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Can you please research the link between ME and long-covid and stop grouping post ICU patients into the same group as ME patients? Workwell Foundation and Ron Davis at Stanford have extensive research on this subject that could help a lot of patients.
i have an autoimmune disease, i have these symptoms for years and have always heard "you look fine, it is in your head." now finally people are seeing what we go through
This poor man who lost his wife and couldn't spend the last months of his wife's life with her but only the last moments, broke my heart. I know how it feels like losing someone to cancer, truly is horrible.
Poor guy, totally can feel him. Having to see someone you love fades away. He needs alot of love and caring people to chat with him and stay beside him while a psychiatrist can heal his wounded mind. Life is beautiful as long as your allve.
After 20 years of chronic fatigue syndrome I really understand. No one would believe me back in 1985 when I started with similar symptoms. Fatigue was crushing and still. Pain awful. You never get used to the symptoms. Symptoms which switch and change but never really leave. I always hated not being able to stay as active as I was before. I hope all of these people have better outcome than the millions of us who were/are mainly forgotten. Just to have someone believe you is a start.
Chronic fatigue syndrome is easily treated in south Korea. Most patients seem to be fine on the outside, so it is easy to be mistaken for a spoof. If you get Sympahtetic nerve entrapment point injection, you may be shocked by the effectiveness of the treatment.
@@muadhnate I always figured it did for me., I had high afternoon fevers for the longest time and swollen neck glands and crushing fatigue with pain, It certainly presented that way for myself.
@jewelleryaddict I have the same story, back in the 1980s. Had CFS badly for 25 years. Have never fully recovered. And relapse is always lurking in the wings.
I used to walk five miles a day and now just walking upstairs causes me so much discomfort. My symptoms started in October 2020 and its been so horrible.
So sorry to hear have had chronic fatigue syndrome over 20 yrs. published study in medical journal ran support group at hospital for over 440 people attending in that time. Please get articles on this syndrome for help in how to cope there are ways, no cure but help. For fatigue try Co q10 it is medically approved by George Washington university to help fatigue and a substance called NADH helps make ATP for energy in body. (Amazon) Stick with things approved by studies to help, certain vitamins etc. don’t fall for unproven snake oil peddlers and there will be many like did for us. Best of luck.
My Mother has long covid, she completely lost hearing in one ear and partially in another, has chronic fatigue and musculoskeletal pain. Really needs to be addressed!!!
Has she tried eating all raw and unpackaged foods? This is all inflammatory related. I also read some folks are using antidepressants to help with inflammation. I hope your mom feels better!
I only wished that there were more doctors that recognized this as a real illness. I am worried it will fall into the trap that lyme disease and CFS patients are familiar with.
I got COVID a month ago and I'm still dealing with fatigue and a cough. I went to my doctor just to get checked and said I was just worried that it would turn into a long hauler situation and he pretty much scoffed at that and said, "You'll be back to normal in a another month at the longest."
Most of this is deconditioning. You need to exercise low and slow and work your way up using the Levine protocol. To recondition the body, especially the cardiovascular system.
For those of you who are suffering with long COVID, I hope you have a complete recovery. Until you do, I pray that your symptoms will diminish and you are able to cope.
@@davidbenning10 as someone who developed MS after a COVID infection your being positive to the extent to it being toxic Jenny’s post is realistic, not pessimistic. It’s believed that “long COVID” is possibly a form of MS, or is triggering the development of autoimmune disorders. You don’t recover from an autoimmune disorder, at best it goes into remission after starting a disease modifying treatment. I along with many others will be on medication for the rest of our lives, will have to go through frequent invasive testing for the rest of our lives, and have lost the way of life we knew prior to COVID infection. I’m strong, I’ll get through it, but stop pretending that we’ll be “cured”. We won’t in this lifetime and the sooner you accept that a lot of people are going to be disabled from COVID infection, the better things will be for us, because we’ll be able to better adapt without having accusations of being “pessimistic” or “fakers” thrown at us more than usual.
Thank you 🙏 For me it's been a 2 year journey with permanently busted lungs, I'm like the woman in the video falling apart after a short quick walk but I'm grateful to still be here, had a close call 3 times...
My heart is breaking for these people. Hopefully this prompts researchers to pay more attention to diseases like fatigue syndrome, so that we can maybe reduce people's suffering.
Save your heartbreak for those that have lost their jobs and homes The people who now for 5he first time ever have to queue up at a food bank Those with untreated diseases or the suicide victims
@@penelopewebling1085 how dare you tell her save her heartbreak for others suffering obviously ain’t lost no one to Covid or suffered from it, jobs are replaceable and food is out there
@@jennyfoster792 People get ill and die all the time We all stop living Try telling someone who has spent thousands on university to get "any job" The person who has managed their own business for years Go and stand in a queue at the local food bank and see how it feels Get your head out of the sand
@@jennyfoster792 Its not me I'm thinking of Its the people who have been forgotten because of this I have my lovely family and my business so it's hardly all about me Everyone wants it all to be about covid at the expense of everyone else
Hopefully this might give highlight the hundreds of thousands of people living around the world with ME/CFS. Invisible chronic illness/ disability with similar symptoms to long Covid.
@Jonathan Guy only around 5% of people with ME/CFS ever recover, so no it's not easy to 'overcome'. I've had it since 2007 and have only gotten worse, went from doing school part time to barely being able to do anything now.
@Jonathan Guy Yeah, you're the 5% then. The other 95% never recover. Trust me I tried all of those things but I'm severe and completely bed bound can'teven get to the toilet. Long covid likely hit you because of the same vulnerability that caused you to have mild ME from a less severe virus. ME is a range, having a more severe trigger like covid caused a more severe case.
@@Renee-vz3cx Hi Renee, I hate to be one of those people that suggests a 'magic cure' in the comments but I will say it anyway just in case it helps you or someone else who may see it. I've been reading about high dose thiamine and thiamine deficiency, apparently many people with CFS get great improvement on it. There are many brilliant videos on youtube too explaining this deficiency which is more common than we think
May all long Covid patients experience a recovery of their health. May all medics and support staff stay safe and healthy. May the wife who died, be blessed with eternal life🙏🏻💛
May those who die from undiagnosed Cancer's be blessed. May those who have died of loneliness be blessed may those who have died of suicide over the past year be blessed! May the disabled and family and friend carer's be blessed! May those who have died from medical mistakes be blessed! May all the children in the third world who have died from starvation be blessed! Yes all these other things have happened over the past year and nothing is said or done about it!
This is beyond heartbreaking. Their quality of life has been significantly hindered by this virus. I pray they can get back to a normal functional state. ♡
@@elninonmg9397 Well we're all going to die of something at some point None of us know when that will be That's why we have to live life as best as we can and not waste it worrying about dying
Hugs from a lyme warrior who now has to be a long Covid warrior too 🤗❤️ Pfft maybe the tons of funding going into Covid research will help. They never put much money into Fibromyalgia, CFS/ME, or lyme disease. They can ignore 300k new lyme infections a year in the US, but can they ignore 1/3 of Covid survivors?
I think post viral syndromes are much more common than anyone could imagine and they cause lots of long standing illnesses after simply catching a common virus such as the flu. So I’m very glad more research is being done now.
The virus tricks the immune system into attacking your body well after the virus has gone. Causing systemic inflammation. Each individual will have different symptoms and different pains because everyone's DNA is different. If you get an autoimmune disease you have it for life. There is no cure. There is no going back. Only anti inflammatory medicine will reduce symptoms.
The key to dealing with long haulers is pacing myself, knowing there are limits to physical exertion, there are foods to be avoided, to rest when it's needed, and to stay abreast of research and solutions.
Covid isn’t the first virus to cause this. Hopefully this syndrome gets more attention for other sufferers and research into this goes forward. Many live with chronic post-treatment disabilities from different diseases. Covid is bringing this to the fore fir everybody.
I really really hope so. I have lyme disease that was discovered 14 years too late for effective treatment, and am now dealing with long Covid. The thing that Covid-19 has that these other diseases don't currently is funding for research, I hope they use it.
Love how the doctors are always so lovely on camera but in real life they barely treat you with any humanity or compassion..if you get an appointment and speak to an actual human that is.
This reminds me so much of what it was like when I first had ME / CFS, just without the loss of smell. Those first few years were absolute agony on bad days, but to others I looked perfectly normal. It took more than a decade before I had any improvement.
@@craig543 For me, I think the biggest thing in the beginning was budgeting my physical and mental resources for things I enjoyed or wanted to do, but planning the days leading up to conserve those resources, along with days afterwards for recovery. It takes time to work out what’s going to be more draining, but I think it helped me to know I could still do things if I planned in advance, rather than trying to live each day with the sense I had no control of my life.
I am utterly perplexed and well as angered as to why it’s taken a pandemic for medical staff to recognise that ME/CFS is a genuine medical condition. People with ME/CFS have been silenced,ignored and dismissed. All of these things have lead to a lack of funding for the condition and thus a lack of understanding. The new research for me/CFS is promising yet beyond infuriating. The funding just hasn’t been there for medical staff to fully grasp and understand ME/CFS. Patients gave therefore been denied help and been miss understood by medical staff for years and years. I hope that the pandemic funding will have a more positive outcome for those with l ME/CFS and a greater understanding from medical staff and others. I’m hoping this pandemic will allow medical staff to have more education about ME/CFS.
Once you get to that point though, they still say, sorry there's no treatment, we can just try to make you a bit more comfortable, and the cycle repeats. More pills that don't work, more tests, more specialists, more denial.
I know exactly how this woman feels. I had Covid-19 alpha in February 2020. Sick for three weeks. Have never recovered my pre illness strength. I experience shortness of breath with minimal exertion. I am not the same person. My previous back pain has magnified as well as left chest discomfort at times.
I'm so sorry for what you're going through. 💔 I just recently "recovered" from a covid infection after being sick for 2 weeks and am still experiencing extreme fatigue as well. I'm only 25 but feel like I'm trapped in an 80 year old's body. I hope you've managed to find a doctor and support system that takes you seriously.
I wish you and me a permanent recovery and for every patient, I wanted to ask you if you had pain in the knee, thigh and foot or swelling in the leg, or anyone who has gone through that because I have been suffering since my injury, what are your symptoms
@@AetherealGirl I wish you and me a permanent recovery and for every patient, I wanted to ask you if you had pain in the knee, thigh and foot or swelling in the leg, or anyone who has gone through that because I have been suffering since my injury, what are your symptoms
Have you had any change since your comment 5 months ago. I wish you a complete recovery. I have COVID syndrome, caught it 6 weeks ago, still off sick from work until I'm better.
