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When I heard that one all I could think of was the video of the lawyer on a zoom court case that had a cat filter on and was assuring the Judge and other lawyer that he really wasn't a cat and was actually a real lawyer.
@@JamesDavis-ps6yy it's plain ignorance for a parent to claim they did a good job when their child is struggling with neurodivergence in a neuro-functional world. Studies are coming out that ADHD is linked to infantile emotional neglect, along with in utero diet and drug use, as well as ACEs in the first one thousand days.
"you're not autistic, you don't rock back and forth" (=_=;) it's amazing how many things we learn NOT TO DO, to appear "normal" for the sake of others.
А я раскачиваюсь. И не могу долго общаться с людьми, делаю паузы в речи там, где я знаю, они не должны быть, потому что думаю что сказать. Ужасно боюсь смотреть людям в глаза, боюсь мужчин всех, но в разной степени. Женщин тоже, если они на меня смотрят. Моя тётя вечно удивляется тому, что я обращаю внимание на странные и, в её понимании, неважные вещи, а на важные нет. Но у меня нет диагноза, так что пока всё это - просто моя "изюминка", хаха
There is a book that claims "all cats are on the autism spectrum" written by Kathy Hoopmann. I didn't read it but the "you can't be autistic because you are a cat" one made me laugh so much, knowing that book exists 😂
It's a great book! It's probably a children's book, but well worth it regardless of the reader's age. My own cat is all the cats in that book, and I'm my cat.
"You're not autistic, you have feelings. Your second cousin has Asperger's and he doesn't have feelings" It was the first and last time I opened up abt that to my grandma. Worst part is when I finally met my cousin and he was just the sweetest kid, smh
honestly, one of the first things i thought when i got my diagnosis was "is anything i feel real?", because to me, autistic people were basically just people without emotions getting in the way of their rational thought, "rational thought machines". imagine what an edgy teen i became after. Also, i was a complete idiot for not asking these questions to my psychiatrist, who might have actually been able to help me with this if i had just said it out loud to him. it was difficult because i thought a lot about "this feeling i have, do i actually have it or did i learn to have it?"... the weirdest answer i got when i said that out loud was "yeah, but that's normal, everyone learns their emotions". and back then i didn't realise this person might need a diagnosis as well, but probably not the same as mine. it was really getting in the way when i had my first real girlfriend ("real" = longer than 4 months) and i was really afraid to tell her i don't know if what i felt was real. having grown up i learned that on one hand, what i felt for her wasn't love, but on the other hand it was real anyway.
My family are the absolute last people I'd feel comfortable opening up to. I'm not likely to ever tell them, and it's because they'd come back with something stupid like that.
"You can't be autistic, you're too sexy." "Hey! I mean thanks. I mean Hey!" 😂 Excellent response. Caught me off guard. I had to pause the video there because I was laughing too much
That was excellent. My reaction would be much less funny: in the unlikely event that I realize that someone is flirting with me, I usually go into panic/freeze mode. Thankfully it only happened to me 2 or 3 times, and I’m old for it now. 👍
Ooh, stubborn. Is it quite a common thing for the obstinacy of autistic children to be regularly remarked upon (rather than mischief etc.). There was a little rhyme that I heard, a lot, growing up: "There was a little girl, who had a little curl, right in the middle of her forehead. When she was good she was very, very good. When she was bad she was horrid." I think it's about an autistic child!
The very first time I ever suspected I might be Autistic. I was asked "can you read a room?" I said yes, and literally over a decade later finally realized I had no idea what that question meant.
@@pain.497 not sure if you still need the explanation for this one, but I think what people mean by this question is if you can feel and understand the vibe, emotions, people's face expressions/body language, and the overall atmosphere of the room
Two things I hate to people finding out that I’m autistic: 1. “You can’t be autistic because…” 2. “Ahh….yeah that makes sense. I always thought you were a little off.” I’ve just stopped telling people at this point. None of their business.
@@Dezzyyx Dunno about you, but the fact that I'm "a little off" for reasons I couldn't explain is exactly the thing that drove me to a diagnosis. If you're autistic you shouldn't seem completely normal to everyone around you, because you're not normal.
I agree. Personally I don't mind being "a little off", I think in this context it's more about the perspective, like the other person is doing the judging. They only stated they always felt you were a little off, not how they feel about you being a little off, so it's hard to know the implicit meaning in that statement. When you first get a diagnosis you might be vulnerable like that, to know is it OK to be "a little off" to people around me. Now that you finally got the answer and want to accept that, in turn want acceptance for it. @@jliller
"You're actually autistic. I just didn't want you to be treated differently." -my mother I'm 28 and I just learned last year. "You didn't know?" Was the most common response. Everyone apparently knew, except me. Thanks, lifelong friends... that stung... it definitely fed into my lifelong fear that I might be cognitively disabled and everyone was hiding it from me. Thanks, assholes... 😂😂😂
As a kid my brothers used to call me the R word on a daily basis, I felt so different and alien compared to other people I genuinely believed that must be the truth and everyone was lying to me to make me feel better. Just thought I would say you weren't the only one.
I remember as a kid being studied by psychologists. There was one part of the study where they showed me a room full of a bunch of kids playing through a window (maybe a two sided mirror?) and the psychologist said “look at all those kids having fun. Do you want to go play with them?” and I said no. I knew that was the wrong answer and I had failed the test 😩 that memory makes me think that I was probably diagnosed as a young child and my parents failed to tell me, hoping I’d outgrow it. That was in the early 80s when autism wasn’t as well known.
all I heard was people's egos saying, "you can't be autistic, because if you are, then I don't understand autism. and if I don't understand autism, I have to worry about if I am autistic."
Oh, I'm guilty of 63. "You're just like me". When my best/only childhood friend got diagnosed as autistic + ADHD as an adult, I was like "Why are you getting this diagnosis if between the both of us you are the "normal/social/extroverted" one?" Some years later I got my diagnosis.
My girlfriend was the one that did this for me. She had just figured out that she is autistic, and as she started listing all her reasons and childhood experiences I was pretty much shellshocked lmao. Suddenly so much stuff made sense - or rather, I understood why there was so much I felt like I didn’t understand or others didn’t about me.
Something similar happened to me with my boyfriend. I've been telling him I think he has ADHD for a while. But since I'm checking more about autism in women and feeling so identified with it, I've been commenting it with my boyfriend. He first said, no, it's impossible, then as I showed him more characteristics he was like oh well, maybe a bit. Then after a few more he was like: but that's normal no? Everyone does that. And I was like: mmm sure, I never saw my mother or anyone else in my environment do it though, except you and me.
66. You can't be autistic. You have a good vocabulary. You aren't non verbal. 67. You can't be autistic. You don't have tantrums in public. 68. You can't be autistic. You're just like many of our relatives. 69. You can't be autistic. You don't flap your arms. I could go on and on.
@@Jeanelle_Art oh my stars! Same here! I thought my arm flapping was a tic that I could hold in until I was in the privacy of my room... Then a traumatic conversation with my step father led to uncontrollable flapping, to which he told me to stop... 😐
@@audreydoyle5268 It's only been in the last year that I realized that I do in fact hand flap when I get really frustrated. I manage to avoid it in public, though I have done it in front of other individuals. I know what you mean about tics...one of the things that fuels bouts of imposter's syndrome is that most of my stims come out in a Tourette's-like quality (I never doubt my GAD dx, I notice). But I am SO self conscious about stimming if anyone could possibly see me.
i talked with my mom about autism and how be both could be autistic and we both found so many things about autism in ourselves so that we just ended the conversation with pointing at each other and shouting "AUSTISM!"
I focus on peoples noses. Anybody that I know I know him by their nose , and I tell people do not ask me what I think of your nose , you may not want the honest answer.😂😂😂😂😂 After I was diagnosed, my mom asked me. Is that the reason you notice everybody's noses to avoid eye contact? I Exclaimed happily that's exactly why!
I just get that my sibling has it worse than me, or basically anyone the person can think of in that moment, just to make a point that someone, somewhere, has it worse than me. Very important to make that clear.
When my mom says 'I don't think you have autism', I explain it to her this way. Autism has different levels of severity like vision impairment. Some people can get by with blurry vision while squinting whereas others are so severe that they need strong myodisc lenses.
Ooh, in the sensory way, it's like being a burn victim. Some people touch a candle flame and get a first degree burn on their finger. But autism feels like living in Dante's inferno.
I really like the way the Neuroclastic article lays it out. Can't post the link (thanks TH-cam) but if you search for "neuroclastic it's a spectrum doesn't mean what you think" it should pop up. I've found it really helpful when explaining different levels of functioning and assistance needs.
Some people are long-sighted, some are short-sighted, some are blind in one eye, some just have reading glasses, some wear sunglasses, some are cross-eyed, some have a lazy eye...
@joe1205 Yes, exactly, and I'm nearsighted with astigmatism and myopic degeneration as well as Autistic lol. Whats sad is the people who aren't actually dealing with ASD dont put actual thought into what it is or how we actually struggle and they just say any ignorant insensitive thing they can pull out their butta to people like us to discredit and dismiss our daily struggles. It's so beyond fruatrating and disappointing 😞
I got told to my face, at an autism discovery center, within mere minutes of meeting the person for my diagnosis, that I was too social to be autistic. They essentially ended up saying “yes all of her symptoms end up mimicking the criteria for autism, but she’s friendly and creative, so no” I’ve also been told by a teacher (who I otherwise loved) with an autistic son that since I don’t flail and have tantrums and am not nonverbal that I couldn’t have autism (I was talking with friends about the fact that I have a lot of symptoms that line up), because apparently autism can only present as someone is used to. Let alone the fact that when my sensory issues get to their max I DO in fact flail and get communication impairments, I just go somewhere private or wait until I’m home because I was bullied for having “anger issues” because of this response to overstimulation.
THIS!! As a child I was stubborn and my mother helped fit my environments to my needs. Inconveniently I managed really well to self-regulate and got by masking 24/7 until I got to the “real world” and suddenly “re-developed” every symptom I’d forgotten as a kid. People don’t understand when I say I literally lose the ability to see, then speak, then move when I’m overwhelmed. There’s a big stigmatism against recurring illnesses especially when they’re mostly invisible to outsiders, even more so when “high-functioning” just means “passably masking”. Sometimes I almost feel NT, most times recently I’ve felt highly disabled.
For many years, I thought of family as people you are around so much that you won’t be able to hide what a disaster you are, and once they realize it, you’ll lose your incentive to try and hide it, and get even worse. I wasn’t diagnosed until after my parents died, and in retrospect I can see that this is basically a bleak description of masking by someone who doesn’t know that they are autistic. (Both my parents were some kind of neurodivergent.) The other things that I think factor in to the reactions you got are a tendency to equate autism with kids, and whether NT or ND, there are obviously differences. And then, rather crudely, the differences between “types” and/or maybe comorbities, depending on how things are viewed. I’ve suspected that I was an Aspie since that criteria was added to the DSM, and when, in my job, I used to sometimes meet autistic kids that were in special needs classrooms, I sensed a kinship, while also knowing that, even as a child, I had much lower support needs. I prefer feeling part of the broader autism community, but these differences make me feel much more prone to imposter’s syndrome than thinking in terms of Asperger’s did. And that’s a view from my part of the inside. Spectrum is still a fairly new idea in a field that is heavily oriented toward a binary yes or no.
Actually it’s common for autistic people to be more creative and my sister who I suspect is autistic is hyper social instead of hypo social. It only matters about the way they socialize/their approach and the intensity of her need for socialization is almost crippling
I usually get really snappy and cold when I'm at my wits end. I used to yell at my mom whenever I was too tired and refusing to do my bedtime routine as a teenager. She'd have to drag me out of my bed for me to brush my teeth and I'd yell at her to leave me alone. I also did this on our trip to Naples last year for Christmas. It got so bad I began loudly crying in our hotel room. I had enough of her crap. I don't usually get overstimulated. I don't have sensory issues apart from getting too cold and always wanting blankets around me. Or being scared of ambulance syrens at night since I was a kid. But whenever people push my buttons or things change too suddently I either get snappy and cold or I cry uncontrollably. And I overall look normal. But you wouldn't say that to someone who cried two years ago because I was told we might get my favourite pizza for me and my mom to split for dinner in Siena and she ended up getting something different for herself. And I was so upset I didn't want anything other than that pizza. Luckily I found a place that sold pizza by the slice and got a big one of the one I wanted so badly. I cried on the phone to my brother who thought I was going crazy disturbing him and his ex while they're there in their hotel room because of pizza. It could've been the most disgusting slice of pizza out there and I still would've eaten it happily. Even if it was dripping with oil everywhere. I got what I wanted and shut up. I had a friend of my mom say I don't look autistic. We met for the first time ever last year. She's Ukrainian just like my mom but still lives there hence why I've never met her. Or maybe I did when I went to Ukraine a few times as a baby. My mom told her she hasn't lived with me enough to truly know and I can't agree more. Also the way I was diagnosed is really interesting. Because nobody in my family had any suspicion. I went in for dyslexia after a teacher suggested me to get tested when I listed my struggles to her. She is also dyslexic. Then once I tested negative I was admitted into therapy for being really skinny and having a suspicion I had an eating disorder. Basically the people that tested me thought something was wrong with me based on my very skinny build. I was never diagnosed with any eating disorder but was instead told about this Aspergers diagnosis by my therapist. She told me what it was. It was sold to me as "a difficulty in socializing" not autism. And I tested somenthing like 100 out of 60 to 120. I wasn't given any help in school as both me and my mom refused as I was doing fine. Because you will end up doing fine if you haven't been diagnosed in your first 16 years. That's all you know. I struggled accepting I was autistic as I didn't see it. And always blamed my behaviours in socializing with past terrible experiences. Like bad friends, toxic friend groups and getting bullied for being the weird kid who picks her nose. And it took a really long time to realize I was part of the extremes club. I was either super friendly. Too friendly and too open and honest. And when that didn't work out in my favour I shut down all communication. But then I was told by outside sources I was never friendly to anyone. I was isolated in my own world. And I probably interacted with other kids because kids usually drag you into anything whether you ask them or not. I mean I once was asked a few things about my personality by ex classmates and I took it too deep and too seriously. It was simple things to find out my zodiac sign. But this dumbass said "Well I'm an extroverted introvert due to an issue I was diagnosed with" to the simple question of are you an extrovert or introvert. Also I saw my therapist for a while two years ago due to some struggles and she told me I changed a lot and got a lot better in my ways. That I have better eye contact and over all opened up a lot. This usually happens for me when I gain confidence with people. I become more myself the more I know someone. And thinking about it now makes me want to cry. It feels so good to be told you changed for the better and people can see that. I take what she said as a good thing as she looked happy of my changes. I don't mask really as I never had to mask in my life being that I passed as normal for so long. But this feels amazing to hear and feel.
