my important doctor's appointment was NOT good
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- เผยแพร่เมื่อ 17 ต.ค. 2024
- my important doctor's appointment was NOT good
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My step dad died suddenly in 2020 from a brain aneurysm and his mom had passed away from the same thing. One by one his family members started getting tested (AGAINST medical advice from some of their doctors) and the majority of them have the same issue and the doctors doing the tests have told them that the testing has saved their lives. Do what’s best for you!
My family has the same thing I had surgery in 09 n again two weeks ago
Two of my Uncle’s passed away from the same thing.
I’m so sorry that happened at the dr’s Rachelle- It’s a serious issue that women *especially younger women* aren’t taken seriously in the medical community. Our concerns are so often brushed off, it’s incredibly frustrating and dejecting. But I’m honestly inspired by your attitude to not let that bad experience stop you, and just figuring it out on your own! Let us know how those at home tests go 💗
It’s so true! I’ve been having heart palpitations and sharp pains. My doctor referred me to a cardiologist who looked at me and said you look pretty healthy and your ekg is normal. Come back in 6 years.
How precious is it that Asher was telling Faye he wants to hold her hand and how he was trying to put her pacifier in her mouth and she was smiling at him. I love how you're a go-getter. Good for you looking into figuring out a way to be able to get what you need.
Don't let anyone especially a doctor make you feel silly or dismissed for your concerns. You are an advocate for yourself. No one will stand up better for you, than you! You are just in your concerns and I hope you are able to get the answers so you can continue to be proactive with your health.
So so sweet. The boys are at such a precious age when they’re talking and making complete sentences. Those were my favorite parts of my boys’ growing up.
Asher and baby interaction was so cute!
I hate when doctors make me feel dumb. It honestly makes me not go see them when I probably should.
Same
When I first started having joint issues my doctor sent me to a local rheumatologist. When I got to his office I literally talk to him for less than a minute and he barely looked at my file and told me there was nothing wrong with me I was just fat and needed to lose weight. When I left I called my family doctor crying he was so upset that he refused to send me back to that rheumatologist and sent me to a different one that he did extensive research on. Come to find out I have an autoimmune disease. Some doctors are just not willing to listen and just don’t care. I’m glad you looked into another option. I don’t understand why a doctor wouldn’t want to run these test especially with your family history.
The "baby paci" conversation was so adorable!
I know how you feel. I had hpv 10 years ago and I’ve had abnormal Pap smears since then. And now I’m missing periods and having symptoms of ovarian cancer. But my doctor is finally testing me for ovarian cancer or to see if I will have cancer later on. I wish they would just listen to their patients. You know your body better than they do.
I’m so sorry that doctor made you feel so sad, some people are so insensitive. You are absolutely not being over dramatic, you are being proactive and the best mum for your babies. Sending you so much love ❤😘
It's so disappointing that your doctor took such a casual attitude over such a serious issue. I'm glad you found a test. Knowing about genetic family issues is so important, and enables us to take positive action.
Asher with Faye was just adorable. His speech is great.
OMG FAYE REACHING FOR ASH WAS THE CUTEST STINKING IVE EVER SEEN!!! ❤️❤️❤️
Little side note for having no brown apples or potatoes! For the apples, when you cut them, put them in a bowl of water after with a tiny bit of lemon juice and they won't brown afterwards! For potatoes, essentially same thing but no lemon juice, just in water let them sit for a little while cutting and they won't brown 😊
I'm sorry to hear about the doctor though, super unhelpful. 😭❤
Please get your mammogram too! As someone who has breast cancer you truly don’t realize how important they. Sending you so many prayers and love.
Asher with Faye was heart warming 💓 All four of your children are so sweet 🥰
L
You don't need pre-sliced apples, just put a few drops of lemon juice on the slices after you cut them and they'll stay fresh for hours🙂
I just said the same without seeing your comment. It seems she saw it, so that's good. :-)
I really want a video all about Faye she’s growing so fast !!! So cute
My family also has heart problems that run strongly in my family and instead of going through a primary doctor I go to a cardiologist & they run whatever test I need.
