I'm one of the unlucky patients with seizures. They are partial seizures, but uncontrollable. I had been on multiple different meds (no help) and then I had brain surgery. The surgery did help for 1 year, but the seizures came back slowly over the next 20 years. The worst part of the seizures, BY FAR, is memory loss. I was able to practice Internal Medicine for 20 years, but at age 48 I had to retire because of the memory loss. The good news is that I'm still alive. I think that everybody with epilepsy should ABSOLUTELY SEE A SOCIAL WORKER OR A PSYCOLOGIST!! It is soooo helpful!! Good luck to all!!
Thank you for sharing. I too am in the medical field. My job is my biggest concern. New diagnosis, I hope we can find medication that works. Thank you for sharing
Thank you for explaining this! 🙏🏼 I was diagnosed with Epilepsy in my mid 30's, back in early 2020. Unfortunately, i could not understand my Neurologist & had no clue what type of Epilepsy/seizures I have. I had EEG's, was started on Keppra & wasn't allowed to drive for 10 months.. Today I saw a new Neurologist & he explained to me that I have Temporal Lobe Epilepsy & that the left side of my brain is my 'worse' side, compared to my right. I've come home from my hospital apt to look into this, now that I know for sure.
It is so sad that many Neuologists don't understand how to diagnose epilepsy. Epileptologists are the experts. I was lucky enough to find a great epileptologist at Rush Pres. St. Lukes in Chicago, and he was fantastic!! Once I went to another suburban hospital on an emergency seizure, and the neurologist cut my meds in half against my epilepsy doctors advice, and my seizures got worse. Sad. I got up, went straight home and took my full dose, and the seizures were back to normal. Education is the key to success!!
Beautifully made! I have these exact types of seizures, and it helps that I can send this to any of my friends or family that want to know more, and it's always a comfort to understand what the heck my brain is doing
Hi Jared, Brandon here. Want to say thank you for putting this together. This is EXACTLY what I have been going through. At first we couldn't figure it out. Kept getting these strong auras, deja vu more than normal, seizure like activity where I would just stare into space after I felt this strong presence and anxiety wash over. I have had panic attacks previously and these feel so much different, much more in my body physically, not so much mental...almost blank at the time of the seizure like activity. When they would stop after a couple of minutes, it was like waking from a dream but I couldn't remember... and then olfactory hallucinations, are even still happening to this day. So odd. / I have MRI/ECG coming end of October but this has been going on since early July (this time, short stint 'bout 12 yrs ago same things). I don't really have any questions as most of them have been answered here or by research TLE, I don't want to assume since no diagnosis has been made but THIS IS what I am going thru as of now. Thank you!!
Hey Brandon, glad I could be helpful! I would mention this to your doctor & see what they think. Hopefully they can figure out what is wrong and help treat your symptoms. Best wishes my friend!
Wow that's a great description of some of mine, the aura is something that's just comes over me , then I stare , can hear everything and see everything, then I come out of it and my hands shake, I'm jerky reaching for things, then my speech is really affected ans speech, and then walking and balance , I get real shakey, or react to things like sunlight.then itdrops away and I feel clear again . The heat is my worst trigger
@@jaredbeckwithhey brandon I had an incident where I had a weird smell like burning engine while driving and a weird sensation in the back of my head. I went to the hospital (which was 5 minutes away) got EEG, MRI & CT scan. Everything came out negative. I passed out when I was 4yo (25 now) and also had a CT, MRI & EEG 24hr nothing and was with my neuro for 4 years after that. Granted I have never felt that in my life. Now with my history of multiple EEG, MRI and CT scan. Can you please give me your thoughts. I dont get the whole deja vu nasuea thing or feeling uprisings from my stomach. My few deja vu throughout my life are quick and feelingless
Thank you for your video. Very good information. I have Left Temporal Lobe Epilepsy that began with an inoperable abscess resulting in an infarction. I have a great Neurologist who has things under control. My biggest difficulty is memory. I’m learning a whole new lifestyle, but thankful to have things under control.
Thank you for your video!! I’m on the ABRET pathway 4 I am studying for my registration and your video help so much!! Please make for for studying and guide for basics/foundational you must know!! You Rock 🪨!! Thank you!
