I've had Sarcoidosis since 1988. My lungs were the most affected along with my skin. (My skin is not an issue anymore thank goodness) Through the years I was in an out of the doctors office at least 3 times a week due to the uncontrollable cough, tireness and fatigue. Finally they began treatment for chronic bronchitis. Inhalers were given, as well as promethazine with codeine, and a nebulizer. The albruterol worked wonders. Couple months later, I had problems with chest aches and breathing. I couldn't even talk above a whisper and was very short of breath. I went to the emergency room and they did an X-Ray only to hospitalized me because the x-ray showed that my right lung had collapsed. I was in the hospital for a week. A week and a half later After being released, I went back in the hospital because I started coughing up blood. ( Stayed in hospital another week) Found out that it was the cavities in my lungs that developed fugus. This is what caused the coughing up blood. My doctor told me thaf if I wanted to do better health wise, I needed to move to a warmer climate and that would make a big difference (I lived in Wisconsin) So I moved in October of the same year before winter set in, I moved to Atlanta GA. Been here 12 years and have not been hospital for any Sarcoidosis issues since I left. My lung specialist is the Best ever! I've gone from taking 16 pills a day to 0 pills. I still need my inhalers though. I was able to discontinue my nebulizer a month after I arrived here. And I'm proud to say I feel WONDERFUL!!!! I still have the fatigue from time to time but other than that, Its all been biscuits and gravy. 😆 Maybe some you may need to do the same. For a better quality of life, it is well worth it. 😎
Hey Janet, I am in Marietta, GA, dx 2 years ago with sarcoid. who is your dr. here in the area? I've been thru the ringer last few years, started with covid and the vaccine. I agree weather overall is great in this area.
There are more than 30 scientific studies on pubmed which link Sarcoidosis to oxidative stress - best fought by eating a diet high in raw fruits and vegetables.
That's great, but what if you have GI issues as well. For example, I have to cook my veggie soup for 6 hours, the only vegetable I can eat raw is lettuce, and I do eat apples, however, I chew on them and spit out the pulp. If I did digest thebpulp, for sure I would have digestive pain for at least a couple of hours. So, a raw vegetable and fruits diet is not necessarily a solution.
Oh my gosh. I was diagnosed with sarcoidosis in my lungs and something like 11 nodes were removed. At one time I was getting these weird lesions on my torso and legs. My primary doctor didn't have a clue what was causing the lesions. The lesions on my skin have gone away. Now my eyes are watering a lot more than usual and my vision is weird.
The legions on your legs is not common for many. It is called Laufgren Syndrome. You will feel the nodules and then they show up. They do cause scaring and it looks like polka dots. It is in my eyes and because of it I have to have collagen plugs put in my eyes every 3 months. Because of the Sarcoidosis not being treated early I was diagnosed with Fibromyalgia and have had Shingles twice. I pray you are doing well. God bless you.
There are several suggestions for treating sarcoidosis at home Consider adjusting your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat. You could also try different Natural supplements, herbs, and vitamins Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit. (I read these and the reasons they work on Remission Crusher Tactic website )
I have been diagnosed in November 2023 with sarcoidosis. I am currently not displaying any systems on the skin as of yet. I do have a persistent cough since 2017. Had shortness of breath for 4 yrs before I had an savr in September 2022. Will be seeing a specialist sometime in January. Do not have African Canadian lineage.
I have a question. Sarcoidosis can effect any organ. I have it in my lungs. For the past 2-1/2 years I've been having chest pains. I've had a nuclear cardiology stress test but that came out normal. My chest pains seem to be getting worse but 2 doctors have told me that my heart is fine. It doesn't matter if I'm at rest or working I still get rather bad chest pains. Could sarcoidosis be the cause of this? My primary doctor that I have now doesn't know very much about sarcoids.
You can bet on that. I have same symptoms, all the cardiac work they did was " fine" , till i had a CTA done .[ CT angio] it showed 1 branch in my heart almost blocked and nodules in my lungs. I have chest pain, anxiety, and facial numbness. I have to go to the Cardio this week n later I'll go to the pulmology.
