I’m 64 years old. I’ve had lupus at least 30 years. I have had many serious episodes involving my brain, lungs, muscles, eyes etc. If I’d known how hard this fight would be from the beginning I wouldn’t have thought I could live through it all. I did live through it all and I am determined to continue to enjoy life and to live on putting one foot in front of the other and not giving up. Bless you all who are fighting the good fight!!
You are lucky to live for so long. My uncle died 25 years ago (Jan 17) from this disease. He was diagnosed 9 months before his death. He was my favourite uncle and I miss him up to this day.
I almost died from Lupus. Doctors kept missing the disease. I was misdiagnosed for over two years. In and out of emergency rooms, ridiculous Flare ups. Extreme fatigue. Most doctors said I was having an allergic reaction of some sort and gave me steroids; the steroids worked, but only for a while. One doctor even thought I was a hypochondriac. One observant doctor decided to give me an ANA test. That was the first step in my diagnosis. doctors need more training, more awareness of what to look for. I had every classic symptom and none caught it.
thereal tred it's the type of doctor. doctors with more experience that actually study lupus is a rheumatologist. There are different doctors for different things because there are already so many diseases out there that one person can study in a lifetime.
thereal tred Same here. I'm 20 and like 6 months ago I went to the hospital with a bad rash all over my body and first they said it was psoriasis, then pityriasis rosea and gave me a steroid. I went to my doctor about three months ago complaining about pains everywhere and she prescribed me medication for the pain then 2 weeks ago I had blood drawn and I found out a week ago that I have lupus. We all need to stay strong
I feel the SAME exact way, the ONLY way my previous pcp even found out i had lupus, was I ASKED for a lupus test along with gluten tests because i felt SO crummy. My new rheumatologist is JUST as bad, I feel like NO ONE believes me. SOO frustrating
My gynecologist of all people found mine. Out of chance really. I was having symptoms of pid. Most pid are caused by std's but I was negative (married for 13 years) after 5 rounds of antibiotics and no relief he started looking for something else. First he found reactivate Ebstine Barr virus which then lead to looking into lupus. I'm lucky it decided to attack my reproductive organs and not my kidneys, heart, lung or brain. Now I know what to look for. I tell people if they have doctors that don't listen and just blow you off after the obvious is ruled out to keep looking! There are doctors out there that care!
I was diagnosed in 1983, by a dermatologist who told me I had SLE. I was diagnosed within days and that allowed me to start treatment immediately. Through the years I have had my difficulties (which I would call inconveniences). I went through a lot of pain, rashes, fatigue, etc. and finally lost my kidneys. I received a transplant after 3 years of dialysis. I am 60 years old now and feeling decent after all I have been through. All I can say is I have had outstanding and caring doctors, my family and friends were always wonderfully supportive, and most of all my husband. Please remember, if you are diagnosed, listen to your doctors, talk with your supporters and live your life/routine as well as you can. I have been very lucky, I have had an amazing life even though I have Lupus and have been and continue to struggle with new secondary medical issues. I want to thank everyone who has helped me and accepted me always. God bless you!
R.i.p Asha Sharron!! She was a TH-camr and she documented her whole lupus journey.. She was diagnosed after having a breast reduction. She passed away in 2018 from Lupus.. it attacked her lungs, and she died waiting for a double lung transplant which never came bc her blood type was very rare, along with her continuously having antibodies... no matter what the doctors did to try to fight them off. So it was hard for them to find a match for her. The last day of her life when her lungs finally gave out on her, the doctors revealed that they have her match of lungs, with her having antibodies if they were to transplant her, she would just go into rejection, be unconscious, and die within 30 days anyway. Her journey in this world was over, and it wasn't meant for her to live past 30 years old.. She fought a good fight, and now she's free! I love you Asha!!!
Well, being 16, I didn't expect myself to see this coming.😑 I literally got diagnosed last week that I had the disease. Wasn't all too excited about it.😒 But,..... I'm just happy that I have loved ones to rely on for support, and knowing that I'm not the only one going through this. I was surprised that Nick Cannon had it, I mean, he looks good😃. So right now he gave me a confidence boost to get my crap together and fight Lupus.. Thanks alot!🙌
PikaGelly I was diagnosed with lupus young too I found out when I was 18 and I've been living with my lupus for 6yrs now so I can tell u that u'll have days where ur depressed and angry/frustrated at ur disease u'll have days even months where ur too sick to move but u'll get through it having support makes it easier u'll be fine just take care of urself and try to stay positive cuz mental stress can make u flare just as much as physical stress and listen to what ur body is telling u cuz I kno over the yrs I've figured out that my body can't do meat or meat products anymore so I'm vegetarian now it was a lifestyle change but I like it cuz it's helping me be healthy and I'd say even tho I have lupus I still look pretty good lol and don't be scared ask ur doctor questions about like everything research on ur own learn ways that can help u live ur best stress free life
Small world!!! I was diagnosed with Lupus in 2001, been an uphill battle because not much was known when I first got diagnosed. but my husband and 2 boys are there in the fight with me. God Bless you Nick!!
