POTS and dysautonomia: Sleeping with the enemy - Part 2

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  • เผยแพร่เมื่อ 27 ก.ย. 2024

ความคิดเห็น • 92

  • @healingthroughthehomestead2935
    @healingthroughthehomestead2935 5 ปีที่แล้ว +26

    I am sooooo happy to hear you sharing this information! I have gone in and out of remission from my POTS over the past 5 years (when I was first diagnosed) It is challenging to find a cardiologist who understands and truly CARES about treating this disorder. I have been fortunate enough to find 2 incredible doctors who have helped me incredibly. Keep sharing this information! MORE providers need to be aware of the severity of this condition and that this isn't just "anxiety"!!

  • @abryk2177
    @abryk2177 ปีที่แล้ว +3

    I really appreciate you taking the time to organise this information into terms that can be applied to help. thank you!

  • @kimmiestell849
    @kimmiestell849 6 ปีที่แล้ว +6

    Thanks for the video! I'm looking forward to the rest of the series. You're always so helpful.

  • @judee.baland6526
    @judee.baland6526 2 ปีที่แล้ว +1

    So glad you cleared this up because when I have had nightmares about driving very fast being chased by some villain I wake up with a very fast heart rate. I have gone to ER over it. Then I fear going to sleep because I’m scared it will happen again.

  • @Thebusysuperhuman
    @Thebusysuperhuman 5 ปีที่แล้ว +17

    I love the way you go off and do your own research, which can be very tedious. Many doctors say they don’t have time to look into topics which are a bit left field, thank you for taking the time to learn about POTS and share it.

  • @mellyg5318
    @mellyg5318 5 ปีที่แล้ว +3

    I have EDS and suspect I have POTS. I am so glad I found your channel. I am going to try your tips. I sleep about 10-14 hours per day and feel like I am a walking zombie. Some days are better than others. My balance is off and I have horrible brain fog. I have never fainted, but I have had blurry vision upon standing too fast. I take blood pressure medication and nortriptyline which I suspect are making it worse. I am meeting with my doctors to get off the medications to see if it helps. They recommended a table tilt test in past but i declined. I figured what is the point since there is no cure. It appears to be getting worse. I am going to do the test. I know it will be positive. I heart rate jumps 30 beats when standing and my blood pressure top number drops to 90 after standing.

    • @maryjohnson2878
      @maryjohnson2878 5 ปีที่แล้ว +1

      Melly G , hi! Doing any better??

    • @Dulcimerist
      @Dulcimerist 3 ปีที่แล้ว +1

      I have POTS from my hypermobile type Ehlers Danlos syndrome as well. Tricyclics like Nortriptyline tend to aggravate EDS and POTS issues, as it increases norepinephrine. Have they tried you on Mestinon yet? That's one of the better POTS medications for EDS patients, since it also addresses the digestive motility issues that EDS patients often experience. Mestinon can also reduce fatigue, muscle weakness, and exercise intolerance a bit.

  • @yorocco1
    @yorocco1 3 ปีที่แล้ว +6

    I have tried everything to sleep. Everything; exercise, small meals, hydration, Trazodone, Lunesta, Xanax. Nothing works. I wake up feeling exhausted every morning.

    • @hannabaal150
      @hannabaal150 3 ปีที่แล้ว +1

      Do you eat refined sugar? If you do, stop for 2 weeks - no sweet drinks or jam or that kind of thing. See what happens, it's only 2 weeks. It can't hurt you, and might help. : )

    • @simonram8505
      @simonram8505 3 ปีที่แล้ว

      Same here. I have eds and dysautonomia. Sleep is non existent. I am currently still taking remeron with a bit of an antipsychotic drug to help me fall asleep, otherwise my ans falls into a state that the longer I stay awake the harder it gets to fall asleep. Nothing helps.

  • @birdsong63
    @birdsong63 6 ปีที่แล้ว +2

    Really glad I came across your channel. Most helpful information!

  • @dominadordizon5022
    @dominadordizon5022 6 ปีที่แล้ว +4

    I love your videos, I have been watching your heart videos they have helped me very much, thank you

  • @peggymicsky8607
    @peggymicsky8607 2 ปีที่แล้ว +1

    Drooling over your beauty doesn't take away my respect and gratitude for your knowledge, expertise and wonderful attributes as a doctor. You are exceptional! Thank you.