I am so sorry to hear about your experience at your doctor's appointment. I have been working as a cardiac nurse for over 6 years now. My suggestions regarding LP(a) -- this is a lab test that indicates risk factor for a cardiac event. If this lab test comes back elevated the main course of treatment is life style and starting a medication to lower cholesterol. My best advise is to have an appointment with a cardiologist to review your lab results, and they may even order more blood work and even testing. Once the cardiologist has all information he may refer you to a genetic MD. This blood work is newish to cardiology, but there has been lots of research on how to manage. So in short most cardiologist have enough information on how to manage/treat an elevated LPa, but they may encourage genetic MD to get involved. I hope this helps.
I had all these genetic testings done through my OBGYN and it WAS all covered by my insurance because my family has a very strong history of female cancers. She ordered a full panel for me and it was simple. HOWEVER.... That being said.... I also got a lot of these results in my 23 and Me ancestry and health report! You need to buy the health one but they give you all kinds of genetic info, including BRCA.
So sorry that you felt that way at the doctors! It’s not silly to get that tests, well done for finding and alternative! 😘🤗
It's not that uncommon. I worked in a clinical laboratory for years and this is most definitely a test doctors do.i ran this test daily. You do need a script for get tests done unless you're going to a health fare but even then those tests are limited and it's because people like to self diagnose . I would look for another doctor honestly. That attitude is a problem.
The kids are so sweet and adorable with Faye ❤🥰
Also, it took me four years to get diagnosed with fibromyalgia (that runs in my family and I obviously had it) my doctor didn’t believe in fibro so I had to go to a different doctor to get a referral to a rheumatologist that did a physical exam and listened to my symptoms and told me “you have obvious fibromyalgia” and I was like *SEE I KNEW IT*
I ended up finding out this year that I have the MTHFR gene mutation so now I have to get further testing to figure out what type because one is worse than the other. I’m trying to get my family to get tested.
wow since when is fibromyalgia a genetic disease now? I have it since 1988 and 2 daughters with it. can u tell me exactly which gene it is etc plse . I live in Canada 🇨🇦.
The boys are so big and speaking so well!!!
I am SO sorry that happened! It is so disheartening to hear and as a public health professional, it angers me because prevention is the key to good health and should be seen as that. Glad you could find an at home test to test you for it. I will say that a lot of at-home tests aren't very reliable in giving a true positive or a true negative when it comes looking for a specific gene so I would get a second opinion from a doctor/cardiologist if possible :)
I am so sorry, that is so unprofessional and insensitive. Nothing worse than feeling that way 🥺
Sorry about your appointment but happy you figured out a way to get the test done! FYI you can toss apples in lemon juice and it will prevent them from getting brown!!
Yes, there are kits for BRCA testing! Also, you can talk to your OB/GYN about it, that's how I got mine done. However, insurance only automatically covers it if you meet certain family/ personal history criteria. You can appeal to try to have your insurance cover it, if you want to go that route. I've heard there are also sometimes events where you can get BRCA gene testing done in October.
Same here.. I ask for some tests and exams just for checkup and relief for myself, as I have serious conditions on my family, and doctors pass that vibe: you're silly, why you need it if you don't have symptoms?
Well, I believe in 'better safe then sorry'! 🤗 I have a 4yo who needs me around healthy. Huge hugs to y'all, be safe and healthy💜
it is so important that you get tested, you are doing the right thing. some drs treat these tests like it is just a bother. if these issues were in his family, he wouldn't be so flippent. good luck
When you see your son's cardiologist.. mention what's going on in your family regarding the heart conditions and the genetic tests...
Sorry to hear it Rachel
Never be afraid to see another doctor and get a second opinion! Trust your gut and keep going until you get answers! I hope that test helps you too! Good luck!
