No one talks or gives info on these kind of things. Real life! Figuring out how to solve new challenges on my own has been difficult. Thank you for making videos and being kind enough to talk about things most wouldn't.
+Paralyzed Living same with me, after my Moto X accident and while I was laying in rehab scared as hell for what lay ahead your video gave me answers to some many questions I had. Big thumbs up!
Its helping me so much right now. So happy I came across his videos I had two spine surgeries due to a fatty tumor on my spine I removed it and been wearing diapers. Being incontinent is so hard to deal with at first
I don't have a spinal cord injury. But I am dating someone who does. I looked up videos about spinal cord injuries in generally because I was curious as to how he functions. These videos are real and detailed. It makes it clear as to how day to day life is. Thank you for providing great videos.
Kelsey Kneese my fiance has been paralyzed for nine years now make sure you take time for yourself as well if you are his primary caregiver coming from someone whom is 24\7 it can be a strain on your relationship but I just wish my man was more independent like the man on the video an more able good luck to you an your man prayers an god bless
You made a choice to be his care giver.........you don't have to be. What level is your guy's sci level? I'm thinking he must be a quad. I am a female combo para/quad and am fully independent. So, unless your guy can't use his arms/hands........then consider sending him back for rehab work at a proper SCI rehab center. BTW I was 24 at injury and am now 61.5. I went back to rehab after my ex walked out when I was 27 and learned to care for myself. Good luck and remember you can leave also if he won't try.
MINAH THE CHAMPION I was in a car crash and my legs got trapped then it stopped my nerves when I got to the hospital they told me I was paralysed its ridiculous it's really hard for me to get dressed as I'm only young everyone looks and laughs at me in school but I'm ok now I'm in a special school thank you for listening to my story of how I got paralysed
You are truly amazing!!! My 77year old mother just had a severe stroke---we sat with her today and watched most of your videos and you were such an inspiration to her. Thank you for passing on your knowledge...and your HOPE. You have no idea how much this means to people. GOD BLESS YOU!!
This is inspirational man I’ve been paralyzed since October 2018 from being shot gives times and am paralyzed from the waist down but your videos have helped thanks a lot 🙏🏿
Thank you for talking about these intimate topics! I'm impressed with how you present everything and you are very honest about the reality of it. Thank you!
As a PT Asst. who has done a lot of SCI rehab, I love your videos! They are among the best out there. Thank you so much for your candor, and keep up the great work!
This is an eye opener. I didn’t realize this would require such a procedure. Thank you for producing this video as it will surely help others who find themselves paralyzed.
Your frank discussions are a God send to those disabled and their caretakers. You allow those that are afraid or ashamed to get the answers they may not know to ask. Thank you. You are my hero.
You are just incredible. You're so easy to talk to, listen to. I find myself agreeing with you and then listening to other nuggets of information you share with us. You seem so comfortable describing what and how you do things in order to make it work. Huge respect for you! Thank you for sharing all this information with us. Your comfort level affects my comfort level and it all just works. Thank you!
I love that you are so open about everything. I work in health care and there are so many questions I have for people that I would never ask. And this gives me such a great insight on the lives of my patients.
You are so brave for providing such raw, much needed information. Those “uncomfortable” subjects are real life and my heart goes out to you for sharing your story. You are a true inspiration...
Your video is very informative. Thanks. I work with a lot of paralyzed patients and I feel empowered by the courage and strength that you have and others challenged with this condition. I have met some of the most beautiful people in my field of work and they inspire me. Thanks for your videos!!!
Brian, thank you so much! I truly appreciate you taking the time to discuss, demonstrate, and walk us all through the conundrum. I have been dealing with these issues for 7-8 years now with no real, detained follow-through guidance. You nailed it and I thank you for your candor and "getting-it-done" attitude. I was inspired and refocused on good management OPS. May God continue to bless and shore you up, daily!
I have the utmost respect for anyone dealing with these issues. I know I wouldn’t have the strength and willpower to do what you do. I wish you the best bro.
I was watching this just to see the toilet transfer (I have MS) and was amazed at how well you did this video. So informative and while it's not something people wanna talk about, it was very helpful. Thanks for sharing your method!
My cousin just became paralyzed after a hit and run car accident. He has had so many problems trying to deal with life after and specifically these kind of daily things. He had to be rushed to the ER again for a urinary infection. I didn’t know it was all so complicated. Very informative video!
Hi, awesome videos, I saw in another video you mentioned you have gotten your timing better now. I would really appreciate an updated video on bowel and bladder management.
I have cauda equina due to injuries to L4/5 vertebrae. I am 73 and have bowel and bladder problems.I wear special pads in case of accidents.I am so sorry to see a young person with the same problems as me,I thank him for sharing his story in order to help the rest of us.
Just found your website. I damaged my spinal cord and have all these problems and its great to see and hear this as so many of use have this and its great that you actually talk about poop. The only person I can talk to is my bowel and bladder nurse and it’s so good to chat about the problems to her as no one realises what we have to do. So a big thank you x 😅
Thanks again for making these videos. Not many are brave enough to talk openly about these topics. Even after 35 years, I still cringe a bit when someone asks "How do you..." . I can handle the sex and pee questions, but this one is a bit of a "Do you really want to know?" subject to me. I want people to have the knowledge, but it's always been our culture's 'hands-off' subject, and it's just a bit embarrassing to me, depending on who asks. Often, I'll just take the magician's way out "How do you do that?" - "Very well, in my opinion." You handle these topics Very good and openly. I can now refer people to your videos when they want to know how things work. :D Take care- Tony
Hey I just found you didn't realize you've been doing videos for so long. I have been a paraplegic for 49 years now seems like a long time I'm 61 years old. My injury is T9 and it seems like over time things do change and one thing works for you 10 years ago may not work now. Keep up the videos I appreciate them and maybe one day I'll share my experiences with you.
