Thank you Pete for your story. My name is Margaret, I live in Phoenix AZ USA and I am 21 days into my viral encephalitis illness. I too thought I had a bad flu at first. The headache was exceptionally bad but I’d had a long history of chronic migraine so I endured. I ended up being diagnosed after my husband found me having a seizure and was unable to wake me. I am lucky as there doesn’t seem to be much damage. I have a real problem with my short term memory and I have crushing fatigue and that seems to be it. I’m still finding my way and am grateful to see other survivors.
I was diagnosed with encephalitis in November 2020. I don’t have any recollection of September to January. I’m trying to get back to normal but I know it won’t be 100%. It’s such a rare thing to have that no one fully understands. And certainly as much as I am grateful for my loved ones they don’t truly understand what I’m going through. It changes a person...it really does. Thank you for sharing your story!
Great message. Your beautiful water back-drop reminds me of a statement a doctor said about my own encephalitis survival. They said that "to the outside world you'll look like a serene duck on the water surface, but in reality, as an e-survivor, you'll be paddling very fast just to stay afloat!" Hope that makes sense to you too. Xxx
Thank you so much fir sharing your story. I had HSE in December of 1995 and most people think that I had a bad headache and had to b out of work for 3+ months. They just don't understand, do they/
Pete really appreciate your sharing your story. It's so valuable to know that other people are out there who know what this is like. I had a bad case of pneumonia that became encephalitis and it was undiagnosed and intreated. But here I am in spite of the odds. Although I have many years now of coping and rebuilding a life- fundamentally I often wonder who I am. My memory is so effected that every time I do my laundry I am 'discovering' my clothes - wow that's a nice shirt- I totally forgotten my clothing in less than a week. oh well I JUST HAVE TO LAUGH
Thank you for sharing your story I too am living with Encephalitis although I was 2 years old when I was diagnosed I was told by my family that I had to learn all of the basic stuff 2 year olds have already learned and now I’m 46 years old and still struggling with a lot of basic Motor skills like speech, listening, remembering things, walking n running, learning some skills n knowing when I need to use the restroom
Dear Pete. Your story is almost identical to mine. Unfortunately, there is no Encephalitis Society equivalent in Australia and we need it. Thank you for sharing.
Thank you for watching, and for your comment, flex7891. We are so sorry to hear of your encephalitis. You are not alone - we are here for you and your family. The Encephalitis Society is an international charity, please don't hesitate to reach out to us for some support at support@encephalitis.info.
I am happy i found this channel. Just got home a couple of weeks ago after spending some moths in hospital because of autoimmune encephalitis. It is interesting to hear other people's stories but also very weird since there is such a big variety of symptoms. I get confused when people speak of "living with encephalitis" what they really mean is living with the after effects of encephalitis?
Thank you Pete for your story. My name is Margaret, I live in Phoenix AZ USA and I am 21 days into my viral encephalitis illness. I too thought I had a bad flu at first. The headache was exceptionally bad but I’d had a long history of chronic migraine so I endured. I ended up being diagnosed after my husband found me having a seizure and was unable to wake me. I am lucky as there doesn’t seem to be much damage. I have a real problem with my short term memory and I have crushing fatigue and that seems to be it. I’m still finding my way and am grateful to see other survivors.
I was diagnosed with encephalitis in November 2020. I don’t have any recollection of September to January. I’m trying to get back to normal but I know it won’t be 100%. It’s such a rare thing to have that no one fully understands. And certainly as much as I am grateful for my loved ones they don’t truly understand what I’m going through. It changes a person...it really does. Thank you for sharing your story!
Great message. Your beautiful water back-drop reminds me of a statement a doctor said about my own encephalitis survival. They said that "to the outside world you'll look like a serene duck on the water surface, but in reality, as an e-survivor, you'll be paddling very fast just to stay afloat!" Hope that makes sense to you too. Xxx
Thank you for sharing your story. I am also a survivor of viral encephalitis. I pray for your continuing recovery.
Thank you so much fir sharing your story. I had HSE in December of 1995 and most people think that I had a bad headache and had to b out of work for 3+ months. They just don't understand, do they/
Pete really appreciate your sharing your story. It's so valuable to know that other people are out there who know what this is like. I had a bad case of pneumonia that became encephalitis and it was undiagnosed and intreated. But here I am in spite of the odds. Although I have many years now of coping and rebuilding a life- fundamentally I often wonder who I am. My memory is so effected that every time I do my laundry I am 'discovering' my clothes - wow that's a nice shirt- I totally forgotten my clothing in less than a week. oh well I JUST HAVE TO LAUGH
Well said Pete.
Well done! Lucky man. Great hat there, Love their hiking gear.
Thank you for sharing your story
I too am living with Encephalitis although I was 2 years old when I was diagnosed I was told by my family that I had to learn all of the basic stuff 2 year olds have already learned and now I’m 46 years old and still struggling with a lot of basic Motor skills like speech, listening, remembering things, walking n running, learning some skills n knowing when I need to use the restroom
Thank you Pete for sharing your story! Very encouraging and I don’t feel alone.
Dear Pete. Your story is almost identical to mine. Unfortunately, there is no Encephalitis Society equivalent in Australia and we need it. Thank you for sharing.
Thank you for watching, and for your comment, flex7891. We are so sorry to hear of your encephalitis. You are not alone - we are here for you and your family. The Encephalitis Society is an international charity, please don't hesitate to reach out to us for some support at support@encephalitis.info.
Thank you for sharing your story
Thank you for watching, Knowledge&Wisdom!
I am happy i found this channel. Just got home a couple of weeks ago after spending some moths in hospital because of autoimmune encephalitis. It is interesting to hear other people's stories but also very weird since there is such a big variety of symptoms. I get confused when people speak of "living with encephalitis" what they really mean is living with the after effects of encephalitis?
Crunching snow is really distracting