What a remarkable panel of SHERO's! I'm a 59yr old PALS and I appreciate hearing how you'all are making a difference in spite of your diagnosis. We're all in this together my sisters
God bless these special ladies, I have niece who is 54 that was just diagnosed, so I am interested in what to expect. She has started to get treatments at the Miami clinic, but in’s does not cover it so I a, praying she can find ways to help her pay for treatments. You ladies are wonderful to share your experiences with us.
Thank you for sharing this with us. If you or your niece need support of any kind, please know that we are here for you! Our ALS Support Team can be reached any time at gethelp@iamals.org.
Thank you ladies, I really appreciate you sharing! I was diagnosed 4 months ago. My local support group, although wonderful, is all men. It's been wonderful to hear from women and the things that we all face that are different from men. Thank you so much for providing this!
Thank you so much for sharing this with us! We wanted to reach out and let you know that for this event, we partnered with Her ALS Story, a group designed for and made up of women who were diagnosed with ALS before the age of 35. You can learn more about them here: heralsstory.org/ We also wanted to let you know about our virtual support groups here at I AM ALS. Our People Living with ALS support group has many people of all genders who attend regularly. Check it out and see if you're interested: iamals.org/action/join-a-support-group/
May I ask how you were diagnosed and what did your test show? I had an abnormal emg and recently was told my respiratory numbers are dropping I have some type of muscular condition and they are trying to rule out als...
@@crystalr9633 Hi Crystal, I had problems moving my toes, so I had 3 MRI’s and then a nerve conduction study and blood tests. As I only know what happened to me, I can’t comment on EMGs, but I wish you all the best.
Brave young ladies but soon no one will say i am sick in jehovah gods new world here on earth like in the garden isiah 33:4. Thats a fact❤❤ Jehovah god found in psalms 83:18 the almighy cares
What a remarkable panel of SHERO's! I'm a 59yr old PALS and I appreciate hearing how you'all are making a difference in spite of your diagnosis. We're all in this together my sisters
I’m a Nurse.Thank you for sharing.God Bless each of you!
What a fab group of ladies! 🙌
Respect my sister passed from this diease
how in blazes did you cope - even leading up to her passing? my thoughts to you
God bless these special ladies, I have niece who is 54 that was just diagnosed, so I am interested in what to expect. She has started to get treatments at the Miami clinic, but in’s does not cover it so I a, praying she can find ways to help her pay for treatments. You ladies are wonderful to share your experiences with us.
Thank you for sharing this with us. If you or your niece need support of any kind, please know that we are here for you! Our ALS Support Team can be reached any time at gethelp@iamals.org.
Any progress with treatment? Thanks
Thank you ladies, I really appreciate you sharing! I was diagnosed 4 months ago. My local support group, although wonderful, is all men. It's been wonderful to hear from women and the things that we all face that are different from men. Thank you so much for providing this!
Thank you so much for sharing this with us! We wanted to reach out and let you know that for this event, we partnered with Her ALS Story, a group designed for and made up of women who were diagnosed with ALS before the age of 35. You can learn more about them here: heralsstory.org/
We also wanted to let you know about our virtual support groups here at I AM ALS. Our People Living with ALS support group has many people of all genders who attend regularly. Check it out and see if you're interested: iamals.org/action/join-a-support-group/
@@IAMALS Thank you ❤
May I ask how you were diagnosed and what did your test show? I had an abnormal emg and recently was told my respiratory numbers are dropping I have some type of muscular condition and they are trying to rule out als...
@@crystalr9633 Hi Crystal, I had problems moving my toes, so I had 3 MRI’s and then a nerve conduction study and blood tests. As I only know what happened to me, I can’t comment on EMGs, but I wish you all the best.
What a beautiful group of people
Is is Darlene and I am my husband's care taker. I will keep you all in my prayers.
Incredible women !!
only women could organise and manage this. . .cheers to you all
Amazing women ❤❤❤❤❤
You all are very beautiful ❤😊
Brave young ladies but soon no one will say i am sick in jehovah gods new world here on earth like in the garden isiah 33:4. Thats a fact❤❤ Jehovah god found in psalms 83:18 the almighy cares