How I Deal with Chronic Pain - Build A Ladder
ฝัง
- เผยแพร่เมื่อ 28 ก.ย. 2024
- Warning: this video will start out sad BUT I'd like to show you, start to finish, how I deal with the mental toll of Chronic Pain, how I refuse to give up, and how I continue to #buildaladder to pull myself out of a dark pit.
Hi, I'm Martina. I suffer from chronic pain as a result of having Ehlers-Danlos Syndrome (hEDS). You don't see it in our videos often, because I've learned to hide it, like so many of us with invisible illnesses. But on some days, the pain is unbearable, and I can barely focus. On those dark days it is easy for your mind to succumb to incredibly dark thoughts, but I've made up a type of mental visualization and personal mantra revolving around focusing on little things which help me to build a ladder out of my darkness.
Martina's Website is • ｡･:*:･ﾟ★,｡･:*:･ﾟ☆ 👑 www.kingkogi.ca 🐷 ｡･:*:･ﾟ★,｡･:*:･ﾟ☆
You can find Martina:
puttering on her Instagram @ king.kogi
posting personal projects to her TH-cam page @King Kogi
and live-streaming on Twitch
King Kogi TH-cam: King Kogi
King Kogi Livestreams on Twitch - King Kogi
• ｡･:*:･ﾟ★,｡･:*:･ﾟ★,｡･:*:･ﾟ☆ ★,｡･:*:･ﾟ☆ ★,｡･:*:･ﾟ☆ ★,｡･:*:･ﾟ☆
#buildaladder #chronicpain #EDS
![[🔴LIVE] งานประกาศรางวัล MAYA TV AWARDS 2024 : มายามหาชน](http://i.ytimg.com/vi/nwmWYXXVwBY/mqdefault.jpg)
This is a tough video, but Martina is going to show you how she perseveres when her chronic pain gets overwhelming.
Hopefully this will help so many people suffering
I'm still crying, even after this video ends. Stay strong, Martina ~ Lots of love for you 💕💕💕
feel better soon martina! 🙋🙌🙆🙏💪
You guys, the both of you are so incredibly strong. Hold on dears. I only can hope that soon there are treatments that will make the pain go away. Big hugs.
Thanks for being an inspiration guys!
You are a force. I appreciate your vulnerability, it's inspiring.🙏
+emmymadeinjapan you’re amazing and make great videos :)
emmymadeinjapan ahh emmy i didnt know you watch Simon and martina
I didn't know you watched Simon and Martina.
I too didnt know you watched Simon and Martina.
can we also just take a second to appreciate how amazing Simon is with Martina and how he is a solid rock next to her when she needs it. what a wonderful partner he is for her. no wonder, Martina is so lovely.
I just remembered to check our translations, and I realized that many of you have submitted subtitles in a lot of different languages. Thank you for helping, everyone. Subtitling isn't fun, i know. I really appreciate the effort. Thank you :D
I actually like making subtitles. Also, it's a little something I can give back to you guys.
Hi Martina. Great video. I don't login to youtube much but I wanted to say that I have met quite a few patients with EDS and I would recommend visiting a good rheumatologist who can help. Losing weight and shifting your diet over to a healthier one with less meat and more veggies such as a vegan diet has also shown to be quite helpful in controlling inflammation and pain. I know you and Simon are foodies, but having a healthier diet is definitely something to take into great consideration.
As I was watching I was thinking "I've got to put in portuguese subs, this is such an important video" and i was so happily surprised when I saw that someone already did! Thank you Simon and Martina for making the video and huge obrigada pro lindo(a) que legendou!!! Ficou lindo, aliás.
Jennifer Tran Cannabis is absolutely illegal in Japan.
My mom suffers from chronic pain because of a fracture in her spine and multiple really bad achieved surgerys. She does not understand english, that is why I expend the afternoon subtitling your beautiful video. I hope it can help her. A bad day to her it's a bad day for the whole family so we always try to cheer her up with bad jokes (she is the QUEEN of bad jokes), ugly dancing and funny TV shows. Also we play a lot of board games that make us concentrate and friendly fight with eachother. For us Distraction is the key to build our big family size ladder.
I am guilty of laying in bed on bad days and letting the depression take over. I don't have anyone around me who can understand why there are days where I can't do because my body hurts to much. It hurts to move, it hurts to sit still, it hurts to lie down and some days it just feels easier to curl into a ball on the bed and wait for a new day. Your determination has inspired me to "build a ladder" on the days I can to help me on the days I can't. It's only human to have times when you feel sorry for yourself and ask why me when everyone else can just live normal and it seems so unfair, but struggle builds strength. I remind myself as often as I can and now will try getting out there when I'm maybe not quite feeling up to it in the hope that I can improve my mood. Being in a bad mood while in pain just makes the pain worse. Thank you for inspiring and encouraging and reminding me I'm not alone in the struggle.
swetpmnkygrl your comment is super relatable and yeah, you are not alone!
You're not alone. I barely manage to wake up some days. Today I'm slightly better but I'm waiting for the pain to kick in soon. I can't deal with this anymore
swetpmnkygrl I relate to this so much. Thank you for sharing and chin up babe ♥️
So relatable. I was first diagnosed with depression at the age of 12. 37 now with a diagnosis of chronic depression. And within the last few years especially this year chronic pain started dominating. Along with fatigue severe exhaustion just from doing small tasks. I used to be able to work in the restaurant business move around stay on my feet for 12-hours work 40 50-hour weeks. I was able to manage my depression but all the sudden the bottom fell out lost my job everything just started going down and medications were no longer working. I've had them shipped it still nothing and nowadays I spend most of my time in bed. I may have one or two good days a week. With the laws where they aren't very difficult to get pain medication. even harder to get disability when you have a mental illness because they can't see it. Chronic depression is no joke. It eats away your brain slowly. And you find everything in your life slowly disappearing into you have nothing. then you're curled up in the bed most days and physical pain because the toll your brain has taken from the depression has now turned into physical problems chronic pain. people tell me I love you got up moving around more you wouldn't hurt well it hurts just to take one step out of bed some days. I've also been developing Parkinson's like symptoms from low dopamine levels that we're never noticed and never diagnosed. I just recently found that out a few months ago so that's freaking scary. But what this woman and this video is doing it so brave. Seeing her get up out of bed knowing she's all that pain is inspiring me to just push through it no matter how bad I hurt.