Lupus doesn't just affect you, it affects our loved ones, neighbors, friends and colleagues. Thanks to all who support us while battling this beast called Lupus. 💙💙💙
Hi....my cousin died yesterday at the age of 20 years old from Lupus....it hurts so much right now.....she was in so much pain only God understands..... this is a wicked deases.🇯🇲
Thank you for being an advocate for Lupus Nick. So many are so unaware of this disease (including my own husband)...even after 11 yrs into the diagnosis. So people like you matter in our efforts to help solve this mysterious disease one day (hopefully in our lifetime).
I am living with lupus. thank you for making it known. I've had to feel very isolated. I've had to explain to ER doctors what it is! so it's very hard to live with. please, everyone spread the word! make it known!
Everyday is a fight. I have SLE lupus, Raynauds, Sjogren's Syndrome, Fibromyalgia and 2 compressed disks in my L4 and L5. To hear him and read these comments are so very helpful and inspiring to me! So many do not understand what a toll it takes on you EVERYDAY.
Good morning to all of you lupus solders. I have been reading about your fight and pray for all of you. I have a daughter with lupus and feel like I know all of you through this struggle. you all are some of the strongest individuals amd family as i may speak freely, i have heard. sometimes I am very afraid for my daughter but yet will not stop fighting for her. thank you all for you testimony on your fight to beat this. you all are amazing even as my tears want to fall, I feel like there is hope!!!!❤❤❤❤❤❤❤❤
I never really understood the look in his eyes like he's about to cry when he speaks about it. It is a sad experience i just got diagnosed two months ago with lupus nephritis stage 4 and its been a hard up and down journey, my medications gave me serious allergic reactions and I was hospitalized for three weeks because of it. I am now on cyclophosphamide which is lower chemo and my kidneys are improving just my state of mind is still in awe because I still don't believe I have this condition. It's hard to take in.
I have Lupus also and it is very hard I stay strong for my children and they know no matter how bad I hurt, meds I have to take I am fighting for them and me... Diagnosed 2014 after I almost died from renal failure I have skin lesions, my hair has come out really bad, fibromyalgia, kidney damage, loss of sight in my right eye, joint damage to where I can barely walk, seizures, etc but I am trying to make it it took years to know what was going on with me
Wow I never knew Nick Cannon had Lupus, this was very big of him, to make this awareness video, stay prayerful and strong Nick, and to all those who have this disease.
My body was never the same after having the flu. I'm always googling my symptoms and today I came up with Lupus. I'm praying it's not, but I have all the symptoms. It's so scary right now.
I wish that we as a Lupus community could explain to individuals what we are feeling. I mean the physical pain, the fatigue, the mouth sores, the nights of not sleeping because our bodies hurt and will not allow us to sleep. There are other things that we are going through, and the list is long. Our internal organs are a miss and we are fighting to keep it simple. Some friends and family members don't think it is a big deal because we don't look sick. The sad situation for me is that I also suffer from MS. The battle for me has just begun. I was diagnosed with both of them in 2010. I still want to be part of the walk and the team. I need information. Sincerely, A butterfly wanting to fly. Brigette Roark-Schulz~
My best friend did not believe me when I told him I was diagnosed with lupus. He called me a hypochondriac and the crazy part is I had already told him about my diagnosis 2 years earlier.
I am only 17 and I figured out that I had Lupus yesterday. It's the most scariest thing ever because I have no idea what it is, what the treatment options are and seeing that Nick Cannon had Lupus makes me feel not as scared because he is my favorite person so seein that ur idol has the same thing makes it better that u will live through by taking one day at a time
I can see it in his eyes the pain he feels, the feeling of wanting to cry but staying strong. I’m in the fight with you. Trying to take it day by day ...
My mother had lupus and died from complications of it...I took care of my mom for 5 years... she had her good days and her bad...I found out a few years ago that I have lupus...I'm tired all the time... have pain...I deal with it sometimes the pain gets really bad for a few days that's enough to drive you crazy...but I take a Tylenol...it helps...it is depressing to look at what you use to could do... and now you can't ...I take one day at a time...
I’m so sorry for your loss. I lost my dad to it two years ago and I currently have it. I have to keep reminding myself to take one day at a time. It’s hard and I start feeling despair but I try.
I have skin lupus its 80 percent of my body its eating my face away because i cant take the meds my hair is falling out and i have noone that understands being in a small-town doesnt help in option for help. I cry all the time help
I was diagnosed with Lupus in 2003. Had a lot of things happened since then, but I do try and take it one day at a time. All you can do with a decease like this. Hope you're doing well.
I would never want anyone to have lupus, but Nick I love you, but some of us that do have lupus, can fight as hard as you do. Some do not have health insurance,money or fame that will help them,like you have. We do good just to be able to get meds.This is a battle to fight and it is not easy for anyone. So please do all you can to help us work on a cure,or better way to fight the battle.
