Bone Marrow Biopsy Results & Answers to My Sugar Issues! (5/4/17)
ฝัง
- เผยแพร่เมื่อ 5 ม.ค. 2025
- The long-awaited results are in! Also, my geneticist reveals the cause behind my sugar issues I’ve been having over the past few months. Today was a high pain day, unfortunately, but it makes me thankful for things like telehealth appointments that make doctor visits very accessible. Also, very grateful for a helpful service pup and loving boyfriend. Thank you for joining us on our adventure!
YESTERDAY’S VLOG - • Service Dog Retrieves ...
MY BONE MARROW BIOPSY EXPERIENCE - • My Bone Marrow Biopsy ...
NEW TO CHRONICALLY JAQUIE? START HERE!
Currently working on “Start Here” videos, such as a chronic illness video, a Harlow video, etc.
Judd and Jaq Relationship Q&A Vlog - • Valentine's Day Relati...
--- Skip to 7:03 in the Vlog to watch the Relationship Q&A section!
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--- I wear the mask due to my Angioedema and Immunodeficiency, it filters allergens and germs.
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NEED SERVICE DOG INFO?
Service Dog 101 - • 🐾 Service Dog 101 🐾
--- This video is for people who are interested in the service dog (SD) process. It goes over laws regarding SDs, who can have a SD, how to get a SD, etc. All my advice regarding SD and SD training is in this video!
Flying With a Service Dog - • Flying with a Service ...
--- Harlow’s first airplane ride is documented in this video. It goes over what the process entailed, training tips and advice on how to prepare your service dog for their first plane ride.
Training Tutorial Playlist - • Training Tutorials
--- All the training tutorials I’ve made can be found in this playlist. There are tricks, tasks and useful skills for pets and service dogs alike!
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My Instagram - / chronically_jaquie
Harlow's Instagram - / helper_dog_harlow
Harlow made me laugh for real she was like why would you throw it and tell me to wait you silly human!
tami77090 that was adorable, the way her lip was was caught on her teeth made it that much funnier. she was like, what the heck!
You and Judd make such a good team, the way you play off each other is really nice. I like how he doesn't coddle you, but is always there to spot you Incase he's needed. I absolutely love how positive you are and how you don't let your illnesses make you a victim. It's great that despite your obstacles, you're about to have a healthy and functioning relationship. I'm not very religious,but I will always send nothing but good vibes towards you and your adorable tripod family.
Thank you! Sometimes people do not understand why Judd is the way he is, but you totally get it. I do not want to be coddled or tended to 24/7. He finds an excellent balance.
sarahgriego Hai How are you today TH-cam Happy New Year Jerteh Isabella young wife marahkan prayer lebihan TH-camr bihari husband Redmi TH-cam lavanya tusan Arizona kelebihan air teh Lazada What happen for your wife Champion Johor lah Ustaz Amirul tu Siberia wewenang simetri cara piring dua tinted habis Indon terima mesej ayam tersedap di traditions wayang baru aman yang ada kanser rest in peace Translate saya Kristian kisah cuaca May Malaysia sporting May mainan Translate macam happy birthday May Minecraft Malaysian States Malaysia happy birthday
I hope you and Judd and Harlow have a great rest if the week!
When he said "and pigs eat anything" I lost it omg. 😂
Emily Brown SAME! 😂😂😂
Judd was extra funny today haha
He explained the joke to me, but it isn't as funny when you need an explanation 😅
Don't feel bad I had to say it out loud to myself a few times and then I just died laughing, especially having had police officers in my family.
Hi I know that you probably won't see this but I just wanted to say thank you. I have been suffering for the past 5 years with an undiagnosed condition that I was repeatedly told was depression/anxiety or just in my mind. I am not able to regulate my temperature, heat makes me pass out and the cold makes it so my feet and hands turn blue from lack of circulation., extreme dizziness, rapid heart rate, and multiple other symptoms. I started watching your vlogs and a lot of the things you go through really resonated with me. I have been to the Mayo Clinic and so many other doctors, I felt like a human pin cushion. After years of misdiagnoses I finally talked to my doctor about autonomic dysfunction and POTS syndrome. I just had the tilt table test and I tested positive for POTS. I want to thank you for sharing your story. I feel like God put you in my recommended videos for a reason. Without them I wouldn't have known about POTS and I wouldn't have known to ask my doctor about it. You have changed my life. Thank you!