You are a wonderful human being to come forward and talk about things people like to keep in the dark, and you bring it to the light. It is real life, and can happen to anyone! Thank you so much for your bravery!!! I
Thank you for going through these routines in a detailed and honest way. It's important for loved ones to know what an SCI patient goes through. You're amazing, and you help a lot of people!
Thank for sharing this intimate experiences. We know that is not easy, but this help us to understand better the difficulties that that people with limited movements have with day to day activities. Thanks!
Great educational videos. Transanal irrigation is also a very effective way of bowel management, takes about an hour. Instead of repeated digital stimulation and chemicals, it's just warm water irrigation. Abdominal massage instead. A bit easier for some.
I really appreciate you doing these videos. this information is not readily available to most people. I know this isn't probably the easiest video to do but believe it or not I think you are a hero for doing it.
I use a bum gun (that's what it's called in Thailand) a water hose with a trigger (like what you see on a kitchen sink). Well just hold it up against your bottom a few seconds of water to fill the cavity, then it all comes out easily. Rinse a few more times, to be sure it all came out. Then wait 15 minutes to see if all the water leaked out, then squeeze your nose (then blow) to force any water if left in there
Wow you have had to overcome so so much. And the emotional side of it has to have been enormous dealing with embarrassment of so many things. Brother I am first so sorry but also so proud of you for facing things head on. Facing that embarrassment head on and after a while it starts to not be so embarrassing to talk about bowel movements and sex and ejaculation and having a family and how that is accomplished. You rock God Bless bro
Love your confidence, I know I am very insecure about this kinda stuff so it really encourages me. Thanks! Also idk if you have heard of it but there is a thing called the ACE program which makes it a lot quicker (about 30 min every other day) and rarely requires manual stimming.
Hey just watched your video and of course we all do things different. I'm a T9 paraplegic going on 50 years. My bow treatment is a lot different I'll go sometimes 3 or 4 days without having a bowel movement. Once I get that urge, the feeling to go I will do what we call rectal stretch. That will trigger a bowel movement for me. I also try to eat a lot of fiber with metamucil added to my diet. Tens to work better for me, gives me a lot more freedom where I'm not tied down to an actual bowl care day. This makes it possible for me to be able to go out, go here go there without being tied down to a toilet every other day. Any questions you can always ask. Jay Williams..
Yes, Jay W. There's also another water soluble fiber like metamucil but has no flavor so you can mix it with any flavors you want. Makes good bulk🙂for your muscles to push along.
Your video has helped a lot of people. I even learned a couple of new aspects myself. My previous occupation I was in an architectural firm creating construction drawings. The part I always got the most enjoyment from was incorporating the little extras over and above the basic code for assisting the disabled while they were using public facilities. Currently I have the ability to design a home which is only a block from a university to incorporate some of these items. I aim to do a wet room bathroom so it doesn't matter if the water is contained. It allows for an open plan. *I was wondering if a hand held wand shower next to the toilet could be a useful accessory for toileting? A recessed shelf for storing washable cloths in addition to toilet paper?* While I am aware of bidet equipped toilet seats I can imagine so many aspects of them that could go wrong if one was not perfectly seated and of the correct body shape. They seem to be extremely over priced; possibly they are imported from Japan.
Electronic bidet. Imported from Hong Kong, into the Australian Capital Territory, where we have been living for the last 20 years. Extremely happy with it. Assists with urinary and bowel problems. Before, during and after use for medical purposes. The hot air blower also dries, after washing. Very reliable, quiet and trustworthy. Not at all expensive. Just a few hundred dollars, easily fitted by the local handyman.
Thank you for the information Bryan I don't have a spinal cord injury but I do have CP a birth defect and I am also in a wheelchair because of my disability I live alone I have my own apartment and I've been living on my own for several years now overtime specially being by yourself and living by yourself your disability does get easier easy ways and learn how to deal with your disability does or you being disabled you just have to learn how to make it work for you that's what I be trying to tell my grandmother because when you have a disability is permanent and it's not going to go away but you learn how to deal with it overtime and I wanted to get my own apartment because I I got tired of living with people in a family I wanted to learn how to live on my own and learn how to do things by myself and learn how to take care of myself better when you living with family they want to do everything for you and I don't like that because I am a very independent woman and I don't like everybody doing things for me all the time 24/7 because I'm not a mama's girl and I'm not I'm a daddy's girl but I'm also independent and I like to do for myself and be by myself but soon I won't be by myself I'll have my baby girl and I also have to learn how to take care of my soul so I can learn how to take care of her because being a mom is my responsibility is nobody else's responsibility to take care of my child or my children that I decide to have in the future if I decide to have anymorejust because we have disabilities don't mean that we're not human we deserve to have a regular normal life like everybody else and some people they treat us just because we have disabilities and challenges of that nature they think we unhuman and it's not fair and it's not right I'm willing to do whatever I have to do to be a good person so I can be a good mother to my baby girl because at the end of the day that's all I have I don't have anything else I got my family but you know I have to I have to have my own life too if my family want to be a part of my life than more than welcome to but I don't have time to deal with the nonsense because I have someone else that I have to think about now my baby girl when she comes into this world and I don't have time for nonsense and drama and I don't want that around my daughter.