That’s how I feel. I had Covid in October, which lasted for 3 and a half weeks. Then, in the beginning of December I got Covid, again. As soon I start thinking I am feeling better, and all of sudden I feel weak and sinus comes back. Never ending Covid. When people say it’s just a cold, I beg to differ.
Im so sick of hearing that!!! It killed my brother in law, 7 of my friends family. I got it last May:was bad sick for 4 days, but took SEVEN weeks just to get unfoggy, and back to the gym. Felt like Mono. I hope you feel better soon. Try and eat foods Not packaged and lots of raw veggies.
Does covid affect your joints and sleep I first had in march 2020 it messed me up I took me a long to to recover So I had a painful dodgy cold since September I did not get a test until December so I tested positive for covid 19 I’m in bed since September I have not been out if I go out it’s for a short walk or drive Because I’m not well I think it’s affected my mobility and muscles
@@Missliaz Yes, it definitely affected my joints. I became more susceptible to cold. I dress now as if I am in Alaska. My doctor prescribed Dexamethasone due to severe sinus and earache. It’s a corticosteroid used in a wide range of conditions for its anti-inflammatory effects. I only took for two days; once a day. It helped me. I don’t take medications unless it is absolutely necessary. This time I had to, as I take care of my 92 year old mother and a dog. However, joints and muscles ache very day. I wish you full recovery very soon.
I’m just wondering why I don’t hear that the United States has something similar to this? Ever since I had Covid-19, I always have this cough that comes back every time the temperature changes fro warm to chilly or cold. My doctor thinks it’s allergies but before Covid I never suffer allergies. Thank you for this video.
UT Southwestern in Dallas does, but it's full. Pretty sure Mayo Clinic and Johns Hopkins would too. Look up the teaching and research hospitals. The ones that train student doctors. I'm getting some help through my pulmonologist and ENT just because they are seeing it in SO MANY OF THEIR COVID SURVIVORS, they simply can't deny it anymore.
I've suffered from chronic fatigue syndrome for years and there was never any help or support now maybe because of COVID Drs will start seriously. As far as I can see CFS and long COVID are exactly the same. It made me cry when I saw the lady say how she looked fine on the outside but inside she felt like she was falling apart. I remember one Dr telling me that I was "just a lonely young woman wanting some attention".
I did therapy for CFS and it worked. You might not want to hear this or you may already know this, but CFS is a psychosomatic illness, it is caused by subconscious stress and fear of the illness itself which keeps your sympathetic nervous system in a constant state of fight or flight, this stress on your nervous system causes a range of symptoms, for some its fatigue for others pain, for me it was EVERYTHING, pain, dizziness, blurred vision for almost 2 years. I did therapy which explained to me that my thoughts and focus on the illness and symptoms themselves and doing constant CHECKING in on my body was perpetuating my illness. I didn't believe it at first as I was so physically ill, it took me a year to actually understand it. Essentially when you are happy, focusing on other things, doing things you want to do, I mean truly focusing on what you want, completely unrelated to the sense that you have an illness and not focused on your body, do you notice that the symptoms are reduced? I think the answer will be yes for most of you. If you stop believing you are sick, because you actually are not sick, there is nothing quantifiably wrong with your body as doctors have probably told you, that's why this illness always gets overlooked by doctors, its a pyscological illness which manifests through your sympathetic nervous system and body. I learnt that through the practice of not checking in on my illness, not thinking about how my body felt and staying focused on what I want to do day to day (what I want to do being completely detached from a sense that I am ill) my nervous system slowly started to settle, it takes time and there are relapses, but it gets easier as you start to train your brain to relearn what if feels like to be in the state of flow and calm in your thinking, which allows your nervous system to settle again.
@@infinitybauer1187 Myalgic encephalomyelitis. Have you got any evidence that can rebuke my point? or any evidence that ME/CFS is a problem that stems from tissue damage, damage to your nervous system and only exists in the body as you say? Are you someone that has overcome ME/CFS like me and MANY other people I know? Why do you think it something that is so hard to treat and is so overlooked. We can cure cancer but we can't cure this? It's because most patients and doctors are looking in the wrong places for the solution. The solution is in the MIND FIRST and then the body follows. It's about settling your sympathetic nervous system, through the understanding of your thinking patterns and triggers to avoid unsettling it again. The symptoms of ME/CFS are essentially like a mirage, that's why when you get checked at the doctor there is nothing physically wrong with you, the doctors are not lying about this. Your sympathetic nervous system is giving you the SENSATION of pain, muscle weakness, tight chest, brain fog and all kinds of symptoms, but there isn't actual tissue damage. It was very difficult for me to accept and understand these ideas when I first started doing therapy, because part of the illness itself is the BELIEF that there is something seriously wrong with your body. It took me about a year and a half of learning and understanding about my mind and its connection to the body before I got better. The reason so many people got it after COVID is because people were so paranoid, fearful and hyperaware of their body and illness during the pandemic. People were constantly asking themselves am I ok, is my body ok? That is a perfect trigger for the beginning of the ME/CFS experience. You pick up on a little pain, or a little sensation and your mind amplifies it and your nervous system reacts and you get stuck in a cycle of pain and thoughts, and you begin to say no Im not ok, I feel this, I feel that etc. etc. IM SPEAKING FROM EXPERIENCE! I had really extreme symptoms
@@betadine497 Actually, the burden of proof is on you since you were the one who made the claim about ME being psychosomatic. It’s on you to prove your claim, not on me to disprove it. I’m not gonna trust some random person on the internet going against the general medical consensus. Right now there are many scientific theories as to the mechanisms behind ME/CFS, none of which include psychosomatic illness.
I have been suffering from long covid for nearly 4 months now (am 18 and before was extremely fit and healthy - wasn't hospitalised fortunately but have been off work and school for a long time now). The problem is that many areas like mine in Kent - there are no long covid clinics actually up and running :( I am really glad those people get help through and can only hope it may be me one day getting support from specialists I can definately relate to the concept of looking fine but feeling awful and in so much pain! We are so lucky we have a nhs :)
It will take time it took me 1 year and 6 months to feels 75% better best thing to do is rest don't exrt yourself I'm one of the oldest covid patients s ever with long covid you will feel fine.
It is great that the UK is handling this much better than the US is at this stage. I had covid pretty badly in April, 2020, before much was known. I should have gone to the hospital, but stubbornly, I didn't. We didn't know then how fast you could go downhill and die. My kids were worried though, and asked everyday if they could take me. I was sick nearly a month. But I was diagnosed with long covid a few months later. It eventually caused me to retire very early. There is no disability for this in the US. They are still denying that it is anything at all. So I have spent the better part of this year with specialists. I have heart, lung, liver, digestive damage, and my brain doesn't work right anymore. And the exhaustion? so debilitating. Then I passed out and injured my spine when I hit furniture on the way down. Surgery, they say, or end up like Christopher Reeve (superman). But our healthcare system is so bad, insurance is so far refusing the procedure. Great, right? In the meantime, I note I am losing feeling in my legs, arms, hands, feet, and back. It is a full time job fighting for insurance. This will bankrupt me, and my savings are dwindling quickly. I have worked since I was 5, so no, this is not a lazy person. The US needs to change. The frustrating part about long covid is that it affects people in so many different ways. And it is destroying so many lives, there is no doubt it will contribute to a downturn in all countries' economies. This is devastation.
What long COVID clinics? I'm a 11 months post ICU COVID19 patient who is still having multiple issues after my stay in ICU, and I haven't received any real follow up since leaving the ICU. My GP surgery and hospital has no interest in my situation at all.
Yeah, they are still overwhelmed with patients. I got Covid in August, and couldn't even get into a pulmonologist until December. All they said was sorry. I just had my first follow up with my GP now here in May. I brought a whole list of referrals that I need, a notes to talk about, refills I need, wouldn't let her leave until I mentioned everything. It helps if a family member can go with you to your appointment. I know health workers are overwhelmed, but in the meantime I am still too sick to work, so I need help. My pulmonologist and ENT are somewhat helpful, only because now they have so many patients who survived Covid, they can't deny these long haul symptoms anymore. Look up training hospitals, like where medical students go, or research hospitals, or clinical trial websites. But also be persistent and stay on these doctors, you have to be your own advocate sometimes. I'm in the US, but usually once you're out of the hospital, your case is handled by your primary care physician, if they don't help you need to get referrals to specialists who maybe will.
I'm asking a question where all these people vaccinated and and given booster of the vaccine??? I haven't had the flu in 30 years I didn't take the vaccine I never will my immune system will stay pure and these kind of things are happening all over the world right now people like this just saying
long covid is a torture, it makes me feel helpless when few doctors act like they don't want to know me and makes me feel like its only in my head and i know that i feel a strange kind of fatigue, weakness and dizziness and i feel it day by day, few steps like 2 to 3 steps i feel like im going to die.
I wonder how many of these poor people are actually vaccine damaged. A nephew has an autoimmune disorder since his vaccination and has been recorded by GP.
I got covid, it lasted a week. Worst "cold" I ever had. After two weeks I was fit enough and returned to work and i shook from exhaustion just walking from my car into the company. It took me six months to feel normal again.
@@maxim__prokhorov yes, better. But I had waaaaay more energy before, now I'm tired every day. I also get sick a lot easier. Used to get one cold every 2-3 years, now I had the third infection in four months 😕
I had covid in 2021 and it changed my life. It was in June. Here we are in 2022 and I still can't taste 98% of what I eat and drink and can only smell about 5 or 6 things. I have serious depression and am sick with a variety of things every day.. the list is long. Bless these people 🙏
I am like this. I smell one thing though very strongly. Too strongly. It smells like dirty ashtray and I only know one smoker anymore and I'm only around him every so often. Also super fatigued some days I can barely stay awake.
I lost my smell and taste 4 years ago. Complete loss. It really took a toll on my mental health, for me antidepressants and therapy have helped me deal with this loss that is very very tragic. ❤ I hope you find a way to cope as I have!
I have long covid ,and it's been a year. Most of my severe symptoms have gone.when I watch this I can put myself in there shoes. It's terrifying. The mental part was overwhelming. Luckily I feel better ,but still have some fatigue on and off. Smell is not normal . I hope we all fully recover.
