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- เผยแพร่เมื่อ 31 ก.ค. 2024
- This is my experience after having my ileostomy taken down this year. I go over what my pre-op appointment was like, how I prepared, how my hospitalization was, and what the first month was like.
My second video has pictures for anyone looking specifically for those!
Other ileostomy reversal stories I found helpful:
Survivor Jenna - • My Ileostomy Reversal ...
Jack Atkins - • My Stoma Reversal Surg...
Please note that none of this is medical advice. Just my experience and info I’ve gathered from online or my surgery team. Thanks!
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Good information. Thank you. I'm glad you're doing healing well. Best wishes for complete recovery.
I had a intestinal blockage after which i came out of surgery with a pouch. Was a bit of a change for sure. That was a year ago and at the time I was told I was a good candidate for reversal so we will see I have an appt in April to talk about the things to expect etc. This helped quite a bit to show what happens. So either way I have adjusted if I can't get it done I will just have to live with it the operative word being live because without the pouch I won't be here anymore. Thanks for making this for us :)
Thank you. waiting for my reversal soon
Ya, I had a long hospitalization too and also am afraid to go back!
Thank you.. very helpful ❤
im having my ileostomy reversed in a few months...hate to say it but out of alot of reading and videos youre one of the only stories where things seemed to go well. im pretty apprehensive about my reversal hearing about people 2 months later still going 15 times a day. thank you for adding a little positivity to the discussion lol.
Hi Sean! I only watched a few videos in preparation for my reversal, so I must have missed the ones where it didn't go well! At first, I definitely had to go several times a day, but it really leveled off. Looking back at my log, by about 3 weeks after, I was only going 1-3 times per day and even had days where I didn't have to go. I'm now... just a few days over 4 months post reversal, and I am going usually once per day (though if I eat something spicy or something that upsets my stomach, I'll go several times). It also only took me a couple weeks for it to go from loose and watery to more solid and formed. Everyone heals differently and may have different timelines (especially for those who had their ostomy longer, if I had to guess, as the colon is likely more atrophied), but the reversal was worth it for me. I hope your ileostomy reversal goes well when the time comes and that you have a positive recovery after.
@@jessicastressica thank you, hope alls well in the future for you!
I'm 20 days post op and the only thing went wrong was I got a hematoma the size of a qtip and 2inches deep. I've been using the bathroom twice a day normally. I had spicy food last week it did burn the bum hole like normal. So yes I'm glad I didn't have the runs.
My appointment to discuss my ileostomy reversal is in 10 days, and I’m ridiculously anxious. I hope yours goes perfectly 😊
@K hey! have you done with your surgery? how r u feeling right now??
my daughter just had reversal ,, she's having internal pain 1 week after is that normal, she feels it more so then the outside.
Hey there , I’m about to do a reversal in 3 months. How long would you think I’d have to recover before going back to work.
Hi! They told me it could be anywhere from 2-6 weeks until going back to work. Largely depends on what your job is - how physically taxing it is. I went back after ~4 weeks. Good luck on your reversal surgery!
had an emergency il and then a reversal scar tissue still giving me fits! blockage and what not! any suggestions
Hi! I don't really have any good info about blockages from scar tissue s/p ileostomy reversal. That really sucks that you're having this. I would imagine that eating foods that are easier on your colon is likely. I just did a brief search, and I found an article (copied at the end of this comment) that does talk about some foods that are hard to pass through intestinal scar tissue. If you're having issue with foods passing by the scar tissue, I hope you've discussed this with your surgeon - especially since it can increase your risk for a bowel obstruction. Again, I'm so sorry you're having this post op complication, but hopefully with time it is causing less issues.
badgut.org/information-centre/ostomies/bowel-blockage-or-obstruction/
Did they give you epidural and a catheter? Were you able to lay on your back/side after surgery or did you have to sleep sitting up? How long did it take for abdominal pain to go away and for you to move around normally? I'm currently 5 weeks out of my ostomy surgery and still feel some pain, but am able to clean my apartment and do some gentle body stretches. Im happy you won't have to go through this again and have healed well. Thanks for the informative video!
Hi! My reversal was pretty quick, about 45 min to an hour or so, so I didn’t have a catheter thankfully! No epidural either, though I did have a PCA pump, and they provided some kind of pain reliever around my surgical site while in the OR - not sure if it was topical or injected.
Initially I could only sleep on my back after. It took a week or two to start laying on my side with my abdominal wound closest to the bed, another week for my other side. I’m a stomach sleeper and still haven’t been able to lay on my stomach.
I was able to finally stop taking pain meds right around the end of 4 weeks. I started to go longer stretches before taking more before I finally stopped taking them. I was able to start doing more activities around the same time. It took me about a week initially to move around though, so it seemed like once I started getting better, I was getting better quickly.
