Living the Lyme Life
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- เผยแพร่เมื่อ 16 ก.ย. 2024
- Fashion designer and GLA board member Ally Hilfiger talks with brave teens who are living with Lyme disease and shares valuable tips to avoid tick bites and Lyme disease prevention.
Brian A. Fallon, MD, MPH, Director, Lyme and Tick-Borne Diseases Research Center, Columbia University discusses some of Lyme's 300 plus symptoms, including neurological Lyme.
Lyme and tick-borne diseases have been reported in all 50 states as well as 80 countries. We are all one tick bite away from Lyme disease. Video outlines Symptoms and Prevention Tips.
Special Contributor:
- Bella Hadid, International Supermodel, Global Lyme Alliance Uniting for a Lyme-Free World Gala Award Recipient 2016
Students:
- Emily Dershowitz
- M.J. Hinsley
- Katharine Maxwell
Film Production:
- GLA Young Leaders Council
- Directed by Dana Blanchard
Sponsors:
- Mark and Deborah Blackman Charitable Trust
- Newman's Own Foundation
- The Allan B. and Frances G. Herzog Charitable Foundation
- The William Pitt Foundation
For more information on Lyme disease go to GLA.org
Please, turn off that infernal piano melody that gets in the way of hearing the speakers!
Agreed.
You realize this is a recorded video
Thank you for speaking out on Chronic Lyme. It's a terrifying and painful disease. Youve done so much to help and I'm so grateful.
stay strong.
@@lelamoore7178 It took me a long time, but I finally healed! It took medicine, meditation, healing of all sorts. It's a path. If I can do it, and I never thought I could! You can too!! Stay positive.
@@AB-bt9eb Youre welcome, what did you do to get rid of it?
Meditation and yoga really helped heal my nervous system and increase my health. Lyme causes all sorts of adrenal fatigue and then excess. It helps with all that and the pain. It's all on TH-cam. I ate much healthier. I took supplements for my gut and stuff. Different things. I had to be open minded and willing. Trust it will happen. I was bed ridden for a long time. We can get better!
@@AB-bt9eb thank you
we suffer in silence, thank you for your courage and speaking up for us all.
It is not just from a tick bite, and I hate when everybody always assumes tick bites, also it can be from Spiders, flies, and mosquito'a, plus more. And antibiotics often don't work.
steve: you are exactly right. It can't possibly be only a "tick bite." I've been sick for 12 years and still no cure.
th-cam.com/video/Zoxq6a2vJQ0/w-d-xo.html
Catherine S. Todd Ozone therapy will help 🌼
i got a tick bite recently and have been getting bad joint pain, soon as i saw the bite i knew it was a tick bite so now im on antibiotics and praying i don't have lyme. ever since i got the bite i have felt so exhausted and tired x
Bryan Valentino
i was perscribed a special penicillin and i have gotten bad migraines and even mire joint pain xx
The only suggestion I would make about this video is the background music is a bit loud and distracting, and makes it hard to hear the discussion.
Especially for people with Lyme disease that have trouble focusing.
This is so amazing. I have been suffering with Lymes disease for almost two years now struggling to get a real diagnosis. Seeing people speak out about this warms my heart. Life is a daily struggle and I'm so glad that people are speaking out about this and spreading the word. The whole world needs to be aware! Sending love to everyone suffering ❤️
I can help you.
STEAM SAUNA TWICE A DAY
Thank God people are finally getting aware now let's find a cure for people that have chronic problems with this horrible disease
Rich Pickard it pisses me off because it's sooo simple!!! Eat super healthy & exercise. Use a sauna sweat tremendously!
@@carolinaescobedo9770 I'm sure you'll have good intentions but it is not that simple if you're referring to getting rid of Lyme disease by what you stated - think again and educate yourself!
Hey, I am a 16 year old and I have Lyme diseases since I am 7. My mom has it and while I as in her womb. It has been a real battle and a daily struggle. Thank you so much for realising this video because I feel so much better and less alone. Thank you so much.
I can help you.