I didn't believe superheroes existed before I heard Martina's story. She's truly a real life superhero.
So what about Cancer survivors ? They're not superheroes
I wonder if Simon was crying filming this :(
My God, Simon could not love you more! To hear the emotion in his voice is to know he will love you forever. Love and strength to you both xxxx
I thought this too. If they love, cherish and support you on the bad days then they are keepers!!
My five year old said you are a beautiful lady. She loves your cat. Hope you feel better! I suffer with depression so I go to gym, color or draw, put make up on. Talk to my grandpa.
I watch this whenever I feel down about my pain. I think if Martina can do it, get up and get out of bed, I can do it.
And I think the same about the members of my community :) you can do it, so I do it too 🔨
This is how I feel! We’re all stronger together!
Simon is literally the best husband ever he's so supportive and cares for Martina so much 😭❤️
The fact that you and your husband both got degrees and emigrated to Korea and Japan and made a successful TH-cam channel and web-site speaks volumes about overcoming your disability. You are an amazing woman and a great couple. :) I hope that someday maybe there is a better treatment or cure for you, but until then I wish you both the best. Estoy enviandote buenas vibras!
Simon is my role model in helping my partner build his ladder.
Hey Martina, I know this is an old video, but....I always come back to this video to help me start the ladder.
So you'll be proud to hear....I got out of bed and took my first steps outside
I started bawling the moment Martina came out of her bedroom. I love you both so much.
Sending many hugs and kisses to you both xoxo
I didn't want to get out of bed today. But literally as I was laying there checking my phone I saw your video come up and I watched it all. I got out of bed, I went to work, I even made it to the pharmacy to buy more medicine. Thank you for sharing how you build your ladder. I hate seeing how much pain you're in, but knowing that you still get up and build your ladder even when you want to do anything but makes me feel like I can do that too. Sending you and Simon all my best
Also, NOTIFICATION SQUAD! We usually say something happy here, but this is kind of a sad video. I just wanted to say sorry if this gets you down. We'll get back to more fun videos soon. We've got a bunch filmed!
Simon and Martina no apologies beauty. Love you both so much! Lots of love!!!!
Simon and Martina We'll always be here to support you guys! You can do it Martina! #BuildALadder 💪💪💪 We love you!
Simon and Martina hugssssss
Thank you so much for sharing this!
Simon and Martina We can't always be fun and happy. We understand.
I didn’t want to watch this, because it’s hard to face my issues sometimes. I’m glad I did. I have EDS HYPERMOBILITY syndrome and rheumatoid arthritis. I’m often in chronic pain and deal with a lot of shame about the fact I am overweight, I have to say it’s a bit chicken and egg the issue though, I want to lose weight but can’t exercise, but if I lose weight exercise would be more probable. I hate when people say “how are you?” How do I answer that? I hate when people didn’t know me before, when I was a lively, beautiful life and soul of the party. I am more than just my illness, but it is all consuming. Thank you for spreading awareness and making me feel less alone and less lonely. I wish I had a duckie, but I do have two wonderful understanding 15 year old boys, so I am very lucky, them not so much. X Rose
Milkymoles. Ohh I can so relate to the shame of being overweight due to serious and painful conditions. Being overweight or not being able to move also makes the pain worse, atleast that's how I feel. Or maybe it is just the mental pain affecting your body too, who knows. I think being overweight is just another symptom, and the real shame is that people don't understand that.
I also have a hard time losing weight. It's hard for me to exercise because I have type 1 diabetes and if I overdo exercise, I might have a low and undo all the good I just did for myself by having to eat something high in sugar. Also, insulin in the form that type 1 diabetics have to use causes us to hold onto fat more so than someone with a normal functioning pancreas. I know it's not a chronic pain thing, but the mental part can be somewhat similar and I do have depression on top of it. I never thought about #BuildALadder until Martina talked about it, but I'm considering finding myself a visual representation of it to help me take care of myself.
Milkymoles. I feel this
Milkymoles. I also relate to how all-consuming Chronic Intractable Pain illnesses can be. I completely lost everything; my career came crashing down in a very grand, public, humiliating fall from grace; my identity; my worth. I was a 120# 5'5" L&D/Pediatrics Nurse, Firefighter, Vol. Paramedic, black belt, equestrian, 4-H leader, H.S. Volleyball team mom... I was a dynamo. People who say that Fibromyalgia patient's are just looking for attention; are malingerers; just need to lose weight & get a life are full of schitt.
I have been very happily married to the Love of my life since I was 18. I was living my best life, working my dream job, with an absurdly well-behaved teenage Daughter. Until I got sick & the pain left me bed-ridden for over 2.5 years. Being unable to move, & b/c of the many medications I was on, I put on weight & topped out at 265 pounds. From 120 # to 265# in under 18 months. All of that was a symptom of my illness & a result of my pain & medication. None of it was selfish, attention-seeking, embellishments of my pain & symptoms. And it's asinine for anyone to say otherwise. It's an embarrassing, humiliating, painful situation to be in such an uncomfortable, overweight body condition. I felt terribly ashamed for my Husband & Daughter to have to be seen with me, or to have to acknowledge my relationship to them. I was bed-ridden due to the horrific pain, so I didn't leave home often, but when I did, if I saw someone we knew, or my Husband or Daughter ran into people they knew, I'd try to sneak away & hide so they wouldn't have to admit knowing me & be forced to introduce me to anyone. I felt terrible for them.
Finally I found a good Pain Management Dr. who quite literally saved my life, found a good pain medication for me, & gave me enough pain relief that I once again have some semblance of decent quality of life. And b/c I can walk again, I have lost 75 pounds. It's not great; it's not where I WANT to be, but it's a start. Most important, I don't feel as absolutely unworthy of love anymore. My Husband has always been amazing through this, & It's a huge gift to be able enjoy going out for a dinner-date together, or walking the Dog together.