You are a treasure, sir. It takes courage and strength to place yourself in the hands of total strangers. May Jehovah God give you the strength to continue moving forward. 😉
Great vid on a tough topic. For the longest time, I went through the day feeling like I was a ticking time bomb - never sure if/when it would go off. My program started with Mirilax and 3 Senekot at night and a suppository in the morning. After a while, my bowels just kicked into a good timing. Now, I take 3 Senekot at night and that's it. I usually go every 1 or 2 days, rarely every 3 days. My morning program, same thing with the digging etc., usually lasts about 15 minutes, and I can then tell that that's it, that's all. Don - T4 complete for 3 years.
Thank you for such a informative video you sir a such an impersonation to others who have spinal cord injuries and for other people who have to help themselves go to the restroom for other health reasons. I will pass your video on to others who need this information. God Bless You!
I typed my comment for about an hour but I dont have the courage to post it publicly. I really like to learn more things about how to do things after a SCI. I wish you could talk more about your bowel management and diet on your next videos.
Thamk you so much for these videos I wish I found them before I was six months out because now at six months I think I’m going crazy but your videos do you have a lot better than their corporate videos that are just confusing thank you
Actually with the transfer you doing to the toilet it’s unbelievable I used to fall once a week I’m gonna try this it looks so much easier than hopping over that damn wheel!!!
i myself used to do a similar routine (for 25+ years) then changed. I try to eat better, lots of berries for example, now i check 1 or 2 times/day. Depending on how i feel, usually in the mornings I can tell from AD indicators, like blotchy flush legs for example, I now have a routine that takes up less than 5 mins/day, try to baredown as much as possible as well. Found that you do not need to empty your entire bowel, just lower. "Listen" pay attention & you will get to know the triggers if its AD or such. everyone is different of course but for me it didnt take anytime to get used to the new routine & its made a huge difference in my life. good luck all. dont hesistate to ask peers.
Hi Brian, my injury is t7-8 and I use a suppository too. Instead of putting in the suppository after the toilet transfer I usually insert it into my butt 10-15 mins before I transfer so I don't have to keep my finger inside the whole time.
when i became a paraplegic after an accident i wasn't scared about never walking again or anything like that. people can pretty much have a normal life and even a good one in a wheelchair. sure there all A LOT, So Many challenges but still it can become a great life. i was scared about my bowel and Bladder challenges. that's what scared me. not being able to control that. i went through a bowel management program and it has help A LOT but still having to do so much just to go to the bathroom is Hard!!! but i got the hang of it. i have control back.
I understand this is from 2016 I have been a complete paraplegic since 1978. I use the same digital stimulation but w/o a suppository worked fine until my last anterior/posterior cage fusion.My digestive system has not been the same nor has my urinary system I was able to self cath now I'm back to a li dwelling cath now! I'm 57 now and my recent problem is diarrhea without warning and a depend is not dependable lol, My BM for the last 30 years have taken up to 2 to 6 hours I have a spare bedroom so I prevent skin breaking down! This has changed my usual upbeat attitude I was a fiercely independent now feeling defeated for all these years! I have a bladder procedure soon & then onto my other issues! Not the most cheerful comment but being paralyzed is very unpredictable but still what we make it? Not really questioning but any insight is appreciated as well as your channel Brian you are Awesome 👏 ( surgeries was 200
Wow, 2-6 hours seems like a long time! I'm really sorry to hear about the more recent issues. Have you tried increasing your fiber to keep from having loose stools? There has to be something you can do to get that under control. I'd be more worried about #2 than #1. I understand it can get you down but keep looking for solutions because I don't think it's just something you have to accept.
I ordered some of those mini enemas today. I a pretty high functioning c7 incomplete. I've been using the glycerin suppositories and digital stim with limited success. A lot of the time, I end up going to work and other activities with the feeling that I still need to go or haven't finished. It's very debilitating. I tend to sit most of the time and avoid going far from a private bathroom. It makes me a prisoner in my home on the weekend not wanting to leave the house. So my plan is to use those every other day or every third day to see if it will help complete the process. I'm going to allow more time on those days and will take extra clothes to work just in case. And suggestions?
Thankyou for this video. It's a difficult subject however you tackle it. I have problems in knowing when I need to go. I'm not paralyzed but I had an accident which fractured my spine (l1l2).
I do the same thing but a 7pm. I just came across those enemas. You wouldn't think the difference between an enema and a suppository would be so different but it makes a world of difference. I also spend about an hour in the bathroom. My biggest fear is that I will have a problem during the day or at night.
A nurse once told me to rub in small circular circles (gently) from right to left and from the bottom of the right side to top and back down on the other side (like an upside down 'u') to get things moving.
My brother is a sci t9. He only takes 10 minutes to poop using a rectal enema for 1 yr already and learned to push?before it takes him more than one hour or more!.now he customized a enema tank made of stainless. He said it changed his life not anymore waiting for poop to come out. Sorry for my english
+Neil van der Merwe For Me, (sci T-7) it's always been difficult to know "for certain" if I'm 100% finished. It's a matter of faith, especially now that I'm over 50 and been paralyzed most of my life. When I was newly paralyzed, I did a digital stim every night before sleep, and was able to empty my lower bowel pretty good every night. After about 5 years, it slowed and I had to do it every 2 nights. By the early 1990's it was every 3 nights. Then I got married and had to change it to mornings and my body changed to every 4th day, and I have to use a suppository, which can cause accidents later in the day/night. Just something I have to deal with as it comes. I think my body has finally stopped slowing, as I've been on the 4 day schedule for over 10 years now. Just remember, everyone is different and what worked for me may not work for anyone else. But I have heard similar stories from other people around my area.
