As a former nurse, I started having the exact same symptoms Carlin is having. They started in April 2016 & took me multiple neurologist & 4 years to get answers. Final diagnosis was conversion disorder. It is caused from trauma. I have been in trauma therapy now for nearly 2 years & been symptom free for nearly a year. I pray they can get her correct diagnosis. I know how scary & frustrating trying to get the answers needed for correct treatment
Yes it can be caused from several different types of things Mine was from head trauma age 7 I have tried several times typed this lol Often missed and hard to make a diagnosis it comes and goes for Years it slowly takes time before it gets worse its Often times triggered by an issues or illness (me several autoimmune diseases)
@@mollieedwards5967 Yeah I also have multiple autoimmune illnesses. SLE lupus, connective tissue disease, Fibromyalgia, Reynauds, etc.....I personally believe majority of health related issues are directly related to either some type of mental illness or head trauma. It's so hard to get Dr's to listen, but as a former nurse, I'll fire them in a heartbeat & keep on until I find one that WILL LISTEN. I'm sorry you have all these things too
Having this seizure towards the end of the stress test may actually be God's way of provide answers. Praying for yall daily🙏 Warden, your such a light and blessing to your family. I see you helping out all your family constantly. God bless you!!
Exactly what I was thinking. I hate that it happened, but they did say they wished that she could’ve had an episode with the eeg on that they did at home and she didn’t so I’m hoping this just means they are getting closer to answers.
I'm glad that Carlin had an episode while she was doing the stress test because - even though the test may not have shown anything wrong with her at the time - they actually saw her have the episode and NOW there's proof that she has them !!!!! I just PRAY that you find out what is causing the episodes so that you can get some type of treatment for the episodes . I hope that you have a GREAT week !!!!
I recommend keeping a journal of what activity she’s doing or done right before she has an episode. Maybe that can help narrow down what may bring them on.
I did that when I was having major issues with my sugar. And went to a specialist. He was able to quickly figure out that my body can’t process sugar. Oh my goodness complete game changer Haven’t had sugar in 18 years. You will be surprised what has sugar and what doesn’t
I can relate to the frustration of not knowing what is going on. I spent most of my life knowing that something was wrong but my Dr didn’t want to help me. Years later my uncle is diagnosed with something that I realized that I had from the symptoms & being officially diagnosed. I still knew something else was wrong, my naturopathic Dr that helped me more than any primary care Dr decided to test me for one of my worst nightmares. I looked up the symptoms & remembered being bitten by a tick while back east when I was 2 yrs old. Test came back positive for that meaning I have chronic Lyme, a disease that is a nightmare that so many Americans have often without realizing it until something seriously goes wrong. I used to be a live in nanny to a woman who was ill just to find out after she started having seizures that she had Lyme. Lyme can present it’s in so many ways, it’s worth doing the two best Lyme tests…it’s worth the money! It’s worth ruling it out. God bless & bring you answers asap 🙏🏻
Yes to this! Yes, get checked for Lyme but I would recommend by a functional medicine or naturopathic Doctor. So often the test comes back negative or inconclusive when done by an allopathic doctor. My mom has chronic Lyme and yes it can present with seizures. Praying for you all!
I get a kick out of Evan. He's a comical kind of guy and has such a positive attitude. Imagine how stressful Carlin's condition is for him and he keeps staying happy. Prayers to you Carlin.
Carlin, PLEASE don’t be discouraged yet! You never know, that episode being caught during that test may lead to the exact answer you need, even if it wasn’t given that day! 💜
The kids rooms look so cute!!! Must be a nice little break from the health situation getting to focus on making your house look just the way you want. I hope you guys get some answers really soon!! 💛
I love the kids’ rooms! And what an amazing young man Warden is! I pray for strength for Carlin and for answers to her health mysteries to be revealed. God bless you guys.
@@SummerLove316 My mothers come from having six spots on her brain like a aneurysm but didn’t kill her and that causes her to have seizures my sister has one spot and my uncle had 12 so it’s hereditary now I’m dealing with my twin having a spot on her brain as well. ❤️ Thank you
My POTS daughter had a tilt table and a stress test that she didn’t tolerate and both caused syncopal/convulsant episodes that night as well. Poor Carlin! We are praying for you to get some answers!
I’m sorry to hear about your daughter. I was diagnosed with pots this July. I’ve heard TTT can be hard on the body. Hope your daughter is recovering from those tests.
@@MalloryElizabeth she is slowly but surely feeling better, but is under a very stressful time right now,,with a new job that she loves and has to find a balance. She has to be able to sit if she feels “funny” and the doctor has her squeeze her legs together very tightly and cross her arms and put an icepack on the back of her neck ASAP. It has been sufficient and she wears a medic alert bracelet just in case. So far, so good, esp when she starts feeling “funny” I don’t want them to think she has been drinking. It affects her speech, she slurs, she searches for the right thing to say, she even gets argumentative for no reason.
I wish Carlin could call me, I have some really good insight into this condition and my daughter just watched these videos and said “mom! It’s just like me!” Carlin- If you’re reading this (or Evan) let me know and I’ll get my number to you. I’ve been on this journey with my Manda for years now and as an RN -have so many pointers and inside info to try. But, in the meantime, we are praying for you and your whole family.💕
It is so stressful! It took well over a year for doctors to diagnois me with MS, so I know how disappointed you are after each test, just hang in there and trust the process. The most hepful thing a doctor told me when I was going through my issues was "Medicine is not an exact science alot of times it's trial and error before you find out" he also told me that they work off symptoms and look for things that relate. My issues were my symptoms always pointed to different things that's why it was so hard. I hope they figure out how they can help you soon
It took my doctors almost 15 years to finally get an MRI that showed the lesions and finally get the diagnoses of MS. And all my symptoms pointed toward it .... but the MRIs would always come back negative!!! Talk about frustrating! I can't help but wonder how much they could have done to slow down the progression of the disease if only it had been diagnosed sooner. 😔😥
Same. As a Masters prepared RN, this is not ok or normal. I also have POTS and Graves’ disease. I completely understand wanting to trust physicians and not be “that patient”. I’ve been there. But you HAVE TO advocate for yourself. Always. After advocating for myself, my cardiologist finally said “I cant figure this out so IAm sending you to someone smarter than me” and sent me to an electrophysiologist. I cried at my first visit because he sat down, asked me a couple questions, and said “yep, you have POTS.” I balled my eyes out. After hearing “I don’t know for so long, it felt so amazing to hear an answer and not feel crazy. He did a tilt table test to confirm what he already knew. I have since had patients and students with POTS and seen first hand the “seizure like” activity related to POTS. You’re right Evan……there is a good chance the 2 are related. Please insist on seeing a electrophysiologist. I didn’t like my first one so I found the best one in Arkansas and have been healthy and no episodes in several years. Please just take the chance and go see one.