I have had asthma my entire life went to ER with asthma attack came out with breast lymph and lung nodgles Dr states it's severe cancer... my chest pains come and go being an asthma they put us on steroids on a regular basis it's Poss these nodgles are sarcoidosis I have had all the symptoms my whole life believed to be asthma. If it's not cancer it's definitely sarcoidosis 😮😮😮😮
Yeah my sarcoidosis has returned after 10 years and I have a lot of pain when it's so much pain. I can't bear it and it's a cold pulmonologist and it's going to take me 2 months to get in to see him in the pain is getting worse so I don't know what to do my lymph nodes are swollen underneath my arm and my neck I'm in misery what is a person supposed to do when it's going to take two months to get in to see a doctor
I just wasted 14 mins waiting for the link between "Sarcoidosis Feeds On Poor Eating Habits & High Stress" It was not mentioned at all but it was the heading to this link?
Hi my name is Rebekah i have had sarcoidosis for 4 months now and would love to chat to people with the same thing as me so i can get more information on it please
Rebekah, how're you doing with your sarcoidosis,..my doctor put me on prednisone for awhile. I'm no more on steroids for so. I don't experience any symptoms. Tell me how're you doing?
i got this scknes ,is realy bad..I got palpitation,high presue,vision problem,namness,all body weeknes,panc ataks, my live is got hell,after half year one polish doctor say is maeby sarcoidosis,My cheast scan was fine but in blood they find ACE higher 98ul.I still wait for conferm my diagnosis. i hope they can help me.
in 2011 summer, doctor .. saw that on my Xray,, hospital called me last year in summer, had my last visit, I did all tips you said,, But I did not get any answer from the hospital.... even my GP... the only thing l know the last visit to the hospital... the specialist not the consultant... said, there is no dramatic matter.
There are several things for ways to treat sarcoidosis Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat. You could also try different Natural supplements, herbs, and vitamins Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit. (I read these and why they work on Remission Crusher Tactic site )
My family and I have it due to an inflammatory response triggered by black mold exposure. I wish I could contact all people affected and ask how many of them have been in contact with black mold.
I too believe the mold has a major part.. I grew up in house that had water in the cellar, my walls would get mold when rainy out. Then as an adult I went to Germany for three yrs. at this house there was mold in walls and in cellar horribly. It was at this point that the pains in the upper back started over the left lung. I now have stage 4 chronic active sarcoid.
Question: A systemic granulomatous disease of unknown cause, especially involving the lungs with resulting fibrosis. What is the correct answer? (a) cystic fibrosis (b) sarcoidosis. xxx from JamesBond's student
Cómo estás ? Yo hablo español -he vividos varios años en Bolivia-no se si todavía necesitas consejos sobre sarcoidosis pero estaría feliz compartir lo q he aprendido por la experiencia .. también tengo sarco pulmonar estadio 4 pero .
@@elainebrown8572 hola, gracias por responder.Estaba mucho mejor,sin embargo ha reaparecido, estaba tomando micofenolato, creo que es para bajar el sistema immune, y en vista de volver a tener la inflamacion en los gangleos me han añadido de nuevo la prednisona, supongo que esto es asi, rachitas peores y rachitas mejores, hay que tomarlo con positividad 😘
+Karen Kirkpatrick (KayteCanDo) hi everyone ,if anyone else trying to find out natural ways to cure sarcoidosis try Craffanty Sarcoid Healer Center (just google it ) ? Ive heard some decent things about it and my friend got amazing success with it.
There are several factors in solving sarcoidosis pain at home. One plan I found that successfully combines these is the Remission Crusher Tactic (google it if you're interested) without a doubt the best resource i've seen. look at the awesome information .
Karen Kirkpatrick There are a few components to ways to treat sarcoidosis. One place I discovered that succeeds in merging these is the Remission Crusher Tactic (check it out on google) definately the no.1 plan that I've seen. look at the awesome info .
