Cheryl's Story

Cheryl Jones shares the extraordinary story of her long battle with cancer.
Visit www.pheoparatroopers.org for more information on pheos and paras, and how you can help fight this cancer.
We are always looking for patient stories and perspectives. If you'd like to participate - in any language - visit www.pheoparaproject.org and let us know!

[@vivavargas6720]

Wow this hits hard I’m going on the fifth to my endocrinologist and this is insane same symptoms same everything!

[@lanceredford9810]

Thank you for sharing. Mine was removed in July 2014. Just one, but 13cm. A blessing to have it gone, but definitely brings about new challenges. Bless your heart for sharing and pushing through. Keep up the fight.

[@judyhyland499]

Hope you are doing well

[@samdoc1528]

excellent video

[@lizziebeggimbo]

Thank you for sharing. I too live without my thyroid and it's awful. Exhausted 24/7

[@samdoc1528]

you are champ

[@roblaa3198]

50% survival hmm think that's wrong tbh i

[@pheoparaproject1867]

Patient stories are not medical seminars. They reflect each patient's perspective on his or her disease, and sometimes the medical advice they have been given by the specialists they see. They do not constitute nor replace the advice and guidance of a knowledgeable medical professional.
Cheryl has an inherited syndrome and recurrent disease. Since making this video, she has also been diagnosed with other cancers.
"For PGL/PCCs that have not metastasized, operative treatment can be curative. However, once metastases have occurred there is no cure, with a five-year survival rate of 50%-69%" --- www.ncbi.nlm.nih.gov/books/NBK1548/

[@Katie-vy5rd]

​@@pheoparaproject1867are there any resources through the pheoparaproject that aids worh the testing costs for dianosing? For example my doc suggested many years ago that I get tested for alpha 1 antityrpisinahin deficiency and NC University had a study going on and send me a DNA test kit for fre.. know of any resources would be great.. I have the order for test , fyi