One thing I know is that I could not have gotten through this without my amazing, wonderful Husband of 27 years.
It's hard enough to get through this WITH a wonderful, supportive, loving, understanding Husband; I can't imagine going through this alone, but I'd rather be alone than with a partner who not only wasn't supportive, but was actually demeaning, insulting, & hostile. I don't know how so many women live through so much physical AND emotional pain; may God bless their souls.
Sorry- Please forgive me. I didn't mean to digress. I always could talk the ears off a mule, but I'm much more of a talker (writer) now that I don't engage in any other meaningful conversations, except for those with my patient, precious Husband. Much respect & admiration, & much love & best wishes to you~ ❤
No shame girl! You can’t hold yourself to the same standard as someone who is healthy and able.
Having just recently been diagnosed with EDS after 9 years of thinking it was only POTS, I really sometimes struggle to see myself living anywhere but where I am right now - 21 years old, jobless, not in school, living with my parents, having them do so much for me. There are days I don't even want to go to sleep because I know that it means waking up and starting the cycle all over again. But you know what? That's life. Everyone has shit they don't want to do, but they do it anyways. And why? Because whether you want to be part of the world around you or not, it will still go on.
And I hate it. I hate thinking that I'm so out of touch with myself, so out of touch with my entire life that it will continue to exist with or without me. It hits me harder than my chronic illnesses because at least I can try to control those. And so often I'm stuck between thinking, "There's more than this." and thinking, "This is all I've ever known."
But seeing a video like this? Where someone like me is functioning, even if it's just to make it to the end of the day, and able to still enjoy life through the pain? It makes me feel like hey! Maybe I can do it too. So thank you. Thank you for not shying away from the ugly days. Thank you for showing me that giving in is just as bad as doing nothing at all. Thank you for showing me that giving in isn't an option at all! Rome wasn't built in a day. And neither will my ladder.
Best of luck to you, well not luck but wishes. I hope that you can find a happy medium where everyday is a good day because you made something good out of it.
I believe doing things that make you happy won't take away all the bad stuff, the pain (physical or emotional/mental) but it means when you look back you can be proud you did more than stay in bed, even just doing this is a step forward to a better day.
Harper Reese Keep going sweetheart! You have a journey ahead of you, at 21 with a new diagnosis you are still very near the start. You expressed yourself so eloquently and with so much optimism that I am certain you will build an amazing ladder to take you to places you haven't yet dreamed of. Much love xx
Harper Reese You're doing great, keep fighting!
Harper Reese
WOW! How very beautifully you express the life of chronic pain sufferers! I'm desperately sorry for your pain and my heart hurts that you are so young, but I also see someone who is awakening to what's possible even while dealing with chronic pain. My advice to my patients (nurse 37+yrs retired) was always "You are not your disease. Your diagnosis is not what defines you. It gives you different parameters than those in good health, but as long as you are willing to stay within those parameters and do yourself no extra harm by" pushing through it", you are still able to participate in life. How you do that is up to you and your medical team, but please don't become your disease. It's what you have, not who you are. "
Thank you guys so much for the positivity! I will keep fighting, and I hope that I will find the best 'me' there is through all of this and take them to great places! ❤
MARTINA PLEASE READ: I’ve wanted to write you for years. I suffer from a rare disease which is quite painful. It has since lead to my body breaking down and new conditions to rear up. I have an extremely high pain tolerance, so when my pain is at a 10 it literally makes me vomit. It gets so bad that there are times where I want to kill myself. I’ve had every possible surgery, taken every drug they gave me, including experimental treatments. My husband couldn’t handle it and divorced me at our ten year anniversary (we married young). People can’t see my disease, and I’ve learned how to visually disguise my pain... makeup, nice clothes, beautiful hair... 90% of people can’t tell I have 9 serious illnesses. I’m told my eyes are what gives my bad days away. My pain is in the pelvic region and for 3 years I was bedridden. Standing and sitting were near impossible. My depression was immense. I made improvements and had 7 “good” years (relatively). Then 3 years ago a new issue came up, making everything I had before look like a joke. Nobody can figure it out. Nobody can fix it. I spent $18k of my own money since January on “non traditional “ treatments praying something can help besides drugs... Martina, I’ve been a nasty since your early years and Ive wanted to write you so, so many times. There is so much I want to say to you... because I get it. The base of my ladder has been my family. If I didn’t have supportive parents and a sister/brother in law & nephew, I would have ended the suffering long ago. I have to work full time, so I don’t have the luxury of staying in bed on my bad days. And I cannot take all the meds they prescribe or Id be a zombie. Your videos remind me I’m not alone. I’m glad your talking about the ladder. It is a tool that helps. I didn’t have a name for it, I just knew I had to do something. I know you have millions of fans, but if you ever wanted to vent or need someone who gets it send supportive messages, I’m here for you.
Polly Pocket
i don’t know you but you are so strong and im so glad that you’re slowly learning how to build your ladder too
I'm sorry you have to deal with that, I hope this video helped you and will continue helping you. Keep staying strong and best regards!
You're such a strong person and your story is really inspiring. Thank you for sharing and good luck with your ladder
My teenager has an undiagnosed (as yet) chronic illness and has been feeling pretty sad lately about not going out of the house. Today I got home and found out that the kid watched this video and is feeling inspired to get out of the house every day, has gone over to their Dad's house and is determined to build their own ladder. I am so thankful to you guys. xx
Verylisa fatigue? New century sickness. Pretty common (I have it)
Check out POTS (postural orthostatic tachycardia syndrome)!! I was just diagnosed after two years of barely going to school and staying in bed all day. I know how frustrating it is to know that something is wrong but not knowing how to fix it! Hope this helps!
