Myoclonic seizure | Types of seizures
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I've had severe myoclonic jerks, that have ruled my very existence since age 7, now I'm 59yo. ÌF, I don't take my medications correctly and in a timely manner, my life has very little quality to it. I'm bound to the bed or the floor. Lay low, so you don't have far to fall. In 2010, I stood up, had myoclonic jerks and virtually shattered my fibula and tibia, landing me in the bed for 2yrs!!! Epilepsy is wicked, uncaring and unkind. There is NO end to this chronic disorder and, yes, it can be fatal. Stay strong mentally, physically and emotionally. Stay out of stressful situations, away from drugs and alcohol and blinking rhythemic light sources (i.e. ambulance/police lights, disco lights, xmas tree lights). Surround yourself around people who genuinely care about you.
I think I am gonna cry
You are a really strong man
keep being this awesome mentality
I'm 24 and goin through it now 😔
@@ashishorton3903 there is no remedy for this, suddenly my 8 months daughter also facing this
I am so sorry i dont know if i habe myoclonic jerks but i always tilt my head sisde to side and uo and don really fast and i have a sore nack and i cant control it
Does television also bring on the seizures? My FIL has this and he mainly sits in front of the tv all day (he’s 80 yo and frail).
Thank you for posting. Learning about them in class, but didn't actually know what they looked like
I have myclonic epilepsy too , i will begin to fee it when I wake up early or don't have enough sleep
Is it curable?
@@lavanya2921 I never seeked medical help , I just make sure that I get enough sleep , ofcourse I have many limitations becouse of that
Hii
@@lavanya2921 i controll my sleep hours .. i never gone to a doctor
Apne kaha aur kisi ko dikhaya hai
Tqsm
🔥
I am getting vasovagal attacks and start to hyperventilate and BP drops alot. Any suggestions?
My myoclonic jerks aren't multiple movements in succession like this. They are one movement at a time that can occur in different parts of the body. They could be spaced out by a couple of minutes or much longer. Would these be considered myoclonic jerks or myoclonic seizures? I'm undiagnosed as of yet, waiting for a neurologist appointment.
Mine were the same. I'm medicated and it is gone. I had one recently in a monday after drinking during the weekend and skipping medication. Did you take skull MRI? I found a little low grade tumor and an incomplete inversion of the hippocampus, which are probably the cause. Are you diagnosed by now? I take valproic acid.
Check out the vídeo i just uploaded
@@Joao-zw7iq I'm not diagnosed yet as I've been waiting ages for a neurology appointment, which has now been set for early May. I had an MRI ordered by the GP, which came back normal, however, one GP I spoke to said it's not the same type of MRI that would be ordered by the neurologist as the GP can't order those. So I don't know how much it would have ruled out.
@@phoenixfriend my first MRI was simple (but with findings) and then 1 month later I had an special MRI, with espectroscopy and perfusion (I guess this is the name in english, in portuguese is espectroscopia e perfusão), that confirmed that the tumor is low grade (not to worry, but I'be having MRI every 6m from now on). But those findings were accidental, and the diagnose of epilepsy is generally clinic. I take depakene (depakote) and the myoclonics stopped.
@@phoenixfriend film yourself during the moments you usually have the jerks, try to capture some, it will help the neurologist
Is this cure??
Even I am suffering from myoclinic seizures.. dont know how to deal
Consult a doctor he will give you pills and you’ll stop having them
@@jeffnas7869 how
Medication. VALPROIC ACID. Working with me.
sodium valporate is for epilitic attacks and how longa person can take morning seziures shatters my confidence no one can understand your pain .. god help save poor souls
Does the limb/extremity have to move for it to be considered a myoclonic seizure? Or is a twitch of a muscle that doesn't cause a limb to move considered one as well?
Curious as I have been diagnosed with epilepsy for several years now but the doctors have never told me what kind of seizure I have, this seems to line up with what I have noticed.
If it is a simple muscle twitch which usually doesn't cause problem, thats physiological myoclonus.