💚💚💚 thank you so very much for bringing awareness. Let this be a message to everyone and the powers that be there are hundreds of thousands of people suffering we need more research more funding more awareness and more understanding and treatment from the medical field!
Thank you for creating this video for the public and for being an advocate. I can only imagine how difficult those years were for you. I was diagnosed with Lyme as a child (my mom had it and transferred it to my sister and I). I can relate to many of these symptoms being shared while growing up as well as currently. My dad claimed I showed no signs and I am saddened by this. Please as parents we need to pay more attention to things our children tell us and further educate ourselves on this issue.
Thanks to everyone who raises awareness. I suffered for twenty long years undiagnosed. I felt relieved to find out what was wrong with me. Unfortunately that is all my diagnosis did for me. It gave me relief to know. I am still wasting away and spending my days sleeping for 18 hours constantly in a haze of wanting to just sleep. At least when I am asleep I can't feel the pain. And the government will not help, they say I can just get a job. If only they really understood what we go through and what our lives have come to. They have no clue .
Aly Fersch Ozone therapy will help 🌼
are you getting treatment now? how's things?
There are tons of natural remedies to try. Don’t just sleep your life away. Keep researching and trying to help yourself. If you can’t afford supplements, get your family to help. Exercise, just walking outside in nature, can make you feel a little better. Don’t give up💕
I can help you.
Thank you for this wonderful video... we need to speak out and bring awareness, and find a cure! It's got to be more than just a "tick bite." God bless!
It is carried by all kinds of bugs, including mosquitos and spiders.
Got a tick bite on my upper right arm between 82 and 84 as I was a neighborhood lawn mowing kid. Diagnosed in June 2013. Luckily I only have Boriella as I'm 50, alive and working about 35 hours a week. The typical symptoms started in the 80's with aching elbows and wrists. Then my back and neck got extremely stiff and painful. An orgasm would (yes many people have orgasms) stiffen my back to the point that if I tried tipping my head forward 4" the pain was enough to make me scream. Then later 80's my knees hurt really bad to the point I wondered if I needed knee replacement as I was in my early 20's. Then food intolerances began as honey, corn starch and corn syrup solids were the first foods I figured gave me trouble. I had a headache for a year constantly in 88 or 89. I was diagnosed with PTSD in the middle 90's from several things including being with my parents at age 5 when they found a suicide,,, a cow trying to kill me when I was 7 and a Doctor raping me with a suction hose when I was 8. Other things might have happened to me that were so traumatic I don't remember them. I was throwing out my back a lot in the 90's. My chiropractor said my body was very stiff. Food intolerances got worse in the early 90's then I saw a natural medicine practitioner who gave me a list of foods to avoid. Most of them berries and albumen types. Food intolerances were so bad it effected my eyes to the point I had trouble driving. I wore glasses in 1997 even though my eyesight was nearly perfect. As soon as I started adhering to avoiding foods on the list from the Natural medicine practitioner my eyes and back got better. I had chronic sore throats and burning sinuses to the point my sinuses felt like they were on fire. The sore throats were so bad it felt like a knife had cut from the tip of my tongue back down to my throat. Even talking was difficult some days to the point it sounded like I had a lisp. Because of the health problems I couldn't hold jobs well or make much money. So I didn't have money to start doing tests like a Doctor at the Rochester Mayo Clinic suggested in the early 90's. In order to perform at my job and sharpen my dopey mind I'd eat Snickers or other candy bars and donuts. Same thing I'd do if I had a project to do at my shop,,, I'd get wired up on sugar,,, otherwise I'd have trouble accomplishing anything. I tried mowing lawns daytime and delivering pizza evenings. I was very depressed and didn't keep a good consistent mowing schedule which bothered my customers. I couldn't put my heart into mowing lawns. I experienced suicidal level depression at times. All this time my family told me to stop faking it and pull my head out of my ass. I found a very bright Doctor in 2004 and started seeing him. Hypoglycemia was the first thing diagnosed. If he had tested me for Lyme at that time I would have been negative. He suggested I get off sugar, wheat and dairy and I didn't listen to him. Many more Doctor appointments with him and he was scratching his head. I threw up my hands on it and didn't see him for almost 5 years until December 2012 when he said Boyd I think you have Lyme. 1st test had indicated Lyme but was about 0.5% short of being a positive. Blood culture test was positive at the very end of the 16 week test as my blood was growing. Lyme diagnosis June 20 2013. 