I could not agree more. If you can’t find a doctor that will push go to another doctor. I had a 3 year plus ordeal of literal hell. I have Interstitial cystitis. Worse pain ever. Never ending, soul crushing . My first primary care said it was a “bullshit disease” as in not real. I kept pushing and went to at least 4 doctors. I had a surgery that was supposed tto “ fix” it, nope. Finally I got to a dr at the university hospital in my state ( Kentucky, go cats!) the doctor was the only Womens pelvic pain specialist in the state. 1 1/2 year wait list to get in ( I called every single morning and afternoon for cancellations and finally got in at 6 mos) the doctor was fantastic. She put me on 3 different meds . One is a medicine especially for IC. The only approved med. unfortunately it’s hella expensive but luckily my insurance covers quite a bit of the monthly cost. My situation turned around in 48 hours! I was so grateful I literally cried at every follow up. This dr recently retired but she trained another doctor before she left. Lots of time it’s just finding the right doctor who knows about these uncommon illnesses. Anyway, too long of a story, but there IS hope. And push and push and push and push some more. You are your best advocate.
I also live in ARKANSAS and we have the BEST HOSPITALS and Doctors [ Specialists] in the entire USA.My son was dx with Pseudo~,Seizure Disorder but it took about 4 months of testing @ Arkansas Children's Hospital & being admitted for 5 days at Baptist Hospital Little Rock.The neurologist put leeds on Caleb's head, hooked up the computers and big screens, and waited to see if they caught an episode. Thankfully, they caught a Pseudo seizure inpatient and I saw about 5 doctors and 10 nurses RUSH TO CALEB'S room to visually watch the entire episode take place. 24 hours later, we got the dx of PNÈS, Pseudo seizure disorder.
As a nurse, I want to know her heart variability during the stress test. And her heart variability while wearing a heart monitor for a week. And it shouldn’t take a few weeks to get all of these results.
Same. I’m an RN and I have so many questions I’d love to know the results of. Of course it’s none of my business, but I’m just used to having those with my patients.
Shouldn't they have already done the heart ultrasound? What is your best advice on how to politely get 2nd or even 3rd opinions? Does it make dr. Mad? Does insurance usually cover the 2nd appt and also do you let the orginial dr know so they share info or no? Thanks for your expertise.
I'm a nurse as well.. Can't help but think about some correlation between Alyssa's ( her sister) heart issues before she had Macey . Still think it's hormone involvement.
I’m sorry Carlin. I’ll be praying for u. Wow wow wow! Layla and Zade’s room just stayed INCREDIBLE. Great job Warden on how u have been helping all of your family. U helped with Lawson’s house, Trace’s house, and now Evan’s house. God bless you guys!!!😃
The kids rooms look really great! And what a blessing Warden is!! Always working so hard at all the houses of his siblings!!! (And he’s so handsome too 😉) I can totally understand Carlin’s frustration! I will keep praying for the doctors to find answers! Hang in there girl and Evan! Zade is so so cute and looks so much like Layla 😍❤️🙏🏻
Carlin,love you so much. Praying God for healing, and intervention in Carlins life to prevent injury to her.God praying for strenght, and endurance. Praying that all these doctors get together to intervene on Carlins part to discuss her issues.God guide the Doctors minds,as they search for diagnosis for Carlins symptoms, and get her on appropriate treatment, so she can feel better God Bless this precious family. Continue to give Evan strenght he needs to take care of Carlin,and Children. Thanks so much for Carlin,and Evans awesome families and friends,especially their church family.
Prayers for Carlin!! Always know God has a plan and a reason for all this. He will never give you more than you can handle. May God give you strength and courage. May his healing Grace be upon you. Evan prayers for strength. Peace surround you both as you continue to go through this struggle. God Bless you and may God truly surround your sweet little family.
The love in this family amazes me. I was never told "I love you" by either of my parents. None of us were. 6 kids. They loved us. They took care of us and stayed together, and did things with us. But were not demonstrative. Because of that I have always told my kids I love them, and still do. They are in their 40s. Anyhow, it does my heart good to see the love, with you guys, and all of your extended family. Prayers for you all going up.
Carlin, I'm praying for you. My sister-in-law had seizures after the birth of her 3 boys, out of no where? Never had them before. She was put on anti-seizure meds for a few years, but then she quit having them all together. I pray you & your family get answers very soon, so you can go about raising your babies! ❤️🙏 From Knoxville, TN
I feel really happy every time she has an episode while in a test or in a doctor appointment because it makes easier to find an answer if the medical team actually see it by themselves and the tests directly shows it. I'm agree that if she suffered a seizure during the stress test maybe is something related with physical effort being neurological or cardiac
Continuously praying for you and the doctors to be able to finally pinpoint the cause of these episodes. I’m sure it’s so discouraging, frustrating, exhausting, and stressful for you both. But even through it all, watching your faith in God and His plan for your lives, and your love for each other has been such an inspiration.
Sending y’all love and prayers as always. I hope someone pushes specifically for a TILT TABLE TEST especially if the stress test triggered her episodes. 🙏🏻
I had a tilt table test for multiple episodes of near fainting. I had an iv for preferably to increase vaslvagel response. My blood pressure dropped to 54. The doctors didn't know what it meant.
You are a tough girl Carlin! I can’t believe how sweet and strong you stayed through this whole thing. I am praying for you to have divine healing! God loves you so much and his future for you is bright.
I know it's hard, but I just want to personally thank you for sharing your story and updates with us. I'm not going through what you are, but I do have something happening with my heart that started when I got covid back in June...and seeing you handling, with such grace, what I will endure at my first heart doctor appointment next week, just brings me some peace about it. Someone to look up to and think to myself, *Carlin is going through worse and pushes through, so can I*. May we all be strong in our storms like you. Lots of love and prayers.
