I have had Parkinson’s for 8 years. When I was diagnosed I had a severe gait, couldn’t sign my name, couldn’t move and double click a mouse. I got into the short of pickleball, a very aerobic exercise. As a result of this exercise my walking has improved, my balance is pretty much normal again, I can sign my name and use a mouse. My worst symptoms of hand and leg tremors have improved significantly and I actually have moments where I have no Parkinson’s symptoms at all. So, for me exercise certainly does improve Parkinson’s symptoms to the point where they are momentarily gone. But here is the kicker,it has to be sustained aerobic exercise with elevated heart rate for at least 20 minutes 3 times a week. Simply walking has shown NO visible change in symptoms for me. I’m 58 and now I play pickleball 6 times per week for 2 hours at a time. What I have found is that I get longer and longer periods of symptom relief. I don’t know how it works but there is no doubt in my mind that intense exercise is the best way to manage Parkinson’s symptoms.
If interested, find the YT interview where the older guy with long term PD w/ a severe PD decline has cured himself of , it seems, 90 to 95% of PD , with a keto diet. He didn’t give those numbers but based on how much he’s improved, (if not back to normal now), that’s my guess. Incredible success story.
I have had P D for 20 yers. I retired and moved to The Villages Fl line dancing’s is very popular in The Vi In 2008. In The Villages line dancing is very popular.. I would take classes during the day and go to the Square and line dance almost every night. The PD did not progress very down to much. In fact no one could tell that I had it. In 2016 I had ❤ I believe exercise is the biggest help for this horrible disease. 😊 to hav my left leg amputated above the knee. Since then I can’t dance or exercise very much. The PD has progressed quite a bit. 1:42 ❤❤❤
You forgot to mention that one should be prudent and have a walking partner especially one that understands what is going on. My wife had Parkinson’s for 24 years. She started the symptoms when she was 42. She walked a lot , did exercises for the vocal chords , legs, balance, with music, with percussion instruments. We did games that I invented. We did everything together. Alas, the end had come for her in 2010,October ! Thank you for your work . From my heart to yours, Michael ❤️🎶
I hope you’ve seen the YT interview w/ the older guy w/ PD for many years, and was declining very badly, and he has almost completely reversed the disease w/ the keto diet.
@janetpattison8474 I can believe the keto diet making positive impact on PD due to the near elimination of processed sweeteners, gluten, and other inflammatory foods
Hi - I'm 59 and was diagnosed 3 years ago. Upon diagnosis I immediately realized that i had been fighting the symptoms for at least 25 years. As a elite triathlete my training for sure delayed my diagnosis. 3 years post diagnosis I'm not on any drugs and still train at a high level but I have clearly slowed down by 10% or more. A combination of zone 5 and zone 1 training plus resistance. All totaled 10 hours + of performance exercise. Parkinsons will win but hopefully i can avoid drugs and preserve my lifestyle for years to come.
@@trysportuniversity5708 Hi I’m also 59 and I have had PD for 8 years or more. Congratulations you actually, inadvertently discovered the BEST way to slow the progression of PD, aerobic exercise. I discovered that by noticing improvements in my movement and balance after exercising, and I later found some medical papers stating the same thing. Good job. Hopefully you can get away without using drugs for a while but I do have one word of caution. When you start exhibiting symptoms of PD approximately 80% of the dopamine in your brain is gone. Since dopamine is the happy chemical when it gets deleted you run the risk of going into clinical depression. It happened to me and is a world of hurt that you don’t want to experience. So find yourself a neurologist and get a prescription for levodopa, just in case. Monitor your thoughts and behaviors and if you notice prolonged negative thoughts or difficulties doing things that you normally enjoy, like exercising. It’s not you, it’s dopamine depletion in your brain. Start taking levodopa, but not to much. To much will give you dyskinesia and vivid dreams. For example I take 300 mg per day. Good luck and take care.
I was 66 years old when a fentanyl impaired driver crashed headon into us. I had catastrophic injuries- - compound fractures of left and right knee, left humerus, left trochanter and smashed pelvis sticking out of my body. I had 5 burst thoracic vertebrae. Most ribs broken and jaw ripped off my face. All in all 18 broken bones, collapsed lungs, and traumatic brain injury. I died several times but they kept resuscitating me. After 30+ units of blood, many surgeries, and several weeks in a coma and having 3 strokes I awoke and was paralyzed. This is not the worst of it; the perp killed my beautiful wife of 39 years. I was in a nursing home for seven months and eventually learned to walk again. Then there was a criminal trial where the perp dragged out proceedings for three years only to be given a slap on the wrist. This was 3 years of torture. Finally I started getting tremors and numbness issues. I was finally diagnosed with PD 3 years ago and put on sintemet. Doctors say the injuries triggered the PD, but I think it was more the trial torture for 3 years. Today I can slow walk with a cane up to mile. And I can workout on a rowing machine, stationary bike, and an exercise machine. I do my own yardwork and mowing but if I fall I can't get up. I take alot various supplements and avoid refined carbs and bad oils. I have bad pain episodes, but make sure to workout in my home gym every other day which is key to fighting off PD. I wish I could do more rigorous activities but just can't. At 74 I'm holding my own. 🌞
I'm so sorry that you had to suffer through this trauma. I've heard of cases of both physical and mental trauma resulting in triggering PD. You can only do what you can do, so keep up the good work on whatever exercise you are able to get done. Anything is better than doing nothing.
You r one Brave man!! I am 65 n just dx w PD. Painful legs pain left shoulder. I am going to red light therapy to help w pain. I don't feel a difference but this is my 1st week got the rest of this month. Will try the gym soon. I take my vitamins n MCT oil to help w memory. Hyper baryk oxygen therapy I wanted to try but too expensive for me
@@inezzbeadz Thank you, but I don't know how brave, but I sure was angry and wanted to live long enough to see some justice for my dear wife and myself. The whole ordeal was a nightmare. Speaking of supplements I have good results from CoQ10, leafy green smoothies and now starting the high the high B1 protocol. Taking lions mane which is reputed to be neurogenic. I would like to know more about the red light protocol, too. But yes, I would think hyperbaric O² treatments would be beneficial. Keep the faith, and keep exercising.
I have always been a fast walker. I am now 70 and was diagnosed with PD about three years ago. Since that time I've increased my walking, taken up resistance training and begun supplementing with creatine monohydrate. There have been measurable benefits to all of these and progression of the disease has been far slower than I was warned it might be. I attribute that slow progression to the amount of work I'm putting in to fight the inevitable.
Awesome. Good for you! Since you’re early in the diagnosis I think you have a chance to make the most impact. I’d highly recommend you look into some PD specific exercise protocols such as LSVT BIG, PWR!, or Rock Steady Boxing. These will address balance, flexibility, coordination, posture, etc more specifically than the fast walking. But keep up the good work on the walking!
My understanding is that John Pepper says the research he read stated that high intensity exercise, for at least 1 hour at a time, every other day, gives the body what it needs to create enough GDNF to support and enable his conscious movements. Any activity will work if intense enough and for an hour at a time. More than 1 hour, he says, does not help and the rest days are important. This is what I’ve gathered by watching his videos. And he says to work your way up to an hour by walking fast as long as you can, if that’s 2 minutes then do every other day for 2 min the first week, then the first day of the next week go longer, say 4 minutes, do 4 min that week and so on.
There is a lot of common sense to what he recommends in terms of gradually increasing the walking distance over time, etc. The issue I find is that I have been unable to find a study by Mayo Clinic (his citation) or anybody else so far that shows strong evidence of the GDNF increase. There has been research and it’s ongoing, but there isn’t statistically significant proof that GDNF increases more with fast walking than, say, an intense cycling program, or PD-specific exercise and therapy programs that are high intensity for short bouts. I’m not saying it isn’t true, I’m merely pointing out that more research needs to be done to truly show a link. I talked about all of this in the video, but it’s worth discussing here again. Thanks for your comments Mark!
A close friends father was diagnosed cancer riddled 12 lbs in his lymphnodes etc. Given 30 days to live. He decided to stop wearing his bee protective wear, when tending to his hives. Allowed to get stung because of research he did on cures. Lived for 18 years more, cancer free. During those years he treated others for free with different ailments. Parkinson's being one. People with extreme shakes would settle dramatically minutes after receiving treatments. Bee defensive -1 is one attribute the Bees have. As well as honey will kill the mold cells, because of basically starving it of water etc.
That’s pretty incredible! I assume since the venom has an immune response as well as a neurological one that it can settle the symptoms? I wonder how long the effects last
@@parkinsonsdiseaseeducation Yes, like I wrote above. Bees contain whats known as (Bee Defensive -1). And as you know mold has a whole host of side effects & more common then people think. And is rarely tested for, when it should be a priority. Pure honey has a high infinity for taking H2O out of the cells, killing molds. The Bees my friends owned in Pennsylvania were huge. He owned 120 hives. The Bees would know where to sting on the person, whether on the back or arm. And on the meridians, where they'd leave the stinger in. The effects would come about anywhere from 5 - 10 minutes. God attends to all things. 😁
@georgeking2369 YOU ARE VERY ENTERTAINING! Do you really believe that? They, the FDA, WHO, & CDC CAN NOT PATENT IT OR MAKE MONEY OFF OF NATURAL REMEDIES. Have you not learned anything these past 3 years??! Much love and lots of learning! Bee stings also good for Rheumatoid Arthritis
I have a friend who has been involved in rigorous exercise since he was diagnosed in 2017. He runs a 3K every year as well. His condition hasn't reversed but it has helped sustain his lifestyle and dampened the progression.
TH-cam has a video of a frail 82-year-old man with Parkinson's who could not walk but only sit and had the many other issues associated with it. His son as I recall convinced his mother to put him on a carnivore diet and after one month he was walking at a fast pace around the kitchen over and over again with his son in tow just in case he might lose balance which he didn't in the video. He also laughed as his wife teased him. Another man (he has his own TH-cam channel as a result of his success) much younger and afflicted with Parkinson's for about 20 years to date (began in his 40's as I recall) who went on a carnivore diet (or keto diet) about eight years into his PD as I recall. He has reversed it to a great degree as you would not know he has it - no shaking, stiff facial issues, etc.). He had to quit his job when he was diagnosed with PD as it was that bad. He and three others are putting together the science behind his recovery. My point: take it upon yourself to get better and do not rely on conventional medicine and the drug companies as they are inept and ridiculously expensive. People are successfully rescuing themselves and there is hope for you - you are no different. Something is out there that will help you improve greatly if not conquer it completely.
You are right! Carnivore diet is a ketogenic diet, as you said, and anything that helps create a state of ketosis in the body can do wonders to heal sick and damaged mitochondria and therefore slow down or stop cell death in the substantia nigra and virtually anywhere in the body. I just read the book “Brain Energy” by psychiatrist Dr. Christopher Palmer, MD where he dives deep into mitochondria and metabolic root causes of disease. I learned so much! And what you say is right on par with what he talked about in the book. I’ll link it here: www.amazon.com/dp/1637741588/ref=cm_sw_r_as_gl_api_gl_i_EQMWQ4781AQ4627F8K4E?linkCode=ml2&tag=hylandptw079-20
I think walking in short increments at regular intervals is far more beneficial than doing straight 3 mile walks initially. For example: Walking anywhere between 5-15 minutes first thing in the morning, then after breakfast, lunch, dinner and before bed is much more beneficial than doing a 3 mile walk or 5km in one go. - Tip: 15 minutes of walking, 4 times a day will is equivalent to 60 minutes in total which is more than enough to complete your daily 10k steps.