There are several tips for treating sarcoidosis at home Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat. You could also try different Natural supplements, herbs, and vitamins Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit. (I read these and the reasons they work from Remission crusher tactic site )
here's a few suggestions for solving sarcoidosis naturally Consider adjusting your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat.You could also take different Natural supplements, herbs, and vitaminsAlso the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.(I read these and why they work on Remission Crusher Tactic site )
There are a few tips for treating sarcoidosis naturally Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat. You could also take different Natural supplements, herbs, and vitamins Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit. (I learned these and why they work from Remission crusher tactic website )
There are a few ideas for solving sarcoidosis at home Consider adjusting your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat. You could also try different Natural supplements, herbs, and vitamins Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit. (I learned these and why they work from Remission Crusher Tactic website )
MrLsocool hi everyone ,if anyone else trying to find out natural sarcoidosis cure try Craffanty Sarcoid Healer Center (do a google search ) ? Ive heard some pretty good things about it and my m8 got amazing success with it.
interesting points ,if anyone else wants to learn about sarcoidosis cure book try Craffanty Sarcoid Healer Center (just google it ) ? Ive heard some awesome things about it and my friend got amazing results with it.
I've had Sarcoidosis since 1988. My lungs were the most affected along with my skin. (My skin is not an issue anymore thank goodness) Through the years I was in an out of the doctors office at least 3 times a week due to the uncontrollable cough, tireness and fatigue. Finally they began treatment for chronic bronchitis. Inhalers were given, as well as promethazine with codeine, and a nebulizer.
The albruterol worked wonders. Couple months later, I had problems with chest aches and breathing. I couldn't even talk above a whisper and was very short of breath.
I went to the emergency room and they did an X-Ray only to hospitalized me because the x-ray showed that my right lung had collapsed.
I was in the hospital for a week. A week and a half later After being released, I went back in the hospital because I started coughing up blood. ( Stayed in hospital another week) Found out that it was the cavities in my lungs that developed fugus. This is what caused the coughing up blood. My doctor told me thaf if I wanted to do better health wise, I needed to move to a warmer climate and that would make a big difference (I lived in Wisconsin) So I moved in October of the same year before winter set in, I moved to Atlanta GA. Been here 12 years and have not been hospital for any Sarcoidosis issues since I left. My lung specialist is the Best ever! I've gone from taking 16 pills a day to 0 pills. I still need my inhalers though. I was able to discontinue my nebulizer a month after I arrived here. And I'm proud to say I feel WONDERFUL!!!! I still have the fatigue from time to time but other than that, Its all been biscuits and gravy. 😆
Maybe some you may need to do the same. For a better quality of life, it is well worth it. 😎
Hey Janet, I am in Marietta, GA, dx 2 years ago with sarcoid. who is your dr. here in the area? I've been thru the ringer last few years, started with covid and the vaccine. I agree weather overall is great in this area.
There are more than 30 scientific studies on pubmed which link Sarcoidosis to oxidative stress - best fought by eating a diet high in raw fruits and vegetables.
Dani Walker thank you make sense
And fasting
That's great, but what if you have GI issues as well. For example, I have to cook my veggie soup for 6 hours, the only vegetable I can eat raw is lettuce, and I do eat apples, however, I chew on them and spit out the pulp. If I did digest thebpulp, for sure I would have digestive pain for at least a couple of hours. So, a raw vegetable and fruits diet is not necessarily a solution.
Oh my gosh. I was diagnosed with sarcoidosis in my lungs and something like 11 nodes were removed. At one time I was getting these weird lesions on my torso and legs. My primary doctor didn't have a clue what was causing the lesions. The lesions on my skin have gone away. Now my eyes are watering a lot more than usual and my vision is weird.
The legions on your legs is not common for many. It is called Laufgren Syndrome. You will feel the nodules and then they show up. They do cause scaring and it looks like polka dots. It is in my eyes and because of it I have to have collagen plugs put in my eyes every 3 months. Because of the Sarcoidosis not being treated early I was diagnosed with Fibromyalgia and have had Shingles twice. I pray you are doing well. God bless you.
You're doc didn't know bc it is a rare auto-immune disease. We have to be our own best advocates! I'm glad you feel better.
I don’t remove your lip notes when you have Sarcoidosis is your filters for the body
Find a good pulmonologist
There are several suggestions for treating sarcoidosis at home
Consider adjusting your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat.