Covid is not our friend. And it seems to never want to leave the party! Just dressed up as something different and tries to get on the guest list again😡That spike protein is so new to us humans and we aren’t used to this level of inflammatory response to either the germ/illness itself...or the vaccine. Yes, youtube- censor me for even daring to use those words. CDC will probably send someone to my house or I’ll open the door today and a life-sized locust will be on the other side! 😳 This virus is here to stay and we have to learn how to live with it/treat it properly And get it to GO AWAY!!!
Sorry covid got your heart too. Its awful how much it affected our bodies. Praying for you to get good results at your cardiologist appointment. I know I need to have a heart cath done at some point, but the palpitations (fluttery feeling when my heart beats) have returned along with chest pain and shortness of breath 😔😒
Evan, God bless you for taking such good care of your sweet wife and family. I love your hearts and continue to pray for comfort, encouragement, and answers! So hard to understand God’s timing, but we know how much He loves you ❤
You must be your own healthcare advocate. Call the Mayo Clinic and make an appointment because there’s nothing more important than your health. Carlin would appreciate the support and the expertise they have. No harm no foul to get a second opinion.
It definitely makes me think of POTS. Praying for you Carlin. I've had a lot of weird health problems too. Ended up being diagnosed with Lyme disease after getting a pacemaker and much more. I went through some episodes similar to POTS. Try to STAY POSITIVE in your mind and heart and stay thankful for all of the good. 🙏❤️
She doesn't have the limitations that comes with POTS. I have POTS and couldn't do anywhere near the things she does on a daily basis. Sounds more like NCS (vasovagal) or something related to the heart rhythm causing the drops. I really hope they find someone who actually starts digging into this rather than waiting weeks and months between tests/results.
As a person who has a seizure disorder I pray they don’t take much longer to get a diagnosis for Carlin. I have been epileptic for 40 years. I have been very stressed these last few years and I believe stress can induce seizures. I’m am praying for you and the doctors who are treating Carlin . someone has to figure this out ❤️
Also a nurse here….hopefully, the stress test will show if the heart rhythm was out of whack when she had her “episode”. If not, that means there is no cardiac cause and a good thing. Some episode like she has are caused by standing in a position for too long or doing an activity for too long. The diagnosis is called vasovagal syncope who means she faints as an overreaction of the body to something. The heart rate drops and the blood pressure drops and she faints. An example would be someone that faints at the sight of blood or from emotional stress. You all have this! Evan your support for Carlin is so helpful and just what she needs. Cardiology is likely the appropriate speciality to be seeing! Have they monitored her blood sugar to make sure there isn’t a drop in that from going too long without eating, too mush sugar or caffeine? Also if she’s dehydrated? Hang in there!!!! Praying for answers and the knowledge of her doctors to promptly and properly diagnosis! ❤️❤️
My episodes happened when I was stressed or insanely tired. I have epilepsy. There were no signs at all on any tests or anything that I did such as these but I was still diagnosed with epilepsy. Epilepsy medication has helped me keep them under control it was just all about finding the right amount of it
Prayers 💛💛💛 I still cry all the way home from most doctors appointments after nearly 17 years of lupus and other chronic autoimmune diseases. Hold your babies tight and don’t let it steal your identity. Look for the good that it brings like time with your wonderful husband and seeing how supportive he is. Praying so hard you get answers I do understand. 💖💖💖
God has a plan Carlin. With you putting it in Gods hands it will lighten you’re worries. The bright side is you all are even closer than you were. I will continue to pray you get you’re answers soon. Love you guys. ❤️ The rooms look so cute. Layla sure is growing fast and looks more like you every day!❤️
Thank you Evan and thank Carlin for wanting to keep us updated. I am praying all the time for some really good answers to this problem. Please let her know that We are right there with her and Jesus is holding her hand. I love you all. ❤️❤️❤️❤️Granny B
As a thought of encouragement, if the cardiac tests come back negative, then that is something to cross off the list as a cause! That brings it all closer to the answer, in the long run. You're getting there, one step at a time . . .
Dear precious Carlin! You are so loved, you are in our prayers. Having no answers is often the hardest thing. Even when something is a challenging diagnosis, at least there is a plan and a protocol to treat it. With no diagnosis it feels like you're perpetually stuck in mystery mode. I pray you get answers, or the entire illness can just go away, never to be seen again. Praying for you every single day! Love from Texas!
In the baby’s room would you also paint the one wall a cream color to match that scallops there? Then you could put a light tree in there instead of that green one. You know that one’s you see at hobby lobby? Like the soft white lights one for night or nap time.
💖💖💖So sorry that you are suffering, Carlin, we care so much about you and your precious family......Remember, you are strong in the Lord Jesus Christ and the power of his might and also a good Word I hold onto....."God did Not give us a spirit of fear, but of Power, Love, and a Sound mind. Also, meditateting on Psalm 91 helps strengthen and reassure when I'm in trials. God Bless, heal and protect you dear in Jesus' name Amen.
The whole idea of doing stress tests is to bring episodes on. The heart pumps harder and faster, an and the test can reveal problems with blood flow. Better it happens there than at home. Maybe they will finally get some answers. Prayers for you all.
Those rooms are beautiful …love to hear Layla talking…she’s the cutest…poor Mama Bates, I’m sure she is worried with Katie and Alyssa so sick during their pregnancies too. Praying God reveals answers for your family very soon!
This is very interesting to me! I am a CV Tech myself, so I do these tests every single day! I hope they figure out something soon to calm your nerves. In addition, the actual cardiologist reads the results after the stress test, they are not the ones in the room. Plus, just because she had an episode during it does not mean that it is fully heart related. If the ecg is still looking normal, something else could be getting stressed out in the body that’s not being monitored.
Warden is awesome! Such a gem of a young man. What are you all going to do when he gets married and isn’t as available? 😂 I’m sure that whoever he marries, he’ll make time for his sins and their projects. All of your family members seems so handy and good at so many things. I love how much Laila is talking these days and how expressive she is. I’m glad Carlin got a girls day. Great job hanging the chandelier in Laila’s room.
