I just want to say thank you. When I was in my early 20's I struggled with epilepsy. After many doctors and medications I somehow became seizure free for 10yrs and was able to stop taking medication. About 8 months ago the seizures started again. I was devastated. It seemed that in the course of 10yrs nothing had changed as far as understanding, curing or detecting. The seizures I experience now come on much quicker and more suddenly than before. I'm only recently learning to accept my epilepsy. I'm learning how to let go of the fear. The creation of this AI smartwatch has given me hope. The knowledge that people like you are looking for ways to improve our lives (not just people with epilepsy but our loved ones as well) and possibly save them.... words cannot describe the feeling.. I can only say thank you.
There might actually be more hope. There’s this quantum computer that they’re making that has ridiculous and I mean ridiculous capacity to understand impossibilities like reality being in 2 different states. Something of this magnitude can easily create cures to cancer, ALL mental illnesses, etc. But of course...it’s a double edge sword. Someone can potentially find a way to mass produce nuclear weapons with it.
We got this watch for my older mom who lives in another state and it alerts me each time it goes off. So far its been a false alarm each time because she was pushing a grocery cart over a bumpy parking lot or brushing her teeth with an electric toothbrush or something like that. It hasn't caught any of her smaller seizures where she wasn't convulsing because it was still all just in her brain. I've called to talk to her and noticed something off and turned out they were small seizures. When it does go off it vibrates so that if it is a false alarm the user can tap it and hold the display to signal they are ok. She can't feel the vibration very well so we have a lot of minor scares when we don't hear from her right away. We've had to cancel emergency services before. Still, this watch has helped give my family a lot more peace of mind. Just wish it was a little easier to use with an actual display instead of the dots (which confuse her) and that it wouldn't run down her phone battery quite so much since it requires bluetooth to a smart phone to work. I know someday it won't be a false alarm so we keep treating each time like its the real deal.
I have temporal lobe epilepsy and have one of these embrace watches. As I usually have focal seizures without convulsions that don't threaten my life, the watch doesn't respond to those. But I've had a few generalized convulsive episodes where I've gone into cyanosis and needed help. This watch got my family to me in one of those situations (the only one that's occurred after I got it). I've had far more false alarms, sure, but I'll take that over no alarms at all. Thank you Ms. Picard and Empatica. Let's keep working to manage epilepsy.
I am a veteran with seizures due to a TBI. Thank you for your work helping to use what most use as toys. Giving my family peace of mind means everything to me.
My current Galaxy watch 4 doesn't even have an accurate heartbeat sensor and at this point I only use it for time, so good luck. Im excited to see watches take off in the upcoming years.
Apologies for the delayed response! Thanks to Susanna's comment below! Feel free to browse through our website as indicated below, or send us an email at support@empatica.com for further queries. Thank you :)
This research is consistent with research in the laboratory, but it allows us to see more thoroughly its applications in real life more than it would in a controlled laboratory context.
After losing consciousness and having a convulsing seizure in elementary school, I was diagnosed as epileptic and put on medicine. I stopped taking the meds after a while, and never had a seizure again. I'm almost 30, still never had one since. That wasn't my first seizure, though. My mom believes I had one as a baby where I completely zoned out and got in a trance. I really want to be able to study my own brain to figure out why I had the second one.
@Destiny B Nope, I haven't had any type of follow up in years. I do remember at the time I was at school, in the lunch room and looked up at a light that was flickering. You'd think flashing lights would be my trigger, but I've seen flashing images since then and I've never had another reaction.
I have the embrace 2. It works great for about 6-8 months then the battery stops holding a charge more than 4 hours. Great product with one deadly flaw, the battery. If I have one at night and the battery dies, it can't alert anyone. So much for piece of mind
Hi- Thanks, TED, and to all who help share our work at MIT (and Children's Hospital Boston, and Empatica, and also many other wonderful medical partners). Together we can help stop the wrongful stigmatizing of epilepsy and make sure everybody learns how to reduce the risk of SUDEP. For those who are asking about the watch running AI (machine learning) and now cleared by FDA for monitoring grand mal seizures, it is available from empatica.com .
