Thanks so much for sharing your journey. I’m approaching my 1 year cancerversy. I’ve related to so many things you’ve said!! It helps hearing from someone that’s walked this road and can help guide those of us coming behind you 💗
congratulations on the cancerversary!! I am literally one month away from the 3 years since my diagnosis day - it has flown by! So glad to hear my silly little videos are helpful
For me, it was subsequent surgery and not the cancer that caused my hair loss. My carcinoma was surgically removed along with all my inguinal lymph nodes (just in case, but had not spread) and it seemed at the time, the only side effects after the surgery were both legs tended to stay quite swollen with lymphoedema. However, a couple of years after, I had to have several knee surgeries which didn't go so well (probably due to lack of lower body lymph nodes) with quite a lot of infection and over a month in hospital. Afterwards, I noticed my quite thick hair started getting thinner. Didn't fall out in clumps, just gradually seemed quite fine and "see-through" on the top. It has been that way ever since, about 10 years and never grew back thicker. But if that's all, I thank goodness it wasn't any worse. God bless you for sharing this with us and praying for you and all the commenters here that your health is stable and your future bright!
Thank you for the update sweetie! Your hair is gorgeous like you. My journey has just started, stage 2B triple negative breast cancer here just diagnosed Nov 5, 2020. Starting chemo dec 9, 2020 doing the same you did and doing genetic testing soon but double mastectomy is planned after chemo and I hope and pray they can save skin and my nipples as well for me to have implants. Thank you so much for doing these videos because it helped me not be in the dark to all of this new stuff but I’m learning as I go plus you have helped so much too.
Hi Nikki. Great you posted a new video. Been following your journey. I am 48 and now 1 yr after my last chemo. 7 months ago I had my healthy ovaries and f. tubes removed. Only tiny 3 scars. Almost invisible. But I am still doing my secondary breast reconstruction. Filing my expender. My boob almost normal size, I am so happy. When filling finished, then exchange surgery. Love your reconstruction. Looks like nothing has happened. The best of luck. Xxx
Welcome back! Thank you for your inspiring videos. I was diagnosed with HR-/PR-/HER2+ in December... itty bitty little tumor (2 cm). I don't have BRCA but I do have another breast cancer causing gene. I finished 6 rounds of TCHP 12 weeks ago and now just HP for a total of 18 rounds. Luckily the HP doesn't cause hair loss so it's growing back. I had a double mastectomy June 11th (OUTPATIENT!!) and two lymph nodes all of which were cancer free (YAY!). I have another surgery to replace my expanders hopefully in October. And of course... all this amid the CV-19 pandemic.
Congratulations. You are doing so well. Quite fast your surgeries . How often do you do your expansions ? Me every month. I see some women go once per week. I hope to have my exchange surgery by the end of this yeat.
@@chemt4684 I had two fills total, two weeks post surgery and two weeks later. I'm having them swapped out for permanent implants on Sep. 17th. Sounds like a pretty straight-forward procedure.
Thank you so much for the update. I was just thinking about you tonight and found your update. Your hair is beautiful, so glad you are doing well. My niece who just turned 30 just had her double mastectomy in May and is doing well. I have watched your videos which has helped me understand her journey. Thankful you are doing well.
Thanks for the update. I’ve watched all your videos.. more than once! I’m 17 weeks post chemo. Hair is growing back slowly! Sorry to hear about your hair loss, its looking very shiny and healthy you’d never know!
Yeah I felt like mine took foooreeeever!! And thank you - it looks really thick and healthy in this video as I’d just washed it. But it’s back to being thin again not even 12 hours later 🙄🙄
You are awesome and so strong, thank you for sharing your journey with us. I have been following you for a while. Also celebrated my one year cancerversary and just had my Total hysterectomy (preventative surgery) on Thursday, bounced back fairly quickly . But you really scared me with the reconstruction description as I had a lumpectomy and was considering double Mastectomy because I am also BRCA2. You have been unknowingly guiding me through the process and I am grateful for you! Try Watermans Shampoo and Conditioner. It is expensive but helps with regrowth.Best wishes and health! And praying that the lump is benign 🙏🏾💐🤍💜
Don’t be put off by the double mastectomy - even tho it was a long recovery, the reduction in fear of another cancer has made it 100% worth it! Plus I have a great pair of boobs, instead of killer tits 🤣😘 how are you coping with the hysterectomy. My doctor has advised an oopherectomy in about 8 years time. Even that scares me. Brca - the gift that just keeps giving 🙄🙄🙂
I'm going through telogen effluvium after being hospitalized and a lot of weight and blood loss. I wish my hair looked as good as yours. I've lossed about 70 percent of my hair, and I'm female as well. It's very depressing. I had such beautiful hair that people would tell me in line at the store. Now I have huge bald spots on top. I'm going to have to start wearing it back to cover the bald spots, which will pull on my hair more. I feel how you feel, and I'm sorry to any woman this happens to. It makes you feel ugly.
del sanhaji Hi I’m doing good. New symptoms this week is on/off bone and muscle which limits my movement and daily activities. I take medications for it however when it wears out is an ordeal.Thank you for asking. Have a good day!