I feel bad for these people but also please think of those of us with rare multiple conditions who have had these symptoms from other conditions our whole lives. Covid has brought awareness to these conditions that some of us have lived with for years, and no one cared about it till now. POTS, ME/CFS. Covid needs to be taken seriously but please please please do not take your health for granted, some of us never get the chance to be healthy, even when we have not had covid. I have been in my house for over a year as I am very high risk. I also can't get vaccinated due to a very rare condition called USAID/TRAPS. Stay safe.
I'm an ex-physical training instructor in the army and ive been getting pins and needles in my hands, arms and feet. Chest pain and heart palpatations, brain fog, dizziness, headaches and overly sensitive hearing and the worst of all cronic fatigue and depression. All these symptoms started after i contracted covid about a year ago and its safe to say its pretty much ruined my life. I still dont understand why theres no real treatment for this when so many people are affected.
I have the headaches not as bad now brain fog dizziness chronic fatigue worst and seems to be for most all of us I have become sensitive to smells I cannot tolerate strong perfume body shampoo etc I forget things then remember second after this is getting little better
I hope for a breakthrough soon and for other sufferers of unseen diseases. I was fit and full of life before this. It has left me alone and in an awful position. It feels like just existing.
My heart goes out to that woman. I have crps and i look normal but have terrible pain. It comes with fatigue and all doctors dont know really what to do with it. So when you meet people in bad form sometimes there dealing with pain that cant be seen both in the body and soul.
I had my 1 year covid anniversary last week. Still ongoing tests, feel short of breath with minimal exertion but my chest rays and CTPA was clear. I've had a holter monitor to monitor my fast heart rate, waiting more pulmonary tests. I was overweight but no health issues before covid. I struggle with working now, and worst thing is that my anxiety is so bad now because I have so many unanswered questions. I fully think that rushing back to work before I was ready has made these issues happen. Rest up if you can ❤💙💜
Iam exactly same as you but instead the fast heart rate ,,I got Ectopic heart beats which is horrible feeling ,,,never had any issues with my heart before ...while I had covid symptoms in March 2020 I developed this horrendous Ectopic beats,, 15 months down the line it got so much less and some days I don't have it at all but still not cleared completely
@Dermot Fitzpatrick How do you know all of this? Thank you for posting this information. Is Betaine HCL and pepsin something you have to be prescribed or can you buy it at a local pharmacy/supplement store? I've heard that H1 and H2 blockers can help people with long covid. One of the H blockers I have is in the form of a acid reducer. Could this be bad? I probably shouldnt be taking an acid reducer if I already do not have enough stomach acid. Thanks for your time and info! It's much appreciated
Reading this was like reading my own symptoms and running around having test after test..! All My symptoms feel like I’m having a panic attack, one person even told me maybe I should see a psychiatrist.. Blessings and prayers to you and all who are suffering in any way…
This is so important for all of us to know. It’s super frustrating when people don’t take the virus seriously and even try to make fun of others who do. This person laughed at me when I talked about long COVID and how serious it was. It was upsetting but also I kind of felt sorry for her not being informed… though it seemed like her choice not being serious about it. I hope everyone in this video will get better as soon as possible. Also, mad respect for the nurses and doctors🙏
@@beckymunro2071 it’s different for everyone We had it no more than a week and had zero lingering symptoms. We did take ivermectin and other protocols though.
I never got jabbed. I did have a mild case of covid. The only symptoms I had was a slight loss of smell and taste. Year later I developed severe peripheral neuropathy no doctor can explain. Foot drop, loss of knee jerk reflex...swelling and pain in feet and lower legs. Loss of balance... If anyone has an idea how to help, let me know. Thousands of example of this misery all over the internet and not a single suggestion that works on how to help it or fix it. This is supposedly the country with most advanced healthcare... I think not.
I was vaccinated boosted and careful up until I was last boosted. I thought I was safe to go back to a normal life. I started seeing people again. In less then 2 months after I was boosted I contracted COVID. My family all got covid same time including 6 family members who live outside home we all felt like a cold. It wasn’t that bad actually. Husband and daughter had cough and daughter had throat & bad plugged up nose. I had major headache and light body aches with slight runny nose. Then got better & later got covid again about 4 weeks later. Got better then went Disneyland following month and believe we got Covid again. This time it’s hitting me hardest. Fast forward 4 months later my heart is skipping and acting weird. I’m fatigued, blurry eyes, and feel exhausted. I normally climb stairs at my Drs office because I don’t like elevators (crowded with germs and people) so I opt for stairs everywhere I go and niw for first time I couldn’t climb 4 flights. I had to stop on each floor winded, and like I was going to pass out. I always climbed stairs without any issues. My legs would get tired but never my lungs . I was almost hyper ventilating like I ran miles. Now something is wrong with my heart. It’s not anxiety. I have anxiety and know the difference. I also now have vertigo and just dizziness, I guess I’m a long hauler. . My husband and daughter and rest of my family who lives outside my home all Vaccinated and also had covid 2 or more times without any issues. I’m the only one I know who is suffering long haul covid. My ekg shows abnormal heart rhythm and now getting holter monitor and more test done to figure out why I’m suffering with after covid. For anyone unsure please be careful I’m hoping my story with anyone suffering same issues, you’re not alone. I’m not against vaccine but if covid affects the heart, then the vaccine might affect some people’s heart too. I don’t know if I would have got vaccinated knowing I would still be this sick. I believe studies were done and still being done, that’s why fda is not approving for under age kids. Because of concern. Just be careful and wear a mask if around large groups. I thought I was safe and stopped wearing my mask and got covid 3 times in a row. They say with new Omicron you can catch new variant every 3 weeks. Please do research not just one sided because you don’t want to believe.
@ Vanity Girl So sorry you’re going through this. How are you today? I’m 7 weeks post Covid and have debilitating fatigue. Acute infection was a breeze but left with this fatigue I can’t shake off. And I’m unvaccinated;(
I started getting leg fatigue pains about 1 and a half month after recovering from Delta Covid. Every evening my legs would pain. Then it went away after few months on its on. Now, since about 2-3 weeks (2 yrs after Covid) I noticed muscle weakness. It was almost overnight. I couldn't bend in the shower to wash my hair, had to sit down. My back gets tired from bending forward while brushing me teeth. My eyelids feel heavy at night (never happened before). My legs pain by the evening. Wiping the kitchen counter is a task. Picking up my daughter feels heavier. This is definitely Covid complication. I pray for mine and everyone's recovery from this virus.
I can totally relate to this lady, I struggle to breath and the fatigue is terrible. The first time I felt these symptoms was after the second vaccine, I was bedridden for a month. Then gradually over time breathing seemed affected along with chronic fatigue longterm. I’m 54 but feel 84, wish you all a speedy recovery
Yes all vaxinated with the gene therapy keep believing in the medical system and take your drugs.healthy old age will escape you.make sure you give it to your children along with their other 90 odd vaccine's.
hahahahahahaha nobody says it's not real. What they say is that with a 99.7% survival rate it doesn't require us to shrink wrap and muzzle our children so they can receive an education, bankrupt all small businesses, bars, restaurants, airlines, pubs, theatres, hotels, essentially decimate the economy, plunge the nation into more debt than we had post WW2, cause a 200%+ spike in suicide, slowly erode your human rights and cause a humanitarian crises that according to the UN will plunge 250 MILLION worldwide into severe poverty and possible starvation. Sounds logical, yeh?
@@rafa17martinriggs there's actually a lot of people who don't believe it's real, i'm not saying you're one but they do exist. it's so funny how angry and defensive you got from me stating that people underplay it. no one said you're wrong but seriously, get a grip.
@@rafa17martinriggs you dont have to apologise. These people will do anything to get us in line including making these kind of videos. You just have to look at whos broadcasting. The Gaurdian has proven to be one sided on may toppics. Sorry for my bad english. Iam from NL. SHAME ON GAUDIAN TO USE THESE PEOPLE AS PUPPETS TO PUSH A NARRATIVE. QA was not only saying People who say Covid does not exist, she was also pointing and shaming people who down play Covid. Thats you and me. And before you go and attack me, i have the same if not worse symptoms as these people have.
welcome to the world of fibromyalgia, some of us have been dealing with this for years with little sympathy or understanding from the medical profession.
I agree. Covid is getting all the Glory for everything these days, nothing else seems to count or matter anymore!!! I know so many people with ME/post viral fatigue, they have been told for years that it's "just in their heads". SO Unfair.
They might have finally pinned down the cause of fibromyalgia a research group identified specific antibodies in people suffering from the condition. Then they injected the mice with said antibodies and the mice begun to display the symptoms of the disease . They suspect the specific antibodies are making nerves for detecting pain super sensitive. This also fits as women are more prone to other immunological disorders and fibro is far more prevalent in woman.
I had long haul symptoms for almost 2 years after being hospitalized with Covid. I felt like I was living in someone else’s body. I still have memory and sleep quality issues but feel more like myself now than before.
I'm 43 year old female and suffering with long Covid. It's scary!! I'm having panic attacks all the time now. Shortness of breath just walking around and dizzy spells. I'm having heart palpitations all the time. I thought I was going to have a heart attack. I'm having joint pain. I had a episode where I couldn't use my hand. I wasn't in the hospital but it's been a rocky road.
I wish you and me a permanent recovery and for every patient, I wanted to ask you if you had pain in the knee, thigh and foot or swelling in the leg, or anyone who has gone through that because I have been suffering since my injury, what are your symptoms
@@virtualasylum7013 If they did, they should see an expert who at least has the decency to acknowledge (and it has been mentioned by prominent doctors) that LC actually is in practicality indistinguishable from some side-effects of the said procedure. At least they might get on the road to some recovery once the probable cause is taken into account. Of course, it is going to cost quite a bit of money in most cases to seek private care. Experimental procedures carry unknown risks, which is why they should be considered with utmost caution.
It almost seems that the Long Covid is worst than death for the survivors. Just tragic, have a chronic illness that prevents you from working and even just getting through life, day by day.
Long covid can take your best friend away when they become too sick to even communicate but yet their body is at least still metabolizing, it is a living death, not unlike a coma.
I have lyme disease, and when I bring it up to doctors, they act like I am talking about some illegal activity. Like I was on a Zoom call with my GP and brought it up again, and she got up and closed her doors, and started whispering to me.
@@jessicah3450 It's because doctors, for the most part, haven't been trained in the diagnosis and treatment of Lyme disease, and the medical establishment is yet to catch up. So, there's no established protocol, and doctors who do believe in long-term Lyme disease are treating it "under the table" as it were. Ridiculous, considering how much more common it's becoming.