1st try with one antibiotic gave me bad Herxhiemer response and I couldn't drive. My income is delivering pizza. No savings to live on. Heart pains started August 2014 and my health continued to decline. Lyme induced dimensia started March of 2015. Purepaleo Protein from Designs For Health brought my mind back from the brink of having to quit working and driving. I started Minocycline and Metronidazole late May 2015. I had a strong metal taste in my mouth for several weeks in June. If I had any dairy my farts were enough to literally clear out a room. I finished the antibiotics late January 2016 and felt good February, March and into April. My lower left arm ached almost all of April. I had broken that arm when I was 14. Lyme returned fast in about 10 days in late May 2016. I went on a natural medicine antibiotic and my health improved. I stopped antibiotics late April 2017 so all the antibiotics is clear of my body late June 2017 for a T-cell provocation test done by a lab in Germany. My LLMD (Lyme Litterate Medical Doctor) thinks I might be free of Lyme but I'm not holding my breath. It's been hell. I've had this since my teens and I'm 50 now. Had it through the prime of my life. I wanted to have a manufacturing business and work my butt off so I could drive a Ferrari. I tested at 150 genius IQ at age 14. My life is nowhere near the life I had planned. I live with my mom and deliver pizza. No wife, kids, house or collection of old Mustangs. I could write more. Thankfully I only have Boriella. Without a diagnosis and antibiotics I'd be dead by now.
Boyd W I have been affected with Lyme since my mid thirties. When I was 7 1/2 months I had polio, during my formative years had three corrective surgeries and wore a brace. Shen I was 15 I thought I could forget about it forever and got to quit wearing my brace. When I was about 35 I found out I had post polio syndrome and began having nerve pain in my legs and suffered some muscle loss. But that was just part of the problem. I had all these symptoms, of which extreme tiredness was most prominent, but could not figure out why I was always running a low grade fever. I didn't realize I also had Lyme disease. My last child was born in my mid thirties and she , of course,has it, too, now. We have spent at least $100,000 in the last 10 years trying to cure this stuff. I've been everywhere from traditional medicine(IV antibiotics) to natural medicine(frequency and bio resonance scanning and treatment and diet) with little improvement, at least not permanent. I got a positive test result from a lab in California. Where did you get your treatment that worked? I am 63 years old now and am disabled and spend most of the day in bed,unable to even be a housewife. I'd appreciate your help.
I have lyme too. No words can explain the suffering of lyme patients. Please try to use teasel. I get better after drinking 3 spoons of teaseltincture everyday. Try this natural medicine at least for few months. And please stop eating sugar because sugar makes borelia active and survive.
So sorry you are going through this.
I hope you are feeling better now.
I understand perfectly what this has done to your life as I’m going through this.
My symptoms started twenty years ago and I’ve just been diagnosed through a German blood test. Unfortunately I now have a lot of health problems from heart , thyroid, chronic fatigue, problems with my veins more autoimmune disease, anxiety and depression and food and chemical sensitives
I’m in the Uk and unfortunately they will not treat me as they don’t believe in this chronic condition. I’m hoping to get some strength so that I can be driven by a family member to Germany for treatment. Im scared to leave the UK as I can barley stand up but what other choice do I have.
Tracey your heart problems “might be from” chemicals common to artificial flavorings which can build up in the brain and start short circuiting things making ghost pains in your heart. I suggest cleaning up your diet if there is any junk food in it.
MUSTANG..PUBLISH THAT BOOK YOU WROTE YOU LYME CLOWN
Unfortunately I was and am one of those young women. Still suffering but still fighting!
