My ALS Journey

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  • เผยแพร่เมื่อ 11 ธ.ค. 2024

ความคิดเห็น • 12

  • @teresa2638
    @teresa2638 2 หลายเดือนก่อน

    My heart goes out to you. Thanks for another video. You're righ,t acceptance and finding peace and gratitude are key, not always easy but definitely key. For me with my condition (not als) it's also a case of thinking what can I do, as well as what do I need to do to bring me moments of peace, joy and contentment. I'm writing a 'personal winter survival guide' whilst watching this and the first thing is 'conscious living'. The second thing is drink more tea!!😅Take care and thank you. xxx

    • @tallskinnywith6shots1
      @tallskinnywith6shots1  2 หลายเดือนก่อน +1

      Hi Teresa, enjoy a warm cup of tea it’s the little things that soothe. Life brings many things thanks for the sweet comment hugs :)

  • @ThePerfectSeason1972
    @ThePerfectSeason1972 2 หลายเดือนก่อน +1

    Hello and good to see and hear from you again.

    • @tallskinnywith6shots1
      @tallskinnywith6shots1  2 หลายเดือนก่อน

      @@ThePerfectSeason1972 thank you for watching :)

  • @qedqed110
    @qedqed110 2 หลายเดือนก่อน +2

    I love your Fall theme! Your fave holiday just around the corner. Halloween! Here's a challenge: try fixing the toilet based on a youtube video~.I can't replace the engine in my Jeep (turns out it needs oil!). I hear you about your spastic issues. Sometimes I am prone to that little, teeny, weeny voice that tells me I'll never publish! But then I tuned into you, my friend. Resetting life is a strange concept. But it's living consciously. My dear Texas Lone Star, hugs. Frontporchtalker.

    • @tallskinnywith6shots1
      @tallskinnywith6shots1  2 หลายเดือนก่อน

      @@qedqed110 Darn your inner critic if you publish, I think you would find an audience. It’s hard on the online platforms sharing your stories. It just takes that little click to get wider audiences. Time It’s a commodity to hit it at the right time. It is amazing what you can find and fix by TH-cam videos one thing that is a wonderful side effect of the pandemic if ask me. Yep, resetting life what are my goals for quality of life? Consciously living and sobering for realistic goals coming from a body that is having deterioration of motor neurons. Frontporchtalker. I could see your writing going viral on NPR. Overtime collect a manuscript , I enjoy your stories. I’m not gaslighting either. What would be the point of that? Hugs my PNW sister

    • @tallskinnywith6shots1
      @tallskinnywith6shots1  2 หลายเดือนก่อน

      Hugs to you my PNW sister. Halloween is coming such fun. I’m blowing up the fake body today to wrap it up in a garbage bag and use the duct tape such fun. I’m twisted I know. I am so glad your jeep just needed oil. Forewarned does jeeps and oil in jeep is really important. My niece blew her engine in her jeep 10k
      I would keep an extra oil container in the jeep. Darn your inner critic you’re writing is really good Frontporchtalker it’s worth publishing I can see it being sold in Powells and other bookstores perhaps an NPR recommendation. It’s just timing time is commodity. May you be blessed with a lot. I am just restructuring to be realistic and to be able to enjoy my life yes living consciously resetting my goals for quality of life. Should be interesting and helpful

  • @Tayyab-hr1gp
    @Tayyab-hr1gp 2 หลายเดือนก่อน

    Voice is very very slow

    • @tallskinnywith6shots1
      @tallskinnywith6shots1  2 หลายเดือนก่อน +1

      My mouth is effected cramps in the jaw couldn’t open it normally

    • @Tayyab-hr1gp
      @Tayyab-hr1gp 2 หลายเดือนก่อน

      @@tallskinnywith6shots1 ok sorry 😭 😭😭 dear friend

    • @tallskinnywith6shots1
      @tallskinnywith6shots1  2 หลายเดือนก่อน +1

      @@Tayyab-hr1gp thank you

    • @Tayyab-hr1gp
      @Tayyab-hr1gp 2 หลายเดือนก่อน

      @@tallskinnywith6shots1 welcome