Looks like you have a couple of cute little hams, wanting the camera time! So cute!
omg they r talking so well and faye is getting so big
That really sucks that you got the appointment and it wasn’t even worth it or for the right thing. Ugh. I’m so sorry, Rachelle. You’re amazing and a great advocate for your health and the health of your family. ❤❤❤❤❤❤❤❤❤❤
omgosh can your family be any cuter?? so adorable. xxx❤️❤️
Through quest you should be able to order any test yourself and sometimes ins covers, sometimes its cash pay. But for my genetic tests i ordered it wasn’t covered, and i paid 120$ for THE WORKS. Which for me is worth it, peace of mind is priceless. They also covered all autoimmune disorders, hormone levels, and thyroid levels as well. Definitely look into quest!
Asher and Faye.... so cute!!!
Can you get a consult with a cardiologist? I have a heart problem that runs in my family and they had no problems running tests. For the BRCA you can talk to your gynecologist about testing
I'm a nurse and a woman. I hate when medical people don't listen to me or my patients and ignore/blow off valid concerns. 😒
Keep pushing for your heart test those babies need mommy
Oh my goodness I can't stand how cute Asher was with Faye!
What sweet boys the are so loving and kind ❤
Good you are getting all this testing done across the board now and getting things done early enough it seems or in time for needed medical help if necessary
Your babies are so advanced and smart like my little one at 2 1/2 these covid babies they are so smart and wise beyond there years! Adorable rachelle🙂💖
Oh oh such a big brother that loves his little sister,,,,
I think many docs have become jerks since Covid- I have my own story about this...................
Omg I'm sorry to hear about your bad trip wasn't good 😔. But it's good to find out what's going on with you to take precautions. I really hope and pray everything comes out . I know it's really crazy when it comes to your health
I'm so sorry you had such a negative experience with that doctor - he had no right to treat you the way he did and given that there is such a prevalent history in your family of cardiovascular issues leading to heart attacks and strokes, a simple blood test to check if you have that gene is 100% the right thing for you to do! I'm so glad you were able to find an at home test kit for you to find out if you do have the gene. I'm praying you don't but I personally think you're doing the right thing being proactive with your health and staying ahead of things.
I haven't done it yet but I know CircleDNA is a kit you can get that checks SO many different genes and if you're at a higher risk for developing certain cancers and a bunch of other health issues. It's something I plan on doing in the near future and definitely before I start a family of my own.
I've honestly found that, as a woman, I've been treated MUCH differently by doctors when I try to be proactive about my health and any potential future health issues. I have several chronic diseases already, so it's important for me to stay on top of my health but when I approach my doctor about investigating further into health issues, I'm constantly dismissed, told I'm comfortable in a "sick" role and reluctant to move out of it and treated as though I don't know my own body. So I understand how you felt when that doctor dismissed your request to be tested for that gene, I don't wish that feeling on anyone. But you are NOT dumb. It's a good thing to know and you voiced incredibly valid reasons for getting this test.
Love, hugs and light to you and your family from Canada ❤️❤️❤️
Asher’s little voice is the cutest!
Let any doctor know,it's NOT their choice! And it's your life! Then walk out 😊
I'm sorry the doctor made you feel that way 😔 I used to work in women's health and we had the BRCA kits in the office. This was years ago but it's worth calling your ob/gyn in case they have them.
23 & Me tests for the BRACA gene as well as a variety of others. Just make sure to get the test that has health traits included.
Faye is growing so fast ! Her eyes are so pretty
Missed Emma in this video!
You can always ask your OB/GYN to order the BRCA test. It is a test for the breast cancer gene. Just a thought.
I hope you’re all good, which I’m sure you are!
How did the board turn out?
The way he said ok😌
I am sorry to hear that... I had the jean from breast cancer so I know it's possible you can get that done good luck
To be tested for Braca 1 and 2 gene you have to have a close family member(mom/sister) who has has this type of breast cancer. This test cost thousands of dollars and insurance will usually only pay for it with a close family member tie
I just had to be in the Hospital & some Doctor's really are a piece of work!!!!