Nikki! So great to see you back and love this video. Your hair is beautiful! I am now just over a year post-chemo for my TNBC. I rushed too quick to dye it (was a horrible mousy colour) and probably need to lay off the dye to let me hair establish itself again. Thank you for the video, you are looking amazing and best of luck with the scan.
I am soooooo tempted to dye it, but it's just in such great condition for once in my life, that I've managed to hold off!! And thank you - i'll keep you all updated on the results of the scan :) xx
Hey, I love watching you. I've finished chemo , had surgery and had a pcr to treatment. Radiotherapy next. I feel as though I have been dragged along a road with big bumps. Hope you are ok
Hi Nikki, thank you so much for posting your story. I'm so very happy to see you well and recovered. I'm also BRCA 1 + and will be having a bilateral prophylactic mastectomy this fall. If you're feeling up to it, could you share more about your overall surgical and reconstructive experience? Your videos have helped me so much!! Thank you!
I love your videos Nikki thank you for sharing 💕 you've really helped me with my TNBC journey. I had a lumpectomy 3 weeks ago and I'll be starting radiation next month. It's great to see you doing well aside from your hair hiccup. You look great!
@@gettingwiggywithit3500 Surgery went well and I'm healing nicely🙏 I am super excited and scared at the same time. Fear of reoccurance is not fun but I am really trying not to think about it. 😬 my hair is finally coming in 🙃 btw do you take collagen? That's what I've been taking and feel like my hair and eyebrows came in from one day to the next 😁
Thank you for sharing, I was diagnosed with TE in jan 2020 because of an concussion, still shedding but not as bad as in the beginning. Your hair looks stunning by the way, thanks for the tips😊
I too was diagnosed with breast cancer August of 2017. I had both invasive lobular carcinoma (primary tumor) and invasive mammary (ductal) carcinoma (microcalcifications were a mix) and I too had a double mastectomy. I was 36. Since you did the one and done surgery, did you too have the allergen implants that were recalled? That’s what I had. Actually having an ultrasound on Tuesday to check for rupture due to some symptoms and a few lumps in my non cancer breast. If you did get the recalled implants, did you get them removed? Thank you for sharing your story ❤️❤️❤️
Hi hun. Sorry for the late reply - I don’t have time to check this with a toddler 🤦🏻♀️ I didn’t have the recalled implants as far as I know. However, they do think I have the beginnings of capsular contracture so I may well have to have them replaced. I hope you are still cancer free 💕💕💕
Watching your video really inspired me. I found out I have triple negative breast cancer in June. I had a double mastectomy in July and Now going through chemo. Got great tips from you in many of your videos. I hope wiki doing well. Keep posting.
Hello 😃 just wondering why didn’t cold cap during treatment, my wife cold capped during treatment I helped her on every treatment she had really good results THANK GOD🙏 she going in for surgery for a lumpectomy next week then radiation then Tamoxifen. It’s been tough but I’ve been there every step of the way holding her hand she’s a fighter 💪 can I ask you what is the difference between a lumpectomy and a mastectomy when it comes to preventing it from coming back?
Hi. I wasn't given the option of a cold cap at the hospital - the hospital only had one and it was in use during my first treatment, so i chose not to and embraced the bald look. I don't think there is much difference as long as there are "clean margins" (area cut around the tumour). I was offered a double mastectomy because I carry the BRCA1 genetic mutation, which meant I had an 85% chance of getting another primary breast cancer, but having the double mastectomy DID NOT reduce my chance of secondary spread. Due to my cancer type (triple negative) I have a 25% chance of secondary spread within 5 years... after that it is unlikely to spread. But i know for different cancers these statistics are different, so best talking to your wifes doctors about the likelihood of secondary spread and timescales.