+Paralyzed Living i hope my brothers style can help a lot of sci. Its very cheap and easy to buy enemas and he never had UTI since his accident 2001. He started his enema because they found a tumor in his intestines because he poop once a week. I remember his poop is like brick size thats why he damaged his hole now that looks like flower.he doesnt want his tumor to be operated or removed so he doctored himself. My brother is a type of person who is not afraid to try anything just not to go to the doctors..his motto s IF I DIE ATLEAST I DIE TRYING NOT WASTE MY MONEY PAYING PROFITABLE DOCTORS. But believe me his tumor is gone now.he just put baking soda or sometimes tea in his enema water,we dont know if those ingredients help or just a miracle. He has afriend sci t10 been using sophository for 8yrs he said the tube inside the hole sorry i dont know what its called ,was irritated the doctor sudden decision is close the hole and put a bag at his side belly to poop sorry i dont know what
+Carmela Guanzon continuation 😊 sorry i dsome say the cause is being dependent on the sophository maybe our sophository here in the philippines is not as good you have in america.. We all thinks that my brother using the enema made him healthy. We had him gemeral checked in a lab all is perfect even his high glucose or sugar is now normal without taking any medicines. My brother also hates medicines bec it will destroy his kidneys he said!!! And do a dialysis in a wheelchair is very hard. Sometimes my brothers imaginations is going too far. Even said he can poop everyday since he practice chewing his food as many as can be,not like before 6 chews only and swallow i dont know if that really helps.and he sleeps on his left side and his bed inclined 8inches high.. Now he poops everyday with that blue thing girdle or sometimes those fedex back protection wrapped very streched in body and makes a very strong fake cough or fake vomit after filling hole with water enema
If you don't mind me asking, how did you become paralyzed? I am a volunteer here at the Audie Murphy VAMC. I help out with our SCIC ward. As a retired soldier and disabled veteran myself, I spend time with our hospitalized vets.
I am so glad I watched this. I suffer from a bowel problem and you can get a free sample of these so I ordered one. they even come with an anesthetic. thanks for the info! Peace
I been thinking about doing a video on how to get in and out of a vehicle. I'm yet to see a video how I get in and out. All the videos I see seems more difficult than how put my chair in and out. I drive a 4 runner.
+paralyzed living can you give us an update on how the paint protector is working on your chair compared to your chair that didn't have it on. I have a vocational school, auto collision class paint my chair for me and it got scratched up so bad, and when I get my new chair I want them to paint it again then put the paint protector on it to keep it looking nice. I just want to know if you think it was worth doing.
No one talks or gives info on these kind of things. Real life! Figuring out how to solve new challenges on my own has been difficult. Thank you for making videos and being kind enough to talk about things most wouldn't.
this man is amazing! some lady is very very lucky!
Christine McMillan just do it all in the tub f it.... It's Much easier
One shot and u have water to wash it down that's what I'm doing
this guy helped me years ago deal with being paralyzed....l salute you Sir!
+MrHalmik4 Thanks for the feedback!!
+Paralyzed Living same with me, after my Moto X accident and while I was laying in rehab scared as hell for what lay ahead your video gave me answers to some many questions I had. Big thumbs up!
Its helping me so much right now.
So happy I came across his videos
I had two spine surgeries due to a fatty tumor on my spine I removed it and been wearing diapers.
Being incontinent is so hard to deal with at first
@@ParalyzedLiving Hi Brian, you are a true inspiration and a warrior. Kind regards, from, PaulLaw.
I don't have a spinal cord injury. But I am dating someone who does. I looked up videos about spinal cord injuries in generally because I was curious as to how he functions. These videos are real and detailed. It makes it clear as to how day to day life is. Thank you for providing great videos.
Kelsey Kneese my fiance has been paralyzed for nine years now make sure you take time for yourself as well if you are his primary caregiver coming from someone whom is 24\7 it can be a strain on your relationship but I just wish my man was more independent like the man on the video an more able good luck to you an your man prayers an god bless
I am T10 injured present
You made a choice to be his care giver.........you don't have to be. What level is your guy's sci level? I'm thinking he must be a quad. I am a female combo para/quad and am fully independent. So, unless your guy can't use his arms/hands........then consider sending him back for rehab work at a proper SCI rehab center. BTW I was 24 at injury and am now 61.5. I went back to rehab after my ex walked out when I was 27 and learned to care for myself. Good luck and remember you can leave also if he won't try.
I am not paralyzed and I have watched all your videos out of curiosity lol... good job very informative
You should be thankful. SCI is a serious (underrated) trauma.
MINAH THE CHAMPION same here
MINAH THE CHAMPION
hi, do you have a specialisem in this subject?
MINAH THE CHAMPION I was in a car crash and my legs got trapped then it stopped my nerves when I got to the hospital they told me I was paralysed its ridiculous it's really hard for me to get dressed as I'm only young everyone looks and laughs at me in school but I'm ok now I'm in a special school thank you for listening to my story of how I got paralysed
Just to watch TH-cam I’m proud of you, stay strong and stay smiling my friend
Super helpful. Thanks for not being afraid to talk about the more personal stuff.
The little things you take for granted. What an inspiration.
You are truly amazing!!! My 77year old mother just had a severe stroke---we sat with her today and watched most of your videos and you were such an inspiration to her. Thank you for passing on your knowledge...and your HOPE. You have no idea how much this means to people. GOD BLESS YOU!!
wow, I didn't know that it was that difficult to just go to the bathroom when you're paralyzed. I learned a lot. Thank you.
Thank you for such a much needed video! This stuff isn't easy to talk about.
