6 Things Educators and School Staff Should Know About FASD
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- เผยแพร่เมื่อ 28 พ.ค. 2024
- Children and teenagers with FASD require specific supports that are unique from other developmental disabilities and conditions. Many educators and school personnel have not been trained on these specific needs. If a parent has sent you this video, they are trying to provide you with tools that can help you work more effectively with their child.
This video is very general. You can find more information on how to specifically and practically support these skills in our other videos. In particular, please check out our Receptive Communication video at • Helping People with FA...
You may also find our video on perception helpful. You can watch that at • What "The Dress" Teach...
You can follow us on Facebook! BeTheBrain
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I was watching this and it felt like..you wjere just describing me I didnt understand much about my disabilitie until this opend my eyes I may forget the information with in hours to days but I'll just watch it again
I know this isn't a new video or channel and I don't know if you still monitor comments, but I just discovered it and wanted to say THANK YOU for this. I have a 9 year old with FASD and he is really (REALLY) struggling in school so I am trying to learn as much as I can about this and strategies that I and/or his teachers can use to help him. So far all of the best info about schools and educating FASD kids that I have found are all in Canada (sorry, not moving!), I am in Oklahoma, and there just doesn't seem to be a lot of local support groups, but I am taking in as much from anywhere I can find. I plan on digging into the rest of the videos on your channel and hopefully find more solutions to our daily challenges!
Thank you, Jeff! I hope you find some helpful ideas! --Nate
Thank you so much for this video! I am a homeschool mom and my daughter has FASD. Many people don't believe us that our daughter had FASD because she is so smart and verbal and can be successful in social situations for an amouunt of time. They insist she has behavioral problems with us because we are too soft on her, let her manipulate us and need to spank more or spank harder. We have been told more than once, "she won't touch a woodstove so she can obviously learn from consequences. If spankens don't work, they're not hard enough." My husband and I know our daughter better than anyone and know this is not true for her. But it is frustrating that she spends a weekend w relatives and is a perfect angel the whole time and then comes home and immediately loses it. This validates people's perception that it's a parenting problem, not a brain injury issue. But you said something here that totally validated me. When you said they can hold it together at school, but it's so much work that they come home and lose it. Thank you, at least I understand why this happens now and have confidence that it isn't just our failures.
The last part on the big picture and family support, is gold.
Sometimes they are quiet and passive and just basically ignore you and actions are passive aggressive.
Nate: your videos are wonderful!!! My daughter is now 21 years old, and I am still learning about her FASD (she was adopted into our family when she was 9 1/2 years old, from Russia). I also use your videos to help inform and educate the service coordinators who are working with her. Thank you, thank you, thank you!!!!! Keep up the great work!!!
Your comment is 6 years old may i know if she's ok if not also tell me
This video is a jewel of information for me as parent of 7 yr old daughter with an unofficial diagnosis. Everything matches us, thank you!!
I just came across this tonight as I'm pulling together a "cheat sheet" for our son's educators. This is great! Thank you for doing this!!
Marnie Bell-Ferguson how old is your child? Mine is 6 & I would love to know what all your cheat sheet contains. If you are willing to share my email is tina.elementsds@gmail.com
This is extremely helpful. I am drum major of my high school band this year and there is a student that has FASD. She struggles with learning to march, and being on time with certain signals. Many just assume she is lazy and doesn't want to, however that isn't the case and this video really explains the issues and way to fix it. I have been working with her individually in a calm environment and this really does help. So thank you for uploading.
Your a real good person for this I’m also in marching band and it could be hard for some one like that it’s very hard I solute u
Again…. AGAIN after years of being a student of yours :
U evoke tears 😭 for me cuz I forget to Remember
-what my daughter needs from me.
I LOVE YOU NATE!!!
You are talking about my foster daughter!! Thank you!!!!
Wonderful! So right on. You described my daughter perfectly. Wish I had had this video when she was still in the school system. I have now passed it on to her therapist and support staff.
I appreciate your easy to follow explanations - this one is great!
my son was recently diagnosed with FASD and the school just don't get it...