  • @Josh-pe5pl
    @Josh-pe5pl 6 ปีที่แล้ว +1

    I'll try to get to your Facebook too. Dont want to miss a word of your research and wisdom.

    • @YorkCardiology
      @YorkCardiology  6 ปีที่แล้ว

      thank you!!! yorkcardiology1 is the facebook page

  • @veeek8
    @veeek8 10 หลายเดือนก่อน

    Do I feel refreshed when I wake up? I've woken up every day for the last 20 years feeling like I have the worst hangover ever but without drinking. Tea is my saviour.

  • @darkbluematter1753
    @darkbluematter1753 6 ปีที่แล้ว +1

    Appreciate these videos! Thank you!

  • @cnasaraha.2140
    @cnasaraha.2140 6 ปีที่แล้ว +2

    Thank you!!!

  • @losrelatosdevictoria
    @losrelatosdevictoria 2 ปีที่แล้ว +2

    What about if you have cfs and POTS? How could you improve sleep? I have periods that I can't sleep at all. (2-3 days) What to do?
    I have nausea also. Day drowsiness and fully awake at night.
    My problem comes from a vaccine injury before this (I sleept like a child)

  • @Samjones11203
    @Samjones11203 6 ปีที่แล้ว +1

    Great, thank you! Could you please do a video about flying with POTS? Thanks!

    • @truthtold2
      @truthtold2 6 ปีที่แล้ว +1

      I fly a lot and I will take a half tablet of Melatonin. It calms everything down. As for elevation in flight, it should not cause you any issues. I was researched many years ago and published in the New England Journal of Medicine, I do not clear Epinephrine. So my heart is always going fast, but that was how I was created, so what I have done in my life is remove ALL the things that would over stimulate me. With that said, you can let the Airline know you have a Medical Condition, this you do when booking your flight and they can assist you to the gate and even help you board a flight. Once you land they will be there with a Wheel chair to take you to where ever you need to go. Remember to keep UP your fluids, avoid the caffeine and alcoholic beverages.

    • @Samjones11203
      @Samjones11203 6 ปีที่แล้ว

      Lisa Tesch ok thank you for that, I will do so! Thanks!

  • @cheryladams2764
    @cheryladams2764 4 ปีที่แล้ว +1

    Please more information on Vasovagal syncope treatment. Thanks

    • @Dulcimerist
      @Dulcimerist 3 ปีที่แล้ว

      Here's information about the vagus-stimulating medication Mestinon for treating syncope/POTS issues:
      www.healthrising.org/blog/2016/06/17/mestinon-chronic-fatigue-vagus-nerve-stimulation-exercise/

  • @soulpowerful
    @soulpowerful ปีที่แล้ว

    Thank you so much

  • @TheElmospoon
    @TheElmospoon 6 ปีที่แล้ว +2

    I wonder if this explains why I lucid dream so much. I am often aware I am dreaming and sometimes I can even sense my body inn the bed. However although my heart rate jumps up as I wake up fully it doesn't usually show any big heart rate increase during the night only fitbit. I wonder if this is because the fitbit doesn't take heart rate measurements for long enough and so misses brief big increases, or I it is just not something im experiencing.

  • @tutupuff6359
    @tutupuff6359 ปีที่แล้ว

    Transcript available online somewhere? For me pcp!

  • @bernadettehynes-cafferkey3917
    @bernadettehynes-cafferkey3917 6 ปีที่แล้ว +1

    Looking good Doctor

    • @eppiechan5673
      @eppiechan5673 3 ปีที่แล้ว

      Different styling. Yes, good looking! Lovely & fascinating. Bonus for information seeking plus watching. Haha! 😁

  • @BH-hj7ml
    @BH-hj7ml 4 ปีที่แล้ว +1

    Hi, What is the resting heart rate for people who suffer from pots?

  • @PoTSdysautonomia
    @PoTSdysautonomia 2 ปีที่แล้ว

    THANK YOU 🙏

  • @glendaguilott3765
    @glendaguilott3765 2 ปีที่แล้ว

    Yahusha bless you !!!