@@winterwithawhyknudsen5166Ever since I was a kid I always had a strong incline towards anything crafty. My passion for crafty things was so bad I ended up getting paper detention at my own home. Either because I was wasting so much recycled paper (basically paper my mom would bring from work with one side printed on and the other empty). Or because I was making too much waste and too much mess with it. It started by making paper garlands and decorations. To drawing people, then origami, sewing, scrapbooking, baking, knitting, crocheting etc. Of all of those I sometimes still do origami or general paper crafts, I still knit and crochet but more sparingly, I sew one piece of clothing a moth and I own a good sewing machine and a seamstress adjustable dress form/mannequin. I still bake: my best bakes so far are custard filled fruit tarts, bread and fried doughnuts. And I draw more professionally. I draw with regular pencils (not coloured), this summer I made my first guache painting of a naked woman (I know) half covered by water that everyone likes as it's quite an impressive piece I like to show off to guests. And they all look surprised knowing I made it myself. I also do digital art sometimes. I've made a few speedpaints and posted them on here. And I forgot to mention that I actually wear most of the clothes I make outside for the world to see. And I've made some for my mom. So I did it all. Basically. Autistic people can be hyper creative due do hyperfocusing tendencies. Some autistic folk like transportation. I like doing things with my hands and seeing what others think of what I do. Also to add to your comment it seems to me at least that autistic people are usually the extreme as I said in my other comment here. We're usually either too much or too little hence our inconsistencies. As in: "Struggles with eye contact" could mean too much eye contact, forced eye contact or no eye contact at all. "Normal people" are in between, we're not. To further add I also do beadwork and make my own jewellery sometimes with wire work. I've said all of those things to someone once in a game. Basically it was a game with some old people we were visiting at the Alzheimer's café. Where you had to tell them things about you and they had to do the same. Then you had to tell out loud to everyone what the other person told them. And the lady said to everyone all that I do and ended this by saying (this actually happened it's not a joke or made up): "She's wife material" I guess because she's old school and I enjoy cooking and making things with my hands.
2:18 as an autistic person I constantly throw my garden furniture into a pool.Each week I buy new garden furniture and hurl it into the pool at the speed of light just to feel alive.
I knew a kid with autism who actually did this. Was kinda annoying because everyone at the pool at my moms friends house started thinking I would to the same type of things due to also having autism so I was always watched way more closely and people wouldn’t let me near the chairs or umbrella
@@risktheanimator6592 Ok thats depressing you arent treated as different person but else it slounds harmless fun. I guess just get plastic garden furniture.
That is just the wrong way to do it. You are doing it backwards. You are supposed to grab the pool and throw that into your garden furniture... makes more sense.
My son's first round of autism testing used the "he can't be autistic because he seeks affection" 6 years later, a different Dr. diagnosed him and said that reasoning was utter nonsense. 10 years since then, and he's still incredibly affectionate with people he knows and likes.
You'll find an egregious amount of people are told complete and utter nonsense at LEAST once when seeking an autism assessment. Even among professionals, autism is very pathologized and very misunderstood, so you'll pretty much always run into at least one professional along the way that says having one trait that's associated with neurotypicals is enough to cancel out an entire DSM criteria worth of traits, which they would find if they were less ignorant.
I have lifelong persistent fear response issues. I’m reasonably sure this is at least partly due to prenatal exposure to high stress hormones. It’s a primary characteristic with a physiological basis. My difficulties with affection and connection are mostly a matter of the behaviors I developed to cope with that physiology, and I would argue that these are secondary characteristics. I suspect there are common patterns of behavior that arise from persistent fear - I think PDA behaviors are an example - but if these behaviors are learned, they are likely to vary with the individual and their circumstance. So where I responded in an unfortunately broad manner - is getting close to anyone safe? - your son may have responded in a more nuanced and appropriate way: strangers may be scary because they are an unknown commodity, but once he knows someone well enough, he is able to put them on the safe list. To coin a phrase, it’s not rocket science: the point of autism life coaching, if done right, is to teach the best available ways to manage one’s physiology. It doesn’t necessarily follow that autistic people only learn terrible coping skills prior to professionals stepping in. Most of us probably learn some tolerable ways of managing ourselves on our own or with help from relatives. The professional prejudice that leads to the kinds of ridiculous statements being recounted in these comments is, I suspect, based on the assumption that autistic people couldn’t possibly have any decent coping skills unless a pro taught them. Sign your kid up for OT, and then making strides is a sign of therapeutic success. Learn some good skills on your own, and you’re “not autistic.” That’s leaving aside other possible variants, like individual neurology. I am not a hugger, but many autistic people are. I know one, and I’m always trying to dodge getting hugged, with very limited success. I wonder sometimes if she is sensory seeking in this area, it feels like it.
These comments are funny until they come from a psychiatrist which is supposed to be trained for autism diagnostic and deny diagnostic on criteria like having empathy, being able to make eye contact or being able to speak. Thank you for your videos!
I've come to realize that psych experience or expertise does not equal less ignorance in regards to Autism, these people are sometimes worse with the stuff they say, probably due to wanting to project their authority telling you "what's what". My thing is, I'm so confused, why is it that people who do this as a job aren't up on the knowledge within their field? Super weird. If I was a psychologist or similar you better believe I'd educate myself on something as important as Autism. And how do I not know by now, having the job I do. Like how are you this ignorant, make it make sense.
@@Dezzyyx Some have a hard time telling "I don't know" which as you said causes even more harm. I am playing the devil advocate here but research on autism is moving "fast" these years and it represents only 10 pages over more than 1000 on the DSM, so I don't expect all the psychiatrist to be up to date on the subject. (I only speak about psychiatrist here because where I live psychologist does not necessarily have a phd which means some of them do not even know how to read research papers...). The issue about this is that they use old ideas about autism which means they think they don't see any autistic person and so have no incentive to stay up to date on this subject. This happens with all M.D., when you are curious about your own condition and try to follow research about it you will quickly know more than most doctors on this specific subject.
I agree I don't expect them to know everything, but don't just go by as you say old knowledge or limited knowledge and assume you know what Autism is. @@guitaryska8379
Apparently they don't understand the difference between a clinical setting and reacting in real-world, in real-time. Several studies show autistic persons can easily and properly identify and demonstrate these behaviors _in a clinical setting._
I discovered I was autistic after watching "63 common autistic traits you never realised were signs of autism!" Now I've learned 65 reasons why I can't be. Does that means I'm down to -2 reasons why I am autistic?
if you're really really bad at math, it could mean you're a rhinoceros. Yes I know, what are the odds. Well, no idea I guess, with the bad math and all.
-2 is equivalent to 61 in the integers mod 63, so I think that means you're almost completely autistic. But my math may be off, because I'm a girl and therefore I can't possibly be autistic myself.
I just recently had a friend tell me I can't be autistic because I'm very self-aware. I tried to explain it's a spectrum and he just said "Yes, there's a little more to it than that, but it's mostly self-awareness."
I have been told by mental health professionals that I am very self aware, which is true I think. I’ve also been told that I describe things mechanistically, which is definitely fair. I think to a large degree my self awareness is an autistic trait, a combination of analysis and pattern matching in the absence of as much intuition as some have, and heightened interception with my brain and nervous system. I gather I am not so great at describing my emotions in classic therapeutic terms; I can describe the thought process behind my reactions but not the specific emotions. And I always felt I understood people far better than my father, because my mother taught me about how people think. For a long time I thought I had good intuition as a result, but now I think it’s largely a theoretical base that I built by pattern matching. It’s a fairly functional system, but it rarely helps me much in real time interactions, I still only figure out my mistakes well after the fact. So sure, self aware, but with some big asterisks.
Its not like self awareness can be a pretty common way to try extremely hard fitting in without knowing how, like if you have autism and its like hard, hmm. Also learning to read people is pretty much a surcvival mechanism to read hostile signs, and yeah reading people is learning, autists can for the most part learn that. If its not a random expected to get it and ewxplained , anything can be learned in social skills mostly. Not that its nor harder and that. Bu why the hell wouldnt you be able to learn to read people? It might have even been, a special interest :O
Considering that we need to tweak ourselves constantly to blend and a common Autistic trait is to ruminate and overthink, I don't understand why people think Autists can't be self-aware, we *have* to be in order to function. We need to find our limits and what will mess us up so we can avoid those things.
@marocat4749. Your second para raises an interesting possibility for me. I tried Baron Cohen’s eye expression test some years back, and my main takeaway was that most expressions I found ambiguous I felt to be hostile. I suppose that’s the safest option, and also the most likely response for someone with lifelong persistent fear response.
I was diagnosed late at age 23 after having a fight about it with doctors which included "you can't be autistic because you're female", "you haven't displayed any symptoms in autism in thr ten minutes I saw you in your appointment", "you can't be autistic because you are good at things & pick things up fast", "you can't be autistic because you are all there", that last one is particularly horrible because it implies autistic people are somehow less than others & it's so wrong. The specialists also knew I was autistic within 5 mins of meeting me & looking through my info I'd given them, they just had to go through all of the formalities to diagnose
Even from loved ones, acquaintances, co-workers, & friends, I’ve gotten, “We’re ALL a little bit autistic.” Umm, no, that’s not true. That just shoots down reality & prevents people from understanding what it really is. It makes me sad when they say that. It’s as if they’re implying I’m making a mountain out of a molehill.
Yeah, that really is a dumb statement - if we’re all autistic to a degree then there wouldn’t actually be a diagnosis, because that would be the natural state of society. Who would go to the doctor if they weren’t struggling to fit in or function due to neurological differences with their peers? They might recognise they have some traits that line up with autism symptoms, but their experience of that trait/symptom could be miles apart from how any particular neurodivergent person might experience it. For example, there’s a big difference between being a bit irritated or annoyed by a label in your clothing, and having to cut every last piece of it out because you feel like it’s burning your skin.
I think these words really downplay how difficult something can be for an autistic person, compared to others who don’t REALLY struggle. And doesn’t it also imply that we have something morally wrong with us because “hey, everyone is a bit autistic, and if everyone else can manage life with that trait, you’re just lazy if you don’t”?
Yeah. I was recently denied by the intake lady because I obviously didn't have any trouble with eye contact. Which is a bit disingenuous, seeing as how we were on a video conference. One, it's not in person. Two, the webcam is usually offset from the screen, especially if you're on a desktop. Three, I actually do if I'm under stress, and even when I'm not, I occasionally flick my eyes to look at the other person and then look at other stuff. Four, she suggested I might be Aspergers, which is a DSM IV diagnosis fer cryin' out loud. Also I'm 66 yo. I don't know how that figures in but apparently it's relevant. She gave me a referral for depression and anxiety and I've ignored it. I'm tired of therapy that doesn't work and of the medical community gaslighting me.
My eyes literally tear up if I make actual eye contact. I appear to make really good eye contact but I've developed a shutter like mechanism in my brain. It's like a protective glass panel sits between us when I look at someone's eyes while we are talking. It's masking somehow. I can look at someone's eyes but I can't actually make eye contact without it being physically painful.
@@flyleafrpgwo4008 My mother, without being aware of my autism, basically trained me to look in the general direction of peoples' faces, even though I don't actually register what I'm looking at when I do it. Thus, one more masking behavior, one I have mixed feelings about.
I "can't be" autistic ... because I can maintain eye contact during a conversation, ... because I'm too articulate, ... because I'm an adult female, ... because I "only have PTSD," ... because I can recognize other people's emotions ... and the list just keeps growing. It wasn't until nearly 50 years of age that I discovered the primary reason why my entire life in general was ... "weird," ... why I can feel sound, sometimes painfully, ... why I can either turn off all auditory receptivity, or be entirely unable to tune out any background noises, or hear all the extra noises at the same intensity and therefore be unable to focus in and hear what someone is saying. ... why I feel like the only person who didn't get a copy of the script or Handbook of Things to Talk About. ... why I prefer discussions and storytelling over small talk. ... why words get stuck before they can get through my mouth (really: I hate it when my mouth appears pucker-stuck in mid-syllable when I lose the word I thought I wanted to say and I have to pause and find it again!), or when I ^know^ what something is but my brain sends the wrong word to my mouth. (I know what image matches the word ladybug, but sometimes my brain sends out the word "butterfly" when I know I am clearly looking at a ladybug. And what's up with swapping the words Purple and Orange?! It's always that pair of color words.) ... why it's hard to tell the difference between someone stating something true or using dry sarcasm, yet I can speak with dry sarcasm only briefly until I can no longer hold back a chuckle and reveal the humorous intent. ... why forced air feels abrasive -- motorized fan, air conditioner, hand-surfing out the car window (that's the worst yet!) ... why I feel terribly uncomfortable with sitting very close to the screen at the movie theater. I am compelled to back away about ten rows so I can process all that enormous visual stimulus and be able to notice all the things that everyone else will miss. ... why I notice all the (obvious) things that no one else notices... or are they just oblivious? ... why I always have to H-I-J-K to remember if K is before or after L in the alphabet... yes, Always those two letters! ... why I still sometimes forget the result of multiplying 6×8. Yes, specifically that set of numbers. .... why I can feel everyone's emotions and be unable to contain mine comfortably -- they all get so full and intense that they leak out of my eyes and choke my voice, regardless of happy, sad, ecstatic, furious, relieved... and it confuses onlookers. Also why I get so hyperfocused that I forget to eat, or drink water, or notice that my brain and body need sleep.... like right now, when it's past my bedtime and I'm thirsty and still very much awake and oversharing in a very long comment on a TH-cam video about my most recent Special Interest. So, that said... I'll step away and drink some water and put myself to bed now. ❤🧠
@@AnnabethOwl I don't mind it so much on my hands, the noise is worse for me. I don't like forced air on my face the most. But I can see it would be a pain. Sometimes I dry my hands on my pants
I must admit that "You're not autistic, you're just a scorpio" is one of the worst things that have ever been said to me, and I've been called slurs more tjan once.
everyone knows that if the child realizes that they are about to be born in november and they have autism they just decide to sit in the womb till december
Wow, an autistic Scorpio. The struggle is real. I'm an autistic Leo so I never know whether I'm being very self conscious and socially awkward or just making it all about me again. 😅
I have no firsthand experience with this, obviously - but I’ll note that I’ve started following a young autistic woman on TH-cam lately, and she did a video on her childhood autistic traits a short while ago. She commented that it was just crazy that no one picked up on her autism as a child, and the examples she gave, while not that problematic to, say, teachers, I would nonetheless agree should have been obvious...but: she posted a picture of herself at maybe age 6 (? I’m no good at judging kids’ ages), and on reflection I realized she was a classically cute, pretty little girl with a very nice smile. I have a feeling that’s the single biggest involuntary mask for some young girls: pretty is considered synonymous with perfect, and of course, if someone is “perfect,” they couldn’t possibly be (gasp) autistic...right? So any evidence of unusual behavior probably gets ascribed to being quirky and cute, unless it’s considered antisocial by adults. There are upsides to being attractive, but there are certainly downsides too, at least for women.
@@jimwilliams3816so does the same thing happen with autistic kids who are good students/overacheivers? like people not thinking they could be autistic because they aren't misbehaving or bad at school
The childhood trauma one is wild because it's really hard to grow up autistic in our society and *not* get some childhood trauma. I don't think I know a single autistic person who doesn't have at least a bit.
The hard part is trying to recognize what is “real” trauma and what is just events I’ve been “overdramatic” about. (Yes I have been called overdramatic most of my life, so I dont know what counts as real trauma). I grew up in a good home, food on the table, comfortable place to sleep. I was neglected in all of my emotional development though. Never taught how to calm down from big emotions, anytime I got too emotional I was yelled at and sent to my room to deal with it on my own. But I dont know if I can call that trauma, since others don’t believe it is.
@@doid4354 Trauma does not need to impress other people to be trauma. Anything that was particularly difficult for you and that has lasting ramifications on the way that you view yourself and/or the world counts as trauma. It's really a matter of your response to it more than it is the events themselves. And the sorts of things that will cause autistic people trauma are sometimes different from the sorts of things that will cause allistic people trauma. Childhood emotional neglect and the repeated belittling of your emotions can definitely count. And other people dismissing or mocking your trauma does not make it not trauma. It just makes them shitty.
exactly, being autistic lends itself to traumatic experiences, especially with social circles as a kid and for me personally not understanding how to communicate properly. before i learned how to mask, this was even worse. i only learned because of that trauma
In my case, it's quite the opposite: It took 40 years to convince my parents that I'm not autistic, which in their mind would explain in acceptable terms why I am so weird, disappointing, lonely and poor.