You could also try different Natural supplements, herbs, and vitamins
Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
(I read these and the reasons they work on Remission Crusher Tactic website )
I have been diagnosed in November 2023 with sarcoidosis. I am currently not displaying any systems on the skin as of yet. I do have a persistent cough since 2017. Had shortness of breath for 4 yrs before I had an savr in September 2022. Will be seeing a specialist sometime in January. Do not have African Canadian lineage.
thanks for summary...studying in med school
EXCELLENT EXPLANATION. TY!!!
Is anemia a symptom also??
I have a question. Sarcoidosis can effect any organ. I have it in my lungs. For the past 2-1/2 years I've been having chest pains. I've had a nuclear cardiology stress test but that came out normal. My chest pains seem to be getting worse but 2 doctors have told me that my heart is fine. It doesn't matter if I'm at rest or working I still get rather bad chest pains. Could sarcoidosis be the cause of this? My primary doctor that I have now doesn't know very much about sarcoids.
You can bet on that. I have same symptoms, all the cardiac work they did was " fine" , till i had a CTA done .[ CT angio] it showed 1 branch in my heart almost blocked and nodules in my lungs. I have chest pain, anxiety, and facial numbness. I have to go to the Cardio this week n later I'll go to the pulmology.
Get your lungs hurt not your heart you need to get a CT done
I have had asthma my entire life went to ER with asthma attack came out with breast lymph and lung nodgles Dr states it's severe cancer... my chest pains come and go being an asthma they put us on steroids on a regular basis it's Poss these nodgles are sarcoidosis I have had all the symptoms my whole life believed to be asthma. If it's not cancer it's definitely sarcoidosis 😮😮😮😮
thank you doctor, very nice and informative video
Yeah my sarcoidosis has returned after 10 years and I have a lot of pain when it's so much pain. I can't bear it and it's a cold pulmonologist and it's going to take me 2 months to get in to see him in the pain is getting worse so I don't know what to do my lymph nodes are swollen underneath my arm and my neck I'm in misery what is a person supposed to do when it's going to take two months to get in to see a doctor
See another fuckin' doctor. Dah!
@@bethwert2606 I have you dumb ass
Take care of YOURSELF go on a diet drink water, exercise,fast
@@Family197-gc6je Doctor said I had water around the heart on Lasix
Thank you very very much
I just wasted 14 mins waiting for the link between "Sarcoidosis Feeds On Poor Eating Habits & High Stress" It was not mentioned at all but it was the heading to this link?
Thank you. That was very informative.
This is good conversation. 👍🏽
thanks
Hi my name is Rebekah i have had sarcoidosis for 4 months now and would love to chat to people with the same thing as me so i can get more information on it please
Ayiiman@yahoo.com
3476662024
Rebekah, how're you doing with your sarcoidosis,..my doctor put me on prednisone for awhile. I'm no more on steroids for so. I don't experience any symptoms. Tell me how're you doing?
Me too! I need some company while I go through this adventure
@@bethwert2606facebook has a couple of groups where there are some very knowledgeable people and also good advice.
Thanks Doctor.
Thank you
i got this scknes ,is realy bad..I got palpitation,high presue,vision problem,namness,all body weeknes,panc ataks,
my live is got hell,after half year one polish doctor say is maeby sarcoidosis,My cheast scan was fine but in blood
they find ACE higher 98ul.I still wait for conferm my diagnosis. i hope they can help me.
thank you!
in 2011 summer, doctor .. saw that on my Xray,, hospital called me last year in summer, had my last visit, I did all tips you said,,
But I did not get any answer from the hospital.... even my GP... the only thing l know the last visit to the hospital... the specialist not the consultant... said, there is no dramatic matter.
I'm at war with sarcoidosis still. Found out I had it in 2003
Nathaniel Mckoy Bey did you find any treatment ?
Please, please don't say it is common. IT IS NOT COMMON> IN FACT< IT IS QUITE RARE & NOT EAST TO TREAT>
There are several things for ways to treat sarcoidosis
Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat.
You could also try different Natural supplements, herbs, and vitamins
Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
(I read these and why they work on Remission Crusher Tactic site )
one woman on youtube used dried papaya god bless her i had it for 3 yrs only
N tell me if ur sarcoidosis cured or not??