This is inspirational man I’ve been paralyzed since October 2018 from being shot gives times and am paralyzed from the waist down but your videos have helped thanks a lot 🙏🏿
Thank you for talking about these intimate topics! I'm impressed with how you present everything and you are very honest about the reality of it. Thank you!
As a PT Asst. who has done a lot of SCI rehab, I love your videos! They are among the best out there. Thank you so much for your candor, and keep up the great work!
You are a true inspiration and warrior.
This is an eye opener. I didn’t realize this would require such a procedure. Thank you for producing this video as it will surely help others who find themselves paralyzed.
He is an absolute jewel in how he deals with his life. A lesson for all of us
Your frank discussions are a God send to those disabled and their caretakers. You allow those that are afraid or ashamed to get the answers they may not know to ask. Thank you. You are my hero.
You are just incredible. You're so easy to talk to, listen to. I find myself agreeing with you and then listening to other nuggets of information you share with us. You seem so comfortable describing what and how you do things in order to make it work. Huge respect for you! Thank you for sharing all this information with us. Your comfort level affects my comfort level and it all just works. Thank you!
Guys don’t say nothing just put the damn Like video button for this GOAT. 👏
I love that you are so open about everything. I work in health care and there are so many questions I have for people that I would never ask. And this gives me such a great insight on the lives of my patients.
Thank you for your video. No one wants to cover the bowel program, but you did a great job!
You are so brave for providing such raw, much needed information. Those “uncomfortable” subjects are real life and my heart goes out to you for sharing your story. You are a true inspiration...
It’s so great that you are being so open about subjects that most people don’t want to talk about. Thank you for your honesty.
Your video is very informative. Thanks. I work with a lot of paralyzed patients and I feel empowered by the courage and strength that you have and others challenged with this condition. I have met some of the most beautiful people in my field of work and they inspire me. Thanks for your videos!!!
Brian, thank you so much! I truly appreciate you taking the time to discuss, demonstrate, and walk us all through the conundrum. I have been dealing with these issues for 7-8 years now with no real, detained follow-through guidance. You nailed it and I thank you for your candor and "getting-it-done" attitude. I was inspired and refocused on good management OPS. May God continue to bless and shore you up, daily!
NvrGiveIn you as well!! Thank you!! 😊👍🏼
I have the utmost respect for anyone dealing with these issues. I know I wouldn’t have the strength and willpower to do what you do. I wish you the best bro.
I was watching this just to see the toilet transfer (I have MS) and was amazed at how well you did this video. So informative and while it's not something people wanna talk about, it was very helpful. Thanks for sharing your method!
you are a really courageous man . thanks so much for sharing
My cousin just became paralyzed after a hit and run car accident. He has had so many problems trying to deal with life after and specifically these kind of daily things. He had to be rushed to the ER again for a urinary infection. I didn’t know it was all so complicated. Very informative video!
Hope all is well 🙏
Hi, awesome videos, I saw in another video you mentioned you have gotten your timing better now. I would really appreciate an updated video on bowel and bladder management.
I would never have thought that this would be an issue after an SCI so I'm really learning. Thank you.
What an amazing man, such grace and positive thinking to get through your life, Your an inspiration to all. What a Man....
I have cauda equina due to injuries to L4/5 vertebrae. I am 73 and have bowel and bladder problems.I wear special pads in case of accidents.I am so sorry to see a young person with the same problems as me,I thank him for sharing his story in order to help the rest of us.
Just found your website. I damaged my spinal cord and have all these problems and its great to see and hear this as so many of use have this and its great that you actually talk about poop. The only person I can talk to is my bowel and bladder nurse and it’s so good to chat about the problems to her as no one realises what we have to do. So a big thank you x 😅
Absolutely! I realize it’s “taboo” but it’s a part of the package unfortunately. Thank you for the comment!! Glad it helped even if only a little.
no helped a lot and your other videos thank you so much. 😊
Thanks for being so up front. Most people are uncomfortable about talking about this. Love you are able to discuss it truthfully.
Yes I’m not afraid to share if it helps people understand the process. Thanks!!
You don't hold back. Thanks for your honesty. No need to sugarcoat things when dealing with reality.
Thanks again for making these videos. Not many are brave enough to talk openly about these topics. Even after 35 years, I still cringe a bit when someone asks "How do you..." .
I can handle the sex and pee questions, but this one is a bit of a "Do you really want to know?" subject to me. I want people to have the knowledge, but it's always been our culture's 'hands-off' subject, and it's just a bit embarrassing to me, depending on who asks.
Often, I'll just take the magician's way out "How do you do that?" - "Very well, in my opinion."
You handle these topics Very good and openly. I can now refer people to your videos when they want to know how things work. :D
Take care-
Tony
Respect! ✊
Hey I just found you didn't realize you've been doing videos for so long. I have been a paraplegic for 49 years now seems like a long time I'm 61 years old. My injury is T9 and it seems like over time things do change and one thing works for you 10 years ago may not work now. Keep up the videos I appreciate them and maybe one day I'll share my experiences with you.
I’m 13 years in and there’s always room to learn from others!
@ParalyzedLiving if you have any questions let me know. I am now 50 years plus with my disability and looking forward to retirement.
You know you're doing many people a service by sharing.
You are a wonderful human being to come forward and talk about things people like to keep in the dark, and you bring it to the light. It is real life, and can happen to anyone! Thank you so much for your bravery!!! I
Thank you so much for sharing! We are studying in nursing school and this really helps us to be better nurses.
Love your videos but seldom comment. Been a T9-10 sci for four years now and always learning something different to try. Keep it up!
I love listening his way of speaking and the voice.
