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A new test for Parkinson's. Does this bring us closer to a cure?
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- เผยแพร่เมื่อ 4 ส.ค. 2024
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Scientists have created a tool for identifying proteins associated with Parkinson’s. This means that we finally have an accurate test for diagnosing Parkinson’s, even before symptoms appear. Although this is NOT a cure for the disease, this tool represents a big step forward in understanding how this condition works and will be crucial for developing disease modifying treatments in the future.
Jodie Forbes not only lives with Parkinson’s, but also works in Parkinson’s research. He talks to Peter, our video producer at LivedHealth, about how promising this news is for the Parkinson’s community.
Link to the Michael J Fox article: www.michaeljfox.org/news/brea...
Link to scientific article: www.thelancet.com/journals/la...
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*The information in this video represents the views and opinions of the participants. The content is not intended to be a substitute for professional medical advice.
Any research discussed in this content may be subject to participant interpretation and conclusions may change as new research emerges.
Never delay seeking medical attention or disregard medical advice because of the content in any of our videos.
#Parkinsons #ParkinsonsDisease #ParkinsonsAwareness #MovementDisorder #Dopamine #MJFF #MichaelJFoxFoundation
Read the research paper here: bit.ly/PDProteinPaper and the announcement from MJFF here: bit.ly/MJFFNews
Thanks for the video
A friend of mine was diagnosed with Parkinson's Disease several months ago and I will send him this information so maybe he will hopefully feel less fearful than he is now.
Thanks for the video. Good news indeed.
Thank you for your comment! It absolutely is. We'll share any updates as soon as we get them so make sure you're subscribed ✅
Wow…!
Waiting to see a Nurologist in October, my ENT specialist has refered me, do have some symptoms, thought i've had it for more than 13 years, i've started taking over the counter CBD oil to help & so far it's helped with tremors.
Try using cannabis. I have had Parkinson’s for 8 years and I found THC. I use capsules and 5mg takes away the tremors but it is not enough for any “high” effects. It almost gives you your life back. I live in Canada so cannabis is legal.
So it means they still haven't found a cure so nothing new
As a person with Parkinson's I feel the same way - I was diagnosed 7 years ago and it often feels like we've not progressed much in that time. But the reality is that the condition is very complex and it's a long hard scientific journey to figure it out. I've no doubt that we will find better treatments ("cure" is something more challenging and will take longer) but it's going to take ongoing effort, and money, to get there. The c. $2 billion that MJFF have raised sounds like a lot but it's not so much when you consider that $0.5 trillion was spend finding treatments for HIV/AIDS and much more than that for cancer treatments over the last few decades. We need to keep pushing to help the 10 million people in the world who have this condition, and the many more with other neurodegenerative disorders. This is one small step in the right direction.
😮
Unfortunately the test still seems quite invasive. As Dr Laurie Mischley points out, there are likely millions of people with pre-diagnosis PD. If they knew, they could dramatically reduce their progression rates. The ideal goal would be an easy blood test, which could be given routinely to patients to catch it much easier. This announcement is progress, but seems unlikely to me to reach extremely broad applicability.
Agreed, it will be much better if and when, this is a blood test rather than a CSF test
You’re quite right in that a lumbar puncture is no small undertaking. This is only the first step. As Jodie emphasises, being able to have a (almost entirely) definitive diagnosis will save years of uncertainty for many.
Thank you for your insightful comment.
It is hard to understand you! Could you please slow down?
@@LivedHealthParksp
Parkinson excercice
Is this true
It is indeed!
Its reality sir parksons dieces treatment cure able. ?
This is a huge leap forward in getting there!
Very strong disagree w/the doctor's point that diagnosis during prodromal stage is not useful. If patients are shown during that stage that unless they start exercising and taking diet seriously, they *will* get parkinson's, it could be extremely motivating. They'd then be able to adopt strategies to slow progression. Holding degeneration to 30% of dopaminergic neuron loss for years rather than waiting until 50% are lost is a major quality of life improvement, and also delays dementia and other serious symptoms by years and years.
Thanks for your comment. I should explain that I'm not a medical professional and add a disclaimer that the views expressed in the video are personal. I was diagnosed with Parkinson's a little over 6 years ago; before my diagnosis I was a marathon runner, and already did regular intense cardio exercise and generally had a healthy diet. So, in my case, to find out 5 years earlier that I was going to develop Parkinson's would not have been something desirable. I'd be interested to see evidence that it really is possible to hold degeneration as significantly as you suggest by lifestyle changes; obviously if this is the case for some people then an earlier diagnosis could be very helpful. Thanks, Jodie
Thank you for the feedback. It highlights well that everyone’s experience with Parkinson’s is entirely unique. Jodie has explained his perspective from having lived with YOPD for years (he is incredibly knowledgable and dedicates a lot of time to staying informed, but is not a medical professional).
Talked too fast...didn't understand a word he spoke !!!
I'm so sorry you found the speech too fast. You can slow down the video using the video settings (small cog icon in the bottom right of the video, then chose "Playback speed) which may be helpful. Hopefully you'll be able to watch the video this way as it's a big topic :)
not at all voice is clear or audible, as if they are talking to themselves !!
Sorry about that. It's 7 years since my Parkinson's diagnosis and my speech has deteriorated over that period. This is a common problem with the condition. Perhaps we should do a video on the topic...
Jesus, don't speak so quickly!
Sorry about that. It's caused by the Parkinson's - the words sort of rush out. I'll try to slow it down on future videos. Would subtitles also help?
@livedhealthpark - I believe they meant the doctor you are interviewing speaks quickly. You speak very well and are easy to understand . Thank you ❤
@@VioletteClark , I am the person being interviewed 🙂