I have known about this watch, and I have been trying to figure out if insurance will help pay for it. Do you know or have any advice? I'm 41 w/JME since age 20, and still have epileptic activity on EEG, with medication. It seems I have nocturnal seizures now, after I had status epilepticus in 2011. I am scared bc I do primarily live by myself. Thank you :)
@@brutaltruth8691 please, give me a break...mine is genetic as my paternal grandmother had the exact condition, and I believe her grandmother had it as well, but was put away due to the mis/undereducated medical community back in those days.
if you would like to get my info id like to share and talk to people with seizure's how much this has saved my life i almost died 4 times and the watch saved me my and family ran to my side when wake boarding and it happened again while snow boarding in Alaska
I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email herbalmedicalhome@gmail.com and WhatsApp connection is +2348102558553 for help, facebook.com/Doctor-Patrick-119465009919223. . .
left side of my head was on fire.... so many times throughout the years... its all crazy.. just gotta take it step by step... the dejavu is crazy.... so now when I " dream" and see/ feel the expereinces the connections to these people I have never met.. and environments and objects I'm interacting with ... will happen and some point so many years down the line that when I do arrive at those moments I cannot let them ... consume me or overwhelm me because I know they are coming.... breathe ... breathe... relax... I am of this reality.... it sounds crazy... but im not crazy...the seizure at work vindicated my struggles throughout my life... but I could have done better of course. this will help
Can a quick headace (5-10 seconds) that makes a high frequency sound in my ear be a small seizur because it happens adout twice a day, more or less, and is very sore and desturbing
Get checked out. Ice pick headache, ADEAF... Also vestibular migraine came up in Google. Might be something else entirely. Dr needed for context otherwise symptoms might be confused. Might just be an ear infection or something causing nerve irritation. Google even brought up "brain zaps" from SSRIs withdrawal etc. You need to see a specialist.
@@pierredutoit6110 just another possibility... In short you need to see a real Doctor who can put all your symptoms in context and ask questions and examine you. Could be serious or easily fixed.
This watch is meant for communicating individuals not non communicating autistic people. My son has one and all it does it is false alarms that even wake him up at night. He does not communicate nor understand how to shut it off when it goes off. It does not measure his sleep pattern if he wakes up to go to the washroom and goes back to sleep. The watch is no more than an overpriced fit bit watch with a motion sensor.
Yes. My fiance died almost 3 years ago from SUDEP and I also have severe Epilepsy. It is hard for me every single day to think that he's not here and I am.
@@charliewalton3942 Well the peaks are gigantic, there would be no problem detecting those even with analog comparator. They may be trying to colect different data like movement / heartrate alongside the conductance, and trying to teach the AI to detect seizure from those signals instead, so any regular fittracker could be used.
No it doesn't. There is no cure for Epilepsy or seizure disorders, because if there was then there wouldn't be over 3 million people across the world who struggle with it every day.
There are medical alerts here in Australia where you can push the button (or train the dog to) and it automatically sends your location to the emergency team who send ambulant services to where you are. I have had seizures and collapses myself and also have assistance dog and about to get a new assistance dog (as the other is due for retirement) with even further training regarding seizures and collapses - Many dogs can sense the oncoming of seizures well before they occur (around 20 minutes with some dogs and certain training) which can also be a way for the patient to be able to get to a safe location (like a chair or bed or away from hard and sharp surfaces) and to take any preventative measures if they have them (such as medication or electrolytes etc) as well as give them enough time to contact emergency services or carers (or the like) @@prof.rwpicard5368
Not all dogs can do this, and dogs cannot call your loved ones for help, telling them exactly where you are. I have Embrace2 and also have a service dog. I have a very rare form of Epilepsy. My service dog, Ranger, can help warn me sometimes of oncoming seizures and assist me during them, however he cannot call loved ones.
I just want to say thank you. When I was in my early 20's I struggled with epilepsy. After many doctors and medications I somehow became seizure free for 10yrs and was able to stop taking medication. About 8 months ago the seizures started again. I was devastated. It seemed that in the course of 10yrs nothing had changed as far as understanding, curing or detecting. The seizures I experience now come on much quicker and more suddenly than before. I'm only recently learning to accept my epilepsy. I'm learning how to let go of the fear. The creation of this AI smartwatch has given me hope. The knowledge that people like you are looking for ways to improve our lives (not just people with epilepsy but our loved ones as well) and possibly save them.... words cannot describe the feeling.. I can only say thank you.