Oh Evan. Unfortunately, they never let anyone go back with the patient when they're having a stress test. Trust me, it's horrible not being able to be back with them. Praying for y'all 🙏🙏
Love seeing the house updates! And love Evan's sense of humor!! So so sorry you havent gotten answers yet. I really feel for Carlin and can relate. I have commented before with a little of my own journey, but to add to it, years ago I went through issues with passing out and I had psudeo seizures (they weren't technically seizures but looked just like one). When I was going through all of that I had a seizure inducing test which sent me into it and then a table test where they also tried to induce passing out and I had an episode then. It was good that they had me hooked up but the only answers I ever got was that my heart rate was crazy and there was some odd brain activity. Never got a clear diagnosis. Down the road it was decided that it was stress induced over active vagus nerve, and/or ptsd. I had gone through a very stressful situation right before my first episode. When I had my first episode, it was during a long blood draw. I had had many blood draws and never liked them, but this one my body just couldn't take the stress anymore and I passed out repeatedly on the blood draw table. I was taken home to 'recover', but I passed out again, my pulse was 'thready' and weak, I was hardly breathing either. I shook like a seizure. I was taken by ambulance to the ER. I would wake up bawling and panicked. I would be exhausted for days after each episode. It went on for probably a year, and then it stopped happening regularly. After having my first baby I was sleep deprived and had a few minor episodes. Still to this day if I get extremely stressed out physically or emotionally I physically shake, and stay present but cant respond. If I spike a fever this also happens to me. I hope and pray that Carlin has a similar story, that she can get a diagnosis that has a cure or a way to control this, or that it miraculously stops happening. I will be praying for her!!
@Amy Wow 😳 that is scary and so sad! This sounds like Carlin's episodes, right? Goodness, we pray for you and Carlin to be completely healed from this! God is our Healer, Our Great Physician, He is the Great I am, He can do the IMPOSSIBLE with y'all!I We believe it, and expect it in Jesus Name, Amen! Thanks for sharing your story! God bless you🙏😇
I'm sorry to hear the account but glad you have some success about your situation. Stress can take its toll in so many ways - whether physically, emotionally even spiritually. Christians have a battle with forces unseen Ephesians 6:12-18. And we are in a very interesting time these days, to say the least.
Continuing to lift Carlin in prayer as well as Evan! Nothing is too big for our God.. Love how you guys are willing to share your precious family with us.. Hugs and love from Nashville.. Blessings. ♥️♥️♥️
I have been praying for you Carlin! I am hoping they are finally going to find out the problem. I also just saw that Katie and Travis are having a little girl on your Instagram. So happy for them. I can understand Carlin feeling emotional about this on going problem but just know you have soooo many people praying for you! Love The Stewart Family. See you next week!
Praying for you Carlin. I’ve been on my own health journey past 11 years. I know how discouraged you can get. I’m praying that doctors will find answers soon for you. During my devotions one morning this song came on right after. I need you know by plumb. Please listen know prayers are being sent to you and family.
As a former nurse, I started having the exact same symptoms Carlin is having. They started in April 2016 & took me multiple neurologist & 4 years to get answers. Final diagnosis was conversion disorder. It is caused from trauma. I have been in trauma therapy now for nearly 2 years & been symptom free for nearly a year. I pray they can get her correct diagnosis. I know how scary & frustrating trying to get the answers needed for correct treatment
I agree Conversion disorder
Yes it can be caused from several different types of things
Mine was from head trauma age 7
I have tried several times typed this lol
Often missed and hard to make a diagnosis it comes and goes for Years it slowly takes time before it gets worse its Often times triggered by an issues or illness (me several autoimmune diseases)
@@mollieedwards5967 Yeah I also have multiple autoimmune illnesses. SLE lupus, connective tissue disease, Fibromyalgia, Reynauds, etc.....I personally believe majority of health related issues are directly related to either some type of mental illness or head trauma. It's so hard to get Dr's to listen, but as a former nurse, I'll fire them in a heartbeat & keep on until I find one that WILL LISTEN. I'm sorry you have all these things too
Yes my foster daughter had it. They called the Psuedo Seizures. Mental health seizures. They don't show up on any test.
@@shelleykuhns9677 I agree.
Having this seizure towards the end of the stress test may actually be God's way of provide answers. Praying for yall daily🙏 Warden, your such a light and blessing to your family. I see you helping out all your family constantly. God bless you!!
Exactly what I was thinking. I hate that it happened, but they did say they wished that she could’ve had an episode with the eeg on that they did at home and she didn’t so I’m hoping this just means they are getting closer to answers.
that was my thoughts too!
This is beyond stressful! I can’t imagine how she feels. I feel so bad her being so young and being a mom. U r doing an awesome job!!
It's more common that one would think
My concern is it will be blamed on stress , a common go to when there is no East answer .
@@lindabierlein3837 often it IS the cause- the catecholamine response is a huge cause of pathology
@@lindabierlein3837 or when Drs don't know so they just blame it on stress (as my old MD once told me)
I'm glad that Carlin had an episode while she was doing the stress test because - even though the test may not have shown anything wrong with her at the time - they actually saw her have the episode and NOW there's proof that she has them !!!!! I just PRAY that you find out what is causing the episodes so that you can get some type of treatment for the episodes .
I hope that you have a GREAT week !!!!
Praying for you Carlin! Isaiah 26:3 Thou wilt keep him in perfect peace whose mind is stayed on thee because he trusteth in thee. Love you guys
Amen we give all the glory to the one who knows our future.
Its a great verse.
I’ve been praying for Carlin that they find some answers soon, I will continue to do so. 🙏 💕
I recommend keeping a journal of what activity she’s doing or done right before she has an episode. Maybe that can help narrow down what may bring them on.
@peach8669: I agree 💯 that's a great idea! It seems like it would narrow it down to see when they happen😊
I like that idea too. Keep stressful thoughts and anxiety as a part of that.
Good thing the vlog contains a lot of the documentation (to a certain degree)
Track foods as well! One of my students was triggered by certain foods.
I did that when I was having major issues with my sugar. And went to a specialist. He was able to quickly figure out that my body can’t process sugar. Oh my goodness complete game changer Haven’t had sugar in 18 years.
You will be surprised what has sugar and what doesn’t
Aww what a blessing to have Warden around
Warden is the man. As his mom says he can do almost anything and loves to help his family.
@@cynthiahall3492 Warden is 19, hardly a child.
@@ninaleo37 some people have to nit pick. I would accentuate he is a good person.
Good strong genes in this family what a blessing.