It helps that suddenly people talk about lupus more because nick, selena, Toni says they have it but it ticks me off unless a celebrity is talking about people don't care to learn about it ...when I was 21 now 37 saying the word lupus prompt weird looks and crazy questions...if I didn't say I had cancer no friend or family understood...even now they still act like its some illness unknown that I'm the only one suffering with ...smh ot pissed me off at dumb comments like cant you just take a nap ...even taking pictures showing people the large swollen , red painful fingers that I can't move ....and the meds smh ..guess I have to be a celebrity to get people to understand
I would love to focus on my health and everything like that but unfortunately I bought a house when I found out I had lupus and it turned how to be a money pit. So I live in an unfinished home which needs a leach field replaced a new furnace and water filtration system cuz of water is so full of iron new windows because the guy put them in wrong and I have caulking on the outside of them and siding. I work 6 days a week and Sunday is my only day off. And I don't have a very supportive family. So I'm finding it very hard to help my lupus go in remission. Plus the fact I haven't had a vacation in 10 years. The only time I get a day off if it's a holiday or my only day off. I'm not glad that Nick Cannon got lupus but I'm glad he's making it a forum because many people around me including my family don't understand what I go through. because I don't complain and they don't see what I go through behind my own door. I was extremely sick with a lymphatic infection and my family didn't get it didn't understand and I had a very hard time functioning and getting out of bed and going to the bathroom and doing my toiletries. Thank God I had a neighbor that was able to go to the store and get me food. I didn't want to ask my friends cuz I didn't want to put them out. but I'm glad that he's speaking out more and explaining more about this.
Thanks Nick! Seeing you & hearing u talk about this just made me want to fight this thing. I have lupus too. I sometimes cry when I think about the things I used to do. Seeing you & others fighting for a normal life, makes me want to fight too. Thanks! I gonna be fine!
the misses just got diagnosed with Lupus about a month ago. Doing some research to learn more and help anyway I can. I've never heard of it before that but I know it's a very serious condition and should be made more aware to others. thanks for the vid
(Sle) lupus runs in my husband's family... grandfather, father, great Aunt and our daughter all have (sle) lupus. I would love for my daughter and my husband to be the first ones to prove that (sle) lupus is genetic because apparently the doctors aren't sure, but we are.
my nephew has lupus diagnosed 1 year ago we wetectold men don't live long with lupus we were told we would be lucky if he live to be 18 hard pill to swollow
Sorry to hear that you are living with Lupus my sister passed away at 28 was diagnosed at 18 March 4, 2013 she died I've been down every since. Is there a cure for this autoimmune disease. Good luck Nick and God bless check out her video I made for her it's a tribute. Hoping for a cure for this
Tribute to my sister Monique Pittman Born April 22, 1984 RIP 03/04/13 Let us fight 💜(Cure for Lupus) I am very sorry for your loss. You have a strong angel looking over you now. I have Lupus. Have almost died from it. So I sympathize.
I just want to know what's the best way to deal with the chronic pain that comes with lupus cause I deal with it everyday and its hard...I've changed so much since I've gotten this and it has been making me feel down or depressed...I do need help to find a better way to deal with thIs.I need something to change.So whoever has any answers or good thoughts on this disease.Please share it with me.I would really appreciate it.....:(
let's fight it together!!! bad days n good days today was a bad one as long as God wakes us up its always a great day. God bless you Handsome!! You grew up nicely.
I look up to people Lupus, especially since they’ve had it longer than me I was diagnosed in 2019. It has its ups and downs, but I just think God every day, be use it could be worst. #LUPUSWARRIOR🦋💜
Some days really are harder than others. Lupus is hard to live with. I'm experencing bad flare ups especially a horrible face rash. I'm still learning about this everyday. Its a scary journey because you never know what could happen from day to the next. So I just live every moment like its my last. People don't know about this an I feel more people should talk about this because many really do not understand. I just only found out I have Autoimmune Disease. I'm fight right along with both Nick and Selena.
I'm going to bet y'all if they find a cure it's going to expensive as hell like they did with Hep C treatment they made which is now about $1300 per pill, per pill! so Id love for a cure, Ive been diagnosed when I was ten and I sixteen now welp all I can do, we can do is to physically get strong and or have an iron will to ignore the pain tis what I'm doing. good luck to you all. Fight on!