True, BUT high intensity exercise that increases cardiovascular stress/workload and contains high effort does more to change the brain than certain other types of exercise. In short, if it doesn’t challenge you it doesn’t change you.
You do have to be careful though. I enjoyed a longer walk than usual yesterday, and am really paying for it today 😢😢 Got too enthusiastic unfortunately unfortunately.
My husband and I have bn dx’d with Parkinsons for 10 years. We started lumbar trike riding 2-3 hours per day plus large amt of B vitamins. We have had remarkable success. We are independent and symptoms largely reduced. Continue your research. 👍😉❤️ 5:14 .
That is excellent! High intensity exercise can vary in what types and in this case the cycling and supplementing seems to be a great asset to you and your husband. Keep up the great work!
As you stated that both you and your husband have been dx'd with Parkinson's then it makes me wonder if something in your shared environment that might have triggered the disease?🤔
Research that I have done shows that a deficiency of Vit B1, which is Thiamin, seems to be a main factor influencing Parkinson's?🤔 Daily high doses of thiamin have Stopped many of the symptoms of this disease for some people!!
GDNF, as well as other BDNF (brain-derived neurotropic factors) increase in a ketone-rich environment; possibly, fast walking/aerobic exercise puts the body in ketosis, unless there is carbohydrate intake.
Thank you Mary Jo! I appreciate your comment. I should put a poll up on the community tab, but I'll ask you directly: Would a conversation with John Pepper be valuable to you all on the channel? It would be a chance to have questions answered by him directly.
Family history - grandfather, father, uncle, brother, sister. I have been having mild cognitive problems. I have been a walker doing 10000 plus steps a day. Plus other weight training exercises. Hopefully I am staving off PD
Thank you for the excellent information. I appreciated it very much. One thing I was not sure was the music being loud and competing with the information. So distracting. I don't know why more youtubers are using music on the background. Maybe because some "expert" or algorithm says so. Anyway, thank you for the information.
It's not even Parkinson's right now. I'm thinking back to the date when my neuro first mentioned it, and that was about six year ago. So, I guess I've had Parkinson's for about that long at least. I have other medical problems that I'm trying to address, but I'm being run ragged by all the appointments, referrals, new people, getting rushed all the time, etc. I have a lot going on at home right now and I'm alone so it's just me trying to get a mountain of work accomplished. Yesterday I spent half the day trying to make two medical appointments, including with a PT, and all I could manage to accomplish was changing an appointment with my PCP. I've left messages for the others to please call so I can make an appointment. I have been disabled for 25 years, but I've never been this stressed over medical care. And nobody is listening if I mention the stress. None of them are listening. At this point, I trust my neuro and I'm not sure about anybody else. I can at least say I'm very lucky with neurologists. I've had two, and they both have been amazing. The rest are in such a hurry that they don't even know I'm alive. They don't even recognize that they're dealing with human beings. We're just a fast food meal being shoved down a broken assembly line.
I’m glad you have found good neurologists. In general nobody seems to have time for anybody in offices and people get run through like an assembly line or “a fast food” place as you put it. Thanks for your comment, I hope you find help with who you are looking to get connected with locally
Sounds really hard for you!! Especially if you're on your own and having to deal with all of that!! My heart goes out to you. All the best. It's not easy Especially when you have Parkinsons and no energy!!!
People do not know the disease if they do not have the love to stand by a sick person. But there’s a lot of strength to be found there. Keep your spirits up cause research is advancing. Exercise is part of the solution. ❤
I hope you will do a video on high dose thiamine therapy for Parkinson's. My walking speed has improved greatly (and spontaneously) since I started it, so much that my partner noticed right away.
❤ we are just beginning the diagnostic phase with our initial visit to the PCP. My husband was given a referral to a neurologist and the doctors emailed it over to that office. In an effort to be proactive, my husband called (our insurance does not require referrals to se a specialist) only to be told they needed the referral from the PCP before an appointment could be made. It would probably take two weeks for them to call, and then probably February before he can get in! I’m beyond angry. We have emailed our PCP and are hoping to get an appointment somewhere sooner. No wonder people turn to the internet to try and diagnose themselves. Exercise does seem to be important in living well with PD, thank you.
I know that must be so frustrating. Exercise is crucial in living well with PD, so you are correct! Please let me know if you have any questions that you’d like to see a video on
I didn't get any help from my Dr besides Physical therapy. I looked into it myself. Oxygen treatment I wanted to try but ins won't cover. So I just started red light therapy my first week
Thanks. I am in my 1st year of diagnosis. I also have been a daily exerciser for 25 years. I am 68 so I can't do the volume that I used to, including running since my knee couldn't take it anymore it, but I do a number of warmup stretches and then time on the rowing machine & stationary bike.. Exercise does seem to help.
Exercise is MEDICINE for PD. 💯 correct that it helps. Keep up the good work. Have you looked into any PD specific programs such as LSVT BIG, etc? You might also consider saving this playlist: Parkinson's Disease Education th-cam.com/play/PLw5LNHfk3CMnSdJkRfzY5AQvEE_hxsPWL.html
In my TH-cam channel, I work with the Microbiome. In humans, Walking circulates the lymph system carrying nutrients from the gut to lymph nodes (including the brain.) The lymph has no pump, such as the heart, which circulates the blood. We're finding the Microbiome produces neurotransmitters. Anything you can do to circulate remaining neurotransmitters seems beneficial.
The microbiome is SO important. What’s your channel I’d love to take a look. What you say makes perfect sense in light of the lymphatics and how they would carry nutrients to and from the brain in addition to the vascular system. I hadn’t considered the gut actually producing certain neurotransmitters
There are 2 obstacles to my trying this out: 1. Aerobic exercise that's vigorous enough to make me feel energized causes a worsening of my arm tremors. 2. I'm trying to overcome fatigue, though often I am tired after exercise, not during, but the exhaustion afterwards really limits me. Do you have any suggestions for those 2 obstacles?
Hey there! I wanted to follow up with a clarifying question, if I may. Are you exercising when your PD medication is at its best or when you are closer to wearing off? That make make a difference with the tremors. As to your second barrier, it sounds like you might be struggling with fatigue. In that case you will need to pace yourself when starting a regimen of more intense exercise. See if my video on fatigue may be helpful: th-cam.com/video/5AM8426ruGA/w-d-xo.htmlsi=HXfxKJvZvYN3SkiL Also, there is a link to John’s book on Fast Walking in the description of this video. Maybe try to follow his protocol and see how it works for you. I know he recommends incremental increases in walking time and distance.
Not big on walking. I can't walk across a room without losing balance, running into something, or falling. What I wanna know, is how is it I can get on my bike and have perfect balance and ride briskly on the road. Why? It makes me long to be on my bike always missing riding when I m not. It just doesn't make sense to me.
Walking as the "go-to" exercise may not be right for you, as John Pepper advocates, but it certainly is important to practice walking with BIG steps and BIG arm swings. That's what we would teach in LSVT. You can do BIG steps when using a walker even, so it isn't limited to those who can walk without a device. In answer to your bicycle question, this is a great question for a future video. Our channel members can submit questions to be answered in a future video.
Iam feeling very low and depressed and since 2yrs iam suffering from PD, Iam 40 yo female.....it started with left finger now my left arm and leg is having tremor.....and when i heard from doctor its progessive & the level of intensity and symptoms increase as time goes by is putting me in lot of fear ...i recently started with benformet forte... Iam really scared if i will end up bed ridden
Keep your chin up Sanam. There is only reason to hope because you can do so much to keep things from progressing quickly. The only way is to keep as active as possible. Seek out community (such as here on TH-cam) and exercise exercise exercise. I hope this older video gives you some inspiration: Do the Stages of PD REALLY Matter?? th-cam.com/video/J7mOEZNO2o0/w-d-xo.html
Hello! What are you asking exactly? Whether or not fast walking could help with these various symptoms? The thing to remember is this: high intensity exercises benefit the brain and body the most when it comes to fighting against the symptoms of Parkinson’s and other disorders. Fast waking is just one potential method of higher intensity activity. For some, they may need more of a challenge and that’s ok, but walking will become more and more difficult over time without some method of challenging it.
@parkinsonsdiseaseeducation This answers my question. TY. I know someone who's bedridden and facing all of these symptoms that continue to manifest and worsen despite her labs and even MRIs show normal results. She does have spinal stenosis in the cervical region however with mildly bulging discs. But her symptoms are so bad that it impacts her speech and eating. ER visits lead to trauma as the Drs attempt to gaslight her accusing her of bad anxiety when she's in an antidepressant and anxiety meds and receives therapy. Her sleep is also deeply affected. She does have a neurologist BTW
@@inoshishi8 I am glad this answered your question. Reading your report about this acquaintance of yours is disturbing, as it doesn't sound like any of her healthcare providers are advocating for her and what she really needs.
@@parkinsonsdiseaseeducation Any of her providers that do wind up moving. Then she gets bad ones. It's partially why she's deteriorating. It even has herSuicidal because she can't control her own body lately. When she tries to reach psych help, the psych hospitals make her much worse. They also attempt to put her on antipsychotics. She can't handle any of them and has allergies to every single one of them. She doesn't have any psychotic disorders either. But the delirious, dementia like state, and her seizures that she just began having Feb this year at age 41, just to be accused of it being psychological when there's various other testing she never had done, is why she's EXTREMELYsuicidal. Call me an extremist, nihilist, or even an existentialist, but as much as this would take an enormous toll on me if she passed away, I'd rather a Dr humanely administer her euthanasia and put her down just as vets do to suffering animals than force her to suffer intensely. Additionally, she's not even credible for hospice. And she's at her wits end and becoming wheelchair bound as we speak. She's also my BFF and not acquaintance which is why I worry about her constantly. I stay out of state to be by her side more than I'm at home because of it. She has her mom too and it's draining her mom. As she sees us being drained esp her mom, the more it leads her to giving up on life due to it because she doesn't want to hinder our stress levels any further nor keep suffering so inhumanely. Let me make myself clear though: this futile medicalSystem in USA has become a serious fascistSystem environment similar to a premeditated concentrationCamp scenario in the past 4 years! It'll only get worse if things don't get reversed soon. Too many ppl have dropped dead like flies already since 2020.
Contact report 578 'Billy' Eduard Albert Meier (BEAM): Then the last question: You once said that there were natural foods that could prevent or simply slow down Parkinson's disease in a highly concentrated form. You mentioned vegetables that contain natural nicotine, which, when eaten, has an alleviating or preventing effect on Parkinson's disease. Ptaah: 65. That is correct. 66. Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently. 67. A very effective extract can also be made from these vegetables, which can produce very beneficial effects.
I agree with you. I’d say that this would work best in folks who are first diagnosed as a way to prevent symptoms from worsening. Also, I think it would possible to get therapy to improve overall walking, balance, and stability and then progress to fast walking as a way to improve things further and to maintain. I’d encourage you to also watch Johns video mentioned in the description. He discussed helping a man that came in to a conference in a wheelchair and he helped him to walk. Sounds crazy, but I do think it’s possible with what he terms as “intentional movement.”