@@elingrome5853 she really looked like she was suffering panic attacks, too. It's as though she's fearful of doing any kind of exercise incase something should happen. She's also a little thin and probably could do with high nutrition. I don't know why they got her to walk rapidly with a mask on. That was a silly thing to do, especially if she is panicking and finding it difficult to breathe.
yep. i’m 20 and had covid 8 months ago and have been having dizziness, heat sensitivity like my body can’t handle the heat and sends me into dizzy spells and hot flashes, and breathing problems, but i was just told by a doctor that it’s just anxiety and i’m just anxious because i see on the news how many people are dying from covid so it makes me nervous? my symptoms started after having covid last september, wasn’t having any of the symptoms i have now, but apparently to doctors there is no correlation and i’m just imagining it.
@@LcNewman May I recommend tapping therapy. It helps me when I have flairs with long covid and it may actually help to bring you some peace. I am sorry that your GP is being dismissive it is never nice when the people we put our faith into for our health don't actually listen. Sending love and well wishes.
Same a doctor told me I should get mental help because I asked for help dealing with long haul covid . And he said it doesn’t exists 🤦🏻♀️ he made me want to give up on life . I’ve been dealing with long haul covid for almost 9months . Worse time of my life .
Long-COVID has been an issue since before the vaccine was ever tested or released. Post-viral illnesses in general are not a new thing. There are even folks who are still having problems forms the SARS outbreak in the early 2000s.
Long covid sounds much the same as CFS. I got CFS in my twenties and took many years to recover. Even now in my sixties I can still crash but really I am blessed to have recovered from not being able to walk far, needing to sleep five hours a day and feeling as though I had the flu. Took time and rest but I did recover.
May I check if anyone here who has suffered from long-COVID, in particular chronic fatigue and brain fog, has received the Pfizer vaccine? Have your long-COVID symptoms gone away/ improved after the jab? Thanks
I got my second dose of the Pfizer vaccine on May 1st. I had shortness of breath, chest pain fatigue for 3 days straight. Brain fog was very mild. My symptoms greatly improved after a week. As of today I have not had any further side effects
@@user-ci4bh6cc5b - Its all fun and games until those limb-crushing aches and pains take over your body, this virus will keep you bed-bound for 2 weeks in absolute agony, hopefully you wont have to call 999 due to inability to breathe.
Thank you for the research! Thank you for listening to us! We are suffering in silence because there’s nothing to base our symptoms on. Keep on keeping on🙌🏼
There are many people who got long COVID well before the vaccine was released. There are also folks who chose not the vaccine and developed long-COVID. These issues have been reported since the first wave of the pandemic but patients were not being heard.
@@Spanglefangle Even a person who's been educated with a banana and an inner tube, knows that an experimental jab isn't safe. How can you not know this?
This is how chronic pain patients have felt for decades, then in 2016 in America they take away the one thing that gives us a small quality of life, our pain meds???
That I do not know but I do know my Dad got both fibromyalgia and ME/CFS in 1983 decades before Covid 19 even existed and those diseases got me in 2005: some research in the early 2010s indicated there may be a genetic factor in the thing.
@@macromanny after covid my body vitamins got messed up. I recently discovered blood test I was becoming deficient in B12 and iron. Didn't run any test but I doubted I was deficient in magnesium ( which is no 1 important for the heart) as soon as I got magnesium ( byglycinate or glycinate) my palpitations stopped. I am not 100% better but magnesium helped me within minutes.
@Chris Longden sadly that's not true, I am 3x vaccinated, I am suffering from long covid, they said its 50/50 if you're vaccinated, I do not feel like myself, I don't even have a inner monolonge anymore.
What's been done separating couples because one is sick and dying is wrong...a family member who was married for 60 yrs died alone in hospital waving thru a window at his wife to come in...dispicable
That is so tragic. You’re absolutely right, it’s sickening how they’ve kept people and loved ones apart. I hope your family member is getting all the support they need
At the Guardian we are committed to fact-checked, evidence-based coverage of the coronavirus pandemic and its consequences on our lives. This hasn't gone unnoticed by our global audience - a recent independent study found, when it comes to this subject, that the general public trusts the Guardian more than any other UK publication. Help safeguard our quality journalism by making a contribution of $1 today www.theguardian.com/covidvideos
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The criminal goverments acts it's a consequences on our lives
The fact-checkers being the ones who censor vs debate.
You're broadcasting a load of nutty people lying possibly intentionally and you're expecting us to pay you money?
Can you please research the link between ME and long-covid and stop grouping post ICU patients into the same group as ME patients? Workwell Foundation and Ron Davis at Stanford have extensive research on this subject that could help a lot of patients.
The Guardian is a joke!
i have an autoimmune disease, i have these symptoms for years and have always heard "you look fine, it is in your head." now finally people are seeing what we go through
Indeed.
Soo True....
Nope. Because my symptoms started prior to covid and are not caused by covid, I'm still being told it's all in my head.
Yes fatigue has suddenly become a real thing to these doctors.
YES!
Health is a crown that only the sick see.
As an non native speaker (German) I must say this English proverb is very
beautiful and true.
A healthy man has a hundred wishes, a sick man only one.
So true
The newest therapy from Germany: Vital Air 5+ device ! (vital-air-therapy com)
Long covid😅. No thing as covid let alone long covid. Lol
This poor man who lost his wife and couldn't spend the last months of his wife's life with her but only the last moments, broke my heart. I know how it feels like losing someone to cancer, truly is horrible.
Yes, so terrible to lose that precious time 🙁
Poor guy, totally can feel him. Having to see someone you love fades away. He needs alot of love and caring people to chat with him and stay beside him while a psychiatrist can heal his wounded mind. Life is beautiful as long as your allve.
The newest therapy from Germany: Vital Air 5+ device ! (vital-air-therapy com)
Hurt that never goes away..
After 20 years of chronic fatigue syndrome I really understand. No one would believe me back in 1985 when I started with similar symptoms. Fatigue was crushing and still. Pain awful. You never get used to the symptoms. Symptoms which switch and change but never really leave. I always hated not being able to stay as active as I was before. I hope all of these people have better outcome than the millions of us who were/are mainly forgotten. Just to have someone believe you is a start.
Just to be validated 😪
Chronic fatigue syndrome is easily treated in south Korea. Most patients seem to be fine on the outside, so it is easy to be mistaken for a spoof. If you get Sympahtetic nerve entrapment point injection, you may be shocked by the effectiveness of the treatment.
@@muadhnate I always figured it did for me., I had high afternoon fevers for the longest time and swollen neck glands and crushing fatigue with pain, It certainly presented that way for myself.
@@muadhnate Yes it is. Another name for it is Post Viral Fatigue Syndrome.
@jewelleryaddict I have the same story, back in the 1980s. Had CFS badly for 25 years. Have never fully recovered. And relapse is always lurking in the wings.
I used to walk five miles a day and now just walking upstairs causes me so much discomfort. My symptoms started in October 2020 and its been so horrible.
So sorry to hear
One month later you still alive?
Sending love your way 🙏🏻
@@mrunknown9668 we hope so
So sorry to hear have had chronic fatigue syndrome over 20 yrs. published study in medical journal ran support group at hospital for over 440 people attending in that time. Please get articles on this syndrome for help in how to cope there are ways, no cure but help. For fatigue try Co q10 it is medically approved by George Washington university to help fatigue and a substance called NADH helps make ATP for energy in body. (Amazon) Stick with things approved by studies to help, certain vitamins etc. don’t fall for unproven snake oil peddlers and there will be many like did for us. Best of luck.
My Mother has long covid, she completely lost hearing in one ear and partially in another, has chronic fatigue and musculoskeletal pain. Really needs to be addressed!!!
Did she have ear infections?
Has she tried eating all raw and unpackaged foods? This is all inflammatory related. I also read some folks are using antidepressants to help with inflammation. I hope your mom feels better!
I only wished that there were more doctors that recognized this as a real illness. I am worried it will fall into the trap that lyme disease and CFS patients are familiar with.
I got COVID a month ago and I'm still dealing with fatigue and a cough. I went to my doctor just to get checked and said I was just worried that it would turn into a long hauler situation and he pretty much scoffed at that and said, "You'll be back to normal in a another month at the longest."
Most of this is deconditioning. You need to exercise low and slow and work your way up using the Levine protocol. To recondition the body, especially the cardiovascular system.
For those of you who are suffering with long COVID, I hope you have a complete recovery. Until you do, I pray that your symptoms will diminish and you are able to cope.
That's nice, but there are other, longer-standing post-viral syndromes, so please vote & act as though these people will not suddenly recover.
@@jennyjohnson5428 ??? 🤔 You think that they want to hear that? Talk about being pessimistic.
@@davidbenning10 as someone who developed MS after a COVID infection your being positive to the extent to it being toxic
Jenny’s post is realistic, not pessimistic. It’s believed that “long COVID” is possibly a form of MS, or is triggering the development of autoimmune disorders.
You don’t recover from an autoimmune disorder, at best it goes into remission after starting a disease modifying treatment. I along with many others will be on medication for the rest of our lives, will have to go through frequent invasive testing for the rest of our lives, and have lost the way of life we knew prior to COVID infection.
I’m strong, I’ll get through it, but stop pretending that we’ll be “cured”. We won’t in this lifetime and the sooner you accept that a lot of people are going to be disabled from COVID infection, the better things will be for us, because we’ll be able to better adapt without having accusations of being “pessimistic” or “fakers” thrown at us more than usual.
Thank you 🙏 For me it's been a 2 year journey with permanently busted lungs, I'm like the woman in the video falling apart after a short quick walk but I'm grateful to still be here, had a close call 3 times...
@@RainRemnant Were you vaccinated?
My heart is breaking for these people. Hopefully this prompts researchers to pay more attention to diseases like fatigue syndrome, so that we can maybe reduce people's suffering.
Save your heartbreak for those that have lost their jobs and homes The people who now for 5he first time ever have to queue up at a food bank Those with untreated diseases or the suicide victims
@@penelopewebling1085 how dare you tell her save her heartbreak for others suffering obviously ain’t lost no one to Covid or suffered from it, jobs are replaceable and food is out there
@@jennyfoster792 People get ill and die all the time We all stop living Try telling someone who has spent thousands on university to get "any job" The person who has managed their own business for years Go and stand in a queue at the local food bank and see how it feels Get your head out of the sand
@@penelopewebling1085 all about you not about these peoples health’s, won’t be replying no more as you obviously craving attention
@@jennyfoster792 Its not me I'm thinking of Its the people who have been forgotten because of this I have my lovely family and my business so it's hardly all about me Everyone wants it all to be about covid at the expense of everyone else
Hopefully this might give highlight the hundreds of thousands of people living around the world with ME/CFS. Invisible chronic illness/ disability with similar symptoms to long Covid.
