@@DutchMelon when I was a child (around 4 years old) a psychiatrist told my mother I like to act out and just want attention. Almost 20 years later here I am with serious mental disorders I was born with. I wasnt acting
"Lazy unmotivated student" combined with Jennifer's comment at the end about not appearing "worthless" to her parents tells me EVERYTHING I need to know about those parents.
@@wombats5754 I've been dealing with depression for a while. When I was talking to my doctor I mentioned that I was really sleepy and he (just my local doctor, not an specialized endocrinologist like in this case) immediately ordered a blood test for hypothyroidism. I can't believe that symptoms as serious as hers were ignored for so long.
Some advise ive heard: If you are having a constant pain or problem and you are certain theres something wrong, but the doctors keep brushing it off as nothing and sending you home, tell the doctor that you want it noted in your records that they did no tests/took no action for this issue. A lot of the times they will then decide to do something, even if its just a small test. That small test could bring you closer to finding out what's wrong.
It took me vomiting a cup of blood for them to realise I had stomach ulcers because they blamed everything on my chronic pain syndrome! I refused to be examined by a male doctor and they just sent me home without any help!
I just went to the funeral of a work colleague who died of cancer. She went from doctor to doctor for three years before any took her seriously. By then, it was too late. Stage IV stomach cancer, easily diagnosable, treatable in the initial stages.
Yeah, women often have severe headaches and go blind during their periods 🙄 Some doctors are so useless. Good job the nurse saw her in the corridor when she did.
@@miradinoh8577 yeah, but unfortunately people with endometriosis often don't know they have it, they just think they have "painful periods" which is wrongly considered normal.
Dani Abadeister they “missed” a 16 CM (grapefruit sized) ovarian tumor and I was going to work in little kids’ GoodNites, because I’d stand up and blood would pour down the inside of my scrub pants and I’d have to go change...I worked at the hospital where the scans were being done 🤦🏻♀️
An eleven year old does not make up symptoms like Cara experienced. Some doctors are disgusting with their assumptions just because they don't understand what the patient is going thru. Her condition became so severe because other doctors ignored what was going on. A headache for that length of to time warranted a lumber puncture surely especially if other tests came back normal? And the final insult. ...was for a MALE doctor to say that it was only period pain and to just get over it because she would feel like this every month for the next 40 years. The child was dying but he told the parents to send her to school and get her back into routine. When someone is in so much pain it is evident, written on the face, seen by body language, a good doctor should be able to tell it wasn't fake.
@@NadinaStryhn you poor thing. I was getting angry watching the story unfold but I can imagine it bringing up all sorts for you. As a retired nurse and volunteer in the ambulance service you can usually tell when it's real pain.
@@nonacee5065 Thank you so much for your kind comment. I live in Denmark and we Scandinavians have some real cultural acceptance issues with pain if you are not a very young child or and old person. You are expected to just 'suck it up'. And I am also slightly overweight which is also seen as weak (due to hypothyroidism though). I have met amazing healthcare professionals (probably such as yourself) and very rude and unprofessional doctors and nurses. The bad experiences just tend to stick with you.
NadinaStryhn I’m Norwegian and have been chronically ill for many years. With awful pain through my body, I developed epilepsy, I have a lot of migraines, I lost the ability to pee (the bladder muscle doesn’t contract anymore). So at 25 yo I had to begin using a catheter. Some part of my eyelid, I can’t feel anymore, and I had a sudden happening where I couldn’t Swallow. Now I can, but food and medication gets stuck, and I need to get it up to swallow again. The doctors don’t know what’s wrong with me, and I have experienced a lot of the same things as you. Not be taken seriously. Had people tell me that it’s all “in my head”. Yes... just my head on complete shutdown then?? I’m saddened that you have experienced the same, but I’m still glad that I have some sisters (you) that KNOW how it feels. Makes me feel a little less alone in all of this..
Nona Cee I know asking for medical advise isn’t okay online, but I wish I knew what my symptoms could actually be 😳 I would never have thought my bladder would fail. Develop epilepsy.. suddenly loosing the mechanism of swallowing. It’s so frustrating that you keep getting worse and worse and nobody can help you. I’m super sad someone said OPs child is faking it or has cramps. How can a male doctor know what cramps even feels like?? Some are just narcissistic and awful. Some are great though!
It took an opthamologist to find my sisters brain tumor. She died two weeks later, malignant. Connected to the brain stem. He could see there was pressure on the back of her eyes.
Just wait till you end up with chronic pain doctors then blame everything on it and it’s really frustrating it took vomiting a cup of blood for them to realise I had stomach ulcers they blamed the pain on my pain syndrome and didn’t take any notice!
Dannii S Preach sis! My Daddy would have believed me over anyone; if the doctor said it was blue and I said it was red, my Daddy would have said “You heard her it’s red”!
Indeed. What do you believe? Your daughter you know through and through so you know when she's off her game, or a doctor who only sees her sporadically and says she's normal based off of some tests or a simple physical exam....right.... I doubt kids fake as much illness as cartoons and comedy shows make you believe. Not every kid holds the thermometer under the lamp to stay home from school and watch Netflix all day. Usually SOMETHING is going on. Even if a child DOES fake illness, SOMETHING is going on, because why would they need it?
In both cases I'm totally shocked at the length of time it took the parents to take their child to hospital! I know if my daughter was showing ANY of these symptoms I wouldn't leave the hospital until she had received a battery of tests and a bullet proof diagnosis. Totally shocked!
I had the very same thing, 2 weeks after my first baby was born. Headaches so bad wouldn't go away...everybody said it was just fatigue being a new Mom. Then I lost sight on the left side and had 2 seizures! My doc called it postpartum depression!! It was a resident in the ER who discovered my pressure was 939!! They did the decompression the next day. I still have a 2x2 inch piece of skull missing, but been in remission ever since!! LISTEN TO YOUR FAMILIES!!! ADVOCATE FOR THEM !!!
I do have diseases that I was accused of making up. I have Complex Regional Pain Syndrome, which causes pain higher than unmedicated childbirth and amputation. I'm in excruciating pain 24/7. I also have Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, Arthirits & was just diagnosed with Urethral Pain Syndrome after 4 years of having painful symptoms. I also have Hypothyroidism
i think in my country it's standard to take a blood test to rule out hypopituitarism before starting anyone on antidepressants. and honestly, that really makes sense to me. even if the test usually comes back regular, it's such a small and cheap test in contrast to treating the wrong illness.
Am I the only one who thinks Cara's mum is a little selfish? I feel like her biggest concern was no longer being a mum and having a child, rather than the fact that Cara was suffering and may die...
Exactly. When I heard that, I was like, Bruh, adopt. Yay, you're a mom again! Oh? She isn't the same? Tough luck! You were scared of not being a mom anymore, not loosing Cara.
I have psuedotumor cerebri as well. And I empathize with this young girl because I had some of the same symptoms. Specifically random blindness and a headache that lasted a month. It is a lot more serious then a lot of people think.