Awesome he is raising awareness but unfortunately Lupus can be a death sentences. Of course we all gotta fight for our lives and have courage. But no point in sugar coating it. He still works and his meds must be working but it doesn't for everyone
Thank you! Nick! we need more!!! I am 42 and a mother of now a almost 20 & 23!❤️ my grandfather passed away at 45 years old, I know no 2 people can have exactly same symptoms but, it attacked his heart besides all the overlapping illnesses as well. and I've probably had Lupus all my life, but something triggered it. I thought for the longest it was just Fibromyalgia, n some other mild issues. NEVER WOULD I THINK "ANYTHING AS SUCH" could get me down. and it didn't for some years, back in 2005 or 2006? went to a few specialists, fibromyalgia? was it…. n female issues. but, 2008… more things weren't working well, I was getting sick more, STILL… "IT'S JUDT A COLD" So I told everyone, I was in my early 30's I was independent, more energized than the pink bunny 😂. ok, Seriously though… I loved my jobs, I got to travel, in my territory… lol n on weekends(single mom) worked as a Chauffeur, yes lil 4'11 me drove car, suv, etc. limos…. loved it, I met so many stars n some actually asked for me when they had a show in Memphis…. ahhh WWE….. yeah… not saying who all… lol but, long after I wasn't working. g there anymore, they still begged me to do a few regular customers.. or stars… lol I had to turn it down, I could no longer be busy like I was. still looking back now, I'd do ANYTHING TO BE how I was then, rather then now…. I now live at a lake in Tennessee, my other half of almost 15 years together now, has to be in Memphis a couple to few average days a week. environmental co. but sometimes, such as now he is in Louisiana for the flood water, at few his clients stores. been a week, a week, I have only left house to take dog out n check mail…. flaring isn't fun… and it could be over a month. the only possible positive is he has to return to Memphis (office) (like 1.5 hours away) and we'll see have far they are. we (my pup n myself) go back down with him. He just said about a week or 2 before if i wanted to go on a vacation !!! I was like YEAH! (been 8 years since we've had a vacation) at the same time excited…. but, then think… when I go to Memphis with him for a week some times (well ok most) I'll be in comfy clothes on, tired, hurting, fatigue… hopefully if we still go from when were down there, drive to Pensacola Beach…. maybe I tell myself, to do and bring WHATEVER will help if you feel a major flare, honestly will most likely be my last vacation. unless there's a treatments that works instead of poisoning us. I've had 3 T.i.a's over past couple years. and like others, overlapping 10/14 that some, are due to meds n immune system so bad. the worst few + years…. this is NO WAY TO LIVE! WE NEED A CURE TOO MANY ARE DYING DAILY from #LUPUS
Taking it a day at a time is all we can do👏👏💜. Listen to your body. Keep a positive attitude bc there will be hard days. But many good ones as well. Ive almost died bc of SLE. But I am still standing. God bless you all my Lupus friends #LUPUSSTRONG💜
Sarah Dotson I would strongly suggest you going on a whole foods plant based diet....it can and has reversed people's lupus and other major health problems. Not too many people are aware though I don't think. Look up some videos here on TH-cam about lupus and whole foods plant based diet, and also watch What the Health. Also if u have Netflix, watch Forks Over Knives.
![[4 Foods to Avoid] in LUPUS Autoimmune SLE, Physician Specialist Explains Gut Health](http://i.ytimg.com/vi/H9FAJmYg5OA/mqdefault.jpg)
I was diagnosed with lupus in 1983 by the grace of God I'm still here and doing very well
what medicine nd diet u take? whole life?
I’m 64 years old. I’ve had lupus at least 30 years. I have had many serious episodes involving my brain, lungs, muscles, eyes etc. If I’d known how hard this fight would be from the beginning I wouldn’t have thought I could live through it all. I did live through it all and I am determined to continue to enjoy life and to live on putting one foot in front of the other and not giving up.
Bless you all who are fighting the good fight!!
You are lucky to live for so long. My uncle died 25 years ago (Jan 17) from this disease. He was diagnosed 9 months before his death. He was my favourite uncle and I miss him up to this day.
@Angie Ball hope you get a chance to come up for air. i have been living undiagnosed for years .hope you find some one to hug and hold onto
I almost died from Lupus. Doctors kept missing the disease. I was misdiagnosed for over two years. In and out of emergency rooms, ridiculous Flare ups. Extreme fatigue. Most doctors said I was having an allergic reaction of some sort and gave me steroids; the steroids worked, but only for a while. One doctor even thought I was a hypochondriac. One observant doctor decided to give me an ANA test. That was the first step in my diagnosis. doctors need more training, more awareness of what to look for. I had every classic symptom and none caught it.
thereal tred it's the type of doctor. doctors with more experience that actually study lupus is a rheumatologist. There are different doctors for different things because there are already so many diseases out there that one person can study in a lifetime.
thereal tred Same here. I'm 20 and like 6 months ago I went to the hospital with a bad rash all over my body and first they said it was psoriasis, then pityriasis rosea and gave me a steroid. I went to my doctor about three months ago complaining about pains everywhere and she prescribed me medication for the pain then 2 weeks ago I had blood drawn and I found out a week ago that I have lupus. We all need to stay strong
I feel the SAME exact way, the ONLY way my previous pcp even found out i had lupus, was I ASKED for a lupus test along with gluten tests because i felt SO crummy. My new rheumatologist is JUST as bad, I feel like NO ONE believes me. SOO frustrating
My gynecologist of all people found mine. Out of chance really. I was having symptoms of pid. Most pid are caused by std's but I was negative (married for 13 years) after 5 rounds of antibiotics and no relief he started looking for something else. First he found reactivate Ebstine Barr virus which then lead to looking into lupus. I'm lucky it decided to attack my reproductive organs and not my kidneys, heart, lung or brain. Now I know what to look for.
I tell people if they have doctors that don't listen and just blow you off after the obvious is ruled out to keep looking! There are doctors out there that care!
thereal tred sane thing with me. Classic signs and symptoms for over 5 years before I was diagnosed correctly
I was diagnosed in 1983, by a dermatologist who told me I had SLE. I was diagnosed within days and that allowed me to start treatment immediately. Through the years I have had my difficulties (which I would call inconveniences). I went through a lot of pain, rashes, fatigue, etc. and finally lost my kidneys. I received a transplant after 3 years of dialysis. I am 60 years old now and feeling decent after all I have been through. All I can say is I have had outstanding and caring doctors, my family and friends were always wonderfully supportive, and most of all my husband. Please remember, if you are diagnosed, listen to your doctors, talk with your supporters and live your life/routine as well as you can. I have been very lucky, I have had an amazing life even though I have Lupus and have been and continue to struggle with new secondary medical issues. I want to thank everyone who has helped me and accepted me always. God bless you!