Don't let that doctor put you down, you're a great person
Just a friendly FYI insurance will not cover a BRCA test unless a direct relative has had cancer and tested BRCA+. I’m a BC survivor and insurance denied my mom and older sister of getting tested because I tested neg.
Insurance denial is ridiculous! One test could help a patient find out a diagnosis early and save their life as well as thousands of dollars in chemo, radiation, etc. insurance is terrible in the USA!
I’ve had the BRCA test done. Usually you need to have breast cancer in you family a mother, sister,etc. There is a special lab in California that your blood is sent to for analysis. Insurance usually pays for this. Your OB can order this test. There is not a kit for this test. I had breast cancer and my oncologist ordered this test. You meet with a geneticist first then they do the blood draw. Hope that helps.
Buy fruit fresh powder to keep your apples fresh if you need to pre-make something with fruit, even for banana pudding
Do not let anyone make you feel belittled. Get the test. you and your family know what is right for you and your family. I am so glad you figured it out. Always fight for what you need. Doctors don’t always know best.
I have the Brca2 gene and have a strong history of breast cancer in my family. I had a full hysterectomy and a double mastectomy before I was 35. I did whatever I had to do to prevent getting cancer since I wanted to be around for my kids. In Canada once someone in your family has cancer and gets tested for the gene and they are positive the doctors suggest people in the family get tested. I'm so sorry the doctor didnt take you seriously. Push for testing and answers. It is your body not theres. Knowledge is everything . ❤
Asher is such a good talker.
My sister s and myself got the brac2 bloods done because of family history and we had to see someone from genetics and I'm in the UK x
Learned how to stream onto my 65' Q7 & was so.. much fun watching the close ups of the boys playing ...
Sending You PRAYERS Rachelle that all is well with your heart & good to keep you in check as well as the kids...
P S. FAYE'S Huge blue eyes look gorgeous on my T V. LOVE IT ❤️😅🤗
Hugs & Blessings Always 🙏❤️💙💖💙💙💖🧸🤗✝️
This inspires me to take a gene test to make sure my future children won’t have the same heart defect I was born with. My parents said it was brutal but they are relieved that I lived through it and I am a brilliant healthy young woman.
I tried to look up Justin's dad's wood working from what I could read off the "logo" burned stamp but couldn't find anything... is there a place we could find his work for sale?
Aww Rachelle, that is rotten how you were treated by the Dr and that they don’t test for genetic conditions. I am so glad you have found a back up plan I think if it is found you have the same condition as your Mum it will help you to deal with it and get the help you need. Bless you Rachelle, I pray 🙏 that all will be well with you. Lots of love 💕
I have had that same bug as Justin. Had it in August and never really went away. Every three weeks or so I end up feeling really lousy again for a few days. Getting sick and tired of it now and just want it to go away.
I"m so sorry that was your experience at the doctor's Rachelle, that is not okay. Unfortunately a lot of women's concerns are not taken seriously by medical professionals, especially male doctors. I hope the at home kit works well!💕
When its put in the referal that direct family members have tested positive for the gene and also have a history of heart and stroke problems. The chances are big they do take you on. Just might have a long waiting list.
Also invitae does a lot of different types of genetic testing. I know that even some doctor do it through them.
I have heard really really good things about them.
I'm sorry about your Dr appointment.The doctor seemed kinda rude.Hopefully the test you ordered will help you get some answers.Im sending my love and prayers from Maryland ❤️
My friend's large family had a hx of strokes. After the strokes they were finding the aneurysm in the same area of their brains was the problem. Made them wonder could this be hereditary ( they had diff drs). So her Dr told here this could not be genetic. She perservered and insisted on being tested, yep same area had a defect, could cause problems. The surgeon clipped the area ( potential aneurysm) and she is now on strict blood pressure control and monitoring and has weight lifting restrictions. Previously being healthy she would be up shingling their roof or remodeling the house, so has had to cut back some on these activities. Now the Dr's are admitting it does seem to be a hereditary trait to have the potential problem with the blood vessels in their family.