#Gettingwiggywithit I see, hospitals should really offer it more to patients it just sucks a they don’t God willing it gets better in the future. Well your hair looks beautiful now you look really good 😊 we had to rent the caps trough penguin cold caps and they were not cheap but it was worth it thank God! Hope all is well with you now like I said my wife goes in for surgery next week God willing everything goes good🙏
I am still alive and well :) still no news on my CT scan results - but here in the UK it tends to be that you only get feedback if there is a problem. I have an appointment with my oncologist mid october so fingers crossed another clear bloods screening and will get my results then. xx thank you for worrying about me tho!!
My oncologist wants me to have an oopherectomy (ovaries and Fallopian tubes) at some point before I’m 45. But our family has no instances of ovarian cancer (unlike BC with lots of cases of BC at very young ages) so I’m really not in any rush for that surgery. The temporary menopause I went into after chemo was enough to put me off rushing into surgical menopause. Hot flashes are no joke!!!!
My hair started falling out in December. And it’s slowed down the last month. But I have been taking vitamins for 2 months now and I think that’s partly why it’s slowed. It takes a while for the vitamins to take effect x
Thanks so much for sharing your journey. I’m approaching my 1 year cancerversy. I’ve related to so many things you’ve said!! It helps hearing from someone that’s walked this road and can help guide those of us coming behind you 💗
congratulations on the cancerversary!! I am literally one month away from the 3 years since my diagnosis day - it has flown by! So glad to hear my silly little videos are helpful
For me, it was subsequent surgery and not the cancer that caused my hair loss. My carcinoma was surgically removed along with all my inguinal lymph nodes (just in case, but had not spread) and it seemed at the time, the only side effects after the surgery were both legs tended to stay quite swollen with lymphoedema. However, a couple of years after, I had to have several knee surgeries which didn't go so well (probably due to lack of lower body lymph nodes) with quite a lot of infection and over a month in hospital. Afterwards, I noticed my quite thick hair started getting thinner. Didn't fall out in clumps, just gradually seemed quite fine and "see-through" on the top. It has been that way ever since, about 10 years and never grew back thicker. But if that's all, I thank goodness it wasn't any worse. God bless you for sharing this with us and praying for you and all the commenters here that your health is stable and your future bright!
Thank you for the update sweetie! Your hair is gorgeous like you. My journey has just started, stage 2B triple negative breast cancer here just diagnosed Nov 5, 2020. Starting chemo dec 9, 2020 doing the same you did and doing genetic testing soon but double mastectomy is planned after chemo and I hope and pray they can save skin and my nipples as well for me to have implants. Thank you so much for doing these videos because it helped me not be in the dark to all of this new stuff but I’m learning as I go plus you have helped so much too.
You look beautiful! Stage 3b survivor here too!! Keep up the good work 😘
Hi Nikki. Great you posted a new video. Been following your journey. I am 48 and now 1 yr after my last chemo. 7 months ago I had my healthy ovaries and f. tubes removed. Only tiny 3 scars. Almost invisible. But I am still doing my secondary breast reconstruction. Filing my expender. My boob almost normal size, I am so happy. When filling finished, then exchange surgery. Love your reconstruction. Looks like nothing has happened. The best of luck. Xxx
Thank you so much. Good luck with your exchange surgery xx
Welcome back! Thank you for your inspiring videos. I was diagnosed with HR-/PR-/HER2+ in December... itty bitty little tumor (2 cm). I don't have BRCA but I do have another breast cancer causing gene. I finished 6 rounds of TCHP 12 weeks ago and now just HP for a total of 18 rounds. Luckily the HP doesn't cause hair loss so it's growing back. I had a double mastectomy June 11th (OUTPATIENT!!) and two lymph nodes all of which were cancer free (YAY!). I have another surgery to replace my expanders hopefully in October. And of course... all this amid the CV-19 pandemic.
Congratulations. You are doing so well. Quite fast your surgeries . How often do you do your expansions ? Me every month. I see some women go once per week. I hope to have my exchange surgery by the end of this yeat.
@@chemt4684 I had two fills total, two weeks post surgery and two weeks later. I'm having them swapped out for permanent implants on Sep. 17th. Sounds like a pretty straight-forward procedure.
Thank you so much for the update. I was just thinking about you tonight and found your update. Your hair is beautiful, so glad you are doing well. My niece who just turned 30 just had her double mastectomy in May and is doing well. I have watched your videos which has helped me understand her journey. Thankful you are doing well.