Unfulfilled expectations, wasted potential, that resonates with many of us, and hurts so bad. Be a friend to yourself and treat yourself with kindness. Give yourself a break. It's OK. You've done great. We've had so much more to overcome than others, and it was internal, invisible and misunderstood. You matter, you are enough, you are there already. You can let go and set free 💚
“You can’t be autistic, you’re too functional” 🤣🤣 My therapist dropped that one on me after reading me the DSM and me saying “yeah that all hits close to home”
There's this mental hangup a lot of people have that anyone who is functional can't possibly have anything wrong with them. It's an epidemic of denial, and not just about autism.
Legit my therapist when I talked about wanting to get diagnosed with OCD. I have terrible intrusive thoughts and make correlations with things that I shouldn't. I get terrible anxiety when I buy something, then learn that it's part of a set and I don't have the whole set. All of my books need to be in paperback, because having just one or two hardback books makes me feel physically ill when I see them and how they don't coordinate with the others. But because I don't compulsively clean or have daily rituals, I don't have OCD. It's impossible 🙄
@@aynDRAWS Without regular rituals/tics it's not really OCD. 1. Intrusive thoughts: can be caused by autism, ADHD, or anxiety as well as OCD. 2. Nonsensical correlations: seems like something that could happen with autism. (Consider the above average number of autistics who are conspiracy theorists.) 2. All books same format/size: this can just be autistic fixations on symmetry.
@@aynDRAWS I looked up the OCD types as you suggested. I still find it really find it difficult to separate some of these from other conditions. In the absence of ritual behaviors , the presence of ASD and/or ADHD seem sufficient explanations, even for pure obsessional / Big O. For example, I have serious problems with "doubt and double-checking" especially with regard to locking my car doors and rolling up my car windows. But I should. My ADHD means terrible short term memory, especially regarding routine task like locking a door that I lock multiple times every day which requires little to no conscious thought. Furthermore, over the course of two decades, there have been a few occasions when I absentmindedly left my window down in broad daylight at college or overnight outside my house. I lack confidence in my short term memory because it IS unreliable. That's not OCD; it's self-awareness. Another example: I'm often worried about my body odor, despite regular bathing (unlike some people with ASD or ADHD, I don't got days without showering). But I have good reason to be. I have always sweat very easily, even when I was a scrawny teenager. I can't wear antiperspirant due getting allergic skin reactions to it. So I should be more worried about how I smell than the average person. Now if you don't have other ASD or ADHD symptoms, especially if the obsessions don't have a rational basis, THEN I would say OCD makes sense despite an absence of ritual behaviors. But that's just my opinion; I'm not a psychologist.
"You can't be autistic because you can make eye contact" is the first thing I heard from every single therapist Ive been to as soon as I brought up autism.. Boy were they wrong.
"I may be making eye contact but it's like 50% of what I'm thinking about right now and the other 50% is what I'm supposed to be doing with my hands..."
This is a surprisingly important video for people like me who are for now only self diagnosed, but is struggling to trust ourself bc of people close to us denying it with stuff like this. I’m already super critical towards what I think and over-analyse so it was pretty hard to say I thought I was autistic, so when my mom denied it, it made me too unsure to even engage with the community. But seeing videos like this where you dont have to show every extreme sign there is to be valid, and all the others in the comments who also had parent(s) who didnt believe it rlly helps. I think this might even be the first time I’m able to say that I’m autistic like this. It also helped me realise I don’t need a diagnosis. I keep wanting getting one, expecting all validation to come with it, but no one should rlly need that to be able to feel valid. This has become a bit of a rant, but thx
Usually, when you heavily suspect you are autistic it is because you are! It took me until I was 19 to get an official diagnosis, but I had heavy suspicions since, like, late elementary school~early middle school. So just know that you're valid despite what anyone might say :3
I'm too old to give a sh... what other people think. I tried telling some friends I was autistic, and it went over like a lead balloon. It's not that they don't see that I have problems, but they accommodate these in their own ways. I don't ever bring it up any more. I'm self-diagnosed, have taken a few tests, and am usually about 2 points into the normal spectrum. However, the autistic traits that I do have have been life-defining, and I don't feel like I need to explain these things to other people. I have gotten a lot out of the TH-cam sites on autism, and some of this I have been able to apply in a really helpful way, so that's enough for me.
I’m too old to bother fighting to find someone to diagnose me. My area is small and even the next bigger city doesn’t have much in the way of help etc… I have self diagnosed using online tests, reading and of course watching youtube videos. Wish this info had been available 30 years ago. It would have made a difference to me at that time in my life. At least now I know what is what!
Had a psychiatrist tell me I wasn't autistic: I just had social anxiety and a mood disorder, both of which I told her at the beginning of the call. The next psychiatrist gave me a diagnosis of autism. 🤷🏻♀️
my (ex-)therapist gives me an autism test, i get a high result, in the next 10 minutes she says i'm not autistic then we go to my mom and the therapist tells her i might be autistic and then she proceeds to go back and forth between "you're autistic" and "you're not autistic"
Had a similar experience. Disclosed my ADHD beforehand and instead of looking further into my autistic sides she said „it‘s all just your ADHD“. A waste of time but more so a hurtful experience that I really didn‘t need to have.
I had this struggle as ive gotten older. I get better and better at both masking, and just plain being more mature and better able to restrain myself. So when someone asks what some weird behaviors I might have that point towards autism, now I have to act it out to show what I would do if I wasn't trying to always hold stuff back Its a weird spot to be in. Knowing what I have the instinct to do and choosing not to do it then that being a basis for dismissing the autism (understandably so)
And the few autism based behaviors that we do choose to let show are confusing enough to nurotypical people that they draw much more bizarre conclusions about us than autism. As an example: Executive function is something that I struggle with. Choosing what to wear can sometimes seem almost impossible to me. Having sensory issues makes that even more difficult for me. So I have found clothes suitable for different weather types that are mostly comfortable to me. I bought multiples of each. And all of what I wear is black. That way all I have to decide is what temperature to dress for and grab the appropriate set of clothes. I try not to fuss over my hair too much either or it can overwhelm me. I choose to go natural, which is now about half white. And I keep it long so I can put it up when it's hot outside. My neighbors do notice that I always wear black and have long graying hair. But rather than assume that there is a reasonable explanation or ask why I look the way I do they draw their own conclusions. One of my neighbors was trying to find out what religion I am. Come to find out, what he really wanted to know was whether he was right about my being a witch. 😂😂😂 Sorry dude. I'm just autistic.
I've told two people about me being autistic, and got hit with the 'oh but you're so smart' response both times. There's a reason I've only told two people.
A friend of mine (who has a psych degree) told me I wasn't autistic. My guess is he thought I was too smart, funny, or seemingly capable. Now I don't want to bring it up to anyone. Even my therapist isn't specifically educated in autism, so I just have trauma and a high ACE score.
I'm my first autism assessment I got a wonderful assortment: - You didn't go to a "special school" - You have a romantic partner - you're nice - you're smart All this from a psychologist who I emailed to vet beforehand. Wasted my time, insulted me, used words we don't use anymore (e.g. functioning labels), and charged me a huge amount out of pocket. When I later got diagnosed I found our he could have used my health insurance but couldn't be bothered with the paperwork.
I went to a so called “autism expert” for an assessment a couple years ago, and was told that I couldn’t be autistic because I had childhood trauma! I argued that they hadn’t been thorough enough in their assessement, and then they asked, “why do you want to be autistic?” 🤦♀️
Yep, had similar experiences with ADHD "specialists" for ADHD. Some were pretty disgusting about it, even being outwardly condescending and mocking. At this point i'm convinced 90% of psychiatrists, psychologists and specialists, aren't worth jack shit.
I am autistic and have adhd. I was also s*xuall6 abused as a child and my mum left me with my abuser when I was 13 years old as a 'consolations prize' when she left him for another man and disappeared from her children's lives for 2 years. So at 53 yo I get diagnosed but only after arguing with MH professionals that it was t just childhood trauma. It's a common known fact that ND children are more likely to suffer from childhood trauma and also that the being ND is genetic so it's likely that your parents weren't exactly coping well with the world and didn't know how to deal with their own trauma so it ended up being passed to you. We seriously need to start identifying individuals who are ND and traumatised so that we can make life better for our children. I was a bad parent, even though I loved my kids, because I couldn't understand myself and didn't know how traumatised I was so all of my weaknesses and triggers were passed on to my ND children as trauma. I feel like crap about it but when you know no better than you will do no better. Though I have some pride that my kids are 'better' and had less obvious trauma than I did growing up...but that doesn't mean that I didn't traumatise them too
no one who goes for assessment should tell about trauma.. the problem is most people who are ND have had been victims of abuse. it a correlation, not causation. woops, big vocabulary: not autistic.
you cant be autistic because you have good eyecontact.. yes after over 50 years of working on that! when I was a child - in my 20s I did not have eyecontact. I talked to the wall and my friends told me I was weird. but I was told I now have too good eyecontact to be autistic...
normal people use it to read and underlying meaning and intention, as a lot can be expressed through body language not just words. People use their hands, eyes, face, posture etc to convey meaning, some more explicit than others, some is conscious some is unconscious. The former would be glaring at you to say "I'm angry with you and I want you to see that". The latter could be someone looking down as they feel insecure. @@willowtree9291
@marocar4749 maybe...on the one hand, if I were a cat, I’d be a far superior life form to that which I am now. On the other hand, if I were a domestic cat, I’d be dependent on...yikes!...human beings. :)
@@girlsaurusrex7257 lol same. I‘m like mildly picky but my brain will randomly decide it does not want a certain food rn and if I try to make myself eat it, I just can‘t. Broccoli is delicious tho 🥦
Related topic, my last psychiatrist told me that i couldn't have ADHD (he accepted the autism diagnosis readily enough, ironically) because, by the time a person with adhd became an adult, they'll have developed enough coping mechanisms that they no longer need treatment, so he was going to stop my meds. Suffice to say, that was my first and last appointment with him, and several months later, i found out he had been booted from the program. He wasn't a newbie, either. Edit: spelling.
it can be such an annoying stereotype as well, because it's like, no.. for some reason in many NT people's minds, the only kinds of autism that exist are very high support needs paired with an intellectual disability, or absolute savant.
The rejection letter when I applied for disability benefits said “you say you’re autistic but you’ve worked in busy offices” as if the repeated stress of work over time wasn’t the main reason I ended up so stressed, I’ve had fatigue for five years 😒
Thank you for doing this. I have a boyfriend who I recognized many traits that my sister had. As I listen to you, I realize, that my granddaughter, my daughter, her husband, and of course, myself all have a variety of these characteristics. I've sent this to all of them for us to help with communication, understanding, and support of each other. You are a blessing to our family and this world!!!
I think saying I am a Disabled Veteran gets a worse response (contempt) than what I get when I say I am Autistic (eye rolls). I haven't told many people that I'm both.
what kind of actual asshole do you have to be to look down on disabled veterans?? I'm sorry you feel contempt for that when you should be shown care and respect
Lord, I had hoped we were past that. I'm sorry. When I was a kid during the Viet Nam war, it was too common to express displeasure with the war by scorning service people. I thought most everyone had learned better, and knew to show respect and thank vets for their service. I thank you. And for what it's worth, the one place I have always felt my government should never cut corners in any way is veteran's benefits, especially for anyone who is disabled. Nothing makes me crazier than having asked somebody to put their mind and body on the line for their country, and then try to stiff them in any way. Whatever you need, you should be getting. (I realize you may not be in the US, but all of the above sentiment applies wherever you are.)
You should tell people you are both then say something amusingly outrageous (and probably made up) about being given access to munitions and fire arms just to mess with their contempt and preconceived ideals.
Yeah, I got the "you can't be autistic because you can express your emotions". The doctor asked my how I'm doing at the beginning of the appointment, and obviously I answered that too well.
Or: You’re not autistic, because you’re normal. I was very confused by that one, especially considering that they have told me that I’m weird on numerous occasions…
When we're acting OK they call us normal, as soon as we step out of line we're weird and need to change our behavior. They either dismiss our difference or condemn it, but they seem to oscillate between the two and never quite getting that we're acting weird because we are different, not because we are normal people who just happen to act weird or improper.
These were said to me by an "expert" I was referred to by the Jobcentre, when it became apparent that possible autistic traits were holding me back from getting a job: You're not autistic because you're too well dressed. ...you don't have a problem with personal hygiene. ...you show some awareness of other people's personal space. I said I'm very much aware of personal space because it makes me uncomfortable when other people encroach on mine. "Ah," he said, "but you could be protective of your own personal space, while still invading other people's." I'm not quite sure I follow the logic of that. If you don't like other people being too close to you, you don't put yourself close to other people.
I told my psychiatrist about my new autism diagnosis, assesed by an experienced psychologist who specializes in diagnosing high masking women. It was a very long, detailed process. Psychiatrist then told me that because I draw portraits I can't be autistic because looking at the human face involves interpersonal intimacy. He didn't ask, but I assume he thought I draw a person standing in front of me. I use reference photos...sorry, still autistic:)
you should check your psychiatrist methodology, because (I also found out kinda late) majority is doing CBT which is very much not recommended for autistic people in the first place. (if the claim wasn't red flag enough to try finding someone better)
That's bollocks in any case. I used to do caricatures on occasion (granted, I found it nerve wracking). Like any other type of drawing, I tended to treat it as an exercise in observation and analysis. I never found it the least bit intimate, it was a lot like doing a still life. And most of the time I would be looking at the paper anyway, one reason I always drew so much.
"looking at the human face involves interpersonal intimacy" I mean... that's kind of a very neurotypical point of view, if you think about it. Certainly not how it is for me. I've always liked drawing and while as a child I drew a lot of animals, now I often focus on people and especially faces and their expressions. I just find that really fascinating and I think that actually has a lot to do with my difficulties understanding people and their interactions because that is exactly what I ended up paying most attention to as to try to learn how to read people better. Because for some reason they just can't say what they exactly mean outright but you also can't just ask them directly because that's considered rude or makes them uncomfortable. So as a teenager I read all these books to try to understand body language and facial expressions so I could better understand people. It became quite a fascination for me and now I find it just very interesting what can be said with just changing a few tiny pencil strokes in specific areas of the face, how it can change the whole meaning and interpretation of the person or the situation they are portrait in. But much of this process is rather quite analytical and structured, so it doesn't really feel intimate for me or anything (and also I draw mostly from my imagination and don't have real people in front of me).
My daughter didn’t get a diagnosis because she was too articulate and was able to explain her problems “almos like an adult”!!!! I tried to tell her that that is one of the defining traits of “high functioning autism” and then she laughed in my face.
Legitimate. I was an early speaker. Around 18 months I'd form full, articulate sentences, just rarely and quietly cause I was very shy. Early than typical milestones is a lesser known hallmark of autism
@@audreydoyle5268 I gather I started reading early -- I wish I knew when I started speaking. I have this vivid visual/word memory of having my diapers changed. I can see the light overhead and the red table, and I recall thinking these words: "why don't I know where I am, or who these people are?" I'm not sure exactly how old I was, but it feels like I was rather young to have formed that sentence in my mind. I wonder if I wrote the text in my head later, on recollection, but it doesn't feel that way.