There might actually be more hope. There’s this quantum computer that they’re making that has ridiculous and I mean ridiculous capacity to understand impossibilities like reality being in 2 different states. Something of this magnitude can easily create cures to cancer, ALL mental illnesses, etc. But of course...it’s a double edge sword. Someone can potentially find a way to mass produce nuclear weapons with it.
We got this watch for my older mom who lives in another state and it alerts me each time it goes off. So far its been a false alarm each time because she was pushing a grocery cart over a bumpy parking lot or brushing her teeth with an electric toothbrush or something like that. It hasn't caught any of her smaller seizures where she wasn't convulsing because it was still all just in her brain. I've called to talk to her and noticed something off and turned out they were small seizures.
When it does go off it vibrates so that if it is a false alarm the user can tap it and hold the display to signal they are ok. She can't feel the vibration very well so we have a lot of minor scares when we don't hear from her right away. We've had to cancel emergency services before. Still, this watch has helped give my family a lot more peace of mind. Just wish it was a little easier to use with an actual display instead of the dots (which confuse her) and that it wouldn't run down her phone battery quite so much since it requires bluetooth to a smart phone to work. I know someday it won't be a false alarm so we keep treating each time like its the real deal.
I have temporal lobe epilepsy and have one of these embrace watches. As I usually have focal seizures without convulsions that don't threaten my life, the watch doesn't respond to those. But I've had a few generalized convulsive episodes where I've gone into cyanosis and needed help. This watch got my family to me in one of those situations (the only one that's occurred after I got it). I've had far more false alarms, sure, but I'll take that over no alarms at all. Thank you Ms. Picard and Empatica. Let's keep working to manage epilepsy.
I am a veteran with seizures due to a TBI. Thank you for your work helping to use what most use as toys. Giving my family peace of mind means everything to me.
My current Galaxy watch 4 doesn't even have an accurate heartbeat sensor and at this point I only use it for time, so good luck. Im excited to see watches take off in the upcoming years.
Embrace/Embrace2 has saved my life SO many times.
This is an extraordinary use of technology, and could be extremely beneficial to the people who are epileptic in the general public.
Hi Rosalind, very good use of technology. I wish you keep working in medical use of technology and take to everyone who needs it.
As someone who has had epilepsy most of her life..... Thank you.
Life saving advanced medical technology
MAKE IT SO!
Embrace/Embrace2 have saved my life SO many times.
@@Riley.and.Severus Does your insurance cover the cost? Thank you & glad to hear you have had success :)
Link to the watch / news about the watch???
Apologies for the delayed response! Thanks to Susanna's comment below! Feel free to browse through our website as indicated below, or send us an email at support@empatica.com for further queries. Thank you :)
This research is consistent with research in the laboratory, but it allows us to see more thoroughly its applications in real life more than it would in a controlled laboratory context.
After losing consciousness and having a convulsing seizure in elementary school, I was diagnosed as epileptic and put on medicine. I stopped taking the meds after a while, and never had a seizure again. I'm almost 30, still never had one since. That wasn't my first seizure, though. My mom believes I had one as a baby where I completely zoned out and got in a trance. I really want to be able to study my own brain to figure out why I had the second one.
Have you had anymore EEGs since then? Maybe it could give information and hints as to how your brain patterns are.
@Destiny B Nope, I haven't had any type of follow up in years. I do remember at the time I was at school, in the lunch room and looked up at a light that was flickering. You'd think flashing lights would be my trigger, but I've seen flashing images since then and I've never had another reaction.
I have the embrace 2. It works great for about 6-8 months then the battery stops holding a charge more than 4 hours. Great product with one deadly flaw, the battery. If I have one at night and the battery dies, it can't alert anyone. So much for piece of mind
Hi- Thanks, TED, and to all who help share our work at MIT (and Children's Hospital Boston, and Empatica, and also many other wonderful medical partners). Together we can help stop the wrongful stigmatizing of epilepsy and make sure everybody learns how to reduce the risk of SUDEP. For those who are asking about the watch running AI (machine learning) and now cleared by FDA for monitoring grand mal seizures, it is available from empatica.com .