Yvette Dunn thank you for the comment 😁 I hope your niece is recovering well. Xx
Thanks for the update. I’ve watched all your videos.. more than once! I’m 17 weeks post chemo. Hair is growing back slowly! Sorry to hear about your hair loss, its looking very shiny and healthy you’d never know!
Yeah I felt like mine took foooreeeever!! And thank you - it looks really thick and healthy in this video as I’d just washed it. But it’s back to being thin again not even 12 hours later 🙄🙄
You are awesome and so strong, thank you for sharing your journey with us. I have been following you for a while. Also celebrated my one year cancerversary and just had my Total hysterectomy (preventative surgery) on Thursday, bounced back fairly quickly . But you really scared me with the reconstruction description as I had a lumpectomy and was considering double Mastectomy because I am also BRCA2. You have been unknowingly guiding me through the process and I am grateful for you! Try Watermans Shampoo and Conditioner. It is expensive but helps with regrowth.Best wishes and health! And praying that the lump is benign 🙏🏾💐🤍💜
Don’t be put off by the double mastectomy - even tho it was a long recovery, the reduction in fear of another cancer has made it 100% worth it! Plus I have a great pair of boobs, instead of killer tits 🤣😘 how are you coping with the hysterectomy. My doctor has advised an oopherectomy in about 8 years time. Even that scares me. Brca - the gift that just keeps giving 🙄🙄🙂
Damn you got some shiny hair girl. Mine is 11 months post chemo and it seems shiny but yours is like a shampoo commercial lol
I'm going through telogen effluvium after being hospitalized and a lot of weight and blood loss. I wish my hair looked as good as yours. I've lossed about 70 percent of my hair, and I'm female as well. It's very depressing. I had such beautiful hair that people would tell me in line at the store. Now I have huge bald spots on top. I'm going to have to start wearing it back to cover the bald spots, which will pull on my hair more. I feel how you feel, and I'm sorry to any woman this happens to. It makes you feel ugly.
Happy to see you doing well. I’m currently going through my chemo journey now, thank you for the uplifting words. Thank you for the hair tips.
Good luck with your treatment darling xxx
Thank you. XXX
hows chemo treating ya? any side effects beside fatigue and hair loss?
del sanhaji Hi I’m doing good. New symptoms this week is on/off bone and muscle which limits my movement and daily activities. I take medications for it however when it wears out is an ordeal.Thank you for asking. Have a good day!
Happy to see you're still around... was a tad worried that things had gone horribly wrong, glad I was mistaken
Nikki! So great to see you back and love this video. Your hair is beautiful! I am now just over a year post-chemo for my TNBC. I rushed too quick to dye it (was a horrible mousy colour) and probably need to lay off the dye to let me hair establish itself again. Thank you for the video, you are looking amazing and best of luck with the scan.
I am soooooo tempted to dye it, but it's just in such great condition for once in my life, that I've managed to hold off!! And thank you - i'll keep you all updated on the results of the scan :) xx
Hey, I love watching you. I've finished chemo , had surgery and had a pcr to treatment. Radiotherapy next. I feel as though I have been dragged along a road with big bumps. Hope you are ok
Hi Nikki, thank you so much for posting your story. I'm so very happy to see you well and recovered. I'm also BRCA 1 + and will be having a bilateral prophylactic mastectomy this fall. If you're feeling up to it, could you share more about your overall surgical and reconstructive experience? Your videos have helped me so much!! Thank you!
Thank you for sharing, you have no idea how important your videos are to us. Stay well lovely
I love your videos Nikki thank you for sharing 💕 you've really helped me with my TNBC journey. I had a lumpectomy 3 weeks ago and I'll be starting radiation next month. It's great to see you doing well aside from your hair hiccup. You look great!
Ooooh how did your lumpectomy go? Are you healing ok? The end is in sight now....you must be excited for life after cancer 😘
@@gettingwiggywithit3500 Surgery went well and I'm healing nicely🙏 I am super excited and scared at the same time. Fear of reoccurance is not fun but I am really trying not to think about it. 😬 my hair is finally coming in 🙃 btw do you take collagen? That's what I've been taking and feel like my hair and eyebrows came in from one day to the next 😁
No I haven’t been recommended that. Maybe I will approach my GP about it. 🙂🙂
Thank you for sharing, I was diagnosed with TE in jan 2020 because of an concussion, still shedding but not as bad as in the beginning. Your hair looks stunning by the way, thanks for the tips😊
th-cam.com/video/xXaxlOT0T44/w-d-xo.html
Will it grow back?
