Worst time of my life before diagnosis! Took 2 years to get it! Gained 80 lbs, moon face, buffalo hump, skin thinning, headaches, sleep disturbances, blood pressure 200/100 ( put on 5 meds, still high)! Was told just getting older 😮 finally diagnosed self with Cushing and demanded testing! Raging Cushings! Large tumor on adrenal gland. Had it removed along with partial kidney removal. Do not give up, keep searching for answers. Have never felt completely cured but tons better!
I put on 85 lbs in 2 years!!! Doctors keep telling me to lose weight!! I am a wreck!! I have bone loss, excessive fatigue, sweating, insomnia!!! I broke my back last summer because of bone loss!! I have scoliosis!! I kept telling my doctors something was wrong. They kept saying I was over eating & lazy😢 This is inspite of the fact that I have had an adrenal gland tumor for over 5 years!!! They have been gaslighting me!!!🤬🤬🤬 Because of cancer & severe wreck, I have been given large doses of cortisone for the past few years to top it off!! I had a complete meltdown last month, a doctor finally listened to me & diagnosed me with Cushings!!! Hopefully I get the tumor removed soon!!! Your story sounds so much like mine!!!😢😢
@@rmartinez4165 it sure does! I feel so bad for you! I made them check me too! We have got to advocate for ourselves! Praying for you, keep me informed!
I am 3 years in remission of cushings syndrome.. if are experiencing any of the symptoms mentioned PLEASE get it checked immediately out to eliminate any long term threats
@@AdnanKhan-dg8qt I had lots of tests, I was diabetic, hypertensive and over weight amongst most things, i just had very a vigilant consultant who referred me to a better hospital to get tested and after numerous MRIs and CT scans they found tumour on the pituitary gland, then i had surgery and I've been fine, the only lasting effect is that I'm not as strong as before, but I'm going to the gym constantly to better my fitness.
@@kehindesobowale8851 so it can be missed on first scans? How could you be taken seriously if they don't see it first im worried this is what will happen
@Elysian Bridgetown Accommodation that's the thing you don't know, I just had a very vigilante doctor who tried different options because they kept upping the dosage of my blood pressure meds, it was almost like the process of elimination, then she just said it might be rare but let me test you for cushings because i was all sorts of meds that weren't helping and she was right.
Get your cortisol tested. I've had to go through almost a year of testing before they were able to exclude the other things, like PCOS etc. To be fair, i am in the early stages. Cannot sleep, exhausted all the time, gain weight despite being a low calorie diet (with a dietician) and exercising a lot. But my glucose, A1C, and insulin are fine.
I think i have this.. terrible terrible fatigue ,hairloss and weight gain..but i dont have the buffalo hump. my cortisol is high at 8am..how do i know if its in my brain or adrenals? Thyroid antibodies High and i also have insulin resistence.
Try to Get an special MRI of the Pituitary gland. Regular brain MRI doesn’t show pituitary tumors. So ask an Endocrinologist to give you a prescription for Pituitary tumor MRI
Getting an MRI today because I recently was diagnosed with PCOS but something is not matching up and they think I could have a tumor. I have so many symptoms of having some kind of pituitary tumor so I can't wait to find out. I had regular periods my whole life. Then they stopped. I am having other symptoms. So I can't wait to find out if I have this brain tumor.
No you get it wrong, he means the normal cortisol production in the body is suppressed by glucocorticoid medications ( in the patients with asthma or other conditions taking glucocorticoids) so a sudden stoppage may lead to serious problems, therefore he recommends gradual decrease of the doses instead of unexpected stopping, so normal cortisol productions in the body functioning again.
Im 14, i have not much fat but on my stomace upper and lower l, thighs and calfs but my arms are skinny, my skin bruises easily but i have sensitive skin, purpley strech marks on my thighs, weaknes is upper arms and mood swings and a couple more but idk if it this or something simular or js hormones
If it’s not Cushing’s, look into Ehlers-Danlos Syndrome, as well as Small Fiber Neuropathy. There’s quite a bit of overlap. So sorry you’re not feeling good. Hugs~
hey, pharmacy student here, could you share your sources? I have to do an assignment about cushings but the teacher is 1 week late on the theory classes so i'll only have this class after i have to submit the assignment, and the class is where the teacher send us links and articles for us to read
I'm wondering about something. If I could get some advice. I am having a blood cortisol test AM and PM. If i come home after the AM test and sleep for 2 hours, would that affect the PM test results? Thanks for any help that could be offered
These symptoms may indicate a serious underlying condition; it's crucial to consult with a healthcare professional for a comprehensive evaluation and appropriate treatment plan.
I know a couple of people who have it who are thin and have no Buffalo hump. Best to just get it all evaluated by a doctor. Remember an individual might not show all symptoms and only some. Hope things go well for you!