Nate - this is priceless information. We are still using your training with family, friends, and teachers. It makes sense for us of this crazy life we sometimes have so that we are compassionate with our daughter. AND to you - Jeff - I want to say THANK YOU dad for looking for help. As a mom of a 13 year old teen daughter, her dad lets me handle most of the hard battles. You are a gift to your son! Keep up the excellent parenting!
The Reason We Can't Remember Certain things that we have previously Been taught Is actually Due to "Short term Memory loss" Meaning after awhile "WE Lose what we learned" Teachers / Parents Ect. Please Remember It's Not OUR fault we can't remember something you taught us For those of US born with F.A.S. Don't you think it's Frustrating for us to struggle with trying to remember something that We forgot ? It's very Difficult for Students with ( Permanent Brain damage ) Caused by Our Natural mom who drank Alcohol. Also Every Student Learns thing's Differently. So don't Give up KEEP Trying to Teach Us. ( We Understand EVERY 3rd Word that is said to us , But we hear Everything you say to us ) "Not EVERY 7 to 9 Words" like that Guy said in the Video. We are ALL smart Just in different ways. I'm better at "Spelling" and "Reading" then I am at Math, Science, and a few other thing's like Counting Money. Be Patient we are trying to learn.
Thank you for your comment! I could not agree more. My son is 9 and is really smart and his memory for details is almost like "rainman" scary sometimes lol. I know none of this is your or his fault, education is the key for us parents and learning how to better handle your needs. God Bless You!
god bless, thank you so much. I work with some kids with FASD and this makes soooooo much sense
Thank you for posting!
Well said!! I'm so glad I found this content!!
Excellent! Less words, more time.
Very good information. Thank you.
This is excellent. I plan to email to our teachers. However, a print out with this would also be amazing. I like to make a folder with info for my children's teachers, but I have had a difficult time finding concise and informative print-outs for this purpose.
At 1:26 - 2:38 Seconds First of all Most people with F.A.S. We Can hear everything your saying to Us. Yet Our Damaged Brains Can only process so much at a time. We are all different For Example : ( My Judgment isn't as impaired like others really at all. Unlike others with F.A.S. I actually think about the Consequences before doing things If it's wrong, I DON'T do it. ) I Just wanted to Add that part.
I am watching this for my 46yo self
This is really good material, thank you
Very well explained.
so well said!
Thank you sooo much for this video
Thank you.
It would be really helpful to get help with a 504 template for in-school services. Also - the thing as a parent I struggle with most is that most advice is given as if you only have one child vs. our family with three kids with FASRD and all three of them are really different and have really different needs.
So true 👍 thank u for this my daughter 8years old with fasd she has hard time all the time thank u
Thank you for this. I am grateful that others coming up through the school systems are getting this wonderful information, that was, sadly, not as available when my daughter was in school.
hey everything u say is right i also have DLD... develop mental language disorder wich means my communication is really bad i dont understand what some people are saying...and i forget like everything so yeah its bad and annoying OMG u r also right at use visuals because everything people say i forget right away so thats annoying to i also have melt downs and tantrums but thats just part and parcel of it really isnt it...i always lie aswell its hard to tell the truth sometimes...any way it would be nice if i got i rply back from u...yeah so thats my life 24/7.im also 14.
Great video, can you prepare one about the need for an "outside brain" at school. Please outline how a regular high school can do this in particular. Especially since most teenagers don't require much oversight. Hence FASD kids are also on their own despite their need, despite the academic support that they receive. My daughter is in the most difficult of circumstances. She has a very high academic IQ leaving teachers with the false impression that she can make good social decisions, which she can't. I'm working on the details of her IEP and would appreciate any ideas you may have. Tx
Hi Dawna. Thank you for your comment! We will put your idea on our list! That would be a great video.
Teresa Kellerman came up with the following definition that I use to explain to teachers what my child needs.
"External brains come in many models.
Because the individual may appear to be bright and normal, the disability that is brain damage may only be apparent in the test results, and of course in actions that place the person at serious risk. It is the risk of danger to the person and to others that justifies the need for the "external brain." If you have not figured it out yet, that external brain refers to the presence of another responsible person (parent, teacher, job coach, sibling) who can mentor, assist, guide, supervise, and/or support the affected person to maximize success (which may need to be redefined as the avoidance of addiction, arrest, unwanted pregnancy, homelessness, or accidental death)." www.fightfasd.org/pdf/Resources_External_Brain.pdf
Working with the school system, the best I've come up with is to mandate a meeting with a spec ed support person on a daily basis. That will help both with academics, as well as ask probing questions.