My mother lost her battle in 2000 she was 55 years old
That is so sad. I am so sorry. These days they're much more aware of sending you, me, us...to a specialist right away.
Thank you!
Great information.
(You did well...relax 😉)
Sarcoidosis is also caused by black mold exposure!!!
My family and I have it due to an inflammatory response triggered by black mold exposure. I wish I could contact all people affected and ask how many of them have been in contact with black mold.
I too believe the mold has a major part.. I grew up in house that had water in the cellar, my walls would get mold when rainy out. Then as an adult I went to Germany for three yrs. at this house there was mold in walls and in cellar horribly. It was at this point that the pains in the upper back started over the left lung. I now have stage 4 chronic active sarcoid.
Truly!!! I am going to be a subject in a medical journal to show the correlations.
I wish you well in this and hope it brings some clear answers.
Thank you so much.
Question: A systemic granulomatous disease of unknown cause, especially involving the lungs with resulting fibrosis. What is the correct answer? (a) cystic fibrosis (b) sarcoidosis. xxx from JamesBond's student
sarcoid.
por favor, alguien me puede dar algun consejo en español?.Tengo sarcoidosis pulmonar estadio 2
Cómo estás ? Yo hablo español -he vividos varios años en Bolivia-no se si todavía necesitas consejos sobre sarcoidosis pero estaría feliz compartir lo q he aprendido por la experiencia .. también tengo sarco pulmonar estadio 4 pero .
@@elainebrown8572 hola, gracias por responder.Estaba mucho mejor,sin embargo ha reaparecido, estaba tomando micofenolato, creo que es para bajar el sistema immune, y en vista de volver a tener la inflamacion en los gangleos me han añadido de nuevo la prednisona, supongo que esto es asi, rachitas peores y rachitas mejores, hay que tomarlo con positividad 😘
@@elainebrown8572 si me puedes dar algun consejo ke ayude tee lo agradezco, la mia es estadio 2
Tips were helpful but I am staying away from steroids for now.
+Karen Kirkpatrick (KayteCanDo) hi everyone ,if anyone else trying to find out natural ways to cure sarcoidosis try Craffanty Sarcoid Healer Center (just google it ) ? Ive heard some decent things about it and my friend got amazing success with it.
There are several factors in solving sarcoidosis pain at home. One plan I found that successfully combines these is the Remission Crusher Tactic (google it if you're interested) without a doubt the best resource i've seen. look at the awesome information .
Karen Kirkpatrick There are a few components to ways to treat sarcoidosis. One place I discovered that succeeds in merging these is the Remission Crusher Tactic (check it out on google) definately the no.1 plan that I've seen. look at the awesome info .
There are several tips for treating sarcoidosis at home
Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat.
You could also try different Natural supplements, herbs, and vitamins
Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
(I read these and the reasons they work from Remission crusher tactic site )
+Shreeya Maharjan help me
I couldn't get the name of the cream ?!!!
Farida shahnematollahi Clobetasol propionate.
But I’m diabetic
here's a few suggestions for solving sarcoidosis naturally Consider adjusting your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat.You could also take different Natural supplements, herbs, and vitaminsAlso the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.(I read these and why they work on Remission Crusher Tactic site )
There are a few tips for treating sarcoidosis naturally
Consider changing your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat.
You could also take different Natural supplements, herbs, and vitamins
Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
(I learned these and why they work from Remission crusher tactic website )
There are a few ideas for solving sarcoidosis at home
Consider adjusting your Diet - In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat.
You could also try different Natural supplements, herbs, and vitamins
Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
(I learned these and why they work from Remission Crusher Tactic website )
dude spell check please, or go back 2 school
MrLsocool hi everyone ,if anyone else trying to find out natural sarcoidosis cure try Craffanty Sarcoid Healer Center (do a google search ) ? Ive heard some pretty good things about it and my m8 got amazing success with it.
interesting points ,if anyone else wants to learn about sarcoidosis cure book try Craffanty Sarcoid Healer Center (just google it ) ? Ive heard some awesome things about it and my friend got amazing results with it.