They usually cure it by surgery because that eliminates the cause. There's also something called pseudo-cushings that has the same symptoms,but they don't know the cause, and those often get medication. The meds are pretty invasive as well, though, as you're still messing with hormones.
Not cure, but manage symptoms, usually. There are many causes of both cushings disease and syndrome and the right diagnosis will result in different cure rate outcomes. It’s complicated but do able.
I'm sorry to hear about your hamster's condition; Cushing's syndrome can be challenging to manage, but with proper veterinary care, there are effective treatment options available. ❤️
yoooo i think ive have kushing syndromem for a hot minnn hahahaha if you know what i mean. get it. haha thanks :) im goging to search up graves disseasrs >:D hahah awesome stuff tongiht ok
Worst time of my life before diagnosis! Took 2 years to get it! Gained 80 lbs, moon face, buffalo hump, skin thinning, headaches, sleep disturbances, blood pressure 200/100 ( put on 5 meds, still high)! Was told just getting older 😮 finally diagnosed self with Cushing and demanded testing! Raging Cushings! Large tumor on adrenal gland. Had it removed along with partial kidney removal. Do not give up, keep searching for answers. Have never felt completely cured but tons better!
I'm sorry to hear about your struggles, but I'm glad you advocated for yourself and found some relief. Your perseverance is inspiring.
did you ever use Ozempic?
I put on 85 lbs in 2 years!!! Doctors keep telling me to lose weight!! I am a wreck!! I have bone loss, excessive fatigue, sweating, insomnia!!! I broke my back last summer because of bone loss!! I have scoliosis!! I kept telling my doctors something was wrong. They kept saying I was over eating & lazy😢 This is inspite of the fact that I have had an adrenal gland tumor for over 5 years!!! They have been gaslighting me!!!🤬🤬🤬 Because of cancer & severe wreck, I have been given large doses of cortisone for the past few years to top it off!! I had a complete meltdown last month, a doctor finally listened to me & diagnosed me with Cushings!!! Hopefully I get the tumor removed soon!!! Your story sounds so much like mine!!!😢😢
@@rmartinez4165 it sure does! I feel so bad for you! I made them check me too! We have got to advocate for ourselves! Praying for you, keep me informed!
I am 3 years in remission of cushings syndrome.. if are experiencing any of the symptoms mentioned PLEASE get it checked immediately out to eliminate any long term threats
What symptoms did u have specifically and how did u get it tested?
@@AdnanKhan-dg8qt I had lots of tests, I was diabetic, hypertensive and over weight amongst most things, i just had very a vigilant consultant who referred me to a better hospital to get tested and after numerous MRIs and CT scans they found tumour on the pituitary gland, then i had surgery and I've been fine, the only lasting effect is that I'm not as strong as before, but I'm going to the gym constantly to better my fitness.
@@kehindesobowale8851 so it can be missed on first scans? How could you be taken seriously if they don't see it first im worried this is what will happen
@Elysian Bridgetown Accommodation that's the thing you don't know, I just had a very vigilante doctor who tried different options because they kept upping the dosage of my blood pressure meds, it was almost like the process of elimination, then she just said it might be rare but let me test you for cushings because i was all sorts of meds that weren't helping and she was right.
I have all of them.
this is so informative. this might explain everything for me
Omg, is this my solution after 49 years of suffering?
Wow, me too. My life has been made a mess by this. Doctors are of no use whatsoever at all.
Get your cortisol tested. I've had to go through almost a year of testing before they were able to exclude the other things, like PCOS etc. To be fair, i am in the early stages. Cannot sleep, exhausted all the time, gain weight despite being a low calorie diet (with a dietician) and exercising a lot. But my glucose, A1C, and insulin are fine.
Make an appointment ASAP, if you live in the United States: Donald is going to be in office. Good luck, we've got the same thing. ❤
Thank you for your excellent video explaining Cushing 🙏❤️
Glad it was helpful!
I think i have this.. terrible terrible fatigue ,hairloss and weight gain..but i dont have the buffalo hump. my cortisol is high at 8am..how do i know if its in my brain or adrenals? Thyroid antibodies High and i also have insulin resistence.
I would ask to get MRI of your brain and abdomen with and without contrast, it’ll help to check if there are tumors on your pituitary, adrenals, etc.
Aurora you feel anxious all the time and hungry all the time
Try to Get an special MRI of the Pituitary gland. Regular brain MRI doesn’t show pituitary tumors. So ask an Endocrinologist to give you a prescription for Pituitary tumor MRI
Your animations are amazing. Do you creat them?
Awesome explaination
As someone who has been on heavy steroids for 16 years straight and has a hump i am intruiged
I need to see a doctor ASAP
Go see a Endocrinologist.