I have known about this watch, and I have been trying to figure out if insurance will help pay for it. Do you know or have any advice? I'm 41 w/JME since age 20, and still have epileptic activity on EEG, with medication. It seems I have nocturnal seizures now, after I had status epilepticus in 2011. I am scared bc I do primarily live by myself. Thank you :)
IT'S THE VACCINES THAT CAUSED THESE ISSUES. I would like you to be the Genious that Exposes this More. IT'S THE VACCINES PEOPLE
@@brutaltruth8691 please, give me a break...mine is genetic as my paternal grandmother had the exact condition, and I believe her grandmother had it as well, but was put away due to the mis/undereducated medical community back in those days.
@@brutaltruth8691 and if you are going to be a genius, you may want to know how to spell it
but before the dejavu I would feel my heart sloooow down..... and the sweat... then after the experience... i get very very cold
if you would like to get my info id like to share and talk to people with seizure's how much this has saved my life i almost died 4 times and the watch saved me my and family ran to my side when wake boarding and it happened again while snow boarding in Alaska
I was born with epilepsy and cerebral palsy. I have a twin brother, i was born first. My brother was born with no problems. I take phenytoin for my epilepsy, as a child I was on phenabarbatone, then at 14 i was put on Epilim 500mg. Which caused me to gain lots of weight. I went to live in Canada for a few years where I was taken off eperlim & switched to phenytoin. Which I still take today. As a child I had grand mal seizures, which doctors said I would grow out of. Which I did, but I now have petit mal. It' feels weird when I have it, i can hear all thats going on around me, but ppl and any noise, sound much louder, plus it feels like I'm floating on water. Before the seizure I get the smell like burnt toast. I can have a seizure at any time, night or day. Unpredictable. I feel a little confused when I come round, which lasts for a couple of minutes, then I'm back with you again. Usually a cup of tea helps me recover. I read a lot of blogs where people who shared their testimonies kept mentioning Anti-seizure Herbal medication. I searched for a website I just followed the email address of Doctor Patrick that was shared on these testimonies; I got lucky when I got a reply from Dr. Patrick. I followed his instruction, used Herbal Medicine in less than 2 months, I was already cure because of the changes I was seeing. Within a period of 5 months, I was cured totally forever. I went back to my neurologist, I was checked up and marked epilepsy free. If you need his help you can Contact this herbal doctor via his email herbalmedicalhome@gmail.com and WhatsApp connection is +2348102558553 for help, facebook.com/Doctor-Patrick-119465009919223.
.
.
*Man convulsing on ground*
Watch: BEEEEEEP
The watch that she's talking about, can it alert someone when the person wearing it is having a seizure?
I’m 17 & I just got diagnosed w/ a seizure disorder
WOWWW! this would be absolutely life changing for people!! lets push to get this mass produced for the public!!
It’s crazy that in 2024, there is no serious seizure app on Apple Watch and other usual smart watches…! Empatica should work on it !
left side of my head was on fire.... so many times throughout the years... its all crazy.. just gotta take it step by step... the dejavu is crazy.... so now when I " dream" and see/ feel the expereinces the connections to these people I have never met.. and environments and objects I'm interacting with ... will happen and some point so many years down the line that when I do arrive at those moments I cannot let them ... consume me or overwhelm me because I know they are coming.... breathe ... breathe... relax... I am of this reality.... it sounds crazy... but im not crazy...the seizure at work vindicated my struggles throughout my life... but I could have done better of course. this will help
during my dejavu I would sweat like crazy and almost pass out.... its just CRAAAAAAAAAAAAAAAAAAAAAAAAZY
wow, very interesting!
Hello Roseland, can this work with syncope
When are we going to have a SMARTWATCH that can give me CPR?
I wonder if adding something that gives the user a shock would be enough.
5 years later, smart watches are super powerful, has very good sensors and there’s still not a good app for seizures ! Crazy !
Did anyone else catch that this basically started with a lie detector being played with
I have grown out of my seizures but I should get this just in case it happens again.
Thank you!
Very informative!
How about putting like a speaker or vibrator on the watch?
Possible to get this on an Apple Watch?
*Computers can save lives, we have to beware to not grant them full control.*
Ive seen the future you speak the truth Ossein
Can a quick headace (5-10 seconds) that makes a high frequency sound in my ear be a small seizur because it happens adout twice a day, more or less, and is very sore and desturbing
It sounds like you should seek medical advice from your doctor or a local general practitioner
Good luck
Get checked out. Ice pick headache, ADEAF... Also vestibular migraine came up in Google. Might be something else entirely. Dr needed for context otherwise symptoms might be confused. Might just be an ear infection or something causing nerve irritation. Google even brought up "brain zaps" from SSRIs withdrawal etc. You need to see a specialist.
