Cervical Dystonia - Not gone with 510 Units of Botox! PNMD improved it in weeks. Migraines gone too!
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- เผยแพร่เมื่อ 7 ส.ค. 2023
- For more information www.MidwestHeadaches.com
Alexandra is a young mother of a toddler, wife of a farmer and a Registered Nurse from rural Missouri.
This is her history in her own words: “I have a history of Scoliosis. I had baby in January 2022. First time around mid-April, I noticed the head turning while trying to take photos as a family. By end of May left ear was touching shoulder. Whole head turns to right, if I try to move to left, goes into spasm. If I tuck chin, cannot go past midline.
I have noticed that my jaw is much tighter than it used to be. I'm not sure if that is the cause of the neck pain or the result of it. The back of my neck at the base of my skull is the most intense point of my pain, and it is worsened with the wide opening of my mouth such as while yawning.
Pain is worse, if I cannot rest my head against anything for long periods of time. Botox injections have made the pain much worse for about 2 weeks after. Pain is better by lying down or being able to rest my head.
I have had shoulder, neck, and back pain as well as headaches and migraines since childhood. I thought maybe they were stress related or just normal for me. After giving birth in January 2022, I started to notice overtime that my head was turning to the right and eventually my left ear was pulling down to my left shoulder. By May 2022 I was unable to hold my head upright without support or turn to the left. I thought it may have been related to holding a baby in my left arm frequently and nursing. I tried massage therapy and chiropractic care with no change. I visited an orthopedic doctor that determined nothing was wrong with my spine and suggested a neurologist to evaluate me for Cervical Dystonia. I have seen a Neurologist and was diagnosed with Cervical Dystonia. Dx. in September 2022. He treated me with 2 rounds of Botox injections (Oct. 2022 200 units, Jan. 2023 310 units) with no change. Botox in SCM, back of neck base of skull, both shoulders- levators. The back left side of my scalp burns and hurts at all times and to touch, the left base of my skull/top of my neck has severe stabbing pain if I move too quickly or the wrong way. The left SCM area under my left ear has infrequent radiating pain into my jaw and head. My left neck, shoulder, and down into my shoulder blade are extremely tight and get cramps often. I do have relief from pain when I lay down, but it's often worse when I try getting back up. Sometimes the pain and stiffness is somewhat improved with activity. Leaning forward to stretch the back of the neck muscles helps relieve some of the pain but has made my posture much worse.”
Her expectations for the initial TMD / CCMD evaluation visit was just to see if it is even an option. If it is a door we can potentially explore for help. Alex went through detailed diagnostic tests including our unique "Raman CCMD Protocol" of Physiologic Neuro Muscular Dental (PNMD) procedure to determine the optimal jaw and neck alignment. She was then fitted with a neuromuscular fixed orthotic on her lower teeth only for 90 days as a reversible phase 1 treatment. PNMD Fixed orthotic looks like and acts like teeth. She would chew with it, speak with it and live with it 24/7 every second of every day. This is both a therapeutic and diagnostic step. She started noticing improvements very quickly.
This is one of the important reasons that we use a PNM Fixed orthotic. It is correcting the jaw alignment truly 24/7, every second of the day. Of course, the key is how accurately the jaw / neck alignment was diagnosed first. Much work goes into using computerized data including surface Electromyography that is one part of the Raman CCMD Protocol to precisely diagnose this jaw / neck position. That is the alignment that the fixed orthotic maintains.
Within weeks of Phase 1 Fixed orthotic, her symptoms were improving significantly. . By 90 days Alex reported 50% overall improvement of symptoms. Level of improvement 1. Neck pain - 60%. 2. Headaches - 100%. 3. Fatigue - 75%. Wakes up at 7/10 energy level vs 0/10 pre treatment. Her energy lasts all day. 4. Back pain - 25%.
Alexandra is currently in Phase 2 Neuromuscular Functional Orthodontics treatment to eventually move her own natural teeth to support an optimal jaw and neck alignment.
That is the power of Physiologic Neuro Muscular Dentistry! - วิทยาศาสตร์และเทคโนโลยี
Do whatever works for you, but know that many need to know what may have triggered their Dystonia. Some cases are triggered by medications; including OTC meds. When I saw the list of meds, and recognized one I’d been taking for years, I stopped taking it and within four months I no longer needed treatment for Dystonia. Wishing you the best!
What OTC meds were you taking ??
I’m at a point of where it’s feels unbearable. I am taking injections every three month’s along with other medication. I need help
I've had cervical dystonia for 2 1/2 years and just got my thir d Botox injection of 60 units and has yet to work.1. God bless you I literally feel your pain everyday.
I'm really lucky I have CD and the Botox works . I have no idea units my Neurologist uses ? I go Mount Sinai in NYC on East 98th Street and see Dr.V . Hope your search finds you help . G-d Bless !!!
Cervical dystonia can be cured without Botax injection.
@@sahulajith i luv you
@@sharker102s 🤔🤔
@@sahulajith i luv your comment
Wow,the improvement is visible,how is she doing now,would like a follow up video❤
Alex is continuing to improve in symptom relief now that she is proceeding with Phase 2 where her constricted upper arch is corrected. It is going to take some time for the outwardly visible appearance to improve dramatically. Some of these changes such as the 'development' of the neck muscles took years, just like a body builder builds muscles.
No idea either what treatment is
I’ve had it for 3 years and was told by my nuro surgeon there is no cure , it’s debilitating 😢
I’m getting bottulum that helps and exercise so I don’t get stiff
What is PNMD? Thank you.
PNMD = Physiologic NeuroMuscular Dental
Physiologic - primary focus is the function / physiology of jaw muscles, neck muscles, tongue function, airway function, overall posture down to feet.
NeuroMuscular - Nerves control muscles. By stimulating / relaxing (like an electronic massage) the muscle that control the jaw and neck to allow those structures to align where ALL these muscles are unstrained - not short or long but neutral - diagnose that position of the jaw
Dental - jaw is moved by the muscles which are controlled by the nerves. But teeth just go for the ride when the jaw moves. However, where the teeth fit together necessitates those muscles to contract to bring the upper and lower teeth together - "bite" dentists call "occlusion". So the way we correct the jaw / neck alignment is to add to the teeth (with an orthotic first) so that the upper teeth come together against the orthotic that is added on to the lower teeth.
I hope that answers your question
I hope you are in good health.
If dystonia not responding it means either botox under dose or muscles selection not right .
You had laterocaput not laterocollis ,which means head movement not the neck
Muscle selection will be ipsilateral sternocleidomastoid , trapezius pars descendens, splenius capitis which are primary muscle,your doctor can add semispinalis capitis,longissimus & levator scapule .
I am same but I don't no how it cure
Don't worry it's curable,
I suffered from cervical dystonia and am now more than 90% fully recovered after four years of difficulty..
@@sahulajithplease share what you did for your amazing recovery. Thank you
@@Drogabian Good sleep and exercise. Are you suffering from cervical dystonia?
@@sahulajith what kind of exercise??
@@sahulajithwhich exercise? Please help
Looks so awkward. Must be difficult to function.
It is I have it !
People use stare at me .
My head was glued on shoulder for a while !
I just ignored them .
Botox works for me :)
@@judypiastarr8712Botox fixed your abnormal posture?
@@judypiastarr8712Cervical dystonia can be cured without Botax injection.
Cervical dystonia can be cured without Botax injection..
Yeah? How?
i dont understand , what was the treatment ?
Me either!