A complete organized library of all my videos, digital slides, pics, & sample pathology reports is available here: kikoxp.com/posts/5084 (dermpath) & kikoxp.com/posts/5083 (bone/soft tissue sarcoma pathology).
My younger bro had Stevens-Johnson at 13 a number of years ago. Absolutely brutal to watch him go through the process, he was in the hospital for about a month.
I'm sorry he went through that. SJS and TEN are awful diseases. I use these as examples of how a "rash" can sometimes be incredibly serious. And why antibiotics shouldn't be overused, as they are often the trigger that instigates SJS and TEN.
I had a severe Form of Erythems Multiforme my lips were looking like on the thumbnail i couldn’t eat anything solid for 2 week and only drink water without soda (the prickly) It felt like i wrapped Barbed Wire around my Hands and arms Just awful! But now luckily only the pigmentation defects remain
Hi my love sorry for what you went through . 11 years ago I had TENS you can see my story at “ SJS Awarness” my name is Heidi Garcia I am here for you if you ever need me. Soon I will put my pictures. I love you and understand your pain. TTYs
@@arminst6962 Hi my love sorry for what you went through . 11 years ago I had TENS you can see my story at “ SJS Awarness” my name is Heidi Garcia I am here for you if you ever need me. Soon I will put my pictures. I love you and understand your pain. TTYs
Me and my mother both had this. Hers when she was around 9, and me two years ago when i was 16. The most frustrating long term effect is the anxiety. I always over examine every little thing my body does, and i don’t trust any medications anymore. I had a more “mild” case, because my mother caught on what was happening early, & i got help ASAP. Only had to stay in the burn unit for 6 days. But i don’t know why i just can’t seem to get over the fear of it coming back worse. I cant stop having nightmares about it, and it’s exhausting.
I’m so sorry! I think it’s totally understandable that many patients who had a very serious medical situation will feel anxiety about having a repeat episode or some other bad illness. But I also think this is something worth seeking help for. Please talk to your doctor (either primary care or a psychiatrist) about options to help manage and deal with the anxiety. This might include medication, therapy/counseling, or a combination of these. Everybody feels anxious sometimes, but when anxiety is severe and relentless and gets in the way of our normal every day life, then it becomes a serious problem that can make life miserable! Please seek help for this so that you can have some relief and feel less anxious. Best wishes for health and healing and peace. ❤️🩹
My brother just got diagnosed with sjs/tens and he had talked with me about seeing all the signs pop up while my parents were out of town. We were about to go to the hospital but he went to a pediatrician who couldent diagnose it so a few days later he went to er. I hope he will be ok
Hi, my mother is going through this, It's been a week and I cannot watch her like this. It would be great if anyone of you can respond to this message and tell me how much time it takes to recover. Her whole body including backa and hips are burned and She is not in the position to move. I am really scared right now. Please respond.
All your mother need is support from you guys . From her family cuz person loses hopes when they are not with their fam . And yes it will took months for. Her to fully recovered the scars are painful now so bbe careful
@@tonyasimmons61 1.5 months in ICU and then 3 months of home care. But she is all better now! It's been months since she got better, but I am still crying writing this. No one has to go through this!