I have the same issue with walking. I have been on a stationary bike at the gym. Five months in, an hour a day, now doing over 11 miles in an hour. This has helped my symptoms greatly.
Earl you bring up an excellent point with the cycling… The reciprocal pattern required for a bike is actually the same pattern of motor movement needed for walking, namely, as one leg is withdrawn the other must extend and then retract/withdraw. The cycling can reinforce walking movement patterns both at the brain level (Central Nervous System) and at the spinal nerve root level (Peripheral Nervous System). All this to say, doing the cycling and then immediately trying to walk BIG could be a way to work on increasing your walking little by little
@@earlmooch9569 I get on one of the bikes at the gym. Just to warm up, and I do .5 miles in under 10 min. Then I work out with weights fore 25 to 30min. Sounds good.
Thank you Osmond. While I am surprised that this is the first complaint about music on this video, I do recognize that background music may not be the best choice for these types of videos. In the future I will be amending that.
@@parkinsonsdiseaseeducation What a childish response. It does you no credit at all. I dislike background music too, btw - it's bloody annoying when you're trying to absorb information. If you were giving a lecture in a lecture hall would you have music in the background?
I appreciate your comment Michael. I’ll be the first to admit that I was quite irritated by Osmonds comment, not because I don’t want or welcome feedback, but that the tone in which is was written basically stated in my mind that this was the only thing that was noticed about the video to him. I am not offended that he didn’t like the music, but a blunt “the music is irritating and distracting” is not as well received as “the material in this video is good, but in the future would you mind not having music in the background?” I do listen to feedback, as I don’t include background music any longer and that’s been the case for a while in more recent videos. So, thank you, I respect your opinion and I recognize that I could have worded my response more charitably and avoided a rash reaction. I will amend my prior comment and unpin from the top
Hi Glen, I hadn't heard of this until your question prompted me to look this up. This is fascinating! I can't wait to see what they come up with in human trials. Looks like so far the experiments have been only animal at this time, but seems like they are looking for trial participants.
Well I literally looked up Zhittya Genesis website and they are the ones that said that they haven’t had results form human trials… maybe the results just aren’t published yet depending on the phase of the trials. Do you have a resource?
No need to be snide sir. I didn’t have much time to thoroughly look this up as I only heard about it from the above comments. Would you be so kind as to share those video links here in the comments for others to see?
Supplementation is a great way to manage symptoms of PD. As you pointed out, high dose B1 can be a great help. Others include glutathione and mecuna puriens. Again, the intent of this video is to discuss the anecdotal claims of one person. I do not advocate for fast walking, or any exercise, being the only way.
There may be a remote possibility that he was mis-diagnosed, but he has been examined by multiple physicians who have confirmed his diagnosis. So I doubt that he was mis-diagnosed. I think his is a case where he found the best weapon for HIM in fighting against PD and it has really worked to keep things at bay for going on 3 decades. As I say in the video, results vary. Some individuals do very well on high dose Thiamine (B1) and others do not. It is not always predictable.
Hey Violet. Actually GDNF is produced naturally in the brain and tends to be produced in higher amounts with intense exercise regimens. That said, there’s no guarantee you could totally reverse PD with routines such as fast walking. I made this video not to discount the possibility but to recommend using caution before believe everything you see online about so-called cures for PD. What I can say is John Pepper is real, his experience is genuine, and in his case fast walking changed his life
@@parkinsonsdiseaseeducation Ambroxol, yes, it's on phase 3 trials... It triggers enzymes that fight the disease. It also eats away at ASyn aggregates that lead to a worsening of the disease. Seems like thiamine does the same thing, I took both separately and they both seem to work. Bovine Colostrum fights gut inflammation, which is often a comorbidity of the disease. If you have gut inflammation, toxins from food etc cause damage to the body, making your situation worse. Colostrum fights leaky gut. Enzyme deficiencies and leaky gut seem to be two culprits of this disease. Which is why diet and exercise is said to be important. I'm assuming exercise helps generate enzymes, and diet would cut down on inflammation and toxins. I'm mostly on a mediterainian diet now also.
Yea this all makes complete sense regarding gut health and very interesting that the ambroxol helps to break up Alpha-synuclein! Thank you for sharing!
Do you mean this supplement protocol? I’m not familiar enough with it to give you a specific recommendation. If you are talking about John Peppers book I can send you a link.
Hi there Dewanund. 👋 I personally wouldn’t be able to predict the prognosis of your Parkinson’s disease (assuming your tremors are due to Parkinson’s) as that does seem to be a very individualized experience. The generality of the situation though is that those with tremors tend to have a slower overall progression of PD and those who are actively working to modify the disease profession with intense exercises, increased physical activity, diet modification, etc will also tend to be able to slow the progression greatly
I am a 38 yr old person ,I am quite not sure whether I have PD or not,At times I have Tremors,but mostly I am without tremors ,I am not sure whether I have PD or not
Thanks for your comment Alan. Did you watch the video fully? I ask that first, because the reversing PD with fast walking isn’t my claim. Percentage wise I am not sure I can even give a rating, as in my opinion this is purely anecdotal regarding the gentleman discussed in the video. I think terms are also needing definition in this case. By “reverse” I think John means his symptoms haven’t progressed or have improved enough that he has kept things significantly at bay with fast walking. You can’t “reverse” a disease process with no known origin, but you can greatly slow it down and also protect other neurons from dying. That’s what the role of GDNF is as a neuroprotective factor. I’d personally like to see more research done in this area, as it seems scarce. I hope I’m wrong, but as far as I know there is no research that shows this to be true in numbers significant enough to make changes in the way the disease is managed. Unfortunately I’m also enough of a realist to recognize that money also drives decisions in medical treatment and in drug prescription so… will they ever find a cure for PD? If they do I fear they may not reveal the secret.
My wife died last year from Parkinson’s in year 22 after her diagnosis , on her death certificate the cause of death listed is “Parkinsonism”, my feeling is that dementia once it set in escalated her demise . We tried everything imaginable to reverse dementia to no avail at her major Parkinson’s treatment clinic. Movement training and exercise were paramount in her living a fairly well and productive life for 15 years and oft forgotten ,lots of hydration .
@kittbarnes8121 what you say is true, because sadly not all persons with PD progress at the same rate. I’m sorry for your loss, I’m glad that exercise helped her for the first 15 years, as it should. I assume you watched the whole video, but I hope it came across that I am skeptical of the claims that John Pepper makes about his PD journey.
Fast walking is not high intensity exercise. High intensity training is a strength training approach of maximal effort and intensity design to produce rapid muscle and strength gains. Fast walking is not considered to be high intensity cardiovascular exercise, either, as it would most likely not even exceed the lactate threshold. Fast walking constitutes zone two cardiovascular training.
I would invite you to consider that while fast walking may not be considered high intensity for those who exercise regularly or are more athletic, for a person with PD who may be starting a regular routine post age 65 for the first time fast walking may very well enter a category of high intensity based on aerobic capacity and on Borg perceived effort scale. High intensity exercise isn’t defined by having to contain muscle strengthening or any particular timeline of how quickly strength is gained. HIIT workouts come in various forms and contain various numbers of exercise and must be tailored to the population at hand. Take for example an individual with CHF. They can’t work out at 80% aerobic capacity because of danger of exacerbating their condition. A “high intensity” workout for them might be done at 30-40% capacity and progress to 50-60% which is moderate at best for most individuals. Same with strength training. You can’t start at 80% 1RM with an individual who has chronic diseases. It may have to be 30-40% and progress to 50 and then 70, etc. All of that said, for a person with YOPD/EOPD a much more intense workout is going to be more beneficial and should be done as early as possible to slow down disease progression. In these cases, HIIT is a great option as well as other high intensity programs such as LSVT BIG. But when more dopamine has been depleted from the brain, after many years of PD or with late onset after age 65 or higher, it takes much much higher effort just to get the same level of movement as a person without PD, let alone adding weights, and other challenges.
I am sorry to hear that you have difficulty walking. Try not to be discouraged, Parkinson’s will always make walking a difficult task, but high intensity exercises help. At 41 there is a lot you can do
The dose that Dr Costantini recommended for those that want to follow the high dose thiamine protocol is 4G a day of thiamine hydrochloride , not 100mg of thiamine mononitrate
Daphne Bryan has the same access as you or I to the protocol of the late Dr Costantini, the original protoco has not changed since the doctor died. Daphne at 100 mg of thiamine mononitrate is not following the original protocol (dose or substance) no matter which Doctor she is currently talking to. i@@parkinsonsdiseaseeducation
Hi Sarbani. I’d suggest low impact type of exercises. She can try exercises from LSVT BIG or PWR! These programs address flexibility, balance, muscle endurance, posture, walking, and can build stamina. They would also help to increase dopamine and GDNF
Hi Manuel. I cannot tell if this is a question or a statement. The short answer (if this is a question) is this: High intensity exercise can potentially provide a chance to possibly reduce or stop medication. I do not advise stopping or reducing medication without consulting with your neurologist.
Honestly walking fast can often be easier than regular walking for folks with PD. Skipping and jogging or running can improve ability to walk where normal walking is smaller and more difficult. It’s a different neural pathway to walk fast than to walk at a regular pace. If you tell yourself to walk BIG you will improve stride, arm swing, and speed without focus on fast walking. It’s about effort level
Hi Dr. my dad's hand is start shaking a bit like since 2 months ago and now we r worring ,he is 64 and we r worry about him .is that parkinson ?how we should make sure ha has it ?thx for answering - if yes can he workout in gym like light bodybuilding
Thank you for your questions. A tremor by itself may not be Parkinson’s Disease and could be onset of benign familiar tremor or essential tremor. But it it best to rule out other conditions. The best course of action is to see a neurologist, preferably a movement disorder specialist, to do a thorough examination. If he does have PD then he needs to get evaluated by physical therapy, occupational therapy, and speech therapy to get a plan of action. Exercise is of course a crucial part of treating PD
I 64 n went for brain mri to see if I in fact have pd. I was healthy all my life, my married this last weekend, I could hardly dance w him. It's effected my daily routine. Be careful depression doesn't set n. I will start back at gym light weights. I also on vitamin b1 etc
Hi Daisy! Great question. All movement requires a higher effort level with PD, even movements that for a person without PD would be second nature. Exercise programs that really help to improve the movement in PD require a higher effort level, thus the term forced, intensive exercise. For example, with LSVT BIG, folks don’t move as big as they should, and even with the therapist modeling the size movements that are ideal it sometimes takes a combination of modeling, verbal cues, and tactile shaping cues. Plus repetition for the 4 week protocol gives ample practice under the guidance of a therapist. Eventually when the patient recognizes how big they need to move they can get there with a higher effort level of movement. The brain recalibrates what “normal” feels like and then they can internalize that effort level. Fast walking is no different. Just because the disease results in more slowness of movement doesn’t mean that a person with PD can’t muster up the effort to make it happen. Hope that makes sense.