@@jimwilliams3816 I remember being a diaper-age infant, hearing snippets of conversation about my childhood friend getting his diaper changer. Apparently it was "sandy", whatever *that* means. Edit: also remember my first birthday party, which is impressive considering how sleepy I was.
Great list! When we adopted our son, I knew he was quirky. He has a big personality and great sense of adventure and loved to laugh. Of course, he did like dinosaurs. But I thought, he couldn't have autism because he made great eye contact. His eye contact is better than, ok, mine. But over time, his autism completely revealed itself. And he's wonderful. Still full of adventurous spirit and a good heart and a happy nature.
I got told by a dr that he thinks that I'm "an anxious young lady" that "talked myself into having autism". Basically saying that I was too anxious and convinced myself that the answer to my problems is being autistic 🙄
These are insane! Some of these thoughts could just be solved with basic research on ASD. Love the videos. I love learning what I can to help my daughter.
did they mean emotionally for physically? I could see people believing that in the emotional sense because a lot of people think people with autism can't feel sympathy, but physically makes absolutely no sense
@@python4233 yeah, it's like the negative completely cancelled out the positive. People assume ALL aspies are incapable of empathy, when it's only a portion of those with Alexithymia. Even some autistic people with Alexithymia can have empathy for others, but not themselves.
The wildest dialectic experience is being told you are a warm and empathetic person but inside you are cold and clinical and capable if imagining pretty grotesque shit. But there's no way I'm autistic I'm queer.
I thought the number in the title was a bit inflated for click bait. But now that I’ve watched the video, I realize that I have actually heard most of these. So heartbreaking how invalidating these statements are. Thank you for the “what is the message?” section of your videos. Saves us from having to assume that what we got from a video was the intended message.
Legitimately, one time a girl told me, “you don’t look autistic! You’re pretty!” And when I asked her what she thought autistic people looked like, she began describing the symptoms of Down’s syndrome 🤦
I had a counsellor from the dutch centre for autism say that if i saw a crying child, if i was autistic i would just walk by them because i wouldnt know what to do with the crying. Me when theres a crying child: Whats wrong? Can I help? Am I allowed to help? Should I step in? (If its bullying) 1000+ other questions regarding consequences and social appropriateness... Standing there watching like a total creep not knowing what's OK to do, but stuck in solver mode. If theres a problem I want to solve it. Not ignore it.
This video really helps with imposter syndrome! (Which you can get, even when you have a formal diagnosis.. We really need to appreciate how diverse the autistic community is!) 💛
it's weird we (both NTs and Autistics) feel like we need to identify Autism in a neat box, when you think about normal people they are all different yet share a common neurology, so why shouldn't Autistics be able to share neurology yet all be different. I guess there's a focus on understanding it as an diagnosis, and to recognize it in that vein, and so it's easy to think of it as a box that has to contain exact things, to a point it becomes too narrow for something as complex as a human being
You're very intelligent and very well behaved is what I was going to say before the video began! That's what teachers said about my child at school, and why they wouldn't help us refer them for a diagnosis. We're doing it now they're almost adult. We were made to feel silly for even suggesting a referral. Thank you for raising this awareness!
My mother's were 30 (you can't be autistic, you have empathy), "you can't be autistic, you're too much like me", and "you can't be autistic, you just have a hormonal imbalance." I don't.
63 🤣🤣🤣 I was told, by a mental health professional "You can't be autistic, you talk to people about things that interest you". Other real life comments from professionals I heard "...you have baths" and "...you can sit in a chair". Horrifying to think these people are certified and getting paid when they are so deeply ignorant.
LOVE your sense of humor, Paul! I knew you couldn't be autistic: you're too humorous! (Laughter and laughing together in shared pain really IS the best medicine, neurologically!) I've gotten: "don't be too attached to labels..." which I interpret as, "you can't be autistic because that would make me uncomfortable and have to reassess my ideas about what autism is and looks like" ( which really means: "keep masking please and do all the work to bridge the double empathy problem because I won't do any or try to understand you from you own perspective")
I had a similar experience when I mentioned to a customer at my old workplace that I had suffered from depression - he seemed to think that only people who had noticeably negative character traits, or were "bad" in some way could get depressed (although my "work-sona" was probably a lot more lighthearted and masked a lot of these feelings). People seem to be very dismissive of things they don't really understand.
Literally, words from my psychiatrist: "you can't be autistic you're making perfect eye contact with me". Actual words from my psychologist: "you can't be autistic. My son is autistic and he was always lining things up as a kid". Well, alrighty then. Both of these women are over 45. It makes me wonder how much continuing education is being offered by our Healthcare systems.
You can’t be autistic, you’re just not used to human contacts anymore cause of Covid isolation… Yeah, being isolated so long destroyed all my years of practicing fitting in…😢 Geneticist: you can’t be autistic, you look too comfortable with social interactions. Me: sweating profusely and shaking…
You are not autistic because you were able to make this appointment (psychiatrist), and you are not autistic because you could make eye contact (an autism center) I did finally get my diagnosis, but it has put my son off doing the same, so he is happy to be validated but not formally assessed. I was diagnosed at age 63 after 10 years of trying.
"You can't autistic, you don't struggle enough" is the one that resonates with me. My father told me that. We are both autistic (undiagnosed). My NT mom and sister are like: I read some about autism - this totally sounds like you.
Unfortunately, the only sources of validation and support have been online through channels such as yours. Resources in the real (physical) world are few and far between from what I can see. Clearly this is an evolving field / subject / diagnosis / reality for many of us, and there are myriad layers to sort through. Thank you for starting your channel, sharing your story, and putting a solid stepping stone in the support system wall for the rest of us.
Like you, what you describe has been my daughter’s experience, and our family’s journey, as well. Even professionals questioning our desire for an evaluation.
Evolution is not necessarily a positive process. The evolution is towards a slow awareness and more ridicule and stereotyping. It is an evolution from barely knowing it except from Temple Grandin and Rain Man.
Being autistic, I do not bother listening to arguments of why I, or anyone, isn’t autistic. … and hearing the first argument being, “because not understanding satire” … surely, like it isn’t what I just said!
the "you can't be autistic , you're so articulate" one was especially funny because I consider the massive vocab I had from a young age one of the earliest signs I was autistic.
The two I hear the most... "you can't be autistic you make eye contact." And "you can't be autistic, it's just social anxiety." The thing is I'm 33 and at first when I was younger I believed other people when they said it was social anxiety and I did everything to cure it. (Because social anxiety can be treated with repetition) well... no matter how many phone calls and people heavy jobs I shoved myself into it always ended the same. Meltdowns in the bathrooms and quitting. Oh yeah, let's not forget "you can't be autistic, you're too high functioning "... cause being 33 living off other people and bouncing around from home to home because I can't hold down relationships or jobs is functioning
“You’re just creative/special/unique/you!” I’m Autistic and ADHD. It took until last December of my 21 years of life to get her to realise I’m struggling and that neither me nor her are “normal” or ok
I've had 'Everyone is on the spectrum' from GPs when trying to get a referral. When I did make contact with the local Integrated Autism Service I told them this and I heard them mutter FFS before answering me properly, which was in it's self a validating response.
I once had a psychologist tell me i cant be autistic because i was a bartender ! Im diagnosed now, but it really deeply upset me because i had a lot of trouble bartending, which i did for 10 years. Great vid!
So, before I stopped trying to tell people at all I had No.65 everyone is on the spectrum No. 2 - you’re ok because you are intelligent (this means you have never struggled apparently) No. 9 -you don’t look autistic No. 16 - you need medication then it will be all better (this came from a family member, dear God it hurt) No. 30 - you’re social (I’m masking. Being social is hard.) No.31 - you have anxiety and depression (go get some medication and it will all be better) No. 63 - you’re just like me / if you are then I must be too. Seriously though this is hilarious. I chose to be a nurse because damnit, I love helping people, but I’m so terrible socially, the structure and safety of having a start time, a finish time and a professional face feels really good. I can make people feel better without being awkward, not knowing what to say or do, not knowing how/when it is appropriate to go leave etc etc… and then I can go home and recharge the batteries before I have to go do it again. Of course physiology is a special interest so I have a degree! I like making people smile, so my mask is everything I wish I could be naturally, without stressing about the details. And yes it’s the details where everything falls down & often at the end of the day I will replay every interaction in my mind, searching for faults. Was I a good enough person today? Did I do anything weird? Hold the meltdown until you get through the door and nobody can see you… but of course because nobody can see you it means you can’t be autistic because …? You don’t struggle! Oh so much fun. Autism in adults is this: years of learning that being yourself is not ok. Riddle me this… (TW I am sorry) The people who are most likely to succumb to depression completely are the ones that nobody suspected to be depressed. They say things like “oh no, i they had just told us! We had no idea!” Yet when you open your mouth to say something, especially if that something is “I’m neurodivergent” nobody believes you. *scratches head*
I’m in the process of getting an assessment I honestly don’t know if I will tell my family if I do get diagnosed because I just don’t think they will accept it. I’m the ‘clever’ one in the family but I’ve always struggled with social aspect of work environments. I was a trainee nurse once a upon a time because like you, I like helping people but the feedback I got was, ‘ your really good with the patients but staff find it hard to talk to you’ ‘ you’re too quiet’ ‘you need to talk more’. And no one ever said anything to me but I struggled to interact with patients relatives at all, and that was me really exerting myself and making an effort so to get that feedback was a little heartbreaking. I quit before I qualified and retrained as a dental technician, I still struggle with the social aspect of work but I work with a small team, and the job attracts introverts because for the most part we don’t deal directly with the public so it’s much better
*explaining to my mum what autism is because i suspect my 4 years old sister to possibly have ASD* "Oh, is it really autism or are you just talking about yourself?" -My mum I have never felt like that before
Ahh! Yeah, professionals saying those. My psychiatrist had decided that I was not autistic because I could look him in the eyes. He referred me to a psychologist. Said psychologist told me: you can't be autistic, because you like hugs. He then proceeded to diagnose me with avoidant/dependant personality disorder. And that was the end of it. I'd have to move to another town for a chance to get a proper diagnosis... Based on pre-conceived ideas of what an autistic person is like. 😖
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When I heard that one all I could think of was the video of the lawyer on a zoom court case that had a cat filter on and was assuring the Judge and other lawyer that he really wasn't a cat and was actually a real lawyer.
My mom says people thought my brother was autistic but hes apparently not, so that means im not autistic either??????
“You’re not autistic. Your mom and me are good parents” -my dad
Oh wow… 🤦🏻♀️
That one actually makes sense, given the history of autism and what it was initially explained as
😂
Oof.
@@JamesDavis-ps6yy it's plain ignorance for a parent to claim they did a good job when their child is struggling with neurodivergence in a neuro-functional world.
Studies are coming out that ADHD is linked to infantile emotional neglect, along with in utero diet and drug use, as well as ACEs in the first one thousand days.
"you're not autistic, you don't rock back and forth"
(=_=;) it's amazing how many things we learn NOT TO DO, to appear "normal" for the sake of others.
i dont know if i ever did, by now im so used to trying not to do what is natural to me...
That one is funny cause I do if I get impatient
And when I have no one plays attention so it's like "how would you know"
I used to but I stopped, its called masking
I agree. People would tell me to stop so much as a child, I thought I was doing something wrong. So, I made sure I didn't do it in front of people.
А я раскачиваюсь. И не могу долго общаться с людьми, делаю паузы в речи там, где я знаю, они не должны быть, потому что думаю что сказать. Ужасно боюсь смотреть людям в глаза, боюсь мужчин всех, но в разной степени. Женщин тоже, если они на меня смотрят.
Моя тётя вечно удивляется тому, что я обращаю внимание на странные и, в её понимании, неважные вещи, а на важные нет.
Но у меня нет диагноза, так что пока всё это - просто моя "изюминка", хаха
There is a book that claims "all cats are on the autism spectrum" written by Kathy Hoopmann. I didn't read it but the "you can't be autistic because you are a cat" one made me laugh so much, knowing that book exists 😂
I skimmed it in a bookstore once. I liked it, but of course I am a total cat person.
It's a great book! It's probably a children's book, but well worth it regardless of the reader's age. My own cat is all the cats in that book, and I'm my cat.
Man, if cats are all on the autism spectrum, then all dogs have ADHD.
Funnily enough, one of my aunt's cats is suspected of autism. She doesn't behave like a normal cat around strangers, is non-verbal, and rather derpy.
My dog is definitely on the spectrum.
"You're not autistic, you have feelings. Your second cousin has Asperger's and he doesn't have feelings" It was the first and last time I opened up abt that to my grandma. Worst part is when I finally met my cousin and he was just the sweetest kid, smh
Oh no :( Why:(
honestly, one of the first things i thought when i got my diagnosis was "is anything i feel real?", because to me, autistic people were basically just people without emotions getting in the way of their rational thought, "rational thought machines". imagine what an edgy teen i became after. Also, i was a complete idiot for not asking these questions to my psychiatrist, who might have actually been able to help me with this if i had just said it out loud to him.
it was difficult because i thought a lot about "this feeling i have, do i actually have it or did i learn to have it?"... the weirdest answer i got when i said that out loud was "yeah, but that's normal, everyone learns their emotions". and back then i didn't realise this person might need a diagnosis as well, but probably not the same as mine.
it was really getting in the way when i had my first real girlfriend ("real" = longer than 4 months) and i was really afraid to tell her i don't know if what i felt was real. having grown up i learned that on one hand, what i felt for her wasn't love, but on the other hand it was real anyway.
My family are the absolute last people I'd feel comfortable opening up to. I'm not likely to ever tell them, and it's because they'd come back with something stupid like that.
You don't know, what you don't know.
That‘s so sad. I hope your cousin finds people who appreciate his rich inner world at some point in his life.
"You can't be autistic, you're too sexy."
"Hey! I mean thanks. I mean Hey!"
😂 Excellent response. Caught me off guard.
I had to pause the video there because I was laughing too much
That was excellent. My reaction would be much less funny: in the unlikely event that I realize that someone is flirting with me, I usually go into panic/freeze mode. Thankfully it only happened to me 2 or 3 times, and I’m old for it now. 👍
I've litereally repeated that part many times without stop lauging, my favorite part of the video XD
I can relate because I myself am sexy and unusual
Summarised how I would feel about that comment too. Going back and forth between hating the gaslighting and loving being called sexy 😅
You’re not autistic. You were just a stubborn child and liked to perform. - sincerely my mom.
Mine too!
@minkberrystudio , are we siblings by any chance? 😮
You’re not Autistic because “nobody” else in the family is Autistic
Ooh, stubborn. Is it quite a common thing for the obstinacy of autistic children to be regularly remarked upon (rather than mischief etc.).
There was a little rhyme that I heard, a lot, growing up: "There was a little girl, who had a little curl, right in the middle of her forehead. When she was good she was very, very good. When she was bad she was horrid."
I think it's about an autistic child!
@@batintheattic7293 That poem was about me too
The very first time I ever suspected I might be Autistic. I was asked "can you read a room?" I said yes, and literally over a decade later finally realized I had no idea what that question meant.
I still get confused by that, I thought they literally meant a book.
@@pain.497 not sure if you still need the explanation for this one, but I think what people mean by this question is if you can feel and understand the vibe, emotions, people's face expressions/body language, and the overall atmosphere of the room
@@DeadVoxel I have problems reading people's faces and emotions in general but try to understand
Interviewer: “can you read a room?”
