Thanks so much for sharin JP. Very happy you seem to have plateaed. I'm hoping to go to RUIZ for HSCT for PPMS. I'm considering discontinuing ocrevus as it has not halted, but rather seems to have slightly but clearly accelerated progression. I'm 58. I understand that Mexican MS HSCT is non myeloablative similar to Russia's but that the the Stem bags aren't frozen like in Russia. I'm not sure exactly how, or why, their regiments differ slightly.
Hi, I had the same experience with Biontec. Was horrifing. My bodytemperarture raised to 38,9 degrees. For three days I was Knocked-out. But all went back to my normal MS condition.
Hi, a german women write that she became 1994 PPMS and than 2000 in Wheelchair. 2001-2003 she becam a therapie MITOXANTRON and after that her progression stilled. No becoming worser. Maybe other PPMS patients must try the same. Why the doctors do not try this?
Hello Would you do it again? If this HSCT is so good why not much more people do this in Russia? Normally if it is sooo good thousands should do this. Why only a few PPMSler do this? What is your thoughts? Thank you for your answer.
Only just come across this channel, with my job you would laugh.
Thanks for putting this up, you're a good man Jonathan 🍻
Thanks so much for sharin JP. Very happy you seem to have plateaed. I'm hoping to go to RUIZ for HSCT for PPMS. I'm considering discontinuing ocrevus as it has not halted, but rather seems to have slightly but clearly accelerated progression. I'm 58. I understand that Mexican MS HSCT is non myeloablative similar to Russia's but that the the Stem bags aren't frozen like in Russia. I'm not sure exactly how, or why, their regiments differ slightly.
Wow! That was quite the reaction. Glad you are on the mend now. It is amazing how our MS symptoms can flare.
Yeah, i as expecting something, but that was a little more!
How are you holding up in 2023? Is the HSCT keeping the monster at bay? Also, have you considered taking Ocrevus?
Hi, I had the same experience with Biontec. Was horrifing. My bodytemperarture raised to 38,9 degrees. For three days I was Knocked-out. But all went back to my normal MS condition.
Hi, a german women write that she became 1994 PPMS and than 2000 in Wheelchair. 2001-2003 she becam a therapie MITOXANTRON and after that her progression stilled. No becoming worser. Maybe other PPMS patients must try the same. Why the doctors do not try this?
The question would be how good is this data? What is the success rate over a large number of people? Etc etc
Hello
Would you do it again?
If this HSCT is so good why not much more people do this in Russia?
Normally if it is sooo good thousands should do this.
Why only a few PPMSler do this?
What is your thoughts?
Thank you for your answer.
Good question. I've written about this, sort of , here hsct4msexperiences.blogspot.com/2019/04/the-case-for-hsct-my-rant.html?m=1
And I would do it again and advise every sufferer to get it
@@jpslifewithmultiplescleros1000how have you been doing, any updates?
Do you regret that you did hsct?
No way. Best decision I've ever made.
i wonder if hes dead now.