R.i.p Asha Sharron!! She was a TH-camr and she documented her whole lupus journey.. She was diagnosed after having a breast reduction. She passed away in 2018 from Lupus.. it attacked her lungs, and she died waiting for a double lung transplant which never came bc her blood type was very rare, along with her continuously having antibodies... no matter what the doctors did to try to fight them off. So it was hard for them to find a match for her. The last day of her life when her lungs finally gave out on her, the doctors revealed that they have her match of lungs, with her having antibodies if they were to transplant her, she would just go into rejection, be unconscious, and die within 30 days anyway. Her journey in this world was over, and it wasn't meant for her to live past 30 years old.. She fought a good fight, and now she's free! I love you Asha!!!
Lupus survivor 💜 it’s hard but I’m living it one day at a time
Well, being 16, I didn't expect myself to see this coming.😑 I literally got diagnosed last week that I had the disease. Wasn't all too excited about it.😒 But,..... I'm just happy that I have loved ones to rely on for support, and knowing that I'm not the only one going through this. I was surprised that Nick Cannon had it, I mean, he looks good😃. So right now he gave me a confidence boost to get my crap together and fight Lupus..
Thanks alot!🙌
I was diagnosed with 17, so last year.. we are all going through it together
PikaGelly stay strong ✊🏾
PikaGelly I was diagnosed with lupus young too I found out when I was 18 and I've been living with my lupus for 6yrs now so I can tell u that u'll have days where ur depressed and angry/frustrated at ur disease u'll have days even months where ur too sick to move but u'll get through it having support makes it easier u'll be fine just take care of urself and try to stay positive cuz mental stress can make u flare just as much as physical stress and listen to what ur body is telling u cuz I kno over the yrs I've figured out that my body can't do meat or meat products anymore so I'm vegetarian now it was a lifestyle change but I like it cuz it's helping me be healthy and I'd say even tho I have lupus I still look pretty good lol and don't be scared ask ur doctor questions about like everything research on ur own learn ways that can help u live ur best stress free life
PikaGelly God bless you
Same I got it in 2018 I was 15
Small world!!! I was diagnosed with Lupus in 2001, been an uphill battle because not much was known when I first got diagnosed. but my husband and 2 boys are there in the fight with me. God Bless you Nick!!
Lupus doesn't just affect you, it affects our loved ones, neighbors, friends and colleagues. Thanks to all who support us while battling this beast called Lupus. 💙💙💙
Hi....my cousin died yesterday at the age of 20 years old from Lupus....it hurts so much right now.....she was in so much pain only God understands..... this is a wicked deases.🇯🇲
Thank you for being an advocate for Lupus Nick. So many are so unaware of this disease (including my own husband)...even after 11 yrs into the diagnosis. So people like you matter in our efforts to help solve this mysterious disease one day (hopefully in our lifetime).
I am living with lupus. thank you for making it known. I've had to feel very isolated. I've had to explain to ER doctors what it is! so it's very hard to live with. please, everyone spread the word! make it known!
Everyday is a fight. I have SLE lupus, Raynauds, Sjogren's Syndrome, Fibromyalgia and 2 compressed disks in my L4 and L5. To hear him and read these comments are so very helpful and inspiring to me! So many do not understand what a toll it takes on you EVERYDAY.
I too have sle lupus, sjogrens, raynauds, and a 6th lumber vertebrae that causes constant issues. I feel ya!❤
How are you? and how old are you?
I was diagnosed in 2013. I’ve learned to except it and keep moving forward with working out, walking, healthy diet, and following my Dr.’s orders.
Hello, are you taking treatment and are you ok now
I have lupus ,ra,Sjorgens and fibromyalgia and I am a survivor we all have to stay positive and fight
I love his spirit! I was diagnosed with Discoid Lupus in 2009. Take it one day at a time. We can do this!!! We are LUPUS WARRIORS!!!
I have Lupus....I too am in the fight with you. I agree I take it one day at a time. It is part of my testimony as well. God Bless you.
Hope you are doing well❤️
Good morning to all of you lupus solders. I have been reading about your fight and pray for all of you. I have a daughter with lupus and feel like I know all of you through this struggle. you all are some of the strongest individuals amd family as i may speak freely, i have heard. sometimes I am very afraid for my daughter but yet will not stop fighting for her. thank you all for you testimony on your fight to beat this. you all are amazing even as my tears want to fall, I feel like there is hope!!!!❤❤❤❤❤❤❤❤
I have lupus 🤦🏽♀️ almost lost my life at least 4 times but we got this just take it one day at a time 🙏🏾💙
I never really understood the look in his eyes like he's about to cry when he speaks about it. It is a sad experience i just got diagnosed two months ago with lupus nephritis stage 4 and its been a hard up and down journey, my medications gave me serious allergic reactions and I was hospitalized for three weeks because of it. I am now on cyclophosphamide which is lower chemo and my kidneys are improving just my state of mind is still in awe because I still don't believe I have this condition. It's hard to take in.
how are you doing now? sending my love
steph m Will pray for you - Hope you're doing well.