You: “what? Why wouldn’t I be able to read the word room?”
If a Room is a book - yes. If Room is a room, no.
Two things I hate to people finding out that I’m autistic:
1. “You can’t be autistic because…”
2. “Ahh….yeah that makes sense. I always thought you were a little off.”
I’ve just stopped telling people at this point. None of their business.
it's always one or the other isn't it..
I'm not sure what the problem is with #2?
they are saying the person is weird or not right @@jliller
@@Dezzyyx Dunno about you, but the fact that I'm "a little off" for reasons I couldn't explain is exactly the thing that drove me to a diagnosis.
If you're autistic you shouldn't seem completely normal to everyone around you, because you're not normal.
I agree. Personally I don't mind being "a little off", I think in this context it's more about the perspective, like the other person is doing the judging. They only stated they always felt you were a little off, not how they feel about you being a little off, so it's hard to know the implicit meaning in that statement. When you first get a diagnosis you might be vulnerable like that, to know is it OK to be "a little off" to people around me. Now that you finally got the answer and want to accept that, in turn want acceptance for it. @@jliller
"You're actually autistic. I just didn't want you to be treated differently."
-my mother
I'm 28 and I just learned last year. "You didn't know?" Was the most common response. Everyone apparently knew, except me. Thanks, lifelong friends... that stung... it definitely fed into my lifelong fear that I might be cognitively disabled and everyone was hiding it from me. Thanks, assholes... 😂😂😂
if they were surprised that you didn't know, they weren't "hiding" it from you...
@@vibaj16 I just assumed that I was neurotypical with childhood ptsd (I grew up rough). I'd known for years that I'd masked hard.
As a kid my brothers used to call me the R word on a daily basis, I felt so different and alien compared to other people I genuinely believed that must be the truth and everyone was lying to me to make me feel better. Just thought I would say you weren't the only one.
I remember as a kid being studied by psychologists. There was one part of the study where they showed me a room full of a bunch of kids playing through a window (maybe a two sided mirror?) and the psychologist said “look at all those kids having fun. Do you want to go play with them?” and I said no. I knew that was the wrong answer and I had failed the test 😩 that memory makes me think that I was probably diagnosed as a young child and my parents failed to tell me, hoping I’d outgrow it. That was in the early 80s when autism wasn’t as well known.
My mother too!!! I'm sure she didn't want the negative attention back in the 80s either.....
all I heard was people's egos saying, "you can't be autistic, because if you are, then I don't understand autism. and if I don't understand autism, I have to worry about if I am autistic."
Oh, I'm guilty of 63. "You're just like me". When my best/only childhood friend got diagnosed as autistic + ADHD as an adult, I was like "Why are you getting this diagnosis if between the both of us you are the "normal/social/extroverted" one?" Some years later I got my diagnosis.
My girlfriend was the one that did this for me. She had just figured out that she is autistic, and as she started listing all her reasons and childhood experiences I was pretty much shellshocked lmao. Suddenly so much stuff made sense - or rather, I understood why there was so much I felt like I didn’t understand or others didn’t about me.
Something similar happened to me with my boyfriend. I've been telling him I think he has ADHD for a while. But since I'm checking more about autism in women and feeling so identified with it, I've been commenting it with my boyfriend. He first said, no, it's impossible, then as I showed him more characteristics he was like oh well, maybe a bit. Then after a few more he was like: but that's normal no? Everyone does that. And I was like: mmm sure, I never saw my mother or anyone else in my environment do it though, except you and me.
Now we can talk about double empathy.
I always had it easy with the weirdos.
Late diagnosed last june, at 46.
Where do I apply to swap autism for being a cat?
I learned cat body language before human body language. Does that count? 😅
cats make better friends anyway :P
why not Autistic cat!
I'd rather be autistic. Or a bird
Comes with your "being a trans woman"
66. You can't be autistic. You have a good vocabulary. You aren't non verbal.
67. You can't be autistic. You don't have tantrums in public.
68. You can't be autistic. You're just like many of our relatives.
69. You can't be autistic. You don't flap your arms.
I could go on and on.
OMG, yes to those! 😥
Hahahaha. The family one is so true. ‘[Person] is not autistic. [Family name] men are just b@stards’ said matter of factly by family members.
@@Jeanelle_Art oh my stars! Same here! I thought my arm flapping was a tic that I could hold in until I was in the privacy of my room... Then a traumatic conversation with my step father led to uncontrollable flapping, to which he told me to stop... 😐
@@audreydoyle5268 It's only been in the last year that I realized that I do in fact hand flap when I get really frustrated. I manage to avoid it in public, though I have done it in front of other individuals. I know what you mean about tics...one of the things that fuels bouts of imposter's syndrome is that most of my stims come out in a Tourette's-like quality (I never doubt my GAD dx, I notice). But I am SO self conscious about stimming if anyone could possibly see me.
"hey normie, i flap my hands in secrecy when im alone!"
i talked with my mom about autism and how be both could be autistic and we both found so many things about autism in ourselves so that we just ended the conversation with pointing at each other and shouting "AUSTISM!"
That's adorable x3
spiderman meme
"You're not autistic, you can make eye contact" -My second ever guidance councillor, _while I was looking at her eyebrows to avoid eye contact_
I get this. They didn’t see me practicing this for years at my various retail jobs to refine my performance.
I focus on peoples noses. Anybody that I know I know him by their nose , and I tell people do not ask me what I think of your nose , you may not want the honest answer.😂😂😂😂😂
After I was diagnosed, my mom asked me. Is that the reason you notice everybody's noses to avoid eye contact? I Exclaimed happily that's exactly why!
I've got that one before. But in my case, it was like "Bro, we usually talk when we are walking together. I don't even look at you 😅"
I focus on the mouth
If you look just between the eyes it looks like eye contact 😋
#66 You can’t be autistic because your older sibling really is. You just learned the behaviors from them. 🤦♀️
Lmao. Sorry that you had to experience that
Similar, but with my younger brother…
I definitely heard that in relation to a child in my class.
I just get that my sibling has it worse than me, or basically anyone the person can think of in that moment, just to make a point that someone, somewhere, has it worse than me. Very important to make that clear.
im sorry but i cant not laugh at you saying "floor soup", several times @@Jeanelle_Art
When my mom says 'I don't think you have autism', I explain it to her this way.
Autism has different levels of severity like vision impairment.
Some people can get by with blurry vision while squinting whereas others are so severe that they need strong myodisc lenses.
Ooh, in the sensory way, it's like being a burn victim. Some people touch a candle flame and get a first degree burn on their finger. But autism feels like living in Dante's inferno.
I really like the way the Neuroclastic article lays it out.
Can't post the link (thanks TH-cam) but if you search for "neuroclastic it's a spectrum doesn't mean what you think" it should pop up.
I've found it really helpful when explaining different levels of functioning and assistance needs.
Some people are long-sighted, some are short-sighted, some are blind in one eye, some just have reading glasses, some wear sunglasses, some are cross-eyed, some have a lazy eye...
@joe1205 Yes, exactly, and I'm nearsighted with astigmatism and myopic degeneration as well as Autistic lol. Whats sad is the people who aren't actually dealing with ASD dont put actual thought into what it is or how we actually struggle and they just say any ignorant insensitive thing they can pull out their butta to people like us to discredit and dismiss our daily struggles. It's so beyond fruatrating and disappointing 😞
What you say is true of so many conditions (eg MS) and it would be nice if the 'professionals could learn this truth.
I got told to my face, at an autism discovery center, within mere minutes of meeting the person for my diagnosis, that I was too social to be autistic. They essentially ended up saying “yes all of her symptoms end up mimicking the criteria for autism, but she’s friendly and creative, so no”
I’ve also been told by a teacher (who I otherwise loved) with an autistic son that since I don’t flail and have tantrums and am not nonverbal that I couldn’t have autism (I was talking with friends about the fact that I have a lot of symptoms that line up), because apparently autism can only present as someone is used to. Let alone the fact that when my sensory issues get to their max I DO in fact flail and get communication impairments, I just go somewhere private or wait until I’m home because I was bullied for having “anger issues” because of this response to overstimulation.
THIS!! As a child I was stubborn and my mother helped fit my environments to my needs. Inconveniently I managed really well to self-regulate and got by masking 24/7 until I got to the “real world” and suddenly “re-developed” every symptom I’d forgotten as a kid.
People don’t understand when I say I literally lose the ability to see, then speak, then move when I’m overwhelmed. There’s a big stigmatism against recurring illnesses especially when they’re mostly invisible to outsiders, even more so when “high-functioning” just means “passably masking”.
Sometimes I almost feel NT, most times recently I’ve felt highly disabled.
For many years, I thought of family as people you are around so much that you won’t be able to hide what a disaster you are, and once they realize it, you’ll lose your incentive to try and hide it, and get even worse. I wasn’t diagnosed until after my parents died, and in retrospect I can see that this is basically a bleak description of masking by someone who doesn’t know that they are autistic. (Both my parents were some kind of neurodivergent.)
The other things that I think factor in to the reactions you got are a tendency to equate autism with kids, and whether NT or ND, there are obviously differences. And then, rather crudely, the differences between “types” and/or maybe comorbities, depending on how things are viewed. I’ve suspected that I was an Aspie since that criteria was added to the DSM, and when, in my job, I used to sometimes meet autistic kids that were in special needs classrooms, I sensed a kinship, while also knowing that, even as a child, I had much lower support needs.
I prefer feeling part of the broader autism community, but these differences make me feel much more prone to imposter’s syndrome than thinking in terms of Asperger’s did. And that’s a view from my part of the inside. Spectrum is still a fairly new idea in a field that is heavily oriented toward a binary yes or no.
Actually it’s common for autistic people to be more creative and my sister who I suspect is autistic is hyper social instead of hypo social. It only matters about the way they socialize/their approach and the intensity of her need for socialization is almost crippling
I usually get really snappy and cold when I'm at my wits end. I used to yell at my mom whenever I was too tired and refusing to do my bedtime routine as a teenager. She'd have to drag me out of my bed for me to brush my teeth and I'd yell at her to leave me alone. I also did this on our trip to Naples last year for Christmas. It got so bad I began loudly crying in our hotel room. I had enough of her crap. I don't usually get overstimulated. I don't have sensory issues apart from getting too cold and always wanting blankets around me. Or being scared of ambulance syrens at night since I was a kid. But whenever people push my buttons or things change too suddently I either get snappy and cold or I cry uncontrollably. And I overall look normal. But you wouldn't say that to someone who cried two years ago because I was told we might get my favourite pizza for me and my mom to split for dinner in Siena and she ended up getting something different for herself. And I was so upset I didn't want anything other than that pizza. Luckily I found a place that sold pizza by the slice and got a big one of the one I wanted so badly. I cried on the phone to my brother who thought I was going crazy disturbing him and his ex while they're there in their hotel room because of pizza. It could've been the most disgusting slice of pizza out there and I still would've eaten it happily. Even if it was dripping with oil everywhere. I got what I wanted and shut up.
I had a friend of my mom say I don't look autistic. We met for the first time ever last year. She's Ukrainian just like my mom but still lives there hence why I've never met her. Or maybe I did when I went to Ukraine a few times as a baby. My mom told her she hasn't lived with me enough to truly know and I can't agree more. Also the way I was diagnosed is really interesting. Because nobody in my family had any suspicion. I went in for dyslexia after a teacher suggested me to get tested when I listed my struggles to her. She is also dyslexic. Then once I tested negative I was admitted into therapy for being really skinny and having a suspicion I had an eating disorder. Basically the people that tested me thought something was wrong with me based on my very skinny build. I was never diagnosed with any eating disorder but was instead told about this Aspergers diagnosis by my therapist. She told me what it was. It was sold to me as "a difficulty in socializing" not autism. And I tested somenthing like 100 out of 60 to 120. I wasn't given any help in school as both me and my mom refused as I was doing fine. Because you will end up doing fine if you haven't been diagnosed in your first 16 years. That's all you know. I struggled accepting I was autistic as I didn't see it. And always blamed my behaviours in socializing with past terrible experiences. Like bad friends, toxic friend groups and getting bullied for being the weird kid who picks her nose. And it took a really long time to realize I was part of the extremes club. I was either super friendly. Too friendly and too open and honest. And when that didn't work out in my favour I shut down all communication. But then I was told by outside sources I was never friendly to anyone. I was isolated in my own world. And I probably interacted with other kids because kids usually drag you into anything whether you ask them or not. I mean I once was asked a few things about my personality by ex classmates and I took it too deep and too seriously. It was simple things to find out my zodiac sign. But this dumbass said "Well I'm an extroverted introvert due to an issue I was diagnosed with" to the simple question of are you an extrovert or introvert.
Also I saw my therapist for a while two years ago due to some struggles and she told me I changed a lot and got a lot better in my ways. That I have better eye contact and over all opened up a lot. This usually happens for me when I gain confidence with people. I become more myself the more I know someone. And thinking about it now makes me want to cry. It feels so good to be told you changed for the better and people can see that. I take what she said as a good thing as she looked happy of my changes. I don't mask really as I never had to mask in my life being that I passed as normal for so long. But this feels amazing to hear and feel.
@@winterwithawhyknudsen5166Ever since I was a kid I always had a strong incline towards anything crafty. My passion for crafty things was so bad I ended up getting paper detention at my own home. Either because I was wasting so much recycled paper (basically paper my mom would bring from work with one side printed on and the other empty). Or because I was making too much waste and too much mess with it. It started by making paper garlands and decorations. To drawing people, then origami, sewing, scrapbooking, baking, knitting, crocheting etc. Of all of those I sometimes still do origami or general paper crafts, I still knit and crochet but more sparingly, I sew one piece of clothing a moth and I own a good sewing machine and a seamstress adjustable dress form/mannequin. I still bake: my best bakes so far are custard filled fruit tarts, bread and fried doughnuts. And I draw more professionally. I draw with regular pencils (not coloured), this summer I made my first guache painting of a naked woman (I know) half covered by water that everyone likes as it's quite an impressive piece I like to show off to guests. And they all look surprised knowing I made it myself. I also do digital art sometimes. I've made a few speedpaints and posted them on here. And I forgot to mention that I actually wear most of the clothes I make outside for the world to see. And I've made some for my mom. So I did it all. Basically. Autistic people can be hyper creative due do hyperfocusing tendencies. Some autistic folk like transportation. I like doing things with my hands and seeing what others think of what I do.
Also to add to your comment it seems to me at least that autistic people are usually the extreme as I said in my other comment here. We're usually either too much or too little hence our inconsistencies. As in: "Struggles with eye contact" could mean too much eye contact, forced eye contact or no eye contact at all. "Normal people" are in between, we're not.
To further add I also do beadwork and make my own jewellery sometimes with wire work. I've said all of those things to someone once in a game. Basically it was a game with some old people we were visiting at the Alzheimer's café. Where you had to tell them things about you and they had to do the same. Then you had to tell out loud to everyone what the other person told them. And the lady said to everyone all that I do and ended this by saying (this actually happened it's not a joke or made up): "She's wife material" I guess because she's old school and I enjoy cooking and making things with my hands.
2:18 as an autistic person I constantly throw my garden furniture into a pool.Each week I buy new garden furniture and hurl it into the pool at the speed of light just to feel alive.
I knew a kid with autism who actually did this. Was kinda annoying because everyone at the pool at my moms friends house started thinking I would to the same type of things due to also having autism so I was always watched way more closely and people wouldn’t let me near the chairs or umbrella
😆
😂
@@risktheanimator6592 Ok thats depressing you arent treated as different person but else it slounds harmless fun. I guess just get plastic garden furniture.