John Pepper is wrong on this silly theory. And many people with PD who know him don’t even believe that he has PD. Even if GDNF DOES protect neurons - which the presenter can’t find evidence for at Mayo, surprise surprise- It doesn’t matter which cardio activity you choose: the key is 80% of maximum heart rate and frankly this is very very hard to keep up for 20 mins +. Most people just can’t keep this cup in their 60s, 70s etc. when I was diagnosed I thought Pepper was a gift from heaven. I walked my butt off but gradually got worse and worse. And btw I measured my heartbeat once during one of these walks and at no point did it reach the magic 80% outlined above. When you provide him with this sort of evidence he’ll always blame you for its lack of efficacy: either you walked too slow, or too fast, or you didn’t rest in between days. Most people who’ve followed his lead haven’t had great results from it. He’s not a charlatan, he believes he’s right, but then he always does and irritates others beyond measure. I’ll tell you what: those of you who claim that it’s ‘working’ for you, come back in 3 years and tell us that you’ve not progressed in this period eh? I won’t hold my breath.
I’ve honestly been skeptical from day one. I tried to present this in as unbiased of a manner as possible. I once challenged him regarding diagnosis and suggested that there are simple tests to determine proof of having PD currently. He became very defensive. Not surprised really
Do you have a source that explains exactly what homeopathy is effective, dosages + rationale? I don't know where to start on this front. Much appreciated.
@sarahlange8989 I have to admit that I am not well versed on homeopathic treatments for PD. I’d look into Dr Laurie Mischley and her work. She is a Naturopathic physician. seattleintegrativemedicine.com/
Why not music? This isn’t the only channel to have soft background music during presentations. Sorry it’s not to your liking. Haven’t seen any complaints on this video before this week…
I’m sorry but I’m going have to disagree with you . Your friend didn’t reverse or even eliminate Parkinson’s from his life he might just have a mild form of the disease that allows him to go on with his daily life without thinking about the symptoms. I know myself that there is no cure for Parkinson’s disease because I have a unique form of the disease myself, since starting at home therapy I walk around here often and I still have symptoms and I’m on a heavy dose of medicine, I have to take 15 extended release tablets daily
Hi Michael! 👋 The funny thing is, you aren’t disagreeing with me haha. The title is meant to grab attention and honestly is borrowed from John Pepper himself. Neither he nor I are meaning to say that PD is truly going away. But in his case fast walking has kept the symptoms at bay such that he only needs an MAO-B inhibitor rather than levodopa. He stated recently that when he stops exercising the symptoms get worse. So nobody is claiming that he doesn’t have PD any longer, just that the symptoms are managed through fast walking routine.
Great information in this video-thank you! 🌿 Your knowledge about Parkinson's is invaluable. Planet Ayurveda’s supplements have really helped reduce my symptoms
Cure is not a word used in this video. Reverse means improving the symptoms and keeping them at bay, not eradicating the disease. Just wanted to be clear that John Pepper isn’t claiming that, nor am I. I hope you watched this whole thing to see the perspective offered on my part
Did you actually watch this video? John Pepper’s book is literally called “Reversing Parkinson’s” so I’m not the one who is potentially misleading. If you watched the whole thing, you’ll see that I’m trying to protect the PD community by advising that you should exercise caution in believing everything that you see and hear about treatments for PD. There are a lot of snake oil salesmen out there. I’m not saying John’s methods don’t work, I’m suggesting that further research would be indicated to show the entire medical and scientific community that intensive exercise can “reverse” the symptoms of PD. Id suggest reading John’s book and judge for yourself.
Hmmm … in my opinion, after watching this episode twice through the past 2 days, I feel the best service you can provide the PD community - is to take the posting down! To your credit, you emphasize the anecdotal nature of everything you are, or will cover. Why then - do you, out from nowhere - bash High Dosage Thiamine (B1) usage? Especially when there is a significant amount of an edit Al reports, along with a broad variety of formal, all-be-it-limited clinical studies easily available to review? It seems you may be assigning B1 to snake oil, which for one, I take offense. Simply - I don’t understand what I felt was a cheap shot that might cause unwarranted fear, uncertainty and doubt.
I want to understand this. Where in this video do I “bash” B1 Thiamine therapy? When mentioning any treatment method, particularly supplements, my only intent is to give the advice to proceed with caution and to not expect the same results as another individual with PD who is doing the same thing. B1 works really well for some people, but not others. I was not intending to compare that to anything else or to suggest that B1 therapy should not be attempted to ease symptoms. I can’t help that maybe what I said was misunderstood or taken out of context. I rewatched the part of the video that you are referring to and I did not say anything negative about High dose B1 therapy. I said that fast walking may not work for everybody with PD just as B1 may not work for everybody with PD. My friend David who has the Life with Parkinson’s Channel, and he is a PWP, has said himself that B1 didn’t work for him. Is he bashing the treatment altogether? Absolutely not… and neither am I. Here is his video on the subject: th-cam.com/video/hYkdOGFraU8/w-d-xo.html
Yes, perhaps I overreacted. Starting at timestamp 4:30, you refer to JP’s fast walking anecdotal evidence. You the continue: “… that is not to say that is proof that it (fast walking) will work in all persons with PD - any more than HDT or Vitamin B1 might work [for others.]. Your HDT statement seemed to appear out of the blue, especially when the intent of the post was presumably wholly focused on JP’s fast walking. There wasn’t any HDT follow-up. Both my wife and I were stunned by the one-off subject change. I continue to feel the out of context stmt risks promoting FUD, especially as I personally, appear to be benefiting from HDT.
I certainly apologize if what was said sounded like I was in opposition to that in any way. I could have stated it more clearly. At any rate, I promise to do a future video covering B1 Therapy and make it clear that it could be a viable treatment option to supplement existing PD treatment, which I do believe!
Appreciated. Funny thing about investing B1 - when by pill, a significant % will not get to where it’s needed ‘cause the digestive process will “digest.” Sub-lingual absorption seems to work really well with relatively low, low dosage, compared to oral consumption of pills.
Watch the video in its entirety and then we’ll talk. You’re basing your comments on the title alone, which is meant to cause curiosity so that you will actually listen to what is being talked about.
Does anyone have suggestions for underweight folks who have difficulty putting on pounds? Intense walking or any cardio will burn a lot of calories. Even just doing the LSVT Big exercises daily and a half hour of tai chi - and the weight can sometimes drop. Any suggestions? We eat gluten free, but not carb free. We never eat out - and don't eat junk, but I do use local raw honey in milkshakes made to substitute for Ensure - which is loaded with gobbledygook. Helpful thoughts would be greatly appreciated.
Hi Adrian, I waited for days to answer just to ensure that others didn’t have anything to contribute. I wanted to ask you, regardless of food type what is your estimated total calorie intake daily? Glad to hear you are trying gluten free as that will be great for reduction in inflammation and that can greatly aid in reduction of PD symptoms. One other thought, it might benefit you to add some resistance training with weights or bands. Muscle mass tends to drop with PD over time and that can also make weight loss possible.
The only research you need is under your own brain stem. Get out and give it a try. 1 hour every other day walking as fast as you can and keep it going. Hell, get a long-legged dog.
![[#2024MAMA] ROSÉ (로제), Bruno Mars - APT. | Mnet 241122 방송](http://i.ytimg.com/vi/dgGqD28J6aQ/mqdefault.jpg)
I have had Parkinson’s for 8 years. When I was diagnosed I had a severe gait, couldn’t sign my name, couldn’t move and double click a mouse. I got into the short of pickleball, a very aerobic exercise. As a result of this exercise my walking has improved, my balance is pretty much normal again, I can sign my name and use a mouse. My worst symptoms of hand and leg tremors have improved significantly and I actually have moments where I have no Parkinson’s symptoms at all. So, for me exercise certainly does improve Parkinson’s symptoms to the point where they are momentarily gone. But here is the kicker,it has to be sustained aerobic exercise with elevated heart rate for at least 20 minutes 3 times a week. Simply walking has shown NO visible change in symptoms for me. I’m 58 and now I play pickleball 6 times per week for 2 hours at a time. What I have found is that I get longer and longer periods of symptom relief. I don’t know how it works but there is no doubt in my mind that intense exercise is the best way to manage Parkinson’s symptoms.
If interested, find the YT interview where the older guy with long term PD w/ a severe PD decline has cured himself of , it seems, 90 to 95% of PD , with a keto diet. He didn’t give those numbers but based on how much he’s improved, (if not back to normal now), that’s my guess. Incredible success story.
A😊😊😊
😊😊
@@janetpattison8474 Carnivore is reported to help disappear Parkinson's symptoms al;so.
I have had P D for 20 yers. I retired and moved to The Villages Fl line dancing’s is very popular in The Vi
In 2008. In The Villages line dancing is very popular.. I would take classes during the day and go to the Square and line dance almost every night. The PD did not progress very down to much.
In fact no one could tell that I had it.
In 2016 I had ❤
I believe exercise is the biggest help for this horrible disease.
😊
to hav my left leg amputated above the knee. Since then I can’t dance or exercise very much.
The PD has progressed quite a bit. 1:42 ❤❤❤
You forgot to mention that one should be prudent and have a walking partner especially one that understands what is going on. My wife had Parkinson’s for 24 years. She started the symptoms when she was 42. She walked a lot , did exercises for the vocal chords , legs, balance, with music, with percussion instruments. We did games that I invented. We did everything together. Alas, the end had come for her in 2010,October ! Thank you for your work . From my heart to yours, Michael ❤️🎶
Great reminder John Michael. I’m sorry for your loss. It sounds like you did everything to support her in the best ways possible in those 24 years
I hope you’ve seen the YT interview w/ the older guy w/ PD for many years, and was declining very badly, and he has almost completely reversed the disease w/ the keto diet.
@janetpattison8474 I can believe the keto diet making positive impact on PD due to the near elimination of processed sweeteners, gluten, and other inflammatory foods
Hi - I'm 59 and was diagnosed 3 years ago. Upon diagnosis I immediately realized that i had been fighting the symptoms for at least 25 years. As a elite triathlete my training for sure delayed my diagnosis. 3 years post diagnosis I'm not on any drugs and still train at a high level but I have clearly slowed down by 10% or more. A combination of zone 5 and zone 1 training plus resistance. All totaled 10 hours + of performance exercise. Parkinsons will win but hopefully i can avoid drugs and preserve my lifestyle for years to come.
Good for you! Stay strong and keep you the great work
if you eat to regrow the myelin you will conquer it. Do not make it your disease. Some have done this.
@@trysportuniversity5708 Hi I’m also 59 and I have had PD for 8 years or more. Congratulations you actually, inadvertently discovered the BEST way to slow the progression of PD, aerobic exercise. I discovered that by noticing improvements in my movement and balance after exercising, and I later found some medical papers stating the same thing. Good job. Hopefully you can get away without using drugs for a while but I do have one word of caution. When you start exhibiting symptoms of PD approximately 80% of the dopamine in your brain is gone. Since dopamine is the happy chemical when it gets deleted you run the risk of going into clinical depression. It happened to me and is a world of hurt that you don’t want to experience. So find yourself a neurologist and get a prescription for levodopa, just in case. Monitor your thoughts and behaviors and if you notice prolonged negative thoughts or difficulties doing things that you normally enjoy, like exercising. It’s not you, it’s dopamine depletion in your brain. Start taking levodopa, but not to much. To much will give you dyskinesia and vivid dreams. For example I take 300 mg per day. Good luck and take care.
