My life with Crohn's disease | Rachel Thomas | TEDxWellington

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  • เผยแพร่เมื่อ 12 ม.ค. 2025

ความคิดเห็น • 28

  • @michelesmith6734
    @michelesmith6734 หลายเดือนก่อน +7

    Fantastic presentation I was officially diagnosed 6 months ago with so many years of pain. A stoma is in the horizon for me but you have made me less scared. You are an inspiration and I wish you well.

    • @Rachoojoy
      @Rachoojoy 11 วันที่ผ่านมา

      Hope you are free of pain now. So pleased this has helped you ❤

  • @catherinemcleavey2848
    @catherinemcleavey2848 หลายเดือนก่อน +6

    I'm about to have a stoma and so frightened. Alex recommended listening to your talk, which has given me so much comfort, peace and hope. Thank you so much.

    • @Rachoojoy
      @Rachoojoy 11 วันที่ผ่านมา

      Thank you for sharing this, I'm so glad you found some comfort. Alex is wonderful!

  • @rukraz721
    @rukraz721 28 วันที่ผ่านมา +1

    Thank you so much. I needed this. My son was just diagnosed with Chron's. He was working on his PhD dissertation and now it has been placed on hold. I'll forward this to him, I know he'll receive some comfort from you. Thank you again.

    • @Rachoojoy
      @Rachoojoy 11 วันที่ผ่านมา

      So sorry but I hope now you have a diagnosis he can find effective treatment. Pleased to hear this has helped you

  • @strigoviro5785
    @strigoviro5785 7 หลายเดือนก่อน +10

    What an incredibly brave, resilient, authentic woman you are! Fantastic and honest presentation.

    • @Rachoojoy
      @Rachoojoy 7 หลายเดือนก่อน

      Thanks so much for watching and your kind words!

  • @kirsafrancis2032
    @kirsafrancis2032 7 หลายเดือนก่อน +5

    Thank you for sharing this! As someone who is facing the probability of the same fate in the future after being recently diagnosed with severe Crohn's you are very inspiring. So thank you x

    • @Rachoojoy
      @Rachoojoy 7 หลายเดือนก่อน +1

      So sorry to hear you're dealing with this, glad this reached you ❤

    • @jobaguley9579
      @jobaguley9579 7 หลายเดือนก่อน +1

      My 21 year old daughter was also diagnosed at 17 - running out of drugs that work - so, thank you so much for sharing your experience - we are working through the possibility of surgery emotionally atm

    • @Rachoojoy
      @Rachoojoy 11 วันที่ผ่านมา

      ⁠@@jobaguley9579it's a huge thing to comprehend and no easy decision. Hope you and your daughter are doing well ❤

  • @DBarton-Flowers
    @DBarton-Flowers 3 หลายเดือนก่อน +2

    What an inspiring talk, I wish I was as brave about my emergency surgery 11 years ago, although I only have the ileostomy. & the Crohn's of course .
    Thank you for your courage, wishing you everything that you would wish for yourself going forward.

  • @Gaetano.94
    @Gaetano.94 4 หลายเดือนก่อน +1

    You are very brave. I had a temporary ileostomy after going septic from my first surgery. Thank you so much for showing more light on people like us. ;

  • @CarolFlower-d7k
    @CarolFlower-d7k 2 หลายเดือนก่อน +1

    I had a stoma fitted 10 yrs ago. I found it very difficult to accept at first it took a while to learn to cope with it. I found your video very brave and inspiring. Well done you’re a star!!❤

    • @Rachoojoy
      @Rachoojoy 11 วันที่ผ่านมา

      Thanks for sharing. I hope you're doing well now. 10 years ago would have been a different world with much less representation

  • @Pamela-q9u
    @Pamela-q9u 2 หลายเดือนก่อน +1

    Thank you for spreading awareness ❤️

  • @jonathonms4906
    @jonathonms4906 3 หลายเดือนก่อน +2

    Ive just been diagnosed with Crohn's 38yo, ive been having tummy issues for years. Please people get checked out

    • @mdmoazzamhossain7455
      @mdmoazzamhossain7455 หลายเดือนก่อน

      What medicine do you take right now? Can you please share. I have been diagnosed with it recently

    • @jonathonms4906
      @jonathonms4906 หลายเดือนก่อน

      @mdmoazzamhossain7455 I'm on a 4 week steroid course of prednisolone and started mercaptopurine a few weeks ago. I'm doing much better however I did have a few side effects that seem to be under control now. Let me know if you have other questions

  • @mottovation3231
    @mottovation3231 7 หลายเดือนก่อน +2

    Beautifully told.

  • @VickysTuition
    @VickysTuition 3 หลายเดือนก่อน +4

    Courageous

  • @brightspirit1
    @brightspirit1 7 หลายเดือนก่อน

    Great TED talk!

  • @Gtwoski
    @Gtwoski 2 หลายเดือนก่อน +2

    Beautiful

  • @jodiannlovett9161
    @jodiannlovett9161 5 หลายเดือนก่อน +3

    Bravo

  • @Ankushtreanding
    @Ankushtreanding 7 หลายเดือนก่อน +1

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  • @desireconners7376
    @desireconners7376 2 หลายเดือนก่อน

    SCD diet !