I can relate to the frustration of not knowing what is going on. I spent most of my life knowing that something was wrong but my Dr didn’t want to help me. Years later my uncle is diagnosed with something that I realized that I had from the symptoms & being officially diagnosed. I still knew something else was wrong, my naturopathic Dr that helped me more than any primary care Dr decided to test me for one of my worst nightmares. I looked up the symptoms & remembered being bitten by a tick while back east when I was 2 yrs old. Test came back positive for that meaning I have chronic Lyme, a disease that is a nightmare that so many Americans have often without realizing it until something seriously goes wrong. I used to be a live in nanny to a woman who was ill just to find out after she started having seizures that she had Lyme. Lyme can present it’s in so many ways, it’s worth doing the two best Lyme tests…it’s worth the money! It’s worth ruling it out.
God bless & bring you answers asap 🙏🏻
Yes to this! Yes, get checked for Lyme but I would recommend by a functional medicine or naturopathic Doctor. So often the test comes back negative or inconclusive when done by an allopathic doctor. My mom has chronic Lyme and yes it can present with seizures. Praying for you all!
Praying for God's peace to wash over you Carlin...and praying for your sweet family!!! Jer 29:11 ☺
Amen🙏
Amen and same !🙏🏼🙏🏼
Amen. By Jesus wounds she is healed.
I get a kick out of Evan. He's a comical kind of guy and has such a positive attitude. Imagine how stressful Carlin's condition is for him and he keeps staying happy. Prayers to you Carlin.
And he is great at telling stories.
Carlin, PLEASE don’t be discouraged yet! You never know, that episode being caught during that test may lead to the exact answer you need, even if it wasn’t given that day! 💜
The kids rooms look so cute!!! Must be a nice little break from the health situation getting to focus on making your house look just the way you want. I hope you guys get some answers really soon!! 💛
I'm impressed with the design of the rooms, which will grow with the kids. WOW.
@@jennr7500 I was thinking the same thing! They can grow up in those rooms and just redecorate a little as their tastes change.
The room is so classy. Great design.
I love the kids’ rooms! And what an amazing young man Warden is! I pray for strength for Carlin and for answers to her health mysteries to be revealed. God bless you guys.
My mom episodes only come when she is stressed, rushing, or anxiety. Praying for y’all 🙏🏽🙏🏽🙏🏽❤️
Praying for your mom 🙏♥️.
@@thinkforyourselfjohn3167 Thank you ❤️
Do the Dr’s know why she has the episodes? May God bless her, bring her peace & healing🙏🏻
@@SummerLove316 My mothers come from having six spots on her brain like a aneurysm but didn’t kill her and that causes her to have seizures my sister has one spot and my uncle had 12 so it’s hereditary now I’m dealing with my twin having a spot on her brain as well. ❤️ Thank you
My POTS daughter had a tilt table and a stress test that she didn’t tolerate and both caused syncopal/convulsant episodes that night as well. Poor Carlin! We are praying for you to get some answers!
I’m sorry to hear about your daughter. I was diagnosed with pots this July. I’ve heard TTT can be hard on the body. Hope your daughter is recovering from those tests.
I have been wondering about P O T S syndrome
@@MalloryElizabeth she is slowly but surely feeling better, but is under a very stressful time right now,,with a new job that she loves and has to find a balance. She has to be able to sit if she feels “funny” and the doctor has her squeeze her legs together very tightly and cross her arms and put an icepack on the back of her neck ASAP. It has been sufficient and she wears a medic alert bracelet just in case. So far, so good, esp when she starts feeling “funny” I don’t want them to think she has been drinking. It affects her speech, she slurs, she searches for the right thing to say, she even gets argumentative for no reason.
I wish Carlin could call me, I have some really good insight into this condition and my daughter just watched these videos and said “mom! It’s just like me!” Carlin- If you’re reading this (or Evan) let me know and I’ll get my number to you. I’ve been on this journey with my Manda for years now and as an RN -have so many pointers and inside info to try. But, in the meantime, we are praying for you and your whole family.💕
@@Dorinda-Sevvy I wear a medical alert on my Apple Watch. It makes me feel safe incase something happens. Sounds like your daughter has a good doctor.
It is so stressful! It took well over a year for doctors to diagnois me with MS, so I know how disappointed you are after each test, just hang in there and trust the process. The most hepful thing a doctor told me when I was going through my issues was "Medicine is not an exact science alot of times it's trial and error before you find out" he also told me that they work off symptoms and look for things that relate. My issues were my symptoms always pointed to different things that's why it was so hard. I hope they figure out how they can help you soon
Love and prayers
One year to diagnose someone with MS is unacceptable....
It took my doctors almost 15 years to finally get an MRI that showed the lesions and finally get the diagnoses of MS. And all my symptoms pointed toward it .... but the MRIs would always come back negative!!! Talk about frustrating! I can't help but wonder how much they could have done to slow down the progression of the disease if only it had been diagnosed sooner. 😔😥
@@inkystroul1823 my MS diagnosis also took about 15 years from start of symptoms to final diagnosis. I'm sorry that was your experience as well.
@@kimberlykler8267 - I'm so sorry Kimberly. How are you doing now? Do you mind me asking which meds you're on?
Same. As a Masters prepared RN, this is not ok or normal. I also have POTS and Graves’ disease. I completely understand wanting to trust physicians and not be “that patient”. I’ve been there. But you HAVE TO advocate for yourself. Always. After advocating for myself, my cardiologist finally said “I cant figure this out so IAm sending you to someone smarter than me” and sent me to an electrophysiologist. I cried at my first visit because he sat down, asked me a couple questions, and said “yep, you have POTS.” I balled my eyes out. After hearing “I don’t know for so long, it felt so amazing to hear an answer and not feel crazy. He did a tilt table test to confirm what he already knew. I have since had patients and students with POTS and seen first hand the “seizure like” activity related to POTS. You’re right Evan……there is a good chance the 2 are related. Please insist on seeing a electrophysiologist. I didn’t like my first one so I found the best one in Arkansas and have been healthy and no episodes in several years. Please just take the chance and go see one.