He or she probably did but didn't explain it in a simpiler way the way this guy did i have a hard time understanding my neurologist sometimes cause she uses these big school words that i don't understand
I find it interesting that you didn't mention brain tumours as a reason for TL seizures. Seizures were my first symptom. Also with brain tumours, the seizures are less likely to be fully controlled with medication.
I have been recently diagnosed with TLE I have, what they believe "low grade" Glioma in my right TL. Keppra has certainly been helping, the only seizures I tend to have now are nocturnal, the rising sickness wakes me up and I will have a headache but before diagnosis i was having multiple a day and constant Dejavu. Its likely i will be having surgery at some point next year.
thanks for the video. I had tonic clonic seizures when younger (6 months until 12 years old) and they stopped and I started getfing these. did not realise they were still seizures until 10 years later
I've tried getting medical help. I was told to have an eye test and that TLE is rare, therefore I can't have it. Yet I have a number of rare conditions. Had two huge episodes today. Vomited with the first one. Yesterday felt like a constant low level of it, but today's been horrible. Wish my doctor would do something. Anything other than shrug, basically. 😔
Ty for this video! I’ve been on Keppra for about a year and it helps to some degree. I didn’t know a good MRI typically indicates a good outcome (in terms of seizure control) - that’s great news 🙌
My meds have recently decreased in efficacy. My neurologist says that changing meds shouldn't cause seizures, but it always does. I'm really not sure what to do here...
In the last 6 weeks I’ve had 3 episodes where I smelled an odd smell, followed by an intense feeling of Deja Vu & familiarity regarding a dream that I’d apparently forgotten about, The location of this “dream” felt SO familiar, like I’d come home after having been gone for years. I couldn’t BELIEVE that I’d forgotten about it, especially because it felt so significant for some reason (I could actually see glimpses from the dream as if my minds eye had taken over my conscious awareness for a few moments. Then it quickly faded, just like a dream, & I’ve completely forgotten it again. I felt disoriented for about a minute, & that was it. WHERE DO I GO FROM HERE (If Anywhere?) Any advice??
I’d get in contact with a neurologist or epileptologist. If you’re having events like these they may want an EEG. I hope they can help you feel better Matt!
These are petite mal seizures. These are specified as not convulsing, but losing awareness. This can last 30 seconds to several minutes. You will feel confused, weird, cry, do repetitive movements, stare, not able to make words. The crying and confusion comed in after the seizure wears off. You will feel weird and off for a while as you recover. The aura preceeds a seizure and consist of weird smell like a burning smell, deja vus like a still from a movie scene and a sense of familiarity. The seizure may not happen right then, but can be a build up to one. An EEG is the way to diagnose the seizure. There are many triggers such as lack of sleep, stress, dreams, anxiety old movies, old shows, music and such. If not treated, they will turn in to grand mal seizures. Mine did that after a few years of the absence seizures. I was only diagnosed after I had a seizure and wrecked my car. The best medicine that has worked for me is Lamictal. I have had very few seizures since being on it. I have only had 2 in the last 7 months. When going on the medicine, start the dosage slowly to avoid Stevens Johnson Syndrome. My memory is very bad from these seizures.
I had lots with rising feeling and rotten banana or burnt toast smell, sometimes garlic. Then I would react to sounds and lights, I'd be awake but unable to control head twisting to side violently and hands and back arching so I dropped things etc , lasted few minutes, horrid. Now they are back triggered by any heat what so ever.
I started having Gran-mal Seizures was diagnosed with TLE the Gran-mal Seizures Caused Severe Tinnitus ( I say caused because I didn't have Tinnitus until after the Seizures) My Seizures are under control now, But Tinnitus Rings On n On! Horrifically Like 24\7\365 Severely Any Suggestions what to Do??? Or Ask My Neurologists??? "Will a VNS Help the Tinnitus??? I Really need Relief! I also started Neuropathy from bottom of feet to Knees after the onset of Seizures that still continues is there any Cure or Relief besides medication for the Neuropathy??? Thank You Very Much! Loves the Video Very Informative and Clear! 🎯💯💯💯
Are the temporal and centrotemporal areas very close? Looking at a differenential diagnosis for my daughter. They initially said Rolandic due to her night terrors but she meets every check mark for temporal lobe instead. She has “awake dream” feelings and had a tbi last year.