Hi Grace -- that's my kid's most likely diagnosis. We have a referral to a POTS/dysautonomia specialist but the first appointment's not until next month. Good luck with managing your POTS. xx
Hi Gabriela. Are you referring to chronic fatigue syndrome (CFS)? I know other people who have it and it's on the radar for my kid but it's so hard to diagnose. :( I hope you are doing okay.
I have rewatched this video so many times. Sent it to so many friends who have mental and/or physical pain. What a great resource. Please never take this down
When I first found out of Martina's condition, I was devastated for her.
A year or so ago, I was diagnosed with Hypothryoidism.
I knew what she was going through was bad but I never thought I would suffer from my own chronic illness soon after.
Not only do I support you, but I greatly look up to you now.
You put such a bright smile and outlook on life even when suffering.
Although our illness are vastly different, I look up to you and how you can stay so strong.
You are a role model to me more now than ever.
Thanks Martina.
For keeping my spirits high.
#BuildALadder
P.S.
Simon, you are a great person. It's hard to find people that put full support to people who are suffering chronic illnesses. You are a blessing.
Bless you love, stay strong and keep building that ladder!
My sister has hyperthyroidism and she really struggled with it before she started taking medication. I hope you're doing well
I almost never leave comments on videos, but this one moved me to do so. I've been suffering from depression and anxiety the last few months and there are days where I also feel so dark. Today was one of them. When I started watching this video I had already been lying in bed for hours and was contemplating staying there all day. But I'm following your ladders steps. I got up, made some coffee and I'm going to go take my dog for a walk. Thanks for sharing, I know it must be extremely difficult, but know that you're helping others who suffer too. ❤️
Ming Lim I know I'm a complete stranger but I feel really proud of you for doing that ☺. Keep pushing through!
You did so well!!! I'm proud, too. Your comment moved me.
Once depression takes hold it can be really hard to climb out of that hole. I hope you get better soon, if you are not seeking treatment already I strongly advise you to do so. If you can't afford treatment there are some self help books that might help you such as those by David D. Burns . It sounds like you are taking the right approach though, just take things one step at a time. Good Luck !
I'm happy and proud of you! You're doing a great job, keep pushing yourself as best you can. You have us in the comments as believers, and I'm sure your dog is just as supportive.
That's *amazing* I'm so happy for you :) I'm very familiar with those days, days where it's hard to get out of bed and even more difficult to leave the house. I'm very proud of you for fighting against those dark thoughts and proving to yourself, and to your depression, that you _can_ fight this! Fighting depression is a lot of small battles (getting out bed, making coffee, taking your dog for walk, etc), winning even just one of them is a _huge_ accomplishment when you're in that "dark pit." Let's both continue to add rungs to our ladders! :)
Martina, this video was amazing. While I love how positive you are all the time, showing this side of chronic pain, and the ways you deal with practically, is so helpful. I have EDS as well (though I have the Classical type), and though mine is usually controlled pretty well, this last month has been really had with school and work. Thank you so much for having the courage to share this side of chronic pain
I really like the ladder concept. Chronic illnesses suck :( I like to try to cook something or clean something around the house even if it's just a sandwich or picking up the living room makes me feel more positive and like I accomplished something for the day. But some days when I have to work even just for 5 hours, that's all I can do for the day. Thank you for sharing your experience with chronic pain/illness ❤ and Simon is a good man, as is my husband 😊 I wouldn't get through most of my hard days without him
Martina you have no idea how much these videos mean to me. I suffer from Chronic Reoccurring Multifocal Osteomyelitis. I'm 15 and I'm in such a hard time right now with my mental and physical health. You are such a role model for me. Seeing your videos make me feel like I can get over anything my life throws at me. Stay strong Martina
Superheros don't wear capes, they wear pig's hats...sending some positive energy and hugs.
Jana Schott best comment ever
Not gonna lie, I started crying within the first three seconds of this video. This video helps me feel extremely inspired, even though I’m not living with an illness or chronic pain.
It puts everything in perspective and makes everything seem more achievable, since i’m not the only trying to work through things. I’m not alone. Lately, I’ve had goals that I want to achieve, but my anxiety, depression, and fear has been holding me back. I know it won’t be easy and will take time, but I have this video when I need a helpful push. #buildaladder
God i’m teary, thank you.
Lee Hanel Same! Tears just stared pouring from my eyes as soon Martina started talking
I have scoliosis and I needed this video. Thank you. I barely have gotten any sleep lately from my back just tearing me up and it's hard to be positive. Yesterday I was stuck crying and laying on the floor unable to move for a few hours so I crawled myself over to a book and read on the floor to start my ladder. I hope everyone else who watches this gets some hope too.
this video didn't make me feel down at all. the opposite, looking at you feel me up with power and optimism. you are one strong woman!
I love you, Martina! I really, really do.
I don't see this as sad. I see this as a woman with strength and hope!!!!!!!!!!!!
I’ve been struggling with going on. Life has hit me harder than ever before, these days are things I never foresaw and I spend them in bed. Watching this and your other videos on building ladders really do help me see some glimmer of light. You’re powerful. You are so powerful. Thank you for making these videos.
i wanted to comment before i watch the video but martina is our universal mom and it hurts to hear our mom is sad :( we love you more than anything martina and by just getting up in the morning we know you're stronger than anything!! :) stay positive
our mom! nah shes too young to be anyones mom shes a great life example and guide
Her mom had her when she was 10
Girl she's like 30.
As a 38 yr old dude shes more like a sister in law.
i know LOL its just like a phrase of affection for me
i wanted to write something deep and gracious to express my awe in you both...
5mins later, the only three words i have are "inspired" and "thank you"
This video must have been really hard for you to film but I'm so incredibly grateful that you did. I've suffered from mental illness for about 7 years now. It has consumed almost all my teenage years and I'm in my mid twenties now. Unfortunately I don't have anyone but myself to rely on, no love and my family don't support me anymore. It's tough when the people around you don't understand what you'e going through, can't relate and not respecting that recovery takes a long time(if it's even possible). I'll try and cherish the things I'm able to do more than the things I'm at the moment are not able to, even if the people around me don't think that's enough. What matters is that we all can at least get a bit of light into that darkness each day. So lets #buildaladder together and never give up together!
