Hi everyone, here is a link to my weekly newsletter, I am adding a PIP section due to the increase in questions/feedback, please feel free to check it out if you are interested: charlieanderson.substack.com/ Thanks EVERYONE for watching and commenting! We will WIN! I send this weekly so its quicker to get updates and I chat about my life that week. Hope this helps as well x
Thanx charlie,great video. Im on pip,lowest rate mobility component. Was on dla ,wen it finished i was told i didnt qualify for pip and had to go to tribuneral. Lowest rate was the outcome. I have type 1 insulin dependant diabetes, copd,and spinal artheritis. Its all taken away who i am as a person but theres little to no understanding. Thanx again for such a great video of how it affects our lives. I wish you peace and continued support.
I started my TH-cam channel about crafting as someone with a disability. TH-cam is full of perfect people with perfect hair, perfect teeth and nails, with perfect lives and families who show their perfect projects. Not mine, am realistic. I applaud you for just having the guts to speak into a camera. Like you, I had to retire from my beloved career at age 44yrs. I had therapy for years to help me cope with accepting that. I was so good at my job too. But when I was able, I took up a free course which helped me get a job which I really enjoyed, best of alll I met some wonderful people and made really good friends. Been years now since I worked. One mantra I use is "I did it while I could" and that helps me. Another is "I might look dead, but I'm just resting" I feel a TH-cam upload coming on, haha. Keep smiling xx Maggie
Hi there I also suffer from cfs no one understands and I agree with your doctor other people will not get it . I'm really lucky with my partner who's my carer and understands i have to rest regularly .
Your comment means so much to me. I know I am not alone and millions of people are suffering as well, but being on here and being able to talk to people that REALLY understand is massively helping me. I hope you are ok, thanks again for taking the time to comment Charlie
@@CharliesJourney thank you for responding, yesterday I signed up to receive your newsletters, and I have just seen you have sent me an email 🤩 hope you are doing ok yourself, take care of you. Regards Liza x
Hi Liza, I have a good one this weekend, I got really really angry about the subject I am writing about....I am sure you will agree with me! Take care of yourself Charlie
Thanks so much for commenting. I think we need more people suffering from chronic illness sharing things in a positive manner........ So we are reminded we are NOT alone! Thanks again for commenting Charlie
Is this Parkhall Charlie. Just started following you, excellent videos, have been ill for 20 plus years with arthritis and dish, on pip for 6 years, another assessment coming up in about 8 months which I'm dreading. Keep up the good work.
Gosh Charlie😢 you just described me to the dot...I thought I was losing my mind with all the gaslighting going on with my surgery , work etc. I'm not alone in this dreadful lonely journey😢😢😢
Hello! You are NOT alone! There are literally millions of us who truly understand each other. But there are not enough positive chronically ill people on social media. Hopefully we can change that with this community! Thank you so much for commenting, if ever you are getting isolated just drop me a message (if there is a delay its due to my body shutting down.....but I will reply as soon as I am awake and alert again). Did you watch the 'battle buddies' vlog? I don't think its a term people are used to......we can be battle buddies Take care Charlie x
Thank you so much, I try to be positive.....but I think its equally important to show people life is NOT perfect. Its so tough being chronically ill! Take care of yourself Charlie
Thanks for sharing Charlie. I too have CFS and Fibromyalgia. However, in addition, I have scoliosis of the spine and rheumatoid arthritis. Life is a huge struggle. People including professionals suggest I go swimming, or walking, or join a gym etc for exercise. Are you kidding me, my body just wants to sleep which I try to fight against. Even the simple act of eating a meal gives me what I call food coma lol. I’m sure you will understand this. After eating a meal, I have an overwhelming need to lie down and sleep. If I go swimming, the exertion of undressing, swimming, showering and getting dried and dressed, I wouldn’t be safe to drive the car home because I would involuntarily be falling asleep. Yet to the outside world I look normal. All this is before I even mention the pain I’m in.
This true, I have stage 5 CKD and no one can see that im ill at 53. But now I have a broken pelvis and more in that area and now having to use sticks to walk short distances. people treat you different. I say the sticks are my least most of worries.
LOL yeah!! I am the same...people see the zimmer frame and think its bad....thats the good bit. It helps the bad bit is on the inside. I had to Google what stage 5 CKD is......sh#t......please tell me you are getting PIP? Also, sticks are a nightmare (I think) have you tried a zimmer with a comfy seat.....its the best thing I have brought to help my quality of life!
