same. got rid of tinnitus with dry needling the levator scapulae ....and cervical traction. everything else comes and goes still. It is a terrible sentence to live with...but my Faith in Jesus Christ has saved me. I hope you have the same. God bless you and best of luck. Remember, life owes us nothing...that sometimes is a comfort to me.
My Symptoms are, neck pain, especially the very top of my neck wher eit enters my skull. shoulder, upper back pain.Tinnitus, brain fog, episodes of vertigo and diziness.Digestive issues, acid reflux, nausea, bloating, fatigue, and the worst one of all, episodes of breathlessness, like my lungs stop working. My life has become a complete misery. My Xrays show my neck is normal and so my doctor wont investigate any further .(im in the UK) I was involved in a rear end shunt motor accident about two years ago, although I had no symptoms at the time.
Im living a freaking nightmare with this and no doctors take insurance. Im spending $4000 march 8th, traveling to arizona to get a diagnosis. Great i get a diagnosis but now completely broke and cant do treatment.
Exactly! That’s the problem with sooo many conditions! Why is it all so expensive ? This is a genuine question. I understand that the specialists involved spent years training and I understand … I haven’t got the energy to finish a message that will get no reply
@arronb4618 Could you tell me where and who in Arizona you seen for treatment? And if it worked for you? I believe the main issue is people don't know who or we're to go? Thank you! I really hope it worked for you❤
The symptoms of CCI overlap with many other neurological disorders. I would keep searching, make a list of disorders and underline the ones that make the most sense. Cross off the ones that don't make sense. I've had a spinal CSF leak, and now I learn I have CCI, IIH, and all sorts of issues duet to my faulty connective tissue. Look into ehlers danlos subtypes!
@@Annwutsfar Thank you for the reply. Some of my symptoms are: tremors in both hands, muscle fatigue, headaches, vision disturbances, muffled and ringing in the ears. I've been to several specialist, including ear doctors, neurologist and Orthopedist. I've had my hearing tested, my brain, spine, sinus scanned. Yet, they couldn't find the problem but they ruled out MS, ALS, herniated disc, Meniere Syndrome and many other conditions. The feeling of hopelessness just increases day by day.
Please everyone remember that this is one doctor’s opinion on how something should be treated. There are other methods that can drastically help many people. The surgery is not as common as this doctor is acting like. It is a very in-depth procedure, and so it’s a last ditch effort to alleviate symptoms. Physical therapy is used first and is very helpful. When connective tissues are acting up, regardless of the condition, strengthening the muscles around them is step number 1, and it helps a lot of people. Also, using neck braces can help tremendously as well! Also, I’d recommend watching other doctors talk about this condition. I don’t know this guy at all, but how he’s wording things shows his bias toward his own surgery, and the way he talks to us makes me feel he thinks people are way dumber than they actually are. It’s giving a glib, full of himself car salesman instead of a doctor talking to people suffering from a very severe condition. And people struggling with stuff like this just deserve better
You can’t exercise your neck with torn ligaments and CCI; the muscles are already strained and tight due to trying to stabilize the area. You’ll make yourself way worse. I’d recommend you go to another channel with your nonsense.
@@sawwas4677 Yes, this is a good point: if you use it all the time, it will lead to muscle atrophy. I don't know what exactly the balance would be (talk to a doctor for examples of appropriate uses), but using a brace, from time to time, can help alleviate the stress on your ligaments can supplement physical therapy.
Now I'm thinking about it, for full transparency, at the time of my first writing, I was biased toward a brace because of complications from other conditions I have had left it very painful to do physical therapy, and due to my muscles atrophying, I had constant neck pain, and using a brace helped me finally find some relief. But yes, strengthening those muscles through physical therapy is paramount to all endeavors for relief in this condition (again, as I understand it; talking to a doctor in person will help everyone individually the most).
I had the same. Was prescribed keppra very high dose 2000 mg twice a day. Beam minerals (OTC) at night and stem cell infections in Hilton head SC by Dr. Durrett. Going for my 2nd tx after the holidays. Its about 60% better.
If the tendons and ligaments are both damaged and stretched----would the prolotherapy help? Esp if its damaged-- and not so much stretched? Would PRP help?