Caleigh Ivanhoe I'm SO happy to hear this, I'm so happy you finally have answers! I am so touched when people tell me I helped them get closer to their diagnoses. That is one reason I'm sharing my story, to help others. I'm so incredibly happy for you!
Glad you got some answers, Cal. Best of luck
jbreezy101 I learned about POTS/ EDS here too! I have (maybe) both, we don't know exactly whether I have HSD or EDS. But nevertheless, this channel also made me aware of custom wheelchairs ( I'm a full time wheelchair user now, I kept falling from POTS) and I have one coming soon! This channel helps SO many people.
@@ChronicallyJaquie so,I pass out really easy,seemingly for no reason at all&I won't remember what was happening in the few minutes previous to the passing out.
Have u ever had this problem?
Have u talked to a doctor about it?
Can I ask what they said it could be?
I know I commented this on yesterdays vlog as well, but I just really want you to know how many times you've basically saved my life❤️
You inspire me so much! I myself also live with multiple chronic illnesses and you inspire me to focus on the positive and to never give up. I really look up to you.
You, Jaquie Blake, are my idol❤️
I'm really happy to know you are taking something positive away from my story (:
I honestly don't even know how I found your channel but I'm so glad I did. You are so inspiring!
We are thrilled to have you join us on our adventures! :)
Harlow is such a good helper! I hope you feel better today.
Harlow was too cute rummaging around in the fridge!
I hope today finds you pain free. I could see how much pain you were in yesterday and wondered how you managed to do all that you did! Glad to see Judd able to make more appearances, he has a great sense of humor! My grandson, whom I am raising has a great sense of humor too....yesterday we were filling out paperwork so that he can attend a STEM workshop this summer. We went through the generalized questions like, Name, address, grade level and then we get to a question that took him off guard. They wanted to know what he wanted to be when he grows up....His response? A chicken nugget! LOL. I laughed about that all day..,,..Have a great day Jaquie!
Kathleen Morgan that made me laugh 😂😂
Judd is hilarious! He reminds me so much of my brother. Maybe its a cop thing?
Kerry Frost Maybe! He says it's a "Type A Personality" thing 😉
LMFAO Harlows face was freakin hilarious when you told him to wait to get the ball. And I think its so cute how you guys be wearing the same colored shirts almost every night. Adorable
Her*
I just started watching your vlogs. You amaze me!!! I have chronic pain due to a very bad back.....nothing like you live with. You are a true inspiration!!! Your attitude is awesome. Have a great weekend.
I laughed out loud at "stop touching the weird cheese."
I can see it in your eyes when you are tired, but you stay strong and positive. You are a wonderful lady, your husband is a lucky guy! God bless you both, give you peace, and comfort you in your times of pain and illness.
Tom
Sorry to hear yesterday was a high pain day. I hope your weekend is amazing
'sidetracked again because Judd had to touch the weird cheese' , hah that made me giggle a bit. All the best for you three, Harlow looked really chilled out and quite happy in the back of the car, and it was good to hear that your bone marrow biopsy had a good result, all the best c:
I'm so excited for you, your channel is growing so fast! Thank you for showing what real life with chronic illness is like.
Have you seen Simon and Martina's videos? They're a couple that lives in Japan and make fun videos about the culture and food there. Martina has Ehlers Danlos syndrome and has made a couple videos about it and raising awareness to invisible illnesses. They're videos are sooo positive, just like yours!
I watched a few of their videos the other day
Patty Thompson I will check them out :)
I'm in uk so thank you for giving time in England, so I'll see you at 5pm Sunday. Hope you pain has lessened xxx
I love how you are always so thankful and grateful for things. Even when it hurts. God is just so good.
awesome news on the biopsy! I actually just saw my allergist today and he's ordering testing for mass cell activation syndrome. love your videos such an inspirstion, and my 16 year old loves it cause it gives him hope seeing others doing so well as we continue to find more out about all my issies. yawl are awesome! And Harlow is a cutie pie 💜
Har is just the best companion! Sending love to you Jaquie, from one chronic illness gal to another 💗💗💗💗
That dog is just absolutely amazing. Bless you & her 💛
glad you got your bone marrow results in. i wish our target had a grocery store in it. loved Harlow with the target dog too. hope you are feeling better
Gotta love Judd!!!
