Morphea Update: Lessons From the Morphea in Adults and Children Cohort, Heidi Jacobe, MD, MSCS

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  • เผยแพร่เมื่อ 16 พ.ย. 2022
  • 2022 National Scleroderma Foundation Education Conference

ความคิดเห็น • 13

  • @TomTague-fk3xo
    @TomTague-fk3xo หลายเดือนก่อน

    Just was diagnosed with morphea on my scalp. I never noticed when it was active but now I have the indentation. Need to go back to UT health for a follow up

  • @alohamanoa4747
    @alohamanoa4747 ปีที่แล้ว

    Thank you!! Please keep researching for our children! ❤

  • @reneewijnands5295
    @reneewijnands5295 9 หลายเดือนก่อน

    Hi, I am a woman of 58, treated for Morphea (lineair + generalized) in the Netherlands (RadboudUMC). To be frank, this explanation helps me more than the few words I get during my (short) visits to the hospital. Thank you so much. During the (very) fast development of my disease, I got blisters over the lower part of my leg that opened. After half a year I am still struggeling to treat my leg so the last wound on my ankle will close. Underlying tissue in my ankle and knee are involved, muscles in my leg also. Although I am a member of the patient "society" for my disease, I still have found no one who has my form of the disease. That feels rather lonely.

  • @RiverGibbs
    @RiverGibbs ปีที่แล้ว

    Thank you for this informative, thorough video. This is super helpful and clearly explained. I am 24 and my first lesion appeared about a year ago on my thigh. I thought it was bruising at first or internal bleeding. I had a punch biopsy and have been diagnosed with generalized morphea. It has been about 1 year, and new lesions have developed around my thighs and a few small lighter lesions on my sides and arms. Basically it is a waiting game. I tattooed over one lesion which helped with my self-confidence a lot. I plan to get more tattoos but what worries me is the possibility of atrophy. Zero sign of it yet. Good luck in this crazy life everyone! Have fun.

  • @ciaragail5865
    @ciaragail5865 ปีที่แล้ว

    thanks for the information....

  • @andrearossi7063
    @andrearossi7063 9 หลายเดือนก่อน

    ♥♥♥

  • @laurakittycatartstudio2280
    @laurakittycatartstudio2280 ปีที่แล้ว

    I have circumsized post menapausel morphea. The dermatologist found out from biopsy. I use topical steriods. On my fifth spot coming in all on my stomach, hard and ugly. What is phototherapy? Will rwd light therapy help?

  • @user-hg7fl9dj6f
    @user-hg7fl9dj6f 8 หลายเดือนก่อน

    I also effected from this diesaes plz tell me the treatment mam I am from Nepal

  • @muniraj2304
    @muniraj2304 ปีที่แล้ว

    Morphea treatment available ma'am pls tell me

    • @SclerodermaUS
      @SclerodermaUS  ปีที่แล้ว

      Hi Muni, please email info@scleroderma.org to learn more about this topic and talk to one of our staff members. Thank you!

  • @forgivemylaughter
    @forgivemylaughter ปีที่แล้ว

    Is a punch biopsy the only way to test for this?

    • @SclerodermaUS
      @SclerodermaUS  ปีที่แล้ว

      Hi, please email info@scleroderma.org to learn more about this topic and talk to one of our staff members. Thank you!

    • @forgivemylaughter
      @forgivemylaughter ปีที่แล้ว

      @@SclerodermaUS already went through it all with a doc. Thanks though.