It has worked great for me as well. I am on 100mg twice a day. It really reduces stress and anxiety. If I get stressed, I calm down almost immediately. I have had very few side effects.
Is there any chances to get right temporal lobe epilepsy ( drug resistant epilepsy , treated through right temporal lobectomy) mother have till her 30 years ,is it genetically transmitted to her male child ? ( He have 5minutes febrile seizures at the age of 18 months after gace MMR vaccine from that time onwards no seizures) Is there any chances ro get focal seizures to him in future?
I had a difficult birth and was diagnosed with TLE from a brain scan but also bipolar - the drugs that help me are all epilepsy meds. The problem I have is my memory - can’t remember past events.
Great video, i have been having weird aura like things happen to me for almoast a year now. It is like the opposite of deja vu though , i feel like someone else is looking out of my eyes and i can feel the sense of that for up to 2 minutes at times. I know i am me, but everything looks new or different, it is very hard to explain. I also always hear the same pitch like a windy day sound, and a Very strange taste/smell in my mouth and i have the constant need to swallow while it is happening, i always feel wiped out after it happens for the rest of the day. Seems to come and go but the episodes are more frequent lately, happening a few times a week. Can have up to 6 or so of these in a day on the bad days
You have an interesting aura, everyone feels something different. If the episodes are happening more often, I’d definitely tell your neurologist about it. Best wishes Ashley!
@jaredbeckwith thanks for the response! I will make an appointment and see what they can find. I sound crazy when I try to explain the feelings, so it has been somthing I haven't been to open about untill,, well now. Thanks again!
Hello and thank you so much for this information! I've had the de ja vu, stomach uprising, upon awaking. 12 years ago, awoke up to nausea and vomiting, once after napping woke up to not being aware of where I was and very confused, vomiting went to ER. Had another episode while doing yoga and passed out while walking by pool. Went to ER, had Pacemaker implanted, EP docs saying it's SSS and bradycardia. Even after pacemaker, still having the aura's once in a great while. Had five "episodes" in the last six days so went to ER yesterday. Neuro said I have history book case of TLE and prescribed me Zonisamide. Waiting to see Neurologist they referred me to. I can't have MRI due to PM leads being from 2009. Have you heard of this scenario? Thank yoU!
In the hospital I see a lot of cases where doctors are trying to determine if someone’s events are heart vs seizure related. It’s difficult to tell for sure unless they capture an event on EEG or abnormal MRI. I wish you the best of luck with your new medication & neurologist!
![ประสบการณ์ จ้าง Developer ที่ผมจะไม่มีวันลืม [ภาค1]](http://i.ytimg.com/vi/bzivN4KDg-k/mqdefault.jpg)
I'm one of the unlucky patients with seizures. They are partial seizures, but uncontrollable. I had been on multiple different meds (no help) and then I had brain surgery. The surgery did help for 1 year, but the seizures came back slowly over the next 20 years. The worst part of the seizures, BY FAR, is memory loss. I was able to practice Internal Medicine for 20 years, but at age 48 I had to retire because of the memory loss. The good news is that I'm still alive. I think that everybody with epilepsy should ABSOLUTELY SEE A SOCIAL WORKER OR A PSYCOLOGIST!! It is soooo helpful!! Good luck to all!!
Thanks for sharing your story! I agree that seeing a psychologist / social worker can help tremendously.
@@jaredbeckwith😢
Thank you for sharing. I too am in the medical field. My job is my biggest concern. New diagnosis, I hope we can find medication that works. Thank you for sharing
Thank you for explaining this! 🙏🏼 I was diagnosed with Epilepsy in my mid 30's, back in early 2020. Unfortunately, i could not understand my Neurologist & had no clue what type of Epilepsy/seizures I have. I had EEG's, was started on Keppra & wasn't allowed to drive for 10 months..
Today I saw a new Neurologist & he explained to me that I have Temporal Lobe Epilepsy & that the left side of my brain is my 'worse' side, compared to my right. I've come home from my hospital apt to look into this, now that I know for sure.
I’m glad your doctor was finally able to find out where your seizures are coming from. Wishing you the best!
It is so sad that many Neuologists don't understand how to diagnose epilepsy. Epileptologists are the experts. I was lucky enough to find a great epileptologist at Rush Pres. St. Lukes in Chicago, and he was fantastic!! Once I went to another suburban hospital on an emergency seizure, and the neurologist cut my meds in half against my epilepsy doctors advice, and my seizures got worse. Sad. I got up, went straight home and took my full dose, and the seizures were back to normal. Education is the key to success!!
Beautifully made! I have these exact types of seizures, and it helps that I can send this to any of my friends or family that want to know more, and it's always a comfort to understand what the heck my brain is doing
@@michaelb8176 I’m glad you liked my video! Feel free to share it with your friends & family 😊
Hi Jared, Brandon here. Want to say thank you for putting this together. This is EXACTLY what I have been going through. At first we couldn't figure it out. Kept getting these strong auras, deja vu more than normal, seizure like activity where I would just stare into space after I felt this strong presence and anxiety wash over. I have had panic attacks previously and these feel so much different, much more in my body physically, not so much mental...almost blank at the time of the seizure like activity. When they would stop after a couple of minutes, it was like waking from a dream but I couldn't remember... and then olfactory hallucinations, are even still happening to this day. So odd. / I have MRI/ECG coming end of October but this has been going on since early July (this time, short stint 'bout 12 yrs ago same things). I don't really have any questions as most of them have been answered here or by research TLE, I don't want to assume since no diagnosis has been made but THIS IS what I am going thru as of now. Thank you!!
Hey Brandon, glad I could be helpful! I would mention this to your doctor & see what they think. Hopefully they can figure out what is wrong and help treat your symptoms. Best wishes my friend!
Wow that's a great description of some of mine, the aura is something that's just comes over me , then I stare , can hear everything and see everything, then I come out of it and my hands shake, I'm jerky reaching for things, then my speech is really affected ans speech, and then walking and balance , I get real shakey, or react to things like sunlight.then itdrops away and I feel clear again . The heat is my worst trigger
@@jaredbeckwithhey brandon I had an incident where I had a weird smell like burning engine while driving and a weird sensation in the back of my head. I went to the hospital (which was 5 minutes away) got EEG, MRI & CT scan. Everything came out negative. I passed out when I was 4yo (25 now) and also had a CT, MRI & EEG 24hr nothing and was with my neuro for 4 years after that. Granted I have never felt that in my life. Now with my history of multiple EEG, MRI and CT scan. Can you please give me your thoughts. I dont get the whole deja vu nasuea thing or feeling uprisings from my stomach. My few deja vu throughout my life are quick and feelingless
Thank you for your video. Very good information. I have Left Temporal Lobe Epilepsy that began with an inoperable abscess resulting in an infarction. I have a great Neurologist who has things under control. My biggest difficulty is memory. I’m learning a whole new lifestyle, but thankful to have things under control.
I’m glad your neurologist was able to help! Best wishes my friend 😊
Did that cause you pressure in above your ear or something?that's what I have going on, waiting on mri etc
My memory is definately greatly affected. I do not remember people's names, old movies, old things that use to happen and stuff I should remember.
The smells can be so disgusting for me. My family thought I was going mad. I mostly get my seizures in my sleep. I feel terrible on most mornings.
I hope your neurologist can make you feel better 🙏
It smells like something rotting.
@@rudieopperman4388 do you get intense deja vu?
@@JoJoGoatedI know I do.
@@kerri4992 ohh damn I wish the best for you. Please get all the test you need
Thank you for your video!! I’m on the ABRET pathway 4 I am studying for my registration and your video help so much!! Please make for for studying and guide for basics/foundational you must know!! You Rock 🪨!! Thank you!
Hey thanks for checking out my videos! I’m gonna make more for board prep soon 😊
Excellent, very informative 🙏
Thanks, I’m glad you think so !
Thanks so much! My God if only my son's neurologist had explained this to me...
Glad I could help make things more clear. Definitely ask the neurologist to clarify things if you have questions!
@@jaredbeckwith I ended switching him to a pediatric epilepsy center because of the that neurologist's bedside manner. Keep up the great work!
He or she probably did but didn't explain it in a simpiler way the way this guy did i have a hard time understanding my neurologist sometimes cause she uses these big school words that i don't understand
I find it interesting that you didn't mention brain tumours as a reason for TL seizures. Seizures were my first symptom. Also with brain tumours, the seizures are less likely to be fully controlled with medication.
Good catch, I should have mentioned tumors! I must have missed it since I was first learning about TLE at this time
I have been recently diagnosed with TLE I have, what they believe "low grade" Glioma in my right TL. Keppra has certainly been helping, the only seizures I tend to have now are nocturnal, the rising sickness wakes me up and I will have a headache but before diagnosis i was having multiple a day and constant Dejavu. Its likely i will be having surgery at some point next year.
thanks for the video. I had tonic clonic seizures when younger (6 months until 12 years old) and they stopped and I started getfing these. did not realise they were still seizures until 10 years later
Appreciate you watching Katie ❤️
@@jaredbeckwith ❤️ thank you for the info!
I was diagnosed with Epilepsy when I was 2 and had the Tumor surgically removed when I was 8.
23 years Seizure free.
I’m happy the tumor surgery worked for you!! 😊
I've tried getting medical help. I was told to have an eye test and that TLE is rare, therefore I can't have it.
Yet I have a number of rare conditions. Had two huge episodes today. Vomited with the first one.
Yesterday felt like a constant low level of it, but today's been horrible. Wish my doctor would do something. Anything other than shrug, basically. 😔
So sorry. Hope you find a good Neurologist for answers. I use to vomit as well.
TLE isnt particularly rare, it's the most common type of epilepsy
Ty for this video! I’ve been on Keppra for about a year and it helps to some degree. I didn’t know a good MRI typically indicates a good outcome (in terms of seizure control) - that’s great news 🙌
My meds have recently decreased in efficacy. My neurologist says that changing meds shouldn't cause seizures, but it always does. I'm really not sure what to do here...
Any other epilepsy disorders I should cover?
Trying to find the best doctor to help me.
In the last 6 weeks I’ve had 3 episodes where I smelled an odd smell, followed by an intense feeling of Deja Vu & familiarity regarding a dream that I’d apparently forgotten about, The location of this “dream” felt SO familiar, like I’d come home after having been gone for years. I couldn’t BELIEVE that I’d forgotten about it, especially because it felt so significant for some reason (I could actually see glimpses from the dream as if my minds eye had taken over my conscious awareness for a few moments. Then it quickly faded, just like a dream, & I’ve completely forgotten it again. I felt disoriented for about a minute, & that was it. WHERE DO I GO FROM HERE (If Anywhere?) Any advice??
I’d get in contact with a neurologist or epileptologist. If you’re having events like these they may want an EEG. I hope they can help you feel better Matt!
Thank You so much, I appreciate your quick response!!
These are petite mal seizures. These are specified as not convulsing, but losing awareness. This can last 30 seconds to several minutes. You will feel confused, weird, cry, do repetitive movements, stare, not able to make words. The crying and confusion comed in after the seizure wears off. You will feel weird and off for a while as you recover. The aura preceeds a seizure and consist of weird smell like a burning smell, deja vus like a still from a movie scene and a sense of familiarity. The seizure may not happen right then, but can be a build up to one. An EEG is the way to diagnose the seizure. There are many triggers such as lack of sleep, stress, dreams, anxiety old movies, old shows, music and such. If not treated, they will turn in to grand mal seizures. Mine did that after a few years of the absence seizures. I was only diagnosed after I had a seizure and wrecked my car. The best medicine that has worked for me is Lamictal. I have had very few seizures since being on it. I have only had 2 in the last 7 months. When going on the medicine, start the dosage slowly to avoid Stevens Johnson Syndrome. My memory is very bad from these seizures.
I had lots with rising feeling and rotten banana or burnt toast smell, sometimes garlic. Then I would react to sounds and lights, I'd be awake but unable to control head twisting to side violently and hands and back arching so I dropped things etc , lasted few minutes, horrid. Now they are back triggered by any heat what so ever.
I started having Gran-mal Seizures was diagnosed with TLE the Gran-mal Seizures Caused Severe Tinnitus ( I say caused because I didn't have Tinnitus until after the Seizures)
My Seizures are under control now, But Tinnitus Rings On n On! Horrifically Like 24\7\365 Severely Any Suggestions what to Do??? Or Ask My Neurologists???
"Will a VNS Help the Tinnitus??? I Really need Relief! I also started Neuropathy from bottom of feet to Knees after the onset of Seizures that still continues is there any Cure or Relief besides medication for the Neuropathy???
Thank You Very Much!
Loves the Video Very Informative and Clear! 🎯💯💯💯
I’d definitely ask your neurologist what they think is best. I hope you feel better Earl!
How easy is it to mistake temporal lobe epilepsy for benign Rolandic epilepsy on and EEg for pediatric cases?
I’m sure it happens in a certain amount of patients since EEGs in both cases show temporal spikes
Are the temporal and centrotemporal areas very close? Looking at a differenential diagnosis for my daughter. They initially said Rolandic due to her night terrors but she meets every check mark for temporal lobe instead. She has “awake dream” feelings and had a tbi last year.
Can ECT treatments cause trauma to the brain and cause the onset of these types of seizures, especially for someone with a family history of epilepsy?
Yes lol, that's what it is for. Medically induced, lots they don't know how to stop them on their own though. Even with bunch of meds.
I’m on Lamotrigine, 200 mg. twice daily. It works well.
It has worked great for me as well. I am on 100mg twice a day. It really reduces stress and anxiety. If I get stressed, I calm down almost immediately. I have had very few side effects.
Is there any chances to get right temporal lobe epilepsy ( drug resistant epilepsy , treated through right temporal lobectomy) mother have till her 30 years ,is it genetically transmitted to her male child ? ( He have 5minutes febrile seizures at the age of 18 months after gace MMR vaccine from that time onwards no seizures) Is there any chances ro get focal seizures to him in future?
Don't think that's possible
@@lucasdumb4626you mean there is a possibility to get epilepsy to him...am I right?
I had a difficult birth and was diagnosed with TLE from a brain scan but also bipolar - the drugs that help me are all epilepsy meds. The problem I have is my memory - can’t remember past events.
I think the bipolar diagnosis is wrong.
Is this common - patient’s diagnosed with bipolar when really TLE
Great video, i have been having weird aura like things happen to me for almoast a year now. It is like the opposite of deja vu though , i feel like someone else is looking out of my eyes and i can feel the sense of that for up to 2 minutes at times. I know i am me, but everything looks new or different, it is very hard to explain. I also always hear the same pitch like a windy day sound, and a Very strange taste/smell in my mouth and i have the constant need to swallow while it is happening, i always feel wiped out after it happens for the rest of the day. Seems to come and go but the episodes are more frequent lately, happening a few times a week. Can have up to 6 or so of these in a day on the bad days
You have an interesting aura, everyone feels something different. If the episodes are happening more often, I’d definitely tell your neurologist about it. Best wishes Ashley!
@jaredbeckwith thanks for the response! I will make an appointment and see what they can find. I sound crazy when I try to explain the feelings, so it has been somthing I haven't been to open about untill,, well now. Thanks again!
Before treatment I would have up to 19 each month. I did not count auras and only the absence seizures.
Hello and thank you so much for this information! I've had the de ja vu, stomach uprising, upon awaking. 12 years ago, awoke up to nausea and vomiting, once after napping woke up to not being aware of where I was and very confused, vomiting went to ER. Had another episode while doing yoga and passed out while walking by pool. Went to ER, had Pacemaker implanted, EP docs saying it's SSS and bradycardia. Even after pacemaker, still having the aura's once in a great while. Had five "episodes" in the last six days so went to ER yesterday. Neuro said I have history book case of TLE and prescribed me Zonisamide. Waiting to see Neurologist they referred me to. I can't have MRI due to PM leads being from 2009. Have you heard of this scenario? Thank yoU!
In the hospital I see a lot of cases where doctors are trying to determine if someone’s events are heart vs seizure related. It’s difficult to tell for sure unless they capture an event on EEG or abnormal MRI. I wish you the best of luck with your new medication & neurologist!
Very interesting post. Can you explain that last part about “PM leads” please?
@@Sydopath Leads from Pacemaker "PM".
@@RMSrealestate got it. Thanks 👍
thank you very much Jared
Thanks for watching and supporting ❤️