I too was diagnosed with breast cancer August of 2017. I had both invasive lobular carcinoma (primary tumor) and invasive mammary (ductal) carcinoma (microcalcifications were a mix) and I too had a double mastectomy. I was 36. Since you did the one and done surgery, did you too have the allergen implants that were recalled? That’s what I had. Actually having an ultrasound on Tuesday to check for rupture due to some symptoms and a few lumps in my non cancer breast. If you did get the recalled implants, did you get them removed? Thank you for sharing your story ❤️❤️❤️
Hi hun. Sorry for the late reply - I don’t have time to check this with a toddler 🤦🏻♀️ I didn’t have the recalled implants as far as I know. However, they do think I have the beginnings of capsular contracture so I may well have to have them replaced. I hope you are still cancer free 💕💕💕
Watching your video really inspired me. I found out I have triple negative breast cancer in June. I had a double mastectomy in July and Now going through chemo. Got great tips from you in many of your videos. I hope wiki doing well. Keep posting.
I love ur videos....it's been long seen u.. please keep posting ur video
Thank you. I will try and post an update video soon for you all xx
Hi lovely....how did your appointment go, for the lump in your neck? hope all is well xx
Hello 😃 just wondering why didn’t cold cap during treatment, my wife cold capped during treatment I helped her on every treatment she had really good results THANK GOD🙏 she going in for surgery for a lumpectomy next week then radiation then Tamoxifen. It’s been tough but I’ve been there every step of the way holding her hand she’s a fighter 💪 can I ask you what is the difference between a lumpectomy and a mastectomy when it comes to preventing it from coming back?
Hi. I wasn't given the option of a cold cap at the hospital - the hospital only had one and it was in use during my first treatment, so i chose not to and embraced the bald look.
I don't think there is much difference as long as there are "clean margins" (area cut around the tumour). I was offered a double mastectomy because I carry the BRCA1 genetic mutation, which meant I had an 85% chance of getting another primary breast cancer, but having the double mastectomy DID NOT reduce my chance of secondary spread. Due to my cancer type (triple negative) I have a 25% chance of secondary spread within 5 years... after that it is unlikely to spread. But i know for different cancers these statistics are different, so best talking to your wifes doctors about the likelihood of secondary spread and timescales.
#Gettingwiggywithit I see, hospitals should really offer it more to patients it just sucks a they don’t God willing it gets better in the future. Well your hair looks beautiful now you look really good 😊 we had to rent the caps trough penguin cold caps and they were not cheap but it was worth it thank God! Hope all is well with you now like I said my wife goes in for surgery next week God willing everything goes good🙏
Hi Nikki. Which hospital you had your surgery?
Wolverhampton - new cross Hospital
Thank you 🙂
How you doing? No new update? Please post something 🙏
I am still alive and well :) still no news on my CT scan results - but here in the UK it tends to be that you only get feedback if there is a problem. I have an appointment with my oncologist mid october so fingers crossed another clear bloods screening and will get my results then. xx thank you for worrying about me tho!!
Hello
Please let us know how you are we really love seeing you. Please update us........
how did u feel throughout chemo? did u feel pain,sickness,weakness.....??
Yes yes and yes. X
Did they want you to get a hysterectomy cause of the gene? They have mentioned it to me?
My oncologist wants me to have an oopherectomy (ovaries and Fallopian tubes) at some point before I’m 45. But our family has no instances of ovarian cancer (unlike BC with lots of cases of BC at very young ages) so I’m really not in any rush for that surgery. The temporary menopause I went into after chemo was enough to put me off rushing into surgical menopause. Hot flashes are no joke!!!!
#Gettingwiggywithit oh my! What? I have one more chemo. I hope i don’t have that next. Omg. I’m 40. I think I’ll end up getting one w the mastectomy.
Just do what’s right for you. Don’t worry too much about it all xx
Hi nikki
How r u?
You have 10x he hair I have 😣 no hair on sides of my head
Has ur hairfall stop?
It has definitely slowed down. Still losing a little bit of hair but not nearly as much x
@@gettingwiggywithit3500 how many months now??? Am also pass through TE its has been 7 months...still hair comes out when i touch it
My hair started falling out in December. And it’s slowed down the last month. But I have been taking vitamins for 2 months now and I think that’s partly why it’s slowed. It takes a while for the vitamins to take effect x
@@gettingwiggywithit3500 my hairfall also started since dec and now its slow down but does not stop...when it stops?
I don’t think it ever stops...hair naturally falls out. Take your vitamins, reduce your stress and hopefully it should slow down cc