Do not be rediculous if anything 2020 has taught us only covid matters whatever the social, societal and financial cost.
I wonder if cfs/me is just unknown post viral syndrome
@Jonathan Guy only around 5% of people with ME/CFS ever recover, so no it's not easy to 'overcome'. I've had it since 2007 and have only gotten worse, went from doing school part time to barely being able to do anything now.
@Jonathan Guy Yeah, you're the 5% then. The other 95% never recover. Trust me I tried all of those things but I'm severe and completely bed bound can'teven get to the toilet. Long covid likely hit you because of the same vulnerability that caused you to have mild ME from a less severe virus. ME is a range, having a more severe trigger like covid caused a more severe case.
@@Renee-vz3cx Hi Renee, I hate to be one of those people that suggests a 'magic cure' in the comments but I will say it anyway just in case it helps you or someone else who may see it. I've been reading about high dose thiamine and thiamine deficiency, apparently many people with CFS get great improvement on it. There are many brilliant videos on youtube too explaining this deficiency which is more common than we think
May all long Covid patients experience a recovery of their health. May all medics and support staff stay safe and healthy. May the wife who died, be blessed with eternal life🙏🏻💛
May those who die from undiagnosed Cancer's be blessed. May those who have died of loneliness be blessed may those who have died of suicide over the past year be blessed! May the disabled and family and friend carer's be blessed! May those who have died from medical mistakes be blessed! May all the children in the third world who have died from starvation be blessed! Yes all these other things have happened over the past year and nothing is said or done about it!
Amen 🙏
@@grey_wind948 It takes basic knowledge to understand and see the differences from covid19.
Please eat whole food plant based
Low dose nexaltron
This is beyond heartbreaking. Their quality of life has been significantly hindered by this virus. I pray they can get back to a normal functional state. ♡
Probably most of their lives.There is no cure for for chronic fatigue.
And what about everybody else's "quality of life" Do you only matter if you've got a bad dose of flu?, Get some perspective
@@penelopewebling1085 - SARS-cov-2 virus is not the Influenza (Flu) virus.
Most of us are dying.
@@elninonmg9397 Well we're all going to die of something at some point None of us know when that will be That's why we have to live life as best as we can and not waste it worrying about dying
I have fibromyalgia and covid hit me also .
Draining my whole body 😩. Gentle hugs to fellow warriors x
Sorry to hear that, fibro is just so hard. Hope you recover soon
Hugs from a lyme warrior who now has to be a long Covid warrior too 🤗❤️ Pfft maybe the tons of funding going into Covid research will help. They never put much money into Fibromyalgia, CFS/ME, or lyme disease. They can ignore 300k new lyme infections a year in the US, but can they ignore 1/3 of Covid survivors?
@@shelza33 No one recovers from fibromyalgia!
Warriors? They can't hardly walk, let alone fight, they are brave though.
Please eat plant based
I think post viral syndromes are much more common than anyone could imagine and they cause lots of long standing illnesses after simply catching a common virus such as the flu. So I’m very glad more research is being done now.
If your trying to imply that the flu is as bad as covid when it comes to post viral syndrome then you’re very wrong.
@@MegaTp4 agreed
The virus tricks the immune system into attacking your body well after the virus has gone. Causing systemic inflammation. Each individual will have different symptoms and different pains because everyone's DNA is different. If you get an autoimmune disease you have it for life. There is no cure. There is no going back. Only anti inflammatory medicine will reduce symptoms.
@@andrewcottle5372 great so now I have this permanently. Fantastic.
@@andrewcottle5372 Calm down. Andrew. Be more optimistic there. I have long covid but not giving in to your negative BS.
Reminds me of post polio syndrome, those who were mildly affected were the ones who in the process of aging got severe symptoms of the syndrome
I have PPS, diagnosed but still not accepted or understood by GPs. I feel for those with long covid, at least they are getting help.
That is so scary...
The key to dealing with long haulers is pacing myself, knowing there are limits to physical exertion, there are foods to be avoided, to rest when it's needed, and to stay abreast of research and solutions.
Covid isn’t the first virus to cause this. Hopefully this syndrome gets more attention for other sufferers and research into this goes forward. Many live with chronic post-treatment disabilities from different diseases. Covid is bringing this to the fore fir everybody.
I had similar symptoms after the H1N1 flu. I’ve been told I have fibromyalgia
I really really hope so. I have lyme disease that was discovered 14 years too late for effective treatment, and am now dealing with long Covid. The thing that Covid-19 has that these other diseases don't currently is funding for research, I hope they use it.
I feel so much for the women who could not do the walk down the hall without almost falling.
Love how the doctors are always so lovely on camera but in real life they barely treat you with any humanity or compassion..if you get an appointment and speak to an actual human that is.
Do you mean at UCH?
Couldn't agree more.
Yes!
This reminds me so much of what it was like when I first had ME / CFS, just without the loss of smell. Those first few years were absolute agony on bad days, but to others I looked perfectly normal. It took more than a decade before I had any improvement.
I have CFS for most of my life.
What's that
Can you tell us more about how you recovered? I think it would be useful for people with covid and people with ME/cfs
For which the jib jab that they keep pushing wont help those with C.F.S/M.E/M.C.S:-(
@@craig543 For me, I think the biggest thing in the beginning was budgeting my physical and mental resources for things I enjoyed or wanted to do, but planning the days leading up to conserve those resources, along with days afterwards for recovery. It takes time to work out what’s going to be more draining, but I think it helped me to know I could still do things if I planned in advance, rather than trying to live each day with the sense I had no control of my life.
I am utterly perplexed and well as angered as to why it’s taken a pandemic for medical staff to recognise that ME/CFS is a genuine medical condition. People with ME/CFS have been silenced,ignored and dismissed. All of these things have lead to a lack of funding for the condition and thus a lack of understanding.
The new research for me/CFS is promising yet beyond infuriating. The funding
just hasn’t been there for medical staff to fully grasp and understand ME/CFS. Patients gave therefore been denied help and been miss understood by medical staff for years and years.
I hope that the pandemic funding will have a more positive outcome for those with l ME/CFS and a greater understanding from medical staff and others. I’m hoping this pandemic will allow medical staff to have more education about ME/CFS.
Once you get to that point though, they still say, sorry there's no treatment, we can just try to make you a bit more comfortable, and the cycle repeats. More pills that don't work, more tests, more specialists, more denial.
@@jessicah3450 it’s so true and nothing seems to work. So frustrating
🙏 amen 💙
@@lydiep6814 How are you now?? Are you still struggling with your symptoms or improve??
@@rafeezkhan8996 thank you for your message and concern. I have mixed days but msotly better at managing my symptoms
This made me cry in recognition of my own issues.
That woman's conditon is giving me goose bumps all over. Long Covid fast tracks to a most unhappy life.
That is one of the best statements to say what COVID is. Miserable. Especially when you've had it for weeks or months.
I know exactly how this woman feels. I had Covid-19 alpha in February 2020. Sick for three weeks. Have never recovered my pre illness strength. I experience shortness of breath with minimal exertion. I am not the same person. My previous back pain has magnified as well as left chest discomfort at times.
I'm so sorry for what you're going through. 💔 I just recently "recovered" from a covid infection after being sick for 2 weeks and am still experiencing extreme fatigue as well. I'm only 25 but feel like I'm trapped in an 80 year old's body. I hope you've managed to find a doctor and support system that takes you seriously.
I wish you and me a permanent recovery and for every patient, I wanted to ask you if you had pain in the knee, thigh and foot or swelling in the leg, or anyone who has gone through that because I have been suffering since my injury, what are your symptoms
@@AetherealGirl I wish you and me a permanent recovery and for every patient, I wanted to ask you if you had pain in the knee, thigh and foot or swelling in the leg, or anyone who has gone through that because I have been suffering since my injury, what are your symptoms
Have you had any change since your comment 5 months ago. I wish you a complete recovery. I have COVID syndrome, caught it 6 weeks ago, still off sick from work until I'm better.
how do you feel right now? better?
That’s how I feel. I had Covid in October, which lasted for 3 and a half weeks. Then, in the beginning of December I got Covid, again. As soon I start thinking I am feeling better, and all of sudden I feel weak and sinus comes back. Never ending Covid.
When people say it’s just a cold, I beg to differ.
Im so sick of hearing that!!! It killed my brother in law, 7 of my friends family. I got it last May:was bad sick for 4 days, but took SEVEN weeks just to get unfoggy, and back to the gym. Felt like Mono.
I hope you feel better soon. Try and eat foods Not packaged and lots of raw veggies.
Does covid affect your joints and sleep I first had in march 2020 it messed me up I took me a long to to recover
So I had a painful dodgy cold since September I did not get a test until December so I tested positive for covid 19
I’m in bed since September I have not been out if I go out it’s for a short walk or drive
Because I’m not well
I think it’s affected my mobility and muscles
@@Missliaz I had a lot of joint pain when I was sick.
Reduce inflammation. Eat a Keto type diet.
@@Missliaz Yes, it definitely affected my joints. I became more susceptible to cold. I dress now as if I am in Alaska.
My doctor prescribed Dexamethasone due to severe sinus and earache. It’s a corticosteroid used in a wide range of conditions for its anti-inflammatory effects. I only took for two days; once a day. It helped me. I don’t take medications unless it is absolutely necessary. This time I had to, as I take care of my 92 year old mother and a dog. However, joints and muscles ache very day.
I wish you full recovery very soon.
@@tzytzy7171 hope you recover and stay safe happy New Years 🥰🥰🥰🥰🥰
We're too healthy to die but too sick to live.
Exactly. I just don't understand why we have to go through this daily
I’m just wondering why I don’t hear that the United States has something similar to this? Ever since I had Covid-19, I always have this cough that comes back every time the temperature changes fro warm to chilly or cold. My doctor thinks it’s allergies but before Covid I never suffer allergies. Thank you for this video.
UT Southwestern in Dallas does, but it's full. Pretty sure Mayo Clinic and Johns Hopkins would too. Look up the teaching and research hospitals. The ones that train student doctors. I'm getting some help through my pulmonologist and ENT just because they are seeing it in SO MANY OF THEIR COVID SURVIVORS, they simply can't deny it anymore.
