correct answer. it is common practice here that doctors refer to a specialist to confirm of find a diagnosis.
i dont wonder why doctors cannot find a super rare diagnosis in an instant, i am wondering how they dont even try to find one, even if the search takes time.
that is their job. the symptoms the patient tells you are not the only clues you get. this is ridiculous.
I heard as well that medical professionals start with the most common answer to symptoms, and work their way up, to more rare diseases and conditions... but they first have to eliminate everything else. But, it sucks that some doctors don't do their job properly, and send them home. If they don't know what it is, refer them on to someone higher up who may have more of an idea or be able to do further testing. That is what usually happens here in the UK
It crushed my heart to hear about what Julia has to deal with 😔💔
Iooo CC boo boo-boo bo boo vn b boo bk Bob b on boo-boo b b book n n n. B. B b on l
Absolutely brave people going through life with such rare diseases. My best to them ❣️
This makes you realize how blessed you are..
I had know idea what was happening to me
*dramatic blinking*
I feel so sorry for her it must be really hard to see what’s happening to her daughter 😭
Is there something in your eye?🤬
hilarious. So bloody annoying!!!
Maddie Tross whats annoying is this comment
What
@@cryingattheclub5150 ...what?
"This patient has an extremely rare disease which pretty much no doctors have ever seen. Now they wonder why the doctors who never even heard of this rare disease didn't diagnose it."
What a mystery, I wonder why that is...
If your car doesn't start - you ask a mechanic to deal with it. So if the 1st mechanic can't fix it or doesn't know why it wont start...HE WILL ASK A MORE PROFICIENT MECHANIC who CAN deal with it...get it?
@@rosemarydudley9954 they’re being sarcastic
Wow, doctors in 90s were quite helpful they didn't check APTT, PT and BT when children had multiple bruises all over the body.
Seeing that baby covered in blood, it hit home.
This seems ridiculous to me, I'm a vet and there are literally bedside tests we can run to assess platelet function if everything else is normal and our patient is still coagulopathic. They seriously needed a specialist lab to run a comparable test??
The story is about 11 years old till then technology was not this much developed
@@numairaimran9877 one of the tests we run is called a buccal mucosal bleeding time and it requires something sharp and a stopwatch. This isn't technology that was only developed in the last 11 years....
8:53
Child: bruises easily
Grandma: *smeck on the beck*
Peter Parker....I noticed that too. BTW it's SMACK and BACK ... not smeck and beck!!!
@@rosemarydudley9954 that's part of the joke dumbnut
I caught it too! Hahaha wondered if anyone else did
lmao, funny how in the reenactment they used a baby with EARRINGS. poor baby julia definitely couldn't possibly have had those, her ears would've never stopped bleeding.
I thought the exact same thing too!!!!
Babies can wear earrings u know??
Craft & Co yeah it’s very common me and my sister had earring at like 5 months. But if julia got earring thens the hole wouldn’t stop bleeding
Craft & Co are you dumb?🤦🏼♀️ not with her condition.
Ear piercings dont bleed when u get them as a baby
That eye thing needs to stop
Plizzzzzzzz stop that dramatic eyes........ just kill me
Where is it
Hey its Rey all through out the vid
👁👄👁
Where is it da?
I’m so sad 😞...I like on prayer for this girl and be honest because I prayed for her a lot
what??
She’s doing well. She’s on college now, met another lady who has the same condition, her mom has started a research funding campaign.
Woah! She’s so beautiful.. 😍😍😍 I’m so upset that she has something this terrible.. Its so sweet she wants to adopt! I really hope she’ll get through life successfully..
40%= The real video
60%= DRAMATIC BLINKS
Hi minato
@@D24Revved Are u Kushina?
@@D24Revved Hi
@@kleeonn they call me
OROCHIMARU
👅👅👅👅👅
Give my son his friend Sasuke back!
Poor poor Julia, I'm a self harmer, and if I had this disease I'd be dead, I do hope she lives a long and healthy life, I hope she's a happy girl
Pinkhavanabay Pup don't harm yourself, please you deserve better, 🙃
Hey my name is also julia and i also harm myself. But do not have that horrible dissise
Megan McGuire yup
I've never felt the need to announce something like that without any prompting
Georgia Baker it’s ok, not everyone is comfortable talking about it
I can blink aswell
Welcome back to another episode of Eye Blinking
90% of this video is just them blinking 😔
Poor baby.