My sister had this issue. She stayed in her room in the dark for weeks, but luckily the issue was found quickly and she had a spinal tap to reduce the pressure. The pain was real.
For one, if Cara's pupils looked "ragged and torn" as they say, that could be posterior synechia and a thorough evaluation by an optometrist or ophthalmologist is necessary to make sure she's not having uveitis and/or pediatric glaucoma, which would cause severe pain, light sensitivity, nausea, vomiting. They would also be able to see if her optic nerve looked swollen or pale, which could indicate increased intracranial pressure. Ummm Cara's MRI looked like a Chiari malformation. Why did they not give her IM or IV medications for status migrainus and then when that didnt work, do a lumbar puncture to check for increased intracranial pressure??? As a pediatric neuro-ophthalmologist, this episode bothers me so much. 😢 Look at that, I diagnosed her within minutes. I see this all the time. EVERYONE needs to see an eye doctor, even if it's a well visit. We don't just deal with glasses and contacts.
If this pediatrician saw that her eyes pupil is ragged and torn, I don't know why on earth she didn't send this child to the opthalmologist to have it checked and if it's OK then ask for a Cat scan. I don't understand it and I can't imagine that she almost lost her sight and her life just because of some doctors' negligence. I know that doctors are normal and they make mistake but if they put their heart in their job and patients, they would surely perform better and can help people more than they expected.
I hope Cara has somehow managed to forgive her parents for not believing her. Of all persons, your mum and dad should be the ones to always support you, to trust you when you say there's something seriously wrong. Granted, some kids do make up some really fantastic stuff to get their parent's attention, but you simply cannot fake agonizing pain for an extended period of time. Also, her mother saying she could not imagine her daughter "not being able to see life anymore", damn, you don't say that as parent! If a person, and especially a child, loses eyesight, it *is* a very severe loss, and yes it *is* life-changing, but I have met a lot of people who saw little to nothing with their eyes, but a whole lot more with their remaining senses. Can you imagine being able to tell the temperature of tea by the sound it makes when it's being poured into a mug? Or to know who's approaching you by the sound of their steps? A person who loves life won't stop doing so because she or he can't do certain things any more, or has to learn to do them differently.
What a huge life lesson those parents found themselves having. To me its unfathomable to disregard your own childs excruciating pain in favour of any doctors opinion. Being an advocate for our precious children must take priority. Always turn over any and all stones or obstacles in lifestyle journey to get the correct answers. That's parenting 101. We as parents have the sole responsibility on the childrens behalf to always push hard to obtain correct diagnoses.
I also had pseudotumor cerebri and experienced everything this girl did and more! I also had doctors dismiss it as stress or just migraines. Was very frustrating, painful, and stressful!
Cara's story had me crying. I went through the self same thing in 2012 when I woke up with pain in my left foot. I went to work that day in the nursery I was working at and could feel my foot swelling more & more. I saw my GP who said I had Tendinitis and ordered me to rest. By the Monday it wasn't any better so I took myself to A&E instead of going to college. Again told I had tendinitis and put onto crutches. Few weeks passed and I had no change so was sent to a Orthopaedic doctor who at first treated me for a hairline fracture but after multiple shoe casts, a full cast and being in so much pain touch affected it so much and nd the Allodynia had set in. I was put through 50+ x rays, blood tests physical examinations and then told because I'd told about my past of attempting suicide in October 2011 that I was making all my symptoms up for attention. I was eventually referred to the pain management doctor who I am still seeing and I had more blood tests, more x-rays, 2 MRI scans, 3 phase bone scan where you're injected with radioactive dye and scanned for hours, I had nerve conduction studys and then in Feb 2013 I was officially diagnosed with Complex Regional Pain Syndrome, the most painful disease KNOWN to man. Rated 54 on the Mcgill Pain Scale. Now I'm 24 years old and the CRPS has spread from my left foot, into my leg, whole back after having 2 spinal cord stimulator surgeries, left shoulder blade, left arm & hand plus internally in my heart and bladder. I also have Hypothyroidism, Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, Arthirits, Urethral Pain Syndrome, Severe anxiety which prevents me from leaving the house alone and have depression. I am in a wheelchair and will be for the rest of my life. It's absolutely horrible when you know there is something wrong with you yet a doctor tells you that you're lying and just looking for attention when in fact you're in so much pain you want to end everything because of the pain. I'm on 14 different prescription medications now 2 being pain killers, 1 that is stronger than morphine and I'm still in excruciating pain daily.
When I first started the episode I was like “I bet that second girl has the same thing as me” And lo and behold... pseudotumor! It’s so bizarre to see such an extreme case of the thing I have. This makes me want to be a million times more careful about it
I've heard soooooo many times I was making my illness up, now 9 years after my first onset of symptoms I have 6 phisycal diagnoses including some rare ones... It's sad that doctors still think far to often something is made up or psychological...
It must have been terrible for Jennifer she knew she was ill and everybody telling her she wasn't ill have been really upsetting and very worrying for.
I had to do the same before I was finally sent to the correct doctor in 2012 after my symptoms starting in April 2012. I was officially diagnosed with Complex Regional Pain Syndrome Type 2 with severe nerve damage in February 2013 after having gone through multiple doctors, I was 17 and accused of attention seeking despite clear signs of inflammation in my blood tests. I now also have POTS, IST, Arthiritis, Hypothyroidism & Urethral Pain Syndrome in 24
Doctors can't know everything. Still if you are: female, fat, chronicly ill, disabled in another way, POC Or even more then one of these Its very hard to find a diagnosis as doctors are very bias
It’s more common than you would think, even for conditions that are not so exceptionally rare as some of those profiled on this show. Some like ankylosing spondylitis take an average of around 10 years to diagnose.
Am wondering why the MRI (for girl with the headaches) didn't show the extra fluid that must have been present increasing the pressure in the brain, as it does with similar conditions (which also need drainage shunts) such as hydrocephalus. . .
Mri surely shows fluid. As much as it shows solids. The reason is that with PTC you dont have excess fluid to a degree that would show on an mri scan. It's more a problem with pressure being elavated than fluid taking space ( as is the case with hydrocephalus) so the mri is almost always normal with PTC.
I'm so glad that I know I'll be the type of parent to believe my children of they are every actually ill. I know kids do pretend to be sick too miss school (I used to be one of them lol) but generally they'd fake something trivial such as throwing up, a small headache, a fever or other trivial things that go away once school is over. If something though is incapacitating then, causing them lots of pain or drastically changing their behavior then best believe will be going to Dr after Dr and won't give up till I get answers.
There are so many rare illnesses that are misdiagnosed. I had a friend with Elos Danlos Syndrome, don't know if I spelled that right. It is so rare that it took years of doctors saying she was faking before she was able to see a geneticist and get diagnosed. It's a genetic connective tissue disorder that makes your joints, organs, skin and dang near everything else loose and stretchy. It comes with tons of complications and is often fatal. My friend died from one of these complications.