I have Lupus also and it is very hard I stay strong for my children and they know no matter how bad I hurt, meds I have to take I am fighting for them and me... Diagnosed 2014 after I almost died from renal failure I have skin lesions, my hair has come out really bad, fibromyalgia, kidney damage, loss of sight in my right eye, joint damage to where I can barely walk, seizures, etc but I am trying to make it it took years to know what was going on with me
Wow I never knew Nick Cannon had Lupus, this was very big of him, to make this awareness video, stay prayerful and strong Nick, and to all those who have this disease.
My body was never the same after having the flu. I'm always googling my symptoms and today I came up with Lupus. I'm praying it's not, but I have all the symptoms. It's so scary right now.
It hurts so bad, I can't take it sometimes.
I wish that we as a Lupus community could explain to individuals what we are feeling. I mean the physical pain, the fatigue, the mouth sores, the nights of not sleeping because our bodies hurt and will not allow us to sleep. There are other things that we are going through, and the list is long. Our internal organs are a miss and we are fighting to keep it simple. Some friends and family members don't think it is a big deal because we don't look sick. The sad situation for me is that I also suffer from MS. The battle for me has just begun. I was diagnosed with both of them in 2010. I still want to be part of the walk and the team. I need information.
Sincerely,
A butterfly wanting to fly. Brigette Roark-Schulz~
My best friend did not believe me when I told him I was diagnosed with lupus. He called me a hypochondriac and the crazy part is I had already told him about my diagnosis 2 years earlier.
I am only 17 and I figured out that I had Lupus yesterday. It's the most scariest thing ever because I have no idea what it is, what the treatment options are and seeing that Nick Cannon had Lupus makes me feel not as scared because he is my favorite person so seein that ur idol has the same thing makes it better that u will live through by taking one day at a time
I can see it in his eyes the pain he feels, the feeling of wanting to cry but staying strong. I’m in the fight with you. Trying to take it day by day ...
My mother had lupus and died from complications of it...I took care of my mom for 5 years... she had her good days and her bad...I found out a few years ago that I have lupus...I'm tired all the time... have pain...I deal with it sometimes the pain gets really bad for a few days that's enough to drive you crazy...but I take a Tylenol...it helps...it is depressing to look at what you use to could do... and now you can't
...I take one day at a time...
I also lost my mother to lupus 3 years ago today was her birthday. You are in are prayers
Felicia Peach I have the same thing too :( & I'm sorry for the passing of your mother may she rest in peace & stay strong
I’m so sorry for your loss. I lost my dad to it two years ago and I currently have it. I have to keep reminding myself to take one day at a time. It’s hard and I start feeling despair but I try.
My mom has it, my grandfather died from it... now I have it. It's so hard. Stay strong. Listen to your body. Xx hope you're doing okay.
I have skin lupus its 80 percent of my body its eating my face away because i cant take the meds my hair is falling out and i have noone that understands being in a small-town doesnt help in option for help. I cry all the time help
Lupus Warrior here ❤️😊
Sir you have a very positive additud my son just got dying hospice lupus at age 21 he's in bad shape. Hope he can pull throw this.
I try to take it one day at a time
That's all you can do. Blessings
Asha Sharron me too sista
Asha Sharron im only 11 and i have lupus and high blood pressure. But i feel like these days are getting really long. But im taking it though
one day at a time!!
R.I.P beautiful
saw him a few years ago when he hosted the Lupus Walk here in. D.C., great person.
I have lupus and I been dealing with it for 10 years now I love you Nick canonn
Lupus will NOT win!
I have Lupus, Lupus doesn't have me. Be strong. You are not alone.
I was diagnosed with Lupus in 2003. Had a lot of things happened since then, but I do try and take it one day at a time. All you can do with a decease like this. Hope you're doing well.
Living with lupus is hard. I have every symptom in the book and its always and upward climb. Hearing someone speak about it is so real.
I have lupus, I'm 17. I really want to meet Nick Cannon
I was there when he came to D.C. last yea for the Lupus Walk , we all had a ball for a great cause!
Im with you bro my sister has lupus
I would never want anyone to have lupus, but Nick I love you, but some of us that do have lupus, can fight as hard as you do. Some do not have health insurance,money or fame that will help them,like you have. We do good just to be able to get meds.This is a battle to fight and it is not easy for anyone. So please do all you can to help us work on a cure,or better way to fight the battle.
My sister is having a flare up right now. Every time she turns around and comes out of it, she gets better, but I'm just scared for her.
That's all we can do is take it one day at a time God bless you Nick and everyone else who has my condition! God got us!
Amen!!!...one day at a time....i have lupus..lupus doesn't have me....LLLLLLL
Amazing. We have to support and manage.
Thank you,
I have been wondering why I haven't felt good for so long.