I could not agree more. If you can’t find a doctor that will push go to another doctor. I had a 3 year plus ordeal of literal hell. I have Interstitial cystitis. Worse pain ever. Never ending, soul crushing . My first primary care said it was a “bullshit disease” as in not real. I kept pushing and went to at least 4 doctors. I had a surgery that was supposed tto “ fix” it, nope. Finally I got to a dr at the university hospital in my state ( Kentucky, go cats!) the doctor was the only Womens pelvic pain specialist in the state. 1 1/2 year wait list to get in ( I called every single morning and afternoon for cancellations and finally got in at 6 mos) the doctor was fantastic. She put me on 3 different meds . One is a medicine especially for IC. The only approved med. unfortunately it’s hella expensive but luckily my insurance covers quite a bit of the monthly cost. My situation turned around in 48 hours! I was so grateful I literally cried at every follow up. This dr recently retired but she trained another doctor before she left. Lots of time it’s just finding the right doctor who knows about these uncommon illnesses. Anyway, too long of a story, but there IS hope. And push and push and push and push some more. You are your best advocate.
I also live in ARKANSAS and we have the BEST HOSPITALS and Doctors [ Specialists] in the entire USA.My son was dx with Pseudo~,Seizure Disorder but it took about 4 months of testing @ Arkansas Children's Hospital & being admitted for 5 days at Baptist Hospital Little Rock.The neurologist put leeds on Caleb's head, hooked up the computers and big screens, and waited to see if they caught an episode.
Thankfully, they caught a Pseudo seizure inpatient and I saw about 5 doctors and 10 nurses RUSH TO CALEB'S room to visually watch the entire episode take place. 24 hours later, we got the dx of PNÈS, Pseudo seizure disorder.
As a nurse, I want to know her heart variability during the stress test. And her heart variability while wearing a heart monitor for a week. And it shouldn’t take a few weeks to get all of these results.
Same. I’m an RN and I have so many questions I’d love to know the results of. Of course it’s none of my business, but I’m just used to having those with my patients.
Excellent questions!
Shouldn't they have already done the heart ultrasound? What is your best advice on how to politely get 2nd or even 3rd opinions? Does it make dr. Mad? Does insurance usually cover the 2nd appt and also do you let the orginial dr know so they share info or no? Thanks for your expertise.
I'm a nurse as well.. Can't help but think about some correlation between Alyssa's ( her sister) heart issues before she had Macey . Still think it's hormone involvement.
I have heart problems and it sounds like it's her heart
I’m sorry Carlin. I’ll be praying for u. Wow wow wow! Layla and Zade’s room just stayed INCREDIBLE. Great job Warden on how u have been helping all of your family. U helped with Lawson’s house, Trace’s house, and now Evan’s house. God bless you guys!!!😃
The kids rooms look really great! And what a blessing Warden is!! Always working so hard at all the houses of his siblings!!! (And he’s so handsome too 😉) I can totally understand Carlin’s frustration! I will keep praying for the doctors to find answers! Hang in there girl and Evan! Zade is so so cute and looks so much like Layla 😍❤️🙏🏻
Carlin,love you so much. Praying God for healing, and intervention in Carlins life to prevent injury to her.God praying for strenght, and endurance. Praying that all these doctors get together to intervene on Carlins part to discuss her issues.God guide the Doctors minds,as they search for diagnosis for Carlins symptoms, and get her on appropriate treatment, so she can feel better God Bless this precious family. Continue to give Evan strenght he needs to take care of Carlin,and Children. Thanks so much for Carlin,and Evans awesome families and friends,especially their church family.
Amen
Y’all’s house is so cute! Love what you did in the rooms. Praying that y’all will get things figured out with Carlin. 🙏🏻🙏🏻🙏🏻
DIWW Do It With Warden! Carlin is so blessed with all her siblings and their various skills!
Keeping you all in our prayers. If she doesn't get any significant answers you need to contact Mayo Clinic and get them working on this issue.
Prayers for Carlin!! Always know God has a plan and a reason for all this. He will never give you more than you can handle. May God give you strength and courage. May his healing Grace be upon you. Evan prayers for strength. Peace surround you both as you continue to go through this struggle. God Bless you and may God truly surround your sweet little family.
Praying for her!! I know this had to be hard on the whole family. Sending you prayers and love ❤️
The love in this family amazes me. I was never told "I love you" by either of my parents. None of us were. 6 kids. They loved us. They took care of us and stayed together, and did things with us. But were not demonstrative. Because of that I have always told my kids I love them, and still do. They are in their 40s. Anyhow, it does my heart good to see the love, with you guys, and all of your extended family. Prayers for you all going up.
Keep your chin up Carlin!!!! I can only imagine how frustrating this has to be continued to prayers for you for answers!!!
Carlin, I'm praying for you. My sister-in-law had seizures after the birth of her 3 boys, out of no where? Never had them before. She was put on anti-seizure meds for a few years, but then she quit having them all together. I pray you & your family get answers very soon, so you can go about raising your babies!
❤️🙏 From Knoxville, TN
I feel really happy every time she has an episode while in a test or in a doctor appointment because it makes easier to find an answer if the medical team actually see it by themselves and the tests directly shows it.
I'm agree that if she suffered a seizure during the stress test maybe is something related with physical effort being neurological or cardiac
Continuously praying for you and the doctors to be able to finally pinpoint the cause of these episodes. I’m sure it’s so discouraging, frustrating, exhausting, and stressful for you both. But even through it all, watching your faith in God and His plan for your lives, and your love for each other has been such an inspiration.
Lots of prayers, girlie 🙏🏻🙏🏻🙏🏻
Please know that we're all thinking and praying for you to find the answers you need!
Sending y’all love and prayers as always. I hope someone pushes specifically for a TILT TABLE TEST especially if the stress test triggered her episodes. 🙏🏻
Yes! Tilt table test will tell
A lot!
I had a tilt table test for multiple episodes of near fainting. I had an iv for preferably to increase vaslvagel response. My blood pressure dropped to 54. The doctors didn't know what it meant.
You are a tough girl Carlin! I can’t believe how sweet and strong you stayed through this whole thing. I am praying for you to have divine healing! God loves you so much and his future for you is bright.
Oh Carlin you are so on my heart!!! And am 🙏 praying for you!!!! And praying for all of you !!!
The kids rooms look so good!!! Great job!!!
Prayers are with you Carlin! The rooms are adorable.
I know it's hard, but I just want to personally thank you for sharing your story and updates with us. I'm not going through what you are, but I do have something happening with my heart that started when I got covid back in June...and seeing you handling, with such grace, what I will endure at my first heart doctor appointment next week, just brings me some peace about it. Someone to look up to and think to myself, *Carlin is going through worse and pushes through, so can I*. May we all be strong in our storms like you. Lots of love and prayers.