@@mononykus8012 It was a gut punch when I first heard. She had just married, and bought a house, and she seemed to do better. Her death was sudden. I haven't had the stomach to watch any other chronic illness channels yet.
@@rachelmartin3631 its heartbreaking to lose someone, I hope you are processing such an impacting event okay. I don't know how much a rando's words on the internet will help but I genuinely wish for your happiness and support you and the memory of your friend 💜
"Just a migraine" really made me want to fly off the handle. Anyone who says migraines are no reason to stay home/miss school or take it easy: You need to experience one yourself! I personally wouldn't wish migraines upon my worst enemy. I get them at least once a month and let me tell you, if I could just make them go away I would. Hands down. Right now.
I had pseudotumor cerebri (now called idiopathic intracranial hypertension) at 22. I had several lumbar punctures and they talked about optic nerve fenestration and/or a VP shunt but didn’t treat it aggressively enough. Now I have permanent damage...
Hearing that the one girl had pseudo-tumor cerebri threw me for a loop cause I actually had that just last year! Not as bad as hers of course, but I did have to have 2 lumbar punctures and I'm still on medication for it
I was diagnosed with intracranial hypertension or pseudo tumour cerebri.... and I can imagine the unbearable headaches... fortunately I was told to stay in a tilted sleeping position with legs elevated at a higher position than the body for atleat a month as most of the fluid leakage stops on 90% of the patients.. And I was the lucky one as it was cured without any treatments.
I had Jennifer’s condition caused by pituitary adenoma. I remember feeling tired all the time falling asleep at 8pm. Sometimes feel dizzy after climbing stairs or getting out of car. Mine was not as extreme as Jennifer, but I remember doctor saying “how did you live this far?” 😊. It was total my ignorance, in Jennifer’s case a TSH test would reveal the problem.
Dr yeah maybe she's just being dramatic wow he's rude! She has SEVERE HEADACHES GETS DIZY like no.its not that bad nobodies headaches are that bad before there period! There was something obviously wrong that Dr literally didn't care and loses her sight in the middle of the hall!!!!!!!
Now i never had horrible migraine during periods, but i have awful pain and often i feel like im about to faint. I often end up laying in bed for 3-4 days during my cycle because thats the most I can do. even sitting is difficult and painful during those days. hard to believe doc would say its not an excuse.
This seems to be a common problem of male doctors not taking female patients seriously. I had the same issue, I was in pain for several months, kept going back to the same doctor only for him to do the exact same useless tests he’d done previously and had more heartburn medication thrown at me and told to stop eating unhealthy foods(when I already follow a strict AIP paleo diet). I ended up going to a different doctor who finally listened and was diagnosed with severe gallbladder disease. Doctors need to listen to their patients, yes I do not have the education that you do BUT I live in my body 24/7 and I know when something isn’t right.
The second case was hard to watch because the mother was not believing her daughter - the mother seemed selfish as she was worried about not being a mother anymore, instead of worrying about the well-being of the child... Sad to watch so glad that the girl´s guardian angels sent that adorable doctor on her way to save her life and her vision... PS. those bangs needed professional cutting!
PHOTOSENSITIVE EPILEPSY SEIZURE WARNING ⚠️ skip 4:35 to 5:00 There's other flicker scenes in first Story be cautious. This part caused me epileptic focal seizure :(
The parents of the 11 year old should be very ashamed of themselves. How could they not believe their own daughter!? As a mother I find that disgusting, if anything ever happened to my little boy I would believe him.
I was watching Cara's story and thinking this is Idiopathic Intracranial Hypertension, this is Idiopathic intracranial Hypertension, this is Idiopathic intracranial hypertension... if it isn't im a monkey's uncle... and it was IIH!! This story was me, only mine started age 6 it is a huge problem in medicine that very few doctors know about this condition and what most do know about it is so wrong its unreal! It took 10 years to get a diagnosis then they spent the next 17 years trying to UN DIAGNOSE me!! I was so sick I couldn't take matters into my own hands until I had ended up back in A&E and once again been told I was fine and making it all up (despite high pressure on lumbar puncture) I then took my self to a private neurologist who agreed i had high pressure and needed a shunt, I then took his report directly to NHS neurosurgeons, still took 3 but the 3rd one said yes no problem, initially made the wrong choice of having a shunt in the spine like this lady did, it was over draining too much for me, sadly took another two years to get a shunt in the brain, which works perfectly!! I am pain free for the first time in my life. This condition need so much more teaching to medical staff, they are missing and denying it's existence constantly and leaving many thousands of people in pain when this condition could explain their symptoms. Just because it wont fit in a box for the doctors (such as I was not over weight when it started for me so they can't blame weight) they hate this condition and don't want to know about it. Makes me so angry. I lost 30 years to ignorant doctors.
I ones had a headache for a year. Constand. Sometimes it was worse sometimes it was less but it was always there. Got tests done nothing was wrong. After a year it just stopped. I woke up and it was gone. Couldn't belief it. It was sometimes so bad breathing hurt my head. Now it was just gone. Still sometimes have headaches but never longer then 2 months at a time
I have severe IBS with ulcers and a lot of inflammation. I have colonoscopies every year. Since I was a kid, I was complaining of severe diarrhea and stomach pain. They just told my parents I was lactose intolerant. Of course cutting out lactose didn’t help much... Now Im diagnosed, and my doctor was wondering why I wasn’t diagnosed earlier.
Ulcers and inflammation are NOT symptoms of IBS! I'm sorry but if that's what your doctors are saying they could be mistaken. A more fitting diagnose with those symptoms might be ulcerative colitis which is a far more serious disease. Please get this checked with another doctor!
The DOCTORS themselves should get a diagnosis with LAZINESS When they can't find out what is wrong, they just simply say nothing is wrong ....... cuz, unfortunately, they are not the one suffering the consequences .... but Karma will get them
Sometimes ppl can hear when they are unconscious just like some ppl in a coma that can still hear what ppl are saying around them but yet they can’t open their eyes talk move or do anything most ppl can do
so for 2 years she keeps passing out and is constantly tired and has stroke like symptoms and she doesnt try to find out whats wrong??? how why what lmao i’d go to the doctor if i even passed out once
Honestly, she was probably too exhausted to try and figure out what was wrong with her. I blame the parents for assuming she'd just gotten lazy instead of fighting for their clearly sick daughter.
the title says "season 3 episode 1" but i think it is "season 6 episode 3" 14:13 doctors and my parents say i should get into a routine but i dont think it was helpful (for ME/CFS)
I have lived with chronic migraines for the past 37 years I’m 46, they are a daily event, I’ve tried everything, I’ve been though 4 neurologists and no one can tell me why I get them only that I’m going to have them the rest of my life
i had pseudotumour too and it was a lot of people thinking i was faking it cause i didn't want to go to school so i can relate! it was terrible. these doctors are horrible for excusing her pain because of her period. shame on them
I only found out My mom thought that I'm mental after my gallbladder surgery. Thanks to my mom of insisted that pain isn't normal and that I should go and see a doctor and she got her MD from Google lol
@@Surdeigt rushed to the er twice but every time I reached there he pain stop and I return to normal.... so I assume it's nothing serious since I've always had a weak stomach and the gallbladder pain I thought its just stomach ache.
