after 5 long yrs of being unwell and desperate to find out why and get well….it’s lupus (SLE). i went thru wrong diagnoses of myasthenia gravis, Parkinson’s (even given C/L for several months), ALS (which broke me in so many ways) to now. my new rheumatology provider is an outstanding nurse practitioner who diagnosed me in 10 minutes of meeting. My friends and family went thru those wrong diagnoses and now said “oh, so what is it THIS time”. After sharing with few, i am choosing to not share anymore.
Valuable Advise! To much information to others is not always a good thing. I would love an updated video on Polymyalgia Rheumatica on your channnel! I think I am having a flair due to stress! Your explanation of autoimmune issues is so much easier to understand than my Rheumatologist! Thank You
Very good advice, thank you
after 5 long yrs of being unwell and desperate to find out why and get well….it’s lupus (SLE). i went thru wrong diagnoses of myasthenia gravis, Parkinson’s (even given C/L for several months), ALS (which broke me in so many ways) to now. my new rheumatology provider is an outstanding nurse practitioner who diagnosed me in 10 minutes of meeting.
My friends and family went thru those wrong diagnoses and now said “oh, so what is it THIS time”. After sharing with few, i am choosing to not share anymore.
Valuable Advise! To much information to others is not always a good thing. I would love an updated video on Polymyalgia Rheumatica on your channnel! I think I am having a flair due to stress! Your explanation of autoimmune issues is so much easier to understand than my Rheumatologist! Thank You
You left out #1: keep your private things, private. Share wisely or not at all.