I am always impressed with your ability to discuss difficult topics well. I wish you a long, healthy, cancer-free life with much happiness. I am sending love and hugs. ❤❤
Yes, thanks for sharing . ❤🙏🤗 Always scary coming into the testing. It seems like a ticking time bomb. I've had 2 different primary lung tumors, with 3 years remission after each so far.... had surgery, chemo and radiation. I talk like you about dying. Praying that you've got this and remain in remission forever!
Your videos are so helpful. I'm really struggling with my new life. But good to know that my existential panic isn't mine alone. It's the ultimate isolated bubble. Nobody can see in.
At the risk of another cliche, it really does get easier. We’re pretty adaptable beings, and eventually you’ll learn to laugh at (with?) the panic in your head. But yeah… the isolation is wild. It’s just not a relatable scenario to most people.
Great video. As a 4 yr stage 4 colon cancer patient, I find myself living scan to scan every three months which brings significant anxiety… this mental torture of never ending tests, scans, MRI’s and doctor appts seems much worse to me than the actual cancer treatments themselves…
Yep. Today is 7 years exactly for me as a cancer patient. I had my quarterly PET to celebrate. Fun! Thanks for sharing your story, too - I obviously completely relate. Hang in there ❤️
Yep-need to constantly remind myself to live and enjoy this life in the ways I can while I still can, because life's too short to spend being sad. Although, it's hard in the winter when it's cold and dark. Also whaddup, I have hip problems from treatment too. Getting replacements this year hopefully
Yeah it definitely ebbs and flows; nothing wrong with being sad or mopey at times about something that truly warrants it. And to quote a doctor directly: “You have the hips of an 80 year old” - I’m a lock to have them replaced.
Thank you so much for the update on immunotherapy. I am shocked about the severe side effects you have. Do you know which kind they used? I am reading about the T cell therapy and the new clinical trials. Overall it looks very promising. I am on my third paclitaxel and it is definitely working for me. No side effects, just a bit tired sometimes. Thanks again, Mike. Wishing you and everybody in your community well.
I have done opdivo and then opdivo/yervoy combo (4 years in between each). I have had pretty substantial autoimmune side effects, but the prevailing theory is that usually coincides with the treatment working well. I have gotten to NED twice, so kinda... but I've also had recurrences, so kinda not. I didn't really have too bad of day-to-day side effects while on either - just when my organs got attacked lol
@Linn_Laugh_Love Thank you very much for sharing all this knowledge. As it stands now I will be treated with cabozantinib (Cabometyx) plus nivolumab (Opdivo) . Keep you posted.
I am always impressed with your ability to discuss difficult topics well. I wish you a long, healthy, cancer-free life with much happiness. I am sending love and hugs. ❤❤
Yes, thanks for sharing . ❤🙏🤗
Always scary coming into the testing. It seems like a ticking time bomb. I've had 2 different primary lung tumors, with 3 years remission after each so far.... had surgery, chemo and radiation. I talk like you about dying. Praying that you've got this and remain in remission forever!
I hope we both keep the coast clear. Thanks for sharing ❤️
Your videos are so helpful. I'm really struggling with my new life. But good to know that my existential panic isn't mine alone. It's the ultimate isolated bubble. Nobody can see in.
At the risk of another cliche, it really does get easier. We’re pretty adaptable beings, and eventually you’ll learn to laugh at (with?) the panic in your head. But yeah… the isolation is wild. It’s just not a relatable scenario to most people.
great video Mike, thanks for making
Heyyyyy thanks for watching 👊🏻
Great video. As a 4 yr stage 4 colon cancer patient, I find myself living scan to scan every three months which brings significant anxiety… this mental torture of never ending tests, scans, MRI’s and doctor appts seems much worse to me than the actual cancer treatments themselves…
Yep. Today is 7 years exactly for me as a cancer patient. I had my quarterly PET to celebrate. Fun!
Thanks for sharing your story, too - I obviously completely relate. Hang in there ❤️
Yep-need to constantly remind myself to live and enjoy this life in the ways I can while I still can, because life's too short to spend being sad. Although, it's hard in the winter when it's cold and dark. Also whaddup, I have hip problems from treatment too. Getting replacements this year hopefully
Yeah it definitely ebbs and flows; nothing wrong with being sad or mopey at times about something that truly warrants it. And to quote a doctor directly: “You have the hips of an 80 year old” - I’m a lock to have them replaced.
I often say to myself upon diagnosis my life was over, and in a way that’s true regardless of how long I live- however, I still enjoy my time… 👍
Thank you so much for the update on immunotherapy. I am shocked about the severe side effects you have. Do you know which kind they used? I am reading about the T cell therapy and the new clinical trials. Overall it looks very promising. I am on my third paclitaxel and it is definitely working for me. No side effects, just a bit tired sometimes. Thanks again, Mike. Wishing you and everybody in your community well.
I have done opdivo and then opdivo/yervoy combo (4 years in between each). I have had pretty substantial autoimmune side effects, but the prevailing theory is that usually coincides with the treatment working well. I have gotten to NED twice, so kinda... but I've also had recurrences, so kinda not.
I didn't really have too bad of day-to-day side effects while on either - just when my organs got attacked lol
@Linn_Laugh_Love Thank you very much for sharing all this knowledge. As it stands now I will be treated with cabozantinib (Cabometyx) plus nivolumab (Opdivo) . Keep you posted.