Amazing leader for his life and advice for others...you are powerful and a true lightpost for others.
Thank you for going through these routines in a detailed and honest way. It's important for loved ones to know what an SCI patient goes through. You're amazing, and you help a lot of people!
DUDE... you're BRAVE. I have mild Cerebral Palsy, not a spinal cord injury, but still am learning from your videos. I commend you. :-)
Hats off to you for doing this routine. I can put myself in your shoe and I can imagine it. You're a brave man. Note: Your bathroom looks awesome!
Thank for sharing this intimate experiences. We know that is not easy, but this help us to understand better the difficulties that that people with limited movements have with day to day activities. Thanks!
Thank you, my dad is recently paralyzed and its so difficult to figure out these things!
Anastasia Nikitovic so sorry to hear that. It’s tough in the beginning but hopefully he can find his stride. ♥️
Wow hope all is well 🙏
I found this video so interesting, I have worked for years with incontinence in adults and children really good
You are a courageous to share that part of your life with all of us.
Thank you for making your videos and tackling the tough subjects. Great job!
Great educational videos. Transanal irrigation is also a very effective way of bowel management, takes about an hour. Instead of repeated digital stimulation and chemicals, it's just warm water irrigation. Abdominal massage instead. A bit easier for some.
I really appreciate you doing these videos. this information is not readily available to most people. I know this isn't probably the easiest video to do but believe it or not I think you are a hero for doing it.
I use a bum gun (that's what it's called in Thailand) a water hose with a trigger (like what you see on a kitchen sink). Well just hold it up against your bottom a few seconds of water to fill the cavity, then it all comes out easily. Rinse a few more times, to be sure it all came out. Then wait 15 minutes to see if all the water leaked out, then squeeze your nose (then blow) to force any water if left in there
Wow you have had to overcome so so much. And the emotional side of it has to have been enormous dealing with embarrassment of so many things. Brother I am first so sorry but also so proud of you for facing things head on. Facing that embarrassment head on and after a while it starts to not be so embarrassing to talk about bowel movements and sex and ejaculation and having a family and how that is accomplished. You rock God Bless bro
Josh Davis thanks for dropping me a line Josh! I appreciate it!
Love your confidence, I know I am very insecure about this kinda stuff so it really encourages me. Thanks! Also idk if you have heard of it but there is a thing called the ACE program which makes it a lot quicker (about 30 min every other day) and rarely requires manual stimming.
+Cale McGowan I never heard of ACE, I'll have to look into that too
+DiSCIpling Recovery yeah it's definitely a great thing to have
Cale McGowan I'm getting the ace because of spina bifida and issues with accidents or constipation. is it painful?
Kayla Thomasson well I don't have any feeling below my chest so I don't feel any pain but I'm not sure if it hurts or not if you do have feeling.
thank you, I'm nervous to get it done but it's the only option now
Hey just watched your video and of course we all do things different. I'm a T9 paraplegic going on 50 years. My bow treatment is a lot different I'll go sometimes 3 or 4 days without having a bowel movement. Once I get that urge, the feeling to go I will do what we call rectal stretch. That will trigger a bowel movement for me. I also try to eat a lot of fiber with metamucil added to my diet. Tens to work better for me, gives me a lot more freedom where I'm not tied down to an actual bowl care day. This makes it possible for me to be able to go out, go here go there without being tied down to a toilet every other day. Any questions you can always ask. Jay Williams..
Yes, Jay W. There's also another water soluble fiber like metamucil but has no flavor so you can mix it with any flavors you want. Makes good bulk🙂for your muscles to push along.
Your video has helped a lot of people. I even learned a couple of new aspects myself. My previous occupation I was in an architectural firm creating construction drawings. The part I always got the most enjoyment from was incorporating the little extras over and above the basic code for assisting the disabled while they were using public facilities. Currently I have the ability to design a home which is only a block from a university to incorporate some of these items. I aim to do a wet room bathroom so it doesn't matter if the water is contained. It allows for an open plan.
*I was wondering if a hand held wand shower next to the toilet could be a useful accessory for toileting? A recessed shelf for storing washable cloths in addition to toilet paper?*
While I am aware of bidet equipped toilet seats I can imagine so many aspects of them that could go wrong if one was not perfectly seated and of the correct body shape. They seem to be extremely over priced; possibly they are imported from Japan.
Electronic bidet. Imported from Hong Kong, into the Australian Capital Territory, where we have been living for the last 20 years.
Extremely happy with it.
Assists with urinary and bowel problems. Before, during and after use for medical purposes.
The hot air blower also dries, after washing. Very reliable, quiet and trustworthy. Not at all expensive. Just a few hundred dollars, easily fitted by the local handyman.
you have given great courage thanks
very mature handling of this topic....
Thank you for the information Bryan I don't have a spinal cord injury but I do have CP a birth defect and I am also in a wheelchair because of my disability I live alone I have my own apartment and I've been living on my own for several years now overtime specially being by yourself and living by yourself your disability does get easier easy ways and learn how to deal with your disability does or you being disabled you just have to learn how to make it work for you that's what I be trying to tell my grandmother because when you have a disability is permanent and it's not going to go away but you learn how to deal with it overtime and I wanted to get my own apartment because I I got tired of living with people in a family I wanted to learn how to live on my own and learn how to do things by myself and learn how to take care of myself better when you living with family they want to do everything for you and I don't like that because I am a very independent woman and I don't like everybody doing things for me all the time 24/7 because I'm not a mama's girl and I'm not I'm a daddy's girl but I'm also independent and I like to do for myself and be by myself but soon I won't be by myself I'll have my baby girl and I also have to learn how to take care of my soul so I can learn how to take care of her because being a mom is my responsibility is nobody else's responsibility to take care of my child or my children that I decide to have in the future if I decide to have anymorejust because we have disabilities don't mean that we're not human we deserve to have a regular normal life like everybody else and some people they treat us just because we have disabilities and challenges of that nature they think we unhuman and it's not fair and it's not right I'm willing to do whatever I have to do to be a good person so I can be a good mother to my baby girl because at the end of the day that's all I have I don't have anything else I got my family but you know I have to I have to have my own life too if my family want to be a part of my life than more than welcome to but I don't have time to deal with the nonsense because I have someone else that I have to think about now my baby girl when she comes into this world and I don't have time for nonsense and drama and I don't want that around my daughter.