Brooke Lauren hang in there girl! We’ve got this 💪🏻
Steph Thank you Steph! ❤️ sending healing vibes your way! 🙌🏻 I actually have a TH-cam channel and I make videos on Lyme and chronic illness and other things too if you wanna check it out and like my vids I'd love to have you subscribe☺️
Brooke Lauren is there a difference between Lyme and chronic Lyme,I have been in bed now 7 months and I have an appointment with a doctor who specializes in Lyme,I noticed symptoms going back to 2012 but in these last few months the weight loss has been extreme
Hey, do you still make videos? I can’t find them. I hope you do!
My heart goes out for all the people that has lime disease my sister was diagnosed the other day with it I was so sad to hear that I hope everything goes well for her 😘😘😘😘
Thank you for this video. I have a couple of teenagers and this video has really helped them. I've also sent it to a few teachers.
I like people who get to the point . It’s all I wanted to know and fast. Thanks!
Your health is your wealth.....how true!!!!!!
Unbelievable. Truly grateful for this video. Thank you!
Thanks so much for this video.. great support for me right now!
Wrote a Lyme disease brochure with the help of two Lyme disease specialists. Will email a copy to anyone interested. God bless and thank you for this video !
Helo, I am interested, plese resend it to my email - lukasxf@gmail.com, thanks
I'm interested please email to;
jessicaturner090379@gmail.com
Thank you
Me too. Bienaimei@yahoo.com
I am interested candelaptaessrig@gmail.com
I would appreciate your brochure very much. My email address is: bjsislanddreamer@aol.com. Thank you so much for doing this.
This video is fantastic! Thank you for sharing all the knowledge.
As someone who has suffered with lyme since birth thankyou xx
I am a biologist in Europe, an environmental biologist. I have to share a sad story, this is sexually transmited and through the saliva becayse the saliva is spirohyte bacteria infected.
So why Bella’s boyfriends doesn’t have Lyme?
My lyme symptoms seem to be irreversible. My vision is severely affected and I have hundreds of huge floaters constantly in my central vision. These do not go away without serious surgical intervention. I would have given anything to have joint pain instead...
Same here, along with severe brain fog, fatigue and migraines, sorry you have to deal with this shit too.
Please google SOT treatment for lyme
Yup, me three. I'm holding on, barely, it seems
Same here! My brain is so broken that I'd trade pain for a functioning brain any day!
@@alexandralysak7537 hang in there Alexandra! I posted this 4 years ago and still have symptoms but I've been able to mitigate some and tolerate others, you can and will get through it!
Vast majority of people recover? Seriously?
I couldn't hear some parts of the video because of the loud music.
no dislikes
How does she deal with puffiness and swelling from Lyme? It's awful for me 😭
I’ve been sick since childhood. I went undiagnosed until age 30. Treatments left me bedridden and horrifically ill. I’m 40 now and still trying to figure out how to heal. I have 3 children and a they all show their own symptoms. I’m so afraid for them. I have to figure out how to get better so I can help them but I’m legally disabled now from the disease. It’s a nightmare.
We need action, and have a vaccine for those who are suffering. So much money spend in other things that are not that important, health is the most important to overcome this infection.
we need a vaccine to overcome this terrible infection. We need the Government to take action, and have Dr. to acknowledge the situation learn more and stop laughing. My primary Dr. Dr. Patel laughed when I came to explain my suffering.
Prosecute the criminals that allow people to suffer needlessly.
18 years lymes......I am the storm-Lymes warrior
You do not need music to show this video. IT IS VERY LOUD!
I have been in and out of the hospital for all kinds of tests during the last 7 years, trying to figure out what's wrong with me. I've had a bunch of health issues like: hair loss, fatigue, brain fog, strange rashes, red and swollen knees, headaches, vision loss and eye pains, swollen lymph nodes, stomach pains, irritated bowels, heart issues, stabbing pains throughout my body, memory loss and so on. So far, no one has figured out where all of these issues have come from. Doctors have given up and they told me it's all in my head and I'm making things up. This has made me so frustrated.. Sometimes I even doubt myself, wondering if what the doctors are saying is true and I'm making things up.. Despite of all these health issues I've never really stopped working or anything. I even had 2 jobs working roughly 14 hours a day. Right now, I don't even know how I managed to do all that, but it did make me wonder if I was really that sick because I kept on going. I don't know.. It just makes you doubt yourself in so many ways. At this point I am just done with my body and I have given up pretty much all hope to get an answer. In my mind, all of my symptoms point towards Lyme disease, but I don't think I'll ever know for sure..
