Cancer Patient Story | Dealing with Long-Term, Ongoing Treatment & Ileostomy Bag Tips (Video 2/3)
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- เผยแพร่เมื่อ 28 มี.ค. 2021
- Justine shares her in-depth, ongoing cancer story with us, getting diagnosed with stage 3B then stage 4 rectal cancer at just 30 years old.
FULL STORY/TRANSCRIPT: thepatientstory.com/cancers/colorectal/rectal/justine-l
If you or a loved one has to deal with ongoing treatment and feel like you continue to encounter only bad news, Justine's voice may be especially impactful. Despite having to go through more treatments after the metastasis of her cancer, she has held firmly onto trying to look at silver linings - but only after giving herself space to feel upset. Check out her three-video series:
Video 1: How I Got Diagnosed
Video 2:
- Going Through Multiple Treatments (Chemoradiation, surgeries, chemotherapy (oxaliplatin & FOLFOX), targeted radiation therapy or SBRT, ablation, Y90, and more chemo)
- Dealing with Ileostomy Bag
Video 3: Navigating Life After a Cancer Diagnosis
What an amazing 🤩 young woman. I am completely humbled. I sent this to my son who suffers from a mental illness and this shows him how you can live with severe illness and still function. I am stunned at her attitude. She is an outstanding human being. Love ❤️ from Toronto 💕💕
Denise, could not agree more - she really is incredible ❤️ . Sending you love back to Toronto! -Stephanie
@@ThePatientStory how do we find part 3 and how is she today 🙏🏻🙏🏻❤️❤️
When you can't have anyone around. Can a person sit outside a window and talk to them on a cell phone? This way, you're really not alone?
The ileostomy was the biggest surprise for me as far as the maintenance. We had one ostomy nurse for a very large area and she retired right after my colon resection. I didn’t think of social media for help at the time but my husband paid attention the one and only time the ostomy nurse came by to help. Stomach acid would get on the skin around the stoma and would eat it up so it stayed sore all the time. Using a big cup container was convenient to use when emptying the bag. The waste from the ileum is very different from the fecal matter that is in a colostomy bag. Dealing with the ileostomy was traumatic and hard to figure out what clothes to wear, plus it made churning noises all the time so I was cautious about going into public. I was diagnosed with metastatic stage 4 colorectal cancer which had spread to my liver and lymph nodes. I was not a candidate for an ablation because the cancer in my liver was too close to the portal vein, so the whole right lobe of my liver had to be removed along with the gallbladder and 27 lymph nodes. I did get a brand new right liver lobe and my ileostomy was reversed so I was happy. After chemo, 30 doses of radiation numerous surgeries I survived advanced stage colorectal cancer and so can this beautiful, strong person. It’s a tough journey but it can be done. I’ve been NED from stage 4 colorectal almost 8 years now.
Thank you for your post! It gives me hope!!
So happy for you. I can’t imagine what you went through but you are one strong lady. Stay healthy.
@@Sedgies thank you for the kind words and well wishes! I wish you peace and health as well!!
I had stage 4 sigmoid CA. 15 cycles of Xeloda. No other treatments. Colostomy. Cancer invaded my bladder thus stage 4. It's been 17 months. I'm an RN wasn't too bad . Set up an arm on my bed with a 6" square mirror. DVT in January was down the whole leg. No treatment because my bladder bleeding. Still very weak. My wife left me when she found out I had CA.
My advice... skip the doctors recommendations and instead buy the book
" how not to die". A UCLA CANCER MD TOLD me to read it. Lots of info. 600 pages. Written by an MD
I am SO sorry to hear your spouse deserted you. Hugs and prayers for better days.
my prayers are with you
You're in my prayers
That book is a lifesaver.
Please help me
What a strong young Lady
Well spoken and very calm attitude
Couldn't agree more!
Toughest little gal I've ever seen. My prayers are with her. I bet you love that Golden Retriever. Stay positve my dear.
I’m having a colon resection for stage 4. It gave me information and hope. Thank you.
Sami, so glad to hear it. If you are looking for more CRC stories: www.thepatientstory.com/cancers/colorectal/ . Thinking of you as you undergo the surgery.
Sami, prayers for your colon resection, I had one from my bowels bursting, I spent a month and a half in the hospital and had the bag for 5 months and then was put back together.
Now I'm on chemo for multiple myeloma, been on it a year now.
Getting a bone marrow biopsy this Friday to see how my chemo is working. God Bless you!
I wish you the best outcome 🙌
Hi Stephanie...
Just came across your channel and all of these inspiring stories.
I'd love to talk with you somehow. I do not know if you also talk to people about their stories or just do these videos.
I too, have a story! I have Stage 4 Metatastatic Melanoma. Back in Sept of 2019 I was diagnosed and told I had ONE month to live by an emergency brain surgeon! Rushed to hospital after going unconscious awoke in ICU news I from major brain surgery, tumor removed size of walnut. My whole life changed quickly. Very LONG story! Doctors are amazed I'm Still HERE fighting one day at a time.
NOW stable, but disabled from treatment and the side effects. I had some questions. Not great with typing, due to serious Nueropathy in hands
Would love to speak with you!
Love and light
Take care
Priscilla
Hi Priscilla, yes, please get in touch with me by emailing me here: stephanie@thepatientstory.com. Thank you so much! -Stephanie
You sound amazing 🤩 Priscilla! I’d love to hear you telling your story to Stephanie
Hi Priscilla! I apologize if I missed it but I don't believe I got an email. Again, stephanie@thepatientstory.com. Thank you so much!
You are amazing and I hope you beat this and live a long happy life
Anisa, thank you for such positive words and your kindness! -Stephanie
Stay strong.🙏
Thank you for sharing ❤
Thank you for sharing your story
Thank you for watching!
Blessings for better days ahead
You are so courageous
She’s so strong. Thanks for sharing! ❤️
Sue, thank you for your kind words! Justine is definitely incredible.
I really enjoyed the questions. So spot on and helpful.
Thank you so much for leaving such kind words! ❤️ -Stephanie
Thank you for sharing your experience. Prayers for your recovery🙏🙏⚘
Thank you, Mitzi, for your well wishes! We'll be keeping up to date with Justine's journey for sure. -Stephanie
You are very strong, my sister is going through the same . May God continue to bless you through your journey with strength support and long life.
God bless you! I love my ileostomy so my LAR can heal. Not looking forward to retraining my bowels…yet again. This time with only tiny section of rectum left. The body and medical science are both amazing!
Godbless you ❤❤
Just now seeing this 3/5/2021 hope you recovered! I just went through surgery myself 3/2/2021 to remove a tumor in my colon
William, hope you are also well recovered! Thanks for your well wishes.-Stephanie
@@ThePatientStory I'm ok physically, mentally its a roller coaster everything happened fast, tough to digest. I go in 2wks for a follow up, that's when I'll get the results of the pathology test. That's what's stressing me out. Other than that I'm good
With tremendous sadness and broken hearts, we announce the passing of Justine Leah Luebke, 34, of Missoula, MT. Justine passed away on November 16, 2022, in her childhood home, after a 3 year and 9 month hard fought battle with cancer
🙏
RIP
Did she die?
Why the long excision down your abdomen
Her large bowel was necrotic as was a portion of her small bowel so they had to be removed