My grandpa had this and died it was hard to handle and praying for anyone who has this. This case is horrifying to watch and see someone go through R.I.P everyone who died from this💔🕊
What youre showing with the mouth looks exactly like what keeps happening to my husband. He doesnt take any meds to trigger it though and he wasn't sick with a virus. He also doesn't have any skin involvement. His mouth skin just melts off and seals shut from the tissue trying to rapidly heal. One time his condition was ignored by his doctor and his eyes became blood red. He's had 3 of these outbreaks over his 20s and 30s. They think it's behcet's but it doesn't affect anything besides his mouth. Negative for pemphagus
Lol,i had sjs in December 2022. I survived took 1 month for the blister to heals completely but the whole recovery from eyw to toe took few months . My whole nails shed away + hair lose . My tongue had blister which is till not completely healed but yea im glad that i survived. Juts eye issue is stilll there and im fucked up that. But happy to be apive noow. Just concern about my skin cuz it has those scars and ithe texture of my skin is not same and i wanna go back to normal. Confused about the product
I had sjs when I was 22 I was in the ICU for a month and the regular hospital for 2 months I was given a bunch of drugs for pain and had no pain management and ended up addicted for years it didn't just end for me I'm now 32 years old and still struggle with addiction
Its very hard. Im a victim of sjs in 2013 because neomycin eyedrop and opname 40days in hospital. until now in 2021 the scar on the lips has not gone away
I haven’t heard anything about a history of SJS disqualifying someone from getting the Covid vaccine. If there is any contraindication I am not aware of it.
A complete organized library of all my videos, digital slides, pics, & sample pathology reports is available here: kikoxp.com/posts/5084 (dermpath) & kikoxp.com/posts/5083 (bone/soft tissue sarcoma pathology).
My younger bro had Stevens-Johnson at 13 a number of years ago. Absolutely brutal to watch him go through the process, he was in the hospital for about a month.
I'm sorry he went through that. SJS and TEN are awful diseases. I use these as examples of how a "rash" can sometimes be incredibly serious. And why antibiotics shouldn't be overused, as they are often the trigger that instigates SJS and TEN.
I had a severe Form of Erythems Multiforme my lips were looking like on the thumbnail i couldn’t eat anything solid for 2 week and only drink water without soda (the prickly)
It felt like i wrapped Barbed Wire around my Hands and arms
Just awful!
But now luckily only the pigmentation defects remain
Hi my love sorry for what you went through . 11 years ago I had TENS you can see my story at “ SJS Awarness” my name is Heidi Garcia I am here for you if you ever need me. Soon I will put my pictures. I love you and understand your pain. TTYs
@@arminst6962 Hi my love sorry for what you went through . 11 years ago I had TENS you can see my story at “ SJS Awarness” my name is Heidi Garcia I am here for you if you ever need me. Soon I will put my pictures. I love you and understand your pain. TTYs
Same my brother got it
I am an SJS/ TEN survivor too .The worst thing that had ever happened to me.😭
Me too, send me a DM. I have never connected with another survivor.
@@c.bennett5348how will i sent???
Likewise I survived this from Adderall
How long does it take to recover from this ?
@@statia98 for me the pain last for almost two weeks….But the spots in my body is still there and it almost one year now.
Me and my mother both had this. Hers when she was around 9, and me two years ago when i was 16. The most frustrating long term effect is the anxiety. I always over examine every little thing my body does, and i don’t trust any medications anymore. I had a more “mild” case, because my mother caught on what was happening early, & i got help ASAP. Only had to stay in the burn unit for 6 days. But i don’t know why i just can’t seem to get over the fear of it coming back worse. I cant stop having nightmares about it, and it’s exhausting.
I’m so sorry! I think it’s totally understandable that many patients who had a very serious medical situation will feel anxiety about having a repeat episode or some other bad illness. But I also think this is something worth seeking help for. Please talk to your doctor (either primary care or a psychiatrist) about options to help manage and deal with the anxiety. This might include medication, therapy/counseling, or a combination of these. Everybody feels anxious sometimes, but when anxiety is severe and relentless and gets in the way of our normal every day life, then it becomes a serious problem that can make life miserable! Please seek help for this so that you can have some relief and feel less anxious. Best wishes for health and healing and peace. ❤️🩹
My brother just got diagnosed with sjs/tens and he had talked with me about seeing all the signs pop up while my parents were out of town. We were about to go to the hospital but he went to a pediatrician who couldent diagnose it so a few days later he went to er. I hope he will be ok
I’m so sorry to hear about your brother. I hope that everything goes well and that he heals quickly.
How’s he doing now?