It takes a while to figure out your even sick...
my mother died from lupas. this motivates me to get better educated on the subject
Diagnosed 8.16.16 but I’ve been flaring since 2014..but looking back & looking at the symptoms I believe I’ve had it since alittle girl 🎗💜
It helps that suddenly people talk about lupus more because nick, selena, Toni says they have it but it ticks me off unless a celebrity is talking about people don't care to learn about it ...when I was 21 now 37 saying the word lupus prompt weird looks and crazy questions...if I didn't say I had cancer no friend or family understood...even now they still act like its some illness unknown that I'm the only one suffering with ...smh ot pissed me off at dumb comments like cant you just take a nap ...even taking pictures showing people the large swollen , red painful fingers that I can't move ....and the meds smh ..guess I have to be a celebrity to get people to understand
One of my childhood friends had lupus. She died from lupus. It affects people differently. She looked like she had been burned
I would love to focus on my health and everything like that but unfortunately I bought a house when I found out I had lupus and it turned how to be a money pit. So I live in an unfinished home which needs a leach field replaced a new furnace and water filtration system cuz of water is so full of iron new windows because the guy put them in wrong and I have caulking on the outside of them and siding. I work 6 days a week and Sunday is my only day off. And I don't have a very supportive family. So I'm finding it very hard to help my lupus go in remission. Plus the fact I haven't had a vacation in 10 years. The only time I get a day off if it's a holiday or my only day off. I'm not glad that Nick Cannon got lupus but I'm glad he's making it a forum because many people around me including my family don't understand what I go through. because I don't complain and they don't see what I go through behind my own door. I was extremely sick with a lymphatic infection and my family didn't get it didn't understand and I had a very hard time functioning and getting out of bed and going to the bathroom and doing my toiletries. Thank God I had a neighbor that was able to go to the store and get me food. I didn't want to ask my friends cuz I didn't want to put them out. but I'm glad that he's speaking out more and explaining more about this.
Thanks Nick! Seeing you & hearing u talk about this just made me want to fight this thing. I have lupus too. I sometimes cry when I think about the things I used to do. Seeing you & others fighting for a normal life, makes me want to fight too. Thanks! I gonna be fine!
Thanks for inspiring me, Nick :)
Idk to much about lupus.but as of June 23 2015 I also have lupus..I'm 25 and I'm a mother of 3 beautiful children..
I too was just diagnosed. I'm a mother to 5, I am 28.
stay strong nick glad to here u talk about it what don't kill u makes u stronger.
love and peace
we all are fighters, you should come to san fransisco this year
the misses just got diagnosed with Lupus about a month ago. Doing some research to learn more and help anyway I can. I've never heard of it before that but I know it's a very serious condition and should be made more aware to others. thanks for the vid
Amen stay strong nick in I know how it feel because I have Lupus too
(Sle) lupus runs in my husband's family... grandfather, father, great Aunt and our daughter all have (sle) lupus.
I would love for my daughter and my husband to be the first ones to prove that (sle) lupus is genetic because apparently the doctors aren't sure, but we are.
I am living with Lupus and also have CRSP, Dystina, fibromyalgia and Menopause at the age of 30... I am hanging in there but it is getting hard .
I have it to it makes me sad😢
Well in Nick
Nick...you are the only other MALE I know with Lupus....I have Lupus nephritis and nearly died during a 6+ month hospitalization
my nephew has lupus diagnosed 1 year ago we wetectold men don't live long with lupus we were told we would be lucky if he live to be 18 hard pill to swollow
Sorry to hear that you are living with Lupus my sister passed away at 28 was diagnosed at 18 March 4, 2013 she died I've been down every since. Is there a cure for this autoimmune disease. Good luck Nick and God bless check out her video I made for her it's a tribute. Hoping for a cure for this
+Tribute to my sister Monique Pittman Born April 22, 1984 RIP 03/04/13 Let us fight 💜(Cure for Lupus) if there was a cure we wouldnt be talking about
I'm sorry about your sister,I also have SLE and I'm also a 28 yr old female. When was your sister diagnosed?
I'm so sorry for your loss😟
Tribute to my sister Monique Pittman Born April 22, 1984 RIP 03/04/13 Let us fight 💜(Cure for Lupus) I am very sorry for your loss. You have a strong angel looking over you now. I have Lupus. Have almost died from it. So I sympathize.
There is no cure. Its scary to know that but someone who has it (I do) must stay strong. Sorry about your loss.
I would like to link up with SUPport group to lupus on a daily basis locally n south jersey,cumberland county n.j
Yes is true I'm ara Lupus warrior, with grace of God I'm still her
I support u nick lost my grandma bc of two cancer lupus and breast cancer
Thank you, Nick
I just want to know what's the best way to deal with the chronic pain that comes with lupus cause I deal with it everyday and its hard...I've changed so much since I've gotten this and it has been making me feel down or depressed...I do need help to find a better way to deal with thIs.I need something to change.So whoever has any answers or good thoughts on this disease.Please share it with me.I would really appreciate it.....:(
let's fight it together!!! bad days n good days today was a bad one as long as God wakes us up its always a great day. God bless you Handsome!! You grew up nicely.