That is just the wrong way to do it. You are doing it backwards. You are supposed to grab the pool and throw that into your garden furniture... makes more sense.
My son's first round of autism testing used the "he can't be autistic because he seeks affection" 6 years later, a different Dr. diagnosed him and said that reasoning was utter nonsense. 10 years since then, and he's still incredibly affectionate with people he knows and likes.
You'll find an egregious amount of people are told complete and utter nonsense at LEAST once when seeking an autism assessment. Even among professionals, autism is very pathologized and very misunderstood, so you'll pretty much always run into at least one professional along the way that says having one trait that's associated with neurotypicals is enough to cancel out an entire DSM criteria worth of traits, which they would find if they were less ignorant.
I have lifelong persistent fear response issues. I’m reasonably sure this is at least partly due to prenatal exposure to high stress hormones. It’s a primary characteristic with a physiological basis. My difficulties with affection and connection are mostly a matter of the behaviors I developed to cope with that physiology, and I would argue that these are secondary characteristics. I suspect there are common patterns of behavior that arise from persistent fear - I think PDA behaviors are an example - but if these behaviors are learned, they are likely to vary with the individual and their circumstance. So where I responded in an unfortunately broad manner - is getting close to anyone safe? - your son may have responded in a more nuanced and appropriate way: strangers may be scary because they are an unknown commodity, but once he knows someone well enough, he is able to put them on the safe list.
To coin a phrase, it’s not rocket science: the point of autism life coaching, if done right, is to teach the best available ways to manage one’s physiology. It doesn’t necessarily follow that autistic people only learn terrible coping skills prior to professionals stepping in. Most of us probably learn some tolerable ways of managing ourselves on our own or with help from relatives. The professional prejudice that leads to the kinds of ridiculous statements being recounted in these comments is, I suspect, based on the assumption that autistic people couldn’t possibly have any decent coping skills unless a pro taught them. Sign your kid up for OT, and then making strides is a sign of therapeutic success. Learn some good skills on your own, and you’re “not autistic.”
That’s leaving aside other possible variants, like individual neurology. I am not a hugger, but many autistic people are. I know one, and I’m always trying to dodge getting hugged, with very limited success. I wonder sometimes if she is sensory seeking in this area, it feels like it.
These comments are funny until they come from a psychiatrist which is supposed to be trained for autism diagnostic and deny diagnostic on criteria like having empathy, being able to make eye contact or being able to speak.
Thank you for your videos!
Yep.
I've come to realize that psych experience or expertise does not equal less ignorance in regards to Autism, these people are sometimes worse with the stuff they say, probably due to wanting to project their authority telling you "what's what".
My thing is, I'm so confused, why is it that people who do this as a job aren't up on the knowledge within their field? Super weird. If I was a psychologist or similar you better believe I'd educate myself on something as important as Autism. And how do I not know by now, having the job I do. Like how are you this ignorant, make it make sense.
@@Dezzyyx Some have a hard time telling "I don't know" which as you said causes even more harm.
I am playing the devil advocate here but research on autism is moving "fast" these years and it represents only 10 pages over more than 1000 on the DSM, so I don't expect all the psychiatrist to be up to date on the subject. (I only speak about psychiatrist here because where I live psychologist does not necessarily have a phd which means some of them do not even know how to read research papers...).
The issue about this is that they use old ideas about autism which means they think they don't see any autistic person and so have no incentive to stay up to date on this subject.
This happens with all M.D., when you are curious about your own condition and try to follow research about it you will quickly know more than most doctors on this specific subject.
I agree I don't expect them to know everything, but don't just go by as you say old knowledge or limited knowledge and assume you know what Autism is. @@guitaryska8379
Apparently they don't understand the difference between a clinical setting and reacting in real-world, in real-time.
Several studies show autistic persons can easily and properly identify and demonstrate these behaviors _in a clinical setting._
I discovered I was autistic after watching "63 common autistic traits you never realised were signs of autism!" Now I've learned 65 reasons why I can't be. Does that means I'm down to -2 reasons why I am autistic?
if you're really really bad at math, it could mean you're a rhinoceros. Yes I know, what are the odds. Well, no idea I guess, with the bad math and all.
Oh my goodness, are you the fabled anti-autist? Talk to a doctor immediately so they can extract the antidote from you.
@@alinayossimouse 😂
You analyzed +1
..with math +1..
You must be NT!
-2 is equivalent to 61 in the integers mod 63, so I think that means you're almost completely autistic. But my math may be off, because I'm a girl and therefore I can't possibly be autistic myself.
I can't be autistic because I liked and commented on this video.
Socialite!
I just recently had a friend tell me I can't be autistic because I'm very self-aware. I tried to explain it's a spectrum and he just said "Yes, there's a little more to it than that, but it's mostly self-awareness."
I have been told by mental health professionals that I am very self aware, which is true I think. I’ve also been told that I describe things mechanistically, which is definitely fair. I think to a large degree my self awareness is an autistic trait, a combination of analysis and pattern matching in the absence of as much intuition as some have, and heightened interception with my brain and nervous system. I gather I am not so great at describing my emotions in classic therapeutic terms; I can describe the thought process behind my reactions but not the specific emotions. And I always felt I understood people far better than my father, because my mother taught me about how people think. For a long time I thought I had good intuition as a result, but now I think it’s largely a theoretical base that I built by pattern matching. It’s a fairly functional system, but it rarely helps me much in real time interactions, I still only figure out my mistakes well after the fact.
So sure, self aware, but with some big asterisks.
Its not like self awareness can be a pretty common way to try extremely hard fitting in without knowing how, like if you have autism and its like hard, hmm.
Also learning to read people is pretty much a surcvival mechanism to read hostile signs, and yeah reading people is learning, autists can for the most part learn that. If its not a random expected to get it and ewxplained , anything can be learned in social skills mostly.
Not that its nor harder and that.
Bu why the hell wouldnt you be able to learn to read people? It might have even been, a special interest :O
Considering that we need to tweak ourselves constantly to blend and a common Autistic trait is to ruminate and overthink, I don't understand why people think Autists can't be self-aware, we *have* to be in order to function. We need to find our limits and what will mess us up so we can avoid those things.
@marocat4749. Your second para raises an interesting possibility for me. I tried Baron Cohen’s eye expression test some years back, and my main takeaway was that most expressions I found ambiguous I felt to be hostile. I suppose that’s the safest option, and also the most likely response for someone with lifelong persistent fear response.
I was diagnosed late at age 23 after having a fight about it with doctors which included "you can't be autistic because you're female", "you haven't displayed any symptoms in autism in thr ten minutes I saw you in your appointment", "you can't be autistic because you are good at things & pick things up fast", "you can't be autistic because you are all there", that last one is particularly horrible because it implies autistic people are somehow less than others & it's so wrong.
The specialists also knew I was autistic within 5 mins of meeting me & looking through my info I'd given them, they just had to go through all of the formalities to diagnose
Even from loved ones, acquaintances, co-workers, & friends, I’ve gotten, “We’re ALL a little bit autistic.” Umm, no, that’s not true. That just shoots down reality & prevents people from understanding what it really is. It makes me sad when they say that. It’s as if they’re implying I’m making a mountain out of a molehill.
Yeah, that really is a dumb statement - if we’re all autistic to a degree then there wouldn’t actually be a diagnosis, because that would be the natural state of society. Who would go to the doctor if they weren’t struggling to fit in or function due to neurological differences with their peers?
They might recognise they have some traits that line up with autism symptoms, but their experience of that trait/symptom could be miles apart from how any particular neurodivergent person might experience it. For example, there’s a big difference between being a bit irritated or annoyed by a label in your clothing, and having to cut every last piece of it out because you feel like it’s burning your skin.
@@ShintogaDeathAngel Thank you!
🤜🤛
@@ShintogaDeathAngelHoly crap was I excited when I first saw tagless clothing become popular.
I think these words really downplay how difficult something can be for an autistic person, compared to others who don’t REALLY struggle.
And doesn’t it also imply that we have something morally wrong with us because “hey, everyone is a bit autistic, and if everyone else can manage life with that trait, you’re just lazy if you don’t”?
Yes😊😊😊
Yeah. I was recently denied by the intake lady because I obviously didn't have any trouble with eye contact. Which is a bit disingenuous, seeing as how we were on a video conference. One, it's not in person. Two, the webcam is usually offset from the screen, especially if you're on a desktop. Three, I actually do if I'm under stress, and even when I'm not, I occasionally flick my eyes to look at the other person and then look at other stuff. Four, she suggested I might be Aspergers, which is a DSM IV diagnosis fer cryin' out loud.
Also I'm 66 yo. I don't know how that figures in but apparently it's relevant.
She gave me a referral for depression and anxiety and I've ignored it. I'm tired of therapy that doesn't work and of the medical community gaslighting me.
Thank goodness for Paul Micallef! And everyone in this community, we are tearing down all the walls and barriers to the truth of Autism.
My eyes literally tear up if I make actual eye contact. I appear to make really good eye contact but I've developed a shutter like mechanism in my brain. It's like a protective glass panel sits between us when I look at someone's eyes while we are talking. It's masking somehow. I can look at someone's eyes but I can't actually make eye contact without it being physically painful.
My doctor denied me an evaluation because I can make eye contact!
@@flyleafrpgwo4008 My mother, without being aware of my autism, basically trained me to look in the general direction of peoples' faces, even though I don't actually register what I'm looking at when I do it. Thus, one more masking behavior, one I have mixed feelings about.
Asperger's is literally autism. That psych needs to freshen up and reflect on her practice. Yeesh
I "can't be" autistic
... because I can maintain eye contact during a conversation,
... because I'm too articulate,
... because I'm an adult female,
... because I "only have PTSD,"
... because I can recognize other people's emotions
... and the list just keeps growing.
It wasn't until nearly 50 years of age that I discovered the primary reason why my entire life in general was ... "weird,"
... why I can feel sound, sometimes painfully,
... why I can either turn off all auditory receptivity, or be entirely unable to tune out any background noises, or hear all the extra noises at the same intensity and therefore be unable to focus in and hear what someone is saying.
... why I feel like the only person who didn't get a copy of the script or Handbook of Things to Talk About.
... why I prefer discussions and storytelling over small talk.
... why words get stuck before they can get through my mouth (really: I hate it when my mouth appears pucker-stuck in mid-syllable when I lose the word I thought I wanted to say and I have to pause and find it again!), or when I ^know^ what something is but my brain sends the wrong word to my mouth. (I know what image matches the word ladybug, but sometimes my brain sends out the word "butterfly" when I know I am clearly looking at a ladybug. And what's up with swapping the words Purple and Orange?! It's always that pair of color words.)
... why it's hard to tell the difference between someone stating something true or using dry sarcasm, yet I can speak with dry sarcasm only briefly until I can no longer hold back a chuckle and reveal the humorous intent.
... why forced air feels abrasive -- motorized fan, air conditioner, hand-surfing out the car window (that's the worst yet!)
... why I feel terribly uncomfortable with sitting very close to the screen at the movie theater. I am compelled to back away about ten rows so I can process all that enormous visual stimulus and be able to notice all the things that everyone else will miss.
... why I notice all the (obvious) things that no one else notices... or are they just oblivious?
... why I always have to H-I-J-K to remember if K is before or after L in the alphabet... yes, Always those two letters!
... why I still sometimes forget the result of multiplying 6×8. Yes, specifically that set of numbers.
.... why I can feel everyone's emotions and be unable to contain mine comfortably -- they all get so full and intense that they leak out of my eyes and choke my voice, regardless of happy, sad, ecstatic, furious, relieved... and it confuses onlookers.
Also why I get so hyperfocused that I forget to eat, or drink water, or notice that my brain and body need sleep.... like right now, when it's past my bedtime and I'm thirsty and still very much awake and oversharing in a very long comment on a TH-cam video about my most recent Special Interest. So, that said... I'll step away and drink some water and put myself to bed now.
❤🧠
I agree about forced air. It bothers me.
Thank you for sharing 😁👍
The compulsion to reply in essay length to every single point you made.. at 3:30am.. 🤣
@@Catlily5the worst thing is that so many bathroom only have air dryers why!!? Who thought that was a good idea
@@AnnabethOwl I don't mind it so much on my hands, the noise is worse for me. I don't like forced air on my face the most.
But I can see it would be a pain. Sometimes I dry my hands on my pants
I must admit that "You're not autistic, you're just a scorpio" is one of the worst things that have ever been said to me, and I've been called slurs more tjan once.
I‘m sorry you had/have to go through this.
I hope you have some understanding people in your life 🙏🏾
everyone knows that if the child realizes that they are about to be born in november and they have autism they just decide to sit in the womb till december
Wow, an autistic Scorpio. The struggle is real. I'm an autistic Leo so I never know whether I'm being very self conscious and socially awkward or just making it all about me again. 😅
The “you can’t be autistic, you’re too pretty/don’t look disabled” really hit home for me. 😢
I have no firsthand experience with this, obviously - but I’ll note that I’ve started following a young autistic woman on TH-cam lately, and she did a video on her childhood autistic traits a short while ago. She commented that it was just crazy that no one picked up on her autism as a child, and the examples she gave, while not that problematic to, say, teachers, I would nonetheless agree should have been obvious...but: she posted a picture of herself at maybe age 6 (? I’m no good at judging kids’ ages), and on reflection I realized she was a classically cute, pretty little girl with a very nice smile. I have a feeling that’s the single biggest involuntary mask for some young girls: pretty is considered synonymous with perfect, and of course, if someone is “perfect,” they couldn’t possibly be (gasp) autistic...right? So any evidence of unusual behavior probably gets ascribed to being quirky and cute, unless it’s considered antisocial by adults.
There are upsides to being attractive, but there are certainly downsides too, at least for women.
@@jimwilliams3816so does the same thing happen with autistic kids who are good students/overacheivers? like people not thinking they could be autistic because they aren't misbehaving or bad at school
The childhood trauma one is wild because it's really hard to grow up autistic in our society and *not* get some childhood trauma. I don't think I know a single autistic person who doesn't have at least a bit.
yea true
The hard part is trying to recognize what is “real” trauma and what is just events I’ve been “overdramatic” about. (Yes I have been called overdramatic most of my life, so I dont know what counts as real trauma). I grew up in a good home, food on the table, comfortable place to sleep. I was neglected in all of my emotional development though. Never taught how to calm down from big emotions, anytime I got too emotional I was yelled at and sent to my room to deal with it on my own. But I dont know if I can call that trauma, since others don’t believe it is.
@@doid4354 Trauma does not need to impress other people to be trauma. Anything that was particularly difficult for you and that has lasting ramifications on the way that you view yourself and/or the world counts as trauma. It's really a matter of your response to it more than it is the events themselves. And the sorts of things that will cause autistic people trauma are sometimes different from the sorts of things that will cause allistic people trauma.
Childhood emotional neglect and the repeated belittling of your emotions can definitely count. And other people dismissing or mocking your trauma does not make it not trauma. It just makes them shitty.
exactly, being autistic lends itself to traumatic experiences, especially with social circles as a kid and for me personally not understanding how to communicate properly. before i learned how to mask, this was even worse. i only learned because of that trauma
Does anyone ever live "trauma" free? Nah bud. Everyone got through things.
In my case, it's quite the opposite: It took 40 years to convince my parents that I'm not autistic, which in their mind would explain in acceptable terms why I am so weird, disappointing, lonely and poor.