PRAY FOR HEALTH 🙏😇
I was 66 years old when a fentanyl impaired driver crashed headon into us. I had catastrophic injuries- - compound fractures of left and right knee, left humerus, left trochanter and smashed pelvis sticking out of my body. I had 5 burst thoracic vertebrae. Most ribs broken and jaw ripped off my face. All in all 18 broken bones, collapsed lungs, and traumatic brain injury. I died several times but they kept resuscitating me. After 30+ units of blood, many surgeries, and several weeks in a coma and having 3 strokes I awoke and was paralyzed. This is not the worst of it; the perp killed my beautiful wife of 39 years. I was in a nursing home for seven months and eventually learned to walk again. Then there was a criminal trial where the perp dragged out proceedings for three years only to be given a slap on the wrist. This was 3 years of torture. Finally I started getting tremors and numbness issues. I was finally diagnosed with PD 3 years ago and put on sintemet.
Doctors say the injuries triggered the PD, but I think it was more the trial torture for 3 years. Today I can slow walk with a cane up to mile. And I can workout on a rowing machine, stationary bike, and an exercise machine. I do my own yardwork and mowing but if I fall I can't get up. I take alot various supplements and avoid refined carbs and bad oils. I have bad pain episodes, but make sure to workout in my home gym every other day which is key to fighting off PD. I wish I could do more rigorous activities but just can't. At 74 I'm holding my own.
🌞
I'm so sorry that you had to suffer through this trauma. I've heard of cases of both physical and mental trauma resulting in triggering PD. You can only do what you can do, so keep up the good work on whatever exercise you are able to get done. Anything is better than doing nothing.
Good for you ! Just keep it up ❤
You r one Brave man!! I am 65 n just dx w PD. Painful legs pain left shoulder. I am going to red light therapy to help w pain. I don't feel a difference but this is my 1st week got the rest of this month. Will try the gym soon. I take my vitamins n MCT oil to help w memory. Hyper baryk oxygen therapy I wanted to try but too expensive for me
@@inezzbeadz
Thank you, but I don't know how brave, but I sure was angry and wanted to live long enough to see some justice for my dear wife and myself. The whole ordeal was a nightmare. Speaking of supplements I have good results from CoQ10, leafy green smoothies and now starting the high the high B1 protocol. Taking lions mane which is reputed to be neurogenic. I would like to know more about the red light protocol, too.
But yes, I would think hyperbaric O² treatments would be beneficial. Keep the faith, and keep exercising.
I’m amazed you survived such horrific trauma. Thank you for sharing your story!
Thank you. John Pepper has been advocating walking as an effective treatment for PD a very long time
Yes I am just now seeing him all over the internet haha. I would love to hear from more people who have adapted his technique
@@mindfulnesscoaching6048 walking dancing anything that keeps you moving.
I have always been a fast walker. I am now 70 and was diagnosed with PD about three years ago. Since that time I've increased my walking, taken up resistance training and begun supplementing with creatine monohydrate. There have been measurable benefits to all of these and progression of the disease has been far slower than I was warned it might be. I attribute that slow progression to the amount of work I'm putting in to fight the inevitable.
Without a doubt! You are absolutely right. 👍🏻
Op
Im now fast walking three miles every morning, and it's made a huge difference for me. I'm 65, and was diagnosed with PD four years ago.
Awesome. Good for you! Since you’re early in the diagnosis I think you have a chance to make the most impact. I’d highly recommend you look into some PD specific exercise protocols such as LSVT BIG, PWR!, or Rock Steady Boxing. These will address balance, flexibility, coordination, posture, etc more specifically than the fast walking. But keep up the good work on the walking!
@@parkinsonsdiseaseeducation 9
Nina Novakova why not 10?
❤
God bless John Pepper who found out about walking helps with parkinson.
I started FW a week ago, with my dog along for company. I'm up to a mile and a half, given my age and lack of any exercise I'm doing good.
That’s great!! Great feedback
My understanding is that John Pepper says the research he read stated that high intensity exercise, for at least 1 hour at a time, every other day, gives the body what it needs to create enough GDNF to support and enable his conscious movements. Any activity will work if intense enough and for an hour at a time. More than 1 hour, he says, does not help and the rest days are important. This is what I’ve gathered by watching his videos. And he says to work your way up to an hour by walking fast as long as you can, if that’s 2 minutes then do every other day for 2 min the first week, then the first day of the next week go longer, say 4 minutes, do 4 min that week and so on.
There is a lot of common sense to what he recommends in terms of gradually increasing the walking distance over time, etc. The issue I find is that I have been unable to find a study by Mayo Clinic (his citation) or anybody else so far that shows strong evidence of the GDNF increase. There has been research and it’s ongoing, but there isn’t statistically significant proof that GDNF increases more with fast walking than, say, an intense cycling program, or PD-specific exercise and therapy programs that are high intensity for short bouts. I’m not saying it isn’t true, I’m merely pointing out that more research needs to be done to truly show a link. I talked about all of this in the video, but it’s worth discussing here again. Thanks for your comments Mark!
A close friends father was diagnosed cancer riddled 12 lbs in his lymphnodes etc. Given 30 days to live. He decided to stop wearing his bee protective wear, when tending to his hives. Allowed to get stung because of research he did on cures. Lived for 18 years more, cancer free. During those years he treated others for free with different ailments. Parkinson's being one. People with extreme shakes would settle dramatically minutes after receiving treatments. Bee defensive -1 is one attribute the Bees have. As well as honey will kill the mold cells, because of basically starving it of water etc.
That’s pretty incredible! I assume since the venom has an immune response as well as a neurological one that it can settle the symptoms? I wonder how long the effects last
@@parkinsonsdiseaseeducation Yes, like I wrote above. Bees contain whats known as (Bee Defensive -1). And as you know mold has a whole host of side effects & more common then people think. And is rarely tested for, when it should be a priority. Pure honey has a high infinity for taking H2O out of the cells, killing molds. The Bees my friends owned in Pennsylvania were huge. He owned 120 hives. The Bees would know where to sting on the person, whether on the back or arm. And on the meridians, where they'd leave the stinger in. The effects would come about anywhere from 5 - 10 minutes. God attends to all things. 😁
@@franksam6818Would like to know more about it, please do let me know as one of my close relative is suffering from parkinsons
What a load of bloody crap if bees could help the NHS would be treating patients with it and would be saving thousands
@georgeking2369 YOU ARE VERY ENTERTAINING! Do you really believe that? They, the FDA, WHO, & CDC CAN NOT PATENT IT OR MAKE MONEY OFF OF NATURAL REMEDIES. Have you not learned anything these past 3 years??! Much love and lots of learning!
Bee stings also good for Rheumatoid Arthritis
I have a friend who has been involved in rigorous exercise since he was diagnosed in 2017. He runs a 3K every year as well. His condition hasn't reversed but it has helped sustain his lifestyle and dampened the progression.
Yes! Exercise, particularly high intensity, is crucial!
Is he on any medication, supplements?
@@parkinsonsdiseaseeducationhow is someone going to do high intensity having a disease that makes u slow and stiff?
Not sure about supplements. As far as I know, most recently he is only taking an MAO-B inhibitor
Believe me, it’s more than possible. Look up LSVT BIG
This is a great video that put me onto the subject. Thanks!
Thanks David, appreciate your kinds words and support as always
TH-cam has a video of a frail 82-year-old man with Parkinson's who could not walk but only sit and had the many other issues associated with it. His son as I recall convinced his mother to put him on a carnivore diet and after one month he was walking at a fast pace around the kitchen over and over again with his son in tow just in case he might lose balance which he didn't in the video. He also laughed as his wife teased him.
Another man (he has his own TH-cam channel as a result of his success) much younger and afflicted with Parkinson's for about 20 years to date (began in his 40's as I recall) who went on a carnivore diet (or keto diet) about eight years into his PD as I recall. He has reversed it to a great degree as you would not know he has it - no shaking, stiff facial issues, etc.). He had to quit his job when he was diagnosed with PD as it was that bad. He and three others are putting together the science behind his recovery.
My point: take it upon yourself to get better and do not rely on conventional medicine and the drug companies as they are inept and ridiculously expensive. People are successfully rescuing themselves and there is hope for you - you are no different. Something is out there that will help you improve greatly if not conquer it completely.
You are right! Carnivore diet is a ketogenic diet, as you said, and anything that helps create a state of ketosis in the body can do wonders to heal sick and damaged mitochondria and therefore slow down or stop cell death in the substantia nigra and virtually anywhere in the body. I just read the book “Brain Energy” by psychiatrist Dr. Christopher Palmer, MD where he dives deep into mitochondria and metabolic root causes of disease. I learned so much! And what you say is right on par with what he talked about in the book. I’ll link it here:
www.amazon.com/dp/1637741588/ref=cm_sw_r_as_gl_api_gl_i_EQMWQ4781AQ4627F8K4E?linkCode=ml2&tag=hylandptw079-20
@@parkinsonsdiseaseeducation Thank you!!!
I think walking in short increments at regular intervals is far more beneficial than doing straight 3 mile walks initially.
For example: Walking anywhere between 5-15 minutes first thing in the morning, then after breakfast, lunch, dinner and before bed is much more beneficial than doing a 3 mile walk or 5km in one go.
- Tip: 15 minutes of walking, 4 times a day will is equivalent to 60 minutes in total which is more than enough to complete your daily 10k steps.
I agree. Breaking things up is definitely realistic way to manage and conserve energy and still get the “reps” in.
Any exercise is good for you
True, BUT high intensity exercise that increases cardiovascular stress/workload and contains high effort does more to change the brain than certain other types of exercise. In short, if it doesn’t challenge you it doesn’t change you.
You do have to be careful though. I enjoyed a longer walk than usual yesterday, and am really paying for it today 😢😢 Got too enthusiastic unfortunately unfortunately.
Yes it’s important to pace yourself. And when it’s hot out it’s really important not to overdo it
My husband and I have bn dx’d with Parkinsons for 10 years. We started lumbar trike riding 2-3 hours per day plus large amt of B vitamins. We have had remarkable success. We are independent and symptoms largely reduced. Continue your research. 👍😉❤️ 5:14 .
That is excellent! High intensity exercise can vary in what types and in this case the cycling and supplementing seems to be a great asset to you and your husband. Keep up the great work!
Which b vitmains u r taking
As you stated that both you and your husband have been dx'd with Parkinson's then it makes me wonder if something in your shared environment that might have triggered the disease?🤔
How much vitamin b please help me help my husband😢
Research that I have done shows that a deficiency of Vit B1, which is Thiamin, seems to be a main factor influencing Parkinson's?🤔 Daily high doses of thiamin have Stopped many of the symptoms of this disease for some people!!
GDNF, as well as other BDNF (brain-derived neurotropic factors) increase in a ketone-rich environment; possibly, fast walking/aerobic exercise puts the body in ketosis, unless there is carbohydrate intake.
Thank you so much for helping us learn. I think John Pepper is terrific!
Thank you Mary Jo! I appreciate your comment. I should put a poll up on the community tab, but I'll ask you directly: Would a conversation with John Pepper be valuable to you all on the channel? It would be a chance to have questions answered by him directly.
Yes-this would be great!
@@parkinsonsdiseaseeducation
@maryjobell great! I’ll be reaching out to him then
😃@@parkinsonsdiseaseeducation
Excellent your video content. I hope you give people something better.
Thank you sir. I’m a bit confused by your comment though… you hope that my content is better than it is now? I don’t disagree!
Im going to help my wife with walking from UK thank you.
Glad this video inspired you!