The comments:
80% The blink thing
20% About the video
Julia:I like to write my scooter a lot
#living on the edge 👌👌
Blaise Fox *ride
For people who are dissing doctors in general, this is what goes on in a consultation
Doctor: Do you have other conditions or symptoms
Patient: Nope
Doctor: What meds do you take
PaTieNT: *proceeds to list 20 medications*
AG 98 This is how hard a doctors job is:
D: okay any light headedness?
P:Yes
D:that shortens the list to only 7337248378766412467890008765432431137899 diseases you can have!
I got a huge shock when I heard about itp in this show, I knew it was rare so I never expected to see it in one of these videos. I developed itp at a young age and was told that at most, 3 people come into the hospital per year (that was including me) with itp.
Omg...god bless Julia get well soon soooo emotional hecking scary
I never really adored my sister so much before watching this, now I'm greatful that she didn't end up like Julia and other babies that had this.
I cried so much during this, I have a baby sister who is 16 months, and watching this just broke my heart, the baby was laid on her back playing with all her bruises and then you see her all grown up living life. 😪💗🙏
Doctors, by and large, don't listen to a patient, ESPECIALLY if the patient is female, disabled, or mentally ill. I would recommend seeking out a female doctor if possible, as they're more likely to have gone through the same dismissal of their own symptoms and have motivation to do a better job. I am, as a whole, mistrusting of medical professions because my experience with them ha s largely been "they want their paycheck not an answer to my problems". The same goes for my significant other.
I'm a mentally ill (anxiety) female and I'm treated like an actual child
Mel ik how you feel in my own way, but my experience is quite different and has nothing to do with doctors and stuff. It was more of a school thing. My friends treat me like a nobody sometimes.
Doctors don't always know.I work as a ER doctor and I agree some doctors are useless but some just add humans and don't know everything.
It's so addicting watching all this episodes.... I'm watching for two days now.
Was born deaf in both ears not diagnosed till 8 years old ❤❤❤❤
Was taken in disabled nation children home as 4/half years old being classed mentally retardant till l was 8 years old when authorities found out l was deaf in both ears ❤❤❤😂
Medical medicine etc is improving think most of the people’s don’t realise or understand that or do not appreciate what healthcare you can get compared to 50-100 years over now ❤❤😂😂
**in the middle of surgery on a terminally sick baby**
Director: one sec, doctor! Just look at the camera and blink really slowly and dramatically.
Doctor: were in the middle of a surgery sir.
Director: I don’t give a sh*t bro, just do it now and it’ll look sick!
The channel's documentaries are extremely DRAMATICC !
I have this disorder, I’m 15, yes periods are hard , yes they are controllable , no u can’t die from it unless obviously u get a bad cut etc., yes you get weird looks and police asking if everything’s okay at home .
actor:How much blinking?
Head: Yes.
That’s dramatic blink need to go
What an adorable kid really, I wish her a fulfilling life
She's amazing ...the strongest ...God's Simone blessings along with my best wishes are with her ..I really hope in future there's a cure that can help her.
I love her mentality she doesn't let the fact that she can't get kids make her sad she puts positivity first 'adopt give someone a home'
Wishing Julia and her family a happy life. AND WISHING Julia a FEW ADOPT ED SWEET KIDS!
The Poor Baby Who Acted In This! Oh Lord!
Ikr she is just baby
Ikr
They are not real bruises, just makeup!
@@dismas_mersiv Thanks for pointing out the obvious?
W H Y?............
Lab tech grandma for the win! 💪🏻 as a fellow lab tech this makes me proud (and sad that advanced clotting tests were not done in the clinic!!!)
How can they let her ride w/o knee pads and elbow pads. I didn't even do that and I dont have a blood disorder
If Julia was born 1998 how is she 11 at 2018?????????
hApPy B**TCH it might have been filmed earlier and posted a few years later
Cos this is an old tv show lol, that's pretty obvious
Shes older than me
23
A side effect of the condition is the ability to time travel.