Covid is not our friend. And it seems to never want to leave the party! Just dressed up as something different and tries to get on the guest list again😡That spike protein is so new to us humans and we aren’t used to this level of inflammatory response to either the germ/illness itself...or the vaccine. Yes, youtube- censor me for even daring to use those words. CDC will probably send someone to my house or I’ll open the door today and a life-sized locust will be on the other side! 😳 This virus is
here to stay and we have to learn how to live with it/treat it properly
And get it to GO AWAY!!!
Sorry covid got your heart too. Its awful how much it affected our bodies. Praying for you to get good results at your cardiologist appointment. I know I need to have a heart cath done at some point, but the palpitations (fluttery feeling when my heart beats) have returned along with chest pain and shortness of breath 😔😒
Honestly, I am glad you post videos like this. It shows other people in your shoes. That they are not alone in this world.
I'm praying for all of you! Thank you for sharing your trials and tribulations. You are all so loved! ❤️🤗🙏
Continued prayers for Carlin. Praying peace and comfort as well. Praying answers are found soon. Love you guys!!
So heartbreaking sending prayers that the Lord leads the doctor to get this taken care of. Thanks for the updates
Sending my ❤️🙏🏻 to you all especially Carlin. My God wrap his strong arms around you and give you comfort.
Sending lots of prayers your way! Keep the faith that y’all will find out soon!🙏🏻
Evan, God bless you for taking such good care of your sweet wife and family. I love your hearts and continue to pray for comfort, encouragement, and answers! So hard to understand God’s timing, but we know how much He loves you ❤
You must be your own healthcare advocate. Call the Mayo Clinic and make an appointment because there’s nothing more important than your health. Carlin would appreciate the support and the expertise they have. No harm no foul to get a second opinion.
Mayo Clinic by far is known for figuring things out.
Love you Carlin. Never be ashamed of what you are going through. Hugs
Praying for Carlin and the family and diy projects are fun.💖🙏
Continually praying 🙏 for Carlin & for the doctor's to find out what is going on with her health. Blessings to you and your family ❤️😊
It definitely makes me think of POTS. Praying for you Carlin. I've had a lot of weird health problems too. Ended up being diagnosed with Lyme disease after getting a pacemaker and much more. I went through some episodes similar to POTS. Try to STAY POSITIVE in your mind and heart and stay thankful for all of the good. 🙏❤️
Same. Just wrote this above before I saw your comment.
Pots is in of itself a phenomena that occurs due to something else...cardio/circulatory/chemical/neuro genesis....
She doesn't have the limitations that comes with POTS. I have POTS and couldn't do anywhere near the things she does on a daily basis. Sounds more like NCS (vasovagal) or something related to the heart rhythm causing the drops. I really hope they find someone who actually starts digging into this rather than waiting weeks and months between tests/results.
That was my first thought
Still praying for you both! Praying for answers very soon! Carlin has a great brother!
Prayers for you all🙏 can’t wait to hear what Katie’s having!♥️
Shes having a girl!!
How blessed you guys are to have family come and help. Brother is doing amazing 👏 work. I hope soon 🙏 Carlin will be all better. God bless you all.
Oh Carlin, many prayers. Darling, you and Evan are caring on life like we’re suppose to do. God bless you all.
I know this had to be so frustrating for you all. Prayers sent!🙏🙏🙏
As a person who has a seizure disorder I pray they don’t take much longer to get a diagnosis for Carlin. I have been epileptic for 40 years. I have been very stressed these last few years and I believe stress can induce seizures. I’m am praying for you and the doctors who are treating Carlin . someone has to figure this out ❤️
Also a nurse here….hopefully, the stress test will show if the heart rhythm was out of whack when she had her “episode”. If not, that means there is no cardiac cause and a good thing. Some episode like she has are caused by standing in a position for too long or doing an activity for too long. The diagnosis is called vasovagal syncope who means she faints as an overreaction of the body to something. The heart rate drops and the blood pressure drops and she faints. An example would be someone that faints at the sight of blood or from emotional stress.
You all have this! Evan your support for Carlin is so helpful and just what she needs. Cardiology is likely the appropriate speciality to be seeing! Have they monitored her blood sugar to make sure there isn’t a drop in that from going too long without eating, too mush sugar or caffeine? Also if she’s dehydrated?
Hang in there!!!! Praying for answers and the knowledge of her doctors to promptly and properly diagnosis! ❤️❤️
My episodes happened when I was stressed or insanely tired. I have epilepsy. There were no signs at all on any tests or anything that I did such as these but I was still diagnosed with epilepsy. Epilepsy medication has helped me keep them under control it was just all about finding the right amount of it
Continue prayers for Carlin🙏❤️. God bless your beautiful family 🤗❤️
Continued Thoughts & Prayers. Thank y’all for sharing your videos with us, & taking us with y’all & sharing y’all’s lives with us. Love y’all
Thank you so much for sharing updates even though I know it's so hard! I continue to pray! 🙏💕
Please look into POTS (postural orthostatic tachycardia syndrome) or NEAD (non epileptic attack disorder) I'll be praying for you guys
I thought the same but I think they mentioned they ruled it out.
I agree. POTS.
Prayers 💛💛💛 I still cry all the way home from most doctors appointments after nearly 17 years of lupus and other chronic autoimmune diseases. Hold your babies tight and don’t let it steal your identity. Look for the good that it brings like time with your wonderful husband and seeing how supportive he is. Praying so hard you get answers I do understand. 💖💖💖
Praying for you Carlin. Also for your family.
Keeping y’all in my prayers 🙏🏻♥️
Saying lots of prayers and sending lots of Hugs 🙏🙏❤️❤️
I am totally praying for you Carlin. I know God is going to heal you. Bless you and your family
She is on my prayer list! I hope she will have some answers soon! She WILL get answers! Love this family♥️
God has a plan Carlin. With you putting it in Gods hands it will lighten you’re worries. The bright side is you all are even closer than you were. I will continue to pray you get you’re answers soon. Love you guys. ❤️ The rooms look so cute. Layla sure is growing fast and looks more like you every day!❤️
sending prayers I hope karlin finds out eventually it's been awhile and I know it's scary and frustrating ❤️
Continued thoughts and prayers for Carlin and your family! Love watching your family! Thank you for sharing your lives with us!
Thank you Evan and thank Carlin for wanting to keep us updated. I am praying all the time for some really good answers to this problem. Please let her know that We are right there with her and Jesus is holding her hand. I love you all. ❤️❤️❤️❤️Granny B
Praying for miracles. Nothing is impossible with God.