Much love to you!
FantasyTea Sending love to you because you deserve it 💙 i'm sorry you've had to go through the fight with mental illness alone, but I'm willing to be your friend if you ever need someone to turn to ^^
Facebook groups have been helpful and supportive! If you'd like, we could be Facebook friends and I can add you to the groups I'm in. 😊
We've got you xxx
We got you fam #YTubeFam
FantasyTea Hello, I am so sorry that you feel alone. I also suffer from mental illness. Just know that you are never ever alone. Remember, there are trillion of cells that are trying to keep you alive. lol 😂 If you ever try to hurt yourself, your body will be sad and try to stop you because it is a part of you and it loves you. Also, for anyone who doesn't understand, just walk away or smile, or laugh like a mad person. Hahaha When I'm super depressed sometimes I just start cry laughing which sounds so creepy and I end up frightening myself and laughing about it. Honestly, the strongest being you can count on will always be yourself. Get out of the house, pet random animals do random meet ups, and meet people. They don't have to be the one, or your best friends. It is just to let yourself know that there are people out there, besides your trillion tiny friends, that want you to be alive. ♥️♥️♥️♥️♥️♥️♥️♥️♥️♥️
I just finished watching Simon’s tattoo video about his past and watching this video about you Martina and your pain makes me appreciate every single video you guys have done even more. The love and support you two have for each other is amazing and strong. I’m so happy that you guys found each other. Stay strong both of you and we will always be here for you and supporting you two and all the adventures you guys go through❤️❤️
have been watching u guys for a very long time and I remember how u guys used to say u didn't want to show us the less happy side of u guys but I'm so proud of u Martina! It's not easy but u're always giving us positivity :-) ❤️
Omg seeing Martina on the stairs shattered my heart to see her in so much pain...😭 You're so, so strong Martina!!!!
Hi I have EDS and I stumbled upon this video today thank you for making this I live in an area where it gets very cold most of the year so leaving the house is not an option when I'm in high pain but on those days I try to get up and do my hair take a shower or put on some makeup but some days that's not enough I still go through a mental spiral and even my pain management isn't enough I used to have things to do on my ladder that really helped but lately those have been taken away I can't even bake without severe hand pain so my list of hobbies have decreased to pretty much reading my Bible and watching TV I'm hoping this summer things cheer up but for now I have more bad days than good and sometimes just the validation knowing that it's not just me it's this disease helps so seeing someone else have to struggle with this breaks my heart but helps me understand that this is not my fault or anything I did this is just my connective tissue and I can choose to be a victim to it or try to get creative and cheer myself up thanks for posting this video I would do it but even on my bad days I don't think I could take a video so I praise you for doing that when you don't feel well even that was hard I'm sure
Incredible how she can deal with such a horrendous thing that is forever-lasting pain. I wouldn't even wish this to my worst enemy. Take care, girl.
This is beautiful honestly. Recently I figured out I had chronic anxiety. I've been lying to myself for a while that it was just something everyone else experienced. Turns out when you're having heart palpitations, and you can barely breath at random points during the day that isn't normal. Sadly I can't do anything to fix it considering I'm terrified of the drugs they use. I can try and make it better though by grabbing a cup of tea, or getting on a good sleeping schedule.
I've also had depression for the past two years. I opened up about it to my friends and (since I lied to them last year) they had no idea how much I was suffering.
Annika Nin I'm glad you opened up. It's OK to ask for help. My significant other has chronic anxiety too, and depression and she finally went to get some help and we are doing much better, as a couple and she is better too as she has now some tools to deal with this. There may be no cure, but you can learn to live with it. Some bad days will come along, but there are going to be some good days too. Hugs!
DO YOU REALIZE HOW STRONG YOU ARE MARTINA?💗 YOU ARE SO INSPIRING YOU ARE A HERO TO ME. (I studied you disorder in school im a biology student in france and our teacher is a collagene specislist and she reaserches the many different Eds including yours and i remember she said it was a really really painful desease seeing you positive even when you are down even when you dont want to and sharing that with others is a miracle to me. I think you are a miracle martina and people like you make me feel proud of beeing human. I know you spoke about eds a few times already but im so grateful for this ladder video because it really shows what you go through and your mindset and im mindblown at how brave and cute you are eveb through the pain😭 💕💕💕💕) i wish you to be happy from the bottom of my heart
Ps: simon is the best
I got diagnosed with HEDS after 13 years and I’ve watched this video many many many times because it helps so much. THANK YOU SO MUCH FOR POSTING.
Thank you so much for making this video, I suffer from depression and seeing this helped remind me
that little goals and accomplishments are just as important as the big ones.
We love you Martina. I'm glad you stay strong
When my depression’s being an ass, I like to bake or cook. I especially like making bread. I love the smell, the kneading, and specially the punching when it comes to making bread. Or I watch Simon and Martina’s videos because they’re hilarious and they never fail to make me laugh.
Thank you Simon and Martina for being the best despite of you both have to go through.
Punching bread dough sounds like a great way to get out your frustration - and also end up with some delicious bread! :D
I'm new to this channel. I just found it five minutes ago just to see yakisoba noodles but I can't say with words how much I needed to see this. I saw the blue tape and I immediately knew.
I have Ehlers Danlos syndrome as well and I still try my best to hold a job and stay out of a wheelchair full time. It's SO hard on me every day although some days are better than others.
Chronic pain can make every little thing difficult but I'm so proud of you for still going strong even when your joints and collagen isn't. It makes me feel so good to be reminded that I'm not alone in this.
Martina here! 💜 Welcome to our Nasty community! The least nasty, most supportive and welcoming TH-cam community on the internetttttt! I hope we can give you some smiles and laughs through our videos. I personally use humour to deal with my EDS as it’s so easy to fall into a dark mind space. You’re absolutely not alone, check out the #buildaladder on twitter and Instagram and you’ll see other lovely people sharing their tough times and pushing through.