I hope you’re healing well and are getting back to some sense of “normalcy!” These types of surgeries are tough to go through, but we will persevere. Sending positive thoughts your way!
@@jessicastressica Thanks so much for answering my questions. Im dreading another recovery process, but excited for the reversal.
Hi this is some of the questions that were on my mind as well. I had an illiostamy done in 2020 due to a fistula of the bladder and bowels. Was only suppose to have it for 6 months tops. It's been 2 1/2 years. I'm more than done with it. So reversal is scheduled for October 5th God willing. But I'm scared of the fact that I haven't used my butt for that long that it might be more painful and a longer process to get back to normal. Your video gives me some hope that the doctors don't tell you. So how many days were you in the hospital and what happens if you don't want to get hooked on pain meds. Do they recommend taking them for the duration of your pain? I stopped taking meds right away after illiostamy surgery cause I was afraid of getting hooked. I have a very demanding job that requires heavy lifting. Don't think I am going back. Epidurals scare me. So I'm hoping for a speedy recovery cause no one around me gets the pain and suffering that I'm going through. It's sad. But your video did put me at ease. Thx 😊
Hi Nancy! I meant to follow up on your comment on my 2 month update video - I appreciated what you said and agree that this is a very emotional experience! It's hard to really know what it's like unless you've gone through it!
Sounds like you've had quite the ordeal, I'm so sorry to hear about how long you've had to wait for your reversal. October 5th is right around the corner, so I bet you're counting down the days.
So, the usual length of stay in a hospital after this type of procedure is typically 2-3 days, but it really depends on when you're bowels "wake up" or basically - when you start passing gas again. I had my surgery on an early Wednesday morning and discharged Friday late afternoon (though they said I could stay one more day if I wanted). I didn't have any gas until Thursday night, and it was quite the rumbles when it started! The first day I didn't need much for pain medicine because of the topical/dermal stuff they put around the wound in the OR, but I definitely needed some the second day. The problem is that narcotic pain medications will slow your digestive system - aka constipation. If you can get by without narcotic pain medications and can use other pain meds/interventions (tylenol, ibuprofen, toradol, lidocaine patches, heat/ice packs), then that'll help get your GI tract moving and get things working again! Also - chewing gum or eating hard candy will help move things along too! My surgery team had given me a pain pump (narcotic pain meds) initially and then oral dilaudid (narcotic pain med) as needed. By the second day, I was trying not take the dilaudid as I was worried that I wasn't passing gas yet - which it could still take several days after the surgery so I was worrying for no reason really. However, the surgery team did tell me that I should try not to take my dilaudid if I can, but if my pain is terrible then to take it. They gave me a limited supply for after my discharge also, which I did use a couple of times as I was over exerting myself while trying to "get back to normal." Fortunately, pain meds like tylenol and ibuprofen don't have the same addictive pathways like narcotic pain medications do. So, taking those for pain control would be a good way to reduce chances of narcotic pain medication dependence.
I didn't need an epidural for pain, and I don't think it would be likely that you would need one. I would assume they will just use the IV in your arm for any non-oral pain meds you would need.
If your job requires heavy lifting - then I would certainly be concerned about being able to do that after this surgery. If you don't plan on going back but end up working somewhere else that involves lifting - I would definitely talk to your surgeons about your lifting restrictions. An ostomy reversal is still a major surgery - you'll have a wound healing that goes all the way from inside your abdomen to your skin! That's a lot! :) It's important to let the abdominal muscles heal, and lifting too much can cause a hernia (which can be very dangerous after this surgery). For the first month after my surgery, my lifting restrictions were nothing heavier than a gallon of milk. After month 2, I could lift up to 20 lbs but no more than that. Since then I haven't paid too much about the weight of things I've lifted, I've certainly lifted some heavy things but not often. I think it's better to be overly cautious when it comes to weight restrictions though - after going through having an ostomy placed and then having it reversed - the last thing anyone would want is a hernia or any kind of setback.
I hope that helps! I'm so excited for you that you'll have your ileostomy reversed soon! Hopefully you'll be able to get some good rest afterwards!
I just had a scope through my stoma and was totally sedated. I Had to do a bowel prep to totally clean out. And they also checked the remaining colon. Wow, no pain meds, it is not the usual procedure where I live. Saw that a guy in Australia had it without sedation too and it was uncomfortable. Sydney Stoma.
Wow! That would have been much more ideal to be sedated. Their explanation when I asked if sedation was an option was that it typically is only 15 min (though mine took an hour) so they would rather keep you awake. I didn’t have to prep, so maybe that’s the trade off.
I did have a loop ileostomy! Interesting to see the different approach for the imaging.