By the 3rd time I had that sharp pain.... I thought its normal. But I guess my mom, motherly instincts kick in....lol. I would throw up every thing every time I eat.....
@@Surdeigt it supposed to be a 30mins surgery but for me its 3hr surgery the surgeon said that he'd never seen such a serious case of inflammation of the gallbladder especially for a young person such as myself... funny thing is that it's hereditary in my family... my grandad died cause his gall exploded. Mine tripled it's sized. They can't see the seriousness of it since it's behind my liver....
@@tgrice601 second case is negligence.. i'm a pediatrician. For every headache an eye examination looking for signs of increased intracranial pressure is a must.. i live in israel. Snd here 95% of the "mystery diagnosis" cases would've been diagnosed by any doctor
Change your doctor if he's telling you "nothing is wrong with you" There is a big difference between "nothing is wrong with you" and "I can't find what is wrong with you" Obviously something is wrong with her..
I don't normally comment on TH-cam videos, but as soon as that doctor looked into Cara's eyes and had expressed concern that she had brain tumour then her MRI came back completely normal, I immediately knew what she had thanks to myself being told the same thing in my eye doctor's office when I was having a regular eye exam (However I knew it as IIH, or idiopathic intracranial hypertension). I remember looking up the symptoms and everything and then getting checked out. Only thing is, I didn't have a brain tumour OR IIH/PTC. I was just born with optic nerves that come into my eyes at a sharp angle, making them appear to be swollen (also giving me a severe case of short-sightedness). You can tell the difference by the fact that you could observe my pulse in my eye. If you were to look at someone who had IIH/PTC, you would not be able to see this. Honestly it led me to believe I actually did have IIH/PTC before being thoroughly checked out thanks to me having some mild symptoms of it when in reality my symptoms are common for visual snow syndrome (which I do have). I was just hoping I could actually get my hands on a diagnosis that could be treatable, I guess.
It's terrible indeed when doctors don't believe patients, but it is a crime against humanity for parents not to believe their children.
Oh my mother does not believe my pain
@@DutchMelon wat pain u ahv???
@@DutchMelon when I was a child (around 4 years old) a psychiatrist told my mother I like to act out and just want attention. Almost 20 years later here I am with serious mental disorders I was born with. I wasnt acting
The parents believed her! what are you talking about ?
"Lazy unmotivated student" combined with Jennifer's comment at the end about not appearing "worthless" to her parents tells me EVERYTHING I need to know about those parents.
Yes that annoyed me too she suffered a lot.
Piggy Sister I just posted my own tirade, having very a similar condition as her.
It just stymied me that the idiot parents didn’t freak out and demand answers. How do you not figure out that something physical was at play?!?
@@wombats5754 I've been dealing with depression for a while. When I was talking to my doctor I mentioned that I was really sleepy and he (just my local doctor, not an specialized endocrinologist like in this case) immediately ordered a blood test for hypothyroidism. I can't believe that symptoms as serious as hers were ignored for so long.
Right? That's EXACTLY what I thought.
Some advise ive heard:
If you are having a constant pain or problem and you are certain theres something wrong, but the doctors keep brushing it off as nothing and sending you home, tell the doctor that you want it noted in your records that they did no tests/took no action for this issue. A lot of the times they will then decide to do something, even if its just a small test. That small test could bring you closer to finding out what's wrong.
thememaster44 yes this is exactly the case!
It took me vomiting a cup of blood for them to realise I had stomach ulcers because they blamed everything on my chronic pain syndrome! I refused to be examined by a male doctor and they just sent me home without any help!
I just went to the funeral of a work colleague who died of cancer. She went from doctor to doctor for three years before any took her seriously. By then, it was too late. Stage IV stomach cancer, easily diagnosable, treatable in the initial stages.
I really want to like your comment but I don't want to ruin the 69 likes, so have this sparkling heart instead 💖
And in these cases, it is the parent or guardian's responsibility to not be fobbed off
Yeah, women often have severe headaches and go blind during their periods 🙄 Some doctors are so useless. Good job the nurse saw her in the corridor when she did.
i am not sure, but i think it is normal to have headaches during periods...
Dominic Lee yeah but not that extreme
@@dianag0rdon I never had headaches during my periods.
@@SuperMarbelle you might been one of those women who was blessed without those terrible excuriating headaches
There are so much to the human body, that's why there are specialist. Doctors are constantly discovering and learning new things about the body.
"having a painful period is no excuse to stay home from school"
EXCUSE ME!? It sure is, mister Dr in something that's definitely not tact nor empathy.
Specially girls with endometriosis
@@miradinoh8577 yeah, but unfortunately people with endometriosis often don't know they have it, they just think they have "painful periods" which is wrongly considered normal.
The doctors need to experience period’s pain lol
@@winnyzhang2596 yasss
Dani Abadeister they “missed” a 16 CM (grapefruit sized) ovarian tumor and I was going to work in little kids’ GoodNites, because I’d stand up and blood would pour down the inside of my scrub pants and I’d have to go change...I worked at the hospital where the scans were being done 🤦🏻♀️
An eleven year old does not make up symptoms like Cara experienced. Some doctors are disgusting with their assumptions just because they don't understand what the patient is going thru.
Her condition became so severe because other doctors ignored what was going on. A headache for that length of to time warranted a lumber puncture surely especially if other tests came back normal? And the final insult. ...was for a MALE doctor to say that it was only period pain and to just get over it because she would feel like this every month for the next 40 years. The child was dying but he told the parents to send her to school and get her back into routine.
When someone is in so much pain it is evident, written on the face, seen by body language, a good doctor should be able to tell it wasn't fake.
I have PTC as well. One doctor also told me, that I was just imagining it.
@@NadinaStryhn you poor thing. I was getting angry watching the story unfold but I can imagine it bringing up all sorts for you. As a retired nurse and volunteer in the ambulance service you can usually tell when it's real pain.
@@nonacee5065 Thank you so much for your kind comment. I live in Denmark and we Scandinavians have some real cultural acceptance issues with pain if you are not a very young child or and old person. You are expected to just 'suck it up'. And I am also slightly overweight which is also seen as weak (due to hypothyroidism though). I have met amazing healthcare professionals (probably such as yourself) and very rude and unprofessional doctors and nurses. The bad experiences just tend to stick with you.