Family history - grandfather, father, uncle, brother, sister. I have been having mild cognitive problems. I have been a walker doing 10000 plus steps a day. Plus other weight training exercises. Hopefully I am staving off PD
You’re off to a great start!
Thank you for the excellent information. I appreciated it very much.
One thing I was not sure was the music being loud and competing with the information. So distracting. I don't know why more youtubers are using music on the background. Maybe because some "expert" or algorithm says so.
Anyway, thank you for the information.
Sorry if the music was too loud, I actually don’t do that anymore. Glad you appreciated the information though!
It's not even Parkinson's right now. I'm thinking back to the date when my neuro first mentioned it, and that was about six year ago. So, I guess I've had Parkinson's for about that long at least. I have other medical problems that I'm trying to address, but I'm being run ragged by all the appointments, referrals, new people, getting rushed all the time, etc. I have a lot going on at home right now and I'm alone so it's just me trying to get a mountain of work accomplished. Yesterday I spent half the day trying to make two medical appointments, including with a PT, and all I could manage to accomplish was changing an appointment with my PCP. I've left messages for the others to please call so I can make an appointment. I have been disabled for 25 years, but I've never been this stressed over medical care. And nobody is listening if I mention the stress. None of them are listening. At this point, I trust my neuro and I'm not sure about anybody else. I can at least say I'm very lucky with neurologists. I've had two, and they both have been amazing. The rest are in such a hurry that they don't even know I'm alive. They don't even recognize that they're dealing with human beings. We're just a fast food meal being shoved down a broken assembly line.
I’m glad you have found good neurologists. In general nobody seems to have time for anybody in offices and people get run through like an assembly line or “a fast food” place as you put it. Thanks for your comment, I hope you find help with who you are looking to get connected with locally
Sounds really hard for you!! Especially if you're on your own and having to deal with all of that!! My heart goes out to you.
All the best. It's not easy Especially when you have Parkinsons and no energy!!!
People do not know the disease if they do not have the love to stand by a sick person. But there’s a lot of strength to be found there. Keep your spirits up cause research is advancing. Exercise is part of the solution. ❤
I hope you will do a video on high dose thiamine therapy for Parkinson's. My walking speed has improved greatly (and spontaneously) since I started it, so much that my partner noticed right away.
Thank you for the suggestion! That is a great topic. Are you in the group on FB that Dr. Constantini used to run?
That does seem like a significant amount. You’re right I think there are two groups
I would interview Daphne Bryan who wrote the book that outlines Dr. Costantini’s work.
Great suggestion. I’ve heard about her
how much thiamine do you take ?
❤ we are just beginning the diagnostic phase with our initial visit to the PCP. My husband was given a referral to a neurologist and the doctors emailed it over to that office. In an effort to be proactive, my husband called (our insurance does not require referrals to se a specialist) only to be told they needed the referral from the PCP before an appointment could be made. It would probably take two weeks for them to call, and then probably February before he can get in! I’m beyond angry. We have emailed our PCP and are hoping to get an appointment somewhere sooner. No wonder people turn to the internet to try and diagnose themselves. Exercise does seem to be important in living well with PD, thank you.
I know that must be so frustrating. Exercise is crucial in living well with PD, so you are correct! Please let me know if you have any questions that you’d like to see a video on
I didn't get any help from my Dr besides Physical therapy. I looked into it myself. Oxygen treatment I wanted to try but ins won't cover. So I just started red light therapy my first week
Thanks. I am in my 1st year of diagnosis. I also have been a daily exerciser for 25 years. I am 68 so I can't do the volume that I used to, including running since my knee couldn't take it anymore it, but I do a number of warmup stretches and then time on the rowing machine & stationary bike.. Exercise does seem to help.
Exercise is MEDICINE for PD. 💯 correct that it helps. Keep up the good work. Have you looked into any PD specific programs such as LSVT BIG, etc?
You might also consider saving this playlist: Parkinson's Disease Education
th-cam.com/play/PLw5LNHfk3CMnSdJkRfzY5AQvEE_hxsPWL.html
Hi
👋
@@CherylCharles-no7dgi
In my TH-cam channel, I work with the Microbiome. In humans, Walking circulates the lymph system carrying nutrients from the gut to lymph nodes (including the brain.) The lymph has no pump, such as the heart, which circulates the blood. We're finding the Microbiome produces neurotransmitters. Anything you can do to circulate remaining neurotransmitters seems beneficial.
The microbiome is SO important. What’s your channel I’d love to take a look. What you say makes perfect sense in light of the lymphatics and how they would carry nutrients to and from the brain in addition to the vascular system. I hadn’t considered the gut actually producing certain neurotransmitters
Rory Blake
Duh, I should have known that. I forget sometimes that accounts on TH-cam are the channels. Yours happens to be your name :-)
@@parkinsonsdiseaseeducation Put a link to your channel under my post. I liked what you do!
Thanks Rory! Did you mean the one on your channel about the walking?
There are 2 obstacles to my trying this out:
1. Aerobic exercise that's vigorous enough to make me feel energized causes a worsening of my arm tremors.
2. I'm trying to overcome fatigue, though often I am tired after exercise, not during, but the exhaustion afterwards really limits me.
Do you have any suggestions for those 2 obstacles?
Hey there! I wanted to follow up with a clarifying question, if I may. Are you exercising when your PD medication is at its best or when you are closer to wearing off? That make make a difference with the tremors.
As to your second barrier, it sounds like you might be struggling with fatigue. In that case you will need to pace yourself when starting a regimen of more intense exercise. See if my video on fatigue may be helpful: th-cam.com/video/5AM8426ruGA/w-d-xo.htmlsi=HXfxKJvZvYN3SkiL
Also, there is a link to John’s book on Fast Walking in the description of this video. Maybe try to follow his protocol and see how it works for you. I know he recommends incremental increases in walking time and distance.
I am so glad I found this video
I am too! I hope that this might be something you can try and see what benefit it has for you
Not big on walking. I can't walk across a room without losing balance, running into something, or falling. What I wanna know, is how is it I can get on my bike and have perfect balance and ride briskly on the road. Why? It makes me long to be on my bike always missing riding when I m not. It just doesn't make sense to me.
Walking as the "go-to" exercise may not be right for you, as John Pepper advocates, but it certainly is important to practice walking with BIG steps and BIG arm swings. That's what we would teach in LSVT. You can do BIG steps when using a walker even, so it isn't limited to those who can walk without a device. In answer to your bicycle question, this is a great question for a future video. Our channel members can submit questions to be answered in a future video.
Iam feeling very low and depressed and since 2yrs iam suffering from PD, Iam 40 yo female.....it started with left finger now my left arm and leg is having tremor.....and when i heard from doctor its progessive & the level of intensity and symptoms increase as time goes by is putting me in lot of fear ...i recently started with benformet forte...
Iam really scared if i will end up bed ridden
Keep your chin up Sanam. There is only reason to hope because you can do so much to keep things from progressing quickly. The only way is to keep as active as possible. Seek out community (such as here on TH-cam) and exercise exercise exercise. I hope this older video gives you some inspiration:
Do the Stages of PD REALLY Matter??
th-cam.com/video/J7mOEZNO2o0/w-d-xo.html
@@parkinsonsdiseaseeducation okay 🙏🙏🙏
Surfing has helped me tremendously
🏄♂️🤙
John Pepper video Reversing Parkinson's Disease... on Mind Moves Institute channel was worth watching, whether scientifically accurate or not.
Agreed. Which is why I provided a link to that video for all to access it. :-)
@@parkinsonsdiseaseeducation wayyy cool! 🌻🎈
Liked your vid too!
(got here from Pepper's)
I appreciate you saying so. Thanks for being here!
What about those facing symptoms of dementia or Alzheimer's, and tremors with dystonia, ataxia, and convulsions included with Parkinson's? TY
Hello! What are you asking exactly? Whether or not fast walking could help with these various symptoms?
The thing to remember is this: high intensity exercises benefit the brain and body the most when it comes to fighting against the symptoms of Parkinson’s and other disorders. Fast waking is just one potential method of higher intensity activity. For some, they may need more of a challenge and that’s ok, but walking will become more and more difficult over time without some method of challenging it.
@parkinsonsdiseaseeducation This answers my question. TY. I know someone who's bedridden and facing all of these symptoms that continue to manifest and worsen despite her labs and even MRIs show normal results. She does have spinal stenosis in the cervical region however with mildly bulging discs. But her symptoms are so bad that it impacts her speech and eating. ER visits lead to trauma as the Drs attempt to gaslight her accusing her of bad anxiety when she's in an antidepressant and anxiety meds and receives therapy. Her sleep is also deeply affected. She does have a neurologist BTW
@@inoshishi8 I am glad this answered your question. Reading your report about this acquaintance of yours is disturbing, as it doesn't sound like any of her healthcare providers are advocating for her and what she really needs.
@@parkinsonsdiseaseeducation Any of her providers that do wind up moving. Then she gets bad ones. It's partially why she's deteriorating. It even has herSuicidal because she can't control her own body lately. When she tries to reach psych help, the psych hospitals make her much worse. They also attempt to put her on antipsychotics. She can't handle any of them and has allergies to every single one of them. She doesn't have any psychotic disorders either. But the delirious, dementia like state, and her seizures that she just began having Feb this year at age 41, just to be accused of it being psychological when there's various other testing she never had done, is why she's EXTREMELYsuicidal.
Call me an extremist, nihilist, or even an existentialist, but as much as this would take an enormous toll on me if she passed away, I'd rather a Dr humanely administer her euthanasia and put her down just as vets do to suffering animals than force her to suffer intensely. Additionally, she's not even credible for hospice. And she's at her wits end and becoming wheelchair bound as we speak.
She's also my BFF and not acquaintance which is why I worry about her constantly. I stay out of state to be by her side more than I'm at home because of it. She has her mom too and it's draining her mom. As she sees us being drained esp her mom, the more it leads her to giving up on life due to it because she doesn't want to hinder our stress levels any further nor keep suffering so inhumanely.
Let me make myself clear though: this futile medicalSystem in USA has become a serious fascistSystem environment similar to a premeditated concentrationCamp scenario in the past 4 years! It'll only get worse if things don't get reversed soon. Too many ppl have dropped dead like flies already since 2020.
I walk with a walker.what do you think
Agree walking does help, acupuncture very beneficial and a clean gut...
How about MSA - Multiple System Atrophy ? Any information about natural things you can take.
I need to cover MSA and other Parkinson’s plus syndromes. I am not so well versed in supplements but could look that up
Contact report 578
'Billy' Eduard Albert Meier (BEAM):
Then the last question: You once said that there were natural foods that could prevent or simply slow down Parkinson's disease in a highly concentrated form. You mentioned vegetables that contain natural nicotine, which, when eaten, has an alleviating or preventing effect on Parkinson's disease.
Ptaah:
65. That is correct.
66. Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently.
67. A very effective extract can also be made from these vegetables, which can produce very beneficial effects.
Can you enlighten us to where this came from?
Fast walking sounds good. But what about those of us that have a hard part of walking?
I agree with you. I’d say that this would work best in folks who are first diagnosed as a way to prevent symptoms from worsening. Also, I think it would possible to get therapy to improve overall walking, balance, and stability and then progress to fast walking as a way to improve things further and to maintain.