  • @maywest0518
    @maywest0518 2 ปีที่แล้ว

    What kind of pain killers are prescribed for dysautonomia?

  • @lisakaylanemorris
    @lisakaylanemorris 6 ปีที่แล้ว +5

    Pots sucks. QUESTION? When I first got pots I had anxiety because it was frightening and I did not know what was happening.. But now I really don't have much panic and my heart rate still goes high quite often... Especially after eating, if I try exercising, walking up the stairs, a warm bath or shower and a warm summer day
    . Etc so this does not seem like a fight or flight response but more like a problem with blood distribution, my o2 will drop if I climb stairs or take warm bath and then my heart rate will go way up.
    How would this fit in with an exaggerated sympathetic response? This is some kind of autoimmunity/metabolic /mitochondria issue in most cases I believe. What we need is O2.

    • @truthtold2
      @truthtold2 6 ปีที่แล้ว +1

      Lisa I would encourage you to take 5 mg of Melatonin. Take it about a hour or so before going off to bed. Because it is natural it will not have any negative effect on you, as other prescribed medications. Also make certain you turn off anything such as the computer, television etc at least a hour before going to bed, as that is as bad as having a cup of coffee before going to bed. If you are having panic attacks no matter where it is, in bed, before taking a flight, traveling whatever again you can take a fourth of a tablet of Melatonin and it will calm you down, if that doesn't work, take a half tablet. Wishing you all the best, Lisa

    • @BBBBBBBBBBBBBBBBBBBBB2
      @BBBBBBBBBBBBBBBBBBBBB2 6 ปีที่แล้ว +4

      Hi Lisa, I also have pots and struggle with the same things as you mentioned above. One doctor I recently saw actually had pots and had to educate herself to cure herself because she could not find any help in the medical world has started helping me. Part of what causes pots is an insane amount of inflammation in the body. Everyday things such as eating, temperature change, and even exercise cause inflammation. For me personally my gut has the worst amount of inflammation and it is causing a chain reaction that leads to other health problems. I strongly suggest for anyone that has pots and feels sick after eating, temperature change, or excising to try and decrease inflammation by 1. Diet (avoid all inflammatory foods and take probiotics) 2. Do blood tests that look for a cell called eosinophil. Eosinophil is an extremely sensitive cell that is often mistaken for allergic reaction. My recent blood test showed that my eosinophil levels were 5x that of normal. 3. All antioxidants are amazing, right now I'm taking zyrtec and a great supplement called n-acetyl cytosine that everyone should take regardless of having an illness or not.
      Also look into how to repair endotheilium as it is responsible for our lack of 02.

    • @lisakaylanemorris
      @lisakaylanemorris 6 ปีที่แล้ว +1

      blake bin great thank you! And I know people have gotten better or recovered so it's nice to hear your health care provider has gotten better too!

    • @shawnise311
      @shawnise311 6 ปีที่แล้ว +2

      Lisa Tesch exposure to heat like hot baths is making your pots symptoms worse. A warm/ hot bath dilates your blood vessels causing more pooling. Cbd will lower ur hr. I like Dutch natural healing brand. Also, try flipping upside down for awhile. It may help. Helps me

    • @khalilimam7931
      @khalilimam7931 5 ปีที่แล้ว

      I experience these too , started taking betaloc 50g twice , proven my symptoms abit.still searching for an answer though ...

  • @sheetalbhanu7566
    @sheetalbhanu7566 3 ปีที่แล้ว

    Dr Sanjay hats off to your Expalinations

  • @chrismunns3480
    @chrismunns3480 3 ปีที่แล้ว +1

    Vitamin deficiencies?

  • @prokillergrape5823
    @prokillergrape5823 2 ปีที่แล้ว

    Are any other pots patients having lower heart rate and then it goes up

  • @garytango
    @garytango 2 ปีที่แล้ว

    👍

  • @susanmarshall8466
    @susanmarshall8466 6 ปีที่แล้ว +2

    really? thank you for the effort, but such generic advise we all know already. so fatigued that 10 min is hard to give up energy for to hear something that is very basic with repeated info from vid 1 too. i hope video 3 will actually get to something I haven't heard or tried yet. and don't be socially isolated, but don't push thru the fatigue...people have no idea about this. we don't want to be isolated, but when you can only feed yourself and can't talk much what is to be done?

