Thank you, Andy, for your informative talk on NETS tumours. I have Carcinoid Syndrome, with an unknown primary. I had no obvious symptoms and so the tumours were found by accident by my lovely doctor when I had high blood pressure 15 years ago. By that time the cancer had spread to my liver and one adrenal gland. I have been very well on Octreatide since then and am very fortunate to remain stable with this treatment. I am 63 now. However, it becomes a chronic disease you have to live with and constantly have injections, blood tests and visits to the specialist and hospital. I am very grateful but would love to know what causes these tumours? Is it genetic? Hopefully one day a cure will be found. Many thanks, Carol.
You are in my prayers. I just recently got diagnosed with a stage 1 Neuroendocrine tumor and still have testing to do. I have been having trouble with digestive issues and b/p going up and down. This is all new to me.
@@johnsmith-ce2nr Thank you John, I will pray for you too. It’s always a bit of a shock at first, I remember. Good luck with your treatment. Yes, I always seemed to be plagued with mild digestive issues too but didn’t know why. I hope you have a knowledgeable oncologist and get well treated and have the slow growing NETS type. Best wishes. Carol
Though neuro-endocrine cells are are present in many organs chiefly the aero digestive passages the lungs are the most common seat of NETS, no one knows why?
I m a that Bangladeshi patient under treatment of TaTa medical canter in Kolkata , India. From 2019 taking treatment but it is increasing . Sir I need your suggestion Thank you Mahtab uddin
Thank you SO much for this video! It is extremely informative! I was diagnosed with a gastric NET but sadly my GI has done an awful job with this process as he’s never encountered this before. Is there any way I can message you with a couple of questions? If I can email you or send a message via a website, please let me know. I could really use some help right now. Thank you so much!
Well put together thanks
Thank you for the enlightening explanation..I had (june 2024) a 18F-Dopa PET/CT-scan.
Great presentation of a very confusing topic.
Thank you for this. Very well explained
Thanks. This was very helpful!
Thank you, Andy, for your informative talk on NETS tumours. I have Carcinoid Syndrome, with an unknown primary. I had no obvious symptoms and so the tumours were found by accident by my lovely doctor when I had high blood pressure 15 years ago. By that time the cancer had spread to my liver and one adrenal gland. I have been very well on Octreatide since then and am very fortunate to remain stable with this treatment. I am 63 now.
However, it becomes a chronic disease you have to live with and constantly have injections, blood tests and visits to the specialist and hospital. I am very grateful but would love to know what causes these tumours? Is it genetic?
Hopefully one day a cure will be found. Many thanks, Carol.
You are in my prayers. I just recently got diagnosed with a stage 1 Neuroendocrine tumor and still have testing to do. I have been having trouble with digestive issues and b/p going up and down. This is all new to me.
@@johnsmith-ce2nr Thank you John, I will pray for you too. It’s always a bit of a shock at first, I remember. Good luck with your treatment. Yes, I always seemed to be plagued with mild digestive issues too but didn’t know why. I hope you have a knowledgeable oncologist and get well treated and have the slow growing NETS type. Best wishes. Carol
@@carolstamford4126 I forgot to add mine is in the stomach and they are saying it’s very rare. I will know more when I have these tests completed
Gos is greath
Though neuro-endocrine cells are are present in many organs chiefly the aero digestive passages the lungs are the most common seat of NETS, no one knows why?
I m a that Bangladeshi patient under treatment of TaTa medical canter in Kolkata , India. From 2019 taking treatment but it is increasing . Sir I need your suggestion
Thank you
Mahtab uddin
Great presentation, thank you!
Thank you SO much for this video! It is extremely informative! I was diagnosed with a gastric NET but sadly my GI has done an awful job with this process as he’s never encountered this before. Is there any way I can message you with a couple of questions? If I can email you or send a message via a website, please let me know. I could really use some help right now. Thank you so much!
instablaster.
Dankjewel
Dose feeling hot and flushing make a symptom of this
Thank you sir^^
gracias