First Symptoms of MS - My Early Signs of Multiple Sclerosis
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- เผยแพร่เมื่อ 30 มิ.ย. 2024
- The first symptoms of Multiple Sclerosis (MS) might be subtle and easily missed or dismissed. In this video I share what some of those first symptoms might be and what may have been my first symptoms that I missed and dismissed. I also share about the importance of sharing our symptoms with our doctors and how it may take multiple doctors to find answers. It is important to report any symptoms as the sooner we get diagnosed, get on a disease modifying treatment (DMT), and start to make diet and lifestyle changes, the better our long term outcomes will be.
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Were your symptoms of MS subtle?
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No, walking quickly became severely impaired. Ocrelizumab (Ocrevus) has done wonders for me although my left knee has developed a compensation pain. I do however consider myself to be very fortunate all things considered. Thank you for your compassionate posts on the web! I love having you talk about MS in my home!
@@marcellussalerni1281 thanks for watching and sharing. I am so glad you are doing better. And thank you for the nice compliment! I am happy to talk with you! 😉
My diagnosis was quick, within 2 weeks. It started on my 34th birthday(21 years ago), I couldn't turn a magazing page, my fingers on the left hand wouldn't grasp a piece of paper. Thought maybe I slept on it funny, but everyday after was worse. My Dr. was on holiday so I went to walkins and got same answer, maybe a pinched nerve. Then I had a lightning bolt up my left arm and it went numb, I went to a dr. in my clinic and she told me to pack a bag and go to hospital where I would be seen by a neurologist. I had an MRI, lumbar puncture, tons of blood work and by this time I had lost use of my whole left side, totally paralyzed. The started agressive steroid treatment and physio, I had MS. Was told if I got out of a wheelchair the best I could hope for was walking with a walking aide...I told my neurologist to watch, I would walk on my own again. Six months later I was walking(without an aide)and working out the gym. I've been off meds for almost 20 years as the side effects where terrible. At that time there were only 3 drugs to choose from. Now I'm a fitness trainer and nutritionist specializing in living a Blessed with MS life. If I hadn't been diagnosed with MS I know I wouldn't be as healthy as I am now.
@@angelaarnold4560 I love this so much!! I am so happy to see you are doing so well!
“You always have something”. That’s what I heard from my parents and my husband. Years and years I’ve had subtle symptoms and the GP didn’t find any explanation. So, finally I didn’t go to a doctor anymore, it all must be stress, I thought. Well, it happened to be MS. Thank you for sharing your story, mine is quite the same.
I am so glad you finally received your diagnosis. I hope things are going better now!
Hi, Thank you for your advice and videos. Best wishes to you and Happy the week. ❤
Thanks for watching!
My neurologist told me that it was very unusual to get MS at age 60. He thinks that I might have had it for years, and just didn't know it. Looking back, I see things that may have been a symptom. I now use a cane or walker when outside of the house.
Hi Kathy, thanks for watching. Hindsight is very interesting isn't it? I am glad you found answers, even though it may have been later than most of us.
Walking into door frames was my first symptom.
Oh interesting! Slight balance issues? Sending you off course?
Ditched seed oils, processed foods, sugar, and increased animal based fats, and fatty protein, feel tremendous.
@@mjones1122 thanks for watching. So glad you are feeling better after ditching the oils, processed foods, and sugars. I would caution you about the animal fats as long term they have been shown to lead to worse outcomes and other health problems.
Rebecca from the TH-cam channel @cabanachronicles is doing carnivore for her ms.
I have all of these problems but I feel like my doctor will think Im crazy. Everytime I go with a symptom to my dr i feel like they brush it off and just want to focus on one problem per visit. I have an array of problems but im tired of complaining with no one is listening.
Hi Rebecca. I am sorry that is happening. Keep advocating for yourself. Perhaps bring a written list and ask them to go through each one with you?
I had asthma as a child. I wasn’t diagnosed till I was 12. I outgrew it. My son has it now. I also had bad headaches and still do. My MS symptoms get better no leg or hand pain, and better mobility when I’m on my period. Less leg heaviness. But I still use a walker and a wheelchair.
Thanks for watching. How interesting how your symptoms fluctuate with your hormones.
I still waiting on diagnosis, it started 2 years ago, I woke up shaking at 330 , 5 episodes, drop foot, right side weakness, hot showers I thought I was having a stroke, slurs words numb face. Dr wahls level 1 as a vegan has helped me alot
Thanks for watching. Keep advocating for yourself and seeking answers! Glad the dietary changes are helping!
I am age 74. I have been walking into doorframes since my 40s.
Thanks for watching. It is such a common thing for us! We should add that to the questions when getting diagnosed!
Yes, it took me 8 years to figure out about the pain in my legs and arms. ...and yes I was in my late 50's and they said, age? neuropathy? slow blood flow? ugh!!!!!
Oh eight years! I am sorry it took so long. How are you doing now?
@@EvenSoItIsWell I now know what to expect now with my systems, to ask for what I need, and how to care for myself better. It is a bit of a shock when you hear those words of "I hate to tell you this but you have MS". Like most of us diagnosed later in life the thought is that I have had it for a long time. It has taken me almost 5 years now to know if something happens, I'm ok, and that it doesn't have to stop me from living. My friends hate when I say this is my new normal to get used to. They want me healed, as do I, but I know my truth for now! Thank yo for your post and podcast.
Mine, I knew what to look for as I’m the third female in my family to have MS. So as soon as my 90 pound dog was standing on my feet and I could not feel the pressure or the pain of him standing on my feet. I knew something was wrong. I immediately contacted my sister’s MS specialist got in and he had me diagnosed within a week.
Oh wow! Glad you were able to diagnosed quickly!
ah, yes. . . foot drop. . . for me too the demanding call to figure out was going on. . . . . . . .neurologist. . . mri. . . brain and spine lesoins. . . . . . . . . . . . . . MS! 4years ago at this point. . . .
Ah, we share a similar story!
You forgot to mention the secret sauce/holy grail of your healing journey Your fur baby!
You are so right!! I need to do another video featuring the benefits of Bunji the Blue Heeler!
Can do you know if MS has anything to do with bladder issues? My daughter has had been diagnosed with a weak bladder. She does have left sided weakness and has leg pain in one leg only. She does has a neurologist for migraines and we are seeing a neurosurgeon to rule out spinabifida.
Yes, MS can definitely affect our bladder and bowels. mymsaa.org/publications/motivator/summer-fall13/cover-story/bladder-bowel
Numbness in left arm (from hand to elbow).
Thanks for watching.
I have scoliosis never wore brace or anything
@@pamreynolds6812 thanks for watching.