Same for me. A host of other symptoms come and go, but the worst is my new asthma. I have chronic chest and lung pain
I never had allergies till I had covid. 82 yr old. No allergies for 80 years then covid in 2020
Please eat plant based.
I've suffered from chronic fatigue syndrome for years and there was never any help or support now maybe because of COVID Drs will start seriously. As far as I can see CFS and long COVID are exactly the same. It made me cry when I saw the lady say how she looked fine on the outside but inside she felt like she was falling apart. I remember one Dr telling me that I was "just a lonely young woman wanting some attention".
I did therapy for CFS and it worked. You might not want to hear this or you may already know this, but CFS is a psychosomatic illness, it is caused by subconscious stress and fear of the illness itself which keeps your sympathetic nervous system in a constant state of fight or flight, this stress on your nervous system causes a range of symptoms, for some its fatigue for others pain, for me it was EVERYTHING, pain, dizziness, blurred vision for almost 2 years. I did therapy which explained to me that my thoughts and focus on the illness and symptoms themselves and doing constant CHECKING in on my body was perpetuating my illness. I didn't believe it at first as I was so physically ill, it took me a year to actually understand it.
Essentially when you are happy, focusing on other things, doing things you want to do, I mean truly focusing on what you want, completely unrelated to the sense that you have an illness and not focused on your body, do you notice that the symptoms are reduced? I think the answer will be yes for most of you. If you stop believing you are sick, because you actually are not sick, there is nothing quantifiably wrong with your body as doctors have probably told you, that's why this illness always gets overlooked by doctors, its a pyscological illness which manifests through your sympathetic nervous system and body.
I learnt that through the practice of not checking in on my illness, not thinking about how my body felt and staying focused on what I want to do day to day (what I want to do being completely detached from a sense that I am ill) my nervous system slowly started to settle, it takes time and there are relapses, but it gets easier as you start to train your brain to relearn what if feels like to be in the state of flow and calm in your thinking, which allows your nervous system to settle again.
@@betadine497 No, ME/CFS is not psychosomatic. Do you even know what ME stands for?
@@infinitybauer1187 Myalgic encephalomyelitis. Have you got any evidence that can rebuke my point? or any evidence that ME/CFS is a problem that stems from tissue damage, damage to your nervous system and only exists in the body as you say? Are you someone that has overcome ME/CFS like me and MANY other people I know?
Why do you think it something that is so hard to treat and is so overlooked. We can cure cancer but we can't cure this? It's because most patients and doctors are looking in the wrong places for the solution. The solution is in the MIND FIRST and then the body follows. It's about settling your sympathetic nervous system, through the understanding of your thinking patterns and triggers to avoid unsettling it again. The symptoms of ME/CFS are essentially like a mirage, that's why when you get checked at the doctor there is nothing physically wrong with you, the doctors are not lying about this. Your sympathetic nervous system is giving you the SENSATION of pain, muscle weakness, tight chest, brain fog and all kinds of symptoms, but there isn't actual tissue damage.
It was very difficult for me to accept and understand these ideas when I first started doing therapy, because part of the illness itself is the BELIEF that there is something seriously wrong with your body. It took me about a year and a half of learning and understanding about my mind and its connection to the body before I got better.
The reason so many people got it after COVID is because people were so paranoid, fearful and hyperaware of their body and illness during the pandemic. People were constantly asking themselves am I ok, is my body ok? That is a perfect trigger for the beginning of the ME/CFS experience. You pick up on a little pain, or a little sensation and your mind amplifies it and your nervous system reacts and you get stuck in a cycle of pain and thoughts, and you begin to say no Im not ok, I feel this, I feel that etc. etc. IM SPEAKING FROM EXPERIENCE! I had really extreme symptoms
@@betadine497 Actually, the burden of proof is on you since you were the one who made the claim about ME being psychosomatic. It’s on you to prove your claim, not on me to disprove it. I’m not gonna trust some random person on the internet going against the general medical consensus. Right now there are many scientific theories as to the mechanisms behind ME/CFS, none of which include psychosomatic illness.
I would have switched doctor’s immediately!
the jibber jabbers done messed y’all up.
SADS but true.
I have been suffering from long covid for nearly 4 months now (am 18 and before was extremely fit and healthy - wasn't hospitalised fortunately but have been off work and school for a long time now). The problem is that many areas like mine in Kent - there are no long covid clinics actually up and running :(
I am really glad those people get help through and can only hope it may be me one day getting support from specialists
I can definately relate to the concept of looking fine but feeling awful and in so much pain! We are so lucky we have a nhs :)
Try ivermectin and stay off sugary drinks.....
It will take time it took me 1 year and 6 months to feels 75% better best thing to do is rest don't exrt yourself I'm one of the oldest covid patients s ever with long covid you will feel fine.
Anyone interested in getting in contact with me? I will provide my mobile number and have a chat about what to do and stay in contact to see progress
@@Dave_Tompkins hi do you mean about long covid?
@@danielhampton8344 yes, so well past the initial infection
My heart is broken listening to that poor man 😭😭
It is great that the UK is handling this much better than the US is at this stage. I had covid pretty badly in April, 2020, before much was known. I should have gone to the hospital, but stubbornly, I didn't. We didn't know then how fast you could go downhill and die. My kids were worried though, and asked everyday if they could take me. I was sick nearly a month. But I was diagnosed with long covid a few months later. It eventually caused me to retire very early. There is no disability for this in the US. They are still denying that it is anything at all. So I have spent the better part of this year with specialists. I have heart, lung, liver, digestive damage, and my brain doesn't work right anymore. And the exhaustion? so debilitating. Then I passed out and injured my spine when I hit furniture on the way down. Surgery, they say, or end up like Christopher Reeve (superman). But our healthcare system is so bad, insurance is so far refusing the procedure. Great, right? In the meantime, I note I am losing feeling in my legs, arms, hands, feet, and back. It is a full time job fighting for insurance. This will bankrupt me, and my savings are dwindling quickly. I have worked since I was 5, so no, this is not a lazy person. The US needs to change. The frustrating part about long covid is that it affects people in so many different ways. And it is destroying so many lives, there is no doubt it will contribute to a downturn in all countries' economies. This is devastation.
I’m so sorry, espy ❤
@@_Bianca Thank you, Bianca.
You have a long bout of bed rest? 2 weeks or more?
Long Covid clinics are such a waste of time. I've been, and no real help was offered.
Adverse reactions to the medical experiment. If you've taken the jab, it's a major factor.
What long COVID clinics?
I'm a 11 months post ICU COVID19 patient who is still having multiple issues after my stay in ICU, and I haven't received any real follow up since leaving the ICU. My GP surgery and hospital has no interest in my situation at all.
Yeah, they are still overwhelmed with patients. I got Covid in August, and couldn't even get into a pulmonologist until December. All they said was sorry. I just had my first follow up with my GP now here in May. I brought a whole list of referrals that I need, a notes to talk about, refills I need, wouldn't let her leave until I mentioned everything. It helps if a family member can go with you to your appointment. I know health workers are overwhelmed, but in the meantime I am still too sick to work, so I need help. My pulmonologist and ENT are somewhat helpful, only because now they have so many patients who survived Covid, they can't deny these long haul symptoms anymore. Look up training hospitals, like where medical students go, or research hospitals, or clinical trial websites. But also be persistent and stay on these doctors, you have to be your own advocate sometimes. I'm in the US, but usually once you're out of the hospital, your case is handled by your primary care physician, if they don't help you need to get referrals to specialists who maybe will.
How you doin now? Any better?
I'm asking a question where all these people vaccinated and and given booster of the vaccine??? I haven't had the flu in 30 years I didn't take the vaccine I never will my immune system will stay pure and these kind of things are happening all over the world right now people like this just saying
long covid is a torture, it makes me feel helpless when few doctors act like they don't want to know me and makes me feel like its only in my head and i know that i feel a strange kind of fatigue, weakness and dizziness and i feel it day by day, few steps like 2 to 3 steps i feel like im going to die.
As a physical therapist it's cool to see they're doing the same tests we are in the US!
I wonder how many of these poor people are actually vaccine damaged. A nephew has an autoimmune disorder since his vaccination and has been recorded by GP.
They willing to take an experimental injection, but fear horse dewormers. It makes no sense at all.
I got covid, it lasted a week. Worst "cold" I ever had. After two weeks I was fit enough and returned to work and i shook from exhaustion just walking from my car into the company. It took me six months to feel normal again.
I wasnt jabbed, had covid, was sick five weeks. Ive never been strong enough to walk without a walker. Its been two years.
@@queenbee3647 so sorry to hear that. Hope you fully recover soon! I was vaccinated twice before I got covid. Guess that had a positive impact.
how do you feel right now? better?
@@maxim__prokhorov yes, better. But I had waaaaay more energy before, now I'm tired every day. I also get sick a lot easier. Used to get one cold every 2-3 years, now I had the third infection in four months 😕
@@cucublueberry8078 glad you better. We need time to heal. Take it easy
Why is not one dr or person speaking on the carrot juice given to millions? Adverse side effects are the clue here. Truth must be spoken.
Why aren't they considering horse paste? I don't hear any first hand account of issues with it?
Debberg no one is speaking on the carrot juice because it is safe and effective
I had covid in 2021 and it changed my life. It was in June. Here we are in 2022 and I still can't taste 98% of what I eat and drink and can only smell about 5 or 6 things. I have serious depression and am sick with a variety of things every day.. the list is long.
Bless these people 🙏
So sorry to hear you are suffering so much .
I am like this. I smell one thing though very strongly. Too strongly. It smells like dirty ashtray and I only know one smoker anymore and I'm only around him every so often. Also super fatigued some days I can barely stay awake.
@@Jenny-kg7zb I’m so sorry 😞
Same here. If I actually end up smelling anything it smells like smoke. 😣
I lost my smell and taste 4 years ago. Complete loss. It really took a toll on my mental health, for me antidepressants and therapy have helped me deal with this loss that is very very tragic. ❤ I hope you find a way to cope as I have!
@@Outrageous86 GAPS diet. Hoping that healing the gut will heal the rest of the body. Pretty sure this may be the answer! 🙌🏻❤️
Could it be the shots doing this?
long covid or reaction to the vaccine hmmmmmm????
This
Any buddy not jabbed had long covid can't find no one
Why are they calling vaccine injuries long Covid?
I have long covid ,and it's been a year. Most of my severe symptoms have gone.when I watch this I can put myself in there shoes. It's terrifying. The mental part was overwhelming. Luckily I feel better ,but still have some fatigue on and off. Smell is not normal . I hope we all fully recover.