@@Maliniaq2 the problem with usa is that its all private and they can charge what they like…..if your insurance does not cover it which they wont….then its out of pocket. I had prp on my neck 1 session cost me 200 euros. Its a simple and basic treatment. They take some blood, spin it on a machine and inject it back in the painful areas using ultrasound guided. Its 30 min appointment. They shd not charge a lot more than that. Thats still a lot of money they make for 30 mins with almost no expense of their own.
got the headaches 24/7 for over a year, had the neck pain that did the raise (had cervical disc replacement), vagus nerve problems, got the brain fog, and finally cannot go to work. The pressure just sits in my head moving all around intensifying. Somehow my throat and voice are involved in all this. and this is after surgery.
The same thing happens with me since 2 years lots of mri ct couldn’t recognise this type of symptoms and lots of headache, go through hand, numbness, and leg, numbness, back pain, and upper back pain with cognitive dysfunction
AFTER surgery??????? Considering I've been dealing with this for 16 years , finally got a diagnosis in 2017 but have been fighting for SSDI for 11 years with noone believing me, this is not what I wanted to read - may I ask who your surgeon was?
"C1/C2 post traumatic whiplash lateral ligamentous instability & cerebellar tonsillitis ectopic & C1 capsulosynovitis with severe foramen magnum stenosis, compression of the cervicomedullary junction, vertebral artery compression, cerebrospinal fluid, pulsatile craniocervical flow obstruction w/craniocervical syndrome & whiplash associated disorder. Large right central herniated cervical disc w/cord compression at c4/c5, c5/c6& c6/c7." I'm a Bobblehead🤷♀️ My DMX shows ligament damage through my entire cervical spine. CO,c1/c2 slide side to side & all others slide front to back. Tried to continue working for 2 years after the wreck but had to stop b/c of migraines/pain & the myriad of other symptoms that I'm sure you understand.
It stands for Ehlers-Danlos Syndrome. It’s an umbrella term for a body of conditions that are classified as autoimmune disorders where your body doesn’t correctly make the proteins used to build connective tissues. This leads to lax ligaments and tendons, leading to countless issues. And this can afflict any connective tissue present in the body, including in the neck, like in the case of CCI being present in someone with EDS.
And I’m thinking the original commenter is talking about how, when CCI is present someone because of an injury, their condition will likely not worsen after their connective tissue heals (as the cause of CCI in that case is external, not internal). But with EDS, due to our connective tissues being made wrong-and this ability to make it will just worsen overtime (as what naturally happens with all DNA, hence aging)-our connective tissue will just continue to get more lax overtime. I don’t know if I have CCI yet, though, so I am just assuming that it acts as other complications from EDS as we age.
I do have nausea & back of head slight headache and neck soreness, decreased ROM. But nothing like your describing. The thing is a plain film shows degeneration of disc space. Specifically trace anterolisthesis w/o significant change in flexion & extension. No change in C spine alignment with flex/ extension. Marked disc space narrowing at C4-C5 w/ end plate degenerative changes. Moderate disc space narrowing at C5-C6 & C6-C7 levels. Mild to moderate multilevel facet arthropathy right lower cervical levels. So would SCT be a good recommendation? Fix the soft tissue/ cartilage problem & all will be better ??
@@DogHonest Yep. But I'm talking about symptoms. And every single one are the same as SIH, specially the pain related ones. SIH occipital pain also improves lying down. Anyway, SIH can also cause coma (reversible if handled in Trendlemburg position), pseudo Chiari, as well as POTS and 3rd nerve palsy. And even reversible dementia due to iron deposits.
Is it possibele to get CCI from carrying something heavy on the head? or does there have to be a trauma like a whiplash injury? I carried a very heavy thing on my head up a ladder and since then i have head ache, neck ache, really stiff neck and feeling it difficult to swallow among other things
Could this possibly be a reason for my Alopecia bald spots? Ironically it started at the same time I got extremely bad with my Neck and shoulder pain. We don't have digital xrays where I live and I need serious help 😢
Get a cervical collar and start learning. No one is coming to help. I am 37, and I just diagnosed myself with hyper mobile EDS. It's hell, and braces are the only thing to reduce the pain.