The baby is so adorable...I feel her mom...its so painful for a mom..when its comes to their children.... Mom's loves are full of grace and mercy.....
OMGGG!!! That baby is so cute just those spots in the wayy😭😭😭 i love babies i cant watch this anymore😭😭😭
Bryanna Sambury They are fake bruises and cuts.
Whats with the eye blinking and zooming?
It physically hurt me to watch Julia. I could only take 5 minutes of it. My body is uncomfortably tingling, I feel nauseated and my heart it pumping out of my chest. This is the first time I have ever felt this way towards any medical condition.
May God be with all those all around the world who have medical disorders . I hope doctors find solutions soon , 💪💪❤❤
give this baby an oscar
I had same condition like David.3 years I was lost.Dr gaved all kind of anxiety and depression medication.I had to go to my country for treatment.Thanks David to share your situation.I think now I can talk aboute my conditions.
Comments:
About the dramatic blinking:100000000%
And 5000% statistics about it
Can I just say that's the most adorable baby ever X 👶🏼👶🏼😍☺️☺️
why are they shocked she was pregnant? when they aren't careful they end up with pregnancy!
I have this blood disorder. Found out during pregnancy. Although all the signs were there from birth too. I lost a lot of blood during birth. All went well went on to have another baby by c-cection: I’m good babies are now young adults. Good luck Julia. You are not alone xx
Im 21 ' have the same bleeding disorder
Poor poor child. It's hard enough for women to be told they can't have kids but for parents to be told while their child is still a baby herself would be so devastating.
Poor child i hope she is living a good life by now.
Poor mother going through so much💔
Poor baby she just want to live a life😢😭
Bless Julia what a strong little girl
No one gonna talk about that the baby has ear piercings in one scene
How did I miss that THANK YOU
Gold Rose when??
It's normal for parents to pierce their babies ears
Gold Rose is that bad?
Shadow Librarian oh no its not bad i just noticed 🥰
He’s lucky he didn’t bang his head when he was paralysed!
I collapsed on May 31st 2018 after my shower,
I felt so dizzy and I collapsed,
I also banged my head on wood :(
So I went to hospital in an ambulance,
And got two days off school!
That’s pretty much it ._.
Are you OK now?
Nice Bacon Hair
Yes, thank you! Your so kind :3
Oh once I experienced the dizziness after a shower, my mum put me flat on my sofa and put my feet up. I was better in seconds
Are you OK now ??
Ayy 5:35 where my ITP spoonies at 💜 Also this must be pretty old, it's now Immune Thrombocytopenia Purpura because in most people their body does produce enough platelets but the immune system mistakes them for foreign cells so the spleen is constantly destroying them. I'm 19 and still occasionally get asked 'is everything ok at home' when people see my bruises. Really wishing the best for Julia when she gets her period because thats a struggle I can relate to
I feel horrible for you.
**Cells at work has left the groupchat**
ANONE ANONE~!!!
Finaly someone :D
The scary music does not help 😂
Dat is true😂
@@zabonieshabedja2421 so true😂
Julia's story was really so emotional. Like if u agree
Omg i watched the whole video
And actually enjoyed watching it.
My name is Julia!
Julia squad where you at!
“I was worried people were going to think I was hysterical”
*cuts to completely stiff reconstruction face*
I feel so bad for them they must be devastated and it was so sad 😭
🙁🙁😕😕🥺🥺😞😞☹️☹️😢😢
I can not imagen how is it like my body is hurting for no reason now 🤔 but i hope you never wake up to your daughter Screaming soacked in blood i will never wake up because i cant some need some one to wake
I have pain everywhere most of the time but that doesn't bothers me, so when I hear someone suddenly saying " Omg, my leg hurts... I'm scared what's happening, I'm gonna pass out ".... 😂
And then later she tells you that wasn't painful.
If he can’t control the sodium flow and he becomes paralysed the heart is a muscle right so his heart can become paralysed
The heart is indeed a muscle, but it's an involuntary one.
I'm not sure if they're only talking about voluntary muscles or all of them in the video since they showed hands closing and opening and those are absolutely voluntary muscles.
Director : the doctors needs to do also a dramatic blink
Doctor: U👄U
O👄O
When I saw the bruises I new her body was sentitive