Thanks for sharing such intimate details. Very educational for others. Your brave and one great person to care about others like you do.
Thank you for sharing this. I know it's very personal, but thank you for showing us.
I think using the bidet will be much easier and cleaner .
You are a treasure, sir. It takes courage and strength to place yourself in the hands of total strangers. May Jehovah God give you the strength to continue moving forward. 😉
Great vid on a tough topic. For the longest time, I went through the day feeling like I was a ticking time bomb - never sure if/when it would go off. My program started with Mirilax and 3 Senekot at night and a suppository in the morning. After a while, my bowels just kicked into a good timing. Now, I take 3 Senekot at night and that's it. I usually go every 1 or 2 days, rarely every 3 days. My morning program, same thing with the digging etc., usually lasts about 15 minutes, and I can then tell that that's it, that's all. Don - T4 complete for 3 years.
Love u bro Lots of Love 💕💕 from India
Thank you for such a informative video you sir a such an impersonation to others who have spinal cord injuries and for other people who have to help themselves go to the restroom for other health reasons. I will pass your video on to others who need this information. God Bless You!
Good attitude, good job! Best of luck. Would love to hear from you
I typed my comment for about an hour but I dont have the courage to post it publicly. I really like to learn more things about how to do things after a SCI. I wish you could talk more about your bowel management and diet on your next videos.
I can do that. Always feel free to send me a private message if you are uncomfortable posting publicly.
You have no idea what a inspiration you are to me thank so much for sharing your awesome videos... god bless my friend
This was so incredibly helpful for me and my daughter. Thank you so much!!!! ❤❤
YOu are strong...positive...brave and blessed.
Thank you for sharing … I know it's not an easy topic to discuss 😐
You are amazing. Stay encouraged!
Thanks for this one. I've wondered for a long time whether other people do this differently than I do. Apparently they do.
Thamk you so much for these videos I wish I found them before I was six months out because now at six months I think I’m going crazy but your videos do you have a lot better than their corporate videos that are just confusing thank you
Actually with the transfer you doing to the toilet it’s unbelievable I used to fall once a week I’m gonna try this it looks so much easier than hopping over that damn wheel!!!
i myself used to do a similar routine (for 25+ years) then changed. I try to eat better, lots of berries for example, now i check 1 or 2 times/day. Depending on how i feel, usually in the mornings I can tell from AD indicators, like blotchy flush legs for example, I now have a routine that takes up less than 5 mins/day, try to baredown as much as possible as well. Found that you do not need to empty your entire bowel, just lower. "Listen" pay attention & you will get to know the triggers if its AD or such. everyone is different of course but for me it didnt take anytime to get used to the new routine & its made a huge difference in my life. good luck all. dont hesistate to ask peers.
❤❤❤thank you so much for sharing your experience!!! And to help more people out there. You are amazing 😍
Hi Brian, my injury is t7-8 and I use a suppository too. Instead of putting in the suppository after the toilet transfer I usually insert it into my butt 10-15 mins before I transfer so I don't have to keep my finger inside the whole time.
when i became a paraplegic after an accident i wasn't scared about never walking again or anything like that. people can pretty much have a normal life and even a good one in a wheelchair. sure there all A LOT, So Many challenges but still it can become a great life. i was scared about my bowel and Bladder challenges. that's what scared me. not being able to control that. i went through a bowel management program and it has help A LOT but still having to do so much just to go to the bathroom is Hard!!! but i got the hang of it. i have control back.
I understand this is from 2016 I have been a complete paraplegic since 1978. I use the same digital stimulation but w/o a suppository worked fine until my last anterior/posterior cage fusion.My digestive system has not been the same nor has my urinary system I was able to self cath now I'm back to a li dwelling cath now! I'm 57 now and my recent problem is diarrhea without warning and a depend is not dependable lol, My BM for the last 30 years have taken up to 2 to 6 hours I have a spare bedroom so I prevent skin breaking down! This has changed my usual upbeat attitude I was a fiercely independent now feeling defeated for all these years! I have a bladder procedure soon & then onto my other issues! Not the most cheerful comment but being paralyzed is very unpredictable but still what we make it? Not really questioning but any insight is appreciated as well as your channel Brian you are Awesome 👏 ( surgeries was 200
Wow, 2-6 hours seems like a long time! I'm really sorry to hear about the more recent issues. Have you tried increasing your fiber to keep from having loose stools? There has to be something you can do to get that under control. I'd be more worried about #2 than #1. I understand it can get you down but keep looking for solutions because I don't think it's just something you have to accept.
I ordered some of those mini enemas today. I a pretty high functioning c7 incomplete. I've been using the glycerin suppositories and digital stim with limited success. A lot of the time, I end up going to work and other activities with the feeling that I still need to go or haven't finished. It's very debilitating. I tend to sit most of the time and avoid going far from a private bathroom. It makes me a prisoner in my home on the weekend not wanting to leave the house. So my plan is to use those every other day or every third day to see if it will help complete the process. I'm going to allow more time on those days and will take extra clothes to work just in case. And suggestions?
i'm the same Todd.I always carry rechangable clothes and depends underwears when i go out and i'm on my stool softners and fiber supplements.
