A Cup of Tea | Dystonia Life
ฝัง
- เผยแพร่เมื่อ 7 ก.ย. 2024
- In this episode of #dystonialife we meet a woman living with blepharospasm. For those of you suffering from this type of dystonia, can you relate? Please share in the comments...
.....
You can join in raising awareness, simply by liking, commenting and sharing the Dystonia Europes posts. As a rare disease, we need all the help we can get. Let's do this!!! 💪🧡
Social media:
FACEBOOK | dystonia.europe/
INSTAGRAM | @dystoniaeurope
TWITTER | @dystoniaeurope
WEBSITE | www.dystonia-europe.org
Inquiries:
sec@dystonia-europe.org
#dystoniatalks #dystoniaeurope #dystonia
I have generalized dystonia, including gastrointestinal dystonia. It took 20 YEARS to get to a Neurosurgeon who explicitly works with movement disorders. Please don't take this wrong, but your video made me feel better that my dystonia does not affect my eyes. (Yet.) I pray you are getting exceptional care.😊
❤❤❤❤❤❤ gorgeous
Dystonia is a very cruel neurological condition. It has no good points. So I’m not sure what this video is meant to convey. It is very painful with muscles constantly spasming and twitching. It is an isolating and lonely condition. The medical profession are largely indifferent and sometimes ignorant, even the Consultants. Again there is NOTHING pleasant about dystonia.
100% agree
This is weird!!!!