By definition myoclonic epilepsy is when you experience spasm, jerks or limb movements which requires treatment of underlying cause (many conditions can cause this). If it is still yet not resolved then you might need anti-epileptic medications.
@@ApurvaPopat Thank you so much.
@@ApurvaPopat sir i am taking levera 2000, epilex chrono 500, rovotril 2mg. Still i have started getting severe repeated jerks while sleeping and i just cant sleep.. what should i do??
Mine is the twitch of the muscle and sometimes shake.
@@babysnoops14i am also having them. Taking neurobion forte has reduced it
those are some good friends
myoclonic seizure or elipesy person can get pwd benefits in india?
No, epilepsy is mental illness and PWD reservation is for physically disabled
Very helpful video but I think a drop-attack is missing in this video. My son would have drop-attacks 50-60 times a day. And he would also have satile myoclonic seizures.
I think your referring to atonic seizures where they just drop out of no where and I have those too many people with juvenile myoclonic epilepsy do but for me myoclonic jerks are much more common and they don't always happen together
Mine is in my legs but the muscle would twitch and bounce up and down.
What is the cause?you got any headache?
@@pratikmondal7723 no I don't. Turn out I got Focal seizures and Absence seizures.
@@babysnoops14what does that mean. My son is been getting leg jerking lately for few seconds on and off for like 5 minutes. Are you being treated now and how are you?
@shonap.7929 yes that what mine is like, it's last few seconds to few minutes.
The specialist put me on med as soon as he spoke to me and my mum back in 2020 after a urgent referral from the GP because I had few seizures back to back at college which I didn't realise at the time. Since then it's increase badly in 2021 due to Infections I had which put me in hospital for few days.
Hey doc mujhe abhi shayad symptoms aa rahe hai. Philhaal eeg karne bola hai. Or mri mai subependymal region of left ventricle wall mai spot dikha hai. It either may calcific and hemorrhagic. Daar to lag raha hai par .....
Filhaal kuch nahi hai bus aaj feb 13 , 21:30 ko aisa lag raha hi ki left side ka cheek mai kuch bhari sa sensation ho raha hai. Abhi taak mujhe iske sirf do episode hi hue hai. And agr mera le to mujhe saal mai kabhi ek barr mere lips ek side ki or khich te the...
Ummed to hai thik hobe ki
Philhaal oxycarbamazepine diya hai. 😊
So sorry to hear this, please contact your neurologist
क्या इससे आदमी मर भी सकता है?please reply।मैं बहुत परेशान हूं।
Ye thik kaise hoti hai ??
No! I have it for 17 years and i had more intense jerks than in this video.
@@blossomsoflife5600 ye kaise thik hoga 😭
@@JayEditz623 now it’s better, because the anti epileptic medications caused more seizures. I changed my diet, my room where to sleep, and go back to herbal medicine, i am good now, no seizures for weeks.
Mayoclinik sizure aate he to sodiyam velporet teblet lo bahot aaram milega mera bete 9 saat ka he kahi se garam na hi mila abdut jake bahot aaram he gaverment hospital se dawA bhi free milti
are myoclonic seizure fatal ,
if someone have them they gonna die with it in few years because of deterioating conditon
NO, they are not fatal. I get them very bad, worse then this video, in my shoulders and legs kick too. I am not worried. It's more embarrassing than anything. There is medicine you can take to help stop them. See your doctor. There are also groups on Facebook that people who have this talk about it. Very helpful.
@@diegodogs i mean are they related with any neurological degenerative disease with detoiraiting condition and gonna kill is im few years
@@wastedlife9864 Nope.
Do you have it?
@@spidermama5597 well i am yet to be diagnosed in coming days but when i rest ,sit my body especially legs they themselves jerk and sometime my back a little bit , not that much if i would fall but observable to someone and i have hypothyroidism, vitamin b12 deficiency, vitamin d deficiency
@@wastedlife9864 OK..
Good.
Have you thought about taking Homeopathy treatment??
Tip No alcohol!
Some is fine with alcohol