Love his humor.
You both are so inspirational to me.
Harlow's sass face is my FAVORITE. She is so cute!
Hope you feel better soon Jacquie! Judd, you are so funny. I am so glad you both are there for one another.
I think you too are 2 cute. His funkyness just adds to the chanel. My hubs is the same if I feel like doing it he's down if not he's down. Our real life hero's.
I'm watching you struggle just to get through each day and it makes me ashamed to complain abut my own chronic pain.
An SD who is praise motivated shines so much brighter than one who is food motivated!
(whispering, he said, "we're on daylight savings time in the summer, so it's eastern *daylight* time. eastern standard is the winter half of the year.")
Judd, "pigs eat anything!" Sometimes I think you have too much fun at the expense of Jaquie's autism.
Ooh sassy dog and sassy fella!! I'm glad they both look after you and make you laugh. Me and my hubby are the same even if I struggle I try my best to do healthy dinners and clean as best as I can I agree with you when my hubby works I help at home as much as I can. Hope today is better for you -sends spoons and unicorns- 🥄🥄🥄🥄🦄🦄🦄
Aww Harlows face was so funny she looked like really mom it's my ball 😂 I hope your day is better today and you get to let your body rest
I love your relationship with Judd. It's so hilarious and cute
EHOB makes a waffle cushion. And mattress. I have dysautonomia and recurrent transverse myelitis and ms and CRPS in my bottom. I have to use these to survive and they work wonders for back pain. It will help a bunch in the car. You might consider an older Cadillac. It really helps with bumps because they ride really well. I also have a Medtronic intrathecal pump that helps a ton with spasisity and pain too. Any how I hope some of this helps and hope I can be a friend. I have a service dog too named Lila
I love Judd. He is so fucking funny :) I enjoy him when he is in the videos. Makes my days better because always a laugh
Oh my gosh, how did I miss 3 videos! I'm supposed to be notified dammit!
Loved the CoQ10 clip! You said it helps with migraines, and I'll totally have to look into that!
savedbygrace they even have blood tests for it, I’m super low apparently which contributes to my POTS.
I'm new to your channel but so far I like it! I don't mean this in any bad way at all what I'm about to say, just a disclaimer. but I've seen a few other youtubers with chronic illnesses that. .. the best way I can explain seem to only focus on the negatives but you focus on the positives too and not just your illnesses which I ( personally ) think sets a really good example. I don't have any illnesses or anything like that but your already very inspirational for me. ( sorry for the really long and kinda cheesy comment lol )
I know you didn't mean any of what you said in a bad way but I just wanted to speak from my view as a person with chronic illnesses. everyone with chronic illnesses has ups and downs and you can't really expect anyone to sugar coat/hide what they're going through it's not easy and we'd by lying/not sharing the correct awareness if we didn't show the reality of chronic illness there will be bad days that no positivity will fix of course it's not a bad life only a bad day but we're allowed to have days where we just can't sugar coat which is more than understandable when you have to fight your body everyday. if negativity bothers you then you don't have to watch their channels but if you're watching chronic illness TH-camrs the reality is we're not positive 24/7 we do have bad days. I like to remind others strength has nothing to do with positivity or sugar coating, strength is crying and yelling and asking why me but picking yourself back up and continuing on anyways 💪🏻💕
I am a big believer in positivity! I am so glad you are joining us on our adventures! Here we show the good, the bad and the really hard times because we want to show the world what it truly means to live life with a chronic illness. Everyone handles it differently, and we are happy to have you join us on our journey! :)
I had cycle vomiting syndrome when was a kid but thankfully don't have it any more
I love yalls love for each other 😊 so sorry you had a high pain day but you pushed through and I'm happy it subsided a little bit through the day. hahah and Harlows face was epic when you were testing her with her ball
Tell Judd he's funny with the time zones. I live in Switzerland for most of the year (for my hubby's work), & but also still have our house in AZ. Time zone hints will be helpful if your still doing them when I go home in Sept.
I hope you feel a bit better today
Omg Judd, "everyone else will, don't worry." Too funny!
Omg we have so much in common but I don't have the cute dog. I think everyone's family dynamic is different. You do a lot and don't let others make you feel bad. Stay strong
Yay, good results finally on the bone marrow biopsy! I'm so happy you found answers! I hope Judd has a truck today! Love you! You looked happier when you got to Target, so I hope you got better! ❤️💜
Claire Elizabeth Blake I love that you comment every episode!
