Lyndal's Story | FightMND

Listen to Lyndal's moving piece about losing five family members to Motor Neurone Disease. She touches more on her beautiful sister, Jo, who sadly passed after 6.5 weeks from first symptom.
FightMND are raising money to help find a cure to this insidious disease so please dig deep and help people like Lyndal and so many other families out there who are affected by MND.
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[@stusherman1476]

Lyndal, you are such a strong person. I have MND but had no idea how "nasty" familial MND could be. Know this, people in Connecticut, USA are praying for you and your family.

[@margaretrodd3070]

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⬆️My families story and there were two that were not counted. Years ago many were diagnosed as strokes. Yes my grandmother buried two of her children and Lynda’s mother passed after my grandmother had died. My grandmother buried her husband, her son and one daughter then she died and another daughter died…all MND except my grandmother. My grandmother blamed herself because I heard her say what have I done, however, it was my grandfather side it came from but still felt guilty. It is not your fault, it’s life! Then two grandchildren followed…so we could be run over by a bus today so why worry about something that may or may never happen. I understand your anguish about watching your children die, however, I became a support worker and attended people who had never walked or talked from birth one being in her mid twenties. Try to look at what blessing you do have, support work made me realise if you can get out of bed by yourself you are blessed. Live for today if you can and it’s always what you have “never”thought of that often happens not what you are worrying about. My family knows it’s Russian roulette, just depends which head it falls on. I think accepting it can take years and I realise they were wasted years…I feel your pain and I hope you can move past that and enjoy what is for now! Your daughter should be tested to see if she is a carrier of the gene and if so get a donor egg from a close relative, problem solved by being proactive knowing her child will be ok, not ideal however breaks the chain of reoccurring. My Aunty died in her seventies so do not sit and wait live for today.
Love and thoughts!