I’d encourage you to also watch Johns video mentioned in the description. He discussed helping a man that came in to a conference in a wheelchair and he helped him to walk. Sounds crazy, but I do think it’s possible with what he terms as “intentional movement.”
I have the same issue with walking. I have been on a stationary bike at the gym. Five months in, an hour a day, now doing over 11 miles in an hour. This has helped my symptoms greatly.
Earl you bring up an excellent point with the cycling… The reciprocal pattern required for a bike is actually the same pattern of motor movement needed for walking, namely, as one leg is withdrawn the other must extend and then retract/withdraw. The cycling can reinforce walking movement patterns both at the brain level (Central Nervous System) and at the spinal nerve root level (Peripheral Nervous System).
All this to say, doing the cycling and then immediately trying to walk BIG could be a way to work on increasing your walking little by little
@@earlmooch9569 I get on one of the bikes at the gym. Just to warm up, and I do .5 miles in under 10 min. Then I work out with weights fore 25 to 30min. Sounds good.
The background music is irritating and distracting. 4:57
Thank you Osmond. While I am surprised that this is the first complaint about music on this video, I do recognize that background music may not be the best choice for these types of videos. In the future I will be amending that.
@@parkinsonsdiseaseeducation What a childish response. It does you no credit at all. I dislike background music too, btw - it's bloody annoying when you're trying to absorb information. If you were giving a lecture in a lecture hall would you have music in the background?
I appreciate your comment Michael. I’ll be the first to admit that I was quite irritated by Osmonds comment, not because I don’t want or welcome feedback, but that the tone in which is was written basically stated in my mind that this was the only thing that was noticed about the video to him. I am not offended that he didn’t like the music, but a blunt “the music is irritating and distracting” is not as well received as “the material in this video is good, but in the future would you mind not having music in the background?”
I do listen to feedback, as I don’t include background music any longer and that’s been the case for a while in more recent videos. So, thank you, I respect your opinion and I recognize that I could have worded my response more charitably and avoided a rash reaction. I will amend my prior comment and unpin from the top
@@parkinsonsdiseaseeducation Fair enough. Thank you for taking the time to respond :)
My pleasure!
Have you heard of anything with the medication FGF-1 ? From Zhittya Genesis inc
Hi Glen, I hadn't heard of this until your question prompted me to look this up. This is fascinating! I can't wait to see what they come up with in human trials. Looks like so far the experiments have been only animal at this time, but seems like they are looking for trial participants.
They have human subjects too...have been testing humans for several months..
Well I literally looked up Zhittya Genesis website and they are the ones that said that they haven’t had results form human trials… maybe the results just aren’t published yet depending on the phase of the trials. Do you have a resource?
@Parkinson’s Disease Education you did not look very hard...They have videos on TH-cam with human results thus far.
No need to be snide sir. I didn’t have much time to thoroughly look this up as I only heard about it from the above comments. Would you be so kind as to share those video links here in the comments for others to see?
What about suplementation like Benfothiamine (vit. B1) and Vit. B2 ?? I mean to reduce the symptoms of the PD?
Supplementation is a great way to manage symptoms of PD. As you pointed out, high dose B1 can be a great help. Others include glutathione and mecuna puriens. Again, the intent of this video is to discuss the anecdotal claims of one person. I do not advocate for fast walking, or any exercise, being the only way.
The comments below are so helpful!!!!
Could it be that Pepper's diagnosis was incorrect?
There may be a remote possibility that he was mis-diagnosed, but he has been examined by multiple physicians who have confirmed his diagnosis. So I doubt that he was mis-diagnosed. I think his is a case where he found the best weapon for HIM in fighting against PD and it has really worked to keep things at bay for going on 3 decades. As I say in the video, results vary. Some individuals do very well on high dose Thiamine (B1) and others do not. It is not always predictable.
Amazing! I wonder if this has to do with nicotine therapy, I’ve heard it may help reverse some of the symptoms (not smoking just the plant lol).
Hey Violet. Actually GDNF is produced naturally in the brain and tends to be produced in higher amounts with intense exercise regimens. That said, there’s no guarantee you could totally reverse PD with routines such as fast walking. I made this video not to discount the possibility but to recommend using caution before believe everything you see online about so-called cures for PD. What I can say is John Pepper is real, his experience is genuine, and in his case fast walking changed his life
Ambroxol, bovine colostrum or Benfotiamine
Take your pick
Have these been shown to improve symptoms of PD?
@@parkinsonsdiseaseeducation
Ambroxol, yes, it's on phase 3 trials... It triggers enzymes that fight the disease. It also eats away at ASyn aggregates that lead to a worsening of the disease. Seems like thiamine does the same thing, I took both separately and they both seem to work.
Bovine Colostrum fights gut inflammation, which is often a comorbidity of the disease. If you have gut inflammation, toxins from food etc cause damage to the body, making your situation worse. Colostrum fights leaky gut.
Enzyme deficiencies and leaky gut seem to be two culprits of this disease. Which is why diet and exercise is said to be important. I'm assuming exercise helps generate enzymes, and diet would cut down on inflammation and toxins. I'm mostly on a mediterainian diet now also.
Yea this all makes complete sense regarding gut health and very interesting that the ambroxol helps to break up Alpha-synuclein! Thank you for sharing!
Great info! Do you have source(s) I can refer to in sharing with PD friends not familiar with this approach?
Do you mean this supplement protocol? I’m not familiar enough with it to give you a specific recommendation. If you are talking about John Peppers book I can send you a link.
Thank you
My pleasure! Thank you Sally
I usuaĺly walk 4 to 5 km in 40m. My right hand tremors some 6mon back. Is it going to be ok doctor? Waiting for your answer.
Hi there Dewanund. 👋 I personally wouldn’t be able to predict the prognosis of your Parkinson’s disease (assuming your tremors are due to Parkinson’s) as that does seem to be a very individualized experience. The generality of the situation though is that those with tremors tend to have a slower overall progression of PD and those who are actively working to modify the disease profession with intense exercises, increased physical activity, diet modification, etc will also tend to be able to slow the progression greatly
😮@@parkinsonsdiseaseeducation9
M
I am a 38 yr old person ,I am quite not sure whether I have PD or not,At times I have Tremors,but mostly I am without tremors ,I am not sure whether I have PD or not
It could be, or it could be other conditions such as benign essential tremor
love this vid
I’m glad you did!
Hi. Can you say in percentage terms how sure you are that fast walking can reverse Pd? Thank you.
Thanks for your comment Alan. Did you watch the video fully? I ask that first, because the reversing PD with fast walking isn’t my claim. Percentage wise I am not sure I can even give a rating, as in my opinion this is purely anecdotal regarding the gentleman discussed in the video.
I think terms are also needing definition in this case. By “reverse” I think John means his symptoms haven’t progressed or have improved enough that he has kept things significantly at bay with fast walking. You can’t “reverse” a disease process with no known origin, but you can greatly slow it down and also protect other neurons from dying. That’s what the role of GDNF is as a neuroprotective factor.
I’d personally like to see more research done in this area, as it seems scarce. I hope I’m wrong, but as far as I know there is no research that shows this to be true in numbers significant enough to make changes in the way the disease is managed. Unfortunately I’m also enough of a realist to recognize that money also drives decisions in medical treatment and in drug prescription so… will they ever find a cure for PD? If they do I fear they may not reveal the secret.
@@parkinsonsdiseaseeducation Thank you very much for the comprehensive comment
My pleasure sir!
My wife died last year from Parkinson’s in year 22 after her diagnosis , on her death certificate the cause of death listed is
“Parkinsonism”, my feeling is that dementia once it set in escalated her demise . We tried everything imaginable to reverse dementia to no avail at her major Parkinson’s treatment clinic.
Movement training and exercise were paramount in her living a fairly well and productive life for 15 years and oft forgotten ,lots of hydration .
@kittbarnes8121 what you say is true, because sadly not all persons with PD progress at the same rate. I’m sorry for your loss, I’m glad that exercise helped her for the first 15 years, as it should. I assume you watched the whole video, but I hope it came across that I am skeptical of the claims that John Pepper makes about his PD journey.
Fast walking is not high intensity exercise.
High intensity training is a strength training approach of maximal effort and intensity design to produce rapid muscle and strength gains.
Fast walking is not considered to be high intensity cardiovascular exercise, either, as it would most likely not even exceed the lactate threshold.
Fast walking constitutes zone two cardiovascular training.
I would invite you to consider that while fast walking may not be considered high intensity for those who exercise regularly or are more athletic, for a person with PD who may be starting a regular routine post age 65 for the first time fast walking may very well enter a category of high intensity based on aerobic capacity and on Borg perceived effort scale.
High intensity exercise isn’t defined by having to contain muscle strengthening or any particular timeline of how quickly strength is gained. HIIT workouts come in various forms and contain various numbers of exercise and must be tailored to the population at hand.
Take for example an individual with CHF. They can’t work out at 80% aerobic capacity because of danger of exacerbating their condition. A “high intensity” workout for them might be done at 30-40% capacity and progress to 50-60% which is moderate at best for most individuals.
Same with strength training. You can’t start at 80% 1RM with an individual who has chronic diseases. It may have to be 30-40% and progress to 50 and then 70, etc.
All of that said, for a person with YOPD/EOPD a much more intense workout is going to be more beneficial and should be done as early as possible to slow down disease progression. In these cases, HIIT is a great option as well as other high intensity programs such as LSVT BIG. But when more dopamine has been depleted from the brain, after many years of PD or with late onset after age 65 or higher, it takes much much higher effort just to get the same level of movement as a person without PD, let alone adding weights, and other challenges.
im41 i've got Parkinson n cant walk very well. feel disappointed to myself
I am sorry to hear that you have difficulty walking. Try not to be discouraged, Parkinson’s will always make walking a difficult task, but high intensity exercises help. At 41 there is a lot you can do
The dose that Dr Costantini recommended for those that want to follow the high dose thiamine protocol is 4G a day of thiamine hydrochloride , not 100mg of thiamine mononitrate
Hi Carol, I never said anything about what the protocol was for high dose thiamine in this video.
re-read his old website
Daphne Bryan has the most current information and she also is in close touch with a physician
Daphne Bryan has the same access as you or I to the protocol of the late Dr Costantini, the original protoco has not changed since the doctor died.
Daphne at 100 mg of thiamine mononitrate is not following the original protocol (dose or substance) no matter which Doctor she is currently talking to.
i@@parkinsonsdiseaseeducation
The dose and the protocol has not changed since Dr. Costatini died@@parkinsonsdiseaseeducation
where can i get more info
This is Johns website. I have no affiliation with him other than being connected on social media. www.reverseparkinsons.net
My mom is having arthritis..So she cant walk fast.
So whaat else she can do?
Hi Sarbani. I’d suggest low impact type of exercises. She can try exercises from LSVT BIG or PWR! These programs address flexibility, balance, muscle endurance, posture, walking, and can build stamina. They would also help to increase dopamine and GDNF
@@parkinsonsdiseaseeducation any reference where to get them?
THAT DOES MEAN WE CAN STOP OR REDUCE OUR MEDICATION?
Hi Manuel. I cannot tell if this is a question or a statement. The short answer (if this is a question) is this: High intensity exercise can potentially provide a chance to possibly reduce or stop medication. I do not advise stopping or reducing medication without consulting with your neurologist.
I can walk on my own i use a walker i walk fast our roads are very bad hence the walker 😊😊help
Hey, fast walking using a walker is better than not walking at all! Keep it up!