@@trollsneedhugs You nailed it. Bad wreck in 2008, doctors all said I couldn't have the symptoms I have because of a neck injury. Bull Hockey! My life came to a screeching halt at 37 yrs old and it took me until 2016 to find a neurosurgeon that knew about high level CCI. Sorry state, our medical (or lack thereof) practices. If you don't have $$, noone cares or believes you in spite of MRI & DMX proof.
Yeah @trollsneedhugs is absolutely right. I just got diagnosed with EDS too and it was a hell of a fight, and now I’m fighting for relief. My advice to you is finding the right doctor, as it’s truly key to making things a lot easier. Find support in those around you and in therapy groups. Let yourself cry, scream, whatever, after each shitty appointment, and then get back up on that horse. You, more than anyone on this planet, know what you’re experiencing, and you have to trust that and advocate for yourself until you find someone to listen. And yes, braces are wonderful in the meantime! It’s not a cure, but it sure helps a lot!
@@WATCHINGTHEWATCHERS999 Chronic cerebrospinal venous insufficiency (CCSVI) describes a theory in which the veins in the head and neck (internal jugular and/or azygos veins and collateral venous channels) are narrowed or blocked, and therefore blood and cranial spinal fluid don't drain well from the brain.
Generally not, but it’s possible. Oftentimes people will have underlying symptoms that causes them to seek treatment, perhaps hypermobility of the cervical spine, which chiropractic adjustments won’t fix. They can give relief, however if you adjust the cervical spine of someone with hypermobility, it should be done much more gently than that of someone who doesn’t exhibit those signs.
No doubt if you keep taking the head to an over stretched range which is fastened on deeply by ligaments and tendons what do you think? Many people are addicted to the popping of nitrogen which is what is released when this popping sound happens by a Chiro . They will never tell you it's bad because they have bills to pay. Not all chiropractic is this way as there are lighter methods with no popping like Nucca or Pro Addjuster . However massage mixed in is awesome. Yet to get to a stability issue it's more than just going to a PT and lifting weights . We also realize the answer is not found in pain pills. In my research If I was to have work done this is where I would go.
Mine was caused by a bad wreck (shifted the frame of my 4wd over 4 inches to the left, almost couldn't get my gooseneck hitch out) 16+ years ago. Doctors swore I couldn't be having the problems (MultipleXXX) I have because of "whiplash". I'm living proof that there is a reason the call Doctors "Practicing". My life stopped at 37 years old because of incompetant doctors & lack of funds to keep fighting.
Spike in heart rate, tinnitus, heavy headed, sometimes dizzy. These are some of my symptoms
same. got rid of tinnitus with dry needling the levator scapulae ....and cervical traction. everything else comes and goes still. It is a terrible sentence to live with...but my Faith in Jesus Christ has saved me. I hope you have the same. God bless you and best of luck. Remember, life owes us nothing...that sometimes is a comfort to me.
From vax ? I have heavy head all.the time woozy heads headaches feeling terrible for so long
My Symptoms are, neck pain, especially the very top of my neck wher eit enters my skull. shoulder, upper back pain.Tinnitus, brain fog, episodes of vertigo and diziness.Digestive issues, acid reflux, nausea, bloating, fatigue, and the worst one of all, episodes of breathlessness, like my lungs stop working. My life has become a complete misery. My Xrays show my neck is normal and so my doctor wont investigate any further .(im in the UK) I was involved in a rear end shunt motor accident about two years ago, although I had no symptoms at the time.
Thanks for the video Dr. Schultz!
Thanks Albert Brown
Im living a freaking nightmare with this and no doctors take insurance. Im spending $4000 march 8th, traveling to arizona to get a diagnosis. Great i get a diagnosis but now completely broke and cant do treatment.
Exactly! That’s the problem with sooo many conditions! Why is it all so expensive ? This is a genuine question. I understand that the specialists involved spent years training and I understand … I haven’t got the energy to finish a message that will get no reply
@arronb4618 Could you tell me where and who in Arizona you seen for treatment? And if it worked for you? I believe the main issue is people don't know who or we're to go? Thank you! I really hope it worked for you❤
My head feels heavy.Stiff and cannot turn to right unless huge effort. Nerve pain. Hear crunching when turning.