I'm a huge supporter of Jaquie's! She's really inspired me through this time in my life!
Claire Elizabeth Blake I love Claire's comments as well!
Chronically Jaquie You are gonna make tear up! I love you girl! Feel okay today?
I get crappy sinus/migraines when the weather is going to change. But, I can't complain compared to what you are going through.
14:50 I have 31 sub and I want to do a live stream but it is hard to do
I have similar metabolic symptoms. Doctors call it hypoglycemia related to food intake. No solutions, just expensive meds. I have been doing good with it though. I balance my meals to manage it.
I really hope you start feeling a bit better soon.
I love my spaghetti on bread, too! Yay for the spaghetti sandwich LOL So glad you have both Harlow and Judd in your life. You make a great family. All the best to you.
Harlows sass is so cute!!!
I can understand doing what you can while you can....and pushing threw pain thats bad but not as bad as it can be...AND to be so grateful for that.
It hard to push ourselves but...it makes us so much stronger. Anyone else would be laying on the couch ordering pizza.
HeckNoGMOs I know how you feel I had a jerk for the dr that did mind
And he did not num it well and would not give me sedation he told me it was not going to hurt much and not need for anything I was total screening everyone could here me. Like you my back and where he did the procedure hurt for a long time. I will never have another unless I am out of it. Is there anything they can give you something stronger they can give you. Hope you get to feeling better soon.
Hey Jaquie, there is no ad again on your TH-cam vlog. How come? Wishing you well dear Jaquie ! :) So horrible to see you having a bad day. You two are both so awesome ! A team you all are ! Can't believe a child pulled Harlow's tail ! :(
Gentle Hugs, hugs, hugs. I know weather changes are a bear.
I cook like that when I have a really hard day. Hugs again.
new to your channel, love to watch your vids, i admire your courage, the people who's always supportive esp judd and of course harlow, keep moving forward! :)
I love your mitten glove by the way!
I got it in Paris :)
Judd is such a dork. x'D I love it.
He totally is haha
Jaquie, Are you able to use Icy hot? The make stick on patches for pain (some for your back, and smaller ones for elsewhere).
your dog us absolutely adorable and so smart, she's gotta be smart to be a service dog, haha. but she's so sweet, I'd love to have a service dog, but I do have a really loyal and loveable pup.
I love u guys
We had weird thing happen a few years ago
It rained on one side of the house and sunny on the other side
random but have you heard of the spoonie essential box? I watched some other disabled youtubers try it and they say it really helped them on their low spoon days ♡♡♡ ps ur target has donuts whaaaaaattt
Noelle H. I have! But I don't really find monthly subscription boxes useful because I have weird taste. I think a spoonie one is an excellent idea though, so clever!
I have had a bone marrow biopsy and it's the most painful thing I have felt in my life
You are so strong 💖
Good job Jackie,sleep well😍
Beautiful couple, not forgetting Harlow. Subscribed ☺
may I ask your opinion on the aca health care possibly being overturn, also how do you push through the wall when fatigue over takes you?
Leslie Bowlus Honestly I haven't been following the insurance issues... When Judd and I eventually decide to get married I'll be on Tricare. Trump made a statement saying he wouldn't touch the pre-existing condition clauses Obama put in place, but we shall see. As for the fatigue, I have years of practice of pushing through lol. I'm used to it so I push when I must and rest when I can.
It’s great to lower blood pressure
Lmao Judd was is a goofy mood today
Hi! Harlow is awesome
Hey! We have the same name, but I spell mine differently.
I have Systemic Lupus and Chiari Malformation type 1. With the Lupus I have RA and so I'm in pain constantly and sometimes I get really weak. My husband sometimes has to help me do simple things like taking a shower. It is annoying. I am 28 but I feel like I'm in my 80's or 90's.
MountainGirl7771 I've never met anyone who spells it the way I do, people usually use a C. And I'm right there with you, Judd often has to help me with showering, going up/down the stairs. But it's good to have loving partners! Also I use shower wipes I buy of Amazon on the really hard days. They are like the ones from the hospital. :)
Judd looks like Michael from Jane the Virgin and he's a cop
What is the gene mutation you have? I have ME/CFS, POTS, carpel tunnel, TMJ, Type 3 Joint Hypermobility Syndrome (form of EDS) etc, etc. What is the best way to find a good geneticist or get referred? Counsyl looks interesting.