😂
Er, congratulations?
Unfulfilled expectations, wasted potential, that resonates with many of us, and hurts so bad. Be a friend to yourself and treat yourself with kindness. Give yourself a break. It's OK. You've done great. We've had so much more to overcome than others, and it was internal, invisible and misunderstood. You matter, you are enough, you are there already. You can let go and set free 💚
lol, thats kinda funny
@@autisticrevolutionI really needed to hear this for myself right now 😢. I didn’t even realize I need it until I read it.
“You can’t be autistic, you’re too functional” 🤣🤣
My therapist dropped that one on me after reading me the DSM and me saying “yeah that all hits close to home”
There's this mental hangup a lot of people have that anyone who is functional can't possibly have anything wrong with them. It's an epidemic of denial, and not just about autism.
Legit my therapist when I talked about wanting to get diagnosed with OCD. I have terrible intrusive thoughts and make correlations with things that I shouldn't. I get terrible anxiety when I buy something, then learn that it's part of a set and I don't have the whole set. All of my books need to be in paperback, because having just one or two hardback books makes me feel physically ill when I see them and how they don't coordinate with the others. But because I don't compulsively clean or have daily rituals, I don't have OCD. It's impossible 🙄
@@aynDRAWS Without regular rituals/tics it's not really OCD.
1. Intrusive thoughts: can be caused by autism, ADHD, or anxiety as well as OCD.
2. Nonsensical correlations: seems like something that could happen with autism. (Consider the above average number of autistics who are conspiracy theorists.)
2. All books same format/size: this can just be autistic fixations on symmetry.
@@jliller that's totally true. However, there are four types of OCD. I recommend looking up "pure obsessional" OCD
@@aynDRAWS I looked up the OCD types as you suggested. I still find it really find it difficult to separate some of these from other conditions. In the absence of ritual behaviors , the presence of ASD and/or ADHD seem sufficient explanations, even for pure obsessional / Big O.
For example, I have serious problems with "doubt and double-checking" especially with regard to locking my car doors and rolling up my car windows. But I should. My ADHD means terrible short term memory, especially regarding routine task like locking a door that I lock multiple times every day which requires little to no conscious thought. Furthermore, over the course of two decades, there have been a few occasions when I absentmindedly left my window down in broad daylight at college or overnight outside my house. I lack confidence in my short term memory because it IS unreliable. That's not OCD; it's self-awareness.
Another example: I'm often worried about my body odor, despite regular bathing (unlike some people with ASD or ADHD, I don't got days without showering). But I have good reason to be. I have always sweat very easily, even when I was a scrawny teenager. I can't wear antiperspirant due getting allergic skin reactions to it. So I should be more worried about how I smell than the average person.
Now if you don't have other ASD or ADHD symptoms, especially if the obsessions don't have a rational basis, THEN I would say OCD makes sense despite an absence of ritual behaviors. But that's just my opinion; I'm not a psychologist.
"You can't be autistic because you can make eye contact" is the first thing I heard from every single therapist Ive been to as soon as I brought up autism.. Boy were they wrong.
"I may be making eye contact but it's like 50% of what I'm thinking about right now and the other 50% is what I'm supposed to be doing with my hands..."
This is a surprisingly important video for people like me who are for now only self diagnosed, but is struggling to trust ourself bc of people close to us denying it with stuff like this. I’m already super critical towards what I think and over-analyse so it was pretty hard to say I thought I was autistic, so when my mom denied it, it made me too unsure to even engage with the community. But seeing videos like this where you dont have to show every extreme sign there is to be valid, and all the others in the comments who also had parent(s) who didnt believe it rlly helps. I think this might even be the first time I’m able to say that I’m autistic like this. It also helped me realise I don’t need a diagnosis. I keep wanting getting one, expecting all validation to come with it, but no one should rlly need that to be able to feel valid. This has become a bit of a rant, but thx
Usually, when you heavily suspect you are autistic it is because you are! It took me until I was 19 to get an official diagnosis, but I had heavy suspicions since, like, late elementary school~early middle school.
So just know that you're valid despite what anyone might say :3
I'm too old to give a sh... what other people think. I tried telling some friends I was autistic, and it went over like a lead balloon. It's not that they don't see that I have problems, but they accommodate these in their own ways. I don't ever bring it up any more. I'm self-diagnosed, have taken a few tests, and am usually about 2 points into the normal spectrum. However, the autistic traits that I do have have been life-defining, and I don't feel like I need to explain these things to other people. I have gotten a lot out of the TH-cam sites on autism, and some of this I have been able to apply in a really helpful way, so that's enough for me.
I’m too old to bother fighting to find someone to diagnose me. My area is small and even the next bigger city doesn’t have much in the way of help etc… I have self diagnosed using online tests, reading and of course watching youtube videos. Wish this info had been available 30 years ago. It would have made a difference to me at that time in my life. At least now I know what is what!
Had a psychiatrist tell me I wasn't autistic: I just had social anxiety and a mood disorder, both of which I told her at the beginning of the call. The next psychiatrist gave me a diagnosis of autism. 🤷🏻♀️
my (ex-)therapist gives me an autism test, i get a high result, in the next 10 minutes she says i'm not autistic
then we go to my mom and the therapist tells her i might be autistic
and then she proceeds to go back and forth between "you're autistic" and "you're not autistic"
Had a similar experience. Disclosed my ADHD beforehand and instead of looking further into my autistic sides she said „it‘s all just your ADHD“. A waste of time but more so a hurtful experience that I really didn‘t need to have.
I feel that for those who are in the mature age category, we just get dismissed. Yet we keep moving forward using our gifts.
Yep. By now we mask too well.
My typical internal monologue: "try to be normal, try to be normal... pause, notice what other people are doing so I can mimic and blend in...."
we don't get no slack either as we're expected to "keep it together, act properly, you're an adult"
I had this struggle as ive gotten older. I get better and better at both masking, and just plain being more mature and better able to restrain myself. So when someone asks what some weird behaviors I might have that point towards autism, now I have to act it out to show what I would do if I wasn't trying to always hold stuff back
Its a weird spot to be in. Knowing what I have the instinct to do and choosing not to do it then that being a basis for dismissing the autism (understandably so)
And the few autism based behaviors that we do choose to let show are confusing enough to nurotypical people that they draw much more bizarre conclusions about us than autism.
As an example: Executive function is something that I struggle with. Choosing what to wear can sometimes seem almost impossible to me. Having sensory issues makes that even more difficult for me.
So I have found clothes suitable for different weather types that are mostly comfortable to me. I bought multiples of each. And all of what I wear is black. That way all I have to decide is what temperature to dress for and grab the appropriate set of clothes.
I try not to fuss over my hair too much either or it can overwhelm me. I choose to go natural, which is now about half white. And I keep it long so I can put it up when it's hot outside.
My neighbors do notice that I always wear black and have long graying hair. But rather than assume that there is a reasonable explanation or ask why I look the way I do they draw their own conclusions.
One of my neighbors was trying to find out what religion I am. Come to find out, what he really wanted to know was whether he was right about my being a witch. 😂😂😂 Sorry dude. I'm just autistic.
I've told two people about me being autistic, and got hit with the 'oh but you're so smart' response both times. There's a reason I've only told two people.
A friend of mine (who has a psych degree) told me I wasn't autistic. My guess is he thought I was too smart, funny, or seemingly capable. Now I don't want to bring it up to anyone. Even my therapist isn't specifically educated in autism, so I just have trauma and a high ACE score.
Normies lack both the neurological education and the empathy to understand our struggles
Maybe when someone say this you can troll them back and say "well, i'd be even smarter if i wasn't!"
@@セラフィナ The irony is that autism is the reason why some behave the way your friend did.
Irony is that savant skills can help mask, I don't get how people never realize that
I'm my first autism assessment I got a wonderful assortment:
- You didn't go to a "special school"
- You have a romantic partner
- you're nice
- you're smart
All this from a psychologist who I emailed to vet beforehand. Wasted my time, insulted me, used words we don't use anymore (e.g. functioning labels), and charged me a huge amount out of pocket.
When I later got diagnosed I found our he could have used my health insurance but couldn't be bothered with the paperwork.
🤬🤬🤬🤬🤬
Just awful
A lot of people are smart _because_ they have autism. I wish more people knew this.
As someone with Autism, I can confirm I am never sarcastic.
I went to a so called “autism expert” for an assessment a couple years ago, and was told that I couldn’t be autistic because I had childhood trauma! I argued that they hadn’t been thorough enough in their assessement, and then they asked, “why do you want to be autistic?” 🤦♀️
Yep, had similar experiences with ADHD "specialists" for ADHD. Some were pretty disgusting about it, even being outwardly condescending and mocking. At this point i'm convinced 90% of psychiatrists, psychologists and specialists, aren't worth jack shit.
I am autistic and have adhd. I was also s*xuall6 abused as a child and my mum left me with my abuser when I was 13 years old as a 'consolations prize' when she left him for another man and disappeared from her children's lives for 2 years. So at 53 yo I get diagnosed but only after arguing with MH professionals that it was t just childhood trauma. It's a common known fact that ND children are more likely to suffer from childhood trauma and also that the being ND is genetic so it's likely that your parents weren't exactly coping well with the world and didn't know how to deal with their own trauma so it ended up being passed to you. We seriously need to start identifying individuals who are ND and traumatised so that we can make life better for our children.
I was a bad parent, even though I loved my kids, because I couldn't understand myself and didn't know how traumatised I was so all of my weaknesses and triggers were passed on to my ND children as trauma. I feel like crap about it but when you know no better than you will do no better. Though I have some pride that my kids are 'better' and had less obvious trauma than I did growing up...but that doesn't mean that I didn't traumatise them too
no one who goes for assessment should tell about trauma.. the problem is most people who are ND have had been victims of abuse. it a correlation, not causation. woops, big vocabulary: not autistic.
you cant be autistic because you have good eyecontact.. yes after over 50 years of working on that! when I was a child - in my 20s I did not have eyecontact. I talked to the wall and my friends told me I was weird. but I was told I now have too good eyecontact to be autistic...
Crazy isnt it !!
Wow! It's almost like we can learn to adapt and/or mask 🙄
Can someone explain to me why eye contact is so important?
normal people use it to read and underlying meaning and intention, as a lot can be expressed through body language not just words. People use their hands, eyes, face, posture etc to convey meaning, some more explicit than others, some is conscious some is unconscious. The former would be glaring at you to say "I'm angry with you and I want you to see that". The latter could be someone looking down as they feel insecure. @@willowtree9291
Who says I'm looking at your eyes? lol
"You can't be autistic, you're a cat!" I firmly believe that cats are autism in a fluffy package.
I sometimes wish i were a cat :3
@@marocat4749No school, no responsibilities, just meow
@marocar4749 maybe...on the one hand, if I were a cat, I’d be a far superior life form to that which I am now. On the other hand, if I were a domestic cat, I’d be dependent on...yikes!...human beings. :)
So that's why I get on so well with cats! (Much better than I do with people, unfortunately or fortunately.)
"Most of your symptoms fit the criteria, but you have empathy"
“Because you eat broccoli“ killed me. I just know someone somewhere said this to their child 😭😭
why is that so TRUE OMG FJFJDJDJEJFKFJRWJJFJVJ
Some people think I can't be autistic because I like all types of foods. I'm not really that picky when it comes to food I am picky at other things.
@@girlsaurusrex7257 lol same. I‘m like mildly picky but my brain will randomly decide it does not want a certain food rn and if I try to make myself eat it, I just can‘t. Broccoli is delicious tho 🥦
Related topic, my last psychiatrist told me that i couldn't have ADHD (he accepted the autism diagnosis readily enough, ironically) because, by the time a person with adhd became an adult, they'll have developed enough coping mechanisms that they no longer need treatment, so he was going to stop my meds. Suffice to say, that was my first and last appointment with him, and several months later, i found out he had been booted from the program. He wasn't a newbie, either.
Edit: spelling.
My sister actually said to me, "Isn't autism just for smart people?" I was like "wow... thanks for that."
it can be such an annoying stereotype as well, because it's like, no.. for some reason in many NT people's minds, the only kinds of autism that exist are very high support needs paired with an intellectual disability, or absolute savant.
Fun, but I think I’ve heard all of these! And, “You’re not autistic, you’re just weird.”
Good job, Paul!
Words fail me, so true!
Even 64? ‘Cause you’re a cat?
Rhymes with catshole..
More than happy with weird/ zany label
I heard that one from my sister you can't be autistic because you can drive 😂😂
so you got told you can't be autistic because of eating brocolli? genuinely?
The rejection letter when I applied for disability benefits said “you say you’re autistic but you’ve worked in busy offices” as if the repeated stress of work over time wasn’t the main reason I ended up so stressed, I’ve had fatigue for five years 😒
Thank you for doing this. I have a boyfriend who I recognized many traits that my sister had. As I listen to you, I realize, that my granddaughter, my daughter, her husband, and of course, myself all have a variety of these characteristics. I've sent this to all of them for us to help with communication, understanding, and support of each other. You are a blessing to our family and this world!!!
I think saying I am a Disabled Veteran gets a worse response (contempt) than what I get when I say I am Autistic (eye rolls). I haven't told many people that I'm both.
what kind of actual asshole do you have to be to look down on disabled veterans?? I'm sorry you feel contempt for that when you should be shown care and respect
Virtual compassion! ❤
Dang, people can be so ignorant and horrible to others! So sorry you've been treated that way.
Lord, I had hoped we were past that. I'm sorry. When I was a kid during the Viet Nam war, it was too common to express displeasure with the war by scorning service people. I thought most everyone had learned better, and knew to show respect and thank vets for their service. I thank you. And for what it's worth, the one place I have always felt my government should never cut corners in any way is veteran's benefits, especially for anyone who is disabled. Nothing makes me crazier than having asked somebody to put their mind and body on the line for their country, and then try to stiff them in any way. Whatever you need, you should be getting.
(I realize you may not be in the US, but all of the above sentiment applies wherever you are.)
You should tell people you are both then say something amusingly outrageous (and probably made up) about being given access to munitions and fire arms just to mess with their contempt and preconceived ideals.
Yeah, I got the "you can't be autistic because you can express your emotions". The doctor asked my how I'm doing at the beginning of the appointment, and obviously I answered that too well.
So you answered "how are you" literally and they took it as an argument against autism?
Or: You’re not autistic, because you’re normal. I was very confused by that one, especially considering that they have told me that I’m weird on numerous occasions…
They meant intelligent enough to form a sentence and verbal enough to speak it
When we're acting OK they call us normal, as soon as we step out of line we're weird and need to change our behavior. They either dismiss our difference or condemn it, but they seem to oscillate between the two and never quite getting that we're acting weird because we are different, not because we are normal people who just happen to act weird or improper.
im too weird 2 be normal and too normal 2 be autistic, very cool
4:42 is literally just “you can’t be autistic because you’re autistic “
These were said to me by an "expert" I was referred to by the Jobcentre, when it became apparent that possible autistic traits were holding me back from getting a job:
You're not autistic because you're too well dressed.
...you don't have a problem with personal hygiene.
...you show some awareness of other people's personal space.
I said I'm very much aware of personal space because it makes me uncomfortable when other people encroach on mine.
"Ah," he said, "but you could be protective of your own personal space, while still invading other people's."
I'm not quite sure I follow the logic of that. If you don't like other people being too close to you, you don't put yourself close to other people.
People can BE so stupid, how does one get into another persons Personal space without placing them in ones own?!