1 year...
Well presented and explained. Great to know that there are non Surgical Options
Is it possible to have CCI with little/situational neck pain but many of the other symptoms you described?
The symptoms of CCI overlap with many other neurological disorders. I would keep searching, make a list of disorders and underline the ones that make the most sense. Cross off the ones that don't make sense. I've had a spinal CSF leak, and now I learn I have CCI, IIH, and all sorts of issues duet to my faulty connective tissue. Look into ehlers danlos subtypes!
@@Annwutsfar Thank you for the reply. Some of my symptoms are: tremors in both hands, muscle fatigue, headaches, vision disturbances, muffled and ringing in the ears.
I've been to several specialist, including ear doctors, neurologist and Orthopedist. I've had my hearing tested, my brain, spine, sinus scanned. Yet, they couldn't find the problem but they ruled out MS, ALS, herniated disc, Meniere Syndrome and many other conditions. The feeling of hopelessness just increases day by day.
@joynervieira7905 any gi symptoms?
Please everyone remember that this is one doctor’s opinion on how something should be treated. There are other methods that can drastically help many people. The surgery is not as common as this doctor is acting like. It is a very in-depth procedure, and so it’s a last ditch effort to alleviate symptoms. Physical therapy is used first and is very helpful. When connective tissues are acting up, regardless of the condition, strengthening the muscles around them is step number 1, and it helps a lot of people. Also, using neck braces can help tremendously as well!
Also, I’d recommend watching other doctors talk about this condition. I don’t know this guy at all, but how he’s wording things shows his bias toward his own surgery, and the way he talks to us makes me feel he thinks people are way dumber than they actually are. It’s giving a glib, full of himself car salesman instead of a doctor talking to people suffering from a very severe condition. And people struggling with stuff like this just deserve better
using a neck brace is the opposite of strengthening
You can’t exercise your neck with torn ligaments and CCI; the muscles are already strained and tight due to trying to stabilize the area. You’ll make yourself way worse. I’d recommend you go to another channel with your nonsense.
@@sawwas4677 Yes, this is a good point: if you use it all the time, it will lead to muscle atrophy. I don't know what exactly the balance would be (talk to a doctor for examples of appropriate uses), but using a brace, from time to time, can help alleviate the stress on your ligaments can supplement physical therapy.
Now I'm thinking about it, for full transparency, at the time of my first writing, I was biased toward a brace because of complications from other conditions I have had left it very painful to do physical therapy, and due to my muscles atrophying, I had constant neck pain, and using a brace helped me finally find some relief. But yes, strengthening those muscles through physical therapy is paramount to all endeavors for relief in this condition (again, as I understand it; talking to a doctor in person will help everyone individually the most).
@@alfredbock1827no it wont because most doctors don’t have a clue
Plz recoomd medicine in cci/aai instability seizire attacks,
Are flickering while sleeping also part of seizures
I had the same. Was prescribed keppra very high dose 2000 mg twice a day. Beam minerals (OTC) at night and stem cell infections in Hilton head SC by Dr. Durrett. Going for my 2nd tx after the holidays. Its about 60% better.
What are the options?
Got to pay for that?
If the tendons and ligaments are both damaged and stretched----would the prolotherapy help? Esp if its damaged-- and not so much stretched? Would PRP help?
But we dont have $10,000 per session out of pocket money for treatment…..
exactly!
@@Maliniaq2 the problem with usa is that its all private and they can charge what they like…..if your insurance does not cover it which they wont….then its out of pocket. I had prp on my neck 1 session cost me 200 euros. Its a simple and basic treatment. They take some blood, spin it on a machine and inject it back in the painful areas using ultrasound guided. Its 30 min appointment. They shd not charge a lot more than that. Thats still a lot of money they make for 30 mins with almost no expense of their own.
seriously?? I knew there was a catch.