My mom gets pain and all of the same symptoms and she has MS
I wish I could have access to doctors like yours
You might! I have a VERY hard time finding mine. It was NOT easy. Took me YEARS of searching. I just never gave up until I found the right team. :)
Is Harlow not allowed to be on the furniture? I was just wondering since I haven't seen her there.
DONT YOU WISH DOGS COULD TALK SOMETIMES LOL, HIPPO IS SUCH A GOOD DOGGY, GOOD JOB!
when its one pm for you guys its 6pm for us
I've never comment but I enjoy watching your videos and Judd smashing his face into his spaghetti had me laughing. Also for youtube live you'll need to go to "creator studio", then when you've clicked on that you'll see on the side bar "live streaming." You do need a streaming device like OBS or Xsplit. I think one of them is free but i've forgotten since I haven't stream in a while. (Use to stream on twitch.)
hey Jackie! you should possible get a reach and grab tool (looks like a claw game on a stick) it really helps me grab things out of the veggie bins and get things off the ground (I have sever back lain from scoliosis) it could really help you on your bad days :) bonus I got mine from target for like $10
Harlow is that tool for me ;) But she can't do some things, like food that is dangerous for her to consume.
What do you do about exercising Harlow when you're in pain/dizzy and can't go out of the house? Harlow doesn't seem to be as high energy as my pup but not exercising him is a big no no because he then can't work really. But my garden is tiny and I can't go to the park by myself on bad days. I was just wondering what you do?
Let's Talk Living In vlogs she's shown Harlow running up and down hall to fetch a ball
Yeah I've seen that I just wondered if that's all she gets, if the do stuff in the garden or if Judd takes Harlow for a walk or something. Just running up and down the hall like that would never be enough for my SD so I was just wondering if she has tips :)
Have you tried liboderm patches name brand? You can wear up to three and they numb the nerve endings that send pain. You can put them anywhere except over hair......you'd have to shave it first if its alot of hair. Their pretty good size and you can cut them into smaller sizes or shapes. For car trips I use memory foam insert for my car seat they make one for just the seat too similar to what they use in wheelchairs as inserts at a extra costs of course. Have they ever did DNA blood test for celiac disease? The DNA not the markers do the DNA test. Would explain alot!! But def check out those patches liboderm Name brand you'll need a script its lidacaine in patch form life saver for chronic pain!
I will check those out and I have had a ton of testing so I'm sure I have also had that test done lol, I can not remember for certain though.
Where did you get your noise canceling headphones. I am looking for a pair, but all I can find are ones that are noise canceling with music.
Bass Pro Shop
Don't worry Judd I got that joke 😂
Hey Jaquie, you mentioned taking coq10 for CVS and migraines, I also just got put on propranolol for both of those things. I was wondering have you ever been on that and if so did it help you?
For about a week for my POTS, I am allergic to Beta Blockers so I came off it.
Judd made me laugh in this video 😁. He must nice to have around during bad days (and any day I guess)
Love you guys!!! I hope you will have a better day today! Do you have a PO Box?
Cotton Candy Fox no, but so many people have asked us to get one 😅 I'm still debating it.
Just let me know if you decide to get one :)
Every time you go outside, are you using the same mask? Or you order more.....they cost so much
I love that dog❤
I didn't know you had cyclic vomitting as well. Its something I suffered bad with when I was younger.
I developed it around age 18 or 19, and have been in remission for a while :)
You are amazing!!! I love your awesome dog. I don't know how to get a service dog???!!!! I am very sick too. + I have MS, scleroderma diffuse, and Pulmonary fibrosis. I'm using oxygen. My heart is with you. Love Camelia
Florida can have all type of weather in about 1 hours it is so bipolar but love the video
What time would that be in Dallas Texas
ashley williams an hour earlier than whatever she said
Judd your so funny! Dont stop being funny!
12:30 on no he did not
Like your slippers!
I found you vlog by accident. You are a cute family. Jacque, do you crave food even when you have a feeding tube? Do you need to eat orally as well as through the tube. You do an excellent job pushing through the pain. Kudos to you...
I love your videos
Omg the look she gave you 🤣🤣🤣😘
Judd is the biggest kid ever!!