Elke Nicolai have you seen a Lyme doctor yet
BroScott 321 I have been tested for Lyme once. Not by a specialist though. But the tests we have here in the Netherlands are extremely flawed and usually give a false negative. I'm going to a clinic today to get a live blood analysis and the people at this clinic actually are specialized in lyme. Hopefully I'll get some answers today!
Elke Nicolai never give up I’m going to see a Lyme literate on December 5th for this crude I been dealing with symptoms for 4 months symptoms for me come and go sometimes bad and sometimes manageable. The worst time for me is at night cause that’s when I get the muscle spasms and jolts that I can’t explain that just come right before I try to drift off to sleep. Some days I just want to give up and say god take me but I’m not going to settle for that I’m going to fight for a diagnosis then after fight more to get well. I’m know it’s going to be long and hard and painful but I know I’m going to get better. It helps to have people who are having the same struggle surround yourself with people who live the same nightmare it calms the mind and give you comfort somewhat. For me I do a lot of research through the day to prep myself for what I’m going to be going through and what I need to do to help and fix it. My email is broscott321@gmail.com email me anytime if you need someone to talk to
BroScott 321 Sounds all too familiar.. I also get muscle spasms right before going to sleep. Especially in my stomach - feels as if I'm throwing up, but I'm not. I wish you the best of luck and strength on this difficult journey to recovery. It is comforting knowing we're not alone in this. Hopefully you'll get some answers soon. Thank you for your support and kind words! Means a lot!
Elke Nicolai of course let me know how your test go tho
Buhner Protocol
Artemisia annua and wild cardoon.
Moreover stevia has proven to be an effective means against it. Try them as they support your body and develops an environment where borrelia have a hard time surviving. Furthermore sauna helped me to get rid of it. Take care guys and hope to helped you out a bit
6 years it took me to get diagnosed, I thought I had MS!
This is such a serious illness. I’m never hiking in the woods again when I go back to the east coast.
I DONT HIKE..BUT GET HIGH BOOTS AND COMER THEM IN INSECTICIDE..THEY DIE OR FALL OFF
What is the best test to detect Lyme? I have heard many people say the "traditional" test is not always accurate, and that is how many go undiagnosed. Any feedback would be greatly appreciated.
Hi there, take a look at our testing page: globallymealliance.org/about-lyme/diagnosis/testing/
IGeneX. Some insurances (like Medicare) cover it. Or you can order it directly from their website and go to a local lab to have the test done.
If you need help ordering, or knowing which test to order, they have a customer support phone number on their site.
If you don't catch it early the parasites will create a biofilm. The testing they use will probably come back with a false negative - i.e. not show you have it. If you get treatment, and get tested later you may show a positive result because the biofilm will have broke down. If you take nattokinaise and serrapeptase, these have been used in some treatments to break down biofilm. Maybe you could do a month or so with these enzymes then do the test after. Western Blot should detect it after that I reckon.
I can't take another day
where can i find bella's speech?
Check yourself if pat a dog or cat they are outdoors animals and I did a movie years ago I whent to VETERANS I was shocked how many lymes cases they treated with out telling the public like its abig SECURITY issue you don't want lymes it's bad
Who has to do this for school?
Where to send the tick for testing? also, if testing the bitten person does not give a real answer about being infected or not, how the test of the tick will give you the right results? After all doctors don't like to diagnose Lyme disease.
WHERE are all the doctors that treat this disease???? Because I can't find any! I watch all these videos about Lyme, with all these doctors in all these other states...where are they in Ohio? 😢
Can lyme cause a stabbing pain in the heart?
Yes, it can.
@@vintarusproximus2854 Do you have it?
NO BUT UR CLOT SHOT CAN😂
I'm confused about the testing. Any suggestions for that? Thanks:)
If you don't catch it early the parasites will create a biofilm. The testing they use will probably come back with a false negative - i.e. not show you have it. If you get treatment, and get tested later you may show a positive result because the biofilm will have broke down. If you take nattokinaise and serrapeptase, these have been used in some treatments to break down biofilm. Maybe you could do a month or so with these enzymes then do the test after.
