What is the life expectancy of a person with Marfan syndrome?
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- เผยแพร่เมื่อ 3 ธ.ค. 2013
- Reed Pyeritz, MD, PhD is the Chief of the Division of Medical Genetics, William Smilow Professor of Medicine, and Professor of Genetics at the Smilow Center for Transitional Research at the University of Pennsylvania. Dr. Pyeritz, a founding member of The Marfan Foundation, also directs Penn CIGHT, the Center for the Integration of Genetic Healthcare Technologies. A current member of our Professional Advisory Board, he was its first chair when it was established in 1982.
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No-one with Marfan Syndrome should get married, it is a death sentence.
Be careful babies, you are stronger than you could ever imagine, look after your hearts and protect them.
I know you, I know your suffering and I know why.
Self love❤ is all you need and I will love all of you always because you all take on so much, I feel it.
I have Marfan syndrome, I am 34 years old and I have overcome my disability and I'm only getting stronger and I believe you all have the power to do the same.
Increase your energy, be fearless, be strong.
You are loved more than you know.
Whatever happens you are protected and you will learn in time how powerful you really are.
Understanding duality is essential, we have both light and dark aspects of our subconscious and our thoughts change the world.
Be the change you want to see.
Be the miracle❤
I was told my Marfans Syndrome is a mutation within my own body, as there is no record in either side of my Parents, i have for siblings and they are not effected either.
I was born in 1971 no one knew not till i suffered from an Aneurism dissection to my Aorta in 2003.
In 2018 i had the benatol procedure to replace my entire Aorta at this time my Aorta was measured 7 centimeters. My specialist lied to me for years as my medical records showed, i feld like a Guinea pig.
If it where not for our Heavenly Father i would not be here today.
Hi there I'm so glad to see you made it through the initial dissection 💛❤️
I in the process now on Checking if I have marfans my dad died from a ascending aorta dissection and my aunt had one as well but the Lord spared her. My aortic root grew it was at 3.3cm in 2017 now in 2022 is at 3.9cm the doctors make you wait till it’s at 5.0cm if there isn’t evidence of marfans but if their is they elect surgery at 4.5cm I don’t have the Bubble my aorta grew evenly but I’m still nervous
Oh my God...why aorta grow very fast do ... don't we have any thing to slow down it's process
My brother has marfan disease but we dont know what to do he is 22 now ....as you said the age in this diseass for boys is 30 . There is no treatment so he can live long live???
People can live a long life with Marfan, if they are diagnosed and treatment. Please visit marfan.org and look at the section on treatment. Then, you can ask our nurse questions through the form at marfan.org/ask.
My grandfather has marfan, he’s over 80 and still going, don’t worry, I’m sure your brother will be fine, best of luck.
Me too☺
And I am 25 now
Already developed scoliosis,near sightedness and aortic root dilation(root diameter is already 3.3 cm😄)
Possibly going to need an open heart surgery to prevent heart failure in near future☺
I got this disease from my father and he died at the age of 34 due to massive heart failure😄
So it's very much necessary to diagnose the complications early😄 otherwise ☺
@@random_person_on_internet don't worry you take care of yourself I will pray to god 🙏🙏🙏🙏🙏 you will definitely live long with good health and for my brother also
@@Anjali-sharma437 ☺ well I'll pray for your brother also
But do check whether you have the same thing or not
As in most of the cases it's inherited from the parents,if someone has this disorder his/her siblings have a very high chance to have it too😐
So please consider consulting a cardiologist to BOTH OF YOU get checked