Hello, do you have pain in the leg, knee and thigh? I have pain in the left area only, and how long did your thigh pain last?
@@sehamsaud786 no ,but my lower back ached for months . It is better now. I see a lot of people have aching joints.
I feel bad for these people but also please think of those of us with rare multiple conditions who have had these symptoms from other conditions our whole lives. Covid has brought awareness to these conditions that some of us have lived with for years, and no one cared about it till now. POTS, ME/CFS. Covid needs to be taken seriously but please please please do not take your health for granted, some of us never get the chance to be healthy, even when we have not had covid. I have been in my house for over a year as I am very high risk. I also can't get vaccinated due to a very rare condition called USAID/TRAPS. Stay safe.
USAID/TRAPS?
@@nabilhaidar3268 It is a very rare auto- inflammatory/periodic fever condition, about 1 in 1 million.
@@kristinwallace6551 Wow, I hope you recover soon.
@@nabilhaidar3268 Thank you!
I'm sorry but this video ist about long covid and not about other health diseases 💁♀️
I'm an ex-physical training instructor in the army and ive been getting pins and needles in my hands, arms and feet. Chest pain and heart palpatations, brain fog, dizziness, headaches and overly sensitive hearing and the worst of all cronic fatigue and depression. All these symptoms started after i contracted covid about a year ago and its safe to say its pretty much ruined my life. I still dont understand why theres no real treatment for this when so many people are affected.
Mine is overly sensitive smell I can smell for seems like miles for real awful
I have the headaches not as bad now brain fog dizziness chronic fatigue worst and seems to be for most all of us I have become sensitive to smells I cannot tolerate strong perfume body shampoo etc I forget things then remember second after this is getting little better
I have lost a lot of my hair in bunches for about ten days but nurse said a lot are having that same issue with hair loss
I have all of these same symptoms. The overly sensitive hearing is really intense. But the worst thing is the fatigue & depression
I hope for a breakthrough soon and for other sufferers of unseen diseases. I was fit and full of life before this. It has left me alone and in an awful position. It feels like just existing.
So sorry- I am 7 weeks post Covid and feel horrible with debilitating fatigue. How about you are you better?
"But there is no Covid..." That movie should be show to all of those vacation sceptic people
I would be interested in knowing how many of you folks had the "vaccine".
My heart goes out to that woman. I have crps and i look normal but have terrible pain. It comes with fatigue and all doctors dont know really what to do with it. So when you meet people in bad form sometimes there dealing with pain that cant be seen both in the body and soul.
CFS (Chronic Fatigue Syndrome) surfers have most of these systems 24 days a day 7 days week and in some cases most of their lives.
Agreed! I was interested in the longhaulers' stories because I am recovered from CFS 15 yrs ago.
@@judymiller5154 how did you recover ?
@@judymiller5154 I'd like to know how you recovered. Is it something to do with replacing nutrients and avoiding sugar?
@@heronsdoor4658 how did u recover pls?
How did you recover please give us some details of what you did.
I had my 1 year covid anniversary last week. Still ongoing tests, feel short of breath with minimal exertion but my chest rays and CTPA was clear. I've had a holter monitor to monitor my fast heart rate, waiting more pulmonary tests. I was overweight but no health issues before covid. I struggle with working now, and worst thing is that my anxiety is so bad now because I have so many unanswered questions. I fully think that rushing back to work before I was ready has made these issues happen. Rest up if you can ❤💙💜
The virus and vaccines can potentially mess up ones nervous system
Iam exactly same as you but instead the fast heart rate ,,I got Ectopic heart beats which is horrible feeling ,,,never had any issues with my heart before ...while I had covid symptoms in March 2020 I developed this horrendous Ectopic beats,, 15 months down the line it got so much less and some days I don't have it at all but still not cleared completely
@Dermot Fitzpatrick How do you know all of this? Thank you for posting this information. Is Betaine HCL and pepsin something you have to be prescribed or can you buy it at a local pharmacy/supplement store?
I've heard that H1 and H2 blockers can help people with long covid. One of the H blockers I have is in the form of a acid reducer. Could this be bad? I probably shouldnt be taking an acid reducer if I already do not have enough stomach acid.
Thanks for your time and info! It's much appreciated
Reading this was like reading my own symptoms and
running around having test after test..!
All My symptoms feel like I’m having a panic attack,
one person even told me maybe I should see a psychiatrist..
Blessings and prayers to you and all who are suffering in any way…
@@andrechiakka6166 feel the exact same with the panic attacks
This is so important for all of us to know. It’s super frustrating when people don’t take the virus seriously and even try to make fun of others who do. This person laughed at me when I talked about long COVID and how serious it was. It was upsetting but also I kind of felt sorry for her not being informed… though it seemed like her choice not being serious about it. I hope everyone in this video will get better as soon as possible. Also, mad respect for the nurses and doctors🙏
Well I guess she will understand when she gets Covid and has long- Covid symptoms
@@beckymunro2071 it’s different for everyone
We had it no more than a week and had zero lingering symptoms. We did take ivermectin and other protocols though.
The vaccinations ruined my already compromised health.
I never got jabbed. I did have a mild case of covid. The only symptoms I had was a slight loss of smell and taste. Year later I developed severe peripheral neuropathy no doctor can explain.
Foot drop, loss of knee jerk reflex...swelling and pain in feet and lower legs. Loss of balance...
If anyone has an idea how to help, let me know. Thousands of example of this misery all over the internet and not a single suggestion that works on how to help it or fix it. This is supposedly the country with most advanced healthcare... I think not.
lie.
I was vaccinated boosted and careful up until I was last boosted. I thought I was safe to go back to a normal life. I started seeing people again. In less then 2 months after I was boosted I contracted COVID. My family all got covid same time including 6 family members who live outside home we all felt like a cold. It wasn’t that bad actually. Husband and daughter had cough and daughter had throat & bad plugged up nose. I had major headache and light body aches with slight runny nose. Then got better & later got covid again about 4 weeks later. Got better then went Disneyland following month and believe we got Covid again. This time it’s hitting me hardest.
Fast forward 4 months later my heart is skipping and acting weird. I’m fatigued, blurry eyes, and feel exhausted. I normally climb stairs at my Drs office because I don’t like elevators (crowded with germs and people) so I opt for stairs everywhere I go and niw for first time I couldn’t climb 4 flights. I had to stop on each floor winded, and like I was going to pass out. I always climbed stairs without any issues. My legs would get tired but never my lungs . I was almost hyper ventilating like I ran miles. Now something is wrong with my heart. It’s not anxiety. I have anxiety and know the difference. I also now have vertigo and just dizziness, I guess I’m a long hauler. . My husband and daughter and rest of my family who lives outside my home all Vaccinated and also had covid 2 or more times without any issues. I’m the only one I know who is suffering long haul covid. My ekg shows abnormal heart rhythm and now getting holter monitor and more test done to figure out why I’m suffering with after covid.
For anyone unsure please be careful I’m hoping my story with anyone suffering same issues, you’re not alone.
I’m not against vaccine but if covid affects the heart, then the vaccine might affect some people’s heart too. I don’t know if I would have got vaccinated knowing I would still be this sick. I believe studies were done and still being done, that’s why fda is not approving for under age kids. Because of concern. Just be careful and wear a mask if around large groups. I thought I was safe and stopped wearing my mask and got covid 3 times in a row. They say with new Omicron you can catch new variant every 3 weeks. Please do research not just one sided because you don’t want to believe.
@ Vanity Girl
So sorry you’re going through this. How are you today? I’m 7 weeks post Covid and have debilitating fatigue. Acute infection was a breeze but left with this fatigue I can’t shake off. And I’m unvaccinated;(
how do you feel right now? better?
Did you have any bed rest? Long times of resting from the Covid? 1 week or more?
Same with me, out all 5 members of my family, I'm the only one with long covid
I started getting leg fatigue pains about 1 and a half month after recovering from Delta Covid. Every evening my legs would pain. Then it went away after few months on its on. Now, since about 2-3 weeks (2 yrs after Covid) I noticed muscle weakness. It was almost overnight. I couldn't bend in the shower to wash my hair, had to sit down. My back gets tired from bending forward while brushing me teeth. My eyelids feel heavy at night (never happened before). My legs pain by the evening. Wiping the kitchen counter is a task. Picking up my daughter feels heavier.
This is definitely Covid complication. I pray for mine and everyone's recovery from this virus.
Thank you for sharing this. I think this is going to help many people. I learned a lot from this.
We need these clinics for vaccine damage now.
I can totally relate to this lady, I struggle to breath and the fatigue is terrible. The first time I felt these symptoms was after the second vaccine, I was bedridden for a month. Then gradually over time breathing seemed affected along with chronic fatigue longterm. I’m 54 but feel 84, wish you all a speedy recovery
so you don't know if that 's long covid or post vaccine effect...
Not being able to breath exhausts you physically and emotionally, I’m right there with you. You look normal but are far from it.
Yes all vaxinated with the gene therapy keep believing in the medical system and take your drugs.healthy old age will escape you.make sure you give it to your children along with their other 90 odd vaccine's.
@@TheJensanna oh dear. My mum is an anti vaxxer. So I don't like hearing this 😬
You never should have taken the jab
shame on anyone who underplays covid and says it's not real.
hahahahahahaha nobody says it's not real. What they say is that with a 99.7% survival rate it doesn't require us to shrink wrap and muzzle our children so they can receive an education, bankrupt all small businesses, bars, restaurants, airlines, pubs, theatres, hotels, essentially decimate the economy, plunge the nation into more debt than we had post WW2, cause a 200%+ spike in suicide, slowly erode your human rights and cause a humanitarian crises that according to the UN will plunge 250 MILLION worldwide into severe poverty and possible starvation. Sounds logical, yeh?
Shame on anyone unable to see the true cost of all this, and unable to see behind the distractions.
@@rafa17martinriggs there's actually a lot of people who don't believe it's real, i'm not saying you're one but they do exist. it's so funny how angry and defensive you got from me stating that people underplay it. no one said you're wrong but seriously, get a grip.
@@aq7969 Sorry darling you'll have to forgive my defensive attitude. Just ignore literally everything I've said and carry on yeh
@@rafa17martinriggs you dont have to apologise. These people will do anything to get us in line including making these kind of videos. You just have to look at whos broadcasting. The Gaurdian has proven to be one sided on may toppics. Sorry for my bad english. Iam from NL. SHAME ON GAUDIAN TO USE THESE PEOPLE AS PUPPETS TO PUSH A NARRATIVE. QA was not only saying People who say Covid does not exist, she was also pointing and shaming people who down play Covid. Thats you and me. And before you go and attack me, i have the same if not worse symptoms as these people have.
welcome to the world of fibromyalgia, some of us have been dealing with this for years with little sympathy or understanding from the medical profession.