Hi Lauren.....yep.....I am pleased the people that do not get it have never suffered from chronic illness. But its really tough. I hope you are ok Charlie
Hi Charlie I know how you feel …I have fibromyalgia/Arthritis in 4 places on my body ,Barrett’s Oesophagus and chronic imbedded constant water infections…I suffer from Anxiety/Depression and I’m just catching up with your videos …Thankyou as I’m gonna insist on seeing a Rheumatologist as I have so many conditions and my daughter said that I may have MS as I’ve only had a doctor say that I have fibromyalgia and I’ve not seen a specialist…listening to your condition I was wondering if it has been brought on by the stress of living in a war Zone …my son was in the Iraq war and he has PTSD and it’s caused Chrohns and colitis,Depression/Anxiety and fatigue. I’m fighting his battle with pip …as he got it at a Tribunal and they have now taken it off him …The disabled fighting for the disabled…you have helped so many people Thankyou beautiful lady X♥️
Hi, I do understand that being on TH-cam will put me under the spot light at some point (I have had threats already). But, I made the decision that its more important to add value to peoples lives. AND I am telling the truth about my circumstances so I do not have to fear them, even if they follow me and Ollie when we go out, they will see me sitting on the floor a LOT I know it will happen at some point xx
@CharliesJourney I know how you feel. Because I have chronic pain as well. And a couple of immune diseases and i'm being checked on at the moment. Thank you so much for your reply that was really nice of you.
I relate so much and I'm sorry 🫂 Tho I've never had a time in my life when I'd be able to "just live", go to the gym and stuff, but it's still similar for me, because I'm grieving the life I could have had instead :c I wish more people would understand, but not at the cost of them experiencing it 🙏🏻
Hi everyone, here is a link to my weekly newsletter, I am adding a PIP section due to the increase in questions/feedback, please feel free to check it out if you are interested:
charlieanderson.substack.com/
Thanks EVERYONE for watching and commenting! We will WIN! I send this weekly so its quicker to get updates and I chat about my life that week. Hope this helps as well x
Thanx charlie,great video. Im on pip,lowest rate mobility component. Was on dla ,wen it finished i was told i didnt qualify for pip and had to go to tribuneral. Lowest rate was the outcome. I have type 1 insulin dependant diabetes, copd,and spinal artheritis. Its all taken away who i am as a person but theres little to no understanding. Thanx again for such a great video of how it affects our lives. I wish you peace and continued support.
I started my TH-cam channel about crafting as someone with a disability. TH-cam is full of perfect people with perfect hair, perfect teeth and nails, with perfect lives and families who show their perfect projects. Not mine, am realistic.
I applaud you for just having the guts to speak into a camera.
Like you, I had to retire from my beloved career at age 44yrs. I had therapy for years to help me cope with accepting that. I was so good at my job too.
But when I was able, I took up a free course which helped me get a job which I really enjoyed, best of alll I met some wonderful people and made really good friends. Been years now since I worked.
One mantra I use is "I did it while I could" and that helps me.
Another is "I might look dead, but I'm just resting"
I feel a TH-cam upload coming on, haha.
Keep smiling xx Maggie
I am subcribed!!!!! xx
Hi there I also suffer from cfs no one understands and I agree with your doctor other people will not get it . I'm really lucky with my partner who's my carer and understands i have to rest regularly .
CFS 26 years though I've found out genes Fotbit at 43 I have asperger's ADHD heds are you hypomobile muscle pain is worst for me
Thank you for sharing and putting into words exactly how I feel xx
Your comment means so much to me. I know I am not alone and millions of people are suffering as well, but being on here and being able to talk to people that REALLY understand is massively helping me.
I hope you are ok, thanks again for taking the time to comment
Charlie
@@CharliesJourney thank you for responding, yesterday I signed up to receive your newsletters, and I have just seen you have sent me an email 🤩
hope you are doing ok yourself, take care of you.
Regards Liza x
Hi Liza, I have a good one this weekend, I got really really angry about the subject I am writing about....I am sure you will agree with me!
Take care of yourself
Charlie
Lovely lady to share her feelings with the world!! ❤
Thanks so much for commenting. I think we need more people suffering from chronic illness sharing things in a positive manner........
So we are reminded we are NOT alone!
