Patient video: How to use the ERN RARE-LIVER registry: R-LIVER

ERN RARE-LIVER has established a multicentre European patient registry called R-Liver. The registry addresses a major issue with rare liver diseases which is the lack of data and the fact that data are fragmented and scattered across different countries.
This new video not only introduces the registry and its benefits, it also explains to patients how it works and what advantages their participation in the registry entails.