I agree. Covid is getting all the Glory for everything these days, nothing else seems to count or matter anymore!!!
I know so many people with ME/post viral fatigue, they have been told for years that it's "just in their heads". SO Unfair.
They might have finally pinned down the cause of fibromyalgia a research group identified specific antibodies in people suffering from the condition. Then they injected the mice with said antibodies and the mice begun to display the symptoms of the disease . They suspect the specific antibodies are making nerves for detecting pain super sensitive. This also fits as women are more prone to other immunological disorders and fibro is far more prevalent in woman.
Agree
Sorry for your struggles but not very empathetic. Is that the difference between fibro and other conditions with similar symptoms?
Is it long COVID or are they vaccine injured?
... or is it the sum of both. I know some people, their immune system is overloaded of infection and two or more mrna vaccines. Very tragic. 😢
I had long haul symptoms for almost 2 years after being hospitalized with Covid. I felt like I was living in someone else’s body. I still have memory and sleep quality issues but feel more like myself now than before.
Jabbed?
how do you feel right now? better?
@@joannereadman2735that has nothing to do with anything.
I'm 43 year old female and suffering with long Covid. It's scary!! I'm having panic attacks all the time now. Shortness of breath just walking around and dizzy spells. I'm having heart palpitations all the time. I thought I was going to have a heart attack. I'm having joint pain. I had a episode where I couldn't use my hand. I wasn't in the hospital but it's been a rocky road.
Did you get vaccinated?
I wish you and me a permanent recovery and for every patient, I wanted to ask you if you had pain in the knee, thigh and foot or swelling in the leg, or anyone who has gone through that because I have been suffering since my injury, what are your symptoms
@@virtualasylum7013 That is the REAL question, isn't it.
@@charliepiston3169 i'm curious too. was she vaccinated?
@@virtualasylum7013 If they did, they should see an expert who at least has the decency to acknowledge (and it has been mentioned by prominent doctors) that LC actually is in practicality indistinguishable from some side-effects of the said procedure. At least they might get on the road to some recovery once the probable cause is taken into account. Of course, it is going to cost quite a bit of money in most cases to seek private care. Experimental procedures carry unknown risks, which is why they should be considered with utmost caution.
It almost seems that the Long Covid is worst than death for the survivors. Just tragic, have a chronic illness that prevents you from working and even just getting through life, day by day.
Long covid can take your best friend away when they become too sick to even communicate but yet their body is at least still metabolizing, it is a living death, not unlike a coma.
This is really disturbing. 😟
At least the GPs realise post viral syndromes exist. Normally post glandular fever I am treated as a neurotic layabout.
Glandular fever knocked me out for 6 month and effects lasted for years!
I have lyme disease, and when I bring it up to doctors, they act like I am talking about some illegal activity. Like I was on a Zoom call with my GP and brought it up again, and she got up and closed her doors, and started whispering to me.
@@jessicah3450 It's because doctors, for the most part, haven't been trained in the diagnosis and treatment of Lyme disease, and the medical establishment is yet to catch up. So, there's no established protocol, and doctors who do believe in long-term Lyme disease are treating it "under the table" as it were. Ridiculous, considering how much more common it's becoming.
'I look normal, but [ I feel like ] my body is breaking down'.. important detail.
What do you mean by this? That it isnt breaking down?
@@Volluta you might look ok in the outside, but you might be crumbling inside
If your nervous system isn't working correctly, it's irrelevant how physically healthy you are. You cannot function no matter how hard you try.
in many cases its very possible that the immune system breakdown is driven by loneliness and despair.
@@elingrome5853 she really looked like she was suffering panic attacks, too. It's as though she's fearful of doing any kind of exercise incase something should happen. She's also a little thin and probably could do with high nutrition. I don't know why they got her to walk rapidly with a mask on. That was a silly thing to do, especially if she is panicking and finding it difficult to breathe.
Please help me. I need this clinic everyone here doesn't believe in nervous system issues from Covid. I'm Miserable
I would be interested to know the stats for long Covid…vax’d vs unvax’d. 🤔
Wouldn't it just!
Unvaccinated with long covid, or vaccinated with long covid?
My Dr's still won't listen to me nor will they see me because I'm only 31 and said I'm imagining it.
@Jonathan Guy that is unkind
yep. i’m 20 and had covid 8 months ago and have been having dizziness, heat sensitivity like my body can’t handle the heat and sends me into dizzy spells and hot flashes, and breathing problems, but i was just told by a doctor that it’s just anxiety and i’m just anxious because i see on the news how many people are dying from covid so it makes me nervous? my symptoms started after having covid last september, wasn’t having any of the symptoms i have now, but apparently to doctors there is no correlation and i’m just imagining it.
@@LcNewman May I recommend tapping therapy. It helps me when I have flairs with long covid and it may actually help to bring you some peace.
I am sorry that your GP is being dismissive it is never nice when the people we put our faith into for our health don't actually listen. Sending love and well wishes.
Keep trying, i had to see 3 GP before I am finally getting tests done
along time ago in 2009 a British doctor let everyone go home sick I'm like what happened ? this was in central California where I'm from .
Is it from the vaccine or Covid. Has that been investigated
I have the same symptoms and the doctors look at me like I’m crazy
Same a doctor told me I should get mental help because I asked for help dealing with long haul covid . And he said it doesn’t exists 🤦🏻♀️ he made me want to give up on life . I’ve been dealing with long haul covid for almost 9months . Worse time of my life .
how do you feel right now? better?
Long Covid or effects of the vaccine??
Long-COVID has been an issue since before the vaccine was ever tested or released. Post-viral illnesses in general are not a new thing. There are even folks who are still having problems forms the SARS outbreak in the early 2000s.
I'm struggling with Long Covid way before the vaccines were developed.
I've never heard of anyone having any issue with horse paste?
Long covid sounds much the same as CFS. I got CFS in my twenties and took many years to recover. Even now in my sixties I can still crash but really I am blessed to have recovered from not being able to walk far, needing to sleep five hours a day and feeling as though I had the flu. Took time and rest but I did recover.
May I check if anyone here who has suffered from long-COVID, in particular chronic fatigue and brain fog, has received the Pfizer vaccine? Have your long-COVID symptoms gone away/ improved after the jab? Thanks
I got my second dose of the Pfizer vaccine on May 1st. I had shortness of breath, chest pain fatigue for 3 days straight. Brain fog was very mild. My symptoms greatly improved after a week. As of today I have not had any further side effects
🤣🤣🤣
Best to rule out jab injury in some of these patients before labeling it long covid.
How many of these poor people were jabbed ?
My heart goes out to all of you ❤️
All I have to say is 😳😳😳😳 I didn't take Covid seriously until now. Today I don't ever want to leave my house again...this thing is terrible 😞
Says a lot about you that you’ve just taken the illness serious after nearly a year and a half and over 3million deaths worldwide.
@@user-ci4bh6cc5b and it continues... unfortunately because of non brain cell people 😤
@@user-ci4bh6cc5b - Its all fun and games until those limb-crushing aches and pains take over your body, this virus will keep you bed-bound for 2 weeks in absolute agony, hopefully you wont have to call 999 due to inability to breathe.
@@anonanon5144
It has been 6 months for me so far and counting.
how do you feel right now? better?
Thank you for the research! Thank you for listening to us! We are suffering in silence because there’s nothing to base our symptoms on. Keep on keeping on🙌🏼
Question. Did you have long COVID before getting the jab? Asking for a friend
Covid affects the Nerves ☝️
Is anyone going to mention that this could be the affects of vax injured???
There are many people who got long COVID well before the vaccine was released. There are also folks who chose not the vaccine and developed long-COVID. These issues have been reported since the first wave of the pandemic but patients were not being heard.
@@Willow.9765 it didn't have to be this bad if they didn't ban HCQ and Ivermectin.
@@ex8280 Were you educated with a banana and an inner tube?
@@Spanglefangle Even a person who's been educated with a banana and an inner tube, knows that an experimental jab isn't safe. How can you not know this?
@@ex8280 Because I was educated properly.
This is how chronic pain patients have felt for decades, then in 2016 in America they take away the one thing that gives us a small quality of life, our pain meds???
What are the stats re fibromyalgia long covid and who had the vaccine?
That I do not know but I do know my Dad got both fibromyalgia and ME/CFS in 1983 decades before Covid 19 even existed and those diseases got me in 2005: some research in the early 2010s indicated there may be a genetic factor in the thing.
I can relate. Is there any hospitals in Sacramento, CA that is doing that? It's almost been a year and I still feel horrible. I thought I was alone.
No you’re definitely not alone…
Not that I know of, but I did find a doctor in Yuba City.
Contact me. I would to ask you some questions. I love in Sacramento too!
Are you better? Prayers!
What a contrast with the profit motivated U.S. healthcare where doctors barely see the human being. This U.S. system is devastating for human life.
its same everywhere currently, some might even dismiss the patient's symptoms and send to a psychiatrist instead
Fatigue hits me every single morning. I feel devastated,? My heart beats fast. After covid nothing is the same
Same here it’s horrible
@@macromanny after covid my body vitamins got messed up. I recently discovered blood test I was becoming deficient in B12 and iron. Didn't run any test but I doubted I was deficient in magnesium ( which is no 1 important for the heart) as soon as I got magnesium ( byglycinate or glycinate) my palpitations stopped. I am not 100% better but magnesium helped me within minutes.
@Chris Longden it's a personal choice based on facts. I got covid twice and the second time was horrible. Still, I refuse getting vaccinated.
@Chris Longden sadly that's not true, I am 3x vaccinated, I am suffering from long covid, they said its 50/50 if you're vaccinated, I do not feel like myself, I don't even have a inner monolonge anymore.
How are you now ? Same here. Extreme fatigue.
What's been done separating couples because one is sick and dying is wrong...a family member who was married for 60 yrs died alone in hospital waving thru a window at his wife to come in...dispicable
That is so tragic. You’re absolutely right, it’s sickening how they’ve kept people and loved ones apart. I hope your family member is getting all the support they need
thank you for this thoughtful film
Should not of taking that bio shot
Did you have the vaccines?
My mum have it, so many painful days, 3 years now. Still dealing with it.