Our medical system in America is so broken. I'm using lifewave patches X39 & Aeon to try and fix my aching body. Almost 5 months now. 🙏
got the headaches 24/7 for over a year, had the neck pain that did the raise (had cervical disc replacement), vagus nerve problems, got the brain fog, and finally cannot go to work. The pressure just sits in my head moving all around intensifying. Somehow my throat and voice are involved in all this. and this is after surgery.
The same thing happens with me since 2 years lots of mri ct couldn’t recognise this type of symptoms and lots of headache, go through hand, numbness, and leg, numbness, back pain, and upper back pain with cognitive dysfunction
AFTER surgery??????? Considering I've been dealing with this for 16 years , finally got a diagnosis in 2017 but have been fighting for SSDI for 11 years with noone believing me, this is not what I wanted to read - may I ask who your surgeon was?
@@angiechesser8511 Dr Kern Singh Midwest Ortho in Chicago. What was your diagnosis if I may ask?
"C1/C2 post traumatic whiplash lateral ligamentous instability & cerebellar tonsillitis ectopic & C1 capsulosynovitis with severe foramen magnum stenosis, compression of the cervicomedullary junction, vertebral artery compression, cerebrospinal fluid, pulsatile craniocervical flow obstruction w/craniocervical syndrome & whiplash associated disorder.
Large right central herniated cervical disc w/cord compression at c4/c5, c5/c6& c6/c7."
I'm a Bobblehead🤷♀️
My DMX shows ligament damage through my entire cervical spine. CO,c1/c2 slide side to side & all others slide front to back.
Tried to continue working for 2 years after the wreck but had to stop b/c of migraines/pain & the myriad of other symptoms that I'm sure you understand.
@@uncool13& that's just my top half 😂
$10,000 per session, with no guarantee and no independent studies to show efficacy
If u have eds 😢this gets worse
What is eds ?
It stands for Ehlers-Danlos Syndrome. It’s an umbrella term for a body of conditions that are classified as autoimmune disorders where your body doesn’t correctly make the proteins used to build connective tissues. This leads to lax ligaments and tendons, leading to countless issues. And this can afflict any connective tissue present in the body, including in the neck, like in the case of CCI being present in someone with EDS.
And I’m thinking the original commenter is talking about how, when CCI is present someone because of an injury, their condition will likely not worsen after their connective tissue heals (as the cause of CCI in that case is external, not internal). But with EDS, due to our connective tissues being made wrong-and this ability to make it will just worsen overtime (as what naturally happens with all DNA, hence aging)-our connective tissue will just continue to get more lax overtime. I don’t know if I have CCI yet, though, so I am just assuming that it acts as other complications from EDS as we age.
I do have nausea & back of head slight headache and neck soreness, decreased ROM. But nothing like your describing. The thing is a plain film shows degeneration of disc space. Specifically trace anterolisthesis w/o significant change in flexion & extension. No change in C spine alignment with flex/ extension.
Marked disc space narrowing at C4-C5 w/ end plate degenerative changes.
Moderate disc space narrowing at C5-C6 & C6-C7 levels.
Mild to moderate multilevel facet arthropathy right lower cervical levels.
So would SCT be a good recommendation? Fix the soft tissue/ cartilage problem & all will be better ??
The symptoms are pretty much the same as my condition, so called spinal CSF leak or SIH (spontaneous intracranial hypothension)
It can cause SBP by collapsing the IJV
@@DogHonest Yep. But I'm talking about symptoms. And every single one are the same as SIH, specially the pain related ones. SIH occipital pain also improves lying down.
Anyway, SIH can also cause coma (reversible if handled in Trendlemburg position), pseudo Chiari, as well as POTS and 3rd nerve palsy. And even reversible dementia due to iron deposits.
@@paco3447but other Ng down yours would get better
Is it possibele to get CCI from carrying something heavy on the head? or does there have to be a trauma like a whiplash injury? I carried a very heavy thing on my head up a ladder and since then i have head ache, neck ache, really stiff neck and feeling it difficult to swallow among other things
How expensive is this?
very very. About $10.000 per one treatment.
$10,000 each session, with no guarantee of improvement and no independent studies to show efficacy
@@El_Superhombre_Blancoyes then Dr schubiner says stress causes it in heds as most if us have autism ADHD I've got it chronic
have pressure deep in my neck in the middle of the back of my head that radiates into my face and jaw. severe drowsiness and dizziness.