Good to know that fast walking can help in some fashion with PD.
Indeed, but as with many treatments or exercises… it isn’t everything
What if a person is unable to walk fast? I just found out, a friend of mine has PD.
Honestly walking fast can often be easier than regular walking for folks with PD. Skipping and jogging or running can improve ability to walk where normal walking is smaller and more difficult. It’s a different neural pathway to walk fast than to walk at a regular pace. If you tell yourself to walk BIG you will improve stride, arm swing, and speed without focus on fast walking. It’s about effort level
I live in south africa west rand
Thanks
Wow! Thanks so much Maria!
I walk fast with a walker😊😊😊😊
Hi Dr. my dad's hand is start shaking a bit like since 2 months ago and now we r worring ,he is 64 and we r worry about him .is that parkinson ?how we should make sure ha has it ?thx for answering - if yes can he workout in gym like light bodybuilding
Thank you for your questions. A tremor by itself may not be Parkinson’s Disease and could be onset of benign familiar tremor or essential tremor. But it it best to rule out other conditions. The best course of action is to see a neurologist, preferably a movement disorder specialist, to do a thorough examination.
If he does have PD then he needs to get evaluated by physical therapy, occupational therapy, and speech therapy to get a plan of action. Exercise is of course a crucial part of treating PD
I 64 n went for brain mri to see if I in fact have pd. I was healthy all my life, my married this last weekend, I could hardly dance w him. It's effected my daily routine. Be careful depression doesn't set n. I will start back at gym light weights. I also on vitamin b1 etc
Stickers are best 🇺🇦🧡
Stickers?
How can one walk fast when the essence of pd is making your slow.?
Hi Daisy! Great question.
All movement requires a higher effort level with PD, even movements that for a person without PD would be second nature. Exercise programs that really help to improve the movement in PD require a higher effort level, thus the term forced, intensive exercise.
For example, with LSVT BIG, folks don’t move as big as they should, and even with the therapist modeling the size movements that are ideal it sometimes takes a combination of modeling, verbal cues, and tactile shaping cues. Plus repetition for the 4 week protocol gives ample practice under the guidance of a therapist. Eventually when the patient recognizes how big they need to move they can get there with a higher effort level of movement. The brain recalibrates what “normal” feels like and then they can internalize that effort level. Fast walking is no different. Just because the disease results in more slowness of movement doesn’t mean that a person with PD can’t muster up the effort to make it happen.
Hope that makes sense.
John Pepper is wrong on this silly theory. And many people with PD who know him don’t even believe that he has PD. Even if GDNF DOES protect neurons - which the presenter can’t find evidence for at Mayo, surprise surprise- It doesn’t matter which cardio activity you choose: the key is 80% of maximum heart rate and frankly this is very very hard to keep up for 20 mins +. Most people just can’t keep this cup in their 60s, 70s etc. when I was diagnosed I thought Pepper was a gift from heaven. I walked my butt off but gradually got worse and worse. And btw I measured my heartbeat once during one of these walks and at no point did it reach the magic 80% outlined above. When you provide him with this sort of evidence he’ll always blame you for its lack of efficacy: either you walked too slow, or too fast, or you didn’t rest in between days. Most people who’ve followed his lead haven’t had great results from it. He’s not a charlatan, he believes he’s right, but then he always does and irritates others beyond measure. I’ll tell you what: those of you who claim that it’s ‘working’ for you, come back in 3 years and tell us that you’ve not progressed in this period eh? I won’t hold my breath.
I’ve honestly been skeptical from day one. I tried to present this in as unbiased of a manner as possible. I once challenged him regarding diagnosis and suggested that there are simple tests to determine proof of having PD currently. He became very defensive. Not surprised really
@@parkinsonsdiseaseeducationhomeopathic medicines works excellent in parkinson's
Do you have a source that explains exactly what homeopathy is effective, dosages + rationale? I don't know where to start on this front. Much appreciated.
@@sarahlange8989 meet your nearest homeopath
@sarahlange8989 I have to admit that I am not well versed on homeopathic treatments for PD. I’d look into Dr Laurie Mischley and her work. She is a Naturopathic physician. seattleintegrativemedicine.com/
Why the music?
Do speakers play music when giving public presentations?
Is what you have to say not interesting enough?
Why not music? This isn’t the only channel to have soft background music during presentations. Sorry it’s not to your liking. Haven’t seen any complaints on this video before this week…
btw what is your facebook group?
Parkinson’s Warriors International. m.facebook.com/groups/pdwarriors/?ref=share&mibextid=SDPelY
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Thanks for your comment 🙏
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I’m sorry but I’m going have to disagree with you . Your friend didn’t reverse or even eliminate Parkinson’s from his life he might just have a mild form of the disease that allows him to go on with his daily life without thinking about the symptoms. I know myself that there is no cure for Parkinson’s disease because I have a unique form of the disease myself, since starting at home therapy I walk around here often and I still have symptoms and I’m on a heavy dose of medicine, I have to take 15 extended release tablets daily
Hi Michael! 👋 The funny thing is, you aren’t disagreeing with me haha. The title is meant to grab attention and honestly is borrowed from John Pepper himself. Neither he nor I are meaning to say that PD is truly going away. But in his case fast walking has kept the symptoms at bay such that he only needs an MAO-B inhibitor rather than levodopa. He stated recently that when he stops exercising the symptoms get worse.
So nobody is claiming that he doesn’t have PD any longer, just that the symptoms are managed through fast walking routine.
😊
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I have PD, but it's not Parkinsons Disease. I must have the wrong channel
🤔
Great information in this video-thank you! 🌿 Your knowledge about Parkinson's is invaluable. Planet Ayurveda’s supplements have really helped reduce my symptoms
Absolute nonsense.If Parkinson’s was so easy to cure it would not be the terrible scourge it is.
Cure is not a word used in this video. Reverse means improving the symptoms and keeping them at bay, not eradicating the disease. Just wanted to be clear that John Pepper isn’t claiming that, nor am I. I hope you watched this whole thing to see the perspective offered on my part
💌💌
A misleading and disrespectful waste of time. A shame to use such a title for those seeking help and hope.😢😢
Did you actually watch this video? John Pepper’s book is literally called “Reversing Parkinson’s” so I’m not the one who is potentially misleading. If you watched the whole thing, you’ll see that I’m trying to protect the PD community by advising that you should exercise caution in believing everything that you see and hear about treatments for PD. There are a lot of snake oil salesmen out there.
I’m not saying John’s methods don’t work, I’m suggesting that further research would be indicated to show the entire medical and scientific community that intensive exercise can “reverse” the symptoms of PD. Id suggest reading John’s book and judge for yourself.
Cue1
?
@@parkinsonsdiseaseeducation It's on the market now
This guy is a buzz kill. Why would you want to refute someone who is positive and gives hope. Can’t stand people who knock success stories.
No part of this video knocks John’s success story. It’s more of a “proceed with caution” as not all results will be the same for all PwP…
obviosly it isabny arobic
Yes, it would be a form of aerobics.
Can you really?
Well, that’s quite the question isn’t it? I’d watch the video to find out my opinion. Let’s just say, results may vary…
@@parkinsonsdiseaseeducation
Hmmm … in my opinion, after watching this episode twice through the past 2 days, I feel the best service you can provide the PD community - is to take the posting down!
To your credit, you emphasize the anecdotal nature of everything you are, or will cover.
Why then - do you, out from nowhere - bash High Dosage Thiamine (B1) usage? Especially when there is a significant amount of an edit Al reports, along with a broad variety of formal, all-be-it-limited clinical studies easily available to review?
It seems you may be assigning B1 to snake oil, which for one, I take offense.
Simply - I don’t understand what I felt was a cheap shot that might cause unwarranted fear, uncertainty and doubt.
I want to understand this. Where in this video do I “bash” B1 Thiamine therapy? When mentioning any treatment method, particularly supplements, my only intent is to give the advice to proceed with caution and to not expect the same results as another individual with PD who is doing the same thing. B1 works really well for some people, but not others. I was not intending to compare that to anything else or to suggest that B1 therapy should not be attempted to ease symptoms. I can’t help that maybe what I said was misunderstood or taken out of context.
I rewatched the part of the video that you are referring to and I did not say anything negative about High dose B1 therapy. I said that fast walking may not work for everybody with PD just as B1 may not work for everybody with PD.
My friend David who has the Life with Parkinson’s Channel, and he is a PWP, has said himself that B1 didn’t work for him. Is he bashing the treatment altogether? Absolutely not… and neither am I. Here is his video on the subject: th-cam.com/video/hYkdOGFraU8/w-d-xo.html
Yes, perhaps I overreacted. Starting at timestamp 4:30, you refer to JP’s fast walking anecdotal evidence. You the continue: “… that is not to say that is proof that it (fast walking) will work in all persons with PD - any more than HDT or Vitamin B1 might work [for others.]. Your HDT statement seemed to appear out of the blue, especially when the intent of the post was presumably wholly focused on JP’s fast walking. There wasn’t any HDT follow-up. Both my wife and I were stunned by the one-off subject change. I continue to feel the out of context stmt risks promoting FUD, especially as I personally, appear to be benefiting from HDT.
I certainly apologize if what was said sounded like I was in opposition to that in any way. I could have stated it more clearly. At any rate, I promise to do a future video covering B1 Therapy and make it clear that it could be a viable treatment option to supplement existing PD treatment, which I do believe!
Appreciated. Funny thing about investing B1 - when by pill, a significant % will not get to where it’s needed ‘cause the digestive process will “digest.” Sub-lingual absorption seems to work really well with relatively low, low dosage, compared to oral consumption of pills.
… injesting, not investing.
WHAT THE HECK ARE YOU TALKING ABOUT
GET A DAY JOB BRO
WALMART'S HIRING
Watched the video and you still don’t know what I’m talking about. Jokes on you. 😂 😂 😂
NONSENS.E...
WHAT SCHOOL DID YOU GRADUATE FROM
Watch the video in its entirety and then we’ll talk. You’re basing your comments on the title alone, which is meant to cause curiosity so that you will actually listen to what is being talked about.
@@trinitodbone Youve clearly been indoctrinated by the med system.
Hahahaha.
Does anyone have suggestions for underweight folks who have difficulty putting on pounds? Intense walking or any cardio will burn a lot of calories. Even just doing the LSVT Big exercises daily and a half hour of tai chi - and the weight can sometimes drop. Any suggestions? We eat gluten free, but not carb free. We never eat out - and don't eat junk, but I do use local raw honey in milkshakes made to substitute for Ensure - which is loaded with gobbledygook. Helpful thoughts would be greatly appreciated.
Hi Adrian, I waited for days to answer just to ensure that others didn’t have anything to contribute. I wanted to ask you, regardless of food type what is your estimated total calorie intake daily? Glad to hear you are trying gluten free as that will be great for reduction in inflammation and that can greatly aid in reduction of PD symptoms.
One other thought, it might benefit you to add some resistance training with weights or bands. Muscle mass tends to drop with PD over time and that can also make weight loss possible.
The only research you need is under your own brain stem. Get out and give it a try. 1 hour every other day walking as fast as you can and keep it going.
Hell, get a long-legged dog.
Can’t hurt. But research is still important. Claiming that this is a one size fits all treatment for PD is not very accurate.