newly diagnosed......knkwlege is power! but man it's painful!♡
you gotta love nick
I've got "Systemic Lupus Erythematosus" / SLE I was Diagnosed 2 year's ago
I just got diagnosed (am 14) I really didn’t see this coming at all but it did add all up when I thought bout it :/ it sucks
I look up to people Lupus, especially since they’ve had it longer than me I was diagnosed in 2019. It has its ups and downs, but I just think God every day, be use it could be worst. #LUPUSWARRIOR🦋💜
I have Lupus and I'm in the fight with you!!!!
my daughter Elizabeth has lupus. what can I do to help her thu this
love here..and tell here that she'll be stronger than ever (by experience)
I have lupus. One day at time. Faith and strength
Damn why am I just now seeing this :/ grew up watching nick cannon this is sad
Some days really are harder than others. Lupus is hard to live with. I'm experencing bad flare ups especially a horrible face rash. I'm still learning about this everyday. Its a scary journey because you never know what could happen from day to the next. So I just live every moment like its my last. People don't know about this an I feel more people should talk about this because many really do not understand. I just only found out I have Autoimmune Disease. I'm fight right along with both Nick and Selena.
I'm going to bet y'all if they find a cure it's going to expensive as hell like they did with Hep C treatment they made which is now about $1300 per pill, per pill! so Id love for a cure, Ive been diagnosed when I was ten and I sixteen now welp all I can do, we can do is to physically get strong and or have an iron will to ignore the pain tis what I'm doing. good luck to you all. Fight on!
This makes me feel a little better. 😔 I got Lupus
just found out today I have Lupus
Lupus sucks but it made love life MORE
thanks nick keep your head up too g
Awesome he is raising awareness but unfortunately Lupus can be a death sentences. Of course we all gotta fight for our lives and have courage. But no point in sugar coating it. He still works and his meds must be working but it doesn't for everyone
Man never like knew nick had that
Thank you! Nick! we need more!!!
I am 42 and a mother of now a almost 20 & 23!❤️
my grandfather passed away at 45 years old, I know no 2 people can have exactly same symptoms but, it attacked his heart besides all the overlapping illnesses as well. and I've probably had Lupus all my life, but something triggered it. I thought for the longest it was just Fibromyalgia, n some other mild issues. NEVER WOULD I THINK "ANYTHING AS SUCH" could get me down. and it didn't for some years, back in 2005 or 2006? went to a few specialists, fibromyalgia? was it…. n female issues. but, 2008… more things weren't working well, I was getting sick more, STILL…
"IT'S JUDT A COLD" So I told everyone, I was in my early 30's I was independent, more energized than the pink bunny 😂.
ok, Seriously though… I loved my jobs, I got to travel, in my territory… lol n on weekends(single mom) worked as a Chauffeur, yes lil 4'11 me drove car, suv, etc. limos…. loved it, I met so many stars n some actually asked for me when they had a show in Memphis…. ahhh WWE….. yeah… not saying who all… lol
but, long after I wasn't working. g there anymore, they still begged me to do a few regular customers.. or stars… lol I had to turn it down, I could no longer be busy like I was. still looking back now, I'd do ANYTHING TO BE how I was then, rather then now…. I now live at a lake in Tennessee, my other half of almost 15 years together now, has to be in Memphis a couple to few average days a week. environmental co. but sometimes, such as now he is in Louisiana for the flood water, at few his clients stores. been a week, a week, I have only left house to take dog out n check mail…. flaring isn't fun… and it could be over a month. the only possible positive is he has to return to Memphis (office)
(like 1.5 hours away) and we'll see have far they are.
we (my pup n myself) go back down with him. He just said about a week or 2 before if i wanted to go on a vacation !!!
I was like YEAH! (been 8 years since we've had a vacation)
at the same time excited…. but, then think… when I go to Memphis with him for a week some times (well ok most) I'll be in comfy clothes on, tired, hurting, fatigue… hopefully if we still go from when were down there, drive to Pensacola Beach…. maybe I tell myself, to do and bring WHATEVER will help if you feel a major flare, honestly will most likely be my last vacation. unless there's a treatments that works instead of poisoning us.
I've had 3 T.i.a's over past couple years. and like others, overlapping 10/14 that some, are due to meds n immune system so bad. the worst few + years…. this is NO WAY TO LIVE! WE NEED A CURE TOO MANY ARE DYING DAILY from #LUPUS
I was diagnosed on my birthday last year 2017 l was so ill l thought laws having another stroke. Thanku for sharing everybody 🙏🏿🎓
I'm in the fight with you!
Aaron Weaver 🕊💜
I just found out i might have Lupus . My blood came back positive for Nuclear AB,ser,ql. Waiting on my DR to give me final results.
I have it too
Taking it a day at a time is all we can do👏👏💜. Listen to your body. Keep a positive attitude bc there will be hard days. But many good ones as well. Ive almost died bc of SLE. But I am still standing. God bless you all my Lupus friends
#LUPUSSTRONG💜
I have lupus but no insurance n no way of treating it
Sarah Dotson I would strongly suggest you going on a whole foods plant based diet....it can and has reversed people's lupus and other major health problems. Not too many people are aware though I don't think. Look up some videos here on TH-cam about lupus and whole foods plant based diet, and also watch What the Health. Also if u have Netflix, watch Forks Over Knives.
Amen
selena gomez has it to i feel bad for anyone that douse have it
I have Lupus but Lupus does not have me.... I hate this disease