Simon and Martina thank you, I definitely will!
How did these onions get in my bed? 😭😭😭😭
Ugh you're so amazing and really are such a role model. Love both of you so much
cassie middles I know right? It made my eyes water.
I have multiple health issues and have always dreamed of having such a supportive partner. You are the most loving, patient, and compassionate couple I have ever seen. Martina, thank you for showcasing your strength and vulnerability. You're a force to be reckoned with and are an incredible person and role model. Simon, thank you for giving Martina the love and encouragement she needs. Your strength is also incredible. Bless you both infinitely.
Last January I was involved in an accident that resulted in me being unable to move and properly walk for close to a year. This gave me hope that I'm not at the end of my ladder. This was a beautiful and inspiring video, thank you for sharing. Much love to you both
I know that I am 4 years late commenting on this video. But, this is officially my favorite video in a long time. Your brutal honesty and insight in life makes a world of a difference for me. I deal with chronic pain as well and this video is exactly what I needed to keep going. You did not bring the mood down! In fact you brought my mood up. Knowing I’m not alone and seeing things from different perspectives truly help when we feel at our lowest. Today I woke up and didn’t feel like there was any hope, but this video completely changed my outlook. I truly can’t thank you for sharing and helping me see hope for me and my future! You’ve positively impacted my life for the better, more than you will ever know! Thank you so much for sharing your story and being brutally honest and helping me learn how to build a ladder! Love and spoons sending your way! -Gracie
I... I cried throughout the video.. it's a melancholy feeling, I know the pain, and I wish I could be happy... my outward attitude is strong and relatively positive, but that isn't a close representation of how I'm actually feeling. Seeing this helped me so much, seeing you being so strong and truly enjoying life. I want so bad To get to that place, so thank you. I can't fucking thank you enough, I can't explain how much this means to me.. Thank you Martina. Thank you so much...
ZeeNavi I hope you get to that place. You deserve happiness.
I felt broken when i saw Martina...
I don't have chronic pain, but i struggle with my mental health... I have traumas, disorders, insecurities..
❤ from another who is struggling make today the best it can be and i will to ❤
❤️❤️❤️ hugs to you
Emppos hope all the best u and martina too.keep strong.thanks martina for your honesty and brave. thumbs up to simon,such husband material
Emppos same here. I decided last year that I was no longer living out of my trauma. It's been a better year, I'm feeling more confident. Best to you, I know your struggle.
Emppos I can completely relate. Although I don't know you random human being, I think you are absolutely amazing. Also, smile at anyone who thinks/says otherwise because the jokes on them for being close-minded. Continue to be kind and to feel good about yourself. If someone treats you terrible and you are still kind, remember, you will always end up the stronger person. It also makes you feel good and strong about your soul because you're not allowing it to weaken. ♥️♥️♥️
This video is an state of art on dealing with your daily self. I'm speechless. Absolutely beautiful. Thank you so much.
Thank you so much for sharing this video. Building a ladder. I have to remember that. I've been dealing with depression lately. I've been sleeping a lot lately. So damn much. Anyway, I've been working on trying to get out of the house more. Some days it feels like I haven't left the house in weeks. I'm trying to drink more water too. Because oddly enough, soda pop shouldn't be a way of life. It's the little things, you know? Thanks again for this. Stay strong, girl. You'll get through this. You're stronger than you realize.
Darling your such a strength..am house bound due to many health problems, alone with sever depression ..but I totally agree if at able too try to lift your spirit as it'll help your mind set, music is one big thing for me and doing my own nails it's were I can put my focus somewhere else to help with the pain and loneliness, take care sweetheart sending million loving hugs...🙏🏻💜😍
I have severe depression. My first rung starts with getting out of bed too. I try to surround myself with things that I love, like my pets and my best friend. It's a struggle for me every day but, I'm trying to build my ladder so that I can get out of this dark place. Thank you so much, Martina. I love you guys so much!
you have a great friend!
Thank you, guys! 😄
This is easily applied to all forms of depression. I appreciate this video so much, because I've been watching this channel for years now. Legit all the way back to, "What Costco's are like in Korea." o.o I feel like when I watch your video's it's like this family style vibe I embrace from them. I mean, I've watched you grow from young adults in Korea, to shining online icons with a stellar business that so many people love. Watching Martina feel the way I feel on bad days is like watching a person close to home :( I thank you so much for braving the sharing aspect of showing us this part of your life. I wish you so much love and light, and hopefully some healing of pain. Sending you both big gigantic healthy happy hugs through the airwaves!!!
Loved your video. I have severe fibromyalgia. I agree that we need to get out as much as possible. My mornings are horrendous. I just feel like curling up in a ball and not leaving the house, but I force myself to go out. Even if it is to a grocery store. I use the cart to help me walk around and walk up and down the aisles to give me some exercise. Then I chat with the cashier or a customer. A few days ago my friend and I went out for lunch. We had a short walk to the restaurant. She has bad arthritis in her knees. She was hobbling with her came, and I was struggling with my walker, but it was so worth it. We had so much fun and such a lovely meal. We even forgot about our pain for a short time. Pain is a very lonely and disabling illness. Trying g to stay positive and not get too depressed is very important. I hope you are having a good today. Hugs ❤️🇨🇦❤️🇨🇦
Oh, I love you so much!! This is so helpful in walking my baby girl, Aspen, through learning to live with a chronic illness. Handling the emotional piece has been a lot and since I haven’t had to deal with it I can’t fully understand what she is going through. Thank you for sharing the vulnerable moments in your life. You are so brave and so full of life and you fight for it! I want Aspen to do the same. Sending lots of love from the Dale tribe!!! xoxo - Amy
+The Dale Tribe it’s always great to see you in the comments. Thank you :)
Thank you Martina, for adding a new step to my ladder of suffering! We all love you guys ❤❤❤
My depression makes it hard to concentrate on reading. However I love books, and I read a lot when I was younger. These days reading even just one chapter or page helps me #buildaladder on my bad days and I allow myself to be content with that until the day I can binge read again like I did before. Thank you Martina for this, this is really important topic and not many people show this raw footage of struggling. Thank you 💕✨
ahh I relate to this a lot! I've always been a bookworm, I would read for hours and hours and never tire of it! For the past few years, my mental health has made it so difficult to enjoy reading. It's hard to concentrate and everything takes so much effort, I no longer feel that love and enjoyment when I try to read a book. I'm trying to get back into it, because I want to _feel_ like me again and I know it will make me feel better if I accomplish something. Slowly I am adding rungs to my ladder, like trying to read again and seeing a psychologist. #BuildALadder I'm cheering for you~!