    • @chooseaname1423
      @chooseaname1423 5 ปีที่แล้ว +2

      it is helfpul for awareness, for loved ones of people with pots and the newly diagnosed. please don't discourage videos like this.

    • @eppiechan5673
      @eppiechan5673 3 ปีที่แล้ว

      Hi Susan! I have researched the term Dysautonomia from the internet while I have just got the same answer...
      *There's no cure so far* .
      Even so, it's still better than nothing to keep watching Dr. Gupta's lectures for gaining even a bit more understanding, particularly someone like me as *Dysautonomia* a brand new term to me. 😭

    • @SuzanneCheung
      @SuzanneCheung 3 ปีที่แล้ว

      @@eppiechan5673 you can heal if you try

  • @adonnahew
    @adonnahew 4 ปีที่แล้ว +18

    Absolutely brilliant!! I have lived with Dysautonomia POTS for years. And your videos are so well done! Keep up the great work, we need more Drs like you that understand this condition.

  • @peggymicsky8607
    @peggymicsky8607 4 ปีที่แล้ว +7

    Nice shirt, Sanjay! Blue definitely is your color! Great medical explanations that we don't get from our doctors also. Can't imagine my cardiologist talking about Pots or doing free videos! You're a rare bird, Doc and I hope you're rewarded in kind!

  • @peggymicsky8607
    @peggymicsky8607 3 ปีที่แล้ว +4

    I keep coming back to listen again and again to stay aware and learn all I can about heart problems. Plus I like looking at you! You get more handsome every time I watch. You're such a beautiful man, Sanjay. 🤗

  • @zulemaR11
    @zulemaR11 4 ปีที่แล้ว +2

    Hi Dr. Can you please tell me if my low blood pressure is normal at night while laying down. It can fall to 90/55. Is this normal? I cant sleep because I worry about this.

  • @Kate-rv6kx
    @Kate-rv6kx 3 วันที่ผ่านมา

    My blood sugar dips no matter what I do. I see a lot of comments on pots groups where people started getting either high or low blood sugar when their pots started. Is there a link?

  • @patriciabennett1819
    @patriciabennett1819 6 ปีที่แล้ว +3

    Dr. Sanjay my son is suffering from pots.He is constantly tired, he does yoga to try to help .Do you think that is ok?He is tall and he needs salt.He is not depressed. Thank you so much for these tips, much obliged. Thank you for video and blessings and greetings and hugs.xx

    • @BBBBBBBBBBBBBBBBBBBBB2
      @BBBBBBBBBBBBBBBBBBBBB2 6 ปีที่แล้ว

      take him off of salt supplements asap. Look into endotheium repair. and how to reduce inflammation. (strongly recommend blood work that looks for inflammation the gut and iron levels)

  • @CalmVibesVee
    @CalmVibesVee 6 ปีที่แล้ว +2

    Your videos are so helpful. Thank you !

  • @bb-zo8iy
    @bb-zo8iy 4 ปีที่แล้ว +1

    i have tried excising and can not do it. Now maybe i am severe and i do have other heart issues but i am wondering if there is a connection with lyme disease or if this has been looked at?

  • @themaximumwin
    @themaximumwin 4 ปีที่แล้ว +3

    This is so interesting! Once I fell pregnant I started sleeping more and felt like I was starting to get more energy through the day and then I was noticing my heart rate was coming down more and I was able to move 10 times more than before I was pregnant. Before I got pregnant I was struggling to sleep, I’d wake up so anxious and scared to get up and id always struggle to fall asleep.

    • @simonram8505
      @simonram8505 3 ปีที่แล้ว +1

      No relation to dysautonomia

    • @themaximumwin
      @themaximumwin 3 ปีที่แล้ว

      @@simonram8505 what's no relation? I was diagnosed with pots and after during my pregnancy and still to now, I'm cured of it.

    • @simonram8505
      @simonram8505 3 ปีที่แล้ว +1

      @@themaximumwin I am not saying that you're not cured, just that it's most probably temporary disturbance in otherwise healthy Autonomic nervous system, not actual dysautonomia which is genetic and of course can't be cured by a pregnancy.

