2014 Anaheim - Prediction of Progression & Complications in Scleroderma - Dr. Laura Hummers

Prediction of Progression and Complications in Scleroderma, presented by Dr. Laura Hummers. Systemic sclerosis is a complex, multisystem disease with a significant variability from patient-to-patient. This session will focus on what is known about ways we may better predict who will have specific complications in the future or who will have progression of common manifestations, such as lung fibrosis.
Video Production:
Magnus Media Group
www.magnusmediagroup.com
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[@melaniewalker5226]

Thank you for this I was diagnosed 8 weeks ago I've been ill for at least 3 years I've had every test on the planet and finally the diagnosis systemic scleroderma. 😥😥

[@Markinpuff]

Me too, and I’m male..

[@melaniewalker5226]

@@Markinpuff well I think I can say I know how you feel it's quite a horrible and frightening illness. There's not a lot of information about it because it's a rare autoimmune disease. How long have you been diagnosed is it a while are you a newbie as well.

[@Markinpuff]

@@melaniewalker5226 Well, first it was thought to be crest syndrome. But after time and seeing many doctors, they changed it to defused type. I’ve had it officially for about a year, they suspect I probably had symptoms for many years, but were to mild to see. I had a rough 6 months, getting this and then covid on top of it. Had my butt in the hospital for 3 months , including 3 months in rehabilitation.
Lost around 65lb. I have since gained 45lb in 3-4 months. Putting me almost back to 195lb. My mental state is actually good, because I have excepted my possible fate and actually looking forward to moving on in existence. I knowthat sounds nuts, and perhaps suicidal. But I feel that fear is the mind and body killer, live your live and do what makes you happy.

[@melaniewalker5226]

Mark, I've had mine for 18 months, how are you?

[@user-ux4lu7pw3h]

I finally got diagnosed about 2 years ago but have seen signs of this for almost 10 years your not alone in this fight you got this ❤️

[@johnjenkins129]

Thank you so much for Everything All of you Do!!
God Bless You All ♥️

[@MegaFernando250]

Thanks so much for the news, you help a lot!!🙂

[@sewingBay1255]

Thank you! Great information.

[@kirstygreen8533]

Amazing information, thankyou.

[@mohkarimify]

a wonderfull women