Thanks again for commenting
Charlie
Is this Parkhall Charlie. Just started following you, excellent videos, have been ill for 20 plus years with arthritis and dish, on pip for 6 years, another assessment coming up in about 8 months which I'm dreading. Keep up the good work.
Yes!!!! Its me....the one that sits on the floor alot!
Drop me an email: charlieisdisablednotdead@gmail.com
We can link when we are with the dogs! LOL
Gosh Charlie😢 you just described me to the dot...I thought I was losing my mind with all the gaslighting going on with my surgery , work etc. I'm not alone in this dreadful lonely journey😢😢😢
Hello! You are NOT alone! There are literally millions of us who truly understand each other. But there are not enough positive chronically ill people on social media.
Hopefully we can change that with this community!
Thank you so much for commenting, if ever you are getting isolated just drop me a message (if there is a delay its due to my body shutting down.....but I will reply as soon as I am awake and alert again).
Did you watch the 'battle buddies' vlog? I don't think its a term people are used to......we can be battle buddies
Take care
Charlie x
You are an inspiration, as well as an understanding nature
Thank you so much, I try to be positive.....but I think its equally important to show people life is NOT perfect. Its so tough being chronically ill!
Take care of yourself
Charlie
God bless you,what a beautiful person you are.
Thank you so much for commenting!
Take care
Charlie
P.S In person I can be really annoying at times LOL
Totally agree.
Thanks for sharing Charlie. I too have CFS and Fibromyalgia. However, in addition, I have scoliosis of the spine and rheumatoid arthritis. Life is a huge struggle. People including professionals suggest I go swimming, or walking, or join a gym etc for exercise. Are you kidding me, my body just wants to sleep which I try to fight against. Even the simple act of eating a meal gives me what I call food coma lol. I’m sure you will understand this. After eating a meal, I have an overwhelming need to lie down and sleep. If I go swimming, the exertion of undressing, swimming, showering and getting dried and dressed, I wouldn’t be safe to drive the car home because I would involuntarily be falling asleep. Yet to the outside world I look normal. All this is before I even mention the pain I’m in.
This true, I have stage 5 CKD and no one can see that im ill at 53. But now I have a broken pelvis and more in that area and now having to use sticks to walk short distances. people treat you different. I say the sticks are my least most of worries.
LOL yeah!! I am the same...people see the zimmer frame and think its bad....thats the good bit. It helps the bad bit is on the inside.
I had to Google what stage 5 CKD is......sh#t......please tell me you are getting PIP?
Also, sticks are a nightmare (I think) have you tried a zimmer with a comfy seat.....its the best thing I have brought to help my quality of life!
So true, you don't get it until you get it
Hi Lauren.....yep.....I am pleased the people that do not get it have never suffered from chronic illness. But its really tough.
I hope you are ok
Charlie
Hi Charlie I know how you feel …I have fibromyalgia/Arthritis in 4 places on my body ,Barrett’s Oesophagus and chronic imbedded constant water infections…I suffer from Anxiety/Depression and I’m just catching up with your videos …Thankyou as I’m gonna insist on seeing a Rheumatologist as I have so many conditions and my daughter said that I may have MS as I’ve only had a doctor say that I have fibromyalgia and I’ve not seen a specialist…listening to your condition I was wondering if it has been brought on by the stress of living in a war Zone …my son was in the Iraq war and he has PTSD and it’s caused Chrohns and colitis,Depression/Anxiety and fatigue. I’m fighting his battle with pip …as he got it at a Tribunal and they have now taken it off him …The disabled fighting for the disabled…you have helped so many people Thankyou beautiful lady X♥️
Good video Charlie
Your biggest challenge might be the disability.
Agencies who scour Facebook and TH-cam.
Hi, I do understand that being on TH-cam will put me under the spot light at some point (I have had threats already). But, I made the decision that its more important to add value to peoples lives.
AND I am telling the truth about my circumstances so I do not have to fear them, even if they follow me and Ollie when we go out, they will see me sitting on the floor a LOT
I know it will happen at some point xx
@CharliesJourney I know how you feel. Because I have chronic pain as well. And a couple of immune diseases and i'm being checked on at the moment. Thank you so much for your reply that was really nice of you.
I relate so much and I'm sorry 🫂 Tho I've never had a time in my life when I'd be able to "just live", go to the gym and stuff, but it's still similar for me, because I'm grieving the life I could have had instead :c I wish more people would understand, but not at the cost of them experiencing it 🙏🏻