    • @themaximumwin
      @themaximumwin 3 ปีที่แล้ว +2

      @@simonram8505 there's a pots recovered group on Facebook, fortunately, it can be "cured", and this is coming from people who have suffered for years or from young age. Just have to find the right diet, exercise program, and maybe medication to get to the recovery point. It is not impossible fo live a full life if you have pots.

    • @Borka642
      @Borka642 2 ปีที่แล้ว

      @@themaximumwin hi! Can you pls share what helped with you the most and also where can I check for more information about people who cured it

  • @jeffreyjeff993
    @jeffreyjeff993 2 ปีที่แล้ว

    EXPLAINED TOO MUCH. WHY NOT GO FOR THE SOLUTION?

  • @lorenzoflores5406
    @lorenzoflores5406 6 ปีที่แล้ว +1

    Can you do a video on cuplet pvcs and triplets the differences

  • @frogger2513
    @frogger2513 5 ปีที่แล้ว +6

    Can high levels of stress like many combat deployments and stressful work cause mild pots or autonomic nervous system? Ive had a heart attack with completely clear arteries no calcium or cholesterol build up no heart disease whatsoever. Im an athlete. Been physically fit all of my life I eat a pretty clean diet and hadn’t had alcohol for 8 months prior to the MI. I now have occasional angina and was diagnosed with bad or low heart rate variability.

    • @juless2694
      @juless2694 2 ปีที่แล้ว

      How's that possible? Blood clot?

  • @andrewgreenwood1577
    @andrewgreenwood1577 6 ปีที่แล้ว +1

    Hi Sanjay. I have had palpitations for as long as I can remember now. They are very hard hitting and the way you described a SVT sounds a Bit like what I get. I could be laying down, walking, driving. Any time of day. My heart beats very hard and I start sweating and feel like I'm going to wee, this can last up to 20 minutes at a time on and off. After it has finally gone I am exhausted. Any advise please

    • @truthtold2
      @truthtold2 6 ปีที่แล้ว +1

      Andrew, If I were you I would get a Pulse Ox. It is a small device you can get at any Walgreens or even Walmart where it will take your pulse and oxygen levels. Its helpful to know what your actual number is. I like this one as it has a Alarm that will go off, when it goes too high. www.amazon.com/Innovo-Fingertip-Oximeter-Plethysmograph-Perfusion/dp/B01NATPX6I/ref=sr_1_5_a_it?ie=UTF8&qid=1517692328&sr=8-5&keywords=pulse+ox

    • @haguitmarciano4107
      @haguitmarciano4107 5 ปีที่แล้ว +1

      Thanks for posting Andrew, I feel the same way too! I've been reading many comments, and I almost rarely see people who suffer even laying down. This happens to me too, I get episodes when I'm laying down and it can last up to 30 min. It is so validating to hear that I'm not alone and it's not "in my head"

  • @theratpopess8421
    @theratpopess8421 6 ปีที่แล้ว +1

    I have anxiety and have gone to the er on multiple occasions scared of heart related issues however recently i've been experiencing nausea and i've been feeling unusually (unusual to me anyway) tired after i've woken up and taken my medication my family believes it's my medication i'm worried it's different I've seen some of your videos about the heart and felt like asking

    • @angelinacampos4553
      @angelinacampos4553 6 ปีที่แล้ว +1

      TGV I am trying to figure out if this episode is anxiety, panic attack or low blood pressure. I can kind of feel it coming until BOOM. Then it's horrible. I wonder if because of POTS is adrenaline rush/surge? How do we narrow this down to see if it's anxiety and what anxiety pills are safe for low blood pressure?

    • @Dulcimerist
      @Dulcimerist 3 ปีที่แล้ว +1

      Have they tried you on a nightly dose of Clonidine or Guanfacine to reduce your anxiety and to improve sleep? These two help by telling the body not to release so much norepinephrine and adrenaline into circulation, which in turn calms the sympathetic nervous system ("fight or flight" response). This also makes Clonidine and Guanfacine highly effective at treating POTS - especially the hyperadrenergic type!

  • @MuusiKFan
    @MuusiKFan 5 ปีที่แล้ว +4

    Anyone else suffers from huge swings in Blood pressure very very high or low, extreme fluctuaitons in heart rate very high to very low and wild fluctuations in oxygen sat lowest was 62? Can happen when standing up, always when eating even small meals, and more recently reacted to lamb loins so brutally, I stopped eating it.