Currently in the icu with my 2 year old son he is suffering from SJS research to have better understanding its so hard to watch him go thru this 😩
I’m so very sorry! I hope he recovers quickly.
Hi, my mother is going through this, It's been a week and I cannot watch her like this. It would be great if anyone of you can respond to this message and tell me how much time it takes to recover. Her whole body including backa and hips are burned and She is not in the position to move. I am really scared right now. Please respond.
All your mother need is support from you guys . From her family cuz person loses hopes when they are not with their fam . And yes it will took months for. Her to fully recovered the scars are painful now so bbe careful
How is your mom doing now?
@@tonyasimmons61 1.5 months in ICU and then 3 months of home care. But she is all better now! It's been months since she got better, but I am still crying writing this. No one has to go through this!
@@aniketgamer5507 Thanks for your reply. I read it, but didn't had the words to respond. She is better now!
My grandpa had this and died it was hard to handle and praying for anyone who has this. This case is horrifying to watch and see someone go through R.I.P everyone who died from this💔🕊
I’m so very sorry for your loss
What youre showing with the mouth looks exactly like what keeps happening to my husband. He doesnt take any meds to trigger it though and he wasn't sick with a virus. He also doesn't have any skin involvement. His mouth skin just melts off and seals shut from the tissue trying to rapidly heal. One time his condition was ignored by his doctor and his eyes became blood red. He's had 3 of these outbreaks over his 20s and 30s. They think it's behcet's but it doesn't affect anything besides his mouth. Negative for pemphagus
Lol,i had sjs in December 2022. I survived took 1 month for the blister to heals completely but the whole recovery from eyw to toe took few months . My whole nails shed away + hair lose . My tongue had blister which is till not completely healed but yea im glad that i survived. Juts eye issue is stilll there and im fucked up that. But happy to be apive noow. Just concern about my skin cuz it has those scars and ithe texture of my skin is not same and i wanna go back to normal. Confused about the product
I had sjs when I was 22 I was in the ICU for a month and the regular hospital for 2 months I was given a bunch of drugs for pain and had no pain management and ended up addicted for years it didn't just end for me I'm now 32 years old and still struggle with addiction
I’m so sorry to hear this. Best wishes for continued healing, recovery, health, and peace.
I got hit with 50,000 high voltage for 3 seconds. My life hasnt been the same since. I think there should be more studies on the causes.
I’m an SJS survivor and I would’ve wish it on my worst enemy. It was like a waking nightmare.
Im sorry 😢 how are you now?
@@JindaouisFan__05 I’m fully recovered now, aside from a general mistrust of prescription medications and some doctors lol
I am a graduated nurse, thank you!
I'm a victim of SJS cause by mycostatin oral drug in year 2000. Is there a way to bring my lips back to normal?
Its very hard. Im a victim of sjs in 2013 because neomycin eyedrop and opname 40days in hospital. until now in 2021 the scar on the lips has not gone away
Can we remove the black marks caused on the lips?
I had SJS caused by Sulfa drugs when I was 6 yrs old. Now I'm 34, should I get vaccinated for COVID
I'm not aware of any contraindication against COVID vax in patients who had SJS, but please talk to your doctor to be sure.
Beautifully explained 👍🏻
beautifully explained 👍
Love this. Thank you 🙏🏽
THIS DISEASE IS A NIGHTMARE
And we say our life is shit because we didnt bought an Iphone...
Can I get the vaccines if I ever got the SJS?
I haven’t heard anything about a history of SJS disqualifying someone from getting the Covid vaccine. If there is any contraindication I am not aware of it.
Thank you
Its actually insane that the body does this to itself and kills its own skin
I have been a survivor for a year
Thank u sir 🙏🏼
looks extremely painful.
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My 7yrs old son is fighting for his life against this.
I am so sorry to hear this. I hope he recovers quickly! Best wishes for healing and peace.
Is your son now okay? Hope the best
What happened to your son? Is he okay?
Damn imagine having this syndrome and getting slapped 😖
Thank you