@@thorkrynu4551 i do suffer from deppresion a little but i dont use ssui
@@pierredutoit6110 just another possibility... In short you need to see a real Doctor who can put all your symptoms in context and ask questions and examine you. Could be serious or easily fixed.
DON'T GET VACCINATED
nice invention......
This watch is meant for communicating individuals not non communicating autistic people. My son has one and all it does it is false alarms that even wake him up at night. He does not communicate nor understand how to shut it off when it goes off. It does not measure his sleep pattern if he wakes up to go to the washroom and goes back to sleep. The watch is no more than an overpriced fit bit watch with a motion sensor.
Congratulations and interesting. ..
AI smartwatches will be a good assets in future
I cried at the end T_T
Revloutionary 👌👌👍
Let’s build AI that makes everybody’s life better
No, let's continue making AI that makes the rich richer.
Lugh Summerson you are entitle to your “opinion”
Yeah cause mankind cant figure out how to be better on its own
Jeremiah was a Gay Bullfrog. And he was Jewish
Give me a problem. I'll fix it. I'll make something. Albert Einstein.
Where can I buy this watch??
It's the Vaccines
Well done🔝👍So good idea😍🔝
What smart watch is that?somebody tell me about that......
Awesome discovery but if cell phones emit radiation wont smart watches do the same?
I've had mine for over a year now and haven't had any problems with that. So idk. -shrug-
Don't get any VACCINES
It detects *applelepsy*
Hillary should get one of those.
She has more than a Watch. She has Goat Lucy. Mark of the Beast👹Hillary is one with the GOAT. GOAT LUCY.
Maybe it's radiation can cause seizures too.
Nice......
Ppl who disliked this, pls replace those who died of the disease .
Yes. My fiance died almost 3 years ago from SUDEP and I also have severe Epilepsy. It is hard for me every single day to think that he's not here and I am.
Cool
Nice research. Sad use of AI buzz word.
Wait, what's the AI's role? Are you collecting skin conductance data from everyone and using it to improve the detection rate?
the AI is so that no one has to watch over the data all the time.
@@charliewalton3942 Well the peaks are gigantic, there would be no problem detecting those even with analog comparator. They may be trying to colect different data like movement / heartrate alongside the conductance, and trying to teach the AI to detect seizure from those signals instead, so any regular fittracker could be used.
Shes a hero of mine..
CANNABIS STOPS SEIZURES
Exactly!
No it doesn't. There is no cure for Epilepsy or seizure disorders, because if there was then there wouldn't be over 3 million people across the world who struggle with it every day.
Access to appropriate treatment is a lot of the problem @@Riley.and.Severus
There's a Cure. DON'T GET VACCINATED
Me
Does not pair properly, waste of money
So no need for a my dog
Is your dog Radioactive?
Did the Doctor give that Child VACCINATIONS???
It's not AI. It's an algorithm.
An AI is an algorithm.
I will check if you are correct.
WOW☺☺☺😊😊😊
Dogs can detect seizures too no need for AI ^_^
Dogs are wonderful! However, I haven't yet seen that they can dial a human to come check on you and tell them your GPS location (when that is needed).
There are medical alerts here in Australia where you can push the button (or train the dog to) and it automatically sends your location to the emergency team who send ambulant services to where you are.
I have had seizures and collapses myself and also have assistance dog and about to get a new assistance dog (as the other is due for retirement) with even further training regarding seizures and collapses - Many dogs can sense the oncoming of seizures well before they occur (around 20 minutes with some dogs and certain training) which can also be a way for the patient to be able to get to a safe location (like a chair or bed or away from hard and sharp surfaces) and to take any preventative measures if they have them (such as medication or electrolytes etc) as well as give them enough time to contact emergency services or carers (or the like) @@prof.rwpicard5368
Not all dogs can do this, and dogs cannot call your loved ones for help, telling them exactly where you are. I have Embrace2 and also have a service dog. I have a very rare form of Epilepsy. My service dog, Ranger, can help warn me sometimes of oncoming seizures and assist me during them, however he cannot call loved ones.
med.ai
Oof I'll need one.
9th 🙏🤟
First
@Martyr4JesusTheChrist you know that is a joke right??
@Martyr4JesusTheChrist Get a life