Getting an MRI today because I recently was diagnosed with PCOS but something is not matching up and they think I could have a tumor. I have so many symptoms of having some kind of pituitary tumor so I can't wait to find out. I had regular periods my whole life. Then they stopped. I am having other symptoms. So I can't wait to find out if I have this brain tumor.
Please update us. Wishing you the best ! I am on the same boat as you….I am getting tested tomorrow. Wishing you the best!
@@Salai_Dante no tumors. So that's good but I'm still trying to figure some stuff out.
@@Salai_Dante let me know how it goes for you
@@echastee will do, it could be something else you know? just keep pestering your docs, your a paying customer!
Seems like I have both so that's fun
5:17 pleaseeee someone explain i dont get it
how glucocorticoids medications are used in suppressing the disease
No you get it wrong, he means the normal cortisol production in the body is suppressed by glucocorticoid medications ( in the patients with asthma or other conditions taking glucocorticoids) so a sudden stoppage may lead to serious problems, therefore he recommends gradual decrease of the doses instead of unexpected stopping, so normal cortisol productions in the body functioning again.
Im 14, i have not much fat but on my stomace upper and lower l, thighs and calfs but my arms are skinny, my skin bruises easily but i have sensitive skin, purpley strech marks on my thighs, weaknes is upper arms and mood swings and a couple more but idk if it this or something simular or js hormones
Hey any update regarding this ??
If it’s not Cushing’s, look into Ehlers-Danlos Syndrome, as well as Small Fiber Neuropathy. There’s quite a bit of overlap. So sorry you’re not feeling good. Hugs~
Hope you’re doing better now! It sounded like Cushing’s from your description a year ago. Wishing you many blessings❤
Could you share sources or articles used in this video, please.
hey, pharmacy student here, could you share your sources? I have to do an assignment about cushings but the teacher is 1 week late on the theory classes so i'll only have this class after i have to submit the assignment, and the class is where the teacher send us links and articles for us to read
I'm wondering about something. If I could get some advice. I am having a blood cortisol test AM and PM. If i come home after the AM test and sleep for 2 hours, would that affect the PM test results? Thanks for any help that could be offered
I have many symptoms specifically high blood pressure and kidney pain and irritability with severe weight gain and retinal vein occlusion
These symptoms may indicate a serious underlying condition; it's crucial to consult with a healthcare professional for a comprehensive evaluation and appropriate treatment plan.
@@MedicalCentric after one year of examination they don’t find anything in Germany! They have not checked for cushing and many other possibilities
Anyone diagnosed with this who didn't have moon face and buffalo hump ?
I know a couple of people who have it who are thin and have no Buffalo hump. Best to just get it all evaluated by a doctor. Remember an individual might not show all symptoms and only some. Hope things go well for you!
Thanks for the video
I have Cushing's and I'm 16.
Stay in there brother I wish for your better health .
Hey how r u now?
Fasting and keto/low carb can help ....or waterfast😉
I think i have Cushing syndrome bcz i have buffalo hump. Is exercise and diet can help to fight with this disease ?
Insulin resistant can also cause bufalo hump
Good effort keep it up
I have a lot of worries because I’m a single mom 😢 don’t know where my son would go if I need surgery.
Can you arrange for him to stay with family? Depending on your country there maybe a hotline that can provide advice or support.
Thanks for your information
@abdirashidabdiwahab8927 You're welcome! If you have any more questions or need further information, feel free to ask. Take care! 😊
Is it possible to cure cushing disease with medicines????
Yes.
They usually cure it by surgery because that eliminates the cause. There's also something called pseudo-cushings that has the same symptoms,but they don't know the cause, and those often get medication. The meds are pretty invasive as well, though, as you're still messing with hormones.
@@petitpois8813what do you mean yes? No there's no medicines that cure Cushing's
Not cure, but manage symptoms, usually. There are many causes of both cushings disease and syndrome and the right diagnosis will result in different cure rate outcomes. It’s complicated but do able.
The pain
sorry about that. You should visit a doctor.
Could you share your animations?
Seems like this is what in suffering from with the extreme high blood pressure
Please visit a doctor.
i was 14 when i first had it
hows ur body now??then how many years or months it takes to get normal again
Im good now, i just remember it took forverver to sit on the ground again.@@riandraagustian5057
My hamster had this.
I'm sorry to hear about your hamster's condition; Cushing's syndrome can be challenging to manage, but with proper veterinary care, there are effective treatment options available. ❤️
Seriously??? Give me a break.
👏❤️
yoooo i think ive have kushing syndromem for a hot minnn hahahaha if you know what i mean. get it. haha thanks :) im goging to search up graves disseasrs >:D hahah awesome stuff tongiht ok
fr
@magibon1 You got this!