As a thought of encouragement, if the cardiac tests come back negative, then that is something to cross off the list as a cause! That brings it all closer to the answer, in the long run. You're getting there, one step at a time . . .
The rooms look amazing! I’m so sorry for Carlin! I am continuing to pray for you all! 🙏🏼❤️
Continued prayers for Carlin and all of you.
Dear precious Carlin! You are so loved, you are in our prayers. Having no answers is often the hardest thing. Even when something is a challenging diagnosis, at least there is a plan and a protocol to treat it. With no diagnosis it feels like you're perpetually stuck in mystery mode. I pray you get answers, or the entire illness can just go away, never to be seen again. Praying for you every single day! Love from Texas!
My thoughts and prayers for you and your family!!!!
Sweetgirl. God will take care. You are loved and we all are praying for you.
Continued prayers for Carlin. It’s been a long journey and I totally understand her frustration and disappointment. Prayers for you too Evan!❤️🙏🏼
In the baby’s room would you also paint the one wall a cream color to match that scallops there? Then you could put a light tree in there instead of that green one. You know that one’s you see at hobby lobby? Like the soft white lights one for night or nap time.
💖💖💖So sorry that you are suffering, Carlin, we care so much about you and your precious family......Remember, you are strong in the Lord Jesus Christ and the power of his might and also a good Word I hold onto....."God did Not give us a spirit of fear, but of Power, Love, and a Sound mind. Also, meditateting on Psalm 91 helps strengthen and reassure when I'm in trials. God Bless, heal and protect you dear in Jesus' name Amen.
I am so sorry you and your family are going through this..praying for answers and for complete healing and restoration.
The whole idea of doing stress tests is to bring episodes on. The heart pumps harder and faster, an and the test can reveal problems with blood flow. Better it happens there than at home. Maybe they will finally get some answers. Prayers for you all.
Those rooms are beautiful …love to hear Layla talking…she’s the cutest…poor Mama Bates, I’m sure she is worried with Katie and Alyssa so sick during their pregnancies too. Praying God reveals answers for your family very soon!
This is very interesting to me! I am a CV Tech myself, so I do these tests every single day! I hope they figure out something soon to calm your nerves. In addition, the actual cardiologist reads the results after the stress test, they are not the ones in the room. Plus, just because she had an episode during it does not mean that it is fully heart related. If the ecg is still looking normal, something else could be getting stressed out in the body that’s not being monitored.
I can't imagine the frustration that you all are going through, keep pushing for answers. Praying for you all
Keep going! I can’t imagine how hard this is but just keep loving each other and living each day as it comes.
Love you both so much! Praying for answers and strength 💙💙💙
Warden is awesome! Such a gem of a young man. What are you all going to do when he gets married and isn’t as available? 😂 I’m sure that whoever he marries, he’ll make time for his sins and their projects. All of your family members seems so handy and good at so many things. I love how much Laila is talking these days and how expressive she is. I’m glad Carlin got a girls day. Great job hanging the chandelier in Laila’s room.
Praying for answers to be revealed soon. Praying for protection over you as you go through this and His presence and peace .
Oh Evan. Unfortunately, they never let anyone go back with the patient when they're having a stress test. Trust me, it's horrible not being able to be back with them. Praying for y'all 🙏🙏
Great job Warden! Praying for you all to find the answers you need! ❤
Love seeing the house updates! And love Evan's sense of humor!! So so sorry you havent gotten answers yet. I really feel for Carlin and can relate. I have commented before with a little of my own journey, but to add to it, years ago I went through issues with passing out and I had psudeo seizures (they weren't technically seizures but looked just like one). When I was going through all of that I had a seizure inducing test which sent me into it and then a table test where they also tried to induce passing out and I had an episode then. It was good that they had me hooked up but the only answers I ever got was that my heart rate was crazy and there was some odd brain activity. Never got a clear diagnosis. Down the road it was decided that it was stress induced over active vagus nerve, and/or ptsd. I had gone through a very stressful situation right before my first episode. When I had my first episode, it was during a long blood draw. I had had many blood draws and never liked them, but this one my body just couldn't take the stress anymore and I passed out repeatedly on the blood draw table. I was taken home to 'recover', but I passed out again, my pulse was 'thready' and weak, I was hardly breathing either. I shook like a seizure. I was taken by ambulance to the ER. I would wake up bawling and panicked. I would be exhausted for days after each episode. It went on for probably a year, and then it stopped happening regularly. After having my first baby I was sleep deprived and had a few minor episodes. Still to this day if I get extremely stressed out physically or emotionally I physically shake, and stay present but cant respond. If I spike a fever this also happens to me. I hope and pray that Carlin has a similar story, that she can get a diagnosis that has a cure or a way to control this, or that it miraculously stops happening. I will be praying for her!!
@Amy Wow 😳 that is scary and so sad! This sounds like Carlin's episodes, right? Goodness, we pray for you and Carlin to be completely healed from this! God is our Healer, Our Great Physician, He is the Great I am, He can do the IMPOSSIBLE with y'all!I We believe it, and expect it in Jesus Name, Amen! Thanks for sharing your story! God bless you🙏😇
I'm sorry to hear the account but glad you have some success about your situation. Stress can take its toll in so many ways - whether physically, emotionally even spiritually. Christians have a battle with forces unseen Ephesians 6:12-18. And we are in a very interesting time these days, to say the least.
Continuing to lift Carlin in prayer as well as Evan! Nothing is too big for our God.. Love how you guys are willing to share your precious family with us.. Hugs and love from Nashville.. Blessings. ♥️♥️♥️
Praying for Carlin and for the doctors to find out what is going on with her and love you guys
I have been praying for you Carlin! I am hoping they are finally going to find out the problem. I also just saw that Katie and Travis are having a little girl on your Instagram. So happy for them. I can understand Carlin feeling emotional about this on going problem but just know you have soooo many people praying for you! Love The Stewart Family. See you next week!
Praying for you Carlin. I’ve been on my own health journey past 11 years. I know how discouraged you can get. I’m praying that doctors will find answers soon for you. During my devotions one morning this song came on right after. I need you know by plumb. Please listen know prayers are being sent to you and family.
I continue with prayers for you and that God enlightens a dr or nurse to see what is wrong. NEVER GIVE UP.