  • @allysaunooke129
    @allysaunooke129 5 ปีที่แล้ว

    I have had a huge increase in pvc/pacs with POTS, is that normal? Because I didn’t have them before I was diagnosed and I’ve been checked for heart blockages/blood clots/and structural heart issues and everything came back perfect.

  • @betsaification
    @betsaification 3 ปีที่แล้ว

    I first feel dizzy is that pots? I wake up when I move my head to get up I already know or feel dizzy and I I get up I feel heart rising then what I do I sit in my recliner until passed but if I try to lay down I can’t cause again I will feel dizzy can you tell me if that’s pura or hypotension ???? What is it? Or what’s the difference between pots and hypotension? Thanks 🙏🏽

  • @peaceonearth24100
    @peaceonearth24100 3 ปีที่แล้ว

    Thank you 🙏 this is a blessing to me, finally someone, who understands, I really felt at times with this syndrome, that I was being spitballs attack during sleep, so often , sleep being broken by adrenaline rush, like my life was in danger. I’d try to slow breathing and meditate. Go’s bless you for your understanding.

  • @bethany9563
    @bethany9563 4 ปีที่แล้ว

    WOW thank you. Ur so so helpful!!!

  • @janicejohnson134
    @janicejohnson134 6 ปีที่แล้ว +6

    I’ve been looking forward to this video
    I have several severe disabilities including POTS. I don’t have low mood. I don’t have mental health issues. I can’t exercise properly cos I’m bedbound (although I do some recommended stretches , etc). I socialise online because I can’t get out. I admin a few Facebook groups with over 1,000 members for people who are bedbound with severe neurological disorders and many of them have POTS
    Can you make video that can help us? Bedbound (unable to exercise beyond simple stretches), no mental health issues (not depression). Many are intolerant to drugs, and doctors will not prescribe sleeping tablets. Can you give advice on how to get better sleep in order to help reduce symptoms of POTS? Many thanks

    • @truthtold2
      @truthtold2 6 ปีที่แล้ว

      Janice, oh goodness your trigger is FB and when you have POTS you sincerely are already overly stimulated. I responded to another person above in regards to her question, and as a person who was born with a Severe Form of POTS I can assure you what I have learned has been very helpful. I would suggest Melatonin, it is fairly reasonable in its costs and depending how sleep deprived you are, you only really need a half of a 5 mg tablet, because Melatonin is Natural it will not counter with any other medications etc that you may be taking. I will relax you, and help you to get the sleep you need. I turn off ALL electrical devices a good hour before bed and read. I also keep my room very dark and pretty cool. Warm or Hot temperatures are not good for those who have POTS. I hope this will help you, wishing you all the best, Lisa

    • @BBBBBBBBBBBBBBBBBBBBB2
      @BBBBBBBBBBBBBBBBBBBBB2 6 ปีที่แล้ว +4

      Hi lisa I have pots aswell and took melatonin to sleep. However I just traveled to see a doctor who used to have pots herself and is now fine and she is very against melationin (as well as salt. shocker, I know) use for people with pots. If it works for you great but just thought id share my two cents in case it might worsen some one elses condition because it certainly did mine.

    • @gravitystr
      @gravitystr 5 ปีที่แล้ว +4

      blake bin sorry to ask so much later but why was she against salt? i’m genuinely curious i have pots and i’m trying to learn more

    • @chooseaname1423
      @chooseaname1423 5 ปีที่แล้ว +2

      @@BBBBBBBBBBBBBBBBBBBBB2 how did she get better?

    • @Dulcimerist
      @Dulcimerist 3 ปีที่แล้ว +1

      Sorry you're bedbound. Do you happen to have Ehlers Danlos syndrome as the underlying cause of your POTS and other health issues?
      Have they tried you on Mestinon to address your POTS and exercise intolerance?
      www.healthrising.org/blog/2016/06/17/mestinon-chronic-fatigue-vagus-nerve-stimulation-exercise/

  • @bethany9563
    @bethany9563 4 ปีที่แล้ว

    Wow. Wow. Wow. Just thank you 😊