Can you talk about impulsive aggression. My 3yo is really struggling with unprovoked and untriggered aggression? For example she will walk past a kid... turn around and kick them out of nowhere and then keep walking.
That's not necessarily true. I have FASD and I understand conversation just fine, even as a child. Get your facts straight. Not all FASD is the same hence fasd
HRD 77 Thanks for your comment. I definitely have to generalize in videos, but you're absolutely right: FASD is a spectrum and, with support, many may improve significantly in their Receptive Communication abilities as they get older. Is there something you struggle with that we can make a video about?
They say every child is different it depends on what part of the brain is developing at time of drinking.
I know about it but how to get the help to a nephew who is struggling with three different sets of kids from three different woman. currently in jail from explosive temper and dealing with the mothers of the kids. cannot keep a job because no drive to get to work on time. he is a loving dad to the kids but has problem with the mothers.
I have been diagnosed with this disorder at the end of my eighth grade year and am still tending to go to the internet for checking for if something I’m struggling with is “normal” and what could be helpful since I tend to think slower than those without. I’m going to have exams tomorrow and am trying to see the best ways to study with this disorder because sitting and looking over things quietly with myself or a friend is not helpful to me. If I could get any recommendations that would be amazing (doesn’t just have to be studying for things as big as exams).
Hi Tory, have you joined the Facebook group called "Flying with Broken Wings"? It is an AWESOME place where people with FASD can go and get support from other people with FASD. I highly recommend joining, and it would be the perfect place to ask questions as they come up! You'll need to request to join, but they approve people pretty quick! The address is facebook.com/groups/FASDaFlyingwithbrokenWings
Oregon Behavior Consultation No, I have not. I am not allowed to have it but one day I will definitely look into it.
Thank you nothing more thank you
This is really helpful. What happens when the child never will talk about it even when told, you are not in trouble but after lunch we are going to talk about x and we need to come up with something” But the answer is always, “I don’t know.” Even when given time to think. Is there another video you can point me to?
Hi there, Rose. There are many answers to this depending on the specific child and the situation. Maybe after lunch isn't a good time? What about waiting to talk about it until the next day? If they continually avoid it or dysregulate when you try to talk, the focus needs to be more on establishing safety and reasonable expectations before we expect the child to regulate their behavior or "learn from" something.
I have FASD
My husband may have this problem
Since you mentioned impulsivity, can interrupting and answering questions before they're ended be a sign of FASD?
Hey there, I would not necessarily view this as a "sign" of FASD. Rather, it is a sign of some type of executive dysfunction or maybe anxiety or maybe communication divergence. So I would not be surprised at this being how the brain of someone with an FASD may interact, but also in many other situations including Autism and ADHD and many other situations.
My mom never drank but I have all these symptoms
Hi Eden. Many of these issues stem from how cognitive skills are impacted in a person's brain especially Executive Dysfunction. This means that many disorders have overlapping symptoms, including FASD with ADHD, with Autism, with trauma, and with many mental health conditions. It is very possible to have these symptoms for reasons other than alcohol exposure. Hopefully you find some of the strategies or information helpful! --Nate
A brain MRI might show why, if you can get one.
Unless you are a highly paid specialist, most people haven't got the time to deal with this level of management.
There is definitely a learning curve and bigger systems issues at play. However, children deserve to learn and interact in a way that works for them, and this video is a starting place. If a professional does not ever "have time" to give a child time to think, it may very well be a bad placement match for the child and their team should seek alternatives.
@@cogsupports The word that springs to mind is cost.
I have fasd and ADHD it's annoying me
I am sorry to hear that you're struggling, Star. Some of the videos on our channel may help you understand that support needs you have. Our goal is to create content for people with FASD someday. People with FASD have a lot of strengths! I also have ADHD and it can be hard to work around, and some days are better than others, for sure!
Thank you i will watch your vids. It's help's me
i have fasd
Same. I hate living with it
False and Fraud are not the same thing
I have FASD
My husband may have this problem