Town Hall: When will there be a cure for Rett syndrome? | Rett Syndrome Research Trist

There are now seven biopharmaceutical companies with genetic-based programs targeting the root cause of Rett syndrome, including Taysha's, which has recently received approval to begin the first-ever gene replacement clinical trial. This town hall from April 13, 2022, covers what this means for our plan for a cure, including all of the factors that contribute to next steps.

[@dinafaria7]

Thank you for posting this recording for those who were unable to attend. I so much appreciate it! ❤

[@sergiomorales2875]

I would love to get my daughter on the list

[@Ultrawicked]

My son has mcp2 duplication . His diagnosis is autism because of that i always followed the autism lead but im just now realizing i see more retts as he gets s older.

[@Heathernd]

Thank you for posting this! I hated to miss but am glad to see the recording.

[@reesecup3ify]

My sister has retts. There's no cure, no hope, only pain, suffering, and regression. Most Retts girls have microcephaly, contractures, brain damage, stunted growth, seizures, autism, spinal fusions, cut tendons etc. How on earth can those things be reversed/cured. Seeing someone suffer with Retts is beyond disturbing, like a real life horror movie.

[@justme9904]

My granddaughter has retts she is 7 and goes through hell everyday seizures every day poor baby it’s heartbreaking watching her suffer

[@winros]

Thank you for giving me some of the symptoms. I'm sorry about your sister. I just saw a video and they stated there's a cure now... Is that true?

[@nevadevine58]

North Carolina

[@munaosman8324]

Thanks so much

[@user-es9qq2ui6q]

Are you from arabic country?

[@munaosman8324]

@@user-es9qq2ui6q yes iam originally from sudan

[@KJC63]

NBC News’ Richard Engel says his 6-year-old son, Henry, has died
Henry was diagnosed with Rett syndrome, a genetic brain disorder that does not have a treatment or cure, as a toddler.

[@paulcaster3843]

Kansas City Missouri

[@Kmh70]

Baltimore MD

[@user-es9qq2ui6q]

How can we get into the program?
My daughter has Rett syndrome 😔

[@anjaiahteku4310]

My daughter has rett syndrom

[@justme9904]

There is no cure for retts no help and no answers

[@marywynne8321]

Nc