Could this possibly be a reason for my Alopecia bald spots? Ironically it started at the same time I got extremely bad with my Neck and shoulder pain. We don't have digital xrays where I live and I need serious help 😢
Stress if the pain did that to me
Can this be caused by hyper mobility?
Yes, instability is the term we use, but that is a synonymous term.
3 years of all these symptoms with no help. Help me please.
Get a cervical collar and start learning. No one is coming to help. I am 37, and I just diagnosed myself with hyper mobile EDS. It's hell, and braces are the only thing to reduce the pain.
@@trollsneedhugs You nailed it. Bad wreck in 2008, doctors all said I couldn't have the symptoms I have because of a neck injury. Bull Hockey! My life came to a screeching halt at 37 yrs old and it took me until 2016 to find a neurosurgeon that knew about high level CCI. Sorry state, our medical (or lack thereof) practices. If you don't have $$, noone cares or believes you in spite of MRI & DMX proof.
Yeah @trollsneedhugs is absolutely right. I just got diagnosed with EDS too and it was a hell of a fight, and now I’m fighting for relief. My advice to you is finding the right doctor, as it’s truly key to making things a lot easier. Find support in those around you and in therapy groups. Let yourself cry, scream, whatever, after each shitty appointment, and then get back up on that horse. You, more than anyone on this planet, know what you’re experiencing, and you have to trust that and advocate for yourself until you find someone to listen. And yes, braces are wonderful in the meantime! It’s not a cure, but it sure helps a lot!
How about diaphragm weakness/paralysis and hypoxia?
Yes, this is a CCI related symptom
If i only got 1 symptom (struggle to hold head up/neck tension) does that mean i prob dont have CCI?
Also would you recommend stopping MMA/wrestling with this condition? thanks Doc
Hey I'll get this over to Dr. Schultz. Just seeing it now
Place location
Can CCI be confused for CCSVI?
What’s CCSVI?
@@WATCHINGTHEWATCHERS999 Chronic cerebrospinal venous insufficiency (CCSVI) describes a theory in which the veins in the head and neck (internal jugular and/or azygos veins and collateral venous channels) are narrowed or blocked, and therefore blood and cranial spinal fluid don't drain well from the brain.
can a chiropractor neck adjustment cause CCI? I have symptoms ever since a neck adjustment in July.
Generally not, but it’s possible. Oftentimes people will have underlying symptoms that causes them to seek treatment, perhaps hypermobility of the cervical spine, which chiropractic adjustments won’t fix. They can give relief, however if you adjust the cervical spine of someone with hypermobility, it should be done much more gently than that of someone who doesn’t exhibit those signs.
All my symptoms started after a chiro adjustment as well. No prior issues.
@ldeternal same for me
@@jmd.5899 What kind of chiropractor?
No doubt if you keep taking the head to an over stretched range which is fastened on deeply by ligaments and tendons what do you think? Many people are addicted to the popping of nitrogen which is what is released when this popping sound happens by a Chiro . They will never tell you it's bad because they have bills to pay.
Not all chiropractic is this way as there are lighter methods with no popping like Nucca or Pro Addjuster . However massage mixed in is awesome. Yet to get to a stability issue it's more than just going to a PT and lifting weights . We also realize the answer is not found in pain pills. In my research If I was to have work done this is where I would go.
I am in bed 11.5 months. I have not washed my hair for 11.5 months.
Is there a cure?
What causes people to get this ?
That’s what I’m wondering. I noticed he said something about physical trauma. I remember reading about hypermobility and EDS being culprits too.
Mine was caused by a bad wreck (shifted the frame of my 4wd over 4 inches to the left, almost couldn't get my gooseneck hitch out) 16+ years ago. Doctors swore I couldn't be having the problems (MultipleXXX) I have because of "whiplash". I'm living proof that there is a reason the call Doctors "Practicing". My life stopped at 37 years old because of incompetant doctors & lack of funds to keep fighting.
EDS for me
Cervical trauma due to using my head as a pogo stick when falling from a BMX bike
How expensive is this?
$10k very expensive
@@Maliniaq2 OMG