NadinaStryhn I’m Norwegian and have been chronically ill for many years. With awful pain through my body, I developed epilepsy, I have a lot of migraines, I lost the ability to pee (the bladder muscle doesn’t contract anymore). So at 25 yo I had to begin using a catheter. Some part of my eyelid, I can’t feel anymore, and I had a sudden happening where I couldn’t Swallow. Now I can, but food and medication gets stuck, and I need to get it up to swallow again. The doctors don’t know what’s wrong with me, and I have experienced a lot of the same things as you. Not be taken seriously. Had people tell me that it’s all “in my head”. Yes... just my head on complete shutdown then?? I’m saddened that you have experienced the same, but I’m still glad that I have some sisters (you) that KNOW how it feels. Makes me feel a little less alone in all of this..
Nona Cee I know asking for medical advise isn’t okay online, but I wish I knew what my symptoms could actually be 😳 I would never have thought my bladder would fail. Develop epilepsy.. suddenly loosing the mechanism of swallowing. It’s so frustrating that you keep getting worse and worse and nobody can help you. I’m super sad someone said OPs child is faking it or has cramps. How can a male doctor know what cramps even feels like?? Some are just narcissistic and awful. Some are great though!
"Lazy unmotivated student" as a person with ADHD this hit me hard
Same :(
KnightElm 10125 same.
Hurts man
Honestly same.
KnightElm 10125 hard 😏😏😏
It's disgusting that it took an ophthalmologist seeing burst blood vessels for doctors to take her pain seriously. 😢
It took an opthamologist to find my sisters brain tumor. She died two weeks later, malignant. Connected to the brain stem. He could see there was pressure on the back of her eyes.
Just wait till you end up with chronic pain doctors then blame everything on it and it’s really frustrating it took vomiting a cup of blood for them to realise I had stomach ulcers they blamed the pain on my pain syndrome and didn’t take any notice!
@@kosmos1957 😭💔
"Do you believe the doctor or your child".......You believe your child dad
Dannii Stoyles you know when your kid had something bad
my parents didnt believe me when i said i had ME/CFS.
Dannii S Preach sis! My Daddy would have believed me over anyone; if the doctor said it was blue and I said it was red, my Daddy would have said “You heard her it’s red”!
Indeed. What do you believe? Your daughter you know through and through so you know when she's off her game, or a doctor who only sees her sporadically and says she's normal based off of some tests or a simple physical exam....right.... I doubt kids fake as much illness as cartoons and comedy shows make you believe. Not every kid holds the thermometer under the lamp to stay home from school and watch Netflix all day. Usually SOMETHING is going on. Even if a child DOES fake illness, SOMETHING is going on, because why would they need it?
In both cases I'm totally shocked at the length of time it took the parents to take their child to hospital! I know if my daughter was showing ANY of these symptoms I wouldn't leave the hospital until she had received a battery of tests and a bullet proof diagnosis.
Totally shocked!
I know! Letting a headache go a week before seeking assistance!
Back in the days people didn't care of their kids wellbeing that much
@@magdam8290no? You’re weird
No, because headaches doesn’t usually mean emergency to most people
@@mattybrunolucaszeneresalas9072persistent, unremitting headache is never acceptable
I had the very same thing, 2 weeks after my first baby was born. Headaches so bad wouldn't go away...everybody said it was just fatigue being a new Mom. Then I lost sight on the left side and had 2 seizures! My doc called it postpartum depression!! It was a resident in the ER who discovered my pressure was 939!! They did the decompression the next day. I still have a 2x2 inch piece of skull missing, but been in remission ever since!!
LISTEN TO YOUR FAMILIES!!! ADVOCATE FOR THEM !!!
I always watch these and then get really paranoid that I have some weird condition/disease
Sylvie Moore same
I'm a med student. And there is an official thing " 3rd year syndrome". When you know just enough to diagnose yourself with some bad diseases.
I do the same when I watch 'monsters inside me' lol
I do have diseases that I was accused of making up. I have Complex Regional Pain Syndrome, which causes pain higher than unmedicated childbirth and amputation. I'm in excruciating pain 24/7. I also have Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, Arthirits & was just diagnosed with Urethral Pain Syndrome after 4 years of having painful symptoms. I also have Hypothyroidism
Tara Chalmers man that sucks
i think in my country it's standard to take a blood test to rule out hypopituitarism before starting anyone on antidepressants. and honestly, that really makes sense to me. even if the test usually comes back regular, it's such a small and cheap test in contrast to treating the wrong illness.
Well, that's what happens in the USA and Canada. So that's probably the standard thing.
ikr! i was shocked on how in so many years doctors have never thought in hypopituitarism since is not a weird disease at all, terrible system
I hate both parents on both cases.
Dude why so much doubt and lack of tact? Poor girls.
Am I the only one who thinks Cara's mum is a little selfish? I feel like her biggest concern was no longer being a mum and having a child, rather than the fact that Cara was suffering and may die...
Exactly. When I heard that, I was like,
Bruh, adopt. Yay, you're a mom again! Oh? She isn't the same? Tough luck! You were scared of not being a mom anymore, not loosing Cara.
Yup thought the same thing and also they didn’t believer her
You're not the only one. I was fuming mad
I felt the same. Couldn't stand the mother!
Yeah, she sounded extremely conservative.
It wasn't caught faster because you didn't believe her.
I have psuedotumor cerebri as well. And I empathize with this young girl because I had some of the same symptoms. Specifically random blindness and a headache that lasted a month. It is a lot more serious then a lot of people think.
My sister had this issue. She stayed in her room in the dark for weeks, but luckily the issue was found quickly and she had a spinal tap to reduce the pressure. The pain was real.
I hate how not supportive her parents are, it’s crazy
For one, if Cara's pupils looked "ragged and torn" as they say, that could be posterior synechia and a thorough evaluation by an optometrist or ophthalmologist is necessary to make sure she's not having uveitis and/or pediatric glaucoma, which would cause severe pain, light sensitivity, nausea, vomiting. They would also be able to see if her optic nerve looked swollen or pale, which could indicate increased intracranial pressure.
Ummm Cara's MRI looked like a Chiari malformation. Why did they not give her IM or IV medications for status migrainus and then when that didnt work, do a lumbar puncture to check for increased intracranial pressure??? As a pediatric neuro-ophthalmologist, this episode bothers me so much. 😢
Look at that, I diagnosed her within minutes. I see this all the time. EVERYONE needs to see an eye doctor, even if it's a well visit. We don't just deal with glasses and contacts.
If this pediatrician saw that her eyes pupil is ragged and torn, I don't know why on earth she didn't send this child to the opthalmologist to have it checked and if it's OK then ask for a Cat scan. I don't understand it and I can't imagine that she almost lost her sight and her life just because of some doctors' negligence. I know that doctors are normal and they make mistake but if they put their heart in their job and patients, they would surely perform better and can help people more than they expected.
You're amazing!
As much as i love these series, I dread them at the same time because of THOSE BLOODY EYES.
Please... they add ✨️drama ✨️ (jk 🤪)
Sad how Jennifer didn't have a quality life for so long.
