Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Young Panel: Sorcha

In February 2023, 15 young adults, all suffering from different but rare liver diseases, met at an ERN RARE-LIVER Transition Workshop in Ghent, Belgium. Together they founded the first cross ERN Youth Panel.
Their goal: to make their situation clear and to bring their unmet needs to the public.
To give our members a platform, we will be releasing new videos in the coming weeks.
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Share with us your feedback by emailing [e-mail] and join the conversation on social media using the hashtag #RareLiverYouthPanel.