But you see, you totally cant be autistic and not a jerk/s
I think thats implied?? which is pretty .....
I told my psychiatrist about my new autism diagnosis, assesed by an experienced psychologist who specializes in diagnosing high masking women. It was a very long, detailed process. Psychiatrist then told me that because I draw portraits I can't be autistic because looking at the human face involves interpersonal intimacy. He didn't ask, but I assume he thought I draw a person standing in front of me. I use reference photos...sorry, still autistic:)
you should check your psychiatrist methodology, because (I also found out kinda late) majority is doing CBT which is very much not recommended for autistic people in the first place. (if the claim wasn't red flag enough to try finding someone better)
That's bollocks in any case. I used to do caricatures on occasion (granted, I found it nerve wracking). Like any other type of drawing, I tended to treat it as an exercise in observation and analysis. I never found it the least bit intimate, it was a lot like doing a still life. And most of the time I would be looking at the paper anyway, one reason I always drew so much.
Doctor skill spectrum is exactly the same as auto mechanic skill spectrum.. Some great, most cr4p..
Incredible amount of ignorance out there.
"looking at the human face involves interpersonal intimacy" I mean... that's kind of a very neurotypical point of view, if you think about it. Certainly not how it is for me. I've always liked drawing and while as a child I drew a lot of animals, now I often focus on people and especially faces and their expressions. I just find that really fascinating and I think that actually has a lot to do with my difficulties understanding people and their interactions because that is exactly what I ended up paying most attention to as to try to learn how to read people better.
Because for some reason they just can't say what they exactly mean outright but you also can't just ask them directly because that's considered rude or makes them uncomfortable. So as a teenager I read all these books to try to understand body language and facial expressions so I could better understand people. It became quite a fascination for me and now I find it just very interesting what can be said with just changing a few tiny pencil strokes in specific areas of the face, how it can change the whole meaning and interpretation of the person or the situation they are portrait in. But much of this process is rather quite analytical and structured, so it doesn't really feel intimate for me or anything (and also I draw mostly from my imagination and don't have real people in front of me).
My daughter didn’t get a diagnosis because she was too articulate and was able to explain her problems “almos like an adult”!!!! I tried to tell her that that is one of the defining traits of “high functioning autism” and then she laughed in my face.
Legitimate. I was an early speaker. Around 18 months I'd form full, articulate sentences, just rarely and quietly cause I was very shy.
Early than typical milestones is a lesser known hallmark of autism
When I was a child, many older people, after conversing with me, would say that I was mature for my age.
@@danielnelson9411Yes, me too. As a teenager as well.
@@audreydoyle5268 I gather I started reading early -- I wish I knew when I started speaking. I have this vivid visual/word memory of having my diapers changed. I can see the light overhead and the red table, and I recall thinking these words: "why don't I know where I am, or who these people are?" I'm not sure exactly how old I was, but it feels like I was rather young to have formed that sentence in my mind. I wonder if I wrote the text in my head later, on recollection, but it doesn't feel that way.
@@jimwilliams3816 I remember being a diaper-age infant, hearing snippets of conversation about my childhood friend getting his diaper changer. Apparently it was "sandy", whatever *that* means.
Edit: also remember my first birthday party, which is impressive considering how sleepy I was.
Great list! When we adopted our son, I knew he was quirky. He has a big personality and great sense of adventure and loved to laugh. Of course, he did like dinosaurs. But I thought, he couldn't have autism because he made great eye contact. His eye contact is better than, ok, mine. But over time, his autism completely revealed itself. And he's wonderful. Still full of adventurous spirit and a good heart and a happy nature.
I mean, how can you not like dinosaurs? 😄
What do you mean by 'gradually revealed itself'? Like he unmasked?
@@user-id3my6cr1rI would assume they meant as he got more comfortable with them they started noticing his autistic traits more
"Of course, he did like dinosaurs"
I KNEW IT!
@@user-id3my6cr1rit's perhaps that?, or maybe they just started noticing more symptoms since he grew up
I got told by a dr that he thinks that I'm "an anxious young lady" that "talked myself into having autism". Basically saying that I was too anxious and convinced myself that the answer to my problems is being autistic 🙄
These are insane! Some of these thoughts could just be solved with basic research on ASD. Love the videos. I love learning what I can to help my daughter.
I was in hospital for a trauma program and my inpatients (only) psychiatrist told "you're too warm to be autistic"
did they mean emotionally for physically? I could see people believing that in the emotional sense because a lot of people think people with autism can't feel sympathy, but physically makes absolutely no sense
@@python4233 She meant that I come across warm emotionally.
@@python4233 yeah, it's like the negative completely cancelled out the positive. People assume ALL aspies are incapable of empathy, when it's only a portion of those with Alexithymia. Even some autistic people with Alexithymia can have empathy for others, but not themselves.
98.6?
The wildest dialectic experience is being told you are a warm and empathetic person but inside you are cold and clinical and capable if imagining pretty grotesque shit. But there's no way I'm autistic I'm queer.
"You can't be Autistic, because you steam a good ham." I just made that one up, lol.
SEYMOUR THE HOUSE IS ON FIRE
I thought the number in the title was a bit inflated for click bait. But now that I’ve watched the video, I realize that I have actually heard most of these. So heartbreaking how invalidating these statements are.
Thank you for the “what is the message?” section of your videos. Saves us from having to assume that what we got from a video was the intended message.
“You’re too creative” I was told by a professional. Still fighting for a diagnosis
Legitimately, one time a girl told me, “you don’t look autistic! You’re pretty!” And when I asked her what she thought autistic people looked like, she began describing the symptoms of Down’s syndrome 🤦
Bruh
I had a counsellor from the dutch centre for autism say that if i saw a crying child, if i was autistic i would just walk by them because i wouldnt know what to do with the crying.
Me when theres a crying child:
Whats wrong?
Can I help?
Am I allowed to help?
Should I step in? (If its bullying)
1000+ other questions regarding consequences and social appropriateness...
Standing there watching like a total creep not knowing what's OK to do, but stuck in solver mode.
If theres a problem I want to solve it. Not ignore it.
This video really helps with imposter syndrome! (Which you can get, even when you have a formal diagnosis.. We really need to appreciate how diverse the autistic community is!) 💛
it's weird we (both NTs and Autistics) feel like we need to identify Autism in a neat box, when you think about normal people they are all different yet share a common neurology, so why shouldn't Autistics be able to share neurology yet all be different. I guess there's a focus on understanding it as an diagnosis, and to recognize it in that vein, and so it's easy to think of it as a box that has to contain exact things, to a point it becomes too narrow for something as complex as a human being
You're very intelligent and very well behaved is what I was going to say before the video began! That's what teachers said about my child at school, and why they wouldn't help us refer them for a diagnosis. We're doing it now they're almost adult. We were made to feel silly for even suggesting a referral. Thank you for raising this awareness!
My mother's were 30 (you can't be autistic, you have empathy), "you can't be autistic, you're too much like me", and "you can't be autistic, you just have a hormonal imbalance." I don't.
"I dont think you are autistic, you're not awkward enough" -a therapist told me this after our first session.
63 🤣🤣🤣
I was told, by a mental health professional "You can't be autistic, you talk to people about things that interest you". Other real life comments from professionals I heard "...you have baths" and "...you can sit in a chair". Horrifying to think these people are certified and getting paid when they are so deeply ignorant.
That's the number 1 thing I wonder about too. Why are they called "specialists"?!?
...because they think they are so special? 😂
Sitting in chairs, like straight with your feet on the floor, is super hard though to be fair
@@UOweMe fr
@@UOweMeI deadass sit cross-legged even if im on a chair or stool
LOVE your sense of humor, Paul! I knew you couldn't be autistic: you're too humorous! (Laughter and laughing together in shared pain really IS the best medicine, neurologically!)
I've gotten: "don't be too attached to labels..." which I interpret as, "you can't be autistic because that would make me uncomfortable and have to reassess my ideas about what autism is and looks like" ( which really means: "keep masking please and do all the work to bridge the double empathy problem because I won't do any or try to understand you from you own perspective")
I had a similar experience when I mentioned to a customer at my old workplace that I had suffered from depression - he seemed to think that only people who had noticeably negative character traits, or were "bad" in some way could get depressed (although my "work-sona" was probably a lot more lighthearted and masked a lot of these feelings). People seem to be very dismissive of things they don't really understand.
the "You're too sexy one" just made me think "nooo, babygirl, don't be autistic, you're too sexy"
Literally, words from my psychiatrist: "you can't be autistic you're making perfect eye contact with me". Actual words from my psychologist: "you can't be autistic. My son is autistic and he was always lining things up as a kid".
Well, alrighty then.
Both of these women are over 45. It makes me wonder how much continuing education is being offered by our Healthcare systems.
You can’t be autistic, you’re just not used to human contacts anymore cause of Covid isolation…
Yeah, being isolated so long destroyed all my years of practicing fitting in…😢
Geneticist: you can’t be autistic, you look too comfortable with social interactions.
Me: sweating profusely and shaking…
You are not autistic because you were able to make this appointment (psychiatrist), and you are not autistic because you could make eye contact (an autism center) I did finally get my diagnosis, but it has put my son off doing the same, so he is happy to be validated but not formally assessed. I was diagnosed at age 63 after 10 years of trying.
"You can't autistic, you don't struggle enough" is the one that resonates with me. My father told me that. We are both autistic (undiagnosed).
My NT mom and sister are like: I read some about autism - this totally sounds like you.
“You can’t be autistic your a girl” felt that one
"You can't be autistic, you're a highly sensitive person and that has a 95% overlap with autism" -my mom again
Unfortunately, the only sources of validation and support have been online through channels such as yours. Resources in the real (physical) world are few and far between from what I can see. Clearly this is an evolving field / subject / diagnosis / reality for many of us, and there are myriad layers to sort through. Thank you for starting your channel, sharing your story, and putting a solid stepping stone in the support system wall for the rest of us.
Like you, what you describe has been my daughter’s experience, and our family’s journey, as well. Even professionals questioning our desire for an evaluation.
"evolving" is a generous term..
Evolution is not necessarily a positive process. The evolution is towards a slow awareness and more ridicule and stereotyping. It is an evolution from barely knowing it except from Temple Grandin and Rain Man.
4:20 "out of the goodness of her heart" is really wholesome to say
the second he said that the image of my mom saying that just flashed in my head
Being autistic, I do not bother listening to arguments of why I, or anyone, isn’t autistic. … and hearing the first argument being, “because not understanding satire” … surely, like it isn’t what I just said!
the "you can't be autistic , you're so articulate" one was especially funny because I consider the massive vocab I had from a young age one of the earliest signs I was autistic.
I told someone diagnosed with autism that they couldn’t be autistic because they were just like me. A year later it hit me. 4:24
The two I hear the most... "you can't be autistic you make eye contact." And "you can't be autistic, it's just social anxiety."
The thing is I'm 33 and at first when I was younger I believed other people when they said it was social anxiety and I did everything to cure it. (Because social anxiety can be treated with repetition) well... no matter how many phone calls and people heavy jobs I shoved myself into it always ended the same. Meltdowns in the bathrooms and quitting.
Oh yeah, let's not forget "you can't be autistic, you're too high functioning "... cause being 33 living off other people and bouncing around from home to home because I can't hold down relationships or jobs is functioning
“You’re just creative/special/unique/you!”
I’m Autistic and ADHD. It took until last December of my 21 years of life to get her to realise I’m struggling and that neither me nor her are “normal” or ok
I've had 'Everyone is on the spectrum' from GPs when trying to get a referral. When I did make contact with the local Integrated Autism Service I told them this and I heard them mutter FFS before answering me properly, which was in it's self a validating response.
i’ve gotten “you feel too deeply” and “you communicate too well” from 2 different PSYCHIATRISTS 💀
I once had a psychologist tell me i cant be autistic because i was a bartender ! Im diagnosed now, but it really deeply upset me because i had a lot of trouble bartending, which i did for 10 years. Great vid!
1:27 The stock footage at "you mask too well" is hilarious! That's how I'm going to mask from now on 😅
LOL ITS SO BAD I LOVE IT
LOL, my first reaction to you was "I'm just like you" so, you can't be autistic ;) It took me like a year to discover the fun part.
So, before I stopped trying to tell people at all I had
No.65 everyone is on the spectrum
No. 2 - you’re ok because you are intelligent (this means you have never struggled apparently)
No. 9 -you don’t look autistic
No. 16 - you need medication then it will be all better (this came from a family member, dear God it hurt)
No. 30 - you’re social (I’m masking. Being social is hard.)
No.31 - you have anxiety and depression (go get some medication and it will all be better)
No. 63 - you’re just like me / if you are then I must be too.
Seriously though this is hilarious. I chose to be a nurse because damnit, I love helping people, but I’m so terrible socially, the structure and safety of having a start time, a finish time and a professional face feels really good.
I can make people feel better without being awkward, not knowing what to say or do, not knowing how/when it is appropriate to go leave etc etc… and then I can go home and recharge the batteries before I have to go do it again.
Of course physiology is a special interest so I have a degree!
I like making people smile, so my mask is everything I wish I could be naturally, without stressing about the details.
And yes it’s the details where everything falls down & often at the end of the day I will replay every interaction in my mind, searching for faults.
Was I a good enough person today? Did I do anything weird?
Hold the meltdown until you get through the door and nobody can see you… but of course because nobody can see you it means you can’t be autistic because …? You don’t struggle!
Oh so much fun.
Autism in adults is this: years of learning that being yourself is not ok.
Riddle me this… (TW I am sorry)
The people who are most likely to succumb to depression completely are the ones that nobody suspected to be depressed. They say things like “oh no, i they had just told us! We had no idea!” Yet when you open your mouth to say something, especially if that something is “I’m neurodivergent” nobody believes you.
*scratches head*
I’m in the process of getting an assessment I honestly don’t know if I will tell my family if I do get diagnosed because I just don’t think they will accept it. I’m the ‘clever’ one in the family but I’ve always struggled with social aspect of work environments.
I was a trainee nurse once a upon a time because like you, I like helping people but the feedback I got was, ‘ your really good with the patients but staff find it hard to talk to you’ ‘ you’re too quiet’ ‘you need to talk more’. And no one ever said anything to me but I struggled to interact with patients relatives at all, and that was me really exerting myself and making an effort so to get that feedback was a little heartbreaking.
I quit before I qualified and retrained as a dental technician, I still struggle with the social aspect of work but I work with a small team, and the job attracts introverts because for the most part we don’t deal directly with the public so it’s much better
"youre not autistic, you can hold eye contact"
yes with extreme trouble because i want to show you that i am taking you seriously!!
*explaining to my mum what autism is because i suspect my 4 years old sister to possibly have ASD*
"Oh, is it really autism or are you just talking about yourself?"
-My mum
I have never felt like that before
First professional I saw told me " you show signs but I see you are not interested in math or psychics, so you cannot be" lol
Ahh! Yeah, professionals saying those. My psychiatrist had decided that I was not autistic because I could look him in the eyes. He referred me to a psychologist.
Said psychologist told me: you can't be autistic, because you like hugs. He then proceeded to diagnose me with avoidant/dependant personality disorder.
And that was the end of it. I'd have to move to another town for a chance to get a proper diagnosis... Based on pre-conceived ideas of what an autistic person is like. 😖
The funniest one was: “You can’t be autistic, you don’t throw garden furniture in the pool!” LOL
That's why I stick to living room furniture. Really gets the point across when you drag it all the way out there.
"you can't be autistic, you can communicate normally" (that's why I'm exhausted and have depression)