Why
@@onslaabidi5254 5 years with those symptoms is pretty intense
Thank you for this comment
I hope Cara has somehow managed to forgive her parents for not believing her. Of all persons, your mum and dad should be the ones to always support you, to trust you when you say there's something seriously wrong. Granted, some kids do make up some really fantastic stuff to get their parent's attention, but you simply cannot fake agonizing pain for an extended period of time. Also, her mother saying she could not imagine her daughter "not being able to see life anymore", damn, you don't say that as parent! If a person, and especially a child, loses eyesight, it *is* a very severe loss, and yes it *is* life-changing, but I have met a lot of people who saw little to nothing with their eyes, but a whole lot more with their remaining senses. Can you imagine being able to tell the temperature of tea by the sound it makes when it's being poured into a mug? Or to know who's approaching you by the sound of their steps? A person who loves life won't stop doing so because she or he can't do certain things any more, or has to learn to do them differently.
What a huge life lesson those parents found themselves having. To me its unfathomable to disregard your own childs excruciating pain in favour of any doctors opinion. Being an advocate for our precious children must take priority. Always turn over any and all stones or obstacles in lifestyle journey to get the correct answers. That's parenting 101. We as parents have the sole responsibility on the childrens behalf to always push hard to obtain correct diagnoses.
Exactly!
I also had pseudotumor cerebri and experienced everything this girl did and more! I also had doctors dismiss it as stress or just migraines. Was very frustrating, painful, and stressful!
Why did the narrator feel it necessary to say "their only daughter" every other sentence?
I'mjust_ Lolo if your too dumb to know then how do you think we know
@@the486kgman2
Your comment was mean and unnecessary. Grow up.
Jude Lewis YOUR THE IDIOT WHOSE UNNECESSARY, YOU CANT JUST TELL A FAT GUY TO GET EVEN FATTER YOU INSTANT FAT FETTISHIST THAT LIKES YOUR OWN COMMENT
I'm not sure, he probably doesn't plan this. But I don't really pay attention to those. This series is indeed cool
@@the486kgman2
,,, you're
Cara's story had me crying. I went through the self same thing in 2012 when I woke up with pain in my left foot. I went to work that day in the nursery I was working at and could feel my foot swelling more & more. I saw my GP who said I had Tendinitis and ordered me to rest. By the Monday it wasn't any better so I took myself to A&E instead of going to college. Again told I had tendinitis and put onto crutches. Few weeks passed and I had no change so was sent to a Orthopaedic doctor who at first treated me for a hairline fracture but after multiple shoe casts, a full cast and being in so much pain touch affected it so much and nd the Allodynia had set in. I was put through 50+ x rays, blood tests physical examinations and then told because I'd told about my past of attempting suicide in October 2011 that I was making all my symptoms up for attention. I was eventually referred to the pain management doctor who I am still seeing and I had more blood tests, more x-rays, 2 MRI scans, 3 phase bone scan where you're injected with radioactive dye and scanned for hours, I had nerve conduction studys and then in Feb 2013 I was officially diagnosed with Complex Regional Pain Syndrome, the most painful disease KNOWN to man. Rated 54 on the Mcgill Pain Scale. Now I'm 24 years old and the CRPS has spread from my left foot, into my leg, whole back after having 2 spinal cord stimulator surgeries, left shoulder blade, left arm & hand plus internally in my heart and bladder. I also have Hypothyroidism, Postural Orthostatic Tachycardia Syndrome, Inappropriate Sinus Tachycardia, Arthirits, Urethral Pain Syndrome, Severe anxiety which prevents me from leaving the house alone and have depression. I am in a wheelchair and will be for the rest of my life. It's absolutely horrible when you know there is something wrong with you yet a doctor tells you that you're lying and just looking for attention when in fact you're in so much pain you want to end everything because of the pain. I'm on 14 different prescription medications now 2 being pain killers, 1 that is stronger than morphine and I'm still in excruciating pain daily.
May G-d help you, dear Tara!
Idk if it will help you personaly, but maybe Amputation is a thing you could look in to? It seems to help other sufferers
I’ve heard of CRPS being treated with amputation so I would keep that on the table as a treatment option
I have fibromyalgia so I relate to what you are going through to some degree
Tara Chalmers what caused you to have all of that?
If I'm a doctor I'm gonna specialize in rare conditions because ppl need help,so I'll listen
Cassandra Delaney we need people like you
Lilly Bell you should we need people like you in the world 🌍
How can you not believe your child in this situation....??
If i was cara that would be a big problem for me....
Yeah. I would never forgive my parents
When I first started the episode I was like “I bet that second girl has the same thing as me” And lo and behold... pseudotumor! It’s so bizarre to see such an extreme case of the thing I have. This makes me want to be a million times more careful about it
I have hydrocephalus which is also too much CSF and before I had my shunt put in, I cannot even explain in words how bad the headaches were
Same here! I had hydrocephalus when I was born and I was given a VP shunt when I was 2 weeks old. I still have the same shunt.
Cara has such a BEAUTIFUL hair color!
It makes me so angry when some one knows something is really wrong, and get brushed off by doctors!
I've heard soooooo many times I was making my illness up, now 9 years after my first onset of symptoms I have 6 phisycal diagnoses including some rare ones...
It's sad that doctors still think far to often something is made up or psychological...
i have 3 medical conditions my doctors thought it was in my head i feel for the girl (the first story)
I have an illness that I've suffered with since I was about 15...I'm not 34 & it's not been properly addressed or diagnosed to this day.
It must have been terrible for Jennifer she knew she was ill and everybody telling her she wasn't ill have been really upsetting and very worrying for.
Cara you're a real hero
I cant belive these people need to go to mulitiple doctors and other professionals to find out whats wrong with them
I had to do the same before I was finally sent to the correct doctor in 2012 after my symptoms starting in April 2012. I was officially diagnosed with Complex Regional Pain Syndrome Type 2 with severe nerve damage in February 2013 after having gone through multiple doctors, I was 17 and accused of attention seeking despite clear signs of inflammation in my blood tests. I now also have POTS, IST, Arthiritis, Hypothyroidism & Urethral Pain Syndrome in 24
Doctors can't know everything.
Still if you are: female, fat, chronicly ill, disabled in another way, POC
Or even more then one of these
Its very hard to find a diagnosis as doctors are very bias
It’s more common than you would think, even for conditions that are not so exceptionally rare as some of those profiled on this show. Some like ankylosing spondylitis take an average of around 10 years to diagnose.
Am wondering why the MRI (for girl with the headaches) didn't show the extra fluid that must have been present increasing the pressure in the brain, as it does with similar conditions (which also need drainage shunts) such as hydrocephalus. . .
leece _ ad As a hydrocephalus sufferer myself, I was wondering why they didn’t just put the shunt in to begin with 🙄
MRI's don't show the fluid, they only show solids.
Mri surely shows fluid. As much as it shows solids. The reason is that with PTC you dont have excess fluid to a degree that would show on an mri scan. It's more a problem with pressure being elavated than fluid taking space ( as is the case with hydrocephalus) so the mri is almost always normal with PTC.