Find an ILADS DR.
Cannabis fixes Lyme disease.
Use a 50:50 THC/CBD blanced blend to reduce the euphoria. For your safety use a medicinal brand.
Worked for me.
How do you treat it if you’ve had it for years?
The girl after Belle Hadid, has a very condescending tone in her opening remarks, which I don't appreciate, "I suggest that you listen..." That's very unfortunate because everyone else comes across very well and has my admiration for the ability to endure the illness and prevail....
I HEARD HER .SHE DIDNT SEEM CONDESCENDING AT ALL
the background music is way too loud. impossible to listen to for me.
I got lyme in 1994. Got my diagnosis in septtrmber. Still strugling to survive. Have been receiving treatment since October. I have received SOT treatment for lyme. But I have many other ticks transmitted bacteria that make me very sick too. Babesia, Bartonella, Mycoplasma pneumoniea and Chlamydia pneumoniea. These I have to treat with antibiotics. Think I can't get completely healthy.
How are you doing now?
The background music distracts from the message.
This probably would have been very educational and great for knowing youre not alone. However, since they were blasting the music much, much louder than most of the people talking, it ruined a very great effort on someone's part. It's really too bad.
I have PTLDS but can you spare me the music
All Yas may need is Vinegar?
Raise Body Acidity pH
Drink 5% With Water
Consult a Medical Practitioner First.
holy fuck I have Lyme disease
How are you doing now?
The anxiety of what? Can someone tell what is bella talking about at 0:25
ANXIETY YES..SHE CANT GET CURED FROM IT..ITS A DEBILITATING DISEASE..IT CAUSES ANXIETY
LIVING WITH??
HOW ABOUT CURING IT??
MMS PROTOCOL 2000
G 2 VOICE. YOU TUBE
yes exept when i have so mich toxin u can t handle dosisng it get complicated espcially when brain is afected
The second brown haired woman speaks very robotically, it's hard to get into her story... it's like shes making a sales pitch.
😔
No one has to suffer with this. It can be gone energetically in 30 minutes or less.
GET OUT OF TOWN😂
Fool!@@leelunk8235
Why do stupid video producers INSIST on putting loud inappropriate music to every post they do ! Big switch off!
Can someone show a heart and prescribe me antibiotics or send to me?
I have had lyme and now a relapse of symptoms. There are barely LLMDs in my country. Actually only 3. And they don't have time ...
DariaRock use turmeric and ginger and garlic supplement along with antibiotics.
There is no cure.
Maybe not, but the symptoms can be controlled, let's not forget to give the positive it's chance to be realized.
Some people are cured with antibiotics. Others may not fully eradicate the spirochetes, and some studies of post treatment Lyme disease syndrome actually did have “chronic Lyme” with live spirochetes found in their cerebrospinal fluid. More is being learned about Lyme all the time.
some studies of PTLDS patients***
Doxycycline
You can get it by getting exposed to mold too. I'm sooo mad that I had my tonsils taken out because of this stupid disease.
I USED TO SHOWER IN WALLS AND FLOOR BLACK FULL OF MOLD..STEAM FROM THE HOT WATER..I BREATHED IT IN FOR 9 YRS..I JUST DIDNT WANT TI CLEAN MY SHOWER ROOM..ON OCCASSION I WOULD BLEACH THE HELL OUT OF IT..MAKING IT SPOTLESS..I NEVER GOT SICK FROM THE MOLD
Whatever !!!! Sry still can't understand this disease x¡¡¡¡¿♡
This whole only listing like a dozen symptoms is so cruel. Do better. At my worst I had over 100 symptoms a day. This is so infuriating to see this bs advertised.
Please take the sickly piano music off. It makes it really hard to concentrate on their words.
youtube.Dr Douwes.
Today I got bitten....
Are u Ok? I hope you didn't risk inaction, the time to respond is immediately, especially if antibiotics are your choice of attack.
I might have Lyme disease 😐