I'm scheduled in a week for my colonoscopy. I'm a little concerned because I've developed a peristomal hernia. My surgeon has assured me that those are more common than not and will be repaired at the time of my reversal. I was also concerned about not being sedated for my colonoscopy after learning it would be done by going through my stoma. My doctor has assured me that I would be out! Thankful for that! I'm sorry you had to endure the pain having yours done. That seems a bit drastic on your doctor's part especially since the procedure was lengthy.
I realize this video was done one year ago but wanted to join the conversation to learn more.
I've had a colostomy for 5 mos now and scheduled for a reversal May 15 2024. Surgery was because of a blockage due to my diverticulitis. I'm nervous but hopeful I can be put back together without any issues.
Hope you have healed well and enjoying life and your precious baby boy! God Bless❤
@@suzanneanderson3475 I hope everything went well for you in May Suzanne. I had an illeostomy in May and the reversal is scheduled for July, all well thankfully.
any patient who had ileum perforation?
Had an illiostomy for 8 weeks, and got it reversed 10 days ago. I’m in the stage where I get that sudden urge to go and my schincter muscles are weak from not being used with the bag. It’s been very embarrassing and caused my anxiety to go crazy with the fear of not being near a bathroom. Did this occur to you and how long did it take for you to overcome this problem?
Hi there! Absolutely, I had the same issue. I was so worried about not making it to the bathroom in time when you’re body doesn’t give you much notice. For me, I stayed home and near a bathroom at all times. Honestly, I wore an adult diaper for the first week just for the extra sense of security. The frequency of having to go so often is the first to decrease, for me it was within the first two weeks. After about the first month, there were a few times (once a day or once every few days) where I would still have to urgently go to the bathroom and felt like I didn’t have much time to get there. It’s much more manageable. Now that I’m 2 months out, it still happens every once in awhile, but it seems to be based on my diet. When I eat foods that you’re supposed to avoid with the low residue diet, I end up with the urgency (though this urgency is not as “urgent” as it was initially”) and having to go to the bathroom 2-4 times within a several hours.
This part of the healing process sucks, but it should start getting better very soon. For me, it was gradual so I didn’t realize the improvement right away. Hang in there. Wishing you the best as you heal and recover!
@@jessicastressica thank you for the quick response! I’ll definitely keep those in mind and thank you for the reassurance. I’ve been doing kegal exercises to help strengthen things and truly hoping it works. I’m not returning back to work until the sudden urgency ware’s down, and it’s helpful that I at least have a general idea of when it’ll improve. Thank you!
Any other advice you’d recommend?
Sounds like you’re doing all the right things! I definitely think the kegel exercises help. I noticed I was having less BMs than I thought I would, which I think is from the kegels - possibly also from deep abdominal breathing. I went back to work at 4 weeks but probably should have waited one more week - but it was ok going back since I was near a bathroom.
The one other thing (which I very briefly touch on in the 2 month update I just posted) is how big of a component your diet it. So, definitely following the low residue diet, but also eating the foods that help thicken up your stools (similar to what you’d eat with the bag). Particularly the BRAT foods (banana, rice, applesauce, and toast) and water, this helped with less trips to the bathroom and less painful BMs. Also, while not ideal, I skipped breakfast and/or ate smaller meals for the first couple weeks just to reduce the burden on my colon. Also, I made sure not to eat too close to bedtime so I wouldn’t have any issues at night. Oh - and I avoided going and hard candies - those get your gastric juices going which = BMs.
Hope that helps! If you remember, please keep me posted on your recovery! We had similar timeframes for having the ostomy, so it would be interesting to hear if you follow the same timelines that I did. :)
@@jessicastressica were you able to control your muscles better when you got that feeling of urgency? As you’re aware, there’s no warning of when it happens, it just happens. Just curious if this happened to you as well and if you’re able to control it better!
@@potholedxterror0983 definitely! Even with the exercises and trying to eat the correct diet, the large intestine and surrounding muscles were still atrophied. It was about 3.5 to 4 weeks until I felt like I had better control. That's when I could feel the urgency, but I could wait for a brief amount of time before going to the bathroom. It gradually gets better too. Just this last week I felt that urgency to go and wasn't sure how long I could wait, but I was able to wait for about an hour until I was able to go to the bathroom at a more convenient time. It wasn't a comfortable feeling, but my muscles have gained enough strength to where I didn't have any physiological issues from prolonging going to the bathroom after being struck by the urgent need to go.
My reversal is in 2 weeks
Im 9 months since takedown
And.....? Can you share if you are ok. If not! Let's not get people discouraged
Can you control your stool
I didn't see your other video yet, but I am guessing you had a loop ileostomy.