“lazy and unmotivated student”
thats how people describe me
Lauritonas lol that’s me I sleep from 12-24 hours at s time
Lauritonas How about lazy and unmotivated doctors.?
i'm not a student anymore but I have ME/CFS and sleep problems.
The blinking 🤣
I know right 😂
It’s so dramatic like bruh
I'm so glad that I know I'll be the type of parent to believe my children of they are every actually ill. I know kids do pretend to be sick too miss school (I used to be one of them lol) but generally they'd fake something trivial such as throwing up, a small headache, a fever or other trivial things that go away once school is over. If something though is incapacitating then, causing them lots of pain or drastically changing their behavior then best believe will be going to Dr after Dr and won't give up till I get answers.
Hypopituarism is absolutely life altering and can be life threatening.
There are so many rare illnesses that are misdiagnosed. I had a friend with Elos Danlos Syndrome, don't know if I spelled that right. It is so rare that it took years of doctors saying she was faking before she was able to see a geneticist and get diagnosed. It's a genetic connective tissue disorder that makes your joints, organs, skin and dang near everything else loose and stretchy. It comes with tons of complications and is often fatal. My friend died from one of these complications.
Ehlers-Danlos Syndrome.
I'm so sorry to hear that, how have you been doing? Luckily awareness of this condition is increasing jn the medical field in the recent years
@@mononykus8012 It was a gut punch when I first heard. She had just married, and bought a house, and she seemed to do better. Her death was sudden. I haven't had the stomach to watch any other chronic illness channels yet.
@@rachelmartin3631 its heartbreaking to lose someone, I hope you are processing such an impacting event okay. I don't know how much a rando's words on the internet will help but I genuinely wish for your happiness and support you and the memory of your friend 💜
@@mononykus8012 Thank you.
I love these videos!
"Just a migraine" really made me want to fly off the handle. Anyone who says migraines are no reason to stay home/miss school or take it easy: You need to experience one yourself! I personally wouldn't wish migraines upon my worst enemy. I get them at least once a month and let me tell you, if I could just make them go away I would. Hands down. Right now.
What incredibly strong people they both are! Also, very randomly... Cara's hair is an absolute dream 😍
I had pseudotumor cerebri (now called idiopathic intracranial hypertension) at 22. I had several lumbar punctures and they talked about optic nerve fenestration and/or a VP shunt but didn’t treat it aggressively enough. Now I have permanent damage...
Hearing that the one girl had pseudo-tumor cerebri threw me for a loop cause I actually had that just last year! Not as bad as hers of course, but I did have to have 2 lumbar punctures and I'm still on medication for it
I was diagnosed with intracranial hypertension or pseudo tumour cerebri.... and I can imagine the unbearable headaches... fortunately I was told to stay in a tilted sleeping position with legs elevated at a higher position than the body for atleat a month as most of the fluid leakage stops on 90% of the patients.. And I was the lucky one as it was cured without any treatments.
All I want to do is sleep as well but my mom call me lazy🤣.
I had Jennifer’s condition caused by pituitary adenoma. I remember feeling tired all the time falling asleep at 8pm. Sometimes feel dizzy after climbing stairs or getting out of car. Mine was not as extreme as Jennifer, but I remember doctor saying “how did you live this far?” 😊. It was total my ignorance, in Jennifer’s case a TSH test would reveal the problem.
Parents MUST be made aware and observe if Something about their child is NOT normal or the way it usually is!
Dr yeah maybe she's just being dramatic wow he's rude! She has SEVERE HEADACHES GETS DIZY like no.its not that bad nobodies headaches are that bad before there period! There was something obviously wrong that Dr literally didn't care and loses her sight in the middle of the hall!!!!!!!
Jennifer has gorgeous eyes n hair
Now i never had horrible migraine during periods, but i have awful pain and often i feel like im about to faint. I often end up laying in bed for 3-4 days during my cycle because thats the most I can do. even sitting is difficult and painful during those days. hard to believe doc would say its not an excuse.
This seems to be a common problem of male doctors not taking female patients seriously. I had the same issue, I was in pain for several months, kept going back to the same doctor only for him to do the exact same useless tests he’d done previously and had more heartburn medication thrown at me and told to stop eating unhealthy foods(when I already follow a strict AIP paleo diet). I ended up going to a different doctor who finally listened and was diagnosed with severe gallbladder disease. Doctors need to listen to their patients, yes I do not have the education that you do BUT I live in my body 24/7 and I know when something isn’t right.
They came up with the phase 'strange constellation of symptoms' and decided to use it as often as possible.
The second case was hard to watch because the mother was not believing her daughter - the mother seemed selfish as she was worried about not being a mother anymore, instead of worrying about the well-being of the child... Sad to watch so glad that the girl´s guardian angels sent that adorable doctor on her way to save her life and her vision... PS. those bangs needed professional cutting!
Umm if she worrying about not being a mother that would mean she’s worried about losing her child like seriously
PHOTOSENSITIVE EPILEPSY SEIZURE WARNING ⚠️
skip 4:35 to 5:00
There's other flicker scenes in first Story be cautious.
This part caused me epileptic focal seizure :(
?
I feel so bad for Cara 💔 Nobody believed her 😭 What is wrong with her parents!
The parents of the 11 year old should be very ashamed of themselves. How could they not believe their own daughter!?
As a mother I find that disgusting, if anything ever happened to my little boy I would believe him.
I was watching Cara's story and thinking this is Idiopathic Intracranial Hypertension, this is Idiopathic intracranial Hypertension, this is Idiopathic intracranial hypertension... if it isn't im a monkey's uncle... and it was IIH!! This story was me, only mine started age 6 it is a huge problem in medicine that very few doctors know about this condition and what most do know about it is so wrong its unreal! It took 10 years to get a diagnosis then they spent the next 17 years trying to UN DIAGNOSE me!! I was so sick I couldn't take matters into my own hands until I had ended up back in A&E and once again been told I was fine and making it all up (despite high pressure on lumbar puncture) I then took my self to a private neurologist who agreed i had high pressure and needed a shunt, I then took his report directly to NHS neurosurgeons, still took 3 but the 3rd one said yes no problem, initially made the wrong choice of having a shunt in the spine like this lady did, it was over draining too much for me, sadly took another two years to get a shunt in the brain, which works perfectly!! I am pain free for the first time in my life. This condition need so much more teaching to medical staff, they are missing and denying it's existence constantly and leaving many thousands of people in pain when this condition could explain their symptoms. Just because it wont fit in a box for the doctors (such as I was not over weight when it started for me so they can't blame weight) they hate this condition and don't want to know about it. Makes me so angry. I lost 30 years to ignorant doctors.
I ones had a headache for a year. Constand. Sometimes it was worse sometimes it was less but it was always there.
Got tests done nothing was wrong.
After a year it just stopped. I woke up and it was gone.
Couldn't belief it. It was sometimes so bad breathing hurt my head. Now it was just gone.
Still sometimes have headaches but never longer then 2 months at a time
I have severe IBS with ulcers and a lot of inflammation. I have colonoscopies every year.