Hey Todd hope you are doing good, I was wondering do you have family with that last name that live in Cleveland Oh?
@@kimr.2284 No, my nephew lived up there about 5 years ago for a year or two but his last name isn't Register.
Thanks a lot. This will help me better understand how to project such bathrooms.
Thankyou for this video. It's a difficult subject however you tackle it. I have problems in knowing when I need to go. I'm not paralyzed but I had an accident which fractured my spine (l1l2).
Enemeez are great. I've tried several other things, but nothing else seems to work quite as well.
How you dont mind me asking but what point of you spinal cord is injured? I'm a t6 complete paraplegic.
Great video btw 👍🏻
I do the same thing but a 7pm. I just came across those enemas. You wouldn't think the difference between an enema and a suppository would be so different but it makes a world of difference. I also spend about an hour in the bathroom. My biggest fear is that I will have a problem during the day or at night.
Very good job on a very touchy subject thanks a lot it really helped me out. God bless you
A nurse once told me to rub in small circular circles (gently) from right to left and from the bottom of the right side to top and back down on the other side (like an upside down 'u') to get things moving.
Great video! Honest and to the point😀.Thanks
My brother is a sci t9. He only takes 10 minutes to poop using a rectal enema for 1 yr already and learned to push?before it takes him more than one hour or more!.now he customized a enema tank made of stainless. He said it changed his life not anymore waiting for poop to come out. Sorry for my english
+Carmela Guanzon Thanks for the reply! I would like to hear more on his set up.
+Paralyzed Living I would also lie to know more as I spend almost 2 hours at a time and then not even sure if my bowel is 100% out
+Neil van der Merwe For Me, (sci T-7) it's always been difficult to know "for certain" if I'm 100% finished. It's a matter of faith, especially now that I'm over 50 and been paralyzed most of my life.
When I was newly paralyzed, I did a digital stim every night before sleep, and was able to empty my lower bowel pretty good every night. After about 5 years, it slowed and I had to do it every 2 nights. By the early 1990's it was every 3 nights. Then I got married and had to change it to mornings and my body changed to every 4th day, and I have to use a suppository, which can cause accidents later in the day/night. Just something I have to deal with as it comes.
I think my body has finally stopped slowing, as I've been on the 4 day schedule for over 10 years now.
Just remember, everyone is different and what worked for me may not work for anyone else. But I have heard similar stories from other people around my area.
+Paralyzed Living i hope my brothers style can help a lot of sci. Its very cheap and easy to buy enemas and he never had UTI since his accident 2001. He started his enema because they found a tumor in his intestines because he poop once a week. I remember his poop is like brick size thats why he damaged his hole now that looks like flower.he doesnt want his tumor to be operated or removed so he doctored himself. My brother is a type of person who is not afraid to try anything just not to go to the doctors..his motto s IF I DIE ATLEAST I DIE TRYING NOT WASTE MY MONEY PAYING PROFITABLE DOCTORS. But believe me his tumor is gone now.he just put baking soda or sometimes tea in his enema water,we dont know if those ingredients help or just a miracle. He has afriend sci t10 been using sophository for 8yrs he said the tube inside the hole sorry i dont know what its called ,was irritated the doctor sudden decision is close the hole and put a bag at his side belly to poop sorry i dont know what
+Carmela Guanzon continuation 😊 sorry i dsome say the cause is being dependent on the sophository maybe our sophository here in the philippines is not as good you have in america.. We all thinks that my brother using the enema made him healthy. We had him gemeral checked in a lab all is perfect even his high glucose or sugar is now normal without taking any medicines. My brother also hates medicines bec it will destroy his kidneys he said!!! And do a dialysis in a wheelchair is very hard. Sometimes my brothers imaginations is going too far. Even said he can poop everyday since he practice chewing his food as many as can be,not like before 6 chews only and swallow i dont know if that really helps.and he sleeps on his left side and his bed inclined 8inches high.. Now he poops everyday with that blue thing girdle or sometimes those fedex back protection wrapped very streched in body and makes a very strong fake cough or fake vomit after filling hole with water enema
Hello, thank you for posting. Can I ask if you are upper or lower motor neuron? Thanks again!
If you don't mind me asking, how did you become paralyzed? I am a volunteer here at the Audie Murphy VAMC. I help out with our SCIC ward. As a retired soldier and disabled veteran myself, I spend time with our hospitalized vets.
I was in a motorcycle accident. There is a video talking about how I became paralyzed. Glad you are helping others too!
I am so glad I watched this. I suffer from a bowel problem and you can get a free sample of these so I ordered one. they even come with an anesthetic. thanks for the info! Peace
thank you my respects. I'm new injure and i. didn't know the we can go with out the commode.thanks.
I been thinking about doing a video on how to get in and out of a vehicle. I'm yet to see a video how I get in and out. All the videos I see seems more difficult than how put my chair in and out. I drive a 4 runner.
+paralyzed living can you give us an update on how the paint protector is working on your chair compared to your chair that didn't have it on. I have a vocational school, auto collision class paint my chair for me and it got scratched up so bad, and when I get my new chair I want them to paint it again then put the paint protector on it to keep it looking nice. I just want to know if you think it was worth doing.
I wonder if a bidet might help you. The water stream might be able to stimulate instead of your finger?
You're an inspiration!