Serafiina Sigrid - I switched to audiobooks and podcasts. So much easier to concentrate (well, until I fall asleep 😴)
I didn't leave the house once last week. Needed this. Thanks boo.
Thank you so much for this video Martina. I have been dealing with severe depression and anxiety, and these tips are helpful for that as well. It’s easy to stay stuck in your own head, but shifting the perspective to life on the outside helps immensely.
Watching this after a cry because yesterday turned out to be a hard day full of pain while it should have been about finally meeting colleagues and having fun. I just got diagnosed with HSD after 6 years of mysterious pains, physiotherapists, massagetherapists etc. Although I am a lot better after the efforts of one massagetherapists, the chronic pain still gets me, especially to realise now that I will always have pain one way or the other. When I watched this video years before, I never realised I had similar sypthoms as Martina. Now this video is an aid for my own problems, this being my ladder for today.
Thanks for always being honest with us and showing us how to enjoy life through food! Thank you for showing us how to overcome challenges one breath at a time. 💗 I hope your ladder continues to grow Martina! And good job Simon for spotting her as she climbs!
I imagine it's probably tough to make a video like this and put yourself out there in such a vulnerable way, especially knowing how important it is to you to present positivity to the world, but it is *so important.* You change people's lives like this. So thank you.
I know that I really quickly fall into the trap of isolating myself when things feel bad. I've gone days without even talking to someone outside my family. Thank you for reminding me how important it is not to do that.
I am super glad you shared this. This is exactly why Pattimae wanted to meet you this past summer. The way you accept yourself, your disorder, and your limits, but still push to be happy and adventurous in spite of it all was truly inspiring to her. The Meeks family sends much love from Texas.
+Dawn Meeks oh my god! I’m so happy to see you comment. I really hope Pattimae has a good time. We were so super nervous. But that Day was a very special memory to us. Thank you for giving that to us :)
I'm always too anxious to comment on things but I wanted to say thank you. Martina, Simon, you both have helped me so many times when I've fallen too deep. You've kept me strong when I'm at my lowest, and your messages always ring so true to me.
After a hard year of almost losing my mom multiple times to a bad car accident, getting diagnosed with Fibromyalgia, and now dealing with a bad car accident of my own, I am rewatching your videos to make myself smile to start this new year off.
You are the first rung I reach for on my ladder, and I'm so grateful to you both.
I love how supportive Simon is ❤
This was a really tough video for him to film too! He's an amazing husband and best friend. I'm very very lucky to have found him.
I've just been diagnosed with borderline personality disorder and I find it really hard to control the depression side of it, this video is definitely going to help me get through those days, thank you Martina ❤️
Thank you for this video, Martina. I'm sitting here crying bc this must be what my therapist meant when she said "happiness is a choice". You are so lucky to have Simon in your life. Your marriage is an example of "the perfect couple", not some Disney princess scenario. Thanks again for this and all of your videos. Also, my Most Bomb Dino says hi to Kogi and pig hat! 🐊🐖🐷
i inherited my mom's rheumatoid arthritis, and this 2017 has been insanely painful. i also cook for a living which is already painful....so yeah we out here....good advice guys
The Autoimmune protocol may help you, it's helped me, am doing self care and rest
I have HSD and fibro and cook for a living as well!
I've been struggling with juvenile arthritis daily since I was 12. It was so bad at one point that I was bent over some days with no way of straightening up...
Literally my life right now
The RA, meee 😩 hope all of you in the comments are doing ok! 🙏👍💙
Thank you for making this video for us.... I'm only 3 minutes in and I am so grateful for all your efforts.
I just started watching this and I’m already tears because I understand your suffering. I have a channel and I only do vlogs when I can be a little cheery. My husband always says people are not going to see how bad I really am. I have ME/CFS, POTS, Small Fiber Neuropathy, Undifferentiated Connective Tissue Disorder and more.... I deal with daily Chronic pain and torturous fatigue. You are a strong woman. I am so sorry for your all the pain you have to live with.
I couldn't stop crying through your video, Martina. I suffer from anxiety and depression. This is amazingly brave video to make. I connected to so much to your strategies, especially looking around really observing things. It is so easy to forget to smell the roses and take for granted the beauty in the world. Sending you all the best vibes! :) Take care.
it smudges I suffer from anxiety and depression as well, this video helped me too. You aren't alone.
Huge kudos to both Martina AND Simon. You two are one of my favourite people on youtube and of course always #couplegoals. The strength and trust you give each other is amazing, not to mention how honest you are about the struggles of what you both go through as individuals and together. It is refreshing to see. Life isn't always perfect, peachy or pretty. Thank you for sharing this journey with the world and us. Keep building that ladder Martina. Also can we be best friends and watch Netflix and listen to George Michael?
"Observing life outside of your own mind is critical to your well being." I could not have said it any better Martina! This channel has been excellent in making me smile. Love the videos xx
I watch this video every time I have a really "down" day, and it helps me to watch you pull yourself out of it. It's a very late comment but I wanted to say thanks again for making this.
I see the video and read all the comments of people suffering and trying to get on with their life the best they can. It really puts things in perspective. I hope, thinking about you and the other viewers with chronic pain, will help me face my problems with more strength and determination.