1) Drs are just people, some can be jerks.
2) Trust your own intuition for yourself and your kids.
3) Talk to a geneticist before giving up on this.
Remember you are your own best advocate. Retired RN/BSN, 35 yrs hospital experience.
Lemon juice is a much better alternative to sulfates, and if you squeeze it on the apples it prevents the browning. 😊
What was the blood test called that checks for cancer?
The intro still makes me so happy😍
It’s seriously so discouraging when DRs are so heartless sometimes but im glad you didn’t let the DRs make you change your mind and you found an alternative way to get it all checked out ❤
Praying everything will come out good!
I did testing through invitae, we had genetic conditions and I paid only 350 without insurance. It was recommended by drs and a simple saliva test.
It also tests for brca.
Ashers hair is more and more red every day!! 😍
aww such a good brother!
I’m a nurse don’t let that dr bully you like that. Change drs. Good luck
That board is beautiful, I want one.
When u took Faye out from The car, i thought it was ruben first. They look so simillar to me.
Earlier this year my mom was diagnosed with a genetic condition called HHT, it’s a blood disorder and it’s real scary she’s fine but because it can be passed down my brother and I both had to get tested. I had a really hard time getting a referral/order to get this test done even though the genetic department my mother was working with which was part of the Cleveland clinic said that their clinic covered all of the charges and costs for this genetic testing they just needed my primary care doctor to order the test. I wonder if talking to the doctor your mom‘s been working with where your aunt would be able to give you some guidance in where to get this testing done or if they have some kind of similar program where that they know of a geneticist or genetic testing site that their team works with I could help you along
7:34 Apples won't go brown if you add a little bit of lemon juice
Any dr can order a blood test and then if test requires a geneticist then you can be referred. Plus NEVER talk to front desk about studies, tests, etc. ask to leave a message for nurse to call you back to discuss the test.
I'm so sorry your doctor's appointment was so disappointing. I am glad you figured the testing out yourself. Remember you know your body better than any doctor.
I can’t speak to the heart issue but I had my BRCA test done though my OB. I have terrible insurance and it was covered 100%.
Faye is so darn cute my goodness
My father in law made me one like that too!
Can you get a referal to a cardiologist and the cardiologist request the test? The cardiologist would be more familiar with the genetic condition and understand why it needs to be tested.
She bought a test
It can be hard to ask the doctor and the doctor just thinks it’s nothing. It’s also a pain in the butt to try to get a new doctor that will actually care.
It’s rare to find ones that do. What I dislike is looking for one no matter, dentist, doctor, OB etc having to call and ask if they take insurance or new patients can be stressful.
I remember this happened to me, I hated that female doctor who gave me attitude for getting my spin checked after that I just never looked for a doctor.
That is absolutely terrible that you were sent there after them telling you that they did them tests there, i would be raging if that happened to me tbh. I don’t know how you must be feeling right now 😮I have watched you for many years now and i am so happy for you that you have came so far and got children that you have always wanted. Just be positive and keep your chin up. Lots of love from Morgan xxx❤
OMGOODNESS Asher ❤
My moms sisters all passed away in their 60's with heart problems as well as their mother. I also have heart disease and I asked cardio Dr about my girl having same. Cardio Dr said really nothing you can do with info /testing. Its good to know but nothing can be done when your young. He said live healthy and will treat when needed. I remember him saying what would I do with results..nothing really
ugh i hate that kind of doctor. even if they think you're being ridiculous its super unprofessional to treat you that way. :( better safe than sorry for sure that doctor can take a hike...that's as nicely as I can say it lol
Yes, don’t let yourself be put off. Keep advocating for yourself and your family.