Since I was a kid, I was complaining of severe diarrhea and stomach pain. They just told my parents I was lactose intolerant. Of course cutting out lactose didn’t help much...
Now Im diagnosed, and my doctor was wondering why I wasn’t diagnosed earlier.
Ulcers and inflammation are NOT symptoms of IBS! I'm sorry but if that's what your doctors are saying they could be mistaken. A more fitting diagnose with those symptoms might be ulcerative colitis which is a far more serious disease. Please get this checked with another doctor!
Raspberry you have crohns or colitis?
The DOCTORS themselves should get a diagnosis with LAZINESS
When they can't find out what is wrong, they just simply say nothing is wrong ....... cuz, unfortunately, they are not the one suffering the consequences .... but Karma will get them
I am so happy for Jennifer.She is so nice!😊😊
I went through this first one with my mom. Almost to T
I love the eye zooms in this series 😂
Feemailgamer the eye zoom is suppose to make it dramatic
👁👃🏻👁
~👃🏻~
So how does she know her mom is screaming at her to wake up if she’s unconscious..... that makes no sense
I think she was drifting between unconscious and conscious. So you can hear words faintly, but have no sense of time or space
Sleep paralysis
Sometimes ppl can hear when they are unconscious just like some ppl in a coma that can still hear what ppl are saying around them but yet they can’t open their eyes talk move or do anything most ppl can do
I have pseudotumor ceribri as well. Or IIH ( idiopathic intracranial hypertension) as it is called now. It is a pretty horrible disease.
So happy for Jennifer
👍🏽👍🏽👍🏽 wonderful outcome!!!
so for 2 years she keeps passing out and is constantly tired and has stroke like symptoms and she doesnt try to find out whats wrong??? how why what lmao i’d go to the doctor if i even passed out once
Honestly, she was probably too exhausted to try and figure out what was wrong with her. I blame the parents for assuming she'd just gotten lazy instead of fighting for their clearly sick daughter.
Iiiii thinkkk I passed out..... 3 times.
I could never trust my parents like I used to before they decided to believe the doctor more than me tbh...
the title says "season 3 episode 1" but i think it is "season 6 episode 3"
14:13 doctors and my parents say i should get into a routine but i dont think it was helpful (for ME/CFS)
I am sorry for ppl who go through these horrible mystery diagnosia
I have lived with chronic migraines for the past 37 years I’m 46, they are a daily event, I’ve tried everything, I’ve been though 4 neurologists and no one can tell me why I get them only that I’m going to have them the rest of my life
If any man had the same symptoms as Jennifer...they would have figured it out so much sooner!
i had pseudotumour too and it was a lot of people thinking i was faking it cause i didn't want to go to school so i can relate! it was terrible. these doctors are horrible for excusing her pain because of her period. shame on them
I only found out My mom thought that I'm mental after my gallbladder surgery.
Thanks to my mom of insisted that pain isn't normal and that I should go and see a doctor and she got her MD from Google lol
Pain always isn’t normal unless you have an injury 😉
@@Surdeigt rushed to the er twice but every time I reached there he pain stop and I return to normal.... so I assume it's nothing serious since I've always had a weak stomach and the gallbladder pain I thought its just stomach ache.
By the 3rd time I had that sharp pain.... I thought its normal. But I guess my mom, motherly instincts kick in....lol.
I would throw up every thing every time I eat.....
@@Surdeigt it supposed to be a 30mins surgery but for me its 3hr surgery the surgeon said that he'd never seen such a serious case of inflammation of the gallbladder especially for a young person such as myself... funny thing is that it's hereditary in my family... my grandad died cause his gall exploded.
Mine tripled it's sized. They can't see the seriousness of it since it's behind my liver....
Licht Von Edelweiss well, your mom was right, rights? 😉
The 👁_👁 *dun* -_- gets me every time
2:00 I mean come on, who sent that picture to be featured in the program lol
mifster 🤣🤣🤣🤣 a WHOLE mess
Said by a person who has no real understand of the pain and debilitation of migraine…. “ I thought ok this is just a migraine “
Poor child I hope those second parents feel ashamed.
Pseudotumor Cerebri (PTC) could be added to the byline/title?
Oh I see what the connection between this two cases are: the parents not believing their kid is actually sick, to the point that they almost die.
You mean the doctors. The parents were fine.
Anbody know the music that plays at about 23:25 ?
The doctor gave the second patient s csf pressure wrong. The units are mmh2o and not mm mercury
I can't believe this! I have the same! Had brain surgery
Never be certain of something you don’t know or understand! Get help as soon as possible! A life may be o!
Sometimes I feel like these are in 3rd world countries. 🤷♀️
Ann Rankin Jackson Ms is a 3rd world country the medical institutions here are a JOKE(1st case)
@@tgrice601 second case is negligence.. i'm a pediatrician. For every headache an eye examination looking for signs of increased intracranial pressure is a must.. i live in israel. Snd here 95% of the "mystery diagnosis" cases would've been diagnosed by any doctor
Change your doctor if he's telling you
"nothing is wrong with you"
There is a big difference between "nothing is wrong with you" and "I can't find what is wrong with you"
Obviously something is wrong with her..
Why would you let somebody go for 7 days with all that pain.
When I went to the doctors about a clicking on my ankle i was seen by like 6 or 8 doctors before getting the correct diagnosis
chloe richards and what is your diagnosis? My son has the same problem but I don’t know what is it.
@@Hykuhe basically I've got a bone fragment missing in my ankle it's called ocd for ankle if you search it up it tell you more about it
This is concerning, if they had done regular bloods they would have seen her cortisol was low. Every bloods I’ve had taken have had cortisol on there
Oh Caras story was exactly like mine but mine did end up being a brain tumor how interesting!
The first couple were more worried as to whether their daughter would graduate or not...
The DREAD I felt when I heard Cara got her period, because I just KNEW no one would take her symptoms seriously after that : (
I don't normally comment on TH-cam videos, but as soon as that doctor looked into Cara's eyes and had expressed concern that she had brain tumour then her MRI came back completely normal, I immediately knew what she had thanks to myself being told the same thing in my eye doctor's office when I was having a regular eye exam (However I knew it as IIH, or idiopathic intracranial hypertension). I remember looking up the symptoms and everything and then getting checked out.
Only thing is, I didn't have a brain tumour OR IIH/PTC. I was just born with optic nerves that come into my eyes at a sharp angle, making them appear to be swollen (also giving me a severe case of short-sightedness). You can tell the difference by the fact that you could observe my pulse in my eye. If you were to look at someone who had IIH/PTC, you would not be able to see this.
Honestly it led me to believe I actually did have IIH/PTC before being thoroughly checked out thanks to me having some mild symptoms of it when in reality my symptoms are common for visual snow syndrome (which I do have). I was just hoping I could actually get my hands on a diagnosis that could be treatable, I guess.
2 minutes into the video, I'm thinking thyroids. Well?