Reading the comments does the same for us, and helps keep us motivated :D
I dont have chronic pain but i do have anxiety and i know how things like that can suck. I have never felt physical pain like that and it sounds horrible. Im sorry youre going through this and im very sorry that you have this pain. We support you all the way. I just need to say good luck. Youre an amazing person and we love your videos. Youre fantastic and you can work through this. You are one of the best people i know. Im currently suffering through anxiety and have anxiety attacks often, they aren't big but still bad. We love you. Everyone does. Im not gonna lie i always vote for you to win over simon.
I think it's very courageous of you to make this video. I can understand it must have been hard to do this while you felt like giving up in the morning. But you will inspire so many people, just like you did to me. It feels like the hardest thing ever to wake up, feeling like you don't want to continue this day and yet find the strength to get out of bed, get a shower and to go outside among people. Thank you very much for making this video. It might be sad (I cried a little at the beginning when I saw you feeling down) but it gave me strength to live every day, sometimes in small moments, sometimes in big moment. #BuildALadder
Hi Martina! Today’s the day since you made this video that I sit down and tell you how much this video helped me.
To make a long story short, I was in a serious auto accident where I broke my back and a few other bones as well as a Trumatic brain injury. The brain injury was the worst. Is the worst, still to this day. I’m not as disabled as I used to be but I still have a long way to go. One of the things I have dealt with is severe PTSD. I had to travel 12 hrs. hours to get to Brain Rehab every week. I had to travel on an interstate and it was terrifying. I had severe panic attacks and I couldn’t look at the road so I would just cry hysterically. I didn’t know what to do or how to cope... I had tried everything. After I saw your video I learned that I could cope with the pain and find a way to get from point a to point B without losing my sanity. It was then that I bought myself a big panda bear to ride in the car with and I I asked a sweet girl on Etsy to make me a Pikachu hat so I could have the power of the Pikachu. It’s a big hat that prevents me from seeing out the windows and it makes me feel secure. It didn’t solve all my problems but it really helps and I have wanted for a very long time to tell you how much I appreciate this video and it still remains one of my favorites. I have a good friend who deals with the same disorder you do and today I shared this video with her and told her she needs to get a pig hat to give her the power of the pig just as it had given you power. I hope you are doing well and weathering this pandemic with your sanity intact. I hope you are continuing to build that boss ladder! Thankyou for helping me build a ladder out of my hole. I’ll never forget you. Much love, Heather💓
I have obsessive thoughts which usually belongs with OCD but for me it just makes my anxiety much worse. It is like when you keep fearing "what if" over and over. The things my mind chose to obsess over is not all bad and some are terrible. For me, I try to listen to music and not think about depressing thoughts so I try to focus on what is really happening. It is easy for people with anxiety to doubt themselves so I remind myself I have always knew what was best for me.
I understand the feeling so well. It seems for me, my obsessive thoughts tend to ruin my brightest moments of high and kick me down even lower when I'm down. I guess everyday is just a challenge but you can always choose to fight and to continue.
My heart literally broke... feel better soon Martina, you do you and this is honestly so inspiring even for someone who doesn’t deal w chronic pain. It’s amazing how much your mood shifted throughout the day and I’m Glad you made this video ❤️
My heart grieves openly seeing you fight this with all your strength. And, knowing your husband is wholly committed to you is of great comfort and honor. ❤️
I introduced your channel to a mutual friend of mine who also has EDS. She said that ever since she’s found your channel, she’s fallen in love. Your positivity and reletability has helped her a lot. I’m just glad I was able to share my favorite TH-cam channel with someone else who loves you guys just as much as I do 💗
I don't have chronic pain, but I feel like these steps to build a ladder might help with my depression too. Thank you for filming this, Martina.
You're a strong girl and I'm really proud of you! Be strong Martina!! Fighting!!
As a person who struggles with chronic pain daily I just want to thank you for this video. THANK YOU so much for sharing Martina!!
Thank you both for sharing this. Many tips you gave are also very helpfull for depression. Also this video helped me understand my friends who have chronic pain even better. You are a bad-ass!
I have classical EDS. it's rough.
Honestly, I do my best to ignore it and not tell people and because I don't really have a support network I kind of have to? I work full time which is hard but I have to... I could write a huge essay on my experience but really the only thing I find super hard is being on a full bus. I've never found the courage to ask for a "disabled" seat because I look fine, even though my 15 min bus ride while standing is so physically draining.
But yeh. Idk if ignoring is the healthiest tactic but... 🙆♀️
There is an EDS reddit if you need some friendly ears! Hugs if you want them. reddit.com/r/ehlersdanlos/
Em Brains I have no idea how I missed this reply but I will check it out thanks!!!!
Thank you for sharing your struggles with us, Martina.
About 6 years ago, I got hit by an SUV and came out of it with a head injury. Nearly daily migraines are my new normal. It’s hard when all you want to do is stay in the dark comfort of your room and it most definitely exacerbates depression.
I will probably start trying to build my own ladder on the bad days, and will be sharing this video with my roommate, who also has EDS.
Keep fighting the good fight.
Thank you so much for this Martina and Simon
You are amazing Martina. A true inspiration to all of us! No matter how hard your life is positive attitude towards it always helps. Your videos always cheer me up or help me with my problems. Even when you post a video like this one. I wish you and Simon were my real life friends. You are amazing!
Let's get Martina the most fabulous and awesome arm supporter . I know that in the us you can find super customized one .
If only I knew their build I'd make one myself, really awesome with cherries and pigs and rainbows...
I was thinking we could make cutouts using various colored tape, maybe paint detail on them with model paint. Then she could customize it how she wants.
Totally agree there must be a way to make a cover we can make a template if we know the sizes then it should be easy
what about a cover for it? like something you can attach to the outside with velcro or something?
maybe cute iron on patches too
You have no idea how much i appreciate you making this video. Thank You!
Oh my god, Martina, you're such a beautiful human being. You don't act like life is only just filled with cupcakes and butterflies, but you don't hesitate to show that you are a human and have some dark parts inside as well (as we all do). Embracing that, mentally challenging yourself to get out of that pit and being courageous enough to share that with